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A natural experiment contrasted the social relationships of people with intellectual disabilities (n = 110) before and after they moved from congregated settings to either personalized accommodation or group homes. Contrasts could also be drawn with individuals who had enduring mental health problems (n = 46) and who experienced similar moves. Face-to-face interviews were conducted in each person's residence on two occasions approximately 24 months apart. Multivariate statistical analyses were used to determine significant effects. Greater proportions of people living in personalized settings scored higher on the five chosen indicators of social relationships than did persons living in grouped accommodation. However, multivariate statistical analyses identified that only one in five persons increased their social relationships as a result of changes in their accommodation, particularly persons with an intellectual disability and high support needs. These findings reinforce the extent of social isolation experienced by people with disabilities and mental health problems that changes in their accommodation only partially counter.

Background: Supporting people with intellectual disabilities to live well in communities they choose is deinstitutionalisation's central aim and endorsed by the United Nations Convention on the Rights of Persons with Disabilities (CRPD) (UN, 2006). This study focused on the experiences of people with intellectual disabilities in Ireland when moving home using an inclusive research approach. Method: This inclusive research project employed a qualitative approach. Participants included 19 men and 16 women (total n = 35) with ages ranging from 22 to 77 years. Structured interviews attended to the experience of moving home and the supports accessed during and after the transition to community living. Results: Thematic analysis yielded four themes: "expressing choice" in the moving process; "feeling connected or isolated when moving"; "accessing supports during and after the move"; and finally, participants' reflections on "experiencing vulnerability and feeling safe" while resettling. Conclusions: This is the first study about people with intellectual disabilities moving home to be collaboratively designed and completed by an inclusive research team. Although much is understood about the long-term benefits of engaging in meaningful choices about housing and supports, concerns remain about the extent to which the will and preferences of people with intellectual disabilities in Ireland are respected when moving home.

Internationally the relocation of people with intellectual disability from institutions has brought significant gains to their quality of life. This study contrasted three groups of persons in Ireland who moved either to personalized arrangements (n = 29) or to community group homes (n = 31) with those who remained in congregated settings awaiting relocation (n = 29). Persons moving to rented accommodation with personalized support tended to be younger and had fewer support needs than those in group homes. They had greater control and choice in their lives, more community engagement and increased personal relationships compared to residents in group homes but those remaining in congregated settings fared worse of all. However, average staff costs were significantly higher in the latter settings. The implications for the future provision of group living arrangements are discussed along with the need for further longitudinal research to assess the sustained impact of personalized arrangements and their funding.

This study describes the development and validation of the Evaluation Capacity Assessment Instrument (ECAI), a measure designed to assess evaluation capacity among staff of nonprofit organizations that is based on a synthesis model of evaluation capacity. One hundred and sixty-nine staff of nonprofit organizations completed the ECAI. The 68-item measure assessed participants' perceptions of individual and organizational predictors of two evaluation capacity outcomes: mainstreaming and use of evaluation findings. Confirmatory Factor Analysis and internal consistency results support the inclusion of the items and factors measured by the ECAI. Moreover, structural equation modeling results support the synthesis model and its depiction of relationships among evaluation capacity predictors and outcomes. We discuss the implications of using a validated model and instrument in evaluation capacity building research and practice. (Contains 4 tables, 1 figure and 1 note.)

Background: Families in Ireland remain the main providers of support for people with Intellectual disabilities, and the aim of this study was to map their life experiences whilst involving their family members as co-researchers. Materials and Method: This qualitative, participatory study involved 10 focus groups attended by 70 parents and siblings of people with intellectual disabilities. Data were analysed using thematic analysis. Results: Caring for a family member with intellectual disabilities was found to be a dynamic and adaptive process. The well-being of the family and the challenges they face throughout their lives was the central theme identified. This was affected by: the availability of appropriate supports for families and having to advocate for them, communication and relationships with services and professionals, the availability of information and attitudes towards disability and governmental support. Conclusions: Strategies are suggested as to how services can better support family carers in Ireland in their role. These include families being provided with flexible and timely support for families at critical times; being offered services, support, entitlements and information without having to fight for them; knowing that their family member with intellectual disabilities is well cared for, listened to and provided with opportunities to develop and be part of the community; and carers being shown respect, listened to and involved in decisions. (Contains 1 footnote and 2 tables.)

Evaluation capacity building (ECB) has become a popular approach for helping community-based organizations (CBOs) to meet their funders' demands for accountability. This case study reports the ECB process with one staff member using a catalyst-for-change approach. The authors analyzed the role of the catalyst in diffusing evaluation knowledge and skills and in promoting evaluation mainstreaming and use within the CBO; and the outcomes achieved as a result of the catalyst's role in the process of building evaluation capacity. Implications based on the study findings are discussed.

Background: Scholars have called for research approaches that actively include and are driven by people with intellectual disabilities, but the process of inclusive data analysis has been scarcely documented in the literature. This paper demonstrates the process university researchers and a group of self-advocates used to analyse and interpret data collected during a participatory action research (PAR) project to increase the group's capacity for self-advocacy. Materials and Methods: University researchers presented numerical data in three visual formats for analysis. Seventeen People First members analysed and interpreted the data using a modified focus group approach. Results: All members participated in data analysis, but not all members participated in data interpretation. Members' interpretations suggest that the group felt an increased sense of empowerment and heightened awareness as a result of their increased capacity to run a meeting and involvement in the PAR cycle of action and reflection. Conclusions: Findings suggest that strategies such as visual representation of data, group analysis, and familiarity with data collection tools foster an inclusive process of analysis and interpretation.

This article describes a participatory needs assessment process in which Colombian immigrants in Chicago collaborated with university researchers to identify their common concerns and implement self-help efforts to address some of their most pressing needs. A total of 261 Colombians completed a needs assessment survey, and 46 attended a public forum in which the issues were discussed and groups of volunteers were organized to coordinate and plan actions to address identified needs. Groups of volunteers conducted the research and developed a guide to health care and a guide to social services in the state of Illinois, which were widely distributed in the community. The participatory methodology appears to have effectively mobilized individuals who volunteered their time to help others--particularly newcomers who often find themselves at a loss to maneuver and understand a complex array of systems and services that are completely unfamiliar. Implications for future research are discussed. (Contains 2 tables.)

Copyright of Spanish Journal of Disability Studies / Revista Española de Discapacidad is the property of Centro Espanol de Documentacion sobre Discapacidad and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

In reflecting on the title of the special issue: Inclusive Research: A road less or more well-travelled, this paper reviews the strengths of inclusive research that have augmented the global knowledge about the lives of people with intellectual disabilities across the lifespan. The successes of inclusive research are outlined with the respective ongoing individual challenges discussed. Authors will draw upon their own experiences of inclusive research, together with the seminal and current literature, as well as the dialogue between them. The conclusions of the article are in the form of recommendations aimed at increasing the traffic on the road of inclusive research through: 1. expanding its purpose and parameters across all forms of disability research; 2. developing systems for sustaining inclusive research as a funded model; 3. creating capacity to enable people with intellectual disabilities to be employed as researchers directing research projects; and 4. establishing bridges and crossroads with policy and practice through its findings. [ABSTRACT FROM AUTHOR]

This study identified challenges and available supports for conducting research and engaging in outreach and dissemination activities with people with disabilities from diverse ethnic backgrounds. Seventy nine researchers funded by the National Institute of Disability and Rehabilitation Research (NIDRR) participated in the study. The results indicated that most of the respondents (72%) conduct research with people with disabilities from diverse backgrounds and that the most significant challenges for conducting research were finding research protocols, surveys and questionnaires developed or adapted for minorities with disabilities and recruiting research team members who are ethnic minorities or ethnic minorities with disabilities. The findings have implications for practices related to the hiring and training of research team members and for building national networks where researchers can share their experiences and strategies for outreach and dissemination efforts with populations from diverse ethnic backgrounds., The most recent U.S. census data show that people from diverse ethnic and racial backgrounds represent about one third of the country s total population (30%). Migration patterns have contributed [...]

From 2016-17, academics at a leading Irish university collaborated with a group of self- advocates with intellectual disabilities to co-design, co-deliver, and co-assess an entire disability module for third-year undergraduate social work students. There are few, if any, reports of university modules of this type, involving adults with intellectual disabilities, in the existing literature. Alongside and after the module, our group of academics and self-advocates conducted inclusive research regarding relevant stakeholders' experiences of the initiative. This paper relates to university students' experiences of being taught and assessed by adults with intellectual disabilities. These experiences were overwhelmingly positive with reported benefits including increased comfort around disability and greater empathy with people with people with disabilities. This said, some aspects of being taught and assessed by self-advocates with intellectual disabilities also provoked considerable anxiety among students. From 2016 to 2017, academics at a leading Irish university collaborated with a group of self-advocates with intellectual disabilities to design, teach and mark a disability module for social work students. The group also conducted inclusive research regarding people's experiences of the module This paper explores how university students experienced being taught and marked by adults with intellectual disabilities. Students' experiences were generally very positive. They said the module led to more empathy with disabled people and reduced their discomfort around disability At the same time, some aspects of the module, particularly the idea of being marked by adults with intellectual disabilities, made them very nervous. We hope that our research might encourage others to employ adults with intellectual disabilities as university lecturers and markers. [ABSTRACT FROM AUTHOR]

In this study we analyzed employment-related supports provided by case managers in a transition program for urban ethnic minority youth with disabilities. We further assessed the influence of these supports on employment outcomes. Urban ethnic minority youth with disabilities often have lives that are complicated by a host of factors related to living in poverty that influence their ability to find and maintain employment. We found that program staff provided two types of supports to address work needs and living issues of these youth: job specific, related to on-the-job tasks, and off-site work supports, related to other areas of daily living. The results showed that both job specific and off-site work supports predicted higher employment retention for youth with disabilities. [ABSTRACT FROM AUTHOR]