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8 results on '"Aiessa Zanchett Fedrigo"'

1. THE IMPACT OF TIMELY ACCESS TO AN ASSISTED THERAPY CENTER

Author

Roberta de Almeida Pernambuco, Paula Regina Toche dos Santos, Karina Gatz Capobianco, Vanessa Hax, Luciana Paula Dardin, Ana Carolina Fragoso Motta, Maria Lúcia Lemos Lopes, Virginia Fernandes Moça Trevisani, Valeria Valim, Aiessa Zanchett Fedrigo, Samira Tatiyama Miyamoto, Juliana Markus, Aysa César Pinheiro, Érica Vieira Serrano, Giovanna Sant’Ana Petterle, Fernanda Lourenço Macagnan, Ricardo Machado Xavier, Maria Clara Cardoso Gomes Zampirolli, Alisson Aliel Vigano Pugliesi, Sandra Lúcia Euzébio Ribeiro, Simone Appenzeller, Licia Maria Henrique Mota, Eduardo Rosa, Ketty Lisie Libardi Machado, Gustavo Pafume de Sá, Nathália de Carvalho Sacilotto, Fabiola Reis de Oliveira, Leandro Augusto Tanure, and Laura Caldas

Subjects
medicine.medical_specialty, business.industry, medicine, Disease, Sjogren s, business, Dermatology
Published
2022
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3. Prevalence of positive tuberculin skin test in a Brazilian sample of rheumatoid arthritis and spondylarthritis patients

Author

Adriano Reinaldo Timm, Helton Kazuhiro Sakakibara de Almeida, Aiessa Zanchett Fedrigo, Renato Nishiara, Beatriz Silva Lemes, André Rochinski Busanello, Carina Albuquerque Robero, and Thelma Larocca Skare

Subjects
Pathology, medicine.medical_specialty, Coronavirus disease 2019 (COVID-19), business.industry, medicine, Diffuse alveolar hemorrhage, business
Published
2022
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5. HIGH PREVALENCE OF CANCER AMONG PRIMARY SJÖGREN’S SYNDROME: DATA FROM BRAZILIAN SJÖGREN’S SYNDROME REGISTRY (RE-BRASS)

Author

Fabiola Reis de Oliveira, Rafael Coradin, Paula Regina Toche dos Santos, Maria Clara Cardoso Gomes Zampirolli, Fernanda Lourenço Macagnani, Aysa César Pinheiro, Ketty Lisie Libardi Machado, Laura Caldas, Barbara Seabra Carneiro, Gustavo Pafume de Sá, Giovanna Sant’Ana Petterle, Bianca Barbosa Rosa, Juliana Markus, Valeria Valim, Vanessa Hax, Virginia Fernandes Moça Trevisani, Roberta de Almeida Pernambuco, Ricardo Machado Xavier, Alisson Aliel Vigano Pugliesi, Leandro Augusto Tanure, Samira Tatiyama Miyamoto, Raíssa Dudienas Domingues Pereira, Ana Carolina Pereira Nunes Pinto, Nathália de Carvalho Sacilotto, Camila Avila Megda Cabianca, Thais Ferreira Costa, Karina Gatz Capobianco, Maria Lúcia Lemos Lopes, and Aiessa Zanchett Fedrigo

Subjects
medicine.medical_specialty, High prevalence, business.industry, medicine, Cancer, Sjogren s, medicine.disease, business, Dermatology
Published
2021
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7. BRAZILIAN SJOGREN'S SYNDROME REGISTRY (BRASS): A LARGE BRAZILIAN MULTICENTRIC COHORT OF PRIMARY SJOGREN'S SYNDROME

Author

Aysa César Pinheiro, Virginia Fernandes Moça Trevisani, Maria Lúcia Lemos Lopes, Ana Cláudia Barbosa Sousa, Aiessa Zanchett Fedrigo, Simone Appenzeller, Érica Vieira Serrano, Samira Tatiyama Miyamoto, Henrique Pereira Sampaio, Roberta de Almeida Pernambuco, Leandro Augusto Tanure, Fabiola Reis Oliveira, Valeria Valim, Ketty Lysie Libardi Lira Machado, Eduardo Rosa, Vanessa Hax, Tânia Sales de Alencar Fidelix, and Juliana Markus

Subjects
Pediatrics, medicine.medical_specialty, business.industry, Cohort, Medicine, Sjogren s, business
Published
2019
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8. THU0694 BRAZILIAN SJÖGREN’S SYNDROME REGISTRY (BRASS): A LARGE BRAZILIAN MULTICENTRIC COHORT OF PRIMARY SJÖGREN’S SYNDROME

Author

Henrique Pereira Sampaio, Sabrina Zanardi Machado, Fabiola Reis Oliveira, Valeria Valim, Virginia Fernandes Moça Trevisan, Maria Lúcia Lemos Lopes, Érica Vieira Serrano, Vanessa Hax, Aiessa Zanchett Fedrigo, Roberta de Almeida Pernambuco, Samira Tatiyama Miyamoto, Leandro Augusto Tanure, and Aysa César Pinheiro

Subjects
medicine.medical_specialty, business.industry, Epworth Sleepiness Scale, Public health, Hydroxychloroquine, Disease, Rheumatology, Quality of life, Internal medicine, Cohort, medicine, business, Depression (differential diagnoses), medicine.drug
Abstract

Background Primary Sjogren’s syndrome (pSS) is an orphan systemic autoimmune disease with no treatment based on evidence1. There is an international effort for multicentric registries for getting information about phenotypes, complication, response of treatment, and biobank consortium. Objectives To describe the creation of the Brazilian Sjogren’s Syndrome Registry (BRASS) and present the preliminary data. Methods BRASS is supported by Brazilian Society of Rheumatology (SBR) and is including patients from all regions of the country. Recruitment started in 2018 and is due to be completed in 2024. We are including patients with pSS according to AECG 2002 or ACR-EULAR 2016 classification criteria. All patients are being assessed for disease activity (ESSDAI), disease damage (SSDDI), symptoms assessment (ESSPRI), fatigue (FACIT-Fatigue), anxiety and depression (HADS), sleepiness (Epworth Sleepiness Scale), physical activity (IPAQ-SF) and quality of life (EQ-5D). In addition, demographics, immunological tests, unstimulated whole salivary flow (UWSF), salivary gland biopsy (SGB), comorbidities, treatment and complications such as cancer and cardiovascular risk assessment are being collected. Results There are currently 10 centers across the Brazil and 248 patients were evaluated until now. Most patients were female, white (45%) or mixed (38.3%), with the mean of the disease duration of 8 years. ESSDAI at baseline was 6.62±6.37 and currently is 4.21±5.16 (p Conclusion ESSDAI has decreased over time and more than half of patients are on hydroxychloroquine, immunosuppressant or biological therapy. Further analysis is needed to understand whether the reduction in ESSDAI reflects the natural course of the disease or greater access to treatment. BRASS Registry will be important to enhance research and to develop public health planning. References [1] Valim V et al. Recommendations for the treatment of Sjogren’s syndrome. Rev Bras Reumatol 55:446–57, 2015. Disclosure of Interests None declared

Published
2019
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