207 results on '"Angela Tod"'
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2. Advanced nurse practitioner well‐being: A 4‐year cohort mixed methods study
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Emily Wood, Rachel King, Steve Robertson, Angela Tod, Michaela Senek, Beth Taylor, and Tony Ryan
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advanced nurse practitioner ,ANP ,COVID‐19 ,nursing ,stress ,well‐being ,Nursing ,RT1-120 - Abstract
Abstract Aims To examine changes in advanced nurse practitioner (ANP) well‐being, satisfaction and motivation over a four‐year period. Design Longitudinal Cohort study. Methods Surveys were carried out each year from 2019 to 2022 with the same cohort of ANPs in the United Kingdom (UK). The survey consisted of demographics, questions on contemporary issues in advanced practice, National Health Service (NHS) staff survey questions and validated questionnaires. A core set of questions were asked every year with some changes in response to the COVID‐19 pandemic. Results Response rate ranged from 40% to 59% and appeared to be affected by COVID‐19. Staff satisfaction with pay and the well‐being score were stable throughout. Other questions on well‐being, job satisfaction and motivation saw statistically significant reductions after 4 years. Open‐ended questions about ongoing well‐being concerns show participants are concerned about exhaustion levels caused by workload, staffing issues, abuse from patients and colleagues' mental health. Conclusion The findings highlight a decline in ANP well‐being, job satisfaction and motivation post‐COVID‐19. Reasons for this, explored in the qualitative data, show that ANPs have faced extremely difficult working conditions. Urgent action is required to prevent a workforce retention crisis as many nursing staff are close to retirement and may not be motivated to remain in post. Impact This study has followed ANPs through the most challenging years the NHS has ever seen. Job satisfaction, motivation and enjoyment of the job all significantly reduced over time. In many areas, the ANP role has been used to fill medical workforce gaps, and this will become harder to do if ANPs are dissatisfied, disaffected and struggling with stress and burnout. Addressing these issues should be a priority for policymakers and managers. Patient or public contribution None as this study focussed on staff. Staff stakeholders involved in the design and conduct of the study.
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- 2024
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3. Contextually appropriate nurse staffing models: a realist review protocol
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Andrew Booth, Angela Tod, Lisette Schoonhoven, Matthias Hoben, Carole Estabrooks, Alison Kitson, Pieterbas Lalleman, Gillian Harvey, Candice Oster, Dewi Stalpers, Katherine Jones, Carole A Estabrooks, Steve Robertson, Tony Ryan, Greta G Cummings, Greta Cummings, Alison Hutchinson, Tim Schultz, Kaitlyn Tate, Malcolm Doupe, Rachel Flynn, Tatiana Penconek, Inge Wolbers, Christy Raymond, Catharina Jvan Oostveen, Sean Chilton, Deb Gordon, Mike Villeneuve, Wilma Jackson, Sam Debbage, Sadie Deschenes, Patrick Chiu, and Lemma Bulto
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Medicine - Abstract
Introduction Decisions about nurse staffing models are a concern for health systems globally due to workforce retention and well-being challenges. Nurse staffing models range from all Registered Nurse workforce to a mix of differentially educated nurses and aides (regulated and unregulated), such as Licensed Practical or Vocational Nurses and Health Care Aides. Systematic reviews have examined relationships between specific nurse staffing models and client, staff and health system outcomes (eg, mortality, adverse events, retention, healthcare costs), with inconclusive or contradictory results. No evidence has been synthesised and consolidated on how, why and under what contexts certain staffing models produce different outcomes. We aim to describe how we will (1) conduct a realist review to determine how nurse staffing models produce different client, staff and health system outcomes, in which contexts and through what mechanisms and (2) coproduce recommendations with decision-makers to guide future research and implementation of nurse staffing models.Methods and analysis Using an integrated knowledge translation approach with researchers and decision-makers as partners, we are conducting a three-phase realist review. In this protocol, we report on the final two phases of this realist review. We will use Citation tracking, tracing Lead authors, identifying Unpublished materials, Google Scholar searching, Theory tracking, ancestry searching for Early examples, and follow-up of Related projects (CLUSTER) searching, specifically designed for realist searches as the review progresses. We will search empirical evidence to test identified programme theories and engage stakeholders to contextualise findings, finalise programme theories document our search processes as per established realist review methods.Ethics and dissemination Ethical approval for this study was provided by the Health Research Ethics Board of the University of Alberta (Study ID Pro00100425). We will disseminate the findings through peer-reviewed publications, national and international conference presentations, regional briefing sessions, webinars and lay summary.
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- 2024
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4. Development of the nursing associate professional identity: A longitudinal qualitative study
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Rachel King, Sara Laker, Bethany Taylor, Tony Ryan, Emily Wood, Angela Tod, Michaela Senek, Sally Snowden, and Steve Robertson
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health professions ,longitudinal study ,nursing associates ,professional identity formation ,Nursing ,RT1-120 - Abstract
Abstract Aim The aim of this study was to understand the factors that contribute to the development of the nursing associate professional identity. Design A 3‐year longitudinal qualitative study of trainee nursing associates. Methods Trainee nursing associates in England were interviewed remotely annually in February 2020, March 2021 and March 2022. They also provided diary entries. Data were anonymised, transcribed and analysed thematically. Results Nursing associate professional identity was developed through: increased knowledge, skills and responsibility; and self‐perceptions of identity alongside responses to the role by colleagues. Tensions arose when the scope of practice expected by organisations differed from that expected by the nursing associates. Frustrations occurred when nursing associates were perceived as substitutes for Registered Nurses in the context of nursing workforce shortages. Conclusion Nursing associates in this study clearly valued their new knowledge, skills and responsibility, enabling them to provide enhanced patient care. Increased clarity of role boundaries is necessary in enhancing the professional identity of nursing associates and reducing inter‐professional tensions arising from role ambiguity within health and social care organisations. Implications for the Profession National guidance and employers should provide clarity on the boundaries of the nursing associate role which will strengthen their professional identity and mitigate role ambiguity within health and social care organisations. Reporting Method The Consolidated Criteria for Reporting Qualitative Research has been used to guide reporting. Patient of Public Contribution A patient and public involvement group was consulted during the initial study design stage. Impact This study aimed to understand the factors which contribute to the development of a nursing associate professional identity. Nursing associate professional identity is developed through increased knowledge, skills and responsibility, and the perceptions of identity by participants themselves and their colleagues. The findings should inform the implementation of initiatives to clarify nursing associate role boundaries and the development of similar roles internationally.
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- 2024
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5. Being Warm Being Happy: Understanding factors influencing adults with learning disabilities being warm and well at home with inclusive research
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Melanie Chapman, Jan Gilbertson, Jodie Bradley, Chris Damm, Vicky Farnsworth, Annie Ferguson, Alison Owen, Bernard Stafford, Bethany Taylor, Angela Tod, and Dan Wolstenholme
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Social sciences (General) ,H1-99 - Published
- 2022
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6. A tale of two bridges: Factors influencing career choices of trainee nursing associates in England: A longitudinal qualitative study
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Rachel Louise King, Bethany Taylor, Sara Laker, Emily Wood, Michaela Senek, Angela Tod, Tony Ryan, Sally Snowden, and Steven Robertson
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education nursing ,health workforce ,nursing associates ,staffing ,United Kingdom ,Nursing ,RT1-120 - Abstract
Abstract Aim The nursing associate role has created a new second‐level nursing role and provided an alternative route into registered nursing. For some, this provides a previously inaccessible opportunity for career progression. The aim of the study was to understand the factors that influence career choices of trainee nursing associates. Design A longitudinal qualitative study of trainee nursing associate motivations, experiences and career aspirations. Methods Semi‐structured interviews with trainee nursing associates from across England, UK, in February 2020 (N = 14) and March 2021 (N = 13). Diary data were also collected. Interview and diary data were analysed thematically. Reporting has followed COREQ guidelines. Results Nursing associate training was viewed by some as a bridge into registered nursing. Role ambiguity led several to seek perceived security offered by the Registered Nurse profession. Those preferring to remain as nursing associates were keen to embed the bridging role between healthcare assistants and Registered Nurses, valuing a positive workplace culture.
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- 2022
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7. The impact of COVID‐19 on work, training and well‐being experiences of nursing associates in England: A cross‐sectional survey
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Rachel King, Tony Ryan, Michaela Senek, Emily Wood, Bethany Taylor, Angela Tod, Ashfaque Talpur, and Steve Robertson
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COVID‐19 ,cross‐sectional survey ,trainee nursing associates ,training ,well‐being ,workforce ,Nursing ,RT1-120 - Abstract
Abstract Aim To explore how the COVID‐19 pandemic affected nursing associate work, training and well‐being experiences. Design Cross‐sectional survey. Methods A survey of trainee and newly qualified nursing associates was completed in July 2020. Closed responses were analysed using descriptive statistics with inferential comparisons made between community and secondary care settings. Open questions were analysed thematically. Results Sixty‐four participants responded. Over half (53.2%) experienced an increased workload with 24.2% reporting extensions in their role. One third (32.3%) were redeployed, and a quarter (24.2%) did not feel safety concerns were adequately addressed when raised. Those working in the community reported significantly more concerns about staffing (p = .03), working overtime (p = .03), missed care (p = .02) and safety (p = .04). Despite this, many (75.8%) participants felt able to provide the same standards of care. Several spoke about enhanced teamwork, and the majority (96.8%) were not looking to leave their post.
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- 2022
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8. Maximising recruitment of research participants into a general practice based randomised controlled trial concerning lung diagnosis—staff insights from an embedded qualitative study
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Hayley Prout, Angela Tod, Richard Neal, and Annmarie Nelson
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Medicine (General) ,R5-920 - Abstract
Abstract Background The ELCID Trial was a feasibility randomised controlled trial examining the effect on lung cancer diagnosis of lowering the threshold for referral for urgent chest X-ray for smokers and recent ex-smokers, aged over 60 with new chest symptoms. The qualitative component aimed to explore the feasibility of individually randomising patients to an urgent chest X-ray or not and to investigate any barriers to patient recruitment and participation. This would inform the design of any future definitive trial. This paper explores general practice staff insights into participating in and recruiting to diagnostic trials for possible/suspected lung cancer. Methods Qualitative interviews were conducted with 11 general practice staff which included general practitioners, a nurse practitioner, research nurses and practice managers. Interviews were analysed using a framework approach. Results Findings highlight general practice staff motivators to participate in the trial as recruiters, practice staff interactions with patients recruited onto the study, methods of organisation staff used to undertake the trial, the general impact of the trial on practice staff, how the trial research team supported the practices and lastly practice staff suggestions for trial delivery improvement. Conclusions The integration of a qualitative component focused on staff experiences participating in a lung diagnostic trial has demonstrated the feasibility to recruit for similar future studies within general practice. Although recruitment into trials can be difficult, results from our study offer suggestions on maximising patient recruitment not just to trials in general but also specifically for a lung diagnosis study. Trial registration ClinicalTrials.gov, NCT01344005. Registered on 27 April 2011
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- 2022
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9. Addressing current challenges in adult nursing: Describing a virtual Consensus development project methodology
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Bethany Taylor, Jane South, Steve Robertson, Tony Ryan, Emily Wood, Rachel Louise King, Michaela Senek, Angela Tod, and Jane Seymour
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adult nursing ,Consensus methodology ,United kingdom ,Nursing ,RT1-120 - Abstract
Abstract Aim This article describes the development and implementation of a virtual Consensus development project to address current challenges in adult nursing care in the UK. Design This is a Consensus Development Project (CDP). Methods The five stages of this CDP were: develop questions (informed by PPI representatives and a documentary review), generate evidence reviews, recruit and orient the lay panel, host Consensus seminars, and consult with panel members and stakeholders. Results To the best of our knowledge, a CDP has not previously been conducted in a UK nursing context, and this is the first of its kind to be hosted virtually. This article contributes a detailed outline of the Consensus development methodology and constructive commentary to support future Consensus development projects. Learning points include reflections on the impact of hosting this event virtually, the relationship between the project coordinator and chair, and the composition of the lay panel.
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- 2022
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10. Determinants of nurse job dissatisfaction - findings from a cross-sectional survey analysis in the UK
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Michaela Senek, Steven Robertson, Tony Ryan, Rachel King, Emily Wood, Bethany Taylor, and Angela Tod
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Nurse job satisfaction ,Intention to leave ,Staffing issues ,Missed care ,Leadership ,UK ,Nursing ,RT1-120 - Abstract
Abstract Background A lower recruitment and high turnover rate of registered nurses have resulted in a global shortage of nurses. In the UK, prior to the COVID-19 epidemic, nurses’ intention to leave rates were between 30 and 50% suggesting a high level of job dissatisfaction. Methods In this study, we analysed data from a cross-sectional mixed-methods survey developed by the Royal College of Nursing and administered to the nursing workforce across all four UK nations, to explore the levels of dissatisfaction and demoralisation- one of the predictors of nurses’ intention to leave. We carried out logistic regression analysis on available data in order to determine what impacts job dissatisfaction. Results In total, 1742 nurses responded to questions about working conditions on their last shift. We found that nearly two-thirds of respondents were demoralised. Nurses were five times more likely (OR 5.08, 95% CI: 3.82–6.60) to feel demoralised if they reported missed care. A perceived lack of support had nearly the same impact on the level of demoralisation (OR 4.8, 95% CI: 3.67–6.38). These findings were reflected in the qualitative findings where RNs reported how staffing issues and failures in leadership, left them feeling disempowered and demoralised. Conclusion A large proportion of nurses reported feeling dissatisfied and demoralised. In order to reduce the negative impact of dissatisfaction and improve retention, more research needs to investigate the relationship dynamics within healthcare teams and how the burden experienced by RNs when unsupported by managers impacts on their ability to provide safe, good-quality care. These findings predate the current Covid-19 pandemic outbreak which may have had a further detrimental effect on job satisfaction in the UK and other nation’s nursing workforce.
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- 2020
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11. Motivations, experiences and aspirations of trainee nursing associates in England: a qualitative study
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Rachel King, Tony Ryan, Emily Wood, Angela Tod, and Steve Robertson
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Trainee nursing associates ,Workforce ,Focus groups ,Role identity ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background The nursing associate role was developed in England in response to the ‘Shape of Caring’ review. It has been implemented to fulfil two aims; to bridge the gap between registered nurses and healthcare assistants, and to provide an alternative route into registered nursing in light of workforce shortages. Other high income countries deploy second level nurses within their healthcare systems, however the UK has a turbulent history with such roles. The previous state enrolled nurse was phased out in the 1990s, and more recently the assistant practitioner (AP) role has faced wide variation in titles, scope and pay. Little is known about those who have embarked on the new nursing associate training course and their experiences of the role. Methods An exploratory qualitative study was undertaken using focus groups of trainee nursing associates to generate in-depth discussion about their motivations, experiences of training, and career aspirations. Three focus groups (n = 15) took place in December 2018 using a purposive sample of trainee nursing associates registered at a University in the North of England. Two researchers facilitated each group discussion at a time and place convenient for participants. The discussions were audio recorded, transcribed and data was analysed thematically. Results This study found that trainee nursing associates are motivated by affordable, local, career development. During training they face challenges relating to clinical support, academic workload and uncertainty about future career opportunities. They experience role ambiguity both individually and across the wider organisation. Trainee nursing associates rely on broad support networks to build their occupational identity. Conclusions The barriers and facilitators of trainee nursing associate personal development have implications for policy and practice relating to recruitment and retention. The results increase our understanding of this emerging role, and have informed the development of a larger longitudinal cohort study. Further research is required to evaluate the impact of this new role.
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- 2020
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12. Using creative co-design to develop a decision support tool for people with malignant pleural effusion
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Cheryl Grindell, Angela Tod, Remi Bec, Daniel Wolstenholme, Rahul Bhatnagar, Parthipan Sivakumar, Anna Morley, Jayne Holme, Judith Lyons, Maryam Ahmed, Susan Jackson, Deirdre Wallace, Farinaz Noorzad, Meera Kamalanathan, Liju Ahmed, and Mathew Evison
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Creative co-design ,Co-production ,Malignant pleural effusion ,Decision support tool ,Complex intervention development ,Computer applications to medicine. Medical informatics ,R858-859.7 - Abstract
Abstract Background Malignant pleural effusion (MPE) is a common, serious problem predominantly seen in metastatic lung and breast cancer and malignant pleural mesothelioma. Recurrence of malignant pleural effusion is common, and symptoms significantly impair people’s daily lives. Numerous treatment options exist, yet choosing the most suitable depends on many factors and making decisions can be challenging in pressured, time-sensitive clinical environments. Clinicians identified a need to develop a decision support tool. This paper reports the process of co-producing an initial prototype tool. Methods Creative co-design methods were used. Three pleural teams from three disparate clinical sites in the UK were involved. To overcome the geographical distance between sites and the ill-health of service users, novel distributed methods of creative co-design were used. Local workshops were designed and structured, including video clips of activities. These were run on each site with clinicians, patients and carers. A joint national workshop was then conducted with representatives from all stakeholder groups to consider the findings and outputs from local meetings. The design team worked with participants to develop outputs, including patient timelines and personas. These were used as the basis to develop and test prototype ideas. Results Key messages from the workshops informed prototype development. These messages were as follows. Understanding and managing the pleural effusion was the priority for patients, not their overall cancer journey. Preferred methods for receiving information were varied but visual and graphic approaches were favoured. The main influences on people’s decisions about their MPE treatment were personal aspects of their lives, for example, how active they are, what support they have at home. The findings informed the development of a first prototype/service visualisation (a video representing a web-based support tool) to help people identify personal priorities and to guide shared treatment decisions. Conclusion The creative design methods and distributed model used in this project overcame many of the barriers to traditional co-production methods such as power, language and time. They allowed specialist pleural teams and service users to work together to create a patient-facing decision support tool owned by those who will use it and ready for implementation and evaluation.
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- 2020
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13. The association between care left undone and temporary Nursing staff ratios in acute settings: a cross- sectional survey of registered nurses
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Michaela Senek, Steve Robertson, Tony Ryan, Rachel King, Emily Wood, and Angela Tod
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Nurse staffing ,Temporary staff ,Care left undone ,Acute settings ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background The shortage of health workers is a global phenomenon. To meet increasing patient demands on UK health services, providers are increasingly relying on temporary staff to fill permanent posts. This study examines the occurrence of ‘care left undone’, understaffing and temporary staffing across acute sector settings. Methods “Secondary data analysis from an RCN administered online survey covering nurses from hospitals and trusts across all four UK countries. Staffing and ‘care left undone’ measures were derived from the responses of 8841 registered nurses across the UK. A locally smoothed scatterplot smoothing regression analysis (Loess) was used to model the relationship between any ‘care left undone’ events and full complement, modest and severely understaffed shifts, and proportions of temporary staff. Results Occurrence of ‘care left undone’ was highest in Emergency Departments (48.4%) and lowest in Theatre settings (21%). The odds of ‘care left undone’ increase with increasing proportion of temporary staff. This trend is the same in all understaffing categories. On shifts with a full quota of nursing staff, an increase in the proportion of temporary staff from 0 to 10% increases the odds of care left undone by 6% (OR = 1.06, 95% CI, 1.04–1.09). Within the full quota staffing category, the difference becomes statistically significant (p
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- 2020
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14. Living beyond expectations: a qualitative study into the experience of long-term survivors with pleural mesothelioma and their carers
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Matthew Johnson, Angela Tod, and Peter Allmark
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Medicine ,Diseases of the respiratory system ,RC705-779 - Abstract
Background Malignant pleural mesothelioma (MPM) is characterised by poor prognosis and limited treatment options. However, a minority of patients can survive well beyond these bleak estimates. Little is known about the specific experiences and needs of long-term survivors and families.Study purpose The study aimed to gain in-depth understanding of the experiences of patients diagnosed with MPM 3 or more years, along with their main carer, and to determine the care and support needs of this group.Participants and setting People diagnosed with MPM 3 or more years were recruited via asbestos and mesothelioma social media and support groups. Potential participants were asked to identify someone who acted as their main carer.Method The study employed a cross-sectional qualitative interview design. A topic guide aided a conversational interview style, conducted remotely and recorded. Patient and carer pairs were interviewed jointly when possible, but were given an option for separate interviews if preferred. Fifteen patients, with 14 identifying a main carer, consented to participation.Analysis Recorded interviews were transcribed verbatim, and then anonymised by the interviewer. Framework analysis was used to analyse the data iteratively and to develop final themes.Findings Three themes were developed. Participants ‘Living beyond expectations’ remained acutely aware that MPM was incurable, but developed a range of coping strategies. Periods of disease stability were punctuated with crises of progression or treatment ending, straining coping. ‘Accessing treatment’ was important for patients and carers, despite the associated challenges. They were aware options were limited, and actively sought new treatments and clinical trials. ‘Support needs’ were met by healthcare professionals, voluntary groups and social media networks.Conclusions Managing patients via regional MPM multidisciplinary teams, facilitating equal access to treatment and trials, could reduce patient and carer burden. Greater awareness and support around crisis points for this group could improve care.
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- 2022
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15. Malignant pleural mesothelioma patients’ experience by gender: findings from a cross-sectional UK-national questionnaire
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Liz Darlison, Lorraine Creech, Angela Tod, Michaela Senek, and Steve Robertson
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Medicine ,Diseases of the respiratory system ,RC705-779 - Abstract
Objectives Malignant mesothelioma is an aggressive malignancy of mesothelial surfaces, most commonly those of the pleura. The aim of this study was to understand, using a national questionnaire, the gendered care experiences of patients with malignant pleural mesothelioma (MPM).Patients were asked about their experience of the diagnostic process, about information clarity, health care professionals’ knowledge, general practitioner support and overall satisfaction with care received.Setting Recruitment of patients was carried out in three UK countries (England, Wales and Scotland) via mesothelioma clinical nurse specialists.Participants In total, 503 patients completed the questionnaire. 460 had MPM, the remainder had other types of mesothelioma. In accord with the study protocol, only the MPM patients were included in this study.Primary and secondary measures were: (1) time from symptom to diagnosis, (2) satisfaction with the diagnosis and treatment, and (3) quality of life and well-being.Results There were gender differences in time from symptom to diagnosis. The time from symptom to diagnosis was significantly longer for women than men (median=152 days vs men=92 days, p=0.01). Lack of a verified source of exposure to asbestos was a hindrance to private treatment access for women (95% of those that access private treatment are men). Patients were five times more likely to be satisfied if they thought that the doctors knew enough about their condition (OR=4.4, p=0.001) and nearly three times more likely to be satisfied if information was presented in a sensitive way (OR=2.8,p=0.01).Conclusions This study has several implications for clinical practice. Our findings suggest that the diagnostic time in women might be reduced by reviewing diagnostic processes including occupational history taking, and by revising the occupational risk of mesothelioma categorisation.
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- 2022
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16. Patient experiences of participation in a radical thoracic surgical trial: findings from the Mesothelioma and Radical Surgery Trial 2 (MARS 2)
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Clare Warnock, Karen Lord, Bethany Taylor, and Angela Tod
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Mesothelioma ,Clinical trials ,Surgery ,Chemotherapy ,Randomisation ,Medicine (General) ,R5-920 - Abstract
Abstract Background The Mesothelioma and Radical Surgery Trial (MARS 2) aims to evaluate a surgical procedure by comparing chemotherapy and surgery against chemotherapy alone. The pilot study for MARS 2 evaluated the viability of recruitment. Challenges have been reported in conducting clinical research into thoracic surgical treatments and evidence is required to improve our understanding of patient experiences of trial procedures, trial treatments and the factors that influence participation. Methods This longitudinal qualitative study was nested within the MARS 2 pilot. Semi-structured telephone interviews were conducted with 15 participants in the MARS 2 trial. Interviews were conducted post-randomisation, post-surgery (surgery arm) and at 6 and 12 months. Altogether, 41 interviews were carried out. The data were analysed using framework techniques. Results Challenges were identified regarding the volume and complexity of information given to participants, and their understanding of clinical equipoise and randomisation. Factors influencing participation included having an opportunity to undergo surgery, a self-assessment of their ability to cope with trial treatments, maintaining a positive approach and altruism. Obstacles included the logistics of traveling for treatment in an unfamiliar setting. Negative consequences of trial participation included increased uncertainty amplified by multiple care providers and unclear transition arrangements after the trial. Conclusions Participants’ descriptions provided insights that have implications for care for mesothelioma trial patients. The need for healthcare staff to be alert to the potential for misunderstanding, particularly when presenting treatment options, was identified. Patients perceived and derived benefits from taking part in the trial but experienced some negative consequences. These should be anticipated and managed proactively. Trial registration ClinicalTrials.gov, NCT02040272. Registered on 20 January 2014.
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- 2019
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17. Configuration of vascular services: a multiple methods research programme
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Jonathan Michaels, Emma Wilson, Ravi Maheswaran, Stephen Radley, Georgina Jones, Thai-Son Tong, Eva Kaltenthaler, Ahmed Aber, Andrew Booth, Helen Buckley Woods, James Chilcott, Rosie Duncan, Munira Essat, Edward Goka, Aoife Howard, Anju Keetharuth, Elizabeth Lumley, Shah Nawaz, Suzy Paisley, Simon Palfreyman, Edith Poku, Patrick Phillips, Gill Rooney, Praveen Thokala, Steven Thomas, Angela Tod, Nyantara Wickramasekera, and Phil Shackley
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vascular services ,service configuration ,peripheral arterial disease ,abdominal aortic aneurysm ,carotid artery disease ,cost-effectiveness analysis ,workload ,state medicine ,patient-reported outcome measures ,psychometrics ,patient preferences ,quality-adjusted life-years ,surveys and questionnaires ,systematic literature reviews ,models ,economic ,outcome assessment (health care) ,internet ,england ,Public aspects of medicine ,RA1-1270 - Abstract
Background: Vascular services is changing rapidly, having emerged as a new specialty with its own training and specialised techniques. This has resulted in the need for reconfiguration of services to provide adequate specialist provision and accessible and equitable services. Objectives: To identify the effects of service configuration on practice, resource use and outcomes. To model potential changes in configuration. To identify and/or develop electronic data collection tools for collecting patient-reported outcome measures and other clinical information. To evaluate patient preferences for aspects of services other than health-related quality of life. Design: This was a multiple methods study comprising multiple systematic literature reviews; the development of a new outcome measure for users of vascular services (the electronic Personal Assessment Questionnaire – Vascular) based on the reviews, qualitative studies and psychometric evaluation; a trade-off exercise to measure process utilities; Hospital Episode Statistics analysis; and the development of individual disease models and a metamodel of service configuration. Setting: Specialist vascular inpatient services in England. Data sources: Modelling and Hospital Episode Statistics analysis for all vascular inpatients in England from 2006 to 2018. Qualitative studies and electronic Personal Assessment Questionnaire – Vascular evaluation with vascular patients from the Sheffield area. The trade-off studies were based on a societal sample from across England. Interventions: The data analysis, preference studies and modelling explored the effect of different potential arrangements for service provision on the resource use, workload and outcomes for all interventions in the three main areas of inpatient vascular treatment: peripheral arterial disease, abdominal aortic aneurysm and carotid artery disease. The electronic Personal Assessment Questionnaire – Vascular was evaluated as a potential tool for clinical data collection and outcome monitoring. Main outcome measures: Systematic reviews assessed quality and psychometric properties of published outcome measures for vascular disease and the relationship between volume and outcome in vascular services. The electronic Personal Assessment Questionnaire – Vascular development considered face and construct validity, test–retest reliability and responsiveness. Models were validated using case studies from previous reconfigurations and comparisons with Hospital Episode Statistics data. Preference studies resulted in estimates of process utilities for aneurysm treatment and for travelling distances to access services. Results: Systematic reviews provided evidence of an association between increasing volume of activity and improved outcomes for peripheral arterial disease, abdominal aortic aneurysm and carotid artery disease. Reviews of existing patient-reported outcome measures did not identify suitable condition-specific tools for incorporation in the electronic Personal Assessment Questionnaire – Vascular. Reviews of qualitative evidence, primary qualitative studies and a Delphi exercise identified the issues to be incorporated into the electronic Personal Assessment Questionnaire – Vascular, resulting in a questionnaire with one generic and three disease-specific domains. After initial item reduction, the final version has 55 items in eight scales and has acceptable psychometric properties. The preference studies showed strong preference for endovascular abdominal aortic aneurysm treatment (willingness to trade up to 0.135 quality-adjusted life-years) and for local services (up to 0.631 quality-adjusted life-years). A simulation model with a web-based interface was developed, incorporating disease-specific models for abdominal aortic aneurysm, peripheral arterial disease and carotid artery disease. This predicts the effects of specified reconfigurations on workload, resource use, outcomes and cost-effectiveness. Initial exploration suggested that further reconfiguration of services in England to accomplish high-volume centres would result in improved outcomes, within the bounds of cost-effectiveness usually considered acceptable in the NHS. Limitations: The major source of evidence to populate the models was Hospital Episode Statistics data, which have limitations owing to the complexity of the data, deficiencies in the coding systems and variations in coding practice. The studies were not able to address all of the potential barriers to change where vascular services are not compliant with current NHS recommendations. Conclusions: There is evidence of potential for improvement in the clinical effectiveness and cost-effectiveness of vascular services through further centralisation of sites where major vascular procedures are undertaken. Preferences for local services are strong, and this may be addressed through more integrated services, with a range of services being provided more locally. The use of a web-based tool for the collection of clinical data and patient-reported outcome measures is feasible and can provide outcome data for clinical use and service evaluation. Future work: Further evaluation of the economic models in real-world situations where local vascular service reconfiguration is under consideration and of the barriers to change where vascular services do not meet NHS recommendations for service configuration is needed. Further work on the electronic Personal Assessment Questionnaire – Vascular is required to assess its acceptability and usefulness in clinical practice and to develop appropriate report formats for clinical use and service evaluation. Further studies to assess the implications of including non-health-related preferences for care processes, and location of services, in calculations of cost-effectiveness are required. Study registration: This study is registered as PROSPERO CRD42016042570, CRD42016042573, CRD42016042574, CRD42016042576, CRD42016042575, CRD42014014850, CRD42015023877 and CRD42015024820. Funding: This project was funded by the National Institute for Health Research (NIHR) Programme Grants for Applied Research programme and will be published in full in Programme Grants for Applied Research; Vol. 9, No. 5. See the NIHR Journals Library website for further project information.
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- 2021
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18. UK advanced practice nurses’ experiences of the COVID-19 pandemic: a mixed-methods cross-sectional study
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Angela Tod, Anthony Ryan, Rachel King, Bethany Taylor, Emily Wood, Michaela Senek, and Steve Robertson
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Medicine - Abstract
Objective The aim of the study was to understand the experiences of advanced practice nurses (APNs) in the UK during the 2020 COVID-19 pandemic, particularly in relation to safety, shortages and retention.Design A cross-sectional, mixed-methods survey.Setting APNs in any UK setting.Participants The survey was sent to an existing UK-wide cohort of APNs. 124 APNs responded (51%).Results UK-based APNs in this study reported shortages of staff (51%) and personal protective equipment (PPE) (68%) during the first 3 months of the coronavirus outbreak. Almost half (47%) had considered leaving their job over the same 3 months. Despite difficulties, there were reports of positive changes to working practice that have enhanced care.Conclusion UK APNs report COVID-19-related shortages in staff and equipment across primary and secondary care and all regions of the UK. Shortages of PPE during a pandemic are known to be a factor in the development of mental health sequelae as well as a risk factor for increased turnover and retention issues. Half of APNs surveyed were considering a change in job. The UK risks a further crisis in staff morale and retention if this is not acknowledged and addressed. APNs also expressed concern about patients not receiving routine care as many specialties closed or reduced working during the crisis. However, there were also many examples of good practice, positive changes and innovation.
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- 2021
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19. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study
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Hayley C. Prout, Allan Barham, Emily Bongard, Rhiannon Tudor-Edwards, Gareth Griffiths, Willie Hamilton, Emily Harrop, Kerry Hood, Chris N. Hurt, Rosie Nelson, Catherine Porter, Kirsty Roberts, Trevor Rogers, Emma Thomas-Jones, Angela Tod, Seow Tien Yeo, Richard D. Neal, and Annmarie Nelson
- Subjects
Feasibility studies ,Lung neoplasms ,Patient preference ,Primary healthcare ,Qualitative research ,Quality of life ,Medicine (General) ,R5-920 - Abstract
Abstract Background The ELCID (Early Lung Cancer Investigation and Diagnosis) trial was a feasibility randomised controlled trial examining the effect on lung cancer diagnosis of lowering the threshold for referral for urgent chest x-ray for smokers and recent ex-smokers, aged over 60 years with new chest symptoms. The qualitative component aimed to explore the feasibility of individually randomising patients to an urgent chest x-ray or not and to investigate any barriers to patient recruitment and participation. We integrated this within the feasibility trial to inform the design of any future definitive trial, particularly in view of the lack of research exploring symptomatic patients’ experiences of participating in diagnostic trials for possible/suspected lung cancer. Although previous studies contributed valuable information concerning screening for lung cancer and patient participation in trials, this paper is the first to explore issues relating to this specific patient group. Methods Qualitative interviews were conducted with 21 patients, comprising 9 who had been randomised to receive an immediate chest x-ray, 10 who were randomised to receive the standard treatment according to the National Institute for Health and Care Excellence guidelines, and 2 who chose not to participate in the trial. Interviews were analysed using a framework approach. Results The findings of this analysis showed that altruism, personal benefit and the reassurance of not having lung cancer were important factors in patient participation. However, patients largely believed that being in the intervention arm was more beneficial, highlighting a lack of understanding of clinical equipoise. Disincentives to participation in the trial included the stigmatisation of patients who smoked (given the inclusion criteria). Although the majority of patients reported that they were happy with the trial design, there was evidence of poor understanding. Last, for several patients, placing trust in health professionals was preferred to understanding the trial processes. Conclusions The integration of a qualitative study focusing on participant experience as a secondary outcome of a feasibility trial enabled exploration of patient response to participation and recruitment. The study demonstrated that although it is feasible to recruit patients to the ELCID trial, more work needs to be done to ensure an understanding of study principles and also of smoking stigmatisation. Trial registration ClinicalTrials.gov, NCT01344005. Registered on 27 April 2011.
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- 2018
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20. MesoTRAP: a feasibility study that includes a pilot clinical trial comparing video-assisted thoracoscopic partial pleurectomy decortication with indwelling pleural catheter in patients with trapped lung due to malignant pleural mesothelioma designed to address recruitment and randomisation uncertainties and sample size requirements for a phase III trial
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Apostolos Nakas, Najib M Rahman, Matthew Evison, Pasupathy Sivasothy, Helen Roberts, Julia Fox-Rushby, Nicholas A Maskell, Paul Beckett, Claire Matthews, Carol Freeman, Linda D Sharples, Angela Tod, John G Edwards, Aman S Coonar, Victoria Hughes, David A Waller, Robert Campbell Rintoul, Kelvin Lau, M Nidal Bittar, Antonio Martin-Ucar, Jurgen Herre, Alan Kirk, Kevin Blyth, Eleanor Mishra, Shahul Khan, Dionisios Stavroulis, Louise Brown, and Mohammed Munawar
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Medicine ,Diseases of the respiratory system ,RC705-779 - Abstract
Introduction One of the most debilitating symptoms of malignant pleural mesothelioma (MPM) is dyspnoea caused by pleural effusion. MPM can be complicated by the presence of tumour on the visceral pleura preventing the lung from re-expanding, known as trapped lung (TL). There is currently no consensus on the best way to manage TL. One approach is insertion of an indwelling pleural catheter (IPC) under local anaesthesia. Another is video-assisted thoracoscopic partial pleurectomy/decortication (VAT-PD). Performed under general anaesthesia, VAT-PD permits surgical removal of the rind of tumour from the visceral pleura thereby allowing the lung to fully re-expand.Methods and analysis MesoTRAP is a feasibility study that includes a pilot multicentre, randomised controlled clinical trial comparing VAT-PD with IPC in patients with TL and pleural effusion due to MPM. The primary objective is to measure the SD of visual analogue scale scores for dyspnoea following randomisation and examine the patterns of change over time in each treatment group. Secondary objectives include documenting survival and adverse events, estimating the incidence and prevalence of TL in patients with MPM, examining completion of alternative forms of data capture for economic evaluation and determining the ability to randomise 38 patients in 18 months.Ethics and dissemination This study was approved by the East of England-Cambridge Central Research Ethics Committee and the Health Research Authority (reference number 16/EE/0370). We aim to publish the outputs of this work in international peer-reviewed journals compliant with an Open Access policy.Trial registration NCT03412357.
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- 2019
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21. Communication of a mesothelioma diagnosis: developing recommendations to improve the patient experience
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Angela Tod, Bethany Hope Taylor, and Clare Warnock
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Medicine ,Diseases of the respiratory system ,RC705-779 - Abstract
Background Malignant pleural mesothelioma (MPM) is an aggressive cancer linked to asbestos exposure and inhalation. As with other cancers, receiving a diagnosis of MPM is challenging and distressing. Particular challenges are associated with communicating a diagnosis of MPM, including explaining the disease and its prognosis, treatment options and legal and financial implications. Receiving A Diagnosis Of Mesothelioma (RADIO Meso) aimed to understand the experience of communicating a diagnosis of MPM from the perspective of patients, family carers and health professionals.Methods This qualitative study comprised 31 individual interviews with patients, family carers and health professionals. This was followed by two group interviews (n=42) and an electronic consultation exercise (n=39).Results This study provides unique insight into the mesothelioma diagnostic experience of patients, family carers and health professionals. Key findings include the importance of regarding diagnosis as a process, and provision of continuity and consistency. The clinical nurse specialist and effective multidisciplinary team working provided vital contributions to successful mesothelioma diagnostic communication. Facilitators to diagnostic communication included honesty and timeliness in communication, partnership working and maintaining a patient-centred approach. Challenges to enhancing mesothelioma diagnosis communication included accessing ongoing training, ensuring a suitable clinical environment and being able to allocate appropriate time.Conclusion The RADIO Meso study highlights factors that influence the communication of a diagnosis of MPM from the perspectives of individual patients and family carers. These findings provide the basis for a set of recommendations that can be used by health professionals to improve the MPM diagnostic experience.
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- 2019
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22. Mesothelioma palliative care needs: supporting patients and families with new research-based resources
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Sarah Hargreaves, Clare Gardiner, Angela Tod, and Liz Darlison
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Community and Home Care ,General Medicine - Abstract
Background: Mesothelioma is a rare cancer without cure. Clinical guidelines recommend the timely provision of palliative/supportive care; however, a new study identified barriers to achieving this ambition. Objective: The study aimed to explore palliative care needs and the role of Mesothelioma Clinical Nurse Specialists (MCNSs); and to develop resources to address study findings. Methods: The mixed-methods study included a literature review, focus groups, interviews and surveys. Results: The study highlighted the important role of the MCNSs in palliative care and the need to: address disjointed care; improve support for families; and explain the benefits of palliative care for patients/families. A co-production approach developed an animation for patients/families to demystify palliative care and explain the benefits of early-stage engagement; and an infographic targeted at community and primary care professionals. Recommendations for community nursing practice are described.
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- 2023
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23. Moral distress in advanced practice nurses during the COVID-19 pandemic
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Emily Wood, Rachel King, Bethany Taylor, Steve Robertson, Michaela Senek, Angela Tod, and Tony Ryan
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Cross-Sectional Studies ,Humans ,COVID-19 ,Longitudinal Studies ,General Medicine ,Morals ,Pandemics ,Stress, Psychological - Abstract
Moral distress arises when a person is aware of the right course to take but is prevented from acting on it by institutional constraints. While this concept has been considered by nursing ethicists for many years, it has been particularly associated with the unprecedented healthcare conditions caused by the coronavirus disease 2019 (COVID-19) pandemic.To investigate the level of moral distress affecting advanced practice nurses (APNs) in the UK during the COVID-19 pandemic.This was a mixed-methods study in which a bespoke cross-sectional survey was sent to 243 APNs from across the UK who had been recruited to a broader longitudinal cohort study. The survey asked about their experiences, well-being and moral distress. Open-ended questions asked about their concerns regarding the health and well-being of their patients and colleagues.A total of 97 APNs completed the survey, yielding a 40% response rate. Levels of moral distress were significantly higher among APNs working in secondary care (P=0.026) compared with those working in primary care. All of the respondents expressed concerns about patients due to delayed care and about the mental well-being of their colleagues, particularly those who were redeployed to COVID-19 wards.The COVID-19 pandemic has caused moral and psychological distress for APNs. However, the type of distress and its direct causes varied among these practitioners. Tailored support is required to address moral distress and subsequently improve staff retention.
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- 2022
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24. CHIP away at the marrow-clot connection: inflammation, clonal hematopoiesis, and thromboembolic disease
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Angela Todorovski, Tzu-Fei Wang, Marc Carrier, and Yan Xu
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Specialties of internal medicine ,RC581-951 - Abstract
Abstract: Both the incidence and prognosis of arterial atherothrombosis and venous thromboembolism are strongly correlated with increasing age. Over the past decade, clonal hematopoiesis of indeterminate potential (CHIP) has been identified as a novel biomarker for cardiovascular disease. Driven by somatic mutations in the hematopoietic system, the epidemiology of CHIP is highly age dependent: among individuals aged ≥70 years in the general population, estimated prevalence of CHIP exceeds 10%. Several additional risk factors for CHIP have emerged in recent years, including smoking, receipt of anticancer therapy, and germ line predispositions. CHIP carriers consistently have higher risk of incident arterial atherothrombosis, even after accounting for traditional cardiovascular risk factors. However, the magnitude of this association varies across studies. In addition, individuals with established cardiovascular disease and CHIP have higher risks of recurrence and all-cause mortality than their non-CHIP counterparts. An association between CHIP carriership and incident venous thromboembolism has recently been made, although additional studies are needed to confirm this finding. No approved therapy exists to modify the cardiovascular risk among CHIP carriers. However, canakinumab showed promise in a post-hoc analyses of patients with TET2-mutated CHIP, and other anti-inflammasome agents are actively under development or evaluation. In this review, we provide an overview of CHIP as a mediator of thromboembolic diseases and discuss emerging therapeutics aimed at intervening on this thrombo-inflammatory nexus.
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- 2025
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25. Primary care trainee nursing associates in England: a qualitative study of higher education institution perspectives
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Steve Robertson, Rachel King, Bethany Taylor, Sara Laker, Emily Wood, Michaela Senek, Angela Tod, and Tony Ryan
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Public Health, Environmental and Occupational Health ,Care Planning - Abstract
Aim: To explore higher education institution (HEI) perspectives on the development and implementation of trainee nursing associates (NAs) in the primary care workforce in England. Background: Current shortages of primary health care staff have led to innovative skill mix approaches in attempts to maintain safe and effective care. In England, a new level of nursing practice, NAs, was introduced and joined the workforce in 2019. This role was envisaged as a way of bridging the skills gap between health care assistants and registered nurses and as an alternative route into registered nursing. However, there is limited evidence on programme development and implementation of trainee NAs within primary care settings and HEI perspectives on this. Methods: This paper draws from a larger qualitative study of HEI perspectives on the trainee NA programme. Twenty-seven staff involved in training NAs, from five HEIs across England, were interviewed from June to September 2021. The interview schedule specifically included questions relating to primary care. Data relating to primary care were extracted and analysed using a combined framework and thematic analysis approach. Findings: Three themes were developed: ‘Understanding the trainee role and requirements’, ‘Trainee support in primary care’ and ‘Skills and scope of practice’. It is apparent that a more limited understanding of the NA programme requirements can lead to difficulties in accessing the right support for trainees in primary care. This can create challenges for trainees in gaining the required competencies and uncertainty in understanding what constitutes a safe scope of practice within the role for both employers and trainees. It might be anticipated that as this new programme becomes more embedded in primary care, a greater understanding will develop, support will improve and the nature and scope of this new level of practice will become clearer.
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- 2023
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26. Training and development experiences of nursing associate trainees based in primary care across England: a qualitative study
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Rachel King, Sara Laker, Sarah Alden, Tony Ryan, Emily Wood, Angela Tod, Michaela Senek, Bethany Taylor, and Steven Robertson
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Public Health, Environmental and Occupational Health ,Care Planning - Abstract
Background: The nursing associate role was first deployed in England in 2019 to fill a perceived skills gap in the nursing workforce between healthcare assistants and registered nurses and to offer an alternative route into registered nursing. Initially, trainee nursing associates were predominantly based in hospital settings; however, more recently, there has been an increase in trainees based in primary care settings. Early research has focussed on experiences of the role across a range of settings, particularly secondary care; therefore, little is known about the experiences and unique support needs of trainees based in primary care. Aim: To explore the experiences and career development opportunities for trainee nursing associates based in primary care. Methods: This study used a qualitative exploratory design. Semi-structured interviews were undertaken with 11 trainee nursing associates based in primary care from across England. Data were collected between October and November 2021, transcribed and analysed thematically. Findings: Four key themes relating to primary care trainee experiences of training and development were identified. Firstly, nursing associate training provided a ‘valuable opportunity for career progression’. Trainees were frustrated by the ‘emphasis on secondary care’ in both academic content and placement portfolio requirements. They also experienced ‘inconsistency in support’ from their managers and assessors and noted a number of ‘constraints to their learning opportunities’, including the opportunity to progress to become registered nurses. Conclusion: This study raises important issues for trainee nursing associates, which may influence the recruitment and retention of the nursing associate workforce in primary care. Educators should consider adjustments to how the curriculum is delivered, including primary care skills and relevant assessments. Employers need to recognise the resource requirements for the programme, in relation to time and support, to avoid undue stress for trainees. Protected learning time should enable trainees to meet the required proficiencies.
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- 2023
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27. Online information about mental health and well-being for UK patients and carers living with mesothelioma: an internet search study
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Virginia Sherborne, Stephanie Ejegi-Memeh, Angela Tod, Mariam Gul, and Jasmine Dunkley
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Pulmonary and Respiratory Medicine ,Cancer Research ,Oncology - Published
- 2023
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28. TH6.8 The Utility and Impact of Advanced Nurse Practitioners in Unplanned Surgical Admissions: A Review of the Literature
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Anna Riley, Angela Tod, Rachel King, Anthony Chan, and Steve Robertson
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Surgery - Abstract
Aims Advanced Nurse Practitioners (ANP) are well established within acute medical and Critical Care environments. The evolution of surgical ANPs have tended towards preoperative roles, such as anaesthesia or scrub, with few clinical roles involving the assessment of acute patients or inpatient care. The Royal College of Surgeons of England have recently recognised, by professional membership, the roles of non-medical members of the surgical team, such as ANPs and physician associates. This review explores the areas of impact of ANPs on the emergency General Surgery service provision to help develop the role of the modern surgical ANP. Methods A scoping literature review was performed to identify themes of ANP function and outcome. Search terms such as “Advanced Nurse Practitioners”, “Surgical Assessment Units” and “outcomes” were combined with Boolean operators to query PubMed, BNI, CINAHL, Google Scholar and HMIC databases. Studies in the last decade were included. Results We identified and screened 54 unique articles. 40 articles were reviewed for eligibility and 21 were included in this review. A thematic analysis identified the impact of ANPs on the process of care (such as assessment and treatment waiting times and patient satisfaction) and outcomes of care (readmission rates, length of stay and cost-effectiveness). Conclusion Research into the impact of ANPs are largely focused on objective outcome measures and within non-surgical specialties. Whilst this review demonstrates the positive aspects of ANP care on emergency care, we identify a paucity of evidence on patient-focused outcomes and the impact of ANPs on the patient journey within surgery.
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- 2022
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29. Missed care in community and primary care
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Michaela Senek, Bethany Taylor, Rachel King, Angela Tod, Steven Robertson, Emily Wood, and Tony Ryan
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Community and Home Care ,medicine.medical_specialty ,Health (social science) ,030504 nursing ,business.industry ,Public Health, Environmental and Occupational Health ,Staffing ,Workload ,Primary care ,National planning ,Secondary care ,03 medical and health sciences ,0302 clinical medicine ,Family medicine ,Secondary analysis ,medicine ,030212 general & internal medicine ,0305 other medical science ,business ,Community nursing - Abstract
Background: Studies have shown that understaffing may result in missed care, compromising patient outcomes. However, most of these studies have been conducted in secondary care, and there is a lack of similar evidence about the prevalence and type of missed care in community and primary care.\ud \ud \ud \ud Aim: To explore the prevalence of missed care in community and primary care settings, and to better understand its association with staffing levels.\ud \ud \ud \ud Method: A staffing survey was administered by the Royal College of Nursing to explore the working experiences of nurses from all settings across the UK. Respondents were asked questions about their latest shifts. For this study, the authors performed a secondary analysis of that data, focusing on the responses from primary and community care.\ud \ud \ud \ud Results: There were 3,009 responses to the survey from primary care, community care and care home nurses pertaining to the prevalence of understaffing, staffing levels and missed care. Analysis showed that, in primary care and the community, missed care was significantly more likely to occur on understaffed shifts (39%) compared to fully staffed shifts (23%).\ud \ud \ud \ud Conclusion: There is a high prevalence of understaffing in community nursing and instances of missed care are more likely to occur on understaffed shifts. Assessing appropriate staffing levels and skill mixes in community nursing is complex and current models tend to emphasise caseload numbers rather than workload. Local and national planning should focus on workload measures, incorporating a range of indicators that place safe and effective person-centred care at their core.
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- 2021
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30. What are the psychological effects of mesothelioma on patients and their carers? A scoping review
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Bethany Taylor, Jane Seymour, Angela Tod, and Virginia Sherborne
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Male ,Psychotherapist ,Palliative care ,Inclusion (disability rights) ,media_common.quotation_subject ,Emotions ,Psychological intervention ,Psycho-oncology ,Experimental and Cognitive Psychology ,CINAHL ,Cochrane Library ,Psychological Distress ,03 medical and health sciences ,0302 clinical medicine ,Adaptation, Psychological ,Humans ,030212 general & internal medicine ,media_common ,Mesothelioma, Malignant ,Palliative Care ,Uncertainty ,Psychiatry and Mental health ,Mental Health ,Caregivers ,Oncology ,Feeling ,030220 oncology & carcinogenesis ,Quality of Life ,Female ,Thematic analysis ,Psychology ,Stress, Psychological - Abstract
Objective\ud \ud Despite recent advances in research, malignant mesothelioma remains an incurable and devastating disease, typically bringing shock and emotional distress to patients and carers. Little research has addressed the psychological impact on either group. This scoping review examines the current state of evidence on the psychological effects of mesothelioma on patients and carers, and identifies areas for further research.\ud \ud \ud Methods\ud \ud We searched PubMed, PsychINFO, CINAHL, the Cochrane Library and Web of Science for English‐language peer‐reviewed research articles published 1981 to 2019 reporting studies focussing on the psychological effects of mesothelioma on patients and carers. Following data extraction and quality appraisal, reflexive thematic analysis was used to identify themes.\ud \ud \ud Results\ud \ud Seventeen articles met the inclusion criteria. Carers' experiences were generally amalgamated with patients'. Three themes were developed. The Passing of Time included the importance of timing of interventions; delays in the medical journey; awareness of different time‐phases in mesothelioma; and uncertainty/certainty. Dealing with Difficult Feelings reflected ubiquitous negative emotions, feelings about identity and states of being and associated coping strategies. Craving Good Communication covered issues related to sharing of information and to positive/negative aspects of communication.\ud \ud \ud Conclusions\ud \ud Though limited, the evidence indicates that mesothelioma, with its high symptom‐burden, incurability, rarity and asbestos‐related causation, leads to complex and inter‐relating psychological effects on patients and carers. These effects are both negative and positive. The sparse literature gives a partial picture and demonstrates an urgent need for more nuanced research. Studies exploring the experiences of specific groups are recommended, with particular attention required to carers.
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- 2020
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31. Innovating access to the nurse-led hepatitis C clinic using co-production
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Ray Poll, Angela Tod, and Daniel Wolstenholme
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Evidence-based practice ,Research and Theory ,business.industry ,030503 health policy & services ,education ,Articles ,Hepatitis C ,medicine.disease ,03 medical and health sciences ,Nurse led ,0302 clinical medicine ,Nursing ,Medicine ,Production (economics) ,030212 general & internal medicine ,0305 other medical science ,business ,Service development - Abstract
Background Many reasons for missed appointments are given by people who inject drugs and it is suggested that one solution cannot solve this complex issue (Poll et al., 2017). Increasingly, nurses and other health professionals are expected to actively involve patients and service users in developing innovative, effective and accessible services. This project used co-production as the approach to address this challenge. Aims This paper describes how a co-production method was used to develop accessible nurse-led hepatitis C virus services for people who inject drugs. Methods Using research evidence from a study conducted by the lead author as a starting point, a series of co-production workshops were run using creative co-design methods to identify the barriers to engagement with clinics. Potential solutions were then co-produced. Results The solutions included myth-busting posters, peer-support, a mobile clinic van and the offer of incentives and enablers (travel costs or a reward for attendance). Conclusions The service-development project illustrates how, with the right methods, it is possible to successfully engage with hard-to-access groups to co-produce innovative solutions for an important clinical challenge.
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- 2020
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32. Multi-professional perceptions of clinical research delivery and the Clinical Research Nurse role: a realist review
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Linda Tinkler, Steven Robertson, and Angela Tod
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Research and Theory - Abstract
Introduction & Background The delivery of clinical research and the Clinical Research Nurse (CRN) role is fundamental to the wider health agenda, yet both remain misunderstood outwith research teams. Methods A realist review was conducted to identify factors that influence how clinical research is perceived by healthcare professionals operating outside NHS clinical research teams. Keyword searches were undertaken across four healthcare databases including grey literature, with iterative snowball searching. Data were extracted from 42/387 sources. Coding generated 3664 extracts of text across 160 themes. Theories generated were presented as ‘If-Then’ statements. Results Thirteen theory statements described factors that may influence how clinical research is perceived by healthcare professionals operating outside clinical research teams across three contextual levels: • Micro: Individual characteristics/behaviours/CRN perceptions • Meso: Interpersonal relationships at the interface between CRN roles and healthcare delivery • Macro: Systemwide/infrastructural/cultural issues impacting clinical research delivery. Conclusion Factors at micro, meso and macro level contexts may influence how clinical research is perceived by healthcare professionals operating outside clinical research teams. This has the potential to affect the success of clinical research delivery. Meso level theories regarding the perceptions of healthcare professionals outwith research teams may provide insight. Empirical testing of one such theory is underway.
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- 2022
33. Moral distress in mesothelioma and lung cancer nurses during the COVID-19 pandemic: insights from a UK survey
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Sarah Hargreaves, Karen Clayton, Lorraine Creech, Liz Darlison, Stephanie Ejegi-Memeh, Jackie Fenemore, Clare Gardiner, Bethany Taylor, and Angela Tod
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Pulmonary and Respiratory Medicine ,Cancer Research ,Oncology - Published
- 2023
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34. Mesothelioma patient and carer experience research: A research prioritisation exercise
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Bethany Taylor, Angela Tod, Clare Gardiner, Stephanie Ejegi-Memeh, Madeleine Harrison, Virginia Sherborne, Emilie Couchman, Michaela Senek, Holly Bachas Brook, Jennifer Ross, and Xueming Zhang
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Oncology (nursing) ,General Medicine - Published
- 2023
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35. Understanding the mental health and well-being impacts and interventions related to living with mesothelioma: a systematic review
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Virginia Sherborne, Stephanie Ejegi-Memeh, Angela Tod, Sarah Hargreaves, and Clare Gardiner
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Pulmonary and Respiratory Medicine ,Cancer Research ,Oncology - Published
- 2023
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36. Understanding the value of a PhD for post-doctoral registered UK nurses: A survey
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Susan Hampshaw, Jo Cooke, Steve Robertson, Emily Wood, Rachel King, and Angela Tod
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Leadership and Management ,Physicians ,Surveys and Questionnaires ,Humans ,Nurse Administrators ,Education, Nursing, Graduate ,United Kingdom - Abstract
This study investigated, 'What is the perceived value of a PhD to doctoral and postdoctoral nurses in the UK?'Little is known about what happens to the careers of nurses who undertake a doctorate and whether they use these skills in the next career steps.Nurses (n = 47) with doctorates were recruited via professional networks and twitter (@NMAHP_DoctorateStudy). Qualitative responses from the nurses were analysed using thematic analysis.Three themes emerged from qualitative analysis: impact on career, utilization and value, and impact on self.This study provides one of the few insights into how doctoral trained nurses understand and experience the value and utility of their studies to themselves and others.Nurse managers can play a crucial role in generating a research-led culture within their clinical setting. This would include promoting an understanding of research as something directly related to patient benefit rather than an abstract, intellectual activity.
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- 2022
37. Impact of Covid-19 on lung cancer and mesothelioma specialist nurses: A survey of experiences and perceptions
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Sarah Hargreaves, Karen Clayton, Lorraine Creech, Liz Darlison, Stephanie Ejegi-Memeh, Jackie Fenemore, Clare Gardiner, Bethany Taylor, and Angela Tod
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Mesothelioma ,Cross-Sectional Studies ,Lung Neoplasms ,Oncology (nursing) ,Surveys and Questionnaires ,Humans ,COVID-19 ,Nurses ,General Medicine ,Nurse Clinicians - Abstract
The covid-19 global pandemic has impacted on nurses who have rapidly adapted to new ways of working, and experienced negative impacts due to over-stretched services. Two surveys captured the experiences of lung cancer and mesothelioma specialist nurses in the United Kingdom (UK) in 2020, but the impact of later stages of the pandemic was unknown. This study aimed to explore the impact of covid-19 on lung Cancer and mesothelioma nurses since January 2021, the second wave of the pandemic.An online cross-sectional survey with both open and closed questions explored the impact of covid-19 on ways of working and workload, quality of care, and health and wellbeing. The survey was open to UK based lung cancer and mesothelioma advanced or specialist nurses.85 nurses responded to the survey. The majority were Clinical Nurse Specialists, based in England. Respondents reported changes in ways of working due to redeployment, staff shortages, and home working. Widespread adoption of virtual working practices led to concerns of negative impacts. Perceived excessive workload impacted on care with two-thirds of the sample (57, 67%) reporting they had been unable to provide the same quality of care to patients. Impacts on nurses' health and wellbeing were reported with two-thirds of the sample (56, 66%) reporting a deterioration in emotional wellbeing and mental health. Coping mechanisms employed included online team support to share experiences and increased uptake of exercise; however, impacts on lifestyle and access to coping mechanisms varied.Nurses have stepped up to the challenges of the pandemic with teamwork and innovation, but pressure arising from the pandemic and high workloads led to negative impacts on wellbeing. The authors have provided recommendations to improve patient care and support the wellbeing of nurses, which will be key to a resilient workforce living with covid-19. Whilst this study focussed on lung cancer and mesothelioma specialists, the findings have wider implications for other cancer specialties.
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- 2022
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38. Addressing current challenges in adult nursing: Describing a virtual Consensus development project methodology
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Angela Tod, Steve Robertson, Tony Ryan, Jane South, Michaela Senek, Emily Wood, Jane Seymour, Bethany Taylor, and Rachel King
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Consensus ,ComputingMilieux_THECOMPUTINGPROFESSION ,Event (computing) ,Consensus Development Conferences as Topic ,Context (language use) ,Project Coordinator ,Constructive ,Research Personnel ,Nursing care ,Nursing ,Political science ,Humans ,Consensus development ,Composition (language) ,General Nursing - Abstract
Aim\ud \ud This article describes the development and implementation of a virtual consensus development project to address current challenges in adult nursing care in the UK.\ud \ud \ud Design\ud \ud This is a Consensus Development Project (CDP).\ud \ud \ud Methods\ud \ud The five stages of this CDP were: develop questions (informed by PPI representatives and a documentary review), generate evidence reviews, recruit and orient the lay panel, host consensus seminars, and consult with panel members and stakeholders.\ud \ud \ud Results\ud \ud To the best of our knowledge, a CDP has not previously been conducted in a UK nursing context, and this is the first of its kind to be hosted virtually. This article contributes a detailed outline of the consensus development methodology and constructive commentary to support future consensus development projects. Learning points include reflections on the impact of hosting this event virtually, the relationship between the project coordinator and chair, and the composition of the lay panel.
- Published
- 2021
39. The psychological effects of mesothelioma in the UK military context from the carer’s perspective: recommendations for practice
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Virginia Sherborne, Angela Tod, and Bethany Taylor
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Pulmonary and Respiratory Medicine ,Cancer Research ,Oncology - Published
- 2022
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40. Do working practices of cancer nurse specialists improve clinical outcomes? Retrospective cohort analysis from the English National Lung Cancer Audit
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Iain A. Stewart, Paul Beckett, Laila J. Tata, Diana Borthwick, Angela Tod, Richard Hubbard, Aamir Khakwani, and Alison Leary
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Adult ,Lung Neoplasms ,medicine.medical_treatment ,Lower risk ,03 medical and health sciences ,symbols.namesake ,0302 clinical medicine ,Nursing ,Carcinoma, Non-Small-Cell Lung ,medicine ,Humans ,030212 general & internal medicine ,Poisson regression ,Lung cancer ,General Nursing ,Retrospective Studies ,030504 nursing ,business.industry ,Cancer ,Retrospective cohort study ,medicine.disease ,Radiation therapy ,England ,Workforce ,symbols ,Health education ,0305 other medical science ,business ,Nurse Specialists - Abstract
Background\ud \ud Cancer nurse specialists are advanced practitioners who offer continuity of care and expert support for people diagnosed with specific cancers. Health Education England's Cancer Workforce Plan prioritises expansion of cancer nurse specialist numbers by 2021 as part of the Cancer Taskforce Strategy for England.\ud \ud \ud \ud Objective\ud \ud To assess whether working practices of advanced practice specialist nurses are associated with clinical outcomes for people with lung cancer.\ud \ud \ud \ud Methods\ud \ud Adults with non-small cell lung cancer followed from 30 days post-diagnosis in English secondary care were obtained from the English National Lung Cancer Audit, 2007 to 2011. A national survey of lung cancer nurse specialists provided information on self-reported working practices. Mortality and unplanned admissions from 30 days to 12 months post diagnosis were respectively analysed using Cox and Poisson regression. Outcomes were assessed according to patients’ receipt of initial assessments by a lung cancer nurse specialist and according to trust-level reported working practices. Regression models were adjusted for individual sociodemographic and clinical characteristics, error adjusted for intracorrelations within regional cancer networks, and presented separately according to patients’ treatment pathways (surgery, chemotherapy, radiotherapy, or no anti-cancer therapy).\ud \ud \ud \ud Results\ud \ud Data for 108,115 people with lung cancer were analysed and associations with mortality and unplanned admissions were infrequent. Among people receiving only radiotherapy, however, the hazard for death was 17% lower among those who received an assessment by a lung cancer nurse specialist, compared with no assessment (hazard ratio = 0.83, 95% confidence interval 0.73–0.94; p = 0.003). The hazard was also lower among those receiving surgery (hazard ratio = 0.91, 0.84–0.99; p = 0.028). Among those receiving radiotherapy, nurse specialists’ reported confidence within multidisciplinary team settings was associated with a lower risk of death (hazard ratio = 0.88, 0.78–1.00; p = 0.049) and a lower rate of unplanned cancer-related admissions (incidence rate ratio = 0.83, 0.73–0.95; p = 0.007). Lung cancer nurse specialist assessments before/at diagnosis, were associated with a 5% lower rate of unplanned admissions, compared to when assessments occurred after diagnosis.\ud \ud \ud \ud Conclusion\ud \ud The contribution of nurse specialist working practices was occasionally associated with better outcomes for people with lung cancer. These were not limited to a single treatment pathway, but do indicate discrete relationships within pathways. Our study provides initial measures of overall lung cancer nurse specialist working practices at trusts, however, more detailed studies with longitudinal measurement of lung cancer nurse specialist-patient interaction are needed to better ascertain impacts on long-term patient outcomes. The findings highlight opportunities for potential improvement in effectiveness of service and care management.
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- 2021
41. Configuration of vascular services: a multiple methods research programme
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Phil Shackley, Anju Keetharuth, Andrew Booth, Georgina Jones, Eva Kaltenthaler, Elizabeth Lumley, Praveen Thokala, Aoife Howard, Nyantara Wickramasekera, Shah Nawaz, Stephen Radley, Ahmed Aber, Jim Chilcott, Rosie Duncan, Angela Tod, Simon Palfreyman, Thai-Son Tong, Steven Thomas, Munira Essat, Patrick C. Phillips, Gill Rooney, Ravi Maheswaran, Jonathan Michaels, Edith Poku, Edward Goka, Emma Wilson, Suzy Paisley, and Helen Buckley Woods
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psychometrics ,Integrated services ,economic ,service configuration ,carotid artery disease ,workload ,03 medical and health sciences ,models ,0302 clinical medicine ,Quality of life (healthcare) ,abdominal aortic aneurysm ,peripheral arterial disease ,Medicine ,030212 general & internal medicine ,england ,patient-reported outcome measures ,Service (business) ,outcome assessment (health care) ,business.industry ,quality-adjusted life-years ,cost-effectiveness analysis ,Workload ,state medicine ,Cost-effectiveness analysis ,medicine.disease ,systematic literature reviews ,Quality-adjusted life year ,Systematic review ,030220 oncology & carcinogenesis ,surveys and questionnaires ,Electronic data ,Medical emergency ,internet ,vascular services ,Public aspects of medicine ,RA1-1270 ,business ,patient preferences - Abstract
BackgroundVascular services is changing rapidly, having emerged as a new specialty with its own training and specialised techniques. This has resulted in the need for reconfiguration of services to provide adequate specialist provision and accessible and equitable services.ObjectivesTo identify the effects of service configuration on practice, resource use and outcomes. To model potential changes in configuration. To identify and/or develop electronic data collection tools for collecting patient-reported outcome measures and other clinical information. To evaluate patient preferences for aspects of services other than health-related quality of life.DesignThis was a multiple methods study comprising multiple systematic literature reviews; the development of a new outcome measure for users of vascular services (the electronic Personal Assessment Questionnaire – Vascular) based on the reviews, qualitative studies and psychometric evaluation; a trade-off exercise to measure process utilities; Hospital Episode Statistics analysis; and the development of individual disease models and a metamodel of service configuration.SettingSpecialist vascular inpatient services in England.Data sourcesModelling and Hospital Episode Statistics analysis for all vascular inpatients in England from 2006 to 2018. Qualitative studies and electronic Personal Assessment Questionnaire – Vascular evaluation with vascular patients from the Sheffield area. The trade-off studies were based on a societal sample from across England.InterventionsThe data analysis, preference studies and modelling explored the effect of different potential arrangements for service provision on the resource use, workload and outcomes for all interventions in the three main areas of inpatient vascular treatment: peripheral arterial disease, abdominal aortic aneurysm and carotid artery disease. The electronic Personal Assessment Questionnaire – Vascular was evaluated as a potential tool for clinical data collection and outcome monitoring.Main outcome measuresSystematic reviews assessed quality and psychometric properties of published outcome measures for vascular disease and the relationship between volume and outcome in vascular services. The electronic Personal Assessment Questionnaire – Vascular development considered face and construct validity, test–retest reliability and responsiveness. Models were validated using case studies from previous reconfigurations and comparisons with Hospital Episode Statistics data. Preference studies resulted in estimates of process utilities for aneurysm treatment and for travelling distances to access services.ResultsSystematic reviews provided evidence of an association between increasing volume of activity and improved outcomes for peripheral arterial disease, abdominal aortic aneurysm and carotid artery disease. Reviews of existing patient-reported outcome measures did not identify suitable condition-specific tools for incorporation in the electronic Personal Assessment Questionnaire – Vascular. Reviews of qualitative evidence, primary qualitative studies and a Delphi exercise identified the issues to be incorporated into the electronic Personal Assessment Questionnaire – Vascular, resulting in a questionnaire with one generic and three disease-specific domains. After initial item reduction, the final version has 55 items in eight scales and has acceptable psychometric properties. The preference studies showed strong preference for endovascular abdominal aortic aneurysm treatment (willingness to trade up to 0.135 quality-adjusted life-years) and for local services (up to 0.631 quality-adjusted life-years). A simulation model with a web-based interface was developed, incorporating disease-specific models for abdominal aortic aneurysm, peripheral arterial disease and carotid artery disease. This predicts the effects of specified reconfigurations on workload, resource use, outcomes and cost-effectiveness. Initial exploration suggested that further reconfiguration of services in England to accomplish high-volume centres would result in improved outcomes, within the bounds of cost-effectiveness usually considered acceptable in the NHS.LimitationsThe major source of evidence to populate the models was Hospital Episode Statistics data, which have limitations owing to the complexity of the data, deficiencies in the coding systems and variations in coding practice. The studies were not able to address all of the potential barriers to change where vascular services are not compliant with current NHS recommendations.ConclusionsThere is evidence of potential for improvement in the clinical effectiveness and cost-effectiveness of vascular services through further centralisation of sites where major vascular procedures are undertaken. Preferences for local services are strong, and this may be addressed through more integrated services, with a range of services being provided more locally. The use of a web-based tool for the collection of clinical data and patient-reported outcome measures is feasible and can provide outcome data for clinical use and service evaluation.Future workFurther evaluation of the economic models in real-world situations where local vascular service reconfiguration is under consideration and of the barriers to change where vascular services do not meet NHS recommendations for service configuration is needed. Further work on the electronic Personal Assessment Questionnaire – Vascular is required to assess its acceptability and usefulness in clinical practice and to develop appropriate report formats for clinical use and service evaluation. Further studies to assess the implications of including non-health-related preferences for care processes, and location of services, in calculations of cost-effectiveness are required.Study registrationThis study is registered as PROSPERO CRD42016042570, CRD42016042573, CRD42016042574, CRD42016042576, CRD42016042575, CRD42014014850, CRD42015023877 and CRD42015024820.FundingThis project was funded by the National Institute for Health Research (NIHR) Programme Grants for Applied Research programme and will be published in full inProgramme Grants for Applied Research; Vol. 9, No. 5. See the NIHR Journals Library website for further project information.
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- 2021
42. Exploring advanced nursing practice in stroke services : a scoping review
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Joe Bailey, Rachel King, Steve Robertson, and Angela Tod
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Nursing practice ,030504 nursing ,business.industry ,Specialty ,Stroke care ,medicine.disease ,03 medical and health sciences ,0302 clinical medicine ,medicine ,030212 general & internal medicine ,Neurology (clinical) ,Medical emergency ,0305 other medical science ,business ,Stroke ,General Nursing ,hormones, hormone substitutes, and hormone antagonists ,Service development ,Stroke services - Abstract
Background: Stroke care is becoming increasingly reliant on advanced nursing practice (ANP); however, little is known about these roles within the stroke specialty. Aims: To explore the current knowledge of advanced nursing practice in stroke services internationally, specifically, the conceptualisation of ANP and the rationale for its implementation. Methods: Arskey and O'Malley's scoping review methodology was employed, and six academic databases were used. Findings: Two key themes were identified; ‘role development’ and ‘four pillars of advanced practice’. The review identifies that ANP is implemented primarily to provide acute stroke care. Conclusions: Current research does not clarify the rationale for implementing these posts or how ANP is conceptualised. This review does identify that stroke ANP incorporates the four pillars of advanced practice (clinical, research, leadership and education) and was implemented to improve the quality of stroke care. Barriers and facilitators to implementation were also identified.
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- 2021
43. The impact of COVID-19 on work, training and well-being experiences of nursing associates in England: A cross-sectional survey
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Bethany Taylor, Steve Robertson, Tony Ryan, Michaela Senek, Rachel King, Emily Wood, Angela Tod, Ashfaque Talpur, Division of Nursing and Midwifery, Health Sciences School, The University of Sheffield, Sheffield, UK, Pathogenesis and Control of Chronic and Emerging Infections (PCCEI), Institut National de la Santé et de la Recherche Médicale (INSERM)-Université des Antilles (UA)-Etablissement français du don du sang [Montpellier]-Université de Montpellier (UM), and BONIZEC, Sandrine
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workforce ,Cross-sectional study ,[SDV]Life Sciences [q-bio] ,media_common.quotation_subject ,Staffing ,Nursing ,COVID‐19 ,Surveys and Questionnaires ,Humans ,trainee nursing associates ,Pandemics ,ComputingMilieux_MISCELLANEOUS ,General Nursing ,Research Articles ,media_common ,Teamwork ,training ,Descriptive statistics ,Overtime ,COVID-19 ,Workload ,cross‐sectional survey ,[SDV] Life Sciences [q-bio] ,Cross-Sectional Studies ,well‐being ,Workforce ,Well-being ,Psychology ,Research Article - Abstract
Aim To explore how the COVID‐19 pandemic affected nursing associate work, training and well‐being experiences. Design Cross‐sectional survey. Methods A survey of trainee and newly qualified nursing associates was completed in July 2020. Closed responses were analysed using descriptive statistics with inferential comparisons made between community and secondary care settings. Open questions were analysed thematically. Results Sixty‐four participants responded. Over half (53.2%) experienced an increased workload with 24.2% reporting extensions in their role. One third (32.3%) were redeployed, and a quarter (24.2%) did not feel safety concerns were adequately addressed when raised. Those working in the community reported significantly more concerns about staffing (p = .03), working overtime (p = .03), missed care (p = .02) and safety (p = .04). Despite this, many (75.8%) participants felt able to provide the same standards of care. Several spoke about enhanced teamwork, and the majority (96.8%) were not looking to leave their post.
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- 2021
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44. Effects of the COVID-19 pandemic on people with mesothelioma and their carers
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Lorraine Creech, Angela Tod, Clare Gardiner, Faye Forde, Liz Darlison, and Bethany Taylor
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medicine.medical_specialty ,030504 nursing ,Coronavirus disease 2019 (COVID-19) ,business.industry ,Optimal treatment ,Symptom burden ,Aggressive cancer ,General Medicine ,respiratory system ,medicine.disease ,respiratory tract diseases ,03 medical and health sciences ,0302 clinical medicine ,030220 oncology & carcinogenesis ,Family medicine ,Pandemic ,Health care ,Medicine ,Mesothelioma ,medicine.symptom ,0305 other medical science ,business ,neoplasms ,Confusion - Abstract
Mesothelioma is a rare, life-limiting and aggressive cancer with a high symptom burden. This article explores the effect of the coronavirus disease 2019 (COVID-19) pandemic on the experiences of patients with mesothelioma and their carers. The charity Mesothelioma UK conducted a service evaluation that included two surveys – one with patients with mesothelioma and their carers, and the other with UK mesothelioma clinical nurse specialists – to explore the effects of the COVID-19 pandemic.\ud \ud \ud This article presents the results of these surveys, which suggest that patients with mesothelioma and their carers have been disproportionately affected by the COVID-19 pandemic in various areas. These include treatment and investigations, communication with healthcare teams, confusion concerning shielding, and the emotional and psychological burden of the pandemic. The authors include recommendations for practice to ensure patients and their families receive optimal treatment and support during the remainder of the pandemic.
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- 2021
45. UK advanced practice nurses’ experiences of the COVID-19 pandemic: a mixed-methods cross-sectional study
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Steve Robertson, Bethany Taylor, Michaela Senek, Rachel King, Emily Wood, Anthony J. Ryan, Angela Tod, BONIZEC, Sandrine, Health Sciences School, The University of Sheffield, Sheffield, South Yorkshire, UK e.f.wood@sheffield.ac.uk, Health Sciences School, The University of Sheffield, Sheffield, South Yorkshire, UK, Pathogenesis and Control of Chronic and Emerging Infections (PCCEI), and Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Montpellier (UM)-Université des Antilles (UA)-Etablissement français du don du sang [Montpellier]
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medicine.medical_specialty ,animal structures ,Cross-sectional study ,[SDV]Life Sciences [q-bio] ,Nurses ,health & safety ,03 medical and health sciences ,0302 clinical medicine ,Epidemiology ,Pandemic ,medicine ,Humans ,rationing ,030212 general & internal medicine ,Personal protective equipment ,Pandemics ,Personal Protective Equipment ,Health policy ,business.industry ,Rationing ,COVID-19 ,health policy ,General Medicine ,Mental health ,United Kingdom ,[SDV] Life Sciences [q-bio] ,Cross-Sectional Studies ,Mental Health ,Family medicine ,Cohort ,Medicine ,Health Services Research ,business ,030217 neurology & neurosurgery ,hormones, hormone substitutes, and hormone antagonists - Abstract
ObjectiveThe aim of the study was to understand the experiences of advanced practice nurses (APNs) in the UK during the 2020 COVID-19 pandemic, particularly in relation to safety, shortages and retention.DesignA cross-sectional, mixed-methods survey.SettingAPNs in any UK setting.ParticipantsThe survey was sent to an existing UK-wide cohort of APNs. 124 APNs responded (51%).ResultsUK-based APNs in this study reported shortages of staff (51%) and personal protective equipment (PPE) (68%) during the first 3 months of the coronavirus outbreak. Almost half (47%) had considered leaving their job over the same 3 months. Despite difficulties, there were reports of positive changes to working practice that have enhanced care.ConclusionUK APNs report COVID-19-related shortages in staff and equipment across primary and secondary care and all regions of the UK. Shortages of PPE during a pandemic are known to be a factor in the development of mental health sequelae as well as a risk factor for increased turnover and retention issues. Half of APNs surveyed were considering a change in job. The UK risks a further crisis in staff morale and retention if this is not acknowledged and addressed. APNs also expressed concern about patients not receiving routine care as many specialties closed or reduced working during the crisis. However, there were also many examples of good practice, positive changes and innovation.
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- 2021
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46. Shortcuts in knowledge mobilization: An ethnographic study of advanced nurse practitioner discharge decision‐making in the emergency department
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Rachel King, Tom Sanders, Angela Tod, BONIZEC, Sandrine, The University of Sheffield [Sheffield, U.K.], Pathogenesis and Control of Chronic and Emerging Infections (PCCEI), Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Montpellier (UM)-Université des Antilles (UA)-Etablissement français du don du sang [Montpellier], and University of Northumbria at Newcastle [United Kingdom]
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Scope of practice ,[SDV]Life Sciences [q-bio] ,Nurse's Role ,B700 ,03 medical and health sciences ,0302 clinical medicine ,Mentorship ,Ethnography ,Humans ,Experiential knowledge ,Nurse Practitioners ,030212 general & internal medicine ,Knowledge mobilization ,General Nursing ,ComputingMilieux_MISCELLANEOUS ,Medical education ,030504 nursing ,Emergency department ,Patient Discharge ,[SDV] Life Sciences [q-bio] ,England ,Thematic analysis ,Emergency Service, Hospital ,0305 other medical science ,Psychology ,Qualitative research - Abstract
Aim\ud \ud To understand how advanced nurse practitioners use knowledge to inform their discharge decision‐making in the emergency department.\ud \ud \ud \ud Background\ud \ud Advanced nurse practitioner roles have developed globally in a wide range of healthcare settings, including the emergency department, over the past few years. The scope of practice and training vary widely between countries. Little is known about how they use clinical knowledge in the emergency department.\ud \ud \ud \ud Design\ud \ud An ethnographic study was undertaken in an emergency department in the North of England.\ud \ud \ud \ud Method\ud \ud Data were collected by observation (n = 5) and semi‐structured interviews (n = 13) between September 2016 and June 2017. Interview transcripts and field notes were coded using Quirkos software. Thematic analysis was used to identify key themes.\ud \ud \ud \ud Findings\ud \ud In boundary blurring with medicine, advanced nurse practitioners in the emergency department need to make timely, autonomous discharge decisions. Knowledge mobilization is messy and complex; however, shortcuts facilitate autonomous discharge decision‐making. More experienced advanced nurse practitioners rely less on shortcuts as they draw on experiential knowledge.\ud \ud \ud \ud Discussion\ud \ud Boundary blurring in the advanced nurse practitioner role in the emergency department, requires reliable knowledge shortcuts. Support from senior colleagues and accessible smartphone apps enable advanced nurse practitioners to efficiently make discharge decisions. This study adds to previous research on how knowledge is managed in boundary blurring.\ud \ud \ud \ud Conclusion\ud \ud Advanced nurse practitioners in the emergency department require timely access to relevant, up to date knowledge. This study has highlighted their preferred knowledge sources to inform discharge decision‐making. In boundary blurring, shortcuts enable ANPs to use knowledge efficiently to inform patient care in the emergency department.\ud \ud \ud \ud Impact\ud \ud The findings increase our understanding of how to equip advanced nurse practitioners with knowledge to facilitate clinical decision‐making. Clinical managers should provide mentorship and relevant up to date knowledge shortcuts to ensure efficient, evidence‐based discharge decision‐making.
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- 2021
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47. Sources of satisfaction, dissatisfaction and well-being for UK advanced practice nurses: A qualitative study
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Angela Tod, Emily Wood, Tony Ryan, Rachel King, Steve Robertson, and Michaela Senek
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Advanced Practice Nursing ,030504 nursing ,Leadership and Management ,030503 health policy & services ,media_common.quotation_subject ,Clinical supervision ,Nurses ,Personal Satisfaction ,Job Satisfaction ,United Kingdom ,03 medical and health sciences ,Nurse role ,Feeling ,Nursing ,Well-being ,Humans ,Job satisfaction ,Thematic analysis ,0305 other medical science ,Nursing management ,Psychology ,media_common ,Qualitative research - Abstract
Aims To examine and explore organisational and role conditions that promote or inhibit job satisfaction and workplace well‐being for advanced practice nurses. Background The advanced practice role is common across the world. Research shows it is well regarded by patients and improves patient outcomes, but there is little evidence about what the role is like for nurses. Methods A subsample of an existing cohort of advanced practice nurses were invited for interview. Twenty‐two nurses were interviewed over the phone. Interviews transcripts were analysed using thematic analysis. Results Four themes were derived from the data; ‘the advanced nurse role and professional identity’, ‘feeling exposed’, ‘support for the advancement of the role’ and ‘demonstrating impact’. Conclusion Nurses report considerable dissatisfaction with role identity and concerns relating to isolation on a daily basis, and these negatively affect well‐being. However, they also identified significant satisfaction with the role, particularly when well‐supported and able to recognize the unique contribution that they made to the lives of patients and to their organisations. Implications for nursing management Clear role definitions, provision of high‐quality clinical supervision and addressing issues of isolation are likely to improve the job satisfaction of advanced practice nurses.
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- 2020
48. From rational to relational : how energy poor households engage with the British retail energy market
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Lucie Middlemiss, Pepa Ambrosio-Albala, Jan Gilbertson, Ross Gillard, Angela Tod, Tom Hargreaves, Noel Longhurst, Nick Emmel, Carolyn Snell, Anne Owen, and Caroline Mullen
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Renewable Energy, Sustainability and the Environment ,020209 energy ,Energy (esotericism) ,media_common.quotation_subject ,05 social sciences ,0507 social and economic geography ,Energy Engineering and Power Technology ,02 engineering and technology ,Energy policy ,Social relation ,Intermediary ,Friendship ,Fuel Technology ,Nuclear Energy and Engineering ,Loyalty ,0202 electrical engineering, electronic engineering, information engineering ,Energy market ,Marketing ,050703 geography ,Social Sciences (miscellaneous) ,Energy poverty ,media_common - Abstract
In the sociological tradition, markets are understood to be constituted of social relations: relations of trust, friendship, power and dependence, which have moral and emotional qualities. In this paper, we explore how people in energy poor households construct the energy market and its impact on energy policy. Drawing on secondary analysis of a large collection of qualitative interviews on the lived experience of energy poverty carried out from 2003 to 2018 (n = 197 interviews and 20 selected), and the results of an OFGEM quantitative survey on consumer engagement released in 2018, we document the experience of the energy poor as actors in the British retail energy market. We uncover a number of challenges and opportunities facing energy poor participants in the market: having access to good quality information about suppliers, energy tariffs and grants, and having the skills and resources to act on this is important, without these it can be difficult for people to take action. In explaining people’s engagement with the market, we draw on the concept of ‘socio-economic attachments’, showing how a supportive network of family and friends, and people’s trust of and resulting loyalty to their energy supplier mediate their engagement. These findings lead us to relational explanations of the retail energy market, with related policy recommendations: if we are to aim for people to act ‘rationally’, they will need support to navigate the market from intermediaries.
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- 2020
49. The gendered Experience of mesothelioma study (GEMS): findings from a survey data analysis
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Michaela Senek, Angela Tod, and Steven Robertson
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Next of kin ,business.industry ,Incidence (epidemiology) ,medicine.disease_cause ,medicine.disease ,Legal advice ,Asbestos ,03 medical and health sciences ,0302 clinical medicine ,030228 respiratory system ,Early results ,medicine ,Survey data collection ,030212 general & internal medicine ,Mesothelioma ,business ,Survival analysis ,Demography - Abstract
Sex-differences in incidence, rates and survival from malignant mesothelioma are well documented and often related to men’s greater exposure to asbestos, whilst women have a physiologically based higher survival rates. Findings show that early identification of patients with a good prognosis is key to appropriate management (1). The aim was to present early results from part of a wider study, the Gendered Experiences of Mesothelioma Study (GEMS), specifically considering sex and gender differences. We obtained anonymised, routinely collected data in the period from January 2016-December 2018, by a Mesothelioma UK-based charity (HASAG). We undertook an exploratory analysis using SPSS v.26 to compare sex-differences between time from symptom onset to diagnosis; immediate support available from next of kin, action in seeking legal advice, and occupation/ exposure. Results showed that there were more very young women ( 50≥ years) with mesothelioma than men 5% women vs. 0.5% men). For women, work-related exposure is often linked to the working environment rather than the direct handling of asbestos. Women were less likely to seek legal advice (60% vs 80% of men) and less likely to receive compensation. A survival analysis showed significant time difference between men and women from time of diagnosis to IIDB award (43 vs 47 (x²= 6.3, df1, p=0.01). The higher prevalence of mesothelioma cases in previously defined low-risk occupations suggest that a long-term low-level of exposure may be causing an increase in mesothelioma cases due to such type of exposure.
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- 2020
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50. Factors that optimise the impact of continuing professional development in nursing: A rapid evidence review
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Bethany Taylor, Rachel King, Carolyn Jackson, Ashfaque Talpur, Emily Wood, Kim Manley, Tony Ryan, Nichola Ashby, Angela Tod, Steve Robertson, and Michaela Senek
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education ,MEDLINE ,Context (language use) ,CINAHL ,Cochrane Library ,Education ,03 medical and health sciences ,0302 clinical medicine ,Education, Nursing, Continuing ,Nursing ,Health care ,Relevance (law) ,Humans ,030212 general & internal medicine ,Staff Development ,Research question ,General Nursing ,Randomized Controlled Trials as Topic ,030504 nursing ,business.industry ,Professional development ,COVID-19 ,United Kingdom ,Nursing Education Research ,Nursing Evaluation Research ,0305 other medical science ,business ,Psychology - Abstract
Objectives\ud \ud Continuing professional development is essential for healthcare professionals to maintain and acquire the necessary knowledge and skills to provide person centred, safe and effective care. This is particularly important in the rapidly changing healthcare context of the Covid-19 pandemic. Despite recognition of its importance in the United Kingdom, minimum required hours for re-registration, and related investment, have been small compared to other countries. The aim of this review is to understand the factors that optimise continuing professional development impact for learning, development and improvement in the workplace.\ud \ud \ud Design\ud \ud A rapid evidence review was undertaken using Arksey and O'Malley's (2005) framework; identifying a research question, developing a search strategy, extracting, collating and summarising the findings.\ud \ud \ud Review methods\ud \ud In addressing the question ‘What are the factors that enable or optimise CPD impact for learning, development and improvement in the workplace at the individual, team, organisation and system level?’ the British Nursing Index, the Cochrane Library, CINAHL, HTA database, King's Fund Library, and Medline databases were searched for key terms. A total of 3790 papers were retrieved and 39 were included.\ud \ud \ud Results\ud \ud Key factors to optimising the impact of nursing and inter-professional continuing development are; self-motivation, relevance to practice, preference for workplace learning, strong enabling leadership and a positive workplace culture. The findings reveal the interdependence of these important factors in optimising the impact of continuing professional development on person-centred care and outcomes.\ud \ud \ud Conclusion\ud \ud In the current, rapidly changing, healthcare context it is important for educators and managers to understand the factors that enhance the impact of continuing professional development. It is crucial that attention is given to addressing all of the optimising factors in this review to enhance impact. Future studies should seek to measure the value of continuing professional development for people experiencing care, nurses and the wider organisation.
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- 2020
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