32 results on '"Apostolidis, Kathi"'
Search Results
2. Access and quality of biomarker testing for precision oncology in Europe
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Normanno, Nicola, Apostolidis, Kathi, Wolf, Audrey, Al Dieri, Raed, Deans, Zandra, Fairley, Jenni, Maas, Jörg, Martinez, Antonio, Moch, Holger, Nielsen, Søren, Pilz, Thomas, Rouleau, Etienne, Patton, Simon, and Williams, Victoria
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- 2022
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3. Goals of Survivorship Care
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De Lorenzo, Francesco, Apostolidis, Kathi, Maghear, Adela, Guzzinati, Stefano, Dal Maso, Luigino, Mechili, Enkeleint A., Mitsimponas, Nikolaos, and Rauh, Stefan, editor
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- 2021
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4. Congruence Between Latent Class and K-Modes Analyses in the Identification of Oncology Patients With Distinct Symptom Experiences
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Papachristou, Nikoloas, Barnaghi, Payam, Cooper, Bruce A, Hu, Xiao, Maguire, Roma, Apostolidis, Kathi, Armes, Jo, Conley, Yvette P, Hammer, Marilyn, Katsaragakis, Stylianos, Kober, Kord M, Levine, Jon D, McCann, Lisa, Patiraki, Elisabeth, Paul, Steven M, Ream, Emma, Wright, Fay, and Miaskowski, Christine
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Nursing ,Health Sciences ,Cancer ,Good Health and Well Being ,Age Factors ,Antineoplastic Agents ,Comorbidity ,Diagnosis ,Computer-Assisted ,Female ,Humans ,Latent Class Analysis ,Longitudinal Studies ,Machine Learning ,Male ,Middle Aged ,Neoplasms ,Quality of Life ,Risk Assessment ,Symptom clusters ,cancer ,latent class analysis ,machine learning ,clustering ,chemotherapy ,k-modes analysis ,Medical and Health Sciences ,Anesthesiology ,Biomedical and clinical sciences ,Health sciences - Abstract
ContextRisk profiling of oncology patients based on their symptom experience assists clinicians to provide more personalized symptom management interventions. Recent findings suggest that oncology patients with distinct symptom profiles can be identified using a variety of analytic methods.ObjectivesThe objective of this study was to evaluate the concordance between the number and types of subgroups of patients with distinct symptom profiles using latent class analysis and K-modes analysis.MethodsUsing data on the occurrence of 25 symptoms from the Memorial Symptom Assessment Scale, that 1329 patients completed prior to their next dose of chemotherapy (CTX), Cohen's kappa coefficient was used to evaluate for concordance between the two analytic methods. For both latent class analysis and K-modes, differences among the subgroups in demographic, clinical, and symptom characteristics, as well as quality of life outcomes were determined using parametric and nonparametric statistics.ResultsUsing both analytic methods, four subgroups of patients with distinct symptom profiles were identified (i.e., all low, moderate physical and lower psychological, moderate physical and higher Psychological, and all high). The percent agreement between the two methods was 75.32%, which suggests a moderate level of agreement. In both analyses, patients in the all high group were significantly younger and had a higher comorbidity profile, worse Memorial Symptom Assessment Scale subscale scores, and poorer QOL outcomes.ConclusionBoth analytic methods can be used to identify subgroups of oncology patients with distinct symptom profiles. Additional research is needed to determine which analytic methods and which dimension of the symptom experience provide the most sensitive and specific risk profiles.
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- 2018
5. Learning from data to predict future symptoms of oncology patients.
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Papachristou, Nikolaos, Puschmann, Daniel, Barnaghi, Payam, Cooper, Bruce, Hu, Xiao, Maguire, Roma, Apostolidis, Kathi, Conley, Yvette P, Hammer, Marilyn, Katsaragakis, Stylianos, Kober, Kord M, Levine, Jon D, McCann, Lisa, Patiraki, Elisabeth, Furlong, Eileen P, Fox, Patricia A, Paul, Steven M, Ream, Emma, Wright, Fay, and Miaskowski, Christine
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Humans ,Neoplasms ,Depression ,Anxiety ,Models ,Psychological ,Female ,Male ,Support Vector Machine ,Neural Networks ,Computer ,Models ,Psychological ,Neural Networks ,Computer ,General Science & Technology - Abstract
Effective symptom management is a critical component of cancer treatment. Computational tools that predict the course and severity of these symptoms have the potential to assist oncology clinicians to personalize the patient's treatment regimen more efficiently and provide more aggressive and timely interventions. Three common and inter-related symptoms in cancer patients are depression, anxiety, and sleep disturbance. In this paper, we elaborate on the efficiency of Support Vector Regression (SVR) and Non-linear Canonical Correlation Analysis by Neural Networks (n-CCA) to predict the severity of the aforementioned symptoms between two different time points during a cycle of chemotherapy (CTX). Our results demonstrate that these two methods produced equivalent results for all three symptoms. These types of predictive models can be used to identify high risk patients, educate patients about their symptom experience, and improve the timing of pre-emptive and personalized symptom management interventions.
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- 2018
6. Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation: An international Delphi study
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Surges, Séverine M, primary, Brunsch, Holger, additional, Jaspers, Birgit, additional, Apostolidis, Kathi, additional, Cardone, Antonella, additional, Centeno, Carlos, additional, Cherny, Nathan, additional, Csikós, Àgnes, additional, Fainsinger, Robin, additional, Garralda, Eduardo, additional, Ling, Julie, additional, Menten, Johan, additional, Mercadante, Sebastiano, additional, Mosoiu, Daniela, additional, Payne, Sheila, additional, Preston, Nancy, additional, Van den Block, Lieve, additional, Hasselaar, Jeroen, additional, and Radbruch, Lukas, additional
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- 2024
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7. The eSMART study protocol: a randomised controlled trial to evaluate electronic symptom management using the advanced symptom management system (ASyMS) remote technology for patients with cancer.
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Maguire, Roma, Fox, Patricia A, McCann, Lisa, Miaskowski, Christine, Kotronoulas, Grigorios, Miller, Morven, Furlong, Eileen, Ream, Emma, Armes, Jo, Patiraki, Elisabeth, Gaiger, Alexander, Berg, Geir V, Flowerday, Adrian, Donnan, Peter, McCrone, Paul, Apostolidis, Kathi, Harris, Jenny, Katsaragakis, Stylianos, Buick, Alison R, and Kearney, Nora
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Humans ,Breast Neoplasms ,Colorectal Neoplasms ,Hematologic Neoplasms ,Antineoplastic Agents ,Drug Monitoring ,Self Care ,Severity of Illness Index ,Telemedicine ,Research Design ,International Cooperation ,Quality of Life ,Adolescent ,Adult ,Aged ,Middle Aged ,Cost-Benefit Analysis ,Europe ,Female ,Male ,Young Adult ,Surveys and Questionnaires ,Patient Reported Outcome Measures ,Cell Phone ,cancer ,chemotherapy ,information technology ,randomised controlled trial ,symptom management ,Clinical Sciences ,Public Health and Health Services ,Other Medical and Health Sciences - Abstract
IntroductionWhile some evidence exists that real-time remote symptom monitoring devices can decrease morbidity and prevent unplanned admissions in oncology patients, overall, these studies have significant methodological weaknesses. The electronic Symptom Management using the Advanced Symptom Management System (ASyMS) Remote Technology (eSMART) study is designed to specifically address these weaknesses with an appropriately powered, repeated-measures, parallel-group stratified randomised controlled trial of oncology patients.Methods and analysisA total of 1108 patients scheduled to commence first-line chemotherapy (CTX) for breast, colorectal or haematological cancer will be recruited from multiple sites across five European countries.Patients will be randomised (1:1) to the ASyMS intervention (intervention group) or to standard care currently available at each site (control group). Patients in the control and intervention groups will complete a demographic and clinical questionnaire, as well as a set of valid and reliable electronic patient-reported outcome measures at enrolment, after each of their CTX cycles (up to a maximum of six cycles) and at 3, 6, 9 and 12 months after completion of their sixth cycle of CTX. Outcomes that will be assessed include symptom burden (primary outcome), quality of life, supportive care needs, anxiety, self-care self-efficacy, work limitations and cost effectiveness and, from a health professional perspective, changes in clinical practice (secondary outcomes).Ethics and disseminationEthical approval will be obtained prior to the implementation of all major study amendments. Applications will be submitted to all of the ethics committees that granted initial approval.eSMART received approval from the relevant ethics committees at all of the clinical sites across the five participating countries. In collaboration with the European Cancer Patient Coalition (ECPC), the trial results will be disseminated through publications in scientific journals, presentations at international conferences, and postings on the eSMART website and other relevant clinician and consumer websites; establishment of an eSMART website (www.esmartproject.eu) with publicly accessible general information; creation of an eSMART Twitter Handle, and production of a toolkit for implementing/utilising the ASyMS technology in a variety of clinical practices and other transferable health care contexts.Trial registration numberNCT02356081.
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- 2017
8. Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be?
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Smith, Emma, N'Dow, James, Plass, Karin, Ribal, Maria, Mottet, Nicolas, Shepherd, Robert, Abbott, Tom, Mastris, Ken, Moris, Lisa, Lardas, Michael, Van den Broeck, Thomas, Willemse, Peter-Paul, Fossati, Nicola, Pang, Karl, Campi, Riccardo, Greco, Isabella, Gacci, Mauro, Serni, Sergio, Bjartell, Anders, Lonnerbro, Ragnar, Briganti, Alberto, Crosti, Daniele, Garzonio, Roberto, Gandaglia, Giorgio, Faticoni, Martina, Grant office, Bangma, Chris, Jongerden, Maria, Tilki, Derya, Auvinen, Anssi, Murtola, Teemu, Visakorpi, Tapio, Talala, Kirsi, Tammela, Teuvo, Siltari, Aino, Lejeune, Stephane, Colette, Laurence, Caputova, Simona, Poli, Delielena, Byrne, Sophie, Fialho, Luz, Rowland, Ashley, Tapela, Neo, Di Flora, Nicola, Apostolidis, Kathi, Lemair, Valerie, De Meulder, Bertrand, Auffray, Charles, Taibi, Nesrine, Hijazy, Ayman, Saporta, Albert, Sun, Kai, Power, Shaun, Zounemat Kermani, Nazanin, van Bochove, Kees, Tafreshiha, Azadeh, Bernini, Chiara, Horgan, Denis, Fullwood, Louise, Holtorf, Marc, Lancet, Doron, Bernstein, Gabi, Tripathee, Sheela, Wirth, Manfred, Froehner, Michael, Brenner, Beate, Borkowetz, Angelika, Thomas, Christian, Horn, Friedemann, Reiche, Kristin, Kreuz, Markus, Josefsson, Andreas, Gasi Tandefelt, Delila, Hugosson, Jonas, Schalken, Jack, Huisman, Henkjan, Hofmarcher, Thomas, Lindgren, Peter, Andersson, Emelie, Fridhammar, Adam, Tames Grijalva, Monica, Evans-Axelsson, Susan, Verholen, Frank, Zong, Jihong, Butler-Ransohoff, John-Edward, Williamson, Todd, Waldeck, Reg, Bruno, Amanda, Nevedomskaya, Ekaterina, Fatoba, Samuel, Constantinovici, Niculae, Steinbeisser, Carl, Maass, Monika, Torremante, Patrizia, Dochy, Emmanuelle, Pisa, Federica, Voss, Marc Dietrich, Papineni, Kishore, Wang-silvanto, Jing, Snijder, Robert, Wang, Xuewei, Lambrecht, Mark, Wolfinger, Russ, Eid, Sherinne, Palanisamy, Soundarya, Haque, Samiul, Antoni, Laurent, Servan, Angela, Pascoe, Katie, Robinson, Paul, Lencart, Joana, Jaton, Bertrand, Turunen, Heidi, Kilkku, Olavi, Pohjanjousi, Pasi, Voima, Olli, Nevalaita, Liina, Punakivi, Keijo, Seager, Sarah, Ratwani, Shilpa, Grzeslak, Katarzyna, Brash, James, Longden-Chapman, Elaine, Burke, Danny, Licour, Muriel, Payne, Sarah, Yong, Alan, Lujan, Flavia, Le Mare, Sophia, Hendrich, Jan, Bussmann, Michael, Juckeland, Kotik, Reich, Christian, Russell, Beth, Beyer, Katharina, Lawlor, Ailbhe, Roobol, Monique J., Venderbos, Lionne D.F., Remmers, Sebastiaan, Briers, Erik, MacLennan, Sara J., MacLennan, Steven, Omar, Muhammad Imran, and Van Hemelrijck, Mieke
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- 2024
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9. Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation: An international Delphi study
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Surges, Severine Marie, primary, Brunsch, Holger, primary, Jaspers, Birgit, primary, Apostolidis, Kathi, primary, Cardone, Antonella, primary, Centeno, Carlos, primary, Cherny, Nathan, primary, Csikos, Agnes, primary, Fainsinger, Robin, primary, Garralda, Eduardo, primary, Ling, Julie, primary, Menten, Johan, primary, Mercadante, Sebastiano, primary, Mosoiu, Daniela, primary, Payne, Sheila, primary, Preston, Nancy, primary, Van den Block, Lieve, primary, Hasselaar, Jeroen, primary, and Radbruch, Lukas, primary
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- 2023
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10. Liquid biopsies, are we ready for prime time?
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Normanno, Nicola, primary, Apostolidis, Kathi, additional, and Stewart, Mark, additional
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- 2023
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11. COVID-19 Vaccinations: Summary Guidance for Cancer Patients in 28 Languages: Breaking Barriers to Cancer Patient Information
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Branka Petricevic, Antonios Valachis, Lazar Popovic, Erjeta Rapushi, ER Özlem, Konstantinos Papadimitriou, Hassan Hameed, Farsid Arbabi, Gono Paulina, Joanna Nixon, Panagiotis Ntellas, Iglika Mihaylova, Nadia Hindi, Ioanna Gazouli, Ramon Andrade de Mello, Marzanna Chojnacka, Dimitrios Tzachanis, Haytham Hamed Saraireh, P. Kountourakis, Igor Djan, Andres Rodriguez, Flippo Alongi, Natalia Chilingirova, Lovey Jozsef, Salih Yuce, Cruz Olalla Santa, Mario Dambrosio, Berardino De Bari, Plavetic Natalija Dedic, Stefanie Corradini, Radu Vidra, Aasim Yusuf, Chirstos Christopoulos, Irina Ivanova, Davide Mauri, Kuhar Cvetka Grašič, Apostolidis Kathi, Lampriani Tsali, Tolia Maria, Stefania Gkoura, Kamposioras Konstantinos, Ranveig Røtterud, Orges Spahiu, Yasmina Chait, Katarina Antunac, Francesco Cellini, Jindrich Kopecky, Primoz Strojan, Elena Takeuchi, D. Takeuchi, Amaral Giovanna Araujo, Kumaran Gireesh, Carl Salembier, Junlin Yi, and Acibadem University Dspace
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languages ,medicine.medical_specialty ,COVID-19 Vaccines ,Coronavirus disease 2019 (COVID-19) ,Population ,RS ,Neoplasms ,Patient information ,medicine ,Humans ,vaccination ,cancer patients ,global ,guidance ,Language ,Pharmacology ,COVID-19 ,cancer ,pandemic ,business.industry ,Pharmacology. Therapy ,Vaccination ,Cancer ,Cancer patients ,Global ,General Medicine ,medicine.disease ,Family medicine ,Languages ,Guidance ,business - Abstract
Background: Covid-19 vaccination has started in the majority of the countries at the global level. Cancer patients are at high risk for infection, serious illness, and death from COVID-19 and need vaccination guidance and support. Guidance availability in the English language only is a major limit for recommendations’ delivery and their application in the world’s population and generates information inequalities across the different populations. Methods: Most of the available COVID-19 vaccination guidance for cancer patients was screened and scrutinized by the European Cancer Patients Coalition (ECPC) and an international oncology panel of 52 physicians from 33 countries. Results: A summary guidance was developed and provided in 28 languages in order to reach more than 70 percent of the global population. Conclusion: Language barrier and e-guidance availability in the native language are the most important barriers when communicating with patients. E-guidance availability in various native languages should be considered a major priority by international medical and health organizations that are communicating with patients at the global level.
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- 2022
12. Cancer Biomarkers in the era of precision oncology: Addressing the needs of patients and health systems
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Normanno, Nicola, primary, Apostolidis, Kathi, additional, de Lorenzo, Francesco, additional, Beer, Philip A., additional, Henderson, Raymond, additional, Sullivan, Richard, additional, Biankin, Andrew V., additional, Horgan, Denis, additional, and Lawler, Mark, additional
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- 2022
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13. Towards Better Pharmaceutical Provision in Europe—Who Decides the Future?
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Horgan, Denis, primary, Spanic, Tanja, additional, Apostolidis, Kathi, additional, Curigliano, Giuseppe, additional, Chorostowska-Wynimko, Joanna, additional, Dauben, Hans-Peter, additional, Lal, Jonathan A., additional, Dziadziuszko, Rafal, additional, Mayer-Nicolai, Christine, additional, Kozaric, Marta, additional, Jönsson, Bengt, additional, Gutierrez-Ibarluzea, Iñaki, additional, Fandel, Marie-Helene, additional, and Lopert, Ruth, additional
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- 2022
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14. COVID-19 Vaccinations: Summary Guidance for Cancer Patients in 28 Languages: Breaking Barriers to Cancer Patient Information
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Mauri, Davide, primary, Kamposioras, Konstantinos, additional, Tsali, Lampriani, additional, Dambrosio, Mario, additional, De Bari, Berardino, additional, Hindi, Nadia, additional, Salembier, Carl, additional, Nixon, Joanna, additional, Dimitrios, Tzachanis, additional, Alongi, Flippo, additional, Hameed, Hassan, additional, Valachis, Antonios, additional, Papadimitriou, Konstantinos, additional, Corradini, Stefanie, additional, Popovic, Lazar, additional, Kopecky, Jindrich, additional, Rodriguez, Andres, additional, Antunac, Katarina, additional, Yi, Junlin, additional, Lovey, Jozsef, additional, Strojan, Primoz, additional, Saraireh, Haytham, additional, Røtterud, Ranveig, additional, Chojnacka, Marzanna, additional, Olalla, Santa Cruz, additional, Chilingirova, Natalia, additional, De Mello, Ramon Andrade, additional, Amaral, Giovanna Araujo, additional, Arbabi, Farsid, additional, Vidra, Radu, additional, Rapushi, Erjeta, additional, Takeuchi, Dan, additional, Christopoulos, Chirstos, additional, Ivanova, Irina, additional, Djan, Igor, additional, Petricevic, Branka, additional, Cellini, Francesco, additional, Mihaylova, Iglika, additional, Plavetic, Natalija Dedic, additional, Kuhar, Cvetka Grašič, additional, Takeuchi, Elena, additional, Kountourakis, Pantelis, additional, Ntellas, Panagiotis, additional, Gazouli, Ioanna, additional, Gkoura, Stefania, additional, Yuce, Salih, additional, ER, Özlem, additional, Yasmina, Chait, additional, Kumaran, Gireesh, additional, Spahiu, Orges, additional, Yusuf, Aasim, additional, Gono, Paulina, additional, Apostolidis, Kathi, additional, and Tolia, Maria, additional
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- 2022
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15. Inmate cancer patients – highlighting the importance of a holistic approach to oncological care
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Tolia, Maria, Symvoulakis, Emmanouil K, Kamposioras, Konstantinos, Mauri, Davide, Skoutari, Angeliki, Volkos, Panagiotis, Schizas, Dimitrios, Spanos, Athanasios, Kokakis, Ioannis, Tsoukalas, Nikolaos, Charalampakis, Nikolaos, Cuccia, Francesco, Alongi, Filippo, de Mello, Ramon Andrade, Antoniou, Katerina M, Hyphantis, Thomas, Nixon, Ioanna, Matthaios, Dimitris, Nikolaou, Michail, de Lorenzo, Francesco, and Apostolidis, Kathi
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RC0254 ,HD28 - Abstract
Purpose: Inmate oncologic patients' rates increased drastically worldwide. Elderly, limited exercise, unhealthy diet, hepatitis, HIV+ status, tobacco and alcohol use, constitute the main cancer risk factors. We present an outline of practical oncological management and ethical thinking, in the specific environment of a detention facility. Methods: PubMed, Cochrane Database of Controlled Trials, SCOPUS and grey literature were extensively searched upto October 2021. Ιncarcerated oncologic patients experiencevarious everyday challenges:their confinement in high securityfacilities, the lack of access to critical care and related ethicaldilemmas inherent to the context of a correctional facility. Results: The detention facilities may be inadequate in providing early cancer diagnosis and appropriate care mainlydue to a lack of specialized personnel, b) in-house or in external specialized cancer hospitals, care variability (e.g. admissions in small local or regional hospitals), c) delays inproviding access and d) gatekeeper systems. There is a paucity of administration of a) systemic therapy(chemotherapy, targeted drug therapy etc), b) radiotherapy, c)palliative care, and d) enrollment in clinical trials. Conclusions: Correctional facilities must encourage teamwork between healthcare and correctional professionals inorder to improve the provided anticancer care.
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- 2021
16. Behind the numbers and the panic of a viral pandemic: fixed restrictive oncology guidance may jeopardize patients’ survival
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Mauri, Davide, Tzachanis, Dimitrios, Valachis, Antonis, Kamposioras, Konstantinos, Tolia, Maria, Dambrosio, Mario, Zarkavelis, Georgios, Gkoura, Stefania, Gazouli, Ioanna, De Lorenzo, Francesco, Apostolidis, Kathi, Antunac, Katarina, and Dedić Plavetić, Natalija
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COVID-19 ,cancer patients ,survival ,Federation of Oncology Volunteer Associations (FAVO) ,European Cancer Patient Coalition (EPCC) - Abstract
To protect cancer patients from COVID-19 exposure, prioritization strategies are being implemented at global level. Measures include use of telehealth services, deferring elective surgeries, delaying non life-saving therapies, interrupting maintenance and supportive care regimens and suspending screening and regular follow-up visits. Nonetheless, the risk of infection may not always outweigh oncology treatment benefit. Lives of most oncology patients depend on their ability to receive medical, surgical and radiotherapy care. Postponing screening, follow-up and radical surgeries increase patients’ risk of developing metastatic disease. A viral pandemic lasts long time and exhibits seasonal and geographical variations. Though vaccines will be available only in the 2021, a global, aggressive, all-embracing and protracted slowdown of oncologic activities will severely jeopardize patients’ outcomes. A present international oncologists’ panel, ECPC and FAVO, strongly suggest that Hospital measures in a specific geographical area/Nation should be in line with the local epidemic, and restrictions adopted should be adapted and stratified over time.
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- 2020
17. Towards a cancer mission in Horizon Europe: recommendations
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Berns, Anton, primary, Ringborg, Ulrik, additional, Celis, Julio E., additional, Heitor, Manuel, additional, Aaronson, Neil K., additional, Abou‐Zeid, Nancy, additional, Adami, Hans‐Olov, additional, Apostolidis, Kathi, additional, Baumann, Michael, additional, Bardelli, Alberto, additional, Bernards, René, additional, Brandberg, Yvonne, additional, Caldas, Carlos, additional, Calvo, Fabien, additional, Dive, Caroline, additional, Eggert, Angelika, additional, Eggermont, Alexander, additional, Espina, Carolina, additional, Falkenburg, Frederik, additional, Foucaud, Jérôme, additional, Hanahan, Douglas, additional, Helbig, Ulrike, additional, Jönsson, Bengt, additional, Kalager, Mette, additional, Karjalainen, Sakari, additional, Kásler, Miklós, additional, Kearns, Pamela, additional, Kärre, Klas, additional, Lacombe, Denis, additional, Lorenzo, Francesco, additional, Meunier, Françoise, additional, Nettekoven, Gerd, additional, Oberst, Simon, additional, Nagy, Péter, additional, Philip, Thierry, additional, Price, Richard, additional, Schüz, Joachim, additional, Solary, Eric, additional, Strang, Peter, additional, Tabernero, Josep, additional, and Voest, Emile, additional
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- 2020
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18. Summary of international recommendations in 23 languages for patients with cancer during the COVID-19 pandemic
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Mauri, Davide, primary, Kamposioras, Konstantinos, additional, Tolia, Maria, additional, Alongi, Filippo, additional, Tzachanis, Dimitrios, additional, Petricevic, Branka, additional, Chilingirova, Nataliya, additional, Mihaylova, Iglika, additional, Tsakiridis, Theodoros, additional, Salembier, Carl, additional, Papadimitriou, Konstantinos, additional, De Mello, Ramon Andrade, additional, Amaral, Giovanna Araujo, additional, Neves, Nathália Moisés, additional, Dias, Rodrigo, additional, Yi, Junlin, additional, Dedic Plavetic, Natalija, additional, Antunac, Katarina, additional, Kountourakis, Panteleimon, additional, Kopecky, Jindrich, additional, Christopoulos, Christos, additional, Pavese, Ida, additional, Corradini, Stefanie, additional, Zarkavelis, George, additional, Papadaki, Alexandra, additional, Gkantaifi, Areti, additional, Theodorelos, Vasilios, additional, Capizzello, Antonio, additional, Lovey, Jozsef, additional, Cellini, Francesco, additional, Dambrosio, Mario, additional, Takeuchi, Dan, additional, Saraireh, Haytham Hamed, additional, Røtterud, Ranveig, additional, Chojnacka, Marzanna, additional, Papachristos, Athanasios, additional, Djan, Igor, additional, Popovic, Lazar, additional, Grašic Kuhar, Cvetka, additional, Strojan, Primož, additional, Hindi, Nadia, additional, Valachis, Antonis, additional, Åhs, Mari, additional, De Bari, Berardino, additional, Santa Cruz, Olalla, additional, Hameed, Hassan, additional, Takeuchi, Elena, additional, Apostolidis, Kathi, additional, Cardone, Antonella, additional, Gono, Paulina, additional, and Filis, Panagiotis, additional
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- 2020
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19. What could be a cancer mission objective if we join our forces in the fight against cancer?
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Philip, Thierry, primary, Karjalainen, Sakari, additional, De Lorenzo, Francesco, additional, Apostolidis, Kathi, additional, Lombardo, Claudio, additional, Nilbert, Mef, additional, Lacombe, Denis, additional, Poortmans, Philip, additional, Albreht, Tit, additional, Kearns, Pamela, additional, and Vassal, Gilles, additional
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- 2019
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20. Current state of quality of life and patient-reported outcomes research
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Bottomley, Andrew, primary, Reijneveld, Jaap C., additional, Koller, Michael, additional, Flechtner, Henning, additional, Tomaszewski, Krzysztof A., additional, Greimel, Eva, additional, Ganz, Patricia A., additional, Ringash, Jolie, additional, O'Connor, Daniel, additional, Kluetz, Paul G., additional, Tafuri, Giovanni, additional, Grønvold, Mogens, additional, Snyder, Claire, additional, Gotay, Carolyn, additional, Fallowfield, Dame Lesley, additional, Apostolidis, Kathi, additional, Wilson, Roger, additional, Stephens, Richard, additional, Schünemann, Holger, additional, Calvert, Melanie, additional, Holzner, Bernhard, additional, Musoro, Jammbe Z., additional, Wheelwright, Sally, additional, Martinelli, Francesca, additional, Dueck, Amylou C., additional, Pe, Madeline, additional, Coens, Corneel, additional, Velikova, Galina, additional, Kuliś, Dagmara, additional, Taphoorn, Martin J.B., additional, Darlington, Anne-Sophie, additional, Lewis, Ian, additional, and van de Poll-Franse, Lonneke, additional
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- 2019
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21. The ENCePP Code of Conduct: A best practise for scientific independence and transparency in noninterventional postauthorisation studies
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Gini, Rosa, primary, Fournie, Xavier, additional, Dolk, Helen, additional, Kurz, Xavier, additional, Verpillat, Patrice, additional, Simondon, François, additional, Strassmann, Valerie, additional, Apostolidis, Kathi, additional, and Goedecke, Thomas, additional
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- 2019
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22. The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
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Lorenzo, Francesco, primary and Apostolidis, Kathi, additional
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- 2019
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23. Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research
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Velikova, Galina, Valderas, Jose M., Potter, Caroline, Batchelder, Laurie, A’Court, Christine, Baker, Matthew, Bostock, Jennifer, Coulter, Angela, Fitzpatrick, Ray, Forder, Julien, Fox, Diane, Geneen, Louise, Gibbons, Elizabeth, Jenkinson, Crispin, Jones, Karen, Kelly, Laura, Peters, Michele, Mulhern, Brendan, Labeit, Alexander, Rowen, Donna, Meadows, Keith, Elliott, Jackie, Brazier, John E., Knowles, Emma, Keetharuth, Anju, Connell, Janice, Carlton, Jill, Buck, Lizzie Taylor, Ricketts, Thomas, Barkham, Michael, Goswami, Pushpendra, Salek, Sam, Ionova, Tatyana, Oliva, Esther, Fielding, Adele K., Karakantza, Marina, Al-Ismail, Saad, Collins, Graham P., McConnell, Stewart, Langton, Catherine, Jennings, Daniel M., Else, Roger, Kell, Jonathan, Ward, Helen, Day, Sophie, Lumley, Elizabeth, Phillips, Patrick, Duncan, Rosie, Buckley-Woods, Helen, Aber, Ahmed, Jones, Gerogina, Michaels, Jonathan, Porter, Ian, Gangannagaripalli, Jaheeda, Davey, Antoinette, Ricci-Cabello, Ignacio, Haywood, Kirstie, Hansen, Stine Thestrup, Valderas, Jose, Roberts, Deb, Gumber, Anil, Podmore, Bélène, Hutchings, Andrew, van der Meulen, Jan, Aggarwal, Ajay, Konan, Sujith, Price, Andrew, Jackson, William, Bottomley, Nick, Philiips, Michael, Knightley-Day, Toby, Beard, David, Greenhalgh, Joanne, Gooding, Kate, Valderas, Chema, Wright, Judy, Dalkin, Sonia, Meads, David, Black, Nick, Fawkes, Carol, Froud, Robert, Carnes, Dawn, Cook, Jonathan, Dakin, Helen, Smith, James, Kang, Sujin, Griffiths, Catrin, Guest, Ella, Harcourt, Diana, Murphy, Mairead, Hollinghurst, Sandra, Salisbury, Chris, Gao, Anqi, Lemanska, Agnieszka, Chen, Tao, Dearnaley, David P., Jena, Rajesh, Sydes, Matthew, Faithfull, Sara, Ades, A. E., Kounali, Daphne, Lu, Guobing, Rombach, Ines, Gray, Alastair, Rivero-Arias, Oliver, Holch, Patricia, Holmes, Marie, Rodgers, Zoe, Dickinson, Sarah, Clayton, Beverly, Davidson, Susan, Routledge, Jacqui, Glennon, Julia, Henry, Ann M., Franks, Kevin, Maguire, Roma, McCann, Lisa, Young, Teresa, Armes, Jo, Harris, Jenny, Miaskowski, Christine, Kotronoulas, Grigorios, Miller, Morven, Ream, Emma, Patiraki, Elizabeth, Geiger, Alexander, Berg, Geir V., Flowerday, Adrian, Donnan, Peter, McCrone, Paul, Apostolidis, Kathi, Fox, Patricia, Furlong, Eileen, Kearney, Nora, Gibbons, Chris, Fischer, Felix, Coste, Joel, Martinez, Jose Valderas, Rose, Matthias, Leplege, Alain, Shingler, Sarah, Aldhouse, Natalie, Al-Zubeidi, Tamara, Trigg, Andrew, Kitchen, Helen, Green, Colin, Coast, Joanna, Smith, Sarah, Hendriks, Jolijn, Shah, Koonal, Ramos-Goni, Juan-Manuel, Kreimeier, Simone, Herdman, Mike, Devlin, Nancy, Finch, Aureliano Paolo, Mukuria, Clara, Zamora, Bernarda, Parkin, David, Feng, Yan, Bateman, Andrew, Patton, Thomas, Gutacker, Nils, and Health Economics and Health Technology Assessment
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SDG 17 - Partnerships for the Goals ,1117 Public Health And Health Services ,Health Policy & Services - Abstract
The proceedings contain 36 papers. The topics discussed include: using patient reported outcome measures (PROMs) in cancer care; validation of the long-term conditions questionnaire (LTCQ) in a diverse sample of health and social care users in England; the national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK; constructing and validating the short recovering quality of life (ReQoL) measure for use in a mental health population; developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D; development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study; and examining the relevance of PROMs to patients: a review of qualitative data capturing which HRQoL domains are important to patients.
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- 2017
24. Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research : Oxford, UK. 8th June 2017
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Velikova, Galina Valderas, Jose M. Potter, Caroline Batchelder, Laurie A’Court, Christine Baker, Matthew Bostock, Jennifer Coulter, Angela Fitzpatrick, Ray Forder, Julien Fox, Diane Geneen, Louise Gibbons, Elizabeth Jenkinson, Crispin Jones, Karen Kelly, Laura Peters, Michele Mulhern, Brendan Labeit, Alexander Rowen, Donna Meadows, Keith Elliott, Jackie Brazier, John Knowles, Emma Keetharuth, Anju Brazier, John Connell, Janice Carlton, Jill Buck, Lizzie Taylor Ricketts, Thomas Barkham, Michael Goswami, Pushpendra Salek, Sam Ionova, Tatyana Oliva, Esther Fielding, Adele K. Karakantza, Marina Al-Ismail, Saad Collins, Graham P. McConnell, Stewart Langton, Catherine Jennings, Daniel M. Else, Roger Kell, Jonathan Ward, Helen Day, Sophie Lumley, Elizabeth Phillips, Patrick Duncan, Rosie Buckley-Woods, Helen Aber, Ahmed Jones, Gerogina Michaels, Jonathan Porter, Ian Gangannagaripalli, Jaheeda Davey, Antoinette Ricci-Cabello, Ignacio Haywood, Kirstie Hansen, Stine Thestrup Valderas, Jose Roberts, Deb Gumber, Anil Podmore, Bélène Hutchings, Andrew van der Meulen, Jan Aggarwal, Ajay Konan, Sujith Price, Andrew Jackson, William Bottomley, Nick Philiips, Michael Knightley-Day, Toby Beard, David Gibbons, Elizabeth Fitzpatrick, Ray Greenhalgh, Joanne Gooding, Kate Gibbons, Elizabeth Valderas, Chema Wright, Judy Dalkin, Sonia Meads, David Black, Nick Fawkes, Carol Froud, Robert Carnes, Dawn Price, Andrew Cook, Jonathan Dakin, Helen Smith, James Kang, Sujin Beard, David Griffiths, Catrin Guest, Ella Harcourt, Diana Murphy, Mairead Hollinghurst, Sandra Salisbury, Chris Carlton, Jill Elliott, Jackie Rowen, Donna Gao, Anqi Price, Andrew Beard, David Lemanska, Agnieszka Chen, Tao Dearnaley, David P. Jena, Rajesh Sydes, Matthew Faithfull, Sara Ades, A. E. Kounali, Daphne Lu, Guobing Rombach, Ines Gray, Alastair Jenkinson, Crispin Rivero-Arias, Oliver Holch, Patricia Holmes, Marie Rodgers, Zoe Dickinson, Sarah Clayton, Beverly Davidson, Susan Routledge, Jacqui Glennon, Julia Henry, Ann M. Franks, Kevin Velikova, Galina Maguire, Roma McCann, Lisa Young, Teresa Armes, Jo Harris, Jenny Miaskowski, Christine Kotronoulas, Grigorios Miller, Morven Ream, Emma Patiraki, Elizabeth Geiger, Alexander Berg, Geir V. Flowerday, Adrian Donnan, Peter McCrone, Paul Apostolidis, Kathi Fox, Patricia Furlong, Eileen Kearney, Nora Gibbons, Chris Fischer, Felix Gibbons, Chris Coste, Joel Martinez, Jose Valderas Rose, Matthias Leplege, Alain Shingler, Sarah Aldhouse, Natalie Al-Zubeidi, Tamara Trigg, Andrew Kitchen, Helen Davey, Antoinette Porter, Ian Green, Colin Valderas, Jose M. Coast, Joanna Smith, Sarah Hendriks, Jolijn Black, Nick Shah, Koonal Rivero-Arias, Oliver Ramos-Goni, Juan-Manuel Kreimeier, Simone Herdman, Mike Devlin, Nancy Finch, Aureliano Paolo Brazier, John E. Mukuria, Clara Zamora, Bernarda Parkin, David Feng, Yan Bateman, Andrew Herdman, Mike Devlin, Nancy Patton, Thomas Gutacker, Nils Shah, Koonal
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- 2017
25. Enabling daily monitoring of chemotherapy toxicity: The Daily Chemotherapy Toxicity self-Assessment Questionnaire (DCTAQ)
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Maguire, Roma, Kotronoulas, Grigorios, McCann, Lisa, Donnan, Peter, Fox, Patricia, Furlong, Eileen, Ream, Emma, Armes, Jo, Miaskowski, Christine, Patiraki, Elisabeth, Apostolidis, Kathi, Kearney, Nora, and Group, The ESMART Collaborative Work
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- 2017
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26. The eSMART RCT: Comparing electronic Symptom Management using the Advanced Symptom Management System (ASyMS) with standard care for patients during adjuvant chemotherapy
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Maguire, Roma, Mccann, Lisa, Armes, Jo, Harris, Jenny, Miaskowski, Christine, Kotronoulas, Grigorios, Miller, Morven, Ream, Emma, Patiraki, Elisabeth, Gaiger, Alexander, V Berg, Flowerday, Adrian, Donnan, Peter, Mccrone, Paul, Apostolidis, Kathi, Fox, Patricia, and Furlong, Eileen
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- 2017
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27. Value of innovation in oncology: The position of European cancer patients on access to innovative treatments.
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Florindi, Francesco, primary, De Lorenzo, Francesco, additional, Apostolidis, Kathi, additional, Pelouchova, Jana, additional, Winterbottom, Andrew, additional, Chrostowski, Szymon, additional, Cimpoeru, Dan, additional, Bolanos, Natacha, additional, Rek, Anna, additional, Manneh-Vangramberen, Isabelle, additional, Bolhuis, Jiska, additional, and Makaroff, Lydia, additional
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- 2017
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28. VP60 The Importance Of Patient Organizations Involvement In Health Technology Assessment
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Apostolidis, Kathi, primary, Makaroff, Lydia, additional, De Lorenzo, Francesco, additional, and Florindi, Francesco, additional
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- 2017
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29. Summary of international recommendations in 23 languages for patients with cancer during the COVID-19 pandemic
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Petricevic, Branka, Chilingirova, Nataliya, Mihaylova, Iglika, Tsakiridis, Theodoros, Salembier, Carl, Papadimitriou, Konstantinos, De Mello, Ramon Andrade, Amaral, Giovanna Araujo, Neves, Nathália Moisés, Dias, Rodrigo, Yi, Junlin, Dedic Plavetic, Natalija, Antunac, Katarina, Kountourakis, Panteleimon, Kopecky, Jindrich, Christopoulos, Christos, Pavese, Ida, Corradini, Stefanie, Zarkavelis, George, Papadaki, Alexandra, Gkantaifi, Areti, Theodorelos, Vasilios, Capizzello, Antonio, Lovey, Jozsef, Cellini, Francesco, Dambrosio, Mario, Takeuchi, Dan, Saraireh, Haytham Hamed, Røtterud, Ranveig, Chojnacka, Marzanna, Papachristos, Athanasios, Djan, Igor, Popovic, Lazar, Grašic Kuhar, Cvetka, Strojan, Primož, Hindi, Nadia, Valachis, Antonis, Åhs, Mari, De Bari, Berardino, Santa Cruz, Olalla, Hameed, Hassan, Takeuchi, Elena, Apostolidis, Kathi, Cardone, Antonella, Gono, Paulina, Filis, Panagiotis, Mauri, Davide, Kamposioras, Konstantinos, Tolia, Maria, Alongi, Filippo, and Tzachanis, Dimitrios
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- 2020
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30. VP60 The Importance Of Patient Organizations Involvement In Health Technology Assessment.
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Makaroff, Lydia, De Lorenzo, Francesco, Florindi, Francesco, and Apostolidis, Kathi
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INTRODUCTION:In Europe, the work done by the European Commission and the European Network for Health Technology Assessment (EUnetHTA) has consolidated the role of Health Technology Assessment (HTA), and promises to better harmonize its impact across European Union (EU) countries. However, more work is needed to improve patient involvement in assessing new health technology, and in developing research priorities.METHODS:The European Cancer Patient Coalition (ECPC) developed a model for engagement of patients in HTA based on the experience from: •ECPC's ‘Value of Innovation in Oncology’ White Paper, which includes input from ECPC's membership•ECPC's leading role in the Patient Preferences in Benefit-Risk Assessments during the Drug Life Cycle (PREFER) study, funded by the Innovative Medicines Initiative, to develop guidelines on how patient-preference studies should be performed throughout the development of new medical treatments.RESULTS:The ECPC ‘Value of Innovation in Oncology’ White Paper was launched in 2017. The paper provides ECPC's policy position on key obstacles to equitable access to meaningful innovation. The paper recommends the establishment of an EU-wide HTA body to reduce delays and variations in access and to avoid duplication of effort by individual Member States. The paper also recommends that patients should be formally and routinely included in HTA policy and operations at EU and at national levels. These recommendations were also submitted to the European Commission's public consultation on strengthening EU cooperation on HTA.Through its work in PREFER, ECPC is helping to improve how patient preferences are measured and valued to capture the impact of health technology on patients daily life. Patient preferences are concerned with measuring how patients value components such as treatment end points, route of administration, treatment duration, treatment frequency, frequency of side-effects, price, and quality of life.CONCLUSIONS:Patient organization involvement in HTA is vital. Patient organizations offer unique insights, experiences, identify unmet needs, and can help to produce practical recommendations [ABSTRACT FROM PUBLISHER]
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- 2017
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31. Behind the numbers and the panic of a viral pandemic: fixed restrictive oncology guidance may jeopardize patients' survival.
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Mauri D, Tzachanis D, Valachis A, Kamposioras K, Tolia M, Dambrosio M, Zarkavelis G, Gkoura S, Gazouli I, De Lorenzo F, and Apostolidis K
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- COVID-19, Communicable Disease Control organization & administration, Coronavirus Infections epidemiology, Europe epidemiology, Humans, Medical Oncology organization & administration, Pandemics statistics & numerical data, Pneumonia, Viral epidemiology, Practice Guidelines as Topic, Risk Assessment, Survival Analysis, Telemedicine organization & administration, Coronavirus Infections prevention & control, Global Health, Neoplasms mortality, Neoplasms therapy, Pandemics prevention & control, Pneumonia, Viral prevention & control
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To protect cancer patients from COVID-19 exposure, prioritization strategies are being implemented at global level. Measures include use of tele-health services, deferring elective surgeries, delaying non life-saving therapies, interrupting maintenance and supportive care regimens and suspending screening and regular follow-up visits. Nonetheless, the risk of infection may not always outweigh oncology treatment benefit. Lives of most oncology patients depend on their ability to receive medical, surgical and radiotherapy care. Postponing screening, follow-up and radical surgeries increase patients' risk of developing metastatic disease. A viral pandemic lasts long time and exhibits seasonal and geographical variations. Though vaccines will be available only in the 2021, a global, aggressive, all-embracing and protracted slowdown of oncologic activities will severely jeopardize patients' outcomes. A present international oncologists' panel, ECPC and FAVO, strongly suggest that Hospital measures in a specific geographical area/Nation should be in line with the local epidemic, and restrictions adopted should be adapted and stratified over time.
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- 2020
32. The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient-centric solutions in the mission on cancer.
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de Lorenzo F and Apostolidis K
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- Biomedical Research, Europe, Humans, Socioeconomic Factors, Health Care Coalitions, Neoplasms therapy, Patient-Centered Care, Stakeholder Participation
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There is an urgent need for solutions to the economic and social inequalities in cancer care that still exist in many European countries. Patient preferences, 'big data', mobile digital technology and molecular and genomic profiling are among the innovative research topics that connect cancer patients to comprehensive cancer centres, and link translational research to cancer diagnosis, treatment and care. The question is whether Europe can deliver the complex infrastructure needed for universal coverage and equitable access to cancer care. The European Cancer Patient Coalition (ECPC), the leading 'umbrella' cancer patient organisation in Europe, has a central role in bringing the unmet needs of patients with cancer to the forefront of cancer policy, care and research. The ECPC is a respected and reliable partner in the oncology community and has effectively collaborated with institutional stakeholders and organisations, as well as with the European Commission, on cancer research projects and in the development of tools to advance health care and cancer policies at the European and national level. The ECPC believes that innovation cannot emerge and grow without patient involvement and is fully committed to increasing patient education and contribution in cancer research through its active participation in various European cancer research programmes and educational resources. The ECPC is expected to play a major role in the mission on cancer, given its previous achievements in policy and research to help overcome the inequalities in cancer prevention, treatment, rehabilitation and survivorship care. The mission on cancer will be facilitated by active collaboration between patient organisations and scientists, clinicians, politicians and industry, with the aim of identifying important research questions regarding quality of life and social issues for cancer patients of all ages., (© 2019 The Authors. Published by FEBS Press and John Wiley & Sons Ltd.)
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- 2019
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