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Start Over Descriptor "Biological Specimen Banks" Region durham (n.c.)
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1. PROSPECTIVE BIOREPOSIT0RY PARTICIPANTS' PERSPECTIVES ON ACCESS TO RESEARCH RESULTS.

Author

Beskow, Laura M. and Smolek, Sondra J.

Subjects
*ACCESS to information, *INTERVIEWING, *HUMAN research subjects, *CONFIDENTIAL records
Abstract

The article presents a study on the opinion of the prospective biorepository participants regarding the access on the result of research. The data was gathered through a cognitive interview on 40 individuals wherein 40% were male and 25% were age 55 or older in Durham, North Carolina. It notes that almost 90% expected to access to the results, 75 % does not expect to get individual results and 90% said their opinion will not affect the biorepository.

Published
2009
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