1. Quality of care for Black and Latina women living with HIV in the U.S.: a qualitative study.
- Author
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Rice, Whitney S., Fletcher, Faith E., Akingbade, Busola, Kan, Mary, Whitfield, Samantha, Ross, Shericia, Gakumo, C. Ann, Ofotokun, Igho, Konkle-Parker, Deborah J., Cohen, Mardge H., Wingood, Gina M., Pence, Brian W., Adimora, Adaora A., Taylor, Tonya N., Wilson, Tracey E., Weiser, Sheri D., Kempf, Mirjam-Colette, Turan, Bulent, and Turan, Janet M.
- Subjects
HISPANIC Americans ,HEALTH services accessibility ,WOMEN'S health ,HIV-positive persons ,BLACK people ,FOCUS groups ,HEALTH status indicators ,INTERVIEWING ,RESEARCH methodology ,MEDICAL quality control ,PATIENT satisfaction ,PATIENT safety ,QUALITY assurance ,RACE ,PATIENT participation ,QUALITATIVE research ,COMPASSION ,THEMATIC analysis ,PATIENT-centered care ,STAKEHOLDER analysis ,PATIENT autonomy - Abstract
Background: Ending the HIV epidemic requires that women living with HIV (WLWH) have access to structurally competent HIV-related and other health care. WLWH may not regularly engage in care due to inadequate quality; however, women's perspectives on the quality of care they receive are understudied. Methods: We conducted 12 focus groups and three in-depth interviews with Black (90%) and Latina (11%) WLWH enrolled in the Women's Interagency HIV Study in Atlanta, GA, Birmingham, AL, Brooklyn, NY, Chapel Hill, NC, Chicago, IL, and Jackson, MS from November 2017 to May 2018 (n = 92). We used a semi-structured format to facilitate discussions about satisfaction and dissatisfaction with health care engagement experiences, and suggestions for improvement, which were audio-recorded, transcribed, and coded using thematic analysis. Results: Themes emerged related to women's health care satisfaction or dissatisfaction at the provider, clinic, and systems levels and across Institute of Medicine-defined quality of care domains (effectiveness, efficiency, equity, patient-centeredness, safety and timeliness). Women's degree of care satisfaction was driven by: 1) knowledge-based care resulting in desired outcomes (effectiveness); 2) coordination, continuity and necessity of care (efficiency); 3) perceived disparities in care (equity); 4) care delivery characterized by compassion, nonjudgment, accommodation, and autonomous decision-making (patient-centeredness); 5) attention to avoiding side effects and over-medicalization (safety); and 6) limited wait time (timeliness). Conclusions: Quality of care represents a key changeable lever affecting engage in care among WLWH. The communities most proximally affected by HIV should be key stakeholders in HIV-related quality assurance. Findings highlight aspects of the health care experience valued by WLWH, and potential participatory, patient-driven avenues for improvement. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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