1. Layers of listening: qualitative analysis of the impact of early intervention services for first-episode psychosis on carers' experiences.
- Author
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Lavis A, Lester H, Everard L, Freemantle N, Amos T, Fowler D, Hodgekins J, Jones P, Marshall M, Sharma V, Larsen J, McCrone P, Singh S, Smith J, and Birchwood M
- Subjects
- Adolescent, Adult, Aged, Aged, 80 and over, England, Family Relations, Female, Home Nursing psychology, Humans, Male, Mental Health Services organization & administration, Middle Aged, Patient Care Team, Professional-Family Relations, Psychotic Disorders psychology, Social Support, Stress, Psychological etiology, Young Adult, Caregivers psychology, Psychotic Disorders therapy
- Abstract
Background: Early intervention services (EIS) comprise low-stigma, youth-friendly mental health teams for young people undergoing first-episode psychosis (FEP). Engaging with the family of the young person is central to EIS policy and practice.AimsBy analysing carers' accounts of their daily lives and affective challenges during a relative's FEP against the background of wider research into EIS, this paper explores relationships between carers' experiences and EIS., Method: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS., Results: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers' emotions unacknowledged and compounding an existing lack of help-seeking., Conclusions: By focusing on EIS's engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?, (© The Royal College of Psychiatrists 2015.)
- Published
- 2015
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