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The COVID-19 pandemic has brought unprecedented, major challenges to the ethical conduct of research including challenges for the rapid and robust ethical review of biomedical research. The Indian Council of Medical Research's "National Guidelines for Ethics Committees Reviewing Biomedical and Health Research during COVID-19 Pandemic" aim to assist ethics committees in this time of crisis, whilst simultaneously protecting researchers and research participants. Whilst ethics committees are encouraged to approve studies rapidly, the Indian guidelines also make clear that no shortcuts will be taken. Informed consent must be obtained innovatively, but cannot be dispensed with. Vulnerable people should only be involved in clinical research that is relevant to their health needs. Approaching communities for research also requires new, trust-building methods, given that healthcare workers and researchers have been assaulted during their COVID-19 research. Importantly, the media must carry their share of responsibility and avoid spreading fake news. From an Indian perspective, the question of whether we are sitting on a volcano that might erupt at any time causing more damage than we ever expected is currently unclear. Only global collaborative efforts will help to tide over in the present crisis.

There is too much that we do not know about COVID-19. The longer we take to find it out, the more lives will be lost. In this paper, we will defend a principle of "risk parity": if it is permissible to expose some members of society (e.g. health workers or the economically vulnerable) to a certain level of "ex ante" risk in order to minimize overall harm from the virus, then it is permissible to expose fully informed volunteers to a comparable level of risk in the context of promising research into the virus. We apply this principle to three examples of risky research: skipping animal trials for promising treatments, human challenge trials to speed up vaccine development, and low-dose controlled infection or "variolation." We conclude that if volunteers, fully informed about the risks, are willing to help fight the pandemic by aiding promising research, there are strong moral reasons to gratefully accept their help. To refuse it would implicitly subject others to still graver risks.

The importance of patient-centered decisions is embedded throughout clinical practice. The principle that the patient is at the center of all decisions has helped form the contemporary approach to death and dying. The concept of a "good death" will naturally mean different things to different individuals, but is based on the foundation of being pain free, comfortable, and able to make informed decisions. Potential donors are faced with many personal, ethical, and often spiritual considerations when they come to think about their wishes after death. One consideration is that of a "good death." This article explores how the concept of a "good death" may be applied to anatomy. Where first-person consent is in place, the motivating factors frequently include the wish for others to learn from the donation, and this notion may form part of the "good death" for the donor. Such motivations may impact positively on how students feel about dissecting and may provide comfort, assuaging feelings of discomfort, and allowing students to focus on anatomical learning. For donors where second-person consent is in place, the concept of a "good death" must depend on whether the individual wanted to donate their body in the first instance. The notion of a "bad death" may also be considered with body donation where no consent for donation is in place. This article proposes that there is ultimately a place for the concept that a "good death" may involve an individual donating their body to medical education.

Activist groups in ethnographic research re-negotiated our Ethics Committee's expected order of securing consent before data collection, demonstrating the importance of researchers taking time to build relationships first. Although the Ethics Committee expected us to obtain group consent, the literature provides little guidance on how to do this. We developed a Memorandum of Understanding to summarize what forms of participant observation each group agreed to and how we would reciprocate. In this article, we (re)conceptualize consent, using analogies to consent in social contract theory and sexual relations to offer a critical perspective on what constitutes consent. We argue that taking time to build relationships "before" expecting research participants to consent and replacing informed consent with a negotiated agreement is a more ethical approach. We advocate for Ethics Committees to expand the meaning of 'informed consent' and review its timing, especially for ethnographic research with groups.

This article introduces an accessible approach to implementing unmoderated remote research in developmental science -- research in which children and families participate in studies remotely and independently, without directly interacting with researchers. Unmoderated remote research has the potential to strengthen developmental science by: (1) facilitating the implementation of studies that are easily replicable, (2) allowing for new approaches to longitudinal studies and studies of parent-child interaction, and (3) including families from more diverse backgrounds and children growing up in more diverse environments in research. We describe an approach we have used to design and implement unmoderated remote research that is accessible to researchers with limited programming expertise, and we describe the resources we have made available on a new website (discoveriesonline.org) to help researchers get started with implementing this approach. We discuss the potential of this method for developmental science and highlight some challenges still to be overcome to harness the power of unmoderated remote research for advancing the field.

Background: Rehabilitation counselors are becoming more adept at providing distance services. Objective: Focused on the ethical use of digital technology, the purpose of this article is to highlight ethical considerations when using digital technologies professionally. Methods: Reviewing the ethical standards of the 2017 Code of Professional Ethics for Rehabilitation Counselors, this article examines the current ethical standards governing the use of technology, distance counseling, and social media. Findings: It is critical for rehabilitation counselors to understand how affordances and constraints of technology will continue to mediate the professional practice of rehabilitation counseling. Conclusion: The professional practice of rehabilitation counseling will increasingly involve digital technology.

Education is recognized a human right for all. Though, Indigenous communities do not yet enjoy their full rights to education and are put at risk of losing their Indigenous culture and identity. A new research initiative, holding dialogues discussing the perceived outcomes of quality education in the eyes of several stakeholders, shows that access and retention in equitable and inclusive quality education as described in "SDG 4" are highly valued. The research was jointly developed and carried out by researchers and Indigenous communities in 29 countries. Twenty-first century knowledge and skills are crucial for future Indigenous generations to create their livelihood and successfully engage in both Indigenous community life as well as mainstream society. Learning within formal school systems to understand their Indigenous heritage and keep the connection to their environment despite aspiring modern lifestyles, creates relevance which enhances both learning and retention. Beyond twenty-first century competencies, vital elements of education quality seen as relevant for Indigenous youth are aligned with education for sustainable development and applicable for all learners.

The consent process for publication of clinical images in medical journals varies widely. The extent of this variation is not known. It is also not known whether journals follow their own stated best practices or the guidance of the International Committee of Medical Journal Editors (ICMJE). We assessed consent requirements in a sample of 10 top impact factor general medicine journals that publish clinical images, examining variability in consent requirements for clinical image publication and congruence of requirements with the recommendations of the ICMJE. Clinical image consent requirements varied widely from journal to journal. None of the studied journals, even amongst n = 4 ICMJE members or n = 8 journals who self-report adherence to ICMJE guidelines, comply with all of the recommendations of the ICMJE. Half of studied journals require a journal-specific consent form. Among top medical journals there is significant heterogeneity in consent requirements for clinical images. Variability of consent requirements is neither practical nor rational; inconsistent requirements create uncertainty for authors, present impediments to dissemination of scholarship, and undermine a shared professional understanding of how best to protect patient privacy. We propose adopting a standardized consent form and process for publication of identifiable images in medical journals, with uniform elements and explicit definitions.

Social media is a central component in the lives of many young people, and provides innovative potential to conduct research among this population. Ethical issues around online research have been subject to much debate, yet young people have seldom been consulted to provide a youth perspective and voice. Eight (8) focus groups involving 48 Grade 9 Western Australian secondary school students aged 13-14 years were held in 2012, to investigate how young people perceive the feasibility and acceptability of social media when used as a research tool to investigate various issues relevant to their mental health and wellbeing. Whilst young people recognise many benefits of researchers using social media in this way, such as its relevance, innovation and accessibility, there were salient issues of privacy, consent, and practicality that require careful negotiation. There is a need for continued exploration and scientific debate of the moral and ethical implications of using social media for research, to help ensure this is employed in an appropriate and effective way that is respectful of and sensitive to the needs and views of young people.

This paper has firstly discussed the topic of Ethical Issues in Education, and has accordingly highlighted the fact that ethics are not something to deem at the commencement of a research project or fieldwork, but rather throughout the entire research process. Furthermore, two of the most important ethical issues have been given consideration--Informed Consent and involvement of children in research. The first element is informed consent, which is concerned with the question of being part of the research process, whereby the result is an informed option concerning the voluntary contribution in a research. In addition, some of the different issues raised from it and alongside suggested ways of addressing them have been discussed. The second element is the involvement of children in research. Moreover, the significance of the ethical issues regarding the right of children in research participation in order to express and report their views and experiences in more detail with regard to parental consent and confidentiality has been stated.

Preparing to become an effective primary school mathematics teacher is a challenging and complex task; and is influenced by one's past experiences, personal knowledge of, and beliefs and attitudes towards mathematics. This paper examines the experiences of a small group of pre-service teachers who did not pass their first year mathematics education course. As part of their second attempt at this course for a Bachelor of Teaching (primary) degree the pre-service teachers engaged in a mathematical investigation. Data suggests that undertaking an open-ended mathematical investigation facilitated positive shifts with regard to the pre-service teachers' knowledge of, and beliefs and attitudes towards, mathematics. Participation in such investigations appears to have potential for supporting pre-service teachers who have initially experienced difficulties in their journey to becoming effective mathematics educators.

A growing number of education and social science researchers design and conduct online research. In this review, the Internet Research Ethics (IRE) policy gap in Canada is identified along with the range of stakeholders and groups that either have a role or have attempted to play a role in forming better ethics policy. Ethical issues that current policy and guidelines fail to address are interrogated and discussed. Complexities around applying the human subject model to internet research are explored, such as issues of privacy, anonymity, and informed consent. The authors call for immediate action on the Canadian ethics policy gap and urge the research community to consider the situational, contextual, and temporal aspects of IRE in the development of flexible and responsive policies that address the complexity and diversity of internet research spaces.

Fiscal responsibility matters at institutions of higher learning, especially when they are public and supported by taxpayers, but colleges are not businesses. The consequences of fiscal irresponsibility profoundly affect students, faculty, and staff, as well as teaching, research, and service activities. This essay gives a brief history of the financial mismanagement at Georgia Perimeter College, and discusses how fiscal responsibility, while critical, serves as only one barometer for assessing a business or a college. Moral and ethical behavior matters as well. Jeffrey Portnoy, director of the honors program at Georgia Perimeter College, describes an incident in which his name was added, without his knowledge or consent, in correspondence from American Honors, implying his endorsement of American Honors. His response involved seeking legal counsel and composing a letter to the president of American Honors demanding they cease and desist from including him or his name in the future. In taking a stand against authority, he hopes to serve as a model for his students. He wants them to challenge authority, to speak and act when they perceive that a process and subsequent results have gone awry.

Preparing secondary students with autism spectrum disorder (ASD) for a variety of potential professions is important to enhance their postsecondary employment outcomes. This article provides step-by-step guidelines for practitioners to use video modeling interventions to develop the customer service skills of students with ASD who are employed or participating in employment experiences in their communities. Video modeling is an evidence-based practice for learners with ASD that can be used as a viable workplace support.

This research explored how young children's research participation can be enhanced when an interactive narrative approach is embedded within research to enhance children's consent to participation and their understanding of the research process. The context for this research was a 1-h, science outreach programme delivered into Australian playgroups. An interactive digital story was devised to inform nine children (aged 3-4 years) about the purposes of the research. Across a period of 11-16 weeks and across three occasions, an informing story about the research was used with the children to elicit their descriptions and explanations about their research role. Data gathered from semi-structured interviews with parents and audio- and video-recorded conversations with children also aided in the analyses to understand how children perceived their role as a research participant. Through cross-case analysis, six aspects of meaningful research participation were identified from children's and parents' responses: engagement, journeying, authenticity, consequence, ownership, and identity. The research extends current knowledge about young children's rights to understand their participatory role in research and about the considerations that can be put in place to ensure participation is personally meaningful to children.

Collaboration between university researchers and community agencies offers the opportunity to pilot innovative, evidence-informed interventions. Partnerships of this nature also present unique ethical dilemmas to community agencies, particularly regarding research and agency policies, navigating privacy protections, adequate and consistent training, and balancing research and clinical priorities. The University of Michigan and Starfish Family Services have partnered since 2012 to pilot infant mental health group models in high-risk communities. University and agency teams have relied on frequent and open communication to navigate operating procedures, training needs, and sustainability issues while maintaining a focus on high-quality programming for vulnerable children and families. This 7-year relationship supports the premise that ethical and procedural challenges associated with community-based research are surmountable and the outcomes are valuable.

Background: It is well established that valproate, and its valproic acid, sodium valproate, and valproate semisodium forms is a highly teratogenic drug and evidence suggests that use in pregnancy leads to physical birth defects in 10% of children born compared with a background rate of 2% to 3%. Congenital malformations associated with valproate are predominantly neural tube defects, clefting abnormalities, cardiovascular defects, genitourinary defects in males, and musculoskeletal defects. There is also increased risk of developmental delays and this includes delays in walking, talking, poor language skills, memory problems, and low intellectual ability in approximately 30 to 40% children born to mothers taking valproate. Furthermore, developing foetuses, if exposed to valproate in-utero, are at increased risk of autistic spectrum disorder (approximately three-fold), and also more likely to develop symptoms of attention-deficit/hyperactivity disorder. Subsequently valproate preparations prescribed to treat epilepsy are now contraindicated in pregnancy unless there is no suitable alternative treatment. In addition, valproate preparations prescribed for bipolar disorder have an absolute contraindication in pregnancy. Implications for practice: In order for valproate containing medicines to be prescribed for women of child bearing potential a risk acknowledgment form must be completed annually. For people without capacity to consent the form may be completed by a relative or other appropriate person. However, for people with intellectual disabilities, even with capacity, healthcare professionals need to ensure that the information on the form is accessible in order that they can understand it. They may not choose to give consent for a third party to complete the form on their behalf. Often intellectual disability nurses have a pivotal role, on behalf of the interdisciplinary team (IDT), in identifying women of child bearing potential who are currently prescribed valproate. Notwithstanding the IDT also has a role in engaging with patients during discussions to ensure they understand the conditions of prescribing. It is important that the IDT understand their role in patient engagement to facilitate shared decision making. Therefore, for women with intellectual disabilities with capacity, consent to treatment must be 'informed', and all risks will need to be communicated to the woman, exploring alternatives in order to comply with the Montgomery Judgement. Specialist intellectual disability nurses have a pivotal role in discussing appropriate contraceptive advice, and sign-posting women to local services. Conclusion: Valproate preparations prescribed to treat epilepsy are contraindicated in pregnancy unless there is no suitable alternative treatment; in addition, valproate preparations prescribed for bipolar disorder have an absolute contraindication in pregnancy. It is imperative that specialist intellectual disability services are able to advise the wider primary health care team on best practice. Additionally, those with prescribing responsibilities, and particularly specialist intellectual disability epilepsy nurses, along with the wider IDT, must be aware of these new regulations.

Non-consensual sterilization is one of the characteristic historical abuses that took place mainly in the first half of the 20th century. People with intellectual disability (ID) were a prime target as part of the ideology of negative eugenics. In certain jurisdictions, laws were in force for several decades that permitted sterilization without the need for consent or with consent from third parties. The long-term adverse effects on those sterilized against their will have only more recently been recognized. In the latter half of the 20th century, human rights treaties were introduced and developed; they have, in the main, curbed sterilization abuses. Courts have developed more stringent criteria for making decisions on applications for sterilization, and nowadays there are mostly adequate safeguards in place to protect those with ID from non-consensual sterilization. The only exception should be the particular case in which, all medical and social factors having been taken into account, sterilization is overwhelmingly thought to be the right decision for the individual unable to give consent.

Research on nonsuicidal self-injury (NSSI) has grown significantly over the last 15 years, with much of this work focused on factors that initiate and maintain NSSI among school-aged youth. Although this work is important, it does raise several ethical concerns. In this article we outline key ethical issues underlying NSSI research in schools and offer recommendations for conducting ethically sound and productive research in this area. Ethical concerns addressed include: 1) recruitment of minors to research; 2) disclosure and confidentiality; 3) the risk of iatrogenic effects; 4) duty of care; 5) engaging schools in research; and 6) safety of the researchers. In each area, we offer recommendations to assist researchers, ethics committees, and schools in working together to conduct ethical NSSI research, further our understanding of NSSI, and address and respond to these behaviors in schools.

Background: In recent times, people with intellectual disabilities are increasingly included in research studies; however, their participation in sensitive research such as palliative and end-of-life care is less frequent. The reasons for not including people with intellectual disabilities in these kinds of research studies are issues in relation to obtaining consent, difficulty of recruiting, and engaging and collecting relevant information. This paper aimed to provide insight into how people with intellectual disabilities could be proactively included in research which is sensitive to their unique needs. Method: This study included 13 people with mild and moderate intellectual disabilities and explored their end-of-life care needs from their perspectives. After obtaining appropriate ethical approval, the research process was commenced. Applying the constructive grounded theory approach, data were collected and analysed by using the constant comparative method. A story from the book "Am I Going to Die" was used to enhance the understanding of the concepts of death and dying while collecting data. Findings: Participants with intellectual disabilities were recruited by establishing a close relationship with service providers. Capacity to consent and informed consent were fostered by carefully explaining the research process through easy-to-read information, and the data collection process was successfully completed by having a person-centred approach. Conclusion: People with intellectual disabilities can be successfully included in research. This is possible when their diverse needs are carefully considered, and appropriately developed protocols which meet their needs in relation to their capacities and abilities are utilised. This approach requires a flexible and inclusive research process.

Participants in educational technology research regularly share personal data which carries with it risks. Informing participants of these data sharing risks is often only done so through text contained within a consent form. However, conceptualizations of data sharing risks and knowledge of responsible data management practices among teachers and learners may be impoverished--limiting the effectiveness of a consent form in communicating such risks in a manner that adequately supports participants in making informed decisions about sharing their data. At two high schools participating in an educational research project involving the use of technology in the classroom, we investigate teacher and student conceptions of data sharing risks and knowledge of responsible data management practices; and introduce a communication approach that attempts to better inform educational technology research participants of such risks. Results of this study suggest that most teachers have not received formal training related to responsibly managing data; and both teachers and students see the need for such training as they come to realize that their understanding of responsible data management is underdeveloped. Thus, efforts beyond solely explaining data sharing risks in an informed consent form may be needed in educational technology research to facilitate ethical self-determination.

When conceptualising knowledge gained from tapping into an internet data pool, one may question many things which can include the role of the researcher and the researched, privacy and ethics, intention, authenticity and the vastness of scope. The researcher, regardless of research intention including moral or ethical positions, must acknowledge that there are billions of nuances affecting online user participation. Ethical boundaries surrounding available data deemed 'public' in a program like Twitter, for example, are not easily wrapped in a terms of service agreement. Ethical problems in virtual research are expansive, and it is necessary to frame how and why researchers should address them. In the following paper, I outline some significant ethical issues in virtual research and address perceived pluralities as enmeshment. Drawing on Barad's (2007, 2010, 2014) theoretical model of diffraction, I poke holes through ethical blurriness and think through ethical possibilities for researchers, including online presence, data collection practices and participant agency.

Correspondence testing to research discrimination in the marketplace has become common and the use of internet applications has allowed researchers to send greater numbers of applications. While questions of research ethics always arise when planning a correspondence test, the issue receives relatively little attention in published correspondence tests. This paper addresses the question of ethics in correspondence testing in the age of ready internet access. It focusses on the ethical issues that arise in correspondence testing, looking at potential problems (regarding voluntary participation, informed consent, deception, entrapment of employers, employers' rights) and possible solutions, and technical challenges. European country examples show that the ethical questions raised in correspondence testing have to be renegotiated depending on the national context. The paper argues that correspondence testing, if planned carefully and executed responsibly, can meet most of the ethical requirements of Social Science ethics guidelines.

Experiential activities are a powerful pedagogical tool that have grown in popularity. But there are a series of ethical issues (the "shadow side") that such activities raises. These include (a) inadequate (informed) student choice, (b) bias in what is covered, (c) lack of adequate debriefing, (d) personal exposure in class and community, (e) issues of deception, (f) role behavior being personalized (by self and others), (g) the negative impact of feedback (planned or spontaneous), and (h) the degree of "boundedness" of experiential activities These problems are not inevitable, but with instructor awareness can be lessened. This article also suggests other ways to address these issues.

With the ongoing and expanding use of willed bodies in medical education and research, there has been a concomitant rise in the need for willed bodies and an increase in the means of supplying these bodies. A relatively recent development to enlarge this supply has been the growth of for-profit willed body companies ("body brokers") in the United States. These companies advertise for donors, cover all cremation and other fees for the donor, distribute the bodies or body parts nationally and internationally, and charge their users for access to the body or body parts. In doing so, they generate substantial profits. This review examines the historical development of willed body programs, the legal and economic aspects of willed body programs, and then provides an ethical framework for the use of willed bodies. The ethical principles described include detailed informed consent from the donors, comprehensive and transparent information about the process from the body donation organizations, and societal input on the proper and legal handling of willed bodies. Based on the ethical principles outlined, it is recommended that there be no commercialization or commodification of willed bodies, and that programs that use willed bodies should not generate profit.

Art therapists face challenges of implementing digital or new media art practices due to concerns for privacy, confidentiality, and unfamiliarity with legal standards and best practices. This article discusses the ethical challenges of digital media use in art therapy, illustrated with case vignettes. The authors present informed consent guidelines to guide practice and to identify potential ethical concerns, and highlight the importance of digital literacy as it relates to cultural humility. Recommendations are offered for more effectively navigating the complexities of digital media in art therapy.

It is becoming widely recognized that dissemination of research results to participants is an important action for the conclusion of a research study. Most research institutions have standardized consent documents or templates that they require their researchers to use. Consent forms are an ideal place to indicate that results of research will be provided to participants, and the practice of inserting statements to this effect is becoming more conventional. In order to determine the acceptance of this practice across Canada we conducted an assessment of 121 institutional consent document templates from 65 institutions (hospitals and universities) looking for language that endorsed results dissemination to participants. About half (51%) of the documents we examined had language included which stated that results should be made available. In an era where research participation in hospital settings and universities is becoming ubiquitous there should be a reciprocal expectation that results should be provided. The success of research should be measured in part by its accessibility and dissemination to all stakeholders.

Informed consent may be unobtainable in online contexts. This article examines the difficulties of obtaining informed consent online through a Facebook case study. It is proposed that there are at least two ways informed consent could be waived in research: first, if the data are public, and second, if the data are textual. Accordingly, the publicness of the Facebook News Feed is considered. Taking account of the wide availability of Facebook users' data, and reflecting on how public those users perceive their information to be, this paper argues that some Facebook data are properly viewed as public to semi-public in nature. A second issue is whether the Facebook News Feed data collection ought to be classified as document-based or human subjects research. Since the Facebook News Feed involves social interaction that may elicit 'ethically important moments', this paper proposes that observing it may constitute human subjects research. While informed consent is desirable for human subjects research, it is suggested that Facebook News Feed observations are comparable to observational research in a public space, and thus waiving informed consent in this online setting could be justifiable.

This study explores the opportunities and dilemmas that have been encountered by researchers seeking the views of young people with autism. Twelve researchers were interviewed about their experiences in this field. Through exploration of the complex methodological and ethical issues that they encountered, this study aims to better understand how researchers can improve the way they listen to, and engage with, the views of children and young people with autism. This article discusses four themes that emerged from the interviews: power dynamics; building rapport; communication; and meaningful processes and outputs.

The study of marginalia has not been widely discussed in social sciences research and occupies a marginal space in terms of methodological legitimacy. We highlight the value of paying attention to the ways in which participants "speak back" to the researcher. This paper draws on marginalia found in surveys written or drawn by young people in classrooms across South Wales, demonstrating how various notes and marks made spontaneously by participants can tell us something important and worthwhile about how young people engage with research. We position marginalia as a manifestation of complex power dynamics in the research process that illuminate participants' negotiation of complex and multiple subjectivities in the literal margins and between the lines of the survey pages. Whilst the sensitive and rigorous analysis of marginalia is fraught with ethical and methodological challenges, we argue that paying closer attention to marginalia presents an opportunity for deeper engagement with participants when undertaking survey research.

Background: Africa is increasingly becoming an important region for health research, mainly due to its heavy burden of disease, socioeconomic challenges, and inadequate health facilities. Regulatory capacities, in terms of ethical review processes, are also generally weak. The ethical assessment of social and behavioral research is relatively neglected compared to the review of biomedical and clinical studies, which led us to develop an ethics review assessment tool for use in the review of social and behavioral research in Ethiopia, which could potentially be of value in low- and middle-income settings. Methods: Initially, we did a comprehensive literature review on principles, guidelines, and practices of research ethics, on social and behavioral studies, from which we extracted query terms to explore the opinions of selected key informants and focus groups in Ethiopia. The discussants and informants were selected using a convenience sampling method to evaluate an ethics review template, which integrated issues that commonly arise in social and behavioral studies. Finally, we directly solicited opinions from the discussants about the desirability, feasibility, acceptability, and relevance of the ethics review assessment tool and used the resulting data to refine our initial draft. Results and conclusion: Although the same basic ethics principles govern all research studies, social and behavioral research have some disciplinary particularities that may require reviewers to exercise a different orientation of ethical attention in some cases. Using a qualitative approach, we developed a review assessment tool that could potentially be useful to raise awareness, focus attention, and strengthen the review of social and behavioral studies by ethics review committees, particularly in settings without a long-standing tradition of reviewing such research. This process also exposed some areas where further capacity building and discussion of ethical issues may be necessary among stakeholders in the review of social and behavioral research.

'Vulnerability' is a key concept used to understand the ethical implications of conducting refugee-focused research. This case study illustrates the need to follow Luna's (2009) call for a shift from a 'labels' to a 'layers' approach to vulnerability by analysing how two university ethics committees responded to issues of informed consent in two similar refugee research projects using the PhotoVoice method. The following commentary argues that, when driven by a research governance regime, ethics review risks viewing refugees through a static label of vulnerability, negatively affecting research viability and data quality. In contrast, a layers approach opens space for understanding the potential for vulnerability amongst refugee research participants while supporting PhotoVoice's goals of empowerment and facilitating agency. The case study highlights the need for national-level ethics statements that encourage a more flexible approach within research institutions.

Benefits from the use of cadavers in anatomical education are well described. Historically, human embryos and fetal cadavers were used in anatomy education to understand development and congenital malformations. Recently, three-dimensional printed models produced from archival fetal specimens, and online repositories of images from archival collections of embryos and fetuses, have been used as an educational tool in human development courses. Given that the archival specimens were likely obtained prior to the era of informed consent, this raises questions about their appropriate and ethical use. Because some institutions in the United States retain archival collections of embryonic and fetal specimens that were once used as educational tools, their existence and utility require frequent reexamination against contemporary ethical frameworks to guide appropriate use or utilization. Four ethical rationales for uses of these collections are examined, including destruction, indefinite storage, use in research, and use in health professions education. Guidelines for the use of archival collections of human embryos and fetuses are presented. Indefinite storage and use in health professions education are supported, while use in research is also permitted, however, such use is limited and dependent on circumstance and purpose. The development of current digital repositories and three-dimensionally printed models based on archival collections that were collected without informed consent, or those promoting commercial opportunity, are not supported. New embryonic and fetal donations obtained with informed consent should include reference to potential uses with new technology and virtual, genetic, or imaging applications.

Around the world, the recent introduction of assisted death laws has meant that undertaking medical assistance in dying (MAID) is now an option for some persons wishing to end their life. Some of these people donate their bodies to medical science, and by doing so have created a new route from which donor programs can now receive bodies. Such donations have also illuminated a myriad of novel ethical questions. This article considers the emotive and controversial topic of MAID in relation to body donation, describing the experiences of McMaster University, Canada, where several MAID body donors have been received by the anatomical donor program. It provides background on the development and implementation of MAID in Canada, and describes the experience of staff and students at McMaster to MAID donations. It also explores the relevance of MAID to body donation programs, and discusses several of the ethical challenges facing body donation programs who may encounter MAID body donors. These include the appropriateness of accepting MAID donors, issues with informed consent, the effect of personal engagement with MAID donors, information sharing around MAID donations, governance issues, and negative historical parallels between MAID and euthanasia. Suggestions on how to manage MAID body donation focus on how issues affecting institutions, faculty, and students may be approached utilizing appropriate transparency and communication, some of which may facilitate student professional development around the topic of MAID. It is also suggested that the development of ethically appropriate guidelines on MAID body donations may positively guide the anatomical community.

New technological developments have frequently had major consequences for anatomy education, and have raised ethical queries for anatomy educators. The advent of three-dimensional (3D) printing of human material is showing considerable promise as an educational tool that fits alongside cadaveric dissection, plastination, computer simulation, and anatomical models and images. At first glance its ethical implications appear minimal, and yet the more extensive ethical implications around clinical bioprinting suggest that a cautious approach to 3D printing in the dissecting room is in order. Following an overview of early groundbreaking studies into 3D printing of prosections, organs, and archived fetal material, it has become clear that their origin, using donated bodies or 3D files available on the Internet, has ethical overtones. The dynamic presented by digital technology raises questions about the nature of the consent provided by the body donor, reasons for 3D printing, the extent to which it will be commercialized, and its comparative advantages over other available teaching resources. In exploring questions like these, the place of 3D printing within a hierarchical sequence of value is outlined. Discussion centers on the significance of local usage of prints, the challenges created by regarding 3D prints as disposable property, the importance of retaining the human side to anatomy, and the unacceptability of obtaining 3D-printed material from unclaimed bodies. It is concluded that the scientific tenor of 3D processes represents a move away from the human person, so that efforts are required to prevent them accentuating depersonalization and commodification.

The Convention on the Rights of the Child foregrounds the right to participate. Contributing to decision-making on matters concerning children's lives is fundamental to rights education. This paper discusses ethical and methodological considerations of children's rights-based epistemology, arguing that children are competent to reflect upon and exercise their participation rights. The present study explores 4/5-year-old children's perspectives on play in an Australian early childhood education service. It aims to identify ethical spaces in research involving children. The findings address children's participation choices; including conditional assent, dissent, and their influence on the research. These outcomes are important because (a) little is known about the ways children choose to participate, and (b) they raise questions about the realisation of children's participation rights. This paper concludes by examining the implications for research that acknowledges children's demonstration of their participation rights in physical, creative, and social-emotional spaces. [Paper presented at the International Conference on Human Rights Education (ICHRE) (9th, Sydney, Australia, 2018).]

When the coronavirus pandemic was declared a public health crisis in March 2020, school psychologists were forced into situations where face-to-face interaction with their students was discouraged and in some cases, prohibited. Consequently, the traditional practice of school psychology abruptly ended. Individualized Education Plans (IEP) and Multi-Tiered System of Supports (MTSS) meetings were moved to virtual formats, and consultation, counseling, and assessment had to be performed remotely. In the case of behavior rating scales, social-emotional questionnaires, and other inventories, the shift to virtual administration was almost seamless, as publishers had already created remote assessment options for many of these measures. The transition to virtual administration of cognitive assessments was much more difficult because they rely heavily on in-person interaction (American Psychological Association [APA], 2020). School psychologists are required to follow rigid assessment timelines prescribed by federal law, as well as state statutes. For example, according to the Individuals with Disabilities Act (IDEA, 2004), an initial evaluation must be conducted within 60 days of obtaining parent permission for the assessment. Deciding how to proceed with cognitive assessments during the COVID-19 pandemic requires a deep exploration of ethical and legal guidelines to ensure the completion of valid and defensible evaluations of students. In this article, the authors propose the use of the ethical decision making model posited by Jacob and colleagues (2016) to support decision-making in this context. The seven steps in this model include: (1) describing the problem situation; (2) defining the potential ethical-legal issues involved; (3) consulting available ethical-legal guidelines; (4) consulting with supervisors and colleagues; (5) evaluating the rights, responsibilities, and welfare of all affected parties; (6) considering alternative solutions and consequences of making each decision; and (7) making the decision and taking responsibility for it (Jacob et al., 2016).

The number of early childhood environmental education programs are on the rise in Canada and although young children have been quite marginalized from environmental education research, better understanding young children's relationships with the natural world is increasingly seen as important. Including young children themselves in research is important; however, it is essential for researchers to utilize developmentally appropriate research tools and data collection methods, just as environmental educators should create programs that are congruent with the emotional, physical, and cognitive abilities of young children. Including young children in environmental education research can be a challenge, but there are several data collection methods that have proven to be successful, for example, the Mosaic approach, which is discussed in this article.

Does the subject of research ethics take you by surprise? Does it make you somewhat uncomfortable? Does it seem to have nothing to do with your research or your practice? These are the attitudes we have encountered about research ethics among some SoTL researchers at workshops and conferences. In many cases, these researchers had conducted research that should have undergone research ethics board (REB) review, but did not; that should have included a consent process for the use of student data or previous work, but did not; or that started out as program evaluation and became research without meeting the criteria of ethically acceptable research conduct. In this essay, we will argue that familiarity with our national research ethics Policy: The Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, 2nd edition (TCPS 2) and how it applies to SoTL, is essential for researchers and for educational developers. We will propose a role for Centre of Teaching and Learning staff in raising awareness of TCPS 2 and we will dispel some of the most common myths and misconceptions that abound regarding SoTL and research ethics.