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19 results on '"Atieno, Mackuline"'

5. Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries

Author

Namisango, Eve, primary, Bristowe, Katherine, additional, Murtagh, Fliss EM, additional, Downing, Julia, additional, Powell, Richard A, additional, Atieno, Mackuline, additional, Abas, Melanie, additional, Ali, Zipporah, additional, Luyirika, Emmanuel BK, additional, Meiring, Michelle, additional, Mwangi-Powell, Faith N, additional, Higginson, Irene J, additional, and Harding, Richard, additional

Published
2022
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7. sj-pdf-1-pmj-10.1177_02692163221099583 – Supplemental material for Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries

Author

Namisango, Eve, Bristowe, Katherine, Murtagh, Fliss EM, Downing, Julia, Powell, Richard A, Atieno, Mackuline, Abas, Melanie, Ali, Zipporah, Luyirika, Emmanuel BK, Meiring, Michelle, Mwangi-Powell, Faith N, Higginson, Irene J, and Harding, Richard

Subjects
FOS: Clinical medicine, 111702 Aged Health Care, FOS: Health sciences, 110308 Geriatrics and Gerontology
Abstract

Supplemental material, sj-pdf-1-pmj-10.1177_02692163221099583 for Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries by Eve Namisango, Katherine Bristowe, Fliss EM Murtagh, Julia Downing, Richard A Powell, Mackuline Atieno, Melanie Abas, Zipporah Ali, Emmanuel BK Luyirika, Michelle Meiring, Faith N Mwangi-Powell, Irene J Higginson and Richard Harding in Palliative Medicine

Published
2022
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8. sj-pdf-2-pmj-10.1177_02692163221099583 – Supplemental material for Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries

Author

Namisango, Eve, Bristowe, Katherine, Murtagh, Fliss EM, Downing, Julia, Powell, Richard A, Atieno, Mackuline, Abas, Melanie, Ali, Zipporah, Luyirika, Emmanuel BK, Meiring, Michelle, Mwangi-Powell, Faith N, Higginson, Irene J, and Harding, Richard

Subjects
FOS: Clinical medicine, 111702 Aged Health Care, FOS: Health sciences, 110308 Geriatrics and Gerontology
Abstract

Supplemental material, sj-pdf-2-pmj-10.1177_02692163221099583 for Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries by Eve Namisango, Katherine Bristowe, Fliss EM Murtagh, Julia Downing, Richard A Powell, Mackuline Atieno, Melanie Abas, Zipporah Ali, Emmanuel BK Luyirika, Michelle Meiring, Faith N Mwangi-Powell, Irene J Higginson and Richard Harding in Palliative Medicine

Published
2022
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9. Availability of essential drugs for managing HIV-related pain and symptoms within 120 PEPFAR-funded health facilities in East Africa: A cross-sectional survey with onsite verification

Author

Harding, Richard, Simms, Victoria, Penfold, Suzanne, Downing, Julia, Powell, Richard A, Mwangi-Powell, Faith, Namisango, Eve, Moreland, Scott, Gikaara, Nancy, Atieno, Mackuline, Kataike, Jennifer, Nsubuga, Clare, Munene, Grace, Banga, Geoffrey, and Higginson, Irene J

Published
2014
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10. Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study

Author

Namisango, Eve, primary, Bristowe, Katherine, additional, Murtagh, Fliss EM, additional, Downing, Julia, additional, Powell, Richard A, additional, Abas, Melanie, additional, Lohfeld, Lynne, additional, Ali, Zipporah, additional, Atieno, Mackuline, additional, Haufiku, Desiderius, additional, Guma, Samuel, additional, Luyirika, Emmanuel BK, additional, Mwangi-Powell, Faith N, additional, Higginson, Irene J, additional, and Harding, Richard, additional

Published
2020
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11. Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study.

Author

Wolfe, Joanne, Bluebond-Langner, Myra, Namisango, Eve, Bristowe, Katherine, Murtagh, Fliss EM, Downing, Julia, Powell, Richard A, Abas, Melanie, Lohfeld, Lynne, Ali, Zipporah, Atieno, Mackuline, Haufiku, Desiderius, Guma, Samuel, Luyirika, Emmanuel BK, Mwangi-Powell, Faith N, Higginson, Irene J, and Harding, Richard

Subjects
CAREGIVERS, CATASTROPHIC illness, INTERVIEWING, SELF-evaluation, PSYCHOLOGICAL stress, TERMINALLY ill, QUALITATIVE research, JUDGMENT sampling, FAMILY relations, CROSS-sectional method, PATIENT-centered care, DESCRIPTIVE statistics, CHILDREN, SYMPTOMS
Abstract

Background: Paediatric life-limiting and life-threatening conditions (life-limiting conditions) place significant strain on children, families and health systems. Given high service use among this population, it is essential that care addresses their main symptoms and concerns. Aim: This study aimed to identify the symptoms, concerns and other outcomes that matter to children with life-limiting conditions and their families in sub-Saharan Africa. Setting and participants: Cross-sectional qualitative study in Kenya, Namibia, South Africa and Uganda. Children/caregivers of children aged 0–17 years with life-limiting conditions were purposively sampled by age, sex and diagnosis. Children aged 7 and above self-reported; caregiver proxies reported for children below 7 and those aged 7 and above unable to self-report. Results: A total of 120 interviews were conducted with children with life-limiting conditions (n = 61; age range: 7–17 years), and where self-report was not possible, caregivers (n = 59) of children (age range: 0–17) were included. Conditions included advanced HIV (22%), cancer (19%), heart disease (16%) endocrine, blood and immune disorders (13%), neurological conditions (12%), sickle cell anaemia (10%) and renal disease (8%). Outcomes identified included physical concerns – pain and s ymptom distress; psycho-social concerns – family and social relationships, ability to engage with age-appropriate activities (e.g. play, school attendance); existential concerns – worry about death, and loss of ambitions; health care quality – child- and adolescent-friendly services. Priority psycho-social concerns and health service factors varied by age. Conclusion: This study bridges an important knowledge gap regarding symptoms, concerns and outcomes that matter to children living with life-limiting conditions and their families and informs service development and evaluation. [ABSTRACT FROM AUTHOR]

Published
2020
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12. Integrating palliative care into national health systems in Africa: a multi–country intervention study

Author

Grant, Liz, primary, Downing, Julia, additional, Luyirika, Emmanuel, additional, Murphy, Mairead, additional, Namukwaya, Liz, additional, Kiyange, Fatia, additional, Atieno, Mackuline, additional, Kemigisha–Ssali, Emilly, additional, Hunt, Jenny, additional, Snell, Kaly, additional, Murray, Scott A, additional, and Leng, Mhoira, additional

Published
2017
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15. The HIV basic care package: where is it available and who receives it? Findings from a mixed methods evaluation in Kenya and Uganda

Author

Penfold, Suzanne, primary, Simms, Victoria, additional, Downing, Julia, additional, Powell, Richard A., additional, Mwangi-Powell, Faith, additional, Namisango, Eve, additional, Moreland, Scott, additional, Atieno, Mackuline, additional, Gikaara, Nancy, additional, Kataike, Jeniffer, additional, Kwebiha, Clare, additional, Munene, Grace, additional, Banga, Geoffrey, additional, Higginson, Irene J., additional, and Harding, Richard, additional

Published
2014
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16. The presence of CD4 counts for the management of HIV patients in East Africa: A multicentred study

Author

Harding, Richard, primary, Simms, Victoria, additional, Penfold, Suzanne, additional, Downing, Julia, additional, Powell, Richard A., additional, Mwangi-Powell, Faith, additional, Namisango, Eve, additional, Moreland, Scott, additional, Gikaara, Nancy, additional, Atieno, Mackuline, additional, Kataike, Jeniffer, additional, Nsubuga, Clare, additional, Munene, Grace, additional, Banga, Geoffrey, additional, and Higginson, Irene J., additional

Published
2013
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17. Availability of essential drugs for managing HIV-related pain and symptoms within 120 PEPFAR-funded health facilities in East Africa: A cross-sectional survey with onsite verification

Author

Harding, Richard, primary, Simms, Victoria, additional, Penfold, Suzanne, additional, Downing, Julia, additional, Powell, Richard A, additional, Mwangi-Powell, Faith, additional, Namisango, Eve, additional, Moreland, Scott, additional, Gikaara, Nancy, additional, Atieno, Mackuline, additional, Kataike, Jennifer, additional, Nsubuga, Clare, additional, Munene, Grace, additional, Banga, Geoffrey, additional, and Higginson, Irene J, additional

Published
2013
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18. Multidimensional Patient-Reported Problems within Two Weeks of HIV Diagnosis in East Africa: A Multicentre Observational Study

Author

Simms, Victoria, primary, Gikaara, Nancy, additional, Munene, Grace, additional, Atieno, Mackuline, additional, Kataike, Jeniffer, additional, Nsubuga, Clare, additional, Banga, Geoffrey, additional, Namisango, Eve, additional, Penfold, Suzanne, additional, Fayers, Peter, additional, Powell, Richard A., additional, Higginson, Irene J., additional, and Harding, Richard, additional

Published
2013
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19. The presence of CD4 counts for the management of HIV patients in East Africa: A multicentred study.

Author

Harding, Richard, Simms, Victoria, Penfold, Suzanne, Downing, Julia, Powell, Richard A., Mwangi-Powell, Faith, Namisango, Eve, Moreland, Scott, Gikaara, Nancy, Atieno, Mackuline, Kataike, Jeniffer, Nsubuga, Clare, Munene, Grace, Banga, Geoffrey, and Higginson, Irene J.

Subjects
CHI-squared test, EPIDEMIOLOGY, FISHER exact test, HIV infections, MEDICAL cooperation, PROBABILITY theory, REGRESSION analysis, RESEARCH, RESEARCH funding, SELF-evaluation, DISEASE management, DATA analysis, REPEATED measures design, PROPORTIONAL hazards models, DESCRIPTIVE statistics, CD4 lymphocyte count
Abstract

New WHO guidance stipulates six-monthly CD4 testing and treatment initiation at CD4 less than 350. This study aimed to determine the presence of CD4 results in patient records across five care facilities in Kenya, and to identify factors associated with the presence of CD4 count. This is a cross-sectional study of consecutive outpatients. Participants completed self-reported outcomes of demographics, and both physical and mental health dimensions of quality of life and function; charts were reviewed for a CD4 count in the previous 13 months; 548 patients participated. For those diagnosed during the 13-month study period, 7.1% of the sample had no CD4 result on record. For those diagnosed prior to the study, 8.7% had no result. Multivariate logistic regression revealed that 30 days post-HIV diagnosis, facility and antiretroviral therapy use were associated with the odds of having a CD4 result on file. At six months, poverty and prevalence of multidimensional problems were associated with lack of CD4 result. For those diagnosed prior to the observation period, education level was associated with more infrequent CD4 counts, and facility and number of dependants were associated with odds of a CD4 result within six months. Our data suggest inconsistencies in CD4 results availability within and between facilities. Implementation of new guidance will require a shift in practice. [ABSTRACT FROM AUTHOR]

Published
2014
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