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102. Identifying Important Outcomes for Young People With CKD and Their Caregivers: A Nominal Group Technique Study

Author

Hanson, Camilla S., primary, Gutman, Talia, additional, Craig, Jonathan C., additional, Bernays, Sarah, additional, Raman, Gayathri, additional, Zhang, Yifan, additional, James, Laura J., additional, Ralph, Angelique F., additional, Ju, Angela, additional, Manera, Karine E., additional, Teixeira-Pinto, Armando, additional, Viecelli, Andrea K., additional, Alexander, Stephen I., additional, Blydt-Hansen, Tom D., additional, Dionne, Janis, additional, McTaggart, Steven, additional, Michael, Mini, additional, Walker, Amanda, additional, Carter, Simon, additional, Wenderfer, Scott E., additional, Winkelmayer, Wolfgang C., additional, Bockenhauer, Detlef, additional, Dart, Allison, additional, Eddy, Allison A., additional, Furth, Susan L., additional, Gipson, Debbie S., additional, Goldstein, Stuart L., additional, Groothoff, Jaap, additional, Samuel, Susan, additional, Sinha, Aditi, additional, Webb, Nicholas J.A., additional, Yap, Hui-Kim, additional, Zappitelli, Michael, additional, Currier, Helen, additional, and Tong, Allison, additional

Published
2019
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103. Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop

Author

Tong, Allison, primary, Manns, Braden, additional, Wang, Angela Yee Moon, additional, Hemmelgarn, Brenda, additional, Wheeler, David C., additional, Gill, John, additional, Tugwell, Peter, additional, Pecoits-Filho, Robert, additional, Crowe, Sally, additional, Harris, Tess, additional, Van Biesen, Wim, additional, Winkelmayer, Wolfgang C., additional, Levin, Adeera, additional, Thompson, Aliza, additional, Perkovic, Vlado, additional, Ju, Angela, additional, Gutman, Talia, additional, Bernier-Jean, Amelie, additional, Viecelli, Andrea K., additional, O’Lone, Emma, additional, Shen, Jenny, additional, Josephson, Michelle A., additional, Cho, Yeoungjee, additional, Johnson, David W., additional, Sautenet, Bénédicte, additional, Tonelli, Marcello, additional, Craig, Jonathan C., additional, Craig, Jonathan, additional, Tong, Allison, additional, Wang, Angela, additional, Wheeler, David, additional, Pecoits-Filho, Roberto, additional, van Biesen, Wim, additional, Winkelmayer, Wolfgang, additional, Sinha, Aditi, additional, Ong, Albert, additional, Denny, Alexis, additional, Dart, Allison, additional, Eddy, Allison, additional, Kelly, Amy, additional, Viecelli, Andrea, additional, Davenport, Andrew, additional, Narva, Andrew, additional, Sharma, Ankit, additional, Warrens, Anthony, additional, Chapman, Arlene, additional, Teixeira-Pinto, Armando, additional, Kelly, Ayano, additional, Murphy, Barbara, additional, Sautenet, Benedicte, additional, Padilla, Benita, additional, Canaud, Bernard, additional, Pullin, Brian, additional, Schiller, Brigitte, additional, Robinson, Bruce, additional, Hanson, Camilla, additional, Hawley, Carmel, additional, Logeman, Charlotte, additional, Lok, Charmaine, additional, Wanner, Christoph, additional, Herzog, Chuck, additional, Rutherford, Claudia, additional, Ahn, Curie, additional, Sumpton, Daniel, additional, Rosenbloom, David, additional, Harris, David, additional, Baron, David, additional, Johnson, David, additional, White, David, additional, Gipson, Debbie, additional, Fouque, Denis, additional, Eilers, Denise, additional, Bockenhauer, Detlef, additional, O'Donoghue, Donal, additional, Chen, Dongping, additional, Dunning, Dyke, additional, Brown, Edwina, additional, Bavlovlenkov, Elena, additional, Mannon, Elinor, additional, Poggio, Emilo, additional, O'Lone, Emma, additional, Chemla, Eric, additional, Dobbels, Fabienne, additional, Zannad, Faiez, additional, Caskey, Fergus, additional, Tentori, Francesca, additional, Hurst, Frank, additional, Schaefer, Franz, additional, Wong, Germaine, additional, Brunier, Gillian, additional, Strippoli, Giovanni, additional, Rangan, Gopala, additional, Knoll, Greg, additional, Obrador, Gregorio, additional, Feldman, Harold, additional, Coolican, Helen, additional, Yap, Hui-Kim, additional, Groothoff, Jaap, additional, Sloand, James, additional, Tan, Jane, additional, Locke, Jayme, additional, Perl, Jeffrey, additional, Chapman, Jeremy, additional, Dong, Jie, additional, Malyszko, Jolanta, additional, Fox, Jonathan, additional, Dapueto, Juan, additional, Tze-Wah Kao, Juliana, additional, Chow, Kai Ming, additional, Manera, Karine, additional, Azukaitis, Karolis, additional, Polkinghorne, Kevan, additional, Fowler, Kevin, additional, Van, Kim Linh, additional, Budde, Klemens, additional, Lentine, Krista, additional, Cromm, Krister, additional, Hooi, Lai-Seong, additional, James, Laura, additional, Dember, Laura, additional, Zuo, Li, additional, Rostaing, Lionel, additional, Lightstone, Liz, additional, Marson, Lorna, additional, Hamiwka, Lorraine, additional, Krishnan, Mahesh, additional, Ruospo, Marinella, additional, Unruh, Mark, additional, Wilkie, Martin, additional, Howell, Martin, additional, Dew, Mary Amanda, additional, Jardine, Meg, additional, West, Melissa, additional, Zappitelli, Michael, additional, Germain, Michael, additional, Josephson, Michelle, additional, Rocco, Mike, additional, Kleinpeter, Myra, additional, Jefferson, Nichole, additional, Webb, Nick, additional, Evangelidis, Nicole, additional, Gedney, Nieltje, additional, Duquette, Pam, additional, Kerr, Peter, additional, Rossignol, Patrick, additional, Reese, Peter, additional, Blankestijn, Peter J., additional, Roy-Chaudhury, Prabir, additional, Patel, Priti, additional, Taylor, Quinetta, additional, Perlman, Rachel, additional, Oberbauer, Rainer, additional, Mehrotra, Rajnish, additional, Vanholder, Raymond, additional, Fluck, Richard, additional, McGee, Richard, additional, Quinn, Rob, additional, Lee, Robert, additional, Gansevoort, Ron, additional, Perrone, Ronald, additional, Apata, Ronke, additional, Mannon, Roslyn, additional, Youssouf, Sajeda, additional, Davison, Sara, additional, Bernays, Sarah, additional, Naiker, Sarala, additional, Teo, Sharon, additional, Jowsey-Gregoire, Sheila, additional, Carter, Simon, additional, Stuard, Stefano, additional, Alexander, Stephen, additional, McDonald, Stephen, additional, Chadban, Steve, additional, Goldstein, Stuart, additional, Furth, Susan, additional, Samuel, Susan, additional, Shafi, Tariq, additional, Jafar, Tazeen, additional, Hiemstra, Thomas, additional, Pruett, Tim, additional, Lee, Timmy, additional, Vachharajani, Tushar, additional, Jassal, Vanita, additional, Krane, Vera, additional, Torres, Vicente, additional, Jha, Vivekanand, additional, Herrington, Will, additional, Oh, Yoonkyu, additional, Pei, York, additional, and Butt, Zeeshan, additional

Published
2018
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105. Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study

Author

Gutman, Talia, primary, Hanson, Camilla S., additional, Bernays, Sarah, additional, Craig, Jonathan C., additional, Sinha, Aditi, additional, Dart, Allison, additional, Eddy, Allison A., additional, Gipson, Debbie S., additional, Bockenhauer, Detlef, additional, Yap, Hui-Kim, additional, Groothoff, Jaap, additional, Zappitelli, Michael, additional, Webb, Nicholas J.A., additional, Alexander, Stephen I., additional, Goldstein, Stuart L., additional, Furth, Susan, additional, Samuel, Susan, additional, Blydt-Hansen, Tom, additional, Dionne, Janis, additional, Michael, Mini, additional, Wenderfer, Scott E., additional, Winkelmayer, Wolfgang C., additional, Currier, Helen, additional, McTaggart, Steven, additional, Walker, Amanda, additional, Ralph, Angelique F., additional, Ju, Angela, additional, James, Laura J., additional, Carter, Simon, additional, and Tong, Allison, additional

Published
2018
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108. Editorial

Author

Woo, Keng-Thye, Lee, Grace SL, and Yap, Hui-Kim

Published
1997

110. Consensus recommendations for the care of children receiving chronic dialysis in association with the COVID-19 epidemic.

Author

Shen, Qian, Wang, Mo, Che, Ruochen, Li, Qiu, Zhou, Jianhua, Wang, Fang, Shen, Ying, Ding, Jie, Huang, Songming, Yap, Hui-Kim, Warady, Bradley A, Xu, Hong, and Zhang, Aihua

Subjects
CHRONIC kidney failure complications, CONSENSUS (Social sciences), HEMODIALYSIS facilities, HOME hemodialysis, MEDICAL care, MEDICAL protocols, PATIENTS, PERITONEAL dialysis, RISK assessment, COVID-19, CHILDREN
Abstract

Coronavirus disease 2019 (COVID-19) has rapidly spread not only in China but throughout the world. Children with kidney failure (chronic kidney disease (CKD) stage 5) are at significant risk for COVID-19. In turn, a set of recommendations for the prevention and control of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) and COVID-19 in pediatric hemodialysis (HD) centers and in home peritoneal dialysis (PD) settings have been proposed. The recommendations are based on the epidemiological features of the SARS-CoV-2 virus and COVID-19 disease, susceptibility factors, and preventive and control strategies. These recommendations will be updated as new information regarding SARS-CoV-2 and COVID-19 becomes available. [ABSTRACT FROM AUTHOR]

Published
2020
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111. Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference

Author

Aymé, Ségolène, primary, Bockenhauer, Detlef, additional, Day, Simon, additional, Devuyst, Olivier, additional, Guay-Woodford, Lisa M., additional, Ingelfinger, Julie R., additional, Klein, Jon B., additional, Knoers, Nine V.A.M., additional, Perrone, Ronald D., additional, Roberts, Julia, additional, Schaefer, Franz, additional, Torres, Vicente E., additional, Cheung, Michael, additional, Wheeler, David C., additional, Winkelmayer, Wolfgang C., additional, Angelis, Aris, additional, Antignac, Corinne, additional, Bae, Kyongtae, additional, Bergmann, Carsten, additional, Bleyer, Anthony J., additional, Bos, Marjolein, additional, Budde, Klemens, additional, Bull, Katherine, additional, Chauveau, Dominique, additional, Cnaan, Avital, additional, Cornel, Martina, additional, Cosyns, Etienne, additional, de la Fosse, Jane, additional, Ding, Jie, additional, Gear, Susie, additional, Goodship, Timothy H.J., additional, Goodyer, Paul, additional, Gross, Oliver, additional, Harr, Nicole, additional, Harris, Peter C., additional, Harris, Tess, additional, Höfele, Julia, additional, Hogan, Marie C., additional, Hoorn, Ewout, additional, Horie, Shigeo, additional, Kashtan, Clifford E., additional, Kerecuk, Larissa, additional, Kleta, Robert, additional, Konrad, Martin, additional, Langman, Craig B., additional, Mariz, Segundo, additional, McKerracher, Gayle, additional, Nieuwenhoven, Annet, additional, Odland, Dwight, additional, Olinger, Eric, additional, Ortiz, Alberto, additional, Pei, York, additional, Pirson, Yves, additional, Rayner, Brian L., additional, Remuzzi, Giuseppe, additional, Renault, Daniel, additional, Salomon, Rémi, additional, Servais, Aude, additional, Smith, Richard J., additional, Soliman, Neveen A., additional, Stengel, Bénédicte, additional, Storm, Marjolein, additional, Torra, Roser, additional, van't Hoff, William, additional, Vargas-Poussou, Rosa, additional, Vroom, Elizabeth, additional, Wanner, Christoph, additional, and Yap, Hui-Kim, additional

Published
2017
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112. Clofazimine in Mycobacterium abscessusperitonitis: A pediatric case report

Author

Pinapala, Archana, Koh, Lee Jin, Ng, Kar-Hui, Tambyah, Paul A, and Yap, Hui-Kim

Abstract

Peritonitis- and catheter-related infections due to nontuberculous mycobacteria (NTM) including Mycobacterium abscessushave been reported among adults on peritoneal dialysis (PD). There is no recommended antimicrobial regimen for the treatment of M. abscessusperitonitis. Clofazimine has emerged as an important adjuvant antimicrobial treatment of M. abscessuslung infection. We report, to our knowledge, the first case of M. abscessusPD peritonitis in a child treated successfully using clofazimine as a novel adjuvant therapy to amikacin and clarithromycin. Her clinical features were similar to those of bacterial peritonitis, but she had persistence of symptoms and high inflammatory markers despite empirical therapy for peritonitis. Bacterial culture of PD effluent became positive for M. abscessusafter 5 days. There was complete symptom resolution after 6 days of multidrug therapy. Due to ototoxicity, amikacin was discontinued after 6 weeks, while clarithromycin and clofazimine were continued for 9 months to ensure complete pathogen eradication before a planned renal transplant. A high index of suspicion in refractory or culture-negative cases is important for the diagnosis of NTM peritonitis. Multidrug therapy is recommended for M. abscessusinfections. Clofazimine was chosen as a novel adjunct antimicrobial because of its pharmacokinetics, ease of administration, cost-effectiveness, and lack of serious adverse events.

Published
2021
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113. Examining Health-Related Quality of Life (HRQoL), disease-specific quality of life, and coping behaviors in adolescents with renal disease

Author

Marion M. Aw, Deborah Wan, Yap Hui Kim, and Lynette S. Tay

Subjects
Health related quality of life, Disease specific, medicine.medical_specialty, Medical treatment, business.industry, medicine.medical_treatment, General Medicine, Coping behavior, Disease, humanities, Psychiatry and Mental health, Quality of life, Physical therapy, Medicine, business, Psychosocial, Dialysis, Clinical psychology
Abstract

Introduction To examine and compare the Health-Related Quality of Life (HRQoL) and disease-specific HRQoL of pediatric renal dialysis and transplant patients based on patients' perspectives. The coping strategies employed by these two groups of patients were also investigated. Methods Ten adolescents who had undergone kidney transplants (mean age 17.80 ± 1.55 years) and 19 adolescents who were receiving dialysis treatments (mean age 17.16 ± 2.19 years) participated in the study and were asked to complete three questionnaires: PedsQL 4.0 Generic Core Module, PedsQL End-Stage Renal Disease Module, and the KIDCOPE. Results Compared to pediatric kidney transplant patients, adolescents on dialysis reported more difficulties with school functioning and lower overall HRQoL. They also reported having more concerns with adhering to treatment and diets, more problems with family and peer interaction, and lower disease-specific HRQoL than transplant patients. Differences in preferred types of coping strategies were found based on gender and type of medical treatment. Discussion Directions for future research to further investigate the variables associated with psychological wellbeing and adaptive coping among pediatric renal patients were discussed based on study findings. Possible psychosocial variables that might have influenced detected differences in patients' HRQoL outcomes between the transplant and dialysis groups were also discussed, with a focus on the types of coping strategies employed by the respective patient groups.

Published
2011

116. Prescribing peritoneal dialysis for high-quality care in children

Author

Brown, Edwina, Warady, Bradley A, Schaefer, Franz, Bagga, Arvind, Cano, Francisco, McCulloch, Mignon, Yap, Hui-Kim, and Shroff, Rukshana

Abstract

Background: Peritoneal dialysis (PD) remains the most widely used modality for chronic dialysis in children, particularly in younger children and in lower and middle income countries (LMICs). We present guidelines for dialysis initiation, modality selection, small solute clearance, and fluid removal in children on PD. A review of the literature and key studies that support these statements are presented.Methods: An extensive Medline search for all publications on PD in children was performed using predefined search criteria.Results: High-quality randomized trials in children are scarce and current clinical practice largely relies on data extrapolated from adult studies or drawn from observational cohort studies in children. The evidence and strength of the recommendation is GRADE-ed, but in the absence of high-quality evidence, the opinion of the authors is provided and must be carefully considered by the treating physician, and adapted to local expertise and individual patient needs as appropriate. We discuss the timing of dialysis initiation, factors to be considered when selecting a dialysis modality, the assessment and management of volume status on PD, achieving optimal small solute clearance, and the importance of preserving residual kidney function. While optimal dialysis must remain the goal for every patient, a careful discussion with fully informed patients and caregivers is important to understand the patient and family’s expectations of dialysis and reasonable adjustments to the dialysis program may be considered in accordance with a philosophy of shared decision-making.Conclusions: There continues to be very poor evidence in the field of chronic PD in children and these recommendations can at best serve to guide clinical decision-making. In LMICs, every effort should be made to conform to the framework of these statements, taking into account resource limitations.

Published
2020
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127. Sonographic screening for renal tract anomalies associated with congenital heart disease

Author

Murugasu B, Chan Kit‐Yee, William C. L. Yip, John S. H. Tay, Wong Hock‐Boon, and Yap Hui‐Kim

Subjects
Adult, Heart Defects, Congenital, Male, Pediatrics, medicine.medical_specialty, Adolescent, Heart disease, Urinary system, Hydronephrosis, Kidney, medicine, Humans, Abnormalities, Multiple, Radiology, Nuclear Medicine and imaging, cardiovascular diseases, Child, Ultrasonography, business.industry, Incidence (epidemiology), Infant, Newborn, Infant, medicine.disease, Surgery, medicine.anatomical_structure, El Niño, Dysplasia, Child, Preschool, Agenesis, Female, business
Abstract

The incidence of structural renal tract abnormalities in 109 children with documented congenital heart disease (CHD) was studied using real-time sonography. In these children, 11.9% had associated urologic anomalies, which included hydronephrosis, duplication, ectopia, agenesis, and dysplasia of kidneys. Children with associated extracardiac anomalies had a significantly higher incidence of renal tract anomalies (39.1%) compared to those with isolated CHD (4.7%). Therefore, sonographic screening of the renal tract should be performed routinely in patients with CHD, especially in those with multiple congenital defects.

Published
1990

129. Genomics and Disease Progression in IgA Nephritis

Author

Woo, Keng Thye, primary, Lau, Yeow Kok, additional, Choong, Hui Lin, additional, Tan, Han Khim, additional, Foo, Marjorie WY, additional, Lee, Evan JC, additional, Anantharaman, Vathsala, additional, Lee, Grace SL, additional, Yap, Hui Kim, additional, Yi, Zhao, additional, Fook-Chong, Stephanie, additional, Wong, Kok Seng, additional, and Chan, Choong Meng, additional

Published
2013
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131. National Health Survey on the Prevalence of Urinary Abnormalities in the Population: then and now (1975 to 2012)

Author

Woo, Keng Thye, primary, Chan, Choong Meng, additional, Wong, Kok Seng, additional, Choong, Hui Lin, additional, Tan, Han Khim, additional, Foo, Marjorie WY, additional, Anantharaman, Vathsala, additional, Lee, Evan JC, additional, Tan, Chorh Chuan, additional, Lee, Grace SL, additional, Yap, Hui Kim, additional, Tan, Hwee Boon, additional, Chin, Yok-Mooi, additional, and Lim, Cheng Hong, additional

Published
2012
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134. The bone and mineral disorder of children undergoing chronic peritoneal dialysis

Author

Borzych, Dagmara, primary, Rees, Lesley, additional, Ha, Il Soo, additional, Chua, Annabelle, additional, Valles, Patricia G., additional, Lipka, Maria, additional, Zambrano, Pedro, additional, Ahlenstiel, Thurid, additional, Bakkaloglu, Sevcan A., additional, Spizzirri, Ana P., additional, Lopez, Laura, additional, Ozaltin, Fatih, additional, Printza, Nikoleta, additional, Hari, Pankaj, additional, Klaus, Günter, additional, Bak, Mustafa, additional, Vogel, Andrea, additional, Ariceta, Gema, additional, Yap, Hui Kim, additional, Warady, Bradley A., additional, and Schaefer, Franz, additional

Published
2010
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150. Acute glomerulonephritis?changing patterns in Singapore children

Author

Yap, Hui-Kim, primary, Chia, Kee-Seng, additional, Murugasu, Belinda, additional, Saw, Aik-Hin, additional, Tay, John S. H., additional, Ikshuvanam, Malati, additional, Tan, Keng-Wee, additional, Cheng, Heng-Kok, additional, Tan, Cheng-Lim, additional, and Lim, Cheng-Hong, additional

Published
1990
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