24 results on '"Camp, Charlotte"'
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2. Exploring the relationship between condition severity and health-related quality of life in people with haemophilia A across Europe: a multivariable analysis of data from the CHESS II study
3. Exploring concurrent validity of the CLN2 Clinical Rating Scale: Comparison to PedsQL using cerliponase alfa clinical trial data
4. A World without Satellite Data as a Result of a Global Cyber-Attack
5. Physician and Patient Agreement in the Perception of Hereditary Angioedema (HAE) Attacks and Their Management: Data From a Real-World Survey
6. Anxiety and depression among adults with haemophilia A: Patient and physician reported symptoms from the real‐world European CHESS II study.
7. Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)
8. Short-term Outcomes and Costs Following Partial Nephrectomy in England: A Population-based Study
9. Healthcare utilization of patients with hereditary angioedema treated with lanadelumab and subcutaneous C1-inhibitor concentrate
10. The impact of severe haemophilia and the presence of target joints on health-related quality-of-life
11. Evaluating discrete choice experiment willingness to pay [DCE-WTP] analysis and relative social willingness to pay [RS-WTP] analysis in a health technology assessment of a treatment for an ultra-rare childhood disease [CLN2]
12. Health resource use after robot-assisted surgery vs open and conventional laparoscopic techniques in oncology: analysis of English secondary care data for radical prostatectomy and partial nephrectomy
13. Clinical attributes and treatment characteristics are associated with work productivity and activity impairment in people with severe haemophilia A
14. Additional file 1 of Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)
15. Clinical attributes and treatment characteristics are associated with work productivity and activity impairment in people with severe haemophilia A.
16. The top 10 research priorities in bleeding disorders: a James Lind Alliance Priority Setting Partnership
17. The relationship between target joints and direct resource use in severe haemophilia
18. The relationship between target joints and direct resource use in severe haemophilia
19. The cost of severe haemophilia in Europe: the CHESS study
20. PP147 Physician And Patient Reported Anxiety And Depression In Hemophilia
21. Impact of vagus nerve stimulation on secondary care burden in children and adults with epilepsy: Review of routinely collected hospital data in England
22. The relationship between target joints and direct resource use in severe haemophilia.
23. The cost of severe haemophilia in Europe: the CHESS study.
24. The impact of severe haemophilia and the presence of target joints on health-related quality-of-life.
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