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1. Improving Understanding of Participation and Attrition Phenomena in European Cohort Studies: Protocol for a Multi-Situated Qualitative Study

Author

Marques, Sandra C S, Doetsch, Julia, Brødsgaard, Anne, Cuttini, Marina, Draper, Elizabeth S, Kajantie, Eero, Lebeer, Jo, van der Pal, Sylvia, Pedersen, Pernille, and Barros, Henrique

Subjects
Medicine, Computer applications to medicine. Medical informatics, R858-859.7
Abstract

BackgroundCohort studies represent a strong methodology for increasing one’s understanding of human life-course development and etiological mechanisms. Retention of participants, especially during long follow-up periods, is, however, a major challenge. A better understanding of the motives for participation and attrition in cohort studies in diverse sociogeographic and cultural settings is needed, as this information is most useful in developing effective retention strategies. ObjectiveThis study aims to improve our understanding of participation and attrition phenomena in a European cohort study of very preterm/very-low-birth-weight (VPT/VLBW) infants from various sociogeographic and cultural settings to better understand variability and ultimately contribute to developing novel and more “in-context” strategies to improve retention. MethodsThis study uses a triangulation of multisituated methods to collect data on various cohorts in the Research on European Children and Adults Born Preterm (RECAP) network, which include focus group discussions, individual semidriven interviews, and a collaborative, reflexive visual methodology (participant-generated VideoStories) with relevant key actors involved with these cohort studies such as adult participants, parents (caregivers), cohort staff, health care professionals, and academic researchers. The methodological strategy aims to provide a shared flexible framework of various qualitatively driven methods to collect data on VPT/VLBW adult and child cohorts, from which research partners may choose and combine those most pertinent to apply in their own specific contexts. Data from all sources and sites will be submitted to a triangulation of phenomenological thematic analysis with discourse analysis. ResultsAs of January 2020, in this study, we enrolled 92 participants variously involved with child and adult RECAP partnering cohorts from six countries. Multisite enrollment and data collection are expected to be completed in all seven study settings by June 2020. Findings will be reported in future publications. ConclusionsQualitative research methods are a useful complement for enriching and illuminating quantitative results. We expect that opting for a multisituated study approach addressing the interplay of the lived experience of individuals in both researcher and researched stances of particular cohort study settings will contribute to filling some gaps in the understanding of participation variability and effectiveness of different implemented strategies in context. Moreover, health research subjects have traditionally been positioned as passive objects of study rather than active participants, even though they have the greatest stake in improving health care policies and practices. Including collaborative methods allows us to counteract the “top-down” model by handing over some research control to the very people who are providing the data on which research findings will be based while also acknowledging the value of their involvement. International Registered Report Identifier (IRRID)DERR1-10.2196/14997

Published
2020
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5. Association of antenatal or neonatal SARS-COV-2 exposure with developmental and respiratory outcomes, and healthcare usage in early childhood: a national prospective cohort study

Author

Mactier, Helen, Draper, Elizabeth, Sharkey, Don, Doherty, Cora, Shorthose, Karen, Venkata, Nagendra, Cooper, Claire, Lee, Claire, Coke, Louise, Cane, Clare, Diaba, Cynthia, Narayanan, Sankara, Ramadan, Ghada, Capell, Alys, Jolley, Dan, Pullen, Jennifer, Wane, Rachel, Ingram, Liz, Garr, Rosaline, Millington, Amy, El-Bokle, Manal, Brock, Paula, Hammond, Bev, Milner, Matthew, Ojha, Shalini, Miller, Sarah, Grigsby, Stephanie, Blunden, Susara, Shephard, Ruth, Williams, Emma, Thyagarajan, Balamurugan, Crowley, Phillippa, Le Doare, Kirsty, Marler, Emily, Sinha, Ajay, Plaatjas, Nicolene, Smith, Dominic, Baker, Jennifer, Ali, Muhammad, Smith, Jennifer, Ranganne, Ranganath, Stanbury, Kate, Scorrer, Tim, LePoidevin, Alison, Westcar, Sharon, Maquinana, Myrna, O'Brien, Clare, Willson, Seren, Simkin, Jessica, Carmichael, Amy, Salter, Laura, Sharma, Bhavna, Dixon, Caroline, Brown, Janet, Jones, Amaryl, Townsend, Kate, Tanton, Emma, Fleming, Paul, Stacey, Fiona, Hutchinson, Richard, Plummer, Laura, Swaminathan, Louise, Bhatia, Charu, Dubber, Rebecca, Dixon, Jenny, Phillipson, Angela, Groombridge, Julie, Benn, Tracey, Johnson, Kathryn, Uryn, Lindsay, Salgia, Sanjay, Frankland, Lisa, Salmon, Caroline, Green, Asharee, Lek, Elizabeth, Rodal-Prieto, Nerea, Grindey, Julie, O'Connor, Grainne, Tebbal, Afaf, Cullinan, Sophie, Sugden, Paula, Piaggio, Umberto, Farmer, Sarah, Tudor, Daisy, Das, Ambalika, Nicholls, Donna, Lea, Charlotte, Bowen, Ruth, Mann, Rebecca, Turner, Georgina, Piyasena, Chinthika, Robinson, Joanna, Neeraj, Jain, Godwin, Gillian, Oduro, Bridget, Fernandez, Ramon, Gurusamy, Kalyana, Pilling, Liz, Mupanemunda, Richard, Didier, Sarah, Ellis, Jessica, James, Anitha, Bohin, Sandie, Bishop, Linda, Satodia, Prakash, Wild, Laura, Banerjee, Jayanta, Elliott, Sian, Forster, Amanda, Demitry, Albert, Kortsalioudaki, Christina, Woodhead, Amy, Barrow, Heather, Kotsia, Efygenia, Barnett, Madeleine, Thompson, Katharine, Jackson, Rebecca, Cornish, Rosie, Daskalopoulou, Zoe, Gale, Chris, Hurd, Madeleine, Johnson, Samantha, Knight, Marian, Kurinczuk, Jennifer J., Woodward, Kathryn, and Chakkarapani, Ela

Published
2024
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9. Milia en plaque manifesting as a post-herpetic isotopic response

Author

Draper, Elizabeth, Rollins, Benjamin, Matlock, Stephen, Wong, Henry, and Shalin, Sara

Subjects
herpes simplex, isotopic response, milia en plaque, virus, Wolf post-herpetic
Abstract

Isotopic response in dermatology refers to the development of a new primary dermatosis at the site of a previous reaction such as cutaneous herpes virus infection. We report a 63-year-old woman with a recent history of a bullous drug eruption treated with prednisone who presented with herpetic dermatitis and subsequent milia en plaque. This unique case represents a novel presentation of milia en plaque manifesting as a complication from post-herpetic isotopic response and highlights the wide array of isotopic responses that can occur following a cutaneous herpes simplex infection.

Published
2022

10. Conservative versus liberal oxygenation targets in critically ill children (Oxy-PICU): a UK multicentre, open, parallel-group, randomised clinical trial

Author

Thomas, Carla, Jirasek, Petr, Jones, Dawn, Dore, Rachael, O'Malley, Laura, Kanthimatinathan, Hari Krishnan, Winmill, Helen, Ashton, Lydia, Owen, Samantha, Davis, Peter, Marley-Munn, Helen, Moody, Francesca, Haskins, Ellen, Dodge, Laura, Jones, Andrew, Thomas, Joan, Murphy, Gail, Lillie, Jon, Williams, Aleks, Wellman, Paul, Aougah, Esther, Payne, Caroline, Belfield, Holly, Akpan, Joshua, Benkenstein, Sarah, Beech, Emily, Manjra, Ilham I, Hulme, Sara-Louise, Sarfatti, Avishay, Beadon, Kirsten, Harmer, Rebecca, Deep, Akash, Balnta, Christina, D'Silva, Pamela, Hylton, Asha, Saikia, Bedangshu, Nichani, Sanjiv, Patel, Rekha, Davies, Patrick, Anderson, Laura, Lawless, Laura, Dewar, Alex, Reynolds, David, Levin, Richard, Bowman, Fiona, Pujazon, Andrea-Rosa, Davidson, Mark, Szulik, Katarzyna, Bunni, Lara, Jennings, Claire, Marshall, Rebecca, Griksaitis, Michael, Thomas, Philippa, Postlethwaite, Catherine, Cook, Amber, Dwarakanathan, Buvana, Gomes de Queiroz, Joana, Ros Foguet, Montserrat, Ali, Hawakiin, Bycroft, Thomas, Darnell, Sarah, Mustafa, Sobia, Bridges, Katy, Mulgrew, Kirsty, Heenan, Nadine, Bell, Lynne, Davies, Andrew, Peters, Mark J, Gould, Doug W, Ray, Samiran, Thomas, Karen, Chang, Irene, Orzol, Marzena, O'Neill, Lauran, Agbeko, Rachel, Au, Carly, Draper, Elizabeth, Elliot-Major, Lee, Giallongo, Elisa, Jones, Gareth A L, Lampro, Lamprini, Pappachan, Jon, Peters, Sam, Ramnarayan, Padmanabhan, Sadique, Zia, Rowan, Kathryn M, Harrison, David A, and Mouncey, Paul R

Published
2024
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12. Small babies, big risks: global estimates of prevalence and mortality for vulnerable newborns to accelerate change and improve counting

Author

Ashorn, Per, Black, Robert E, Lawn, Joy E, Ashorn, Ulla, Klein, Nigel, Hofmeyr, G Justus, Temmerman, Marleen, Askari, Sufia, Ohuma, Eric O, Moller, Ann-Beth, Bradley, Ellen, Chakwera, Samuel, Hussain-Alkhateeb, Laith, Lewin, Alexandra, Okwaraji, Yemisrach B, Retno Mahanani, Wahyu, White Johansson, Emily, Lavin, Tina, Estevez Fernandez, Diana, Gatica Domínguez, Giovanna, de Costa, Ayesha, Cresswell, Jenny A, Krasevec, Julia, Blencowe, Hannah, Requejo, Jennifer, Moran, Allisyn C, Pingray, Veronica, Cormick, Gabriela, Gibbons, Luz, Belizan, José, Guevel, Carlos, Warrilow, Kara, Gordon, Adrienne, Flenady, Vicki, Sexton, Jessica, Lawford, Harriet, Paixao, Enny S., Rocha Falcão, Ila, Lima Barreto, Mauricio, Lisonkova, Sarka, Wen, Qi, Mardones, Francisco, Caulier-Cisterna, Raúl, Acuña, José, Velebil, Petr, Jirova, Jitka, Horváth-Puhó, Erzsébet, Sørensen, Henrik Toft, Sakkeus, Luule, Abuladze, Liili, Gissler, Mika, Moradi-Lakeh, Maziar, Heidarzadeh, Mohammad, Khalili, Narjes, A. Yunis, Khalid, Al Bizri, Ayah, Nakad, Pascale, Devi Karalasingam, Shamala, R Jeganathan, J Ravichandran, binti Baharum, Nurakman, Suárez-Idueta, Lorena, Barranco Flores, Arturo, Gonzalez Roldan, Jesus F, Lopez Alvarez, Sonia, van Dijk, Aimée E., Broeders, Lisa, Huicho, Luis, Quezada Pinedo, Hugo G, Cajachagua-Torres, Kim N, Carrillo-Larco, Rodrigo M, Tarazona Meza, Carla Estefania, Guzman-Vilca, Wilmer Cristobal, Olukade, Tawa O., Ali, Hamdy A., Alyafei, Fawziya, AlQubaisi, Mai, Alturk, Mohamad R, Kim, Ho Yeon, Cho, Geum Joon, Razaz, Neda, Söderling, Jonas, Smith, Lucy K, Kurinczuk, Jennifer J, Matthews, Ruth J, Manktelow, Bradley N, Draper, Elizabeth S, Fenton, Alan C, Lowry, Estelle, Rowland, Neil, Wood, Rachael, Monteath, Kirsten, Pereyra, Isabel, Pravia, Gabriella, Davis, Celina, Clarke, Samantha, Wu, Lee S.F., Yoshida, Sachiyo, Bahl, Rajiv, Grandi, Carlos, Labrique, Alain B, Rashid, Mabhubur, Ahmed, Salahuddin, Roy, Arunangshu D., Haque, Rezwanul, Shaikh, Saijuddin, Baqui, Abdullah H., Saha, Samir K., Khanam, Rasheda, Rahman, Sayedur, Shapiro, Roger, Zash, Rebecca, Silveira, Mariângela F., Buffarini, Romina, Kolsteren, Patrick, Lachat, Carl, Huybregts, Lieven, Roberfroid, Dominique, Zeng, Lingxia, Zhu, Zhonghai, He, Jianrong, Qui, Xiu, Gebreyesus, Seifu H., Tesfamariam, Kokeb, Bekele, Delayehu, Chan, Grace, Baye, Estifanos, Workneh, Firehiwot, Asante, Kwaku P., Boanmah-Kaali, Ellen, Adu-Afarwuah, Seth, Dewey, Kathryn G., Gyaase, Stephaney, Wylie, Blair J., Kirkwood, Betty R., Manu, Alexander, Thulasiraj, Ravilla D, Tielsch, James, Chowdhury, Ranadip, Taneja, Sunita, Babu, Giridhara R, Shriyan, Prafulla, Maleta, Kenneth, Mangani, Charles, Acevedo-Gallegos, Sandra, Rodriguez-Sibaja, Maria J., Khatry, Subarna K., LeClerq, Steven C., Mullany, Luke C., Jehan, Fyezah, Ilyas, Muhammad, Rogerson, Stephen J., Unger, Holger W., Ghosh, Rakesh, Musange, Sabine, Ramokolo, Vundli, Zembe-Mkabile, Wanga, Lazzerini, Marzia, Mohamed, Rishard, Wang, Dongqing, Fawzi, Wafaie W., Minja, Daniel T.R., Schmiegelow, Christentze, Masanja, Honorati, Smith, Emily, Lusingu, John P.A., Msemo, Omari A., Kabole, Fathma M., Slim, Salim N., Keentupthai, Paniya, Mongkolchati, Aroonsri, Kajubi, Richard, Kakuru, Abel, Waiswa, Peter, Walker, Dilys, Hamer, Davidson H., Semrau, Katherine E.A., Chaponda, Enesia B., Chico, R. Matthew, Banda, Bowen, Musokotwane, Kebby, Manasyan, Albert, Pry, Jake M., Chasekwa, Bernard, Humphrey, Jean, Shamim, Abu Ahmed, Christian, Parul, Ali, Hasmot, Klemm, Rolf D.W., Massie, Alan B., Mitra, Maithili, Mehra, Sucheta, Schulze, Kerry J., Shamim, Abu Amed, Sommer, Alfred, Ullah, Barkat, West, Keith P., Jr, Begum, Nazma, Chowdhury, Nabidul Haque, Islam, Shafiqul, Mitra, Dipak Kumar, Quaiyum, Abdul, Diseko, Modiegi, Makhema, Joseph, Cheng, Yue, Guo, Yixin, Yuan, Shanshan, Roro, Meselech, Shikur, Bilal, Goddard, Frederick, Haneuse, Sebastien, Hunegnaw, Bezawit, Berhane, Yemane, Worku, Alemayehu, Kaali, Seyram, Arnold, Charles D., Jack, Darby, Amenga-Etego, Seeba, Hurt, Lisa, Shannon, Caitlin, Soremekun, Seyi, Bhandari, Nita, Martines, Jose, Mazumder, Sarmila, Ana, Yamuna, R, Deepa, Hallamaa, Lotta, Pyykkö, Juha, Lumbreras-Marquez, Mario I., Mendoza-Carrera, Claudia E., Hussain, Atiya, Karim, Muhammad, Kausar, Farzana, Mehmood, Usma, Nadeem, Naila, Nisar, Muhammad Imran, Sajid, Muhammad, Mueller, Ivo, Ome-Kaius, Maria, Butrick, Elizabeth, Sayinzoga, Felix, Mariani, Ilaria, Urassa, Willy, Theander, Thor, Deloron, Phillippe, Nielsen, Birgitte Bruun, Muhihi, Alfa, Noor, Ramadhani Abdallah, Bygbjerg, Ib, Moeller, Sofie Lykke, Aftab, Fahad, Ali, Said M., Dhingra, Pratibha, Dhingra, Usha, Dutta, Arup, Sazawal, Sunil, Suleiman, Atifa, Mohammed, Mohammed, Deb, Saikat, Kamya, Moses R., Nakalembe, Miriam, Mulowooz, Jude, Santos, Nicole, Biemba, Godfrey, Herlihy, Julie M., Mbewe, Reuben K., Mweena, Fern, Yeboah-Antwi, Kojo, Bruce, Jane, Chandramohan, Daniel, Prendergast, Andrew, Idueta, Lorena Suárez, Hazel, Elizabeth, Erchick, Daniel J, Yargawa, Judith, Katz, Joanne, Lee, Anne C C, Diaz, Mike, Salasibew, Mihretab, Hayashi, Chika, and Borghi, Elaine

Published
2023
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14. Emergency Inter-Hospital Transfer of Children to PICUs in the United Kingdom: Qualitative Exploration of Parents’ Experiences of Retrieval Teams*

Author

Evans, Ruth E. C., Barber, Vicky, Ramnarayan, Padmanabhan, Davies, Patrick, Wray, Jo, Barber, Victoria, Darnell, Robert, Draper, Elizabeth S., Drikite, Laura, Entwistle, Matthew, Hudson, Emma, Kung, Enoch, Marriage, Will, Morris, Stephen, Mouncey, Paul, Pagel, Christina, Pearce, Anna, Polke, Eithne, Rajah, Fatemah, and Seaton, Sarah E.

Published
2023
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16. Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people: A systematic review and individual patient meta-analysis

Author

Harwood, Rachel, Yan, Helen, Talawila Da Camara, Nishanthi, Smith, Clare, Ward, Joseph, Tudur-Smith, Catrin, Linney, Michael, Clark, Matthew, Whittaker, Elizabeth, Saatci, Defne, Davis, Peter J., Luyt, Karen, Draper, Elizabeth S., Kenny, Simon E, Fraser, Lorna K., and Viner, Russell M.

Published
2022
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17. Recommendations for data collection in cohort studies of preterm born individuals – The RECAP Preterm Core Dataset.

Author

Powell, Charlotte, Bamber, Deborah, Collins, Helen E., Draper, Elizabeth S., Manktelow, Bradley, Kajante, Eero, Cuttini, Marina, Wolke, Dieter, Maier, Rolf F., Zeitlin, Jennifer, and Johnson, Samantha

Subjects
PRENATAL care, NEONATOLOGY, QUALITY of life, LIKERT scale, COHORT analysis, PREMATURE labor
Abstract

Background: Preterm birth (before 37 completed weeks of gestation) is associated with an increased risk of adverse health and developmental outcomes relative to birth at term. Existing guidelines for data collection in cohort studies of individuals born preterm are either limited in scope, have not been developed using formal consensus methodology, or did not involve a range of stakeholders in their development. Recommendations meeting these criteria would facilitate data pooling and harmonisation across studies. Objectives: To develop a Core Dataset for use in longitudinal cohort studies of individuals born preterm. Methods: This work was carried out as part of the RECAP Preterm project. A systematic review of variables included in existing core outcome sets was combined with a scoping exercise conducted with experts on preterm birth. The results were used to generate a draft core dataset. A modified Delphi process was implemented using two stages with three rounds each. Three stakeholder groups participated: RECAP Preterm project partners; external experts in the field; people with lived experience of preterm birth. The Delphi used a 9‐point Likert scale. Higher values indicated greater importance for inclusion. Participants also suggested additional variables they considered important for inclusion which were voted on in later rounds. Results: An initial list of 140 data items was generated. Ninety‐six participants across 22 countries participated in the Delphi, of which 29% were individuals with lived experience of preterm birth. Consensus was reached on 160 data items covering Antenatal and Birth Information, Neonatal Care, Mortality, Administrative Information, Organisational Level Information, Socio‐economic and Demographic information, Physical Health, Education and Learning, Neurodevelopmental Outcomes, Social, Lifestyle and Leisure, Healthcare Utilisation and Quality of Life. Conclusions: This core dataset includes 160 data items covering antenatal care through outcomes in adulthood. Its use will guide data collection in new studies and facilitate pooling and harmonisation of existing data internationally. [ABSTRACT FROM AUTHOR]

Published
2024
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20. Variations in Neonatal Length of Stay of Babies Born Extremely Preterm: An International Comparison Between iNeo Networks

Author

Lui, Kei, Marshall, Peter, Schmidt, Peter, Dhawan, Anjali, Korostenski, Larissa, Travadi, Javeed Travadi, Sharp, Mary, Gill, Andy, Pillow, Jane, Stack, Jacqueline, Birch, Pita, Nothdurft, Karen, Cooke, Lucy, Casalaz, Dan, Holberton, Jim, Stewart, Alice, Downe, Lyn, Stewart, Michael, Berry, Andrew, Hunt, Rod, Morris, Peter, Paoli, Tony De, Bolisetty, Srinivas, Paradisis, Mary, Greenhalgh, Mark, Koorts, Pieter, Kuschel, Carl, Jacobs, Sue, Doyle, Lex, Craven, John, Numa, Andrew, Carlisle, Hazel, Badawi, Nadia, Popat, Himanshu, Koh, Guan, Davis, Jonathan, Luig, Melissa, Headley, Bevan, Andersen, Chad, Ng, Linda, Chambers, Georgina, Austin, Nicola, Lynn, Adrienne, Darlow, Brian, Edmonds, Liza, Mildenhall, Lindsay, Buksh, Mariam, Battin, Malcolm, Boom, Jutta van den, Richardson, Vaughan, Barker, David, Hammond, Barbara, Rajadurai, Victor Samuel, Lam, Simon, Fung, Genevieve, Shah, Prakesh S., Beltempo, Marc, Kanungo, Jaideep, Ting, Joseph, Cieslak, Zenon, Sherlock, Rebecca, Mehrem, Ayman Abou, Toye, Jennifer, Aziz, Khalid, Fajardo, Carlos, Bodani, Jaya, Strueby, Lannae, Seshia, Mary, Louis, Deepak, Alvaro, Ruben, Mukerji, Amit, Da Silva, Orlando, Adie, Mohammad, Lee, Kyong-Soon, Ng, Eugene, Lemyre, Brigitte, Daboval, Thierry, Khurshid, Faiza, Pelausa, Ermelinda, Barrington, Keith, Lapoint, Anie, Ethier, Guillaume, Drolet, Christine, Piedboeuf, Bruno, Claveau, Martine, St-Hilaire, Marie, Bertelle, Valerie, Masse, Edith, Canning, Roderick, Makary, Hala, Ojah, Cecil, Monterrosa, Luis, Emberley, Julie, Afifi, Jehier, Kajetanowicz, Andrzej, Lee, Shoo K., Metsäranta, Marjo, Lehtonen, Liisa, Tammela, Outi, Sankilampi, Ulla, Saarela, Timo, Morag, Iris, Zangen, Shmuel, Smolkin, Tatyana, Mimouni, Francis, Bader, David, Rothschild, Avi, Strauss, Zipora, Felszer, Clari, Omari, Hussam, Tov-Friedman, Smadar Even, Bar-Oz, Benjamin, Feldman, Michael, Saad, Nizar, Flidel-Rimon, Orna, Weisbrod, Meir, Lubin, Daniel, Litmanovitz, Ita, Kugelman, Amir, Shinwell, Eric, Klinger, Gil, Nijim, Yousif, Bin-Nun, Alona, Golan, Agneta, Mandel, Dror, Fleisher-Sheffer, Vered, Oron, Anat, Bakhrakh, Lev, Hattori, Satoshi, Shirai, Masaru, Ishioka, Toru, Mori, Toshihiko, Amizuka, Takasuke, Huchimukai, Toru, Yoshida, Hiroshi, Sasaki, Ayako, Shimizu, Junichi, Nakamura, Toshihiko, Maruyama, Mami, Matsumoto, Hiroshi, Hosokawa, Shinichi, Taki, Atsuko, Nakagawa, Machiko, Ko, Kyone, Uozumi, Azusa, Nakata, Setsuko, Shimazaki, Akira, Yoda, Tatsuya, Numata, Osamu, Imamura, Hiroaki, Kobayashi, Azusa, Tokuriki, Shuko, Uchida, Yasushi, Arai, Takahiro, Ito, Mitsuhiro, Ieda, Kuniko, Ono, Toshiyuki, Hayashi, Masashi, Maki, Kanemasa, Yamakawa, MieToru, Kawai, Masahiko, Fujii, Noriko, Shiomi, Kozue, Nozaki, Koji, Wada, Hiroshi, Kim, Taho, Tokunaga, Yasuyuki, Takatera, Akihiro, Oshima, Toshio, Sumida, Hiroshi, Michinomae, Yae, Kusumoto, Yoshio, Yoshimoto, Seiji, Morisawa, Takeshi, Ohashi, Tamaki, Takahashi, Yukihiro, Sugimoto, Moriharu, Ono, Noriaki, Miyagawa, Shinichiro, Saijo, Takahiko, Yamagami, Takashi, Koyano, Kosuke, Kobayashi, Shoko, Kanda, Takeshi, Sakemi, Yoshihiro, Aoki, Mikio, Iida, Koichi, Goshi, Mitsushi, Maruyama, Yuko, Avila-Alvarez, Alejandro, Fernandez-Trisac, José Luis, Pico, M<ce:sup loc='post">a</ce:sup> Luz Couce, Fernández Seara, María José, Gutiérrez, Andrés Martínez, Vizcaíno, Carolina, Iglesias, Miriam Salvador, Zaplana, Honorio Sánchez, Colomer, Belén Fernández, García López, José Enrique, Mozo, Rafael García, González Martínez, M. Teresa, Sebastián, M<ce:sup loc='post">a</ce:sup> Dolores Muro, Carbonell, Marta Balart, Barnusell, Joan Badia, Puiggròs, Mònica Domingo, Aloy, Josep Figueras, Mussons, Francesc Botet, Sanz, Israel Anquela, Galiana, Gemma Ginovart, Coroleu, W., Iriondo, Martin, Vilella, Laura Castells, Porta, Roser, Demestre, Xavier, Nadal, Silvia Martínez, de Frutos Martínez, Cristina, López Cuesta, María Jesús, Mora, Dolores Esquivel, Tardío, Joaquín Ortiz, Benavente, Isabel, Alonso, Almudena, Olmos, Ramón Aguilera, García Cabezas, Miguel A., Jiménez, M<ce:sup loc='post">a</ce:sup> Dolores Martínez, Caballero, M<ce:sup loc='post">a</ce:sup> Pilar Jaraba, Díaz, M<ce:sup loc='post">a</ce:sup> Dolores Ordoñez, Fagundo, Alberto Trujillo, Canals, Lluis Mayol, García-Muñoz Rodrigo, Fermín, Martí, Lourdes Urquía, Moreno Galdo, María Fernanda, Suazo, José Antonio Hurtado, López, Eduardo Narbona, Fernández, José Uberos, Cortajarena Altuna, Miguel A., Zuriarrain, Oihana Muga, Navarro, David Mora, Domínguez, María Teresa, Ruiz del Prado, M<ce:sup loc='post">a</ce:sup> Yolanda, Díez, Inés Esteban, Palau Benavides, María Teresa, Lapeña, Santiago, Prada, Teresa, Mir, Eduard Soler, Sánchez, Araceli Corredera, Vega, Enrique Criado, Prado, Náyade del, Fernández, Cristina, Vilaplana, Lucía Cabanillas, Pérez, Irene Cuadrado, Gómez, Luisa López, Comeche, Laura Domingo, Martín, Isabel Llana, Armengod, Carmen González, Labián, Carmen Muñoz, Muñoz, M<ce:sup loc='post">a</ce:sup> José Santos, Bravo, Dorotea Blanco, Pérez, Vicente, Fernández, M<ce:sup loc='post">a</ce:sup> Dolores Elorza, González, Celia Díaz, Segura, Susana Ares, Azorín, Manuela López, Jimenez, Ana Belén, Sánchez-Tamayo, Tomás, Moreno, Elías Tapia, González, María, Sánchez Martínez, José Enrique, Lloreda García, José María, Orayen, Concepción Goñi, González, Javier Vilas, Albo, María Suárez, Colmenero, Eva González, Gutiérrez González, Elena Pilar, Vacas del Arco, Beatriz, Fernández, Josefina Márquez, Gordillo, Laura Acosta, Asensio, Mercedes Granero, Díaz, Carmen Macías, Albújar, Mar, Jorge, Pedro Fuster, Romero, Sabina, Falero, Mónica Rivero, Escobar Izquierdo, Ana Belén, Capell, Javier Estañ, Macián, M<ce:sup loc='post">a</ce:sup> Isabel Izquierdo, Vicente, M<ce:sup loc='post">a</ce:sup> Mar Montejo, Caballero, Raquel Izquierdo, Martínez, M<ce:sup loc='post">a</ce:sup> Mercedes, Euba, Aintzane, Serna, Amaya Rodríguez, López de Heredia Goya, Juan María, Legorburu, Alberto Pérez, Amorós, Ana Gutiérrez, Marugán Isabel, Víctor Manuel, González, Natalio Hernández, Gracia, Segundo Rite, Faci, M<ce:sup loc='post">a</ce:sup> Purificación Ventura, Villagrasa, M<ce:sup loc='post">a</ce:sup> Pilar Samper, Kofron, Jiri, Brodd, Katarina Strand, Odlind, Andreas, Alberg, Lars, Arwehed, Sofia, Hafström, Ola, Kasemo, Anna, Nederman, Karin, Åhman, Lars, Ingemarsson, Fredrik, Petersson, Henrik, Thurn, Pernilla, Albinsson, Eva, Selander, Bo, Abrahamsson, Thomas, Heimdahl, Ingela, Sveinsdottir, Kristbjorg, Wejryd, Erik, Hedlund, Anna, Söderberg, Maria Katarina, Navér, Lars, Brune, Thomas, Bäckström, Jens, Robinson, Johan, Farooqi, Aijaz, Normann, Erik, Fredriksson, Magnus, Palm, Anders, Rosenqvist, Urban, Walde, Bengt, Hagman, Cecilia, Ohlin, Andreas, Florell, Rein, Smedsaas-Löfvenberg, Agneta, Adams, Mark, Meyer, Philipp, Kusche, Rachel, Schulzke, Sven, Nelle, Mathias, Wagner, Bendicht, Riedel, Thomas, Kaczala, Grégoire, Pfister, Riccardo E., Tolsa, Jean-François, Roth, Matthias, Stocker, Martin, Laubscher, Bernhard, Malzacher, Andreas, Micallef, John P., Hegi, Lukas, Bassler, Dirk, Arlettaz, Romaine, Bernet, Vera, Dani, Carlo, Fiorini, Patrizio, Ghirri, Paolo, Tomasini, Barbara, Mittal, Anita, Kefas, Jonathan, Kamalanathan, Anand, Grosdenier, Michael, Dewhurst, Christopher, Bontea, Andreea, Webb, Delyth, Garr, Ross, Hassan, Ahmed, Ambadkar, Priyadarshan, Dyke, Mark, McDevitt, Katharine, Rewitzky, Glynis, D'Amore, Angela, Kamath, P., Settle, Paul, Maddock, Natasha, Edi-Osagie, Ngozi, Zipitis, Christos, Heal, Carrie, Birch, Jacqeline, Hasib, Abdul, Soe, Aung, Abdul-Malik, Bushra, Kisat, Hamudi, Vasu, Vimal, Sivashankar, Savi, Gupta, Richa, Rawlingson, Chris, Wickham, Tim, Theron, Marice, Kendall, Giles, Gupta, Aashish, Aladangady, Narendra, Ali, Imdad, Jain, Neeraj, Mannan, Khalid, Murthy, Vadivelam, Sullivan, Caroline, Chuang, Shu-Ling, Bate, Tristan, Tyszcuzk, Lidia, Lee, Geraint, Obi, Ozioma, Chang, John, Pai, Vinay, Huddy, Charlotte, Yasin, Salim, Nicholl, Richard, Pandey, Poornima, Cusack, Jonathan, Kairamkonda, Venkatesh, Muogbo, Dominic, Harry, Liza, Surana, Pinki, Broggio, Penny, Pillay, Tilly, Deshpande, Sanjeev, Mahadevan, Moore, Alison, Bastani, Porus, Garbash, Mehdi, Lal, Mithilesh, Abu-Harb, Majd, Allwood, Alex, Selter, Michael, Munyard, Paul, Bartle, David, Paul, Siba, Whincup, Graham, Rekha, Sanghavi, Amess, Philip, Obi, Ben, Reynolds, Peter, Misra, Indranil, De Halpert, Peter, Salgia, Sanjay, Sanghavi, Rekha, Paul, Nicola, Deketelaere, Abby, Khashu, Minesh, Johnson, Mark, Groves, Charlotte, Baird, Jim, Brennan, Nick, Vamvakiti, Katia, McIntyre, John, Holman, Jennifer, Jones, Stephen, Pike, Alison, Cairns, Pamela, Eaton, Megan, Schwarz, Karin, Gibson, David, Miall, Lawrence, Krishnamurthy, Dr, Narayanan, Sankara, Seaton, Sarah E., Draper, Elizabeth S., Kusuda, Satoshi, Håkansson, Stellan, Helenius, Kjell, Reichman, Brian, Vento, Maximo, Darlow, Brian A., Rusconi, Franca, Isayama, Tetsuya, Norman, Mikael, Yang, Junmin, and Modi, Neena

Published
2021
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21. Variation in follow-up for children born very preterm in Europe

Author

Seppänen, Anna Veera, Barros, Henrique, Draper, Elizabeth S., Petrou, Stavros, Andronis, Lazaros, Kim, Sungwook, Maier, Rolf F., Pedersen, Pernille, Gadzinowski, Janusz, Pierrat, Véronique, Sarrechia, Iemke, Lebeer, Jo, Ǻdén, Ulrika, Toome, Liis, Thiele, Nicole, van Heijst, Arno, Cuttini, Marina, Zeitlin, Jennifer, Seppänen, Anna Veera, Barros, Henrique, Draper, Elizabeth S., Petrou, Stavros, Andronis, Lazaros, Kim, Sungwook, Maier, Rolf F., Pedersen, Pernille, Gadzinowski, Janusz, Pierrat, Véronique, Sarrechia, Iemke, Lebeer, Jo, Ǻdén, Ulrika, Toome, Liis, Thiele, Nicole, van Heijst, Arno, Cuttini, Marina, and Zeitlin, Jennifer

Abstract

Background: Children born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on policy approaches are sparse. Methods: We investigated the characteristics of follow-up policy and programmes in 11 European countries from 2011 to 2022 using healthcare informant questionnaires and the published/grey literature. We further explored how one aspect of follow-up, its recommended duration, may be reflected in the percent of parents reporting that their children are receiving follow-up services at 5 years of age in these countries using data from an area-based cohort of very preterm births in 2011/12 (N ¼ 3635). Results: Between 2011/12 and 22, the number of countries with follow-up policies or programmes increased from 6 to 11. The policies and programmes were heterogeneous in eligibility criteria, duration and content. In countries that recommended longer follow-up, parent-reported follow-up rates at 5 years of age were higher, especially among the highest risk children, born <28 weeks' gestation or with birthweight <1000 g: between 42.1% and 70.1%, vs. <20% in most countries without recommendations. Conclusions:Large variations exist in follow-up policies and programmes for children born very preterm in Europe; differences in recommended duration translate into cross-country disparities in reported follow-up at 5 years of age.

Published
2024

22. Protocol for a Randomized Multiple Center Trial of Conservative Versus Liberal Oxygenation Targets in Critically Ill Children (Oxy-PICU): Oxygen in Pediatric Intensive Care

Author

Chang, Irene, Thomas, Karen, OʼNeill Gutierrez, Lauran, Peters, Sam, Agbeko, Rachel, Au, Carly, Draper, Elizabeth, Jones, Gareth A. L., Major, Lee Elliot, Orzol, Marzena, Pappachan, John, Ramnarayan, Padmanabhan, Ray, Samiran, Sadique, Zia, Gould, Doug W., Harrison, David A., Rowan, Kathryn M., Mouncey, Paul R., and Peters, Mark J.

Published
2022
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24. Characteristics and outcomes of neonates hospitalised with SARS-CoV-2 infection in the UK by variant: a prospective national cohort study.

Author

Gale, Chris, Sharkey, Don, Fitzpatrick, Kathryn E., Mactier, Helen, Morelli, Alessandra, Nakahara, Mariko, Hurd, Madeleine, Placzek, Anna, Knight, Marian, Ladhani, Shamez N., Draper, Elizabeth S., Doherty, Cora, Quigley, Maria A., and Kurinczuk, Jennifer J.

Subjects
NEWBORN infants, MULTISYSTEM inflammatory syndrome in children, COHORT analysis
Published
2024
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26. Characteristics and outcomes of neonates hospitalised with SARS-CoV-2 infection in the UK by variant: a prospective national cohort study

Author

Gale, Chris, primary, Sharkey, Don, additional, Fitzpatrick, Kathryn E, additional, Mactier, Helen, additional, Morelli, Alessandra, additional, Nakahara, Mariko, additional, Hurd, Madeleine, additional, Placzek, Anna, additional, Knight, Marian, additional, Ladhani, Shamez N, additional, Draper, Elizabeth S, additional, Doherty, Cora, additional, Quigley, Maria A, additional, and Kurinczuk, Jennifer J, additional

Published
2023
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29. Spectrum of congenital anomalies among VACTERL cases: a EUROCAT population-based study

Author

van de Putte, Romy, van Rooij, Iris A. L. M., Marcelis, Carlo L. M., Guo, Michel, Brunner, Han G., Addor, Marie-Claude, Cavero-Carbonell, Clara, Dias, Carlos M., Draper, Elizabeth S., Etxebarriarteun, Larraitz, Gatt, Miriam, Haeusler, Martin, Khoshnood, Babak, Klungsoyr, Kari, Kurinczuk, Jenny J., Lanzoni, Monica, Latos-Bielenska, Anna, Luyt, Karen, O’Mahony, Mary T., Miller, Nicola, Mullaney, Carmel, Nelen, Vera, Neville, Amanda J., Perthus, Isabelle, Pierini, Anna, Randrianaivo, Hanitra, Rankin, Judith, Rissmann, Anke, Rouget, Florence, Schaub, Bruno, Tucker, David, Wellesley, Diana, Wiesel, Awi, Zymak-Zakutnia, Natalya, Loane, Maria, Barisic, Ingeborg, de Walle, Hermien E. K., Roeleveld, Nel, and Bergman, Jorieke E. H.

Published
2020
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30. Variation in follow-up for children born very preterm in Europe.

Author

Seppänen, Anna-Veera, Barros, Henrique, Draper, Elizabeth S, Petrou, Stavros, Andronis, Lazaros, Kim, Sungwook, Maier, Rolf F, Pedersen, Pernille, Gadzinowski, Janusz, Pierrat, Véronique, Sarrechia, Iemke, Lebeer, Jo, Ådén, Ulrika, Toome, Liis, Thiele, Nicole, Heijst, Arno van, Cuttini, Marina, Zeitlin, Jennifer, and Group, The SHIPS Research

Subjects
PATIENT aftercare, HEALTH policy, NEONATAL intensive care, HEALTH services accessibility, NEONATAL intensive care units, RISK assessment, CHILDREN'S health, RESEARCH funding, QUESTIONNAIRES, DESCRIPTIVE statistics, CHILD psychopathology, EARLY intervention (Education), HEALTH equity, DISCHARGE planning, PARENTS, EARLY diagnosis
Abstract

Background Children born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on policy approaches are sparse. Methods We investigated the characteristics of follow-up policy and programmes in 11 European countries from 2011 to 2022 using healthcare informant questionnaires and the published/grey literature. We further explored how one aspect of follow-up, its recommended duration, may be reflected in the percent of parents reporting that their children are receiving follow-up services at 5 years of age in these countries using data from an area-based cohort of very preterm births in 2011/12 (N  = 3635). Results Between 2011/12 and 22, the number of countries with follow-up policies or programmes increased from 6 to 11. The policies and programmes were heterogeneous in eligibility criteria, duration and content. In countries that recommended longer follow-up, parent-reported follow-up rates at 5 years of age were higher, especially among the highest risk children, born <28 weeks' gestation or with birthweight <1000 g: between 42.1% and 70.1%, vs. <20% in most countries without recommendations. Conclusions Large variations exist in follow-up policies and programmes for children born very preterm in Europe; differences in recommended duration translate into cross-country disparities in reported follow-up at 5 years of age. [ABSTRACT FROM AUTHOR]

Published
2024
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31. Prevalence of neural tube defects in England prior to the mandatory fortification of non- wholemeal wheat flour with folic acid: a population- based cohort study.

Author

Broughan, Jennifer M., Martin, Danielle, Higgins, Thomas, Swan, Gillian, Cullum, Adrienne, Kurinczuk, Jennifer J., Draper, Elizabeth S., Luyt, Karen, Wellesley, Diana G., Stevens, Sarah, Tedstone, Alison, and Rankin, Judith

Subjects
NEURAL tube defects, FOLIC acid, FLOUR, FORTIFICATION, SPINA bifida, COHORT analysis
Published
2024
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32. Prevalence of neural tube defects in England prior to the mandatory fortification of non-wholemeal wheat flour with folic acid: a population-based cohort study

Author

Broughan, Jennifer M, primary, Martin, Danielle, additional, Higgins, Thomas, additional, Swan, Gillian, additional, Cullum, Adrienne, additional, Kurinczuk, Jennifer J, additional, Draper, Elizabeth S, additional, Luyt, Karen, additional, Wellesley, Diana G, additional, Stevens, Sarah, additional, Tedstone, Alison, additional, and Rankin, Judith, additional

Published
2023
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33. Pediatric Hospitalizations and ICU Admissions Due to COVID-19 and Pediatric Inflammatory Multisystem Syndrome Temporally Associated With SARS-CoV-2 in England

Author

Ward, Joseph L., primary, Harwood, Rachel, additional, Kenny, Simon, additional, Cruz, Joana, additional, Clark, Matthew, additional, Davis, Peter J., additional, Draper, Elizabeth S., additional, Hargreaves, Dougal, additional, Ladhani, Shamez N., additional, Gent, Nick, additional, Williams, Hannah E., additional, Luyt, Karen, additional, Turner, Steve, additional, Whittaker, Elizabeth, additional, Bottle, Alex, additional, Fraser, Lorna K., additional, and Viner, Russell M., additional

Published
2023
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35. Epidemiology of septo-optic dysplasia with focus on prevalence and maternal age – A EUROCAT study

Author

Garne, Ester, Rissmann, Anke, Addor, Marie-Claude, Barisic, Ingeborg, Bergman, Jorieke, Braz, Paula, Cavero-Carbonell, Clara, Draper, Elizabeth S., Gatt, Miriam, Haeusler, Martin, Klungsoyr, Kari, Kurinczuk, Jennifer J., Lelong, Nathalie, Luyt, Karen, Lynch, Catherine, O'Mahony, Mary T., Mokoroa, Olatz, Nelen, Vera, Neville, Amanda J., Pierini, Anna, Randrianaivo, Hanitra, Rankin, Judith, Rouget, Florence, Schaub, Bruno, Tucker, David, Verellen-Dumoulin, Christine, Wellesley, Diana, Wiesel, Awi, Zymak-Zakutnia, Nataliia, Lanzoni, Monica, and Morris, Joan K.

Published
2018
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39. Small babies, big risks: global estimates of prevalence and mortality for vulnerable newborns to accelerate change and improve counting

Author

Lawn, Joy E, primary, Ohuma, Eric O, additional, Bradley, Ellen, additional, Idueta, Lorena Suárez, additional, Hazel, Elizabeth, additional, Okwaraji, Yemisrach B, additional, Erchick, Daniel J, additional, Yargawa, Judith, additional, Katz, Joanne, additional, Lee, Anne C C, additional, Diaz, Mike, additional, Salasibew, Mihretab, additional, Requejo, Jennifer, additional, Hayashi, Chika, additional, Moller, Ann-Beth, additional, Borghi, Elaine, additional, Black, Robert E, additional, Blencowe, Hannah, additional, Ashorn, Per, additional, Lawn, Joy E, additional, Ashorn, Ulla, additional, Klein, Nigel, additional, Hofmeyr, G Justus, additional, Temmerman, Marleen, additional, Askari, Sufia, additional, Chakwera, Samuel, additional, Hussain-Alkhateeb, Laith, additional, Lewin, Alexandra, additional, Retno Mahanani, Wahyu, additional, White Johansson, Emily, additional, Lavin, Tina, additional, Estevez Fernandez, Diana, additional, Gatica Domínguez, Giovanna, additional, de Costa, Ayesha, additional, Cresswell, Jenny A, additional, Krasevec, Julia, additional, Moran, Allisyn C, additional, Pingray, Veronica, additional, Cormick, Gabriela, additional, Gibbons, Luz, additional, Belizan, José, additional, Guevel, Carlos, additional, Warrilow, Kara, additional, Gordon, Adrienne, additional, Flenady, Vicki, additional, Sexton, Jessica, additional, Lawford, Harriet, additional, Paixao, Enny S., additional, Rocha Falcão, Ila, additional, Lima Barreto, Mauricio, additional, Lisonkova, Sarka, additional, Wen, Qi, additional, Mardones, Francisco, additional, Caulier-Cisterna, Raúl, additional, Acuña, José, additional, Velebil, Petr, additional, Jirova, Jitka, additional, Horváth-Puhó, Erzsébet, additional, Sørensen, Henrik Toft, additional, Sakkeus, Luule, additional, Abuladze, Liili, additional, Gissler, Mika, additional, Moradi-Lakeh, Maziar, additional, Heidarzadeh, Mohammad, additional, Khalili, Narjes, additional, A. Yunis, Khalid, additional, Al Bizri, Ayah, additional, Nakad, Pascale, additional, Devi Karalasingam, Shamala, additional, R Jeganathan, J Ravichandran, additional, binti Baharum, Nurakman, additional, Suárez-Idueta, Lorena, additional, Barranco Flores, Arturo, additional, Gonzalez Roldan, Jesus F, additional, Lopez Alvarez, Sonia, additional, van Dijk, Aimée E., additional, Broeders, Lisa, additional, Huicho, Luis, additional, Quezada Pinedo, Hugo G, additional, Cajachagua-Torres, Kim N, additional, Carrillo-Larco, Rodrigo M, additional, Tarazona Meza, Carla Estefania, additional, Guzman-Vilca, Wilmer Cristobal, additional, Olukade, Tawa O., additional, Ali, Hamdy A., additional, Alyafei, Fawziya, additional, AlQubaisi, Mai, additional, Alturk, Mohamad R, additional, Kim, Ho Yeon, additional, Cho, Geum Joon, additional, Razaz, Neda, additional, Söderling, Jonas, additional, Smith, Lucy K, additional, Kurinczuk, Jennifer J, additional, Matthews, Ruth J, additional, Manktelow, Bradley N, additional, Draper, Elizabeth S, additional, Fenton, Alan C, additional, Lowry, Estelle, additional, Rowland, Neil, additional, Wood, Rachael, additional, Monteath, Kirsten, additional, Pereyra, Isabel, additional, Pravia, Gabriella, additional, Davis, Celina, additional, Clarke, Samantha, additional, Wu, Lee S.F., additional, Yoshida, Sachiyo, additional, Bahl, Rajiv, additional, Grandi, Carlos, additional, Labrique, Alain B, additional, Rashid, Mabhubur, additional, Ahmed, Salahuddin, additional, Roy, Arunangshu D., additional, Haque, Rezwanul, additional, Shaikh, Saijuddin, additional, Baqui, Abdullah H., additional, Saha, Samir K., additional, Khanam, Rasheda, additional, Rahman, Sayedur, additional, Shapiro, Roger, additional, Zash, Rebecca, additional, Silveira, Mariângela F., additional, Buffarini, Romina, additional, Kolsteren, Patrick, additional, Lachat, Carl, additional, Huybregts, Lieven, additional, Roberfroid, Dominique, additional, Zeng, Lingxia, additional, Zhu, Zhonghai, additional, He, Jianrong, additional, Qui, Xiu, additional, Gebreyesus, Seifu H., additional, Tesfamariam, Kokeb, additional, Bekele, Delayehu, additional, Chan, Grace, additional, Baye, Estifanos, additional, Workneh, Firehiwot, additional, Asante, Kwaku P., additional, Boanmah-Kaali, Ellen, additional, Adu-Afarwuah, Seth, additional, Dewey, Kathryn G., additional, Gyaase, Stephaney, additional, Wylie, Blair J., additional, Kirkwood, Betty R., additional, Manu, Alexander, additional, Thulasiraj, Ravilla D, additional, Tielsch, James, additional, Chowdhury, Ranadip, additional, Taneja, Sunita, additional, Babu, Giridhara R, additional, Shriyan, Prafulla, additional, Maleta, Kenneth, additional, Mangani, Charles, additional, Acevedo-Gallegos, Sandra, additional, Rodriguez-Sibaja, Maria J., additional, Khatry, Subarna K., additional, LeClerq, Steven C., additional, Mullany, Luke C., additional, Jehan, Fyezah, additional, Ilyas, Muhammad, additional, Rogerson, Stephen J., additional, Unger, Holger W., additional, Ghosh, Rakesh, additional, Musange, Sabine, additional, Ramokolo, Vundli, additional, Zembe-Mkabile, Wanga, additional, Lazzerini, Marzia, additional, Mohamed, Rishard, additional, Wang, Dongqing, additional, Fawzi, Wafaie W., additional, Minja, Daniel T.R., additional, Schmiegelow, Christentze, additional, Masanja, Honorati, additional, Smith, Emily, additional, Lusingu, John P.A., additional, Msemo, Omari A., additional, Kabole, Fathma M., additional, Slim, Salim N., additional, Keentupthai, Paniya, additional, Mongkolchati, Aroonsri, additional, Kajubi, Richard, additional, Kakuru, Abel, additional, Waiswa, Peter, additional, Walker, Dilys, additional, Hamer, Davidson H., additional, Semrau, Katherine E.A., additional, Chaponda, Enesia B., additional, Chico, R. Matthew, additional, Banda, Bowen, additional, Musokotwane, Kebby, additional, Manasyan, Albert, additional, Pry, Jake M., additional, Chasekwa, Bernard, additional, Humphrey, Jean, additional, Shamim, Abu Ahmed, additional, Christian, Parul, additional, Ali, Hasmot, additional, Klemm, Rolf D.W., additional, Massie, Alan B., additional, Mitra, Maithili, additional, Mehra, Sucheta, additional, Schulze, Kerry J., additional, Shamim, Abu Amed, additional, Sommer, Alfred, additional, Ullah, Barkat, additional, West, Keith P., additional, Begum, Nazma, additional, Chowdhury, Nabidul Haque, additional, Islam, Shafiqul, additional, Mitra, Dipak Kumar, additional, Quaiyum, Abdul, additional, Diseko, Modiegi, additional, Makhema, Joseph, additional, Cheng, Yue, additional, Guo, Yixin, additional, Yuan, Shanshan, additional, Roro, Meselech, additional, Shikur, Bilal, additional, Goddard, Frederick, additional, Haneuse, Sebastien, additional, Hunegnaw, Bezawit, additional, Berhane, Yemane, additional, Worku, Alemayehu, additional, Kaali, Seyram, additional, Arnold, Charles D., additional, Jack, Darby, additional, Amenga-Etego, Seeba, additional, Hurt, Lisa, additional, Shannon, Caitlin, additional, Soremekun, Seyi, additional, Bhandari, Nita, additional, Martines, Jose, additional, Mazumder, Sarmila, additional, Ana, Yamuna, additional, R, Deepa, additional, Hallamaa, Lotta, additional, Pyykkö, Juha, additional, Lumbreras-Marquez, Mario I., additional, Mendoza-Carrera, Claudia E., additional, Hussain, Atiya, additional, Karim, Muhammad, additional, Kausar, Farzana, additional, Mehmood, Usma, additional, Nadeem, Naila, additional, Nisar, Muhammad Imran, additional, Sajid, Muhammad, additional, Mueller, Ivo, additional, Ome-Kaius, Maria, additional, Butrick, Elizabeth, additional, Sayinzoga, Felix, additional, Mariani, Ilaria, additional, Urassa, Willy, additional, Theander, Thor, additional, Deloron, Phillippe, additional, Nielsen, Birgitte Bruun, additional, Muhihi, Alfa, additional, Noor, Ramadhani Abdallah, additional, Bygbjerg, Ib, additional, Moeller, Sofie Lykke, additional, Aftab, Fahad, additional, Ali, Said M., additional, Dhingra, Pratibha, additional, Dhingra, Usha, additional, Dutta, Arup, additional, Sazawal, Sunil, additional, Suleiman, Atifa, additional, Mohammed, Mohammed, additional, Deb, Saikat, additional, Kamya, Moses R., additional, Nakalembe, Miriam, additional, Mulowooz, Jude, additional, Santos, Nicole, additional, Biemba, Godfrey, additional, Herlihy, Julie M., additional, Mbewe, Reuben K., additional, Mweena, Fern, additional, Yeboah-Antwi, Kojo, additional, Bruce, Jane, additional, Chandramohan, Daniel, additional, and Prendergast, Andrew, additional

Published
2023
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41. Impact on 30-day survival of time taken by a critical care transport team to reach the bedside of critically ill children

Author

Seaton, Sarah E., Ramnarayan, Padmanabhan, Pagel, Christina, Davies, Patrick, Draper, Elizabeth S., Barber, Victoria, and Darnell, Robert

Subjects
Pediatric intensive care, Health care industry
Abstract

Author(s): Sarah E. Seaton [sup.1], Padmanabhan Ramnarayan [sup.2], Christina Pagel [sup.3], Patrick Davies [sup.4], Elizabeth S. Draper [sup.1], Victoria Barber, Robert Darnell, Patrick Davies, Elizabeth S. Draper, Laura Drikite, Matthew [...]

Published
2020
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42. Classification of causes and associated conditions for stillbirths and neonatal deaths

Author

Flenady, Vicki, Wojcieszek, Aleena M., Ellwood, David, Leisher, Susannah Hopkins, Erwich, Jan Jaap H.M., Draper, Elizabeth S., McClure, Elizabeth M., Reinebrant, Hanna E., Oats, Jeremy, McCowan, Lesley, Kent, Alison L., Gardener, Glenn, Gordon, Adrienne, Tudehope, David, Siassakos, Dimitrios, Storey, Claire, Zuccollo, Jane, Dahlstrom, Jane E., Gold, Katherine J., Gordijn, Sanne, Pettersson, Karin, Masson, Vicki, Pattinson, Robert, Gardosi, Jason, Khong, T. Yee, Frøen, J Frederik, and Silver, Robert M.

Published
2017
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44. Understanding the co‐construction of safety in the paediatric intensive care unit: A meta‐ethnography of parents' experiences.

Author

Seaton, Sarah E., Manning, Joseph C., Draper, Elizabeth S., Davis, Peter J., and Mackintosh, Nicola

Subjects
INTENSIVE care units, PARENT attitudes, CINAHL database, PSYCHOLOGY information storage & retrieval systems, PSYCHOLOGY of parents, HEALTH facilities, SYSTEMATIC reviews, PEDIATRICS, ETHNOLOGY research, FAMILY-centered care, PARENTING, PSYCHOLOGY of caregivers, QUALITY assurance, RESEARCH funding, MEDLINE, PATIENT safety
Abstract

Background: Children experiencing critical illness or injury may require admission to a paediatric intensive care unit (PICU) to receive life‐sustaining or life‐saving treatment. Studies have explored the experience of parents with a child in PICU but tend to focus on subgroups of children or specific healthcare systems. Therefore, we aimed to undertake a meta‐ethnography to draw together the published research. Methods: A systematic search strategy was developed to identify qualitative studies, which had explored the experiences of parents with a critically ill child treated in a PICU. A meta‐ethnography was undertaken following the structured steps of identifying the topic; undertaking a systematic search; reading the research; determining how the studies relate and translate into each other; and synthesising and expressing the results. Results: We identified 2989 articles from our search and after a systematic series of exclusions, 15 papers remaining for inclusion. We explored the original parent voices (first order) and the interpretation of the study authors (second order) to identify three third‐order concepts (our interpretation of the findings), which related to technical, relational and temporal factors. These factors influenced parents' experiences, providing both barriers and facilitators to how parents and caregivers experienced the time their child was in the PICU. The dynamic and co‐constructed nature of safety provided an analytical overarching frame of reference. Conclusion: This synthesis demonstrates novel ways in which parents and caregivers can contribute to the vital role of ensuring a co‐created safe healthcare environment for their child when receiving life‐saving care within the PICU. [ABSTRACT FROM AUTHOR]

Published
2024
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46. Neonatal mortality risk for vulnerable newborn types in 15 countries using 125.5 million nationwide birth outcome records, 2000 to 2020

Author

Suárez-Idueta, Lorena, Blencowe, Hannah, Okwaraji, Yemisrach B., Yargawa, Judith, Bradley, Ellen, Gordon, Adrienne, Flenady, Vicki, Paixão, Enny S., Barreto, Maurício L., Lisonkova, Sarka, Wen, Qi, Velebil, Petr, Jírová, Jitka, Horváth-Puhó, Erzsebet, Sørensen, Henrik Toft, Sakkeus, Luule, Abuladze, Liili, Yunis, Khalid A., Al Bizri, Ayah, Barranco, Arturo, Broeders, Lisa, van Dijk, Aimée E., Alyafei, Fawziya, Olukade, Tawa O., Razaz, Neda, Söderling, Jonas, Smith, Lucy K., Draper, Elizabeth S., Lowry, Estelle, Rowland, Neil, Wood, Rachael, Monteath, Kirsten, Pereyra, Isabel, Pravia, Gabriella, Ohuma, Eric O., and Lawn, Joy E.

Abstract

Objective: To compare neonatal mortality associated with six novel vulnerable newborn types in 125.5 million livebirths across 15 countries, 2000 to 2020.Design: Population-based, multi-country study. Setting: National data systems in 15 middle and high-income countries.Methods: We used individual-level datasets identified for the Vulnerable Newborn Measurement Collaboration. We examined the contribution to neonatal mortality of six newborn types combining gestational age (preterm, PT vs term, T) and size-for-gestational age (small (SGA, 90th centile)) according to INTERGROWTH-21st newborn standards. Newborn babies with PT or SGA were defined as small and T+LGA was considered as large. We calculated risk ratios (RRs) and population attributable risks (PAR%) for the six newborn types. Main Outcome Measures Mortality of six newborn types Results Of 125.5 million livebirths analysed, risk ratios were highest amongst PT+SGA (median: 67.2, Interquartile Range, IQR, 45.6, 73.9), PT+AGA (median: 34.3, IQR, 23.9, 37.5), and PT+LGA (median: 28.3, IQR, 18.4, 32.3). At the population level, PT+AGA was the greatest contributor to newborn mortality (median PAR%: 53.7, IQR, 44.5, 54.9). Mortality risk was highest among newborns Conclusion Preterm newborn types were the most vulnerable, and associated with highest mortality, particularly with co-existence of preterm and SGA. As PT+AGA is more prevalent, it is responsible for greatest burden of neonatal deaths at population level.

Published
2023

47. Neonatal mortality risk for vulnerable newborn types in 15 countries using 125.5 million nationwide birth outcome records, 2000–2020

Author

Suárez‐Idueta, Lorena, Blencowe, Hannah, Okwaraji, Yemisrach B, Yargawa, Judith, Bradley, Ellen, Gordon, Adrienne, Flenady, Vicki, Paixao, Enny S., Barreto, Mauricio L., Lisonkova, Sarka, Wen, Qi, Velebil, Petr, Jírová, Jitka, Horváth‐Puhó, Erzsebet, Sørensen, Henrik Toft, Sakkeus, Luule, Abuladze, Liili, Yunis, Khalid A., Al Bizri, Ayah, Barranco, Arturo, Broeders, Lisa, van Dijk, Aimée E., Alyafei, Fawziya, Olukade, Tawa O., Razaz, Neda, Söderling, Jonas, Smith, Lucy K., Draper, Elizabeth S., Lowry, Estelle, Rowland, Neil, Wood, Rachael, Monteath, Kirsten, Pereyra, Isabel, Pravia, Gabriella, Ohuma, Eric O., Lawn, Joy E., Warrilow, Kara, Lawford, Harriet, Flores, Arturo Barranco, Roldan, Jesus Felipe Gonzalez, AlQubaisi, Mai, Ali, Hamdy A., Manktelow, Bradley N., Matthews, Ruth J., Fenton, Alan, Davis, Celina, Black, Bob, Katz, Joanne, and Erchick, Dan

Subjects
SUPPLEMENT ARTICLES, neonatal mortality, SDG 3 - Good Health and Well-being, SUPPLEMENT ARTICLE, preterm birth, size for gestational age, vulnerable newborn
Abstract

ObjectiveTo compare neonatal mortality associated with six novel vulnerable newborn types in 125.5 million live births across 15 countries, 2000–2020.DesignPopulation-based, multi-country study.SettingNational data systems in 15 middle- and high-income countries.MethodsWe used individual-level data sets identified for the Vulnerable Newborn Measurement Collaboration. We examined the contribution to neonatal mortality of six newborn types combining gestational age (preterm [PT] versus term [T]) and size-for-gestational age (small [SGA], 90th centile) according to INTERGROWTH-21st newborn standards. Newborn babies with PT or SGA were defined as small and T + LGA was considered as large. We calculated risk ratios (RRs) and population attributable risks (PAR%) for the six newborn types.Main outcome measuresMortality of six newborn types.ResultsOf 125.5 million live births analysed, risk ratios were highest among PT + SGA (median 67.2, interquartile range [IQR] 45.6–73.9), PT + AGA (median 34.3, IQR 23.9–37.5) and PT + LGA (median 28.3, IQR 18.4–32.3). At the population level, PT + AGA was the greatest contributor to newborn mortality (median PAR% 53.7, IQR 44.5–54.9). Mortality risk was highest among newborns born before 28 weeks (median RR 279.5, IQR 234.2–388.5) compared with babies born between 37 and 42 completed weeks or with a birthweight less than 1000 g (median RR 282.8, IQR 194.7–342.8) compared with those between 2500 g and 4000 g as a reference group.ConclusionPreterm newborn types were the most vulnerable, and associated with the highest mortality, particularly with co-existence of preterm and SGA. As PT + AGA is more prevalent, it is responsible for the greatest burden of neonatal deaths at population level.

Published
2023

48. Ending Preventable Stillbirths and Improving Bereavement Care: A Scorecard for High- and Upper-Middle Income Countries

Author

de Graaff, Esti Charlotte, primary, Leisher, Susannah Hopkins, additional, Blencowe, Hannah, additional, Lawford, Harriet, additional, Cassidy, Jillian, additional, Cassidy, Paul, additional, Draper, Elizabeth S, additional, Heazell, Alexander E P, additional, Kinney, Mary, additional, Quigley, Paula, additional, Ravaldi, Claudia, additional, Storey, Claire, additional, Vannacci, Alfredo, additional, Group, . the EPS in High-Resource Countries Scorecard Collaboration, additional, and Flenady, Vicki, additional

Published
2023
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49. Postnatal growth restriction and neurodevelopment at 5 years of age: a European extremely preterm birth cohort study

Author

El Rafei, Rym, primary, Maier, Rolf Felix, additional, Jarreau, Pierre Henri, additional, Norman, Mikael, additional, Barros, Henrique, additional, Van Reempts, Patrick, additional, Van Heijst, Arno, additional, Pedersen, Pernille, additional, Cuttini, Marina, additional, Johnson, Samantha, additional, Costa, Raquel, additional, Zemlin, Michael, additional, Draper, Elizabeth S, additional, and Zeitlin, Jennifer, additional

Published
2023
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50. Clinical outcomes for babies born between 27 – 31 weeks of gestation: Should they be regarded as a single cohort?

Author

Ismail, Abdul Qader Tahir, primary, Boyle, Elaine M., additional, Pillay, Thillagavathie, additional, Modi, Neena, additional, Rivero-Arias, Oliver, additional, Manktelow, Bradley, additional, Seaton, Sarah E., additional, Armstrong, Natalie, additional, Yang, Miaoqing, additional, Ismail, Abdul Qader T., additional, Bountziouka, Sila, additional, Cupit, Caroline S., additional, Paton, Alexis, additional, Banda, Victor L, additional, Draper, Elizabeth S, additional, and Dawson, Kelvin, additional

Published
2023
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