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2. A View from the past into our collective future: the oncofertility consortium vision statement.

Author

Woodruff, Teresa K, Ataman-Millhouse, Lauren, Acharya, Kelly S, Almeida-Santos, Teresa, Anazodo, Antoinette, Anderson, Richard A, Appiah, Leslie, Bader, Joy, Becktell, Kerri, Brannigan, Robert E, Breech, Lesley, Bourlon, Maria T, Bumbuliene, Žana, Burns, Karen, Campo-Engelstein, Lisa, Campos, Jacira R, Centola, Grace M, Chehin, Mauricio Barbour, Chen, Diane, De Vos, Michel, Duncan, Francesca E, El-Damen, Ahmed, Fair, Douglas, Famuyiwa, Yemi, Fechner, Patricia Y, Fontoura, Paula, Frias, Olivia, Gerkowicz, Sabrina A, Ginsberg, Jill, Gracia, Clarisa R, Goldman, Kara, Gomez-Lobo, Veronica, Hazelrigg, Brent, Hsieh, Michael H, Hoyos, Luis R, Hoyos-Martinez, Alfonso, Jach, Robert, Jassem, Jacek, Javed, Murid, Jayasinghe, Yasmin, Jeelani, Roohi, Jeruss, Jacqueline S, Kaul-Mahajan, Nalini, Keim-Malpass, Jessica, Ketterl, Tyler G, Khrouf, Mohamed, Kimelman, Dana, Kusuhara, Atsuko, Kutteh, William H, Laronda, Monica M, Lee, Jung Ryeol, Lehmann, Vicky, Letourneau, Joseph M, McGinnis, Lynda K, McMahon, Eileen, Meacham, Lillian R, Mijangos, Monserrat Fabiola Velez, Moravek, Molly, Nahata, Leena, Ogweno, George Moses, Orwig, Kyle E, Pavone, Mary Ellen, Peccatori, Fedro Alessandro, Pesce, Romina Ileana, Pulaski, Hanna, Quinn, Gwendolyn, Quintana, Ramiro, Quintana, Tomas, de Carvalho, Bruno Ramalho, Ramsey-Goldman, Rosalind, Reinecke, Joyce, Reis, Fernando M, Rios, Julie, Rhoton-Vlasak, Alice S, Rodriguez-Wallberg, Kenny A, Roeca, Cassandra, Rotz, Seth J, Rowell, Erin, Salama, Mahmoud, Saraf, Amanda J, Scarella, Anibal, Schafer-Kalkhoff, Tara, Schmidt, Deb, Senapati, Suneeta, Shah, Divya, Shikanov, Ariella, Shnorhavorian, Margarett, Skiles, Jodi L, Smith, James F, Smith, Kristin, Sobral, Fabio, Stimpert, Kyle, Su, H Irene, Sugimoto, Kouhei, Suzuki, Nao, Thakur, Mili, Victorson, David, Viale, Luz, Vitek, Wendy, and Wallace, W Hamish

Subjects
Fertility preservation, Oncofertility, cancer, Genetics, Paediatrics and Reproductive Medicine, Obstetrics & Reproductive Medicine
Abstract

PurposeToday, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium.MethodsThe Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process.ResultsThis interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity.ConclusionThe goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

Published
2021

3. Identification of research priorities in infertility and assisted reproduction: an international, multicentre study

Author

García, Désirée, Brazal, Sarai, Lindenberg, Frederikke, Toft, Eva, La Marca, Antonio, Borrás, Rosa, Lorenzon, Aline Rodrigues, Chehin, Mauricio Barbour, Silva, Leticia, da Motta, Eduardo Leme Alves, Ripero, Maider, Madero, José Ignacio, Marinho, Ricardo Mello, de Oliveira, Cristiane Araújo, Caetano, João Pedro Junqueira, Bolívar, Anna, Rodríguez, Amelia, and Vassena, Rita

Published
2020
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5. Managing Fertility Preservation in Childhood Cancer Patients in Brazilian Scenario

Author

Rodrigues, Jhenifer Kliemchen, de Carvalho, Bruno Ramalho, de Sá Rosa e Silva, Ana Carolina Japur, Nery, Simone França, Campos, Jacira Ribeiro, Marinho, Ricardo Mello, Caetano, João Pedro Junqueira, de Azambuja, Ricardo Marques, Badalotti, Mariângela, Petracco, Álvaro, Chehin, Maurício Barbour, Lopes, Joaquim, dos Reis, Fernando Marcos, Woodruff, Teresa K., editor, and Gosiengfiao, Yasmin C., editor

Published
2017
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7. A View from the past into our collective future: the oncofertility consortium vision statement.

Author

UCL - SSS/IREC/GYNE - Pôle de Gynécologie, UCL - (SLuc) Service de gynécologie et d'andrologie, Woodruff, Teresa K, Ataman-Millhouse, Lauren, Acharya, Kelly S, Almeida-Santos, Teresa, Anazodo, Antoinette, Anderson, Richard A, Appiah, Leslie, Bader, Joy, Becktell, Kerri, Brannigan, Robert E, Breech, Lesley, Bourlon, Maria T, Bumbuliene, Žana, Burns, Karen, Campo-Engelstein, Lisa, Campos, Jacira R, Centola, Grace M, Chehin, Mauricio Barbour, Chen, Diane, De Vos, Michel, Duncan, Francesca E, El-Damen, Ahmed, Fair, Douglas, Famuyiwa, Yemi, Fechner, Patricia Y, Fontoura, Paula, Frias, Olivia, Gerkowicz, Sabrina A, Ginsberg, Jill, Gracia, Clarisa R, Goldman, Kara, Gomez-Lobo, Veronica, Hazelrigg, Brent, Hsieh, Michael H, Hoyos, Luis R, Hoyos-Martinez, Alfonso, Jach, Robert, Jassem, Jacek, Javed, Murid, Jayasinghe, Yasmin, Jeelani, Roohi, Jeruss, Jacqueline S, Kaul-Mahajan, Nalini, Keim-Malpass, Jessica, Ketterl, Tyler G, Khrouf, Mohamed, Kimelman, Dana, Kusuhara, Atsuko, Kutteh, William H, Laronda, Monica M, Lee, Jung Ryeol, Lehmann, Vicky, Letourneau, Joseph M, McGinnis, Lynda K, McMahon, Eileen, Meacham, Lillian R, Mijangos, Monserrat Fabiola Velez, Moravek, Molly, Nahata, Leena, Ogweno, George Moses, Orwig, Kyle E, Pavone, Mary Ellen, Peccatori, Fedro Alessandro, Pesce, Romina Ileana, Pulaski, Hanna, Quinn, Gwendolyn, Quintana, Ramiro, Quintana, Tomas, de Carvalho, Bruno Ramalho, Ramsey-Goldman, Rosalind, Reinecke, Joyce, Reis, Fernando M, Rios, Julie, Rhoton-Vlasak, Alice S, Rodriguez-Wallberg, Kenny A, Roeca, Cassandra, Rotz, Seth J, Rowell, Erin, Salama, Mahmoud, Saraf, Amanda J, Scarella, Anibal, Schafer-Kalkhoff, Tara, Schmidt, Deb, Senapati, Suneeta, Shah, Divya, Shikanov, Ariella, Shnorhavorian, Margarett, Skiles, Jodi L, Smith, James F, Smith, Kristin, Sobral, Fabio, Stimpert, Kyle, Su, H Irene, Sugimoto, Kouhei, Suzuki, Nao, Thakur, Mili, Victorson, David, Viale, Luz, Vitek, Wendy, Wallace, W Hamish, Wartella, Ellen A, Westphal, Lynn M, Whiteside, Stacy, Wilcox, Lea H, Wyns, Christine, Xiao, Shuo, Xu, Jing, Zelinski, Mary, UCL - SSS/IREC/GYNE - Pôle de Gynécologie, UCL - (SLuc) Service de gynécologie et d'andrologie, Woodruff, Teresa K, Ataman-Millhouse, Lauren, Acharya, Kelly S, Almeida-Santos, Teresa, Anazodo, Antoinette, Anderson, Richard A, Appiah, Leslie, Bader, Joy, Becktell, Kerri, Brannigan, Robert E, Breech, Lesley, Bourlon, Maria T, Bumbuliene, Žana, Burns, Karen, Campo-Engelstein, Lisa, Campos, Jacira R, Centola, Grace M, Chehin, Mauricio Barbour, Chen, Diane, De Vos, Michel, Duncan, Francesca E, El-Damen, Ahmed, Fair, Douglas, Famuyiwa, Yemi, Fechner, Patricia Y, Fontoura, Paula, Frias, Olivia, Gerkowicz, Sabrina A, Ginsberg, Jill, Gracia, Clarisa R, Goldman, Kara, Gomez-Lobo, Veronica, Hazelrigg, Brent, Hsieh, Michael H, Hoyos, Luis R, Hoyos-Martinez, Alfonso, Jach, Robert, Jassem, Jacek, Javed, Murid, Jayasinghe, Yasmin, Jeelani, Roohi, Jeruss, Jacqueline S, Kaul-Mahajan, Nalini, Keim-Malpass, Jessica, Ketterl, Tyler G, Khrouf, Mohamed, Kimelman, Dana, Kusuhara, Atsuko, Kutteh, William H, Laronda, Monica M, Lee, Jung Ryeol, Lehmann, Vicky, Letourneau, Joseph M, McGinnis, Lynda K, McMahon, Eileen, Meacham, Lillian R, Mijangos, Monserrat Fabiola Velez, Moravek, Molly, Nahata, Leena, Ogweno, George Moses, Orwig, Kyle E, Pavone, Mary Ellen, Peccatori, Fedro Alessandro, Pesce, Romina Ileana, Pulaski, Hanna, Quinn, Gwendolyn, Quintana, Ramiro, Quintana, Tomas, de Carvalho, Bruno Ramalho, Ramsey-Goldman, Rosalind, Reinecke, Joyce, Reis, Fernando M, Rios, Julie, Rhoton-Vlasak, Alice S, Rodriguez-Wallberg, Kenny A, Roeca, Cassandra, Rotz, Seth J, Rowell, Erin, Salama, Mahmoud, Saraf, Amanda J, Scarella, Anibal, Schafer-Kalkhoff, Tara, Schmidt, Deb, Senapati, Suneeta, Shah, Divya, Shikanov, Ariella, Shnorhavorian, Margarett, Skiles, Jodi L, Smith, James F, Smith, Kristin, Sobral, Fabio, Stimpert, Kyle, Su, H Irene, Sugimoto, Kouhei, Suzuki, Nao, Thakur, Mili, Victorson, David, Viale, Luz, Vitek, Wendy, Wallace, W Hamish, Wartella, Ellen A, Westphal, Lynn M, Whiteside, Stacy, Wilcox, Lea H, Wyns, Christine, Xiao, Shuo, Xu, Jing, and Zelinski, Mary

Abstract

Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium. The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process. This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity. The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

Published
2021

8. Survey of third-party parenting options associated with fertility preservation available to patients with cancer around the globe

Author

Rashedi, Alexandra S., de Roo, Saskia F., Ataman, Lauren M., Edmonds, Maxwell E., Silva, Adelino Amaral, Scarella, Anibal, Horbaczewska, Anna, Anazodo, Antoinette, Arvas, Ayse, de Carvalho, Bruno Ramalho, Sartorio, Cassio, Beerendonk, Catharina C.M., Diaz-Garcia, Cesar, Suk Suh, Chang, Melo, Claudia, Andersen, Claus Yding, Motta, Eduardo, Greenblatt, Ellen M., Van Moer, Ellen, Zand, Elnaz, Reis, Fernando M., Sanchez, Flor, Terrado, Guillermo, Rodrigues, Jhenifer K., de Meneses e Silva, Joao Marcos, Smitz, Johan, Medrano, Jose, Lee, Jung Ryeol, Winkler-Crepaz, Katharina, Smith, Kristin, Ferreira Melo e Silva, Ligia Helena, Wildt, Ludwig, Salama, Mahmoud, del Mar Andres, Maria, Bourlon, Maria T., Vega, Mario, Chehin, Mauricio Barbour, De Vos, Michel, Khrouf, Mohamed, Suzuki, Nao, Azmy, Osama, Fontoura, Paula, Almeida Campos-Junior, Paulo Henrique, Mallmann, Peter, Azambuja, Ricardo, Marinho, Ricardo M., Anderson, Richard A., Jach, Robert, de A. Antunes, Roberto, Mitchell, Rod, Fathi, Rouhollah, Adiga, Satish Kumar, Takae, Seido, Kim, Seok Hyun, Romero, Sergio, Grieco, Silvana Chedid, Shaulov, Talya, Furui, Tatsuro, Almeida-Santos, Teresa, Nelen, Willianne, Jayasinghe, Yasmin, Sugishita, Yodo, Woodruff, Teresa K., Centre for Reproductive Medicine - Gynaecology, Pathology/molecular and cellular medicine, Clinical Biology, Follicle Biology, and Surgical clinical sciences

Subjects
Cancer Research, medicine.medical_specialty, Resource (biology), fertility preservation, Psychological intervention, MEDLINE, Globe, Reproductive technology, lcsh:RC254-282, 03 medical and health sciences, 0302 clinical medicine, Supportive Care and Quality of Life, Neoplasms, Surveys and Questionnaires, Original Reports, Journal Article, medicine, Global health, Humans, Fertility preservation, Referral and Consultation, Cancer, Oncofertility, 030219 obstetrics & reproductive medicine, Parenting, business.industry, Health Services and Outcomes, Public relations, lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens, Women's cancers Radboud Institute for Health Sciences [Radboudumc 17], 3. Good health, Surgery, medicine.anatomical_structure, Oncology, 030220 oncology & carcinogenesis, business, reproductive medicine
Abstract

Purpose In the accompanying article, “Survey of Fertility Preservation Options Available to Patients With Cancer Around the Globe,” we showed that specific fertility preservation services may not be offered at various sites around the world because of cultural and legal barriers. We assessed global and regional experiences as well as the legal status of third-party reproduction and adoption to serve as a comprehensive international data set and resource for groups that wish to begin oncofertility interventions. Methods We provide data on the legalities of third-party assisted reproductive technologies and other family-building options in the 28 oncofertility-practicing countries surveyed. Results We found regional and country differences that will be important in the development of tailored resources for physicians and for patient brochures that are sensitive to these local restrictions and cultural norms. Conclusion Because many patients first consult Web-based materials, the formal assessment of the availability of these options provides members of the global oncofertility community with data to which they might otherwise not have ready access to better serve their patients.

Published
2020
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9. Survey of Fertility Preservation Options Available to Patients With Cancer Around the Globe

Author

Rashedi, Alexandra S., de Roo, Saskia F., Ataman, Lauren M., Edmonds, Maxwell E., Silva, Adelino Amaral, Scarella, Anibal, Horbaczewska, Anna, Anazodo, Antoinette, Arvas, Ayse, de Carvalho, Bruno Ramalho, Sartorio, Cassio, Beerendonk, Catharina C. M., Diaz-Garcia, Cesar, Suh, Chang Suk, Melo, Claudia, Andersen, Claus Yding, Motta, Eduardo, Greenblatt, Ellen M., Van Moer, Ellen, Zand, Elnaz, Reis, Fernando M., Sanchez, Flor, Terrado, Guillermo, Rodrigues, Jhenifer K., de Meneses e Silva, Joao Marcos, Smitz, Johan, Medrano, Jose, Lee, Jung Ryeol, Winkler-Crepaz, Katharina, Smith, Kristin, Ferreira Melo e Silva, Ligia Helena, Wildt, Ludwig, Salama, Mahmoud, del Mar Andres, Maria, Bourlon, Maria T., Vega, Mario, Chehin, Mauricio Barbour, De Vos, Michel, Khrouf, Mohamed, Suzuki, Nao, Azmy, Osama, Fontoura, Paula, Almeida Campos-Junior, Paulo Henrique, Mallmann, Peter, Azambuja, Ricardo, Marinho, Ricardo M., Anderson, Richard A., Jach, Robert, Antunes, Roberto de A., Mitchell, Rod, Fathi, Rouhollah, Adiga, Satish Kumar, Takae, Seido, Kim, Seok Hyun, Romero, Sergio, Grieco, Silvana Chedid, Shaulov, Talya, Furui, Tatsuro, Almeida-Santos, Teresa, Nelen, Willianne, Jayasinghe, Yasmin, Sugishita, Yodo, Woodruff, Teresa K., Rashedi, Alexandra S., de Roo, Saskia F., Ataman, Lauren M., Edmonds, Maxwell E., Silva, Adelino Amaral, Scarella, Anibal, Horbaczewska, Anna, Anazodo, Antoinette, Arvas, Ayse, de Carvalho, Bruno Ramalho, Sartorio, Cassio, Beerendonk, Catharina C. M., Diaz-Garcia, Cesar, Suh, Chang Suk, Melo, Claudia, Andersen, Claus Yding, Motta, Eduardo, Greenblatt, Ellen M., Van Moer, Ellen, Zand, Elnaz, Reis, Fernando M., Sanchez, Flor, Terrado, Guillermo, Rodrigues, Jhenifer K., de Meneses e Silva, Joao Marcos, Smitz, Johan, Medrano, Jose, Lee, Jung Ryeol, Winkler-Crepaz, Katharina, Smith, Kristin, Ferreira Melo e Silva, Ligia Helena, Wildt, Ludwig, Salama, Mahmoud, del Mar Andres, Maria, Bourlon, Maria T., Vega, Mario, Chehin, Mauricio Barbour, De Vos, Michel, Khrouf, Mohamed, Suzuki, Nao, Azmy, Osama, Fontoura, Paula, Almeida Campos-Junior, Paulo Henrique, Mallmann, Peter, Azambuja, Ricardo, Marinho, Ricardo M., Anderson, Richard A., Jach, Robert, Antunes, Roberto de A., Mitchell, Rod, Fathi, Rouhollah, Adiga, Satish Kumar, Takae, Seido, Kim, Seok Hyun, Romero, Sergio, Grieco, Silvana Chedid, Shaulov, Talya, Furui, Tatsuro, Almeida-Santos, Teresa, Nelen, Willianne, Jayasinghe, Yasmin, Sugishita, Yodo, and Woodruff, Teresa K.

Abstract

PurposeOncofertility focuses on providing fertility and endocrine-sparing options to patients who undergo life-preserving but gonadotoxic cancer treatment. The resources needed to meet patient demand often are fragmented along disciplinary lines. We quantify assets and gaps in oncofertility care on a global scale.MethodsSurvey-based questionnaires were provided to 191 members of the Oncofertility Consortium Global Partners Network, a National Institutes of Health-funded organization. Responses were analyzed to measure trends and regional subtleties about patient oncofertility experiences and to analyze barriers to care at sites that provide oncofertility services.ResultsSixty-three responses were received (response rate, 25%), and 40 were analyzed from oncofertility centers in 28 countries. Thirty of 40 survey results (75%) showed that formal referral processes and psychological care are provided to patients at the majority of sites. Fourteen of 23 respondents (61%) stated that some fertility preservation services are not offered because of cultural and legal barriers. The growth of oncofertility and its capacity to improve the lives of cancer survivors around the globe relies on concentrated efforts to increase awareness, promote collaboration, share best practices, and advocate for research funding.ConclusionThis survey reveals global and regional successes and challenges and provides insight into what is needed to advance the field and make the discussion of fertility preservation and endocrine health a standard component of the cancer treatment plan. As the field of oncofertility continues to develop around the globe, regular assessment of both international and regional barriers to quality care must continue to guide process improvements. (c) 2020 by American Society of Clinical Oncology

Published
2020

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