11 results on '"Anglada, Elisenda"'
Search Results
2. Validation of the Spanish version of DYsphagia in MUltiple Sclerosis questionnaire (DYMUS)
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Renom, Marta, Galán, Ingrid, Vidal, Xavier, Aldevert, Mireia, Curto, Gemma, Feliu, Patricia, García, Itziar, Gonzalo, Lorena, Sibera, Xavier, Anglada, Elisenda, Meza, Roger, García, Montserrat, Najas, Víctor, Mongay-Ochoa, Neus, Arévalo, María Jesús, Vidal-Jordana, Ángela, Tintoré, Mar, Bascuñana, Helena, Montalban, Xavier, Terré, Rosa, and Sastre-Garriga, Jaume
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- 2023
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3. An expert patient program to improve the empowerment and quality of life of people with multiple sclerosis: protocol for a multicenter pre-post intervention study
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Robles-Sanchez, Miguel Angel, primary, Amil-Bujan, Paloma, additional, Bosch-Farré, Cristina, additional, Coll-Martínez, Clàudia, additional, Arévalo, Maria Jesús, additional, Anglada, Elisenda, additional, Menéndez, Rebeca, additional, Montalban, Xavier, additional, Sastre-Garriga, Jaume, additional, Ramió-Torrentà, Lluís, additional, and Bertran-Noguer, Carme, additional
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- 2023
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4. Cognitive assessment in patients with multiple sclerosis: A Spanish consensus
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Higueras, Yolanda, primary, Borges, Mónica, additional, Jiménez-Martín, Isabel, additional, Conde, Cristina, additional, Aparicio-Mingueza, Ana, additional, Sierra-Martínez, Esther, additional, Gich-Fulla, Jordi, additional, Balaguer-Marmaña, Marta, additional, Gil-Sánchez, Anna, additional, Anglada, Elisenda, additional, Jover, Ana, additional, Pérez-Martín, María Yaiza, additional, Arévalo, María Jesús, additional, Arrabal-Gómez, Carlos, additional, Jiménez-Veiga, Judith, additional, Lubrini, Genny, additional, Molano, Ana, additional, and García-Vaz, Fabiola, additional
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- 2022
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5. An expert patient program to improve the empowerment and quality of life of people with multiple sclerosis : protocol for a multicenter pre-post intervention study
- Author
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Robles-Sanchez, Miguel Angel, Amil-Bujan, Paloma, Bosch-Farré, Cristina, Coll-Martínez, Clàudia, Arévalo, Maria Jesús, Anglada, Elisenda, Menéndez, Rebeca, Montalban, Xavier, Sastre-Garriga, Jaume, Ramió-Torrentà, Lluís, Bertran-Noguer, Carme, Universitat Autònoma de Barcelona. Departament de Medicina, Institut Català de la Salut, [Robles-Sanchez MA] Grup de recerca Salut i Atenció Sanitaria, University of Girona, Girona, Spain. Servei de Neurologia-Neuroimmunologia, Centre d’Esclerosi Múltiple de Catalunya (CEMCAT), Barcelona, Spain. Vall d’Hebron Hospital Universitari, Barcelona, Spain. Grup d’Investigació Multidisciplinari d’Infermeria, Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain. Vall d’Hebron Hospital Universitari, Barcelona, Spain. [Amil-Bujan P] Expert Patient Program Catalonia, General Directorate of Health Planning and Research, Department of Health, Generalitat de Catalunya, Barcelona, Spain. [Bosch-Farré C] Grup de recerca Salut i Atenció Sanitaria, University of Girona, Girona, Spain. [Coll-Martínez C] Neurodegeneration and Neuroinflammation Research Group, Girona Biomedical Research Institute (IDIBGI), Salt, Spain. Girona Multiple Sclerosis and Neuroimmunology Unit. Neurology Department, Dr. Josep Trueta University Hospital and Santa Caterina Hospital, Girona-Salt, Spain. [Arévalo MJ, Anglada E, Menéndez R, Montalban X, Sastre-Garriga J] Servei de Neurologia-Neuroimmunologia, Centre d’Esclerosi Múltiple de Catalunya (CEMCAT), Barcelona, Spain. Vall d’Hebron Hospital Universitari, Barcelona, Spain, and Vall d'Hebron Barcelona Hospital Campus
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Educació dels pacients ,Quality of life ,Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis [DISEASES] ,Health Care (Public Health)::Health Promotion::Empowerment for Health [PUBLIC HEALTH] ,Health literacy ,Esclerosi múltiple ,conducta y mecanismos de la conducta::actitud::actitud ante la salud::conocimientos, actitudes y prácticas sanitarias [PSIQUIATRÍA Y PSICOLOGÍA] ,Peer group ,Multiple sclerosis ,Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life [HEALTH CARE] ,Clinical research protocol ,Neurology ,Health education ,Qualitat de vida ,enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple [ENFERMEDADES] ,Patient empowerment ,Neurology (clinical) ,Behavior and Behavior Mechanisms::Attitude::Attitude to Health::Health Knowledge, Attitudes, Practice [PSYCHIATRY AND PSYCHOLOGY] ,atención a la salud (salud pública)::promoción de la salud::empoderamiento para la salud [SALUD PÚBLICA] ,ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida [ATENCIÓN DE SALUD] - Abstract
Health education; Multiple sclerosis; Quality of life Educación para la salud; Esclerosis múltiple; Calidad de vida Educació sanitaria; Esclerosi múltiple; Qualitat de vida Introduction: Multiple sclerosis (MS) causes a progressive disability, which substantially impacts the quality of life (QoL). Health interventions that meet the needs and demands of people with MS are essential to minimize QoL impairment. Expert patient programs (EPPs) facilitate health-related empowerment through peer learning. Based on a previous focus group study, we designed an EPP for MS coordinated by nursing professionals for implementation in the different MS reference units of Catalonia (Southwestern Europe). This study aims to evaluate the effects on quality of life, disease-related knowledge, and self-management related to the health process of the participants of the Expert Patient Program Catalonia™ for people with multiple sclerosis (EPPC-MS). Methods: Pre-post intervention multicenter clinical study involving 12 groups of 12 participants: six groups including relapsing and six groups including progressive MS patients, with 144 participants from 7 MS reference units from all over Catalonia, organized in six teams. The intervention will consist of nine telematic learning peer-led sessions (one weekly session). The expert patient (EP) leading the sessions will be an individual with MS with disease-related knowledge, who will be further trained by nurses to lead the sessions. Study variables will be measured before and immediately after the intervention and 6 and 12 months after the end of the sessions and will include: QoL, emotional impact, activation of the person, MS-related knowledge, fatigue, habits and lifestyles, health services use, and program-related experience. Baseline characteristics considered will be sociodemographic data, date of MS diagnosis and type, family history, and treatment characteristics. Variables related to disease follow-up will be new relapses and characteristics and changes in the ongoing treatment. The number of sessions attended will also be collected. Study variables will be analyzed using a pre-post comparison. Discussion: Peer-led learning programs led by EP help empower people with chronic conditions and offer them tools to improve their autonomy and QoL. This study’s intervention will be performed remotely, offering advantages both for people with chronic conditions and the healthcare system regarding the facilitation of family and work conciliation, saving time, simplifying attendance to meetings, lowering costs, and using fewer material resources. This study was promoted by the MS unit at Vall d’Hebron Hospital Campus and had no external sponsor. The PhD candidate/first author was supported through the Strategic Plan for Research and Innovation in Health 2016–2020 (PERIS) (ref. BDNS 542793) funded by the Health Department of Catalonia. This study had been partially funded by the Official College of Nurses of Barcelona (www.coib.cat) as part of the Nurse Research Projects Grants (PRN-475/2021). None of the funders were involved in the design of the study, manuscript writing or data collection, and will not be involved in data analysis or interpretation and manuscript writing in the future. The only funders’ requirement is that any publications associate with this study must be open access and deposited in an institutional repository.
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- 2023
6. Cross-Country Adaptation of a Psychological Flexibility Measure: The Comprehensive Assessment of Acceptance and Commitment Therapy Processes
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Giovannetti, Ambra, primary, Pöttgen, Jana, additional, Anglada, Elisenda, additional, Menéndez, Rebeca, additional, Hoyer, Jürgen, additional, Giordano, Andrea, additional, Pakenham, Kenneth, additional, Galán, Ingrid, additional, and Solari, Alessandra, additional
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- 2022
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7. The long-term outcomes of CIS patients in the Barcelona inception cohort: Looking back to recognize aggressive MS
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Tintoré, Mar, Arrambide, Georgina, Otero-Romero, Susana, Carbonell-Mirabent, Pere, Río, Jordi, Tur, Carmen, Comabella, Manuel, Nos, Carlos, Arévalo, María Jesús, Anglada, Elisenda, Menendez, Rebeca, Midaglia, Luciana, Galán, Ingrid, Vidal-Jordana, Angela, Castilló, Joaquin, Mulero, P, Zabalza, Ana, Rodríguez-Acevedo, Breogan, Rodriguez, Marta, Espejo, Carmen, Sequeira, Joao, Mitjana, Raquel, de Barros, Andrea, Pareto, Deborah, Auger, Cristina, Pérez-Hoyos, Santiago, Sastre-Garriga, Jaume, Rovira, Alex, Montalban, Xavier, and Universitat Autònoma de Barcelona
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Pediatrics ,medicine.medical_specialty ,Multiple Sclerosis ,030218 nuclear medicine & medical imaging ,Multiple sclerosis ,Cohort Studies ,03 medical and health sciences ,Disability Evaluation ,0302 clinical medicine ,medicine ,Long term outcomes ,Humans ,Disease-modifying treatment ,business.industry ,disease-modifying treatment ,Brain ,prediction ,medicine.disease ,Prognosis ,INCEPTION COHORT ,Clinically isolated syndromes ,Magnetic Resonance Imaging ,Neurology ,Disease Progression ,Neurology (clinical) ,prognosis ,business ,Prediction ,Original Research Papers ,030217 neurology & neurosurgery ,MRI ,Demyelinating Diseases - Abstract
Altres ajuts: This study has been funded by European Regional Development Fund and co-funded by Instituto Carlos III. It has also received support by a grant from Genzyme foundation (GENZYME-2015-01) granted to M.T. and from the 'Red Española de Esclerosis Múltiple (REEM)', which is sponsored by FIS, the Instituto de Salud Carlos III, the Ministry of Economy and Competitiveness in Spain, and the 'Ajuts per donar Suport als Grups de Recerca de Catalunya', which is sponsored by the 'Agència de Gestió d'Ajuts Universitaris i de Recerca' (AGAUR) of the Generalitat de Catalunya in Spain. To explore the long-term outcomes of patients with clinically isolated syndromes from the Barcelona cohort. We selected patients with a follow-up longer than 10 years to (1) estimate the risks of multiple sclerosis (MS) and disability accumulation according to the baseline number of T2 lesions and to compare treated versus untreated patients and early versus delayed treatment, and (2) to study baseline features of patients with aggressive MS (Expanded Disability Status Scale (EDSS) ⩾6.0 at 10 years). In all, 401 patients were included (mean follow-up of 14.4 (standard deviation of 2.9) years). A higher number of T2 lesions was associated with an earlier MS diagnosis and an earlier risk of irreversible disability. Early treatment was associated with a decreased risk of EDSS of 3.0: adjusted hazard ratio = 0.4, 95% confidence interval = (0.2, 0.7). Patients with aggressive MS differed in their baseline brain magnetic resonance images: The median (interquartile range) number of T2 lesions and contrast-enhancing lesions (CEL) was 71 (28-95) versus 7 (1-19) and 3 (1-24) versus 0 (0-1), respectively. The cut-offs that better classified patients with aggressive MS were 20 for T2 lesions and 2 for CEL. Although MS natural history is changing, a high lesion load at onset is helpful to identify patients at risk of presenting an aggressive MS.
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- 2019
8. MSJ877810_supplementary_table_2 – Supplemental material for The long-term outcomes of CIS patients in the Barcelona inception cohort: Looking back to recognize aggressive MS
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Tintore, Mar, Arrambide, Georgina, Otero-Romero, Susana, Carbonell-Mirabent, Pere, Río, Jordi, Tur, Carmen, Comabella, Manuel, Nos, Carlos, Arévalo, María Jesús, Anglada, Elisenda, Menendez, Rebeca, Midaglia, Luciana, Galán, Ingrid, Vidal-Jordana, Angela, Joaquin Castilló, Mulero, Patricia, Zabalza, Ana, Breogan Rodríguez-Acevedo, Rodriguez, Marta, Espejo, Carmen, Joao Sequeira, Mitjana, Raquel, Barros, Andrea De, Pareto, Deborah, Auger, Cristina, Pérez-Hoyos, Santiago, Sastre-Garriga, Jaume, Rovira, Alex, and Montalban, Xavier
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FOS: Clinical medicine ,111702 Aged Health Care ,FOS: Health sciences ,110904 Neurology and Neuromuscular Diseases - Abstract
Supplemental material, MSJ877810_supplementary_table_2 for The long-term outcomes of CIS patients in the Barcelona inception cohort: Looking back to recognize aggressive MS by Mar Tintore, Georgina Arrambide, Susana Otero-Romero, Pere Carbonell-Mirabent, Jordi Río, Carmen Tur, Manuel Comabella, Carlos Nos, María Jesús Arévalo, Elisenda Anglada, Rebeca Menendez, Luciana Midaglia, Ingrid Galán, Angela Vidal-Jordana, Joaquin Castilló, Patricia Mulero, Ana Zabalza, Breogan Rodríguez-Acevedo, Marta Rodriguez, Carmen Espejo, Joao Sequeira, Raquel Mitjana, Andrea de Barros, Deborah Pareto, Cristina Auger, Santiago Pérez-Hoyos, Jaume Sastre-Garriga, Alex Rovira and Xavier Montalban in Multiple Sclerosis Journal
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- 2019
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9. The long-term outcomes of CIS patients in the Barcelona inception cohort: Looking back to recognize aggressive MS.
- Author
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Tintore, Mar, Arrambide, Georgina, Otero-Romero, Susana, Carbonell-Mirabent, Pere, Río, Jordi, Tur, Carmen, Comabella, Manuel, Nos, Carlos, Arévalo, María Jesús, Anglada, Elisenda, Menendez, Rebeca, Midaglia, Luciana, Galán, Ingrid, Vidal-Jordana, Angela, Castilló, Joaquin, Mulero, Patricia, Zabalza, Ana, Rodríguez-Acevedo, Breogan, Rodriguez, Marta, and Espejo, Carmen
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MAGNETIC resonance imaging ,STANDARD deviations ,MULTIPLE sclerosis - Abstract
Objective: To explore the long-term outcomes of patients with clinically isolated syndromes from the Barcelona cohort. Methods: We selected patients with a follow-up longer than 10 years to (1) estimate the risks of multiple sclerosis (MS) and disability accumulation according to the baseline number of T2 lesions and to compare treated versus untreated patients and early versus delayed treatment, and (2) to study baseline features of patients with aggressive MS (Expanded Disability Status Scale (EDSS) ⩾6.0 at 10 years). Results: In all, 401 patients were included (mean follow-up of 14.4 (standard deviation of 2.9) years). A higher number of T2 lesions was associated with an earlier MS diagnosis and an earlier risk of irreversible disability. Early treatment was associated with a decreased risk of EDSS of 3.0: adjusted hazard ratio = 0.4, 95% confidence interval = (0.2, 0.7). Patients with aggressive MS differed in their baseline brain magnetic resonance images: The median (interquartile range) number of T2 lesions and contrast-enhancing lesions (CEL) was 71 (28–95) versus 7 (1–19) and 3 (1–24) versus 0 (0–1), respectively. The cut-offs that better classified patients with aggressive MS were 20 for T2 lesions and 2 for CEL. Conclusion: Although MS natural history is changing, a high lesion load at onset is helpful to identify patients at risk of presenting an aggressive MS. [ABSTRACT FROM AUTHOR]
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- 2020
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10. Risk Acceptance in Multiple Sclerosis Patients on Natalizumab Treatment
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Tur, Carmen, primary, Tintoré, Mar, additional, Vidal-Jordana, Ángela, additional, Bichuetti, Denis, additional, Nieto González, Pablo, additional, Arévalo, María Jesús, additional, Arrambide, Georgina, additional, Anglada, Elisenda, additional, Galán, Ingrid, additional, Castilló, Joaquín, additional, Nos, Carlos, additional, Río, Jordi, additional, Martín, María Isabel, additional, Comabella, Manuel, additional, Sastre-Garriga, Jaume, additional, and Montalban, Xavier, additional
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- 2013
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11. The long-term outcomes of CIS patients in the Barcelona inception cohort: Looking back to recognize aggressive MS.
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Tintore M, Arrambide G, Otero-Romero S, Carbonell-Mirabent P, Río J, Tur C, Comabella M, Nos C, Arévalo MJ, Anglada E, Menendez R, Midaglia L, Galán I, Vidal-Jordana A, Castilló J, Mulero P, Zabalza A, Rodríguez-Acevedo B, Rodriguez M, Espejo C, Sequeira J, Mitjana R, de Barros A, Pareto D, Auger C, Pérez-Hoyos S, Sastre-Garriga J, Rovira A, and Montalban X
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- Brain, Cohort Studies, Disability Evaluation, Disease Progression, Humans, Magnetic Resonance Imaging, Demyelinating Diseases, Multiple Sclerosis diagnosis, Multiple Sclerosis epidemiology
- Abstract
Objective: To explore the long-term outcomes of patients with clinically isolated syndromes from the Barcelona cohort., Methods: We selected patients with a follow-up longer than 10 years to (1) estimate the risks of multiple sclerosis (MS) and disability accumulation according to the baseline number of T2 lesions and to compare treated versus untreated patients and early versus delayed treatment, and (2) to study baseline features of patients with aggressive MS (Expanded Disability Status Scale (EDSS) ⩾6.0 at 10 years)., Results: In all, 401 patients were included (mean follow-up of 14.4 (standard deviation of 2.9) years). A higher number of T2 lesions was associated with an earlier MS diagnosis and an earlier risk of irreversible disability. Early treatment was associated with a decreased risk of EDSS of 3.0: adjusted hazard ratio = 0.4, 95% confidence interval = (0.2, 0.7). Patients with aggressive MS differed in their baseline brain magnetic resonance images: The median (interquartile range) number of T2 lesions and contrast-enhancing lesions (CEL) was 71 (28-95) versus 7 (1-19) and 3 (1-24) versus 0 (0-1), respectively. The cut-offs that better classified patients with aggressive MS were 20 for T2 lesions and 2 for CEL., Conclusion: Although MS natural history is changing, a high lesion load at onset is helpful to identify patients at risk of presenting an aggressive MS.
- Published
- 2020
- Full Text
- View/download PDF
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