11 results on '"Ethical review boards"'
Search Results
2. Umgang mit ethischen Fragen in der Forschung zu sexualisierter Gewalt an Kindern und Jugendlichen.
- Author
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Christmann, Bernd, Schwerdt, Daniel, and Wazlawik, Martin
- Abstract
Copyright of Soziale Passagen is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2018
- Full Text
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3. (De)constructing ethical research narratives in criminological research.
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Mahoney, Ian and Kearon, Tony
- Subjects
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CRIMINOLOGY , *DOCTORAL students , *SUPERVISORS , *PROCEDURE manuals , *ETHICS , *ATTITUDE (Psychology) - Abstract
This case study article draws upon experiences of a doctoral student (Mahoney) and supervisor (Kearon) to reflect on the way in which we construct ethical narratives around our research. We seek to draw attention to the manner in which strict adherence to ERB guidelines can be problematic and risks causing more harm than it seeks to mitigate. We aim to show that we as researchers should focus on the potential harm caused to particularly vulnerable participants and draw attention to the need to refocus conceptions of ethics away from a narrow, bureaucratic framework and towards moral concerns so as to avoid causing undue harm. [ABSTRACT FROM AUTHOR]
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- 2018
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4. Ethics, Epistemology, and Ethnography: The Need for an Anthropological Debate on Ethical Review Processes in Germany.
- Author
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Dilger, Hansjörg
- Abstract
Over the last years, debates on research ethics - and the way the ethicality of ethnographic research is assessed by institutional boards and committees - have flourished in national and international anthropology. This article discusses the state of the debate in Germany where ethical review boards have remained so far largely absent in regard to anthropological research and where the commitment to 'act ethically' during fieldwork (and beyond) remains largely voluntary. By drawing on ethnographic fieldwork on HIV / AIDS and social relations in Tanzania, I highlight that medical anthropologists may face particular ethical challenges in their work, due to the often close relationship of their research with human suffering. Furthermore, however, I argue that the sub-discipline can raise important questions concerning the potential institutionalization of ethical review processes in anthropology in Germany and the pitfalls that should be avoided with regard to the 'fetishization' of certain ethical doctrines (such as the informed consent process) which have proven incommensurable with the core epistemological assumptions of the discipline. This article does not provide an exhaustive overview of the debates on ethics that have been conducted in Germany or internationally over the last decade(s). It is rather meant as a political intervention that seeks to broaden the discussion about the potential formalization of ethical review processes in Germany and how the discipline can shape such a process proactively by foregrounding some of its inherent strengths: reflexivity, creativity and dialogue. [ABSTRACT FROM AUTHOR]
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- 2017
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5. Navigating Grey Areas: Ethical Issues in Studying Online Antifeminist Communities
- Author
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Bachaud, Louis and Université de Lille
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data protection ,internet research ethics ,[SHS.INFO]Humanities and Social Sciences/Library and information sciences ,protection des données ,consentement éclairé ,informed consent ,Geography, Planning and Development ,ethical review boards ,comités d’éthique de la recherche ,RGPD ,GDPR ,Development ,éthique de la recherche sur internet - Abstract
Internet research ethics is an intimidating field for a new researcher. Not only does it mobilize legal and ethical knowledge about data protection, but it also entails making case-by-case judgment calls in a shifting and yet uncodified domain. By detailing the specific ethical choices made in a study of online antifeminist communities, and discussing the rationale and debates behind them, this article aims at making this process easier for future researchers who wish to collect data from established online communities. To that effect, it presents an approach that attempts to reconcile legal and institutional requirements, scholarly recommendations, and peer practice. L’éthique de la recherche sur Internet est un domaine intimidant pour les nouveaux chercheurs. Non seulement elle mobilise des connaissances légales et éthiques sur la protection des données, mais elle implique aussi d’effectuer des jugements au cas par cas dans un domaine encore trop peu codifié. En détaillant les choix éthiques effectués dans le cadre d’une étude de communautés antiféministes en ligne, et la justification de ces choix, cet article vise à faciliter ce processus pour les futurs chercheurs désirant récolter les données de communautés en ligne. Pour ce faire, il expose une démarche qui tente de réconcilier les injonctions légales et institutionnelles, les recommandations des sociétés savantes, et les usages de la recherche sur Internet.
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- 2022
- Full Text
- View/download PDF
6. Situando os comitês de ética em pesquisa: o sistema CEP (Brasil) em perspectiva
- Author
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Claudia Fonseca
- Subjects
CEP ,ethnographic research ,lcsh:GN1-890 ,Anthropology ,pesquisa etnográfica ,lcsh:Anthropology ,ethical review boards ,bioética ,ética e regulação de pesquisa ,research ethics and regulations ,bioethics - Abstract
ResumoNeste artigo, apoiando-me num conjunto de obras recentes, pretendo fornecer subsídios para “situar” os comitês universitários de ética (CEPs) no Brasil dentro dum contexto político e acadêmico mais amplo. Primeiro, ao rever a narrativa de origem dos CEPs, situando o surgimento deles nos EUA dos anos 1950 e 1960, sugiro que esse modelo seja mais adequado à resolução de riscos legais da pesquisa científica do que à garantia mais abrangente do proceder ético. Em segundo lugar, evoco estilos e espaços “alternativos” de participação popular no debate ético que permitem estranhar a ênfase dos CEPs em mecanismos de participação pontual e individualizada. Em terceiro lugar, considero a dimensão transnacional dos esforços para regular pesquisas científicas envolvendo sujeitos humanos, especialmente na indústria farmacêutica. Finalmente, trato dos debates que circundam a aplicação do modelo dos CEPs à pesquisa em ciências humanas, sublinhando algumas provocações políticas que, especialmente na área de antropologia, têm levado a novas e desafiadoras perspectivas sobre a ética em pesquisa. Meu objetivo é contribuir para um arsenal de abordagens que combata receitas fáceis, garantindo que o debate sobre os modos de regulação da ética na pesquisa científica se mantenha aberto a uma diversidade de possibilidades criativas. AbstractIn this article, drawing on recent studies, we propose to situate the university-related ethical review boards in Brazil within a wider political and academic context. First, by re-examining origin narratives, focusing now on the 50s and 60s in the USA, we suggest that these boards are better adapted to the resolution of legal risks concerning scientific research than to the broader aim of guaranteeing ethical procedures. Second, we consider alternative styles and spaces of popular participation in ethical debates that allow us to rethink the Review Boards’ emphasis on mechanisms of episodic and individualized participation. Third, we consider the transnational dimension of efforts to regulate scientific research involving human beings, especially in the pharmaceutical industry. Finally, we look at debates surrounding the application of the Review Board model to the social sciences, highlighting political provocations that, especially in the area of anthropology, have given rise to new and challenging perspectives on research ethics. By combatting simplistic solutions, this article’s ultimate objective is to assure ongoing debate on the creative diversity of possibilities for guaranteeing ethical procedures in scientific research.
- Published
- 2015
- Full Text
- View/download PDF
7. Ethical review board-approved protocols and intent to use open practices in research on human subjects in Sweden
- Author
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Jafari, Arian and Jenner, Bo
- Subjects
FOS: Psychology ,Other Psychology ,open practices ,Medicine and Health Sciences ,ethical review boards ,ethics applications ,research integrity ,Psychology ,Psychiatry and Psychology ,ethics committees ,Other Medicine and Health Sciences ,Social and Behavioral Sciences - Abstract
Much of published research in psychology has been found irreproducible, possibly caused in part by questionable research practices. Open practices have been suggested as a way to combat these issues. This study aimed to assess the prevalence of declared intent to use open practices in Swedish human subjects research. We investigated the occurrence of declared intent to use open practices in a sample of 102 applications to regional ethical review boards (ERBs) in Sweden approved in 2013. Specifically, we investigated the prevalences of declared intent in applications to (1) publish the report with open access, (2) openly publish research materials, (3) openly publish data, and (4) preregister the study. 3% of applications stated an intention to publish open reports, and 5% included references to preregistrations. Statements of intent to publish data and/or materials openly were not found in any applications. A significant difference between types of open practices was identified; however, we observed no statistically significant differences in pairwise comparisons. One cause of low prevalences might be that researchers are disincentivized to use open practices. Future studies should use more recent ERB applications and larger samples.
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- 2017
- Full Text
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8. Situando os comitês de ética em pesquisa
- Author
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Fonseca, Claudia
- Subjects
CEP ,ethnographic research ,pesquisa etnográfica ,ethical review boards ,bioética ,ética e regulação de pesquisa ,research ethics and regulations ,bioethics - Abstract
Neste artigo, apoiando-me num conjunto de obras recentes, pretendo fornecer subsídios para “situar” os comitês universitários de ética (CEPs) no Brasil dentro dum contexto político e acadêmico mais amplo. Primeiro, ao rever a narrativa de origem dos CEPs, situando o surgimento deles nos EUA dos anos 1950 e 1960, sugiro que esse modelo seja mais adequado à resolução de riscos legais da pesquisa científica do que à garantia mais abrangente do proceder ético. Em segundo lugar, evoco estilos e espaços “alternativos” de participação popular no debate ético que permitem estranhar a ênfase dos CEPs em mecanismos de participação pontual e individualizada. Em terceiro lugar, considero a dimensão transnacional dos esforços para regular pesquisas científicas envolvendo sujeitos humanos, especialmente na indústria farmacêutica. Finalmente, trato dos debates que circundam a aplicação do modelo dos CEPs à pesquisa em ciências humanas, sublinhando algumas provocações políticas que, especialmente na área de antropologia, têm levado a novas e desafiadoras perspectivas sobre a ética em pesquisa. Meu objetivo é contribuir para um arsenal de abordagens que combata receitas fáceis, garantindo que o debate sobre os modos de regulação da ética na pesquisa científica se mantenha aberto a uma diversidade de possibilidades criativas. In this article, drawing on recent studies, we propose to situate the university-related ethical review boards in Brazil within a wider political and academic context. First, by re-examining origin narratives, focusing now on the 50s and 60s in the USA, we suggest that these boards are better adapted to the resolution of legal risks concerning scientific research than to the broader aim of guaranteeing ethical procedures. Second, we consider alternative styles and spaces of popular participation in ethical debates that allow us to rethink the Review Boards’ emphasis on mechanisms of episodic and individualized participation. Third, we consider the transnational dimension of efforts to regulate scientific research involving human beings, especially in the pharmaceutical industry. Finally, we look at debates surrounding the application of the Review Board model to the social sciences, highlighting political provocations that, especially in the area of anthropology, have given rise to new and challenging perspectives on research ethics. By combatting simplistic solutions, this article’s ultimate objective is to assure ongoing debate on the creative diversity of possibilities for guaranteeing ethical procedures in scientific research.
- Published
- 2015
9. Ethical review as a tool for enhancing postgraduate supervision and research outcomes in the creative arts
- Author
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Romano, Angela and Romano, Angela
- Abstract
This article outlines the potential for Research Higher Degree (RHD) supervisors at universities and similar institutions to use ethical review as a constructive, dynamic tool in guiding RHD students in the timely completion of effective, innovative research projects. Ethical review involves a bureaucratized process for checking that researchers apply risk management strategies when dealing with human participants. Ethical review can also be a powerful instrument for RHD supervisors in the creative arts if they use it to lead students through processes of imagining, articulating, and improving their methodologies and relationships with research participants. Proposed strategies involve adaptation of theories of visualization and imagination from several disciplines—imagined interaction from the social sciences and psychology, dramatic rehearsal from political science, and creative visualization from the health professions, sports coaching and many other personal–professional development contexts. By using creativity and imagination, supervisors can use ethical review to help students to ‘walk through’ the potential, progressive phases of proposed research in order to refine or redesign both ‘big picture’ strategies and specific steps taken to reach research goals. This can stimulate students to unearth possibilities that improve the quality and quantity of knowledge that their research generates and to avoid or manage problems that might disrupt their research.
- Published
- 2016
10. Situando os comitês de ética em pesquisa : o sistema CEP (Brasil) em perspectiva
- Author
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Fonseca, Claudia Lee Williams
- Subjects
Ética na pesquisa ,Ethical review boards ,Bioethics ,Research ethics and regulations ,Ethnographic research ,Antropologia ,Pesquisa etnográfica ,Bioética - Abstract
Neste artigo, apoiando-me num conjunto de obras recentes, pretendo fornecer subsídios para “situar” os comitês universitários de ética (CEPs) no Brasil dentro dum contexto político e acadêmico mais amplo. Primeiro, ao rever a narrativa de origem dos CEPs, situando o surgimento deles nos EUA dos anos 1950 e 1960, sugiro que esse modelo seja mais adequado à resolução de riscos legais da pesquisa científi ca do que à garantia mais abrangente do proceder ético. Em segundo lugar, evoco estilos e espaços “alternativos” de participação popular no debate ético que permitem estranhar a ênfase dos CEPs em mecanismos de participação pontual e individualizada. Em terceiro lugar, considero a dimensão transnacional dos esforços para regular pesquisas científi cas envolvendo sujeitos humanos, especialmente na indústria farmacêutica. Finalmente, trato dos debates que circundam a aplicação do modelo dos CEPs à pesquisa em ciências humanas, sublinhando algumas provocações políticas que, especialmente na área de antropologia, têm levado a novas e desafi adoras perspectivas sobre a ética em pesquisa. Meu objetivo é contribuir para um arsenal de abordagens que combata receitas fáceis, garantindo que o debate sobre os modos de regulação da ética na pesquisa científi ca se mantenha aberto a uma diversidade de possibilidades criativas. In this article, drawing on recent studies, we propose to situate the university- related ethical review boards in Brazil within a wider political and academic context. First, by re-examining origin narratives, focusing now on the 50s and 60s in the USA, we suggest that these boards are better adapted to the resolution of legal risks concerning scientifi c research than to the broader aim of guaranteeing ethical procedures. Second, we consider alternative styles and spaces of popular participation in ethical debates that allow us to rethink the Review Boards’ emphasis on mechanisms of episodic and individualized participation. Third, we consider the transnational dimension of efforts to regulate scientifi c research involving human beings, especially in the pharmaceutical industry. Finally, we look at debates surrounding the application of the Review Board model to the social sciences, highlighting political provocations that, especially in the area of anthropology, have given rise to new and challenging perspectives on research ethics. By combatting simplistic solutions, this article’s ultimate objective is to assure ongoing debate on the creative diversity of possibilities for guaranteeing ethical procedures in scientifi c research.
- Published
- 2015
11. Can we do better? Researchers' experiences with ethical review boards on projects with later life as a focus
- Author
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Pachana, Nancy, Liddle, Jacki (Jacqueline), Peel, Nancye, Beattie, Elizabeth, Juang, Christine, Knight, Bob, Pachana, Nancy, Liddle, Jacki (Jacqueline), Peel, Nancye, Beattie, Elizabeth, Juang, Christine, and Knight, Bob
- Abstract
The goal of this study was to describe researchers' experiences in submitting ethical proposals focused on older adult populations, including studies with persons with dementia, to ethical review boards. Ethical approval was granted for an online survey. Researchers were recruited via listservs and snowballing techniques. Participants included 157 persons (73% female) from Australia and the United States, with a mean age of 46 (±13). Six main issues were encountered by researchers who participated in this survey. In descending order, these included questions regarding: informed consent and information requirements (61.1%), participants' vulnerability, particularly for those with cognitive impairments (58.6%), participant burden (44.6%), data access (29.3%), adverse effects of data collection/intervention (26.8%), and study methodology (25.5%). An inductive content analysis of responses revealed a range of encounters with ethical review panels spanning positive, negative, and neutral experiences. Concerns voiced about ethical review boards included committees being overly focused on legal risk, as well as not always hearing the voice of older research participants, both potential and actual. Respondents noted inability to move forward on studies, as well as loss of researchers and participant groups from gerontological and clinical research as a result of negative interactions with ethics committees. Positive interactions with the committees reinforced researchers' need to carefully construct their research approaches with persons with dementia in particular. Suggested guidelines for committees when dealing with ethics applications involving older adults include self-reflecting on potential biases and stereotypes, and seeking further clarification and information from gerontological researchers before arriving at decisions.
- Published
- 2015
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