44 results on '"Gonzalo Marín, Montserrat"'
Search Results
2. Prognostic value of bioelectrical impedance analysis in head and neck cancer patients undergoing radiotherapy: a VALOR® study
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Fresenius Kabi, Consejo Superior de Investigaciones Científicas [https://ror.org/02gfc7t72], Prior-Sánchez, Inmaculada, Herrera-Martínez, Aura D., Zarco-Martín, María Teresa, Fernández-Jiménez, Rocío, Gonzalo-Marín, Montserrat, Muñoz-Garach, Araceli, Vílchez-López, Francisco J., Cayón-Blanco, Manuel, Villarrubia-Pozo, Ana, Muñoz-Jiménez, Concepción, Zarco-Rodríguez, Felisa Pilar, Rabat Restrepo, Juana María, Luengo-Pérez, Luis Miguel, Boughanem, Hatim, Martínez-Ramírez, María José, García-Almeida, José Manuel, Fresenius Kabi, Consejo Superior de Investigaciones Científicas [https://ror.org/02gfc7t72], Prior-Sánchez, Inmaculada, Herrera-Martínez, Aura D., Zarco-Martín, María Teresa, Fernández-Jiménez, Rocío, Gonzalo-Marín, Montserrat, Muñoz-Garach, Araceli, Vílchez-López, Francisco J., Cayón-Blanco, Manuel, Villarrubia-Pozo, Ana, Muñoz-Jiménez, Concepción, Zarco-Rodríguez, Felisa Pilar, Rabat Restrepo, Juana María, Luengo-Pérez, Luis Miguel, Boughanem, Hatim, Martínez-Ramírez, María José, and García-Almeida, José Manuel
- Abstract
Introduction: Bioelectrical impedance analysis (BIA) serves as a method to estimate body composition. Parameters such as phase angle (PA), standardized phase angle (SPA), body mass cell (BCM), BCM index (BCMI), and fat-free mass (FFM) might significantly impact the prognosis of head and neck cancer (HNC) patients. The present study aimed to investigate whether bioelectrical parameters can be used to predict survival in the HNC population and establish the optimal cutoff points for predictive accuracy. Methods: A multicenter observational study was performed across 12 tertiary hospitals in Andalusia (a region from the south of Spain). A total of 494 patients diagnosed with HNC between 2020 and 2022 at different stages were included in this study, with a minimum follow-up period of 12 months. The BIA assessment was carried out during the first 2 weeks of radical radiotherapy treatment with chemotherapy or other systemic treatments. A multivariate logistic regression analysis of overall survival, complications, hospital admission, and palliative care and its relationship with BIA nutritional assessment was performed. Results: Significant prognostic factors identified in the multivariable analysis encompassed phase angle (PA), standardized phase angle (SPA), body cell mass (BCM), and BCM index (BCMI). Lower PA and BCM values were significantly associated with adverse clinical outcomes. A BCM threshold above 17 kg/m2 was the most significant predictor for predicting survival within the overall HNC population. The PA values of <5.1° in male and <4.8° in female patients showed the best predictive potential for mortality. Increased PA (as a continuous variable) demonstrated a significantly reduced risk for mortality (OR, 0.64; 95% CI, 0.43–0.94; p < 0.05) and a decreased likelihood of hospital admission (OR, 0.75; 95% CI, 0.52–1.07; p < 0.05). Higher BCM correlated with a lower risk of mortality (OR, 0.88; 95% CI, 0.80–0.96; p < 0.01) and a diminished probability of hospita
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- 2024
3. Data_Sheet_1_Prognostic value of bioelectrical impedance analysis in head and neck cancer patients undergoing radiotherapy: a VALOR® study.pdf
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Consejo Superior de Investigaciones Científicas [https://ror.org/02gfc7t72], Prior-Sánchez, Inmaculada, Herrera-Martínez, Aura D., Zarco-Martín, María Teresa, Fernández-Jiménez, Rocío, Gonzalo-Marín, Montserrat, Muñoz-Garach, Araceli, Vílchez-López, Francisco J., Cayón-Blanco, Manuel, Villarrubia-Pozo, Ana, Muñoz-Jiménez, Concepción, Zarco-Rodríguez, Felisa Pilar, Rabat Restrepo, Juana María, Luengo-Pérez, Luis Miguel, Boughanem, Hatim, Martínez-Ramírez, María José, García-Almeida, José Manuel, Consejo Superior de Investigaciones Científicas [https://ror.org/02gfc7t72], Prior-Sánchez, Inmaculada, Herrera-Martínez, Aura D., Zarco-Martín, María Teresa, Fernández-Jiménez, Rocío, Gonzalo-Marín, Montserrat, Muñoz-Garach, Araceli, Vílchez-López, Francisco J., Cayón-Blanco, Manuel, Villarrubia-Pozo, Ana, Muñoz-Jiménez, Concepción, Zarco-Rodríguez, Felisa Pilar, Rabat Restrepo, Juana María, Luengo-Pérez, Luis Miguel, Boughanem, Hatim, Martínez-Ramírez, María José, and García-Almeida, José Manuel
- Abstract
[Introduction] Bioelectrical impedance analysis (BIA) serves as a method to estimate body composition. Parameters such as phase angle (PA), standardized phase angle (SPA), body mass cell (BCM), BCM index (BCMI), and fat-free mass (FFM) might significantly impact the prognosis of head and neck cancer (HNC) patients. The present study aimed to investigate whether bioelectrical parameters can be used to predict survival in the HNC population and establish the optimal cutoff points for predictive accuracy., [Methods] A multicenter observational study was performed across 12 tertiary hospitals in Andalusia (a region from the south of Spain). A total of 494 patients diagnosed with HNC between 2020 and 2022 at different stages were included in this study, with a minimum follow-up period of 12 months. The BIA assessment was carried out during the first 2 weeks of radical radiotherapy treatment with chemotherapy or other systemic treatments. A multivariate logistic regression analysis of overall survival, complications, hospital admission, and palliative care and its relationship with BIA nutritional assessment was performed., [Results] Significant prognostic factors identified in the multivariable analysis encompassed phase angle (PA), standardized phase angle (SPA), body cell mass (BCM), and BCM index (BCMI). Lower PA and BCM values were significantly associated with adverse clinical outcomes. A BCM threshold above 17 kg/m2 was the most significant predictor for predicting survival within the overall HNC population. The PA values of <5.1° in male and <4.8° in female patients showed the best predictive potential for mortality. Increased PA (as a continuous variable) demonstrated a significantly reduced risk for mortality (OR, 0.64; 95% CI, 0.43–0.94; p < 0.05) and a decreased likelihood of hospital admission (OR, 0.75; 95% CI, 0.52–1.07; p < 0.05). Higher BCM correlated with a lower risk of mortality (OR, 0.88; 95% CI, 0.80–0.96; p < 0.01) and a diminished probability of hospital admission (OR, 0.91; 95% CI, 0.83–0.99; p < 0.05)., [Conclusion] BIA is a crucial tool in the nutritional assessment of HNC patients. BCM and PA are the main bioelectrical parameters used to predict clinical outcomes in this population. Future studies are needed to validate BIA variables in a large cohort to ensure whether early intensification of nutritional treatment would improve survival.
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- 2024
4. Prevalence of diabetes mellitus in patients with home enteral nutrition
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Abuín-Fernández, Jose, Doulatram-Gamgaram, Viyey, Sánchez-Torralvo, Francisco, Contreras-Bolívar, Victoria, Padín, Susana, Gonzalo-Marín, Montserrat, and Olveira, Gabriel
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- 2020
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5. Prognostic value of bioelectrical impedance analysis in head and neck cancer patients undergoing radiotherapy: a VALOR® study
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Prior-Sánchez, Inmaculada, primary, Herrera-Martínez, Aura Dulcinea, additional, Zarco-Martín, María Teresa, additional, Fernández-Jiménez, Rocío, additional, Gonzalo-Marín, Montserrat, additional, Muñoz-Garach, Araceli, additional, Vilchez-López, Francisco Javier, additional, Cayón-Blanco, Manuel, additional, Villarrubia-Pozo, Ana, additional, Muñoz-Jiménez, Concepción, additional, Zarco-Rodríguez, Felisa Pilar, additional, Rabat-Restrepo, Juana María, additional, Luengo-Pérez, Luis Miguel, additional, Boughanem, Hatim, additional, Martínez-Ramírez, María José, additional, and García-Almeida, Jose Manuel, additional
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- 2024
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6. Prevalence of Anxiety and Depression Symptoms and Their Relationship with Nutritional Status and Mortality in Patients with Colorectal Cancer
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Soria-Utrilla, Virginia, primary, Sánchez-Torralvo, Francisco José, additional, González-Poveda, Iván, additional, Mera-Velasco, Santiago, additional, Porras, Nuria, additional, Toval-Mata, José Antonio, additional, García-Olivares, María, additional, Ruiz-López, Manuel, additional, Gonzalo-Marín, Montserrat, additional, Carrasco-Campos, Joaquín, additional, Tapia, María José, additional, Santoyo-Santoyo, Julio, additional, and Olveira, Gabriel, additional
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- 2022
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7. Usefulness of Muscle Ultrasonography in the Nutritional Assessment of Adult Patients with Cystic Fibrosis
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Sánchez-Torralvo, Francisco José, primary, Porras, Nuria, additional, Ruiz-García, Ignacio, additional, Maldonado-Araque, Cristina, additional, García-Olivares, María, additional, Girón, María Victoria, additional, Gonzalo-Marín, Montserrat, additional, Olveira, Casilda, additional, and Olveira, Gabriel, additional
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- 2022
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8. Cardiometabolic and Nutritional Morbidities of a Large, Adult, PKU Cohort from Andalusia
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Universidad de Sevilla. Departamento de Medicina, Dios-Fuentes, Elena, Gonzalo Marín, Montserrat, Remón-Ruiz, Pablo, Benitez Ávila, Rosa, Bueno Delgado, María del Amor, Blasco Alonso, Javier, Doulatram Gamgaram, Viyei Kishore, Oliveria, Gabriel, Soto Moreno, Alfonso Manuel, Venegas Moreno, Eva, Universidad de Sevilla. Departamento de Medicina, Dios-Fuentes, Elena, Gonzalo Marín, Montserrat, Remón-Ruiz, Pablo, Benitez Ávila, Rosa, Bueno Delgado, María del Amor, Blasco Alonso, Javier, Doulatram Gamgaram, Viyei Kishore, Oliveria, Gabriel, Soto Moreno, Alfonso Manuel, and Venegas Moreno, Eva
- Abstract
The establishment of national neonatal screening systems has resulted in improved quality of life and life expectancy in patients with phenylketonuria (PKU). This has led to the development of multidisciplinary treatment units for adult patients with PKU. We present a retrospective descriptive study of a cohort of 90 adult patients (>16 years) with PKU under active follow-up in two reference centers in Andalusia. We analyzed disease severity, treatment type, demographic variables, cardiovascular risk factors, vitamin and hormone profiles, and bone metabolism. The median (interquartile range)age was 29 (23–38) years, 47 (52.2%) were women and 43 (47.8%) were men. Eighty (88.9%) had classical PKU, five (5.6%) moderate PKU, and five (5.6%) mild PKU. Diagnosis was by neonatal screening in 62 (68.9%) of the patients. The rest had late diagnosis. Treatment with sapropterin was given to 18 (20%) patients and diet and nutrition therapy to 72 (80%). There was adequate metabolic control according to Phe levels in 43 (47.78%) patients. Body mass index was 26.61 (22.7–31.1) kg/m2. Twenty-six (29.2%) patients had obesity, 7 (7.9%) hypertension, 2 (2.2%) type 2 diabetes, 26 (28.89%) dyslipidemia, 14 (15.6%) elevated total cholesterol, 9 (15.8%) decreased high-density lipoprotein cholesterol and 16 (17.8%) hypertriglyceridemia. Seven (10.3%) patients had osteoporosis and 28 (41.17%) osteopenia. Twenty-six (30.6%) had vitamin D (25OH) deficiency and four (4.5%) vitamin B12 deficiency. Although we observed no differences with most vascular risk factors, we found a high prevalence of obesity in relation to the age of the cohort. A continued evaluation of comorbidities in these patients is therefore needed, despite adequate metabolic control.
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- 2022
9. Cardiometabolic and Nutritional Morbidities of a Large, Adult, PKU Cohort from Andalusia
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Dios Fuentes, Elena, Gonzalo Marín, Montserrat, Remón-Ruiz, Pablo, Benitez Ávila, Rosa, Bueno Delgado, María A., Blasco Alonso, Javier, Doulatram Gamgaram, Viyei Kishore, Olveira Fuster, Gabriel, Soto-Moreno, Alfonso, Venegas Moreno, Eva, Dios Fuentes, Elena, Gonzalo Marín, Montserrat, Remón-Ruiz, Pablo, Benitez Ávila, Rosa, Bueno Delgado, María A., Blasco Alonso, Javier, Doulatram Gamgaram, Viyei Kishore, Olveira Fuster, Gabriel, Soto-Moreno, Alfonso, and Venegas Moreno, Eva
- Abstract
The establishment of national neonatal screening systems has resulted in improved quality of life and life expectancy in patients with phenylketonuria (PKU). This has led to the development of multidisciplinary treatment units for adult patients with PKU. We present a retrospective descriptive study of a cohort of 90 adult patients (>16 years) with PKU under active follow-up in two reference centers in Andalusia. We analyzed disease severity, treatment type, demographic variables, cardiovascular risk factors, vitamin and hormone profiles, and bone metabolism. The median (interquartile range)age was 29 (23−38) years, 47 (52.2%) were women and 43 (47.8%) were men. Eighty (88.9%) had classical PKU, five (5.6%) moderate PKU, and five (5.6%) mild PKU. Diagnosis was by neonatal screening in 62 (68.9%) of the patients. The rest had late diagnosis. Treatment with sapropterin was given to 18 (20%) patients and diet and nutrition therapy to 72 (80%). There was adequate metabolic control according to Phe levels in 43 (47.78%) patients. Body mass index was 26.61 (22.7−31.1) kg/m2. Twenty-six (29.2%) patients had obesity, 7 (7.9%) hypertension, 2 (2.2%) type 2 diabetes, 26 (28.89%) dyslipidemia, 14 (15.6%) elevated total cholesterol, 9 (15.8%) decreased high-density lipoprotein cholesterol and 16 (17.8%) hypertriglyceridemia. Seven (10.3%) patients had osteoporosis and 28 (41.17%) osteopenia. Twenty-six (30.6%) had vitamin D (25OH) deficiency and four (4.5%) vitamin B12 deficiency. Although we observed no differences with most vascular risk factors, we found a high prevalence of obesity in relation to the age of the cohort. A continued evaluation of comorbidities in these patients is therefore needed, despite adequate metabolic control.
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- 2022
10. Endoscopic Intragastric Injection of Botulinum Toxin A in Obese Patients Accelerates Weight Loss after Bariatric Surgery: Follow-Up of a Randomised Controlled Trial (IntraTox Study)
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Sánchez-Torralvo, Francisco José, primary, Vázquez-Pedreño, Luis, additional, Gonzalo-Marín, Montserrat, additional, Tapia, María José, additional, Lima, Fuensanta, additional, García-Fuentes, Eduardo, additional, García, Pilar, additional, Moreno-Ruiz, Javier, additional, Rodríguez-Cañete, Alberto, additional, Valdés, Sergio, additional, and Olveira, Gabriel, additional
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- 2022
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11. Poor Physical Performance Is Associated with Postoperative Complications and Mortality in Preoperative Patients with Colorectal Cancer
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Sánchez-Torralvo, Francisco José, primary, González-Poveda, Iván, additional, García-Olivares, María, additional, Porras, Nuria, additional, Gonzalo-Marín, Montserrat, additional, Tapia, María José, additional, Mera-Velasco, Santiago, additional, Toval-Mata, José Antonio, additional, Ruiz-López, Manuel, additional, Carrasco-Campos, Joaquín, additional, Santoyo-Santoyo, Julio, additional, and Olveira, Gabriel, additional
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- 2022
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12. Influence of Factors Altering Gastric Microbiota on Bariatric Surgery Metabolic Outcomes
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Gutiérrez-Repiso, Carolina, primary, Moreno-Indias, Isabel, additional, Martín-Núñez, Gracia M., additional, Ho-Plagaro, Ailec, additional, Ocaña-Wilhelmi, Luis, additional, Fernández García, Diego, additional, Gonzalo Marín, Montserrat, additional, Moreno-Ruiz, Francisco J., additional, García-Fuentes, Eduardo, additional, and Tinahones, Francisco J., additional
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- 2021
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13. Nutrición parenteral domiciliaria en España, 2019: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
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Wanden-Berghe, Carmina, Virgili Casas, Nuria, Cuerda Compés, Cristina, Ramos Boluda, Esther, Pereira Cunill, José Luis, Maíz Jiménez, María Irene, Burgos Peláez, Rosa, Gómez Candela, Carmen, Penacho Lázaro, María Ángeles, Sánchez Martos, Eva Ángeles, Luis Román, Daniel Antonio de, Zugasti Murillo, Ana, Martínez Faedo, Ceferino, Álvarez Hernández, Julia, Campos Martín, Cristina, Rioja Vázquez, Rosalía, Irles Rocamora, Juan Antonio, Díaz Guardiola, Patricia, Sanz París, Alejandro, Matía Martín, Pilar, Carabaña Pérez, Fátima, Martín Folgueras, Tomás, Martín Palmero, María Ángela, Luengo Pérez, Luis Miguel, Martínez Costa, Cecilia, Tejera Pérez, Cristina, Arraiza Irigoyen, Carmen, Sánchez-Vilar Burdiel, Olga, García Delgado, Yaiza, Ponce González, Miguel Á., Mauri Roca, Sílvia, García Zafra, María Victoria, Germán Díaz, Marta, Morán López, Jesús M., Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Sánchez Sánchez, Rebeca, Calañas Continente, Alfonso, Garde Orbaiz, Carmen, Martínez Olmos, Miguel Ángel, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Forga Visa, María De Talló, Gil Martinez, M.ª Carmen, Carrera Santaliestra, María José, Padín López, Susana, Lobo, Gabriela, Apezetxea Celaya, Antxón, Ballesta Sánchez, Carmen, Bonada Sanjaume, Anna, Cánovas Gaillemin, Bárbara, Cardona Pera, Daniel, García Puente, Ignacio, Higuera Pulgar, Isabel, Miserachs Aranda, Nuria, Olmo García, María Dolores del, Palma Milla, Samara, Parés Marimón, Rosa María, and Pintor de la Maza, Begoña
- Subjects
Alimentació parenteral ,Parenteral feeding ,Home care services ,Atenció domiciliària - Abstract
RESUMEN Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadyasenpe.com) del año 2019. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2019. Resultados: se registraron 283 pacientes (51,9 %, mujeres), 31 niños y 252 adultos procedentes de 47 hospitales españoles, lo que representa una tasa de prevalencia de 6,01 pacientes/millón de habitantes/año 2019. El diagnóstico más frecuente en los adultos fue “oncológico paliativo” y “otros” (21,0 %). En los niños fue la enfermedad de Hirschsprung junto a la enterocolitis necrotizante, las alteraciones de la motilidad intestinal y la pseudoobstrucción intestinal crónica, con 4 casos cada uno (12,9 %). El primer motivo de indicación fue el síndrome del intestino corto tanto en los niños (51,6 %) como en los adultos (37,3 %). El tipo de catéter más utilizado fue el tunelizado tanto en los niños (75,9 %) como en los adultos (40,8 %). Finalizaron 68 episodios, todos en adultos: la causa más frecuente fue el fallecimiento (54,4 %). Pasaron a la vía oral el 38,2 %. Conclusiones: el número de centros y profesionales colaboradores con el registro NADYA va incrementándose. Se mantienen estables las principales indicaciones y los motivos de finalización de la NPD.
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- 2021
14. Nutrición parenteral domiciliaria en España 2018. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
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Wanden-Berghe, Carmina, Cuerda Compes, Cristina, Maíz Jiménez, María, Pereira Cunill, José Luis, Ramos Boluda, Esther, Gómez Candela, Carmen, Virgili, Núria, Burgos Peláez, Rosa, Luis Roman, Daniel A. de, Penacho Lázaro, Mª Ángeles, Sánchez Martos, Eva Ángeles, Martínez Faedo, Ceferino, Díaz Guardiola, Patricia, Álvarez Hernández, Julia, Zugasti Murillo, Ana, Martín, Cristina Campos, Sanz Paris, Alejandro, Martín Fontalba, María de los Ángeles, Lobo Támer, Gabriela, Matía Martín, Pilar, Carabaña Pérez, Fátima, Martín Folgueras, Tomás, Martín Palmero, M.ª Ángela, Luengo Pérez, Luis Miguel, Sánchez Vilar-Burdiel, Olga, Martínez Costa, Cecilia, Tejera, Cristina, Martínez Ramírez, María José, García Delgado, Yaiza, Ponce González, Miguel Ángel, Roca, Sílvia Mauri, García Zafra, María Victoria, Germán Díaz, Marta, Gabino, Victoria, Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Irles Rocamora, José Antonio, Sánchez Sánchez, Rebeca, Apezetxea Celaya, Antxón, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Pintor de la Maza, Begoña, Leyes, Pere, Martínez, M.ª Carmen Gil, Carrera Santaliestra, María José, and Grupo NADYA-SENPE
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Alimentació parenteral ,Parenteral feeding ,Nutrició ,Nutrition - Abstract
Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe.com) del año 2018. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE del 1 de enero al 31 de diciembre de 2018. Resultados: se registraron 278 pacientes (54, 7% mujeres), 23 niños y 255 adultos, procedentes de 45 hospitales españoles, lo que representa una tasa de prevalencia de 5, 95 pacientes/millón de habitantes/año 2018. El diagnóstico más frecuente en adultos fue “oncológico paliativo” (22, 0%), seguido de “otros”. En niños fue la enfermedad de Hirschsprung junto con la enterocolitis necrotizante, con cuatro casos (17, 4%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (60, 9%) como en adultos (35, 7%). El tipo de catéter más utilizado fue el tunelizado tanto en niños (81, 0%) como en adultos (41, 1%). Finalizaron 75 episodios, la causa más frecuente fue el fallecimiento (52, 0%) y el paso a vía oral (33, 3%). Conclusiones: el número de centros y profesionales colaboradores en el registro de pacientes que reciben NPD se mantiene estable, así como las principales indicaciones y los motivos de finalización de la NPD. Aim: To communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2018. Material and methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: There were 278 patients from 45 Spanish hospitals (54.7% women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was “palliative cancer” (22.0%), followed by “others”. In children it was Hirschsprung’s disease together with necrotizing enterocolitis, with four cases (17.4%). The first indication was short bowel syndrome in both children (60.9%) and adults (35.7%). The most frequently used type of catheter was tunneled in both children (81.0%) and adults (41.1%). Ending 75 episodes, the most frequent cause was death (52.0%) and change to oral feeding (33.3%). Conclusions: The number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.
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- 2020
15. Nutrición parenteral domiciliaria en España 2018. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
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Wanden-Berghe,Carmina, Cuerda Compes,Cristina, Maíz Jiménez,María Irene, Pereira Cunill,José Luis, Ramos Boluda,Esther, Gómez Candela,Carmen, Virgili Casas,Nuria, Burgos Peláez,Rosa, Luis Román,Daniel Antonio de, Penacho Lázaro,Mª Ángeles, Sánchez Martos,Eva Ángeles, Martínez Faedo,Ceferino, Díaz Guardiola,Patricia, Álvarez Hernández,Julia, Zugasti Murillo,Ana, Campos Martín,Cristina, Sanz Paris,Alejandro, Martín Fontalba,María de los Ángeles, Lobo,Gabriela, Matía Martín,Pilar, Carabaña Pérez,Fátima, Martín Folgueras,Tomás, Martín Palmero,Mª Ángela, Luengo Pérez,Luis Miguel, Sánchez-Vilar Burdiel,Olga, Martínez Costa,Cecilia, Tejera Pérez,Cristina, Martínez Ramírez,María José, García Delgado,Yaiza, Ponce González,Miguel Á, Mauri Roca,Silvia, García Zafra,Mª Victoria, Germán Díaz,Marta, Romero Gabino,Victoria, Molina Baeza,Begoña, Gonzalo Marín,Montserrat, Irles Rocamora,José Antonio, Sánchez Sánchez,Rebeca, Apezetxea Celaya,Antxón, Joaquín Ortiz,Clara, Suárez Llanos,José Pablo, Pintor de la Maza,Begoña, Leyes García,Pere, Gil Martínez,Mª Carmen, and Carrera Santaliestra,María José
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Soporte nutricional ,Cuidados domiciliarios ,Registros ,Epidemiología ,Nutrición parenteral domiciliaria ,Nutrición parenteral - Abstract
Resumen Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (http://www.nadya-senpe.com) del año 2018. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE del 1 de enero al 31 de diciembre de 2018. Resultados: se registraron 278 pacientes (54,7 % mujeres), 23 niños y 255 adultos, procedentes de 45 hospitales españoles, lo que representa una tasa de prevalencia de 5,95 pacientes/millón de habitantes/año 2018. El diagnóstico más frecuente en adultos fue “oncológico paliativo” (22,0 %), seguido de “otros”. En niños fue la enfermedad de Hirschsprung junto con la enterocolitis necrotizante, con cuatro casos (17,4 %). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (60,9 %) como en adultos (35,7 %). El tipo de catéter más utilizado fue el tunelizado tanto en niños (81,0 %) como en adultos (41,1 %). Finalizaron 75 episodios, la causa más frecuente fue el fallecimiento (52,0 %) y el paso a vía oral (33,3 %). Conclusiones: el número de centros y profesionales colaboradores en el registro de pacientes que reciben NPD se mantiene estable, así como las principales indicaciones y los motivos de finalización de la NPD.
- Published
- 2020
16. Metabolic serendipities of expanded newborn screening
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European Commission, Yahyaoui, Raquel, Blasco-Alonso, Javier, Gonzalo-Marín, Montserrat, Benito, Carmen, Serrano-Nieto, Juliana, González-Gallego, Inmaculada, Ruiz-Sala, Pedro, Pérez, Belén, González-Lamuño, Domingo, European Commission, Yahyaoui, Raquel, Blasco-Alonso, Javier, Gonzalo-Marín, Montserrat, Benito, Carmen, Serrano-Nieto, Juliana, González-Gallego, Inmaculada, Ruiz-Sala, Pedro, Pérez, Belén, and González-Lamuño, Domingo
- Abstract
Incidental findings on newborn screening (NBS) are results that are not the target of screening within a given NBS program, but rather are found as a result of the screening and resulting diagnostic workup for that target. These findings may not have an immediate clinical impact on the newborn, but are sometimes an additional benefit of NBS programs and may be considered secondary targets of NBS programs. This work describes four case reports that had incidental findings on the NBS, which eventually led to the diagnosis of another metabolic disease instead of the one that was initially suspected. The first case was a new defect in the cationic amino acid transporter-2 (CAT-2), which was oriented as an arginase-1 deficiency in the newborn. The second case was a maternal glutaric aciduria type 1 (GA-1) that mimicked a carnitine transporter deficiency in the newborn. The third report was a case of lysinuric protein intolerance (LPI), which appeared as high levels of citrulline on the NBS. The fourth case was a mother with homocystinuria that was diagnosed during the biochemical study of vitamin B12 status. All cases provide new or interesting data that will help guide differential diagnosis in the future
- Published
- 2020
17. Home and Ambulatory Artificial Nutrition (NADYA) Group report: home parenteral nutrition in Spain, 2019
- Author
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Wanden-Berghe, Carmina, primary, Virgili Casas, Nuria, additional, Cuerda Compés, Cristina, additional, Ramos Boluda, Esther, additional, Pereira Cunill, José Luis, additional, Maíz Jiménez, María Irene, additional, Burgos Peláez, Rosa, additional, Gómez Candela, Carmen, additional, Penacho Lázaro, María Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, de Luis Román, Daniel Antonio, additional, Zugasti Murillo, Ana, additional, Martínez Faedo, Ceferino, additional, Álvarez Hernández, Julia, additional, Campos Martín, Cristina, additional, Rioja-vázquez, Rosalía, additional, Irles Rocamora, Juan Antonio, additional, Díaz Guardiola, Patricia, additional, Sanz París, Alejandro, additional, Matía Martín, Pilar, additional, Carabaña Pérez, Fátima, additional, Martín Folgueras, Tomás, additional, Martín Palmero, María Ángela, additional, Luengo Pérez, Luis Miguel, additional, Martínez Costa, Cecilia, additional, Tejera Pérez, Cristina, additional, Arraiza Irigoyen, Carmen, additional, Sánchez-Vilar Burdiel, Olga, additional, García Delgado, Yaiza, additional, Ponce González, Miguel Á., additional, Mauri Roca, Sílvia, additional, García Zafra, María Victoria, additional, Germán Díaz, Marta, additional, Morán López, Jesús M., additional, Molina Baeza, Begoña, additional, Gonzalo Marín, Montserrat, additional, Sánchez Sánchez, Rebeca, additional, Calañas Continente, Alfonso, additional, Garde Orbaiz, Carmen, additional, Martínez Olmos, Miguel Ángel, additional, Joaquín Ortiz, Clara, additional, Suárez Llanos, José Pablo, additional, Forga Visa, María de Talló, additional, Gil Martinez, M.ª Carmen, additional, Carrera Santaliestra, María José, additional, Padín López, Susana, additional, Lobo, Gabriela, additional, Apezetxea Celaya, Antxón, additional, Ballesta Sánchez, Carmen, additional, Bonada Sanjaume, Anna, additional, Cánovas Gaillemin, Bárbara, additional, Cardona Pera, Daniel, additional, García Puente, Ignacio, additional, Higuera Pulgar, Isabel, additional, Miserachs Aranda, Nuria, additional, del Olmo García, María Dolores, additional, Palma Milla, Samara, additional, Parés Marimón, Rosa María, additional, and Pintor de la Maza, Begoña, additional
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- 2021
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18. The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019
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Wanden-Berghe, Carmina, primary, Campos Martín, Cristina, additional, Álvarez Hernández, Julia, additional, Burgos Peláez, Rosa, additional, Matía Martín, Pilar, additional, Cuerda Compés, Cristina, additional, Lobo, Gabriela, additional, Martínez Olmos, Miguel Ángel, additional, De Luis Román, Daniel Antonio, additional, Palma Milla, Samara, additional, Gonzalo Marín, Montserrat, additional, Padín López, Susana, additional, Luengo Pérez, Luis Miguel, additional, Santacruz Carmona, Nieves, additional, Pintor de la Maza, Begoña, additional, Suárez Llanos, José Pablo, additional, Irles Rocamora, José Antonio, additional, Forga Visa, María de Talló, additional, Martín Palmero, María Ángela, additional, Sánchez Sánchez, Rebeca, additional, Cardona Pera, Daniel, additional, Tejera Pérez, Cristina, additional, Ballesta Sánchez, Carmen, additional, Higuera Pulgar, Isabel, additional, Bonada Sanjaume, Anna, additional, Penacho Lázaro, María Ángeles, additional, Garde Orbaiz, Carmen, additional, Arraiza Irigoyen, Carmen, additional, Martín Folgueras, Tomás, additional, Virgili Casas, Nuria, additional, Cánovas Gaillemin, Bárbara, additional, Maíz Jiménez, María Irene, additional, del Olmo García, María Dolores, additional, Carabaña Pérez, Fátima, additional, Parés Marimón, Rosa María, additional, Morán López, Jesús M., additional, Mauri Roca, Sílvia, additional, García Puente, Ignacio, additional, Sánchez-Vilar Burdiel, Olga, additional, García Delgado, Yaiza, additional, Miserachs Aranda, Nuria, additional, Calañas Continente, Alfonso, additional, Apezetxea Celaya, Antxón, additional, Pereira Soto, Manuel Ángel, additional, Sánchez Martos, Eva Ángeles, additional, and Ponce González, Miguel Á., additional
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- 2021
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19. Development of a New Fear of Hypoglycemia Scale: FH-15
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Anarte Ortiz, María Teresa, Caballero, Francisco Félix, Ruiz de Adana, María Soledad, Rondán, Rosa María, Carreira, Mónica, Domínguez-López, Marta, Machado, Alberto, Gonzalo-Marín, Montserrat, Tapia, María José, Valdés, Sergio, González-Romero, Stella, and Soriguer, Federico C.
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- 2011
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20. Metabolic Serendipities of Expanded Newborn Screening
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Yahyaoui, Raquel, primary, Blasco-Alonso, Javier, additional, Gonzalo-Marín, Montserrat, additional, Benito, Carmen, additional, Serrano-Nieto, Juliana, additional, González-Gallego, Inmaculada, additional, Ruiz-Sala, Pedro, additional, Pérez, Belén, additional, and González-Lamuño, Domingo, additional
- Published
- 2020
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21. Home and Ambulatory Artificial Nutrition (NADYA) Group Report. Home parenteral nutrition in Spain, 2018
- Author
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Wanden-Berghe Lozano, Carmina, primary, Cuerda Compes, Cristina, additional, Maíz Jiménez, María, additional, Pereira Cunill, José Luis, additional, Ramos Boluda, Esther, additional, Gómez Candela, Carmen, additional, Virgili Casas, María Nuria, additional, Burgos Peláez, Rosa, additional, de Luis, Daniel A., additional, Penacho Lázaro, Mª Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, Martínez Faedo, Ceferino, additional, Díaz Guardiola, Patricia, additional, Álvarez Hernández, Julia, additional, Zugasti Murillo, Ana, additional, Campos Martín, Cristina, additional, Sanz Paris, Alejandro, additional, Martín Fontalba, María de los Ángeles, additional, Lobo-Támer, Gabriela, additional, Matía Martín, María Pilar, additional, Carabaña Pérez, Fátima, additional, Martín Folgueras, Tomás, additional, Martín Palmero, M.ª Ángela, additional, Luengo Pérez, Luis Miguel, additional, Sánchez-Vilar Burdiel, Olga, additional, Martínez Costa, Cecilia, additional, Tejera, Cristina, additional, Martínez Ramírez, María José, additional, García Delgado, Yaiza, additional, Ponce González, Miguel Ángel, additional, Mauri Roca, Sílvia, additional, García Zafra, María Victoria, additional, Germán Díaz, Marta, additional, Romero, Victoria, additional, Molina Baeza, Begoña, additional, Gonzalo Marín, Montserrat, additional, Irles Rocamora, José Antonio, additional, Sánchez Sánchez, Rebeca, additional, Apezetxea Celaya, Antxón, additional, Joaquín Ortiz, Clara, additional, Suárez Llanos, José Pablo, additional, Pintor de la Maza, Begoña, additional, Leyes García, Pere, additional, Gil Martinez, M.ª Carmen, additional, and Carrera Santaliestra, María José, additional
- Published
- 2020
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22. [Home and Ambulatory Artificial Nutrition (NADYA) Report. Home Parenteral Nutrition in Spain, 2017]
- Author
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Wanden-Berghe Lozano, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Ramos Boluda, Esther, Maiz Jiménez, María Irene, Gómez Candela, Carmen, Virgili Casas, Nuria, Burgos Peláez, Rosa, Pérez de la Cruz, Antonio, Penacho Lázaro, M ª Ángeles, Sánchez Martos, Eva Ángeles, De Luis Román, Daniel Antonio, Martínez Faedo, Ceferino, Martín Fontalba, María de Los Ángeles, Álvarez Hernández, Julia, Matía Martín, Pilar, Díaz Guardiola, Patricia, Carabaña Pérez, Fátima, Sanz París, Alejandro, Garde Orbaiz, Carmen, Sánchez-Vilar Burdiel, Olga, Martín Folgueras, Tomás, Martín Palmero, M ª Ángela, Luengo Pérez, Luis Miguel, Zugasti Murillo, Ana, Martínez Costa, Cecilia, Suárez Llanos, José Pablo, Tejera Pérez, Cristina, Irles Rocamora, José Antonio, Arraiza Irigoyen, Carmen, García Delgado, Yaiza, Campos Martín, Cristina, Ponce González, Miguel Ángel, Mauri Roca, Silvia, García Zafra, M ª Victoria, Morán López, Jesús M, Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Joaquín Ortiz, Clara, Pintor de la Maza, Begoña, Gil Martínez, M ª Carmen, Carrera Santaliestra, María José, Forga Visa, M ª Del Talló, Apezetxea Celaya, Antxón, Sánchez Sánchez, Rebeca, and Urgeles Planella, Juan Ramón
- Subjects
Adult ,Male ,Short Bowel Syndrome ,Spain ,Neoplasms ,Palliative Care ,Humans ,Female ,Hirschsprung Disease ,Registries ,Child ,Parenteral Nutrition, Home - Abstract
to communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2017.descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2017 to December 31st, 2017.there were 308 patients from 45 Spanish hospitals (54.5% women), 38 children and 270 adults, with 3,012 episodes, which represent a prevalence rate of 6.61 patients/million inhabitants/year 2017. The most frequent diagnosis in adults was "palliative cancer" (25.6%), followed by "others". In children, it was Hirschsprung's disease with six cases (15.8%). The first indication was short bowel syndrome in both children (55.3%) and adults (33.7%). The most frequently used type of catheter was tunneled in both children (73.4%) and adults (38.2%). Ending 81 episodes, the most frequent cause was death (62.9%) and transition to oral feeding (34.7%).the progressive increase of collaborating centers and professionals in the registry of patients receiving NPD is maintained. The main indications of HPN and the motive for ending have remained stable.OBJETIVO: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe. com) del año 2017. MATERIAL Y MÉTODOS: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2017. RESULTADOS: se registraron 308 pacientes (54,5% mujeres), 38 niños y 270 adultos, procedentes de 45 hospitales españoles, en total 312 episodios, lo que representa una tasa de prevalencia de 6,61 pacientes/millón de habitantes/año 2017. El diagnóstico más frecuente en adultos fue “oncológico paliativo” (25,6%), seguido de “otros”. En niños fue la enfermedad de Hirschsprung, con seis casos (15,8%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (55,3%) como en adultos (33,7%). El tipo de catéter más utilizado fue el tunelizado tanto en niños (74,3%) como en adultos (38,2%). Finalizaron 81 episodios; la causa más frecuente fue el fallecimiento (62,9%) y que pasaron a vía oral (34,7%). CONCLUSIONES: se mantiene el incremento progresivo de centros y profesionales colaboradores en el registro de pacientes que reciben NPD. Las principales indicaciones de NPD y de motivo de finalización se mantienen estables.
- Published
- 2018
23. Home and Ambulatory Artiificial Nutrition (NADYA) Group Report - Home parenteral nutrition in Spain, 2016
- Author
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Wanden-Berghe, Carmina, Virgili Casas, Nuria, Ramos Boluda, Esther, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Gómez Candela, Carmen, Burgos Peláez, Rosa, Penacho Lázaro, M.ª Ángeles, Pérez de la Cruz, Antonio, Álvarez Hernández, Julia, Gonzalo Marín, Montserrat, Matía Martín, Pilar, Martínez Faedo, Ceferino, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Campos Martín, Cristina, Martín Folgueras, Tomás, Martín Palmero, M. Ángela, Martín Fontalba, María de los Ángeles, Luengo Pérez, Luis Miguel, Zugasti Murillo, Ana, Martínez Ramírez, María José, Carabaña Pérez, Fátima, Martínez Costa, Cecilia, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, Parés Marimón, Rosa M.ª, Irles Rocamora, José Antonio, Garde Orbaiz, Carmen, Ponce González, Miguel Ángel, García Zafra, María Victoria, Sánchez Sánchez, Rebeca, Urgeles Planella, Juan Ramón, Apezetxea Celaya, Antxón, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Pintor de la Maza, Begoña, Leyes García, Pere, Gil Martínez, M.ª Carmen, Mauri Roca, Silvia, and Carrera Santaliestra, María José
- Subjects
Home parenteral nutrition ,Soporte nutricional ,Epidemiology ,Cuidados domiciliarios ,Registros ,Epidemiología ,Nutrición parenteral domiciliaria ,Nutrición parenteral ,Registries ,Home care services ,Parenteral nutrition ,Nutritional support - Abstract
Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA-SENPE; www.nadya-senpe.com) del año 2016. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2016. Resultados: se registraron 286 pacientes (54,2% mujeres), 34 niños y 252 adultos, procedentes de 42 hospitales españoles con 294 episodios, lo que representa una tasa de prevalencia de 6,16 pacientes/millón de habitantes/año 2016. El diagnóstico más frecuente en adultos fue de oncológico paliativo (25,8%), seguido de otros. En niños, fue de alteraciones de la motilidad con 6 casos (17,6%), la enfermedad de Hirschsprung y la enterocolitis necrotizante, ambos con 5 niños (14,7%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (64,7%) como en adultos (37,3%), seguido de obstrucción intestinal, 28,6% en adultos y 14,7% en niños. El tipo de catéter más utilizado fue el tunelizado tanto en niños (70,6%) como en adultos (37,9%), y la complicación más frecuente en adultos fue la infección relacionada con el catéter, que presentó una tasa de 0,48 infecciones/1.000 días de NPD. Durante este periodo, finalizaron 71 episodios en adultos siendo la causa de finalización principal el fallecimiento (57,7%) y paso a vía oral (31%). Conclusiones: se constata un incremento progresivo de centros y profesionales colaboradores en el registro de pacientes que reciben NPD. Las principales indicaciones de NPD y de motivo de finalización se mantienen estables. Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016. Material and methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31 st, 2016. Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%). Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.
- Published
- 2017
24. Nutrición parenteral domiciliaria en España 2017. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
- Author
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Wanden-Berghe Lozano, Carmina, primary, Pereira Cunill, José Luis, additional, Cuerda Compes, Cristina, additional, Ramos Boluda, Esther, additional, Maiz Jiménez, María Irene, additional, Gómez Candela, Carmen, additional, Virgili Casas, Nuria, additional, Burgos Peláez, Rosa, additional, Pérez de la Cruz, Antonio, additional, Penacho Lázaro, M.ª Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, De Luis Román, Daniel Antonio, additional, Martínez Faedo, Ceferino, additional, Martín Fontalba, María de los Ángeles, additional, Álvarez Hernández, Julia, additional, Matía Martín, Pilar, additional, Díaz Guardiola, Patricia, additional, Carabaña Pérez, Fátima, additional, Sanz París, Alejandro, additional, Garde Orbaiz, Carmen, additional, Sánchez-Vilar Burdiel, Olga, additional, Martín Folgueras, Tomás, additional, Martín Palmero, M.ª Ángela, additional, Luengo Pérez, Luis Miguel, additional, Zugasti Murillo, Ana, additional, Martínez Costa, Cecilia, additional, Suárez Llanos, José Pablo, additional, Tejera Pérez, Cristina, additional, Irles Rocamora, José Antonio, additional, Arraiza Irigoyen, Carmen, additional, García Delgado, Yaiza, additional, Campos Martín, Cristina, additional, Ponce González, Miguel Ángel, additional, Mauri Roca, Silvia, additional, García Zafra, M.ª Victoria, additional, Morán López, Jesús M., additional, Molina Baeza, Begoña, additional, Gonzalo Marín, Montserrat, additional, Joaquín Ortiz, Clara, additional, Pintor de la Maza, Begoña, additional, Gil Martínez, M.ª Carmen, additional, Carrera Santaliestra, María José, additional, Forga Visa, M.ª del Talló, additional, Apezetxea Celaya, Antxón, additional, Sánchez Sánchez, Rebeca, additional, and Urgeles Planella, Juan Ramón, additional
- Published
- 2018
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25. Normative reference values for hand grip dynamometry in Spain. Association with lean mass.
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Sánchez Torralvo, Francisco José, primary, Porras, Nuria, additional, Abuín Fernández, José, additional, García Torres, Francisca, additional, Tapia, María José, additional, Lima, Fuensanta, additional, Soriguer, Federico, additional, Gonzalo Marín, Montserrat, additional, Rojo Martínez, Gemma, additional, and Olveira, Gabriel, additional
- Published
- 2018
- Full Text
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26. Nutrición parenteral domiciliaria en España durante 2015: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
- Author
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Wanden-Berghe, Carmina, Campos Martín, Cristina, Cuerda Compes, Cristina, Gómez Candela, Carmen, Burgos Peláez, Rosa, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Pérez de la Cruz, Antonio, Virgili Casas, Nuria, Martínez Faedo, Ceferino, Álvarez Hernández, Julia, Garde Orbaiz, Carmen, Penacho Lázaro, M.ª Ángeles, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Gonzalo Marín, Montserrat, Zugasti Murillo, Ana, Matía Martín, Pilar, Martín Folgueras, Tomás, Carabaña Pérez, Fátima, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, Luis Román, Daniel de, Luengo Pérez, Luis Miguel, Santacruz Carmona, Nieves, Apezetxea Celaya, Antxón, Ponce González, Miguel Ángel, Urgeles Planella, Juan Ramón, Laborda González, Lucía, Martínez Olmos, Miguel Ángel, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Martínez Costa, Cecilia, Suárez Llanos, José Pablo, Calleja Fernández, Alicia, Leyes García, Pere, Gil Martínez, M.ª Carmen, Mauri, Silvia, García Zafra, María Victoria, and Carrera Santaliestra, Maria José
- Subjects
Home parenteral nutrition ,Soporte nutricional ,Epidemiolgy ,Cuidados domiciliarios ,Registros ,Epidemiología ,Nutrición parenteral domiciliaria ,Nutrición parenteral ,Registries ,Home care services ,Parenteral nutrition ,Nutritional support - Abstract
Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2015. Material y métodos: recopilación de los datos de NPD del registro online del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2015 al 31 de diciembre de 2015. Resultados: se registraron 236 pacientes, con 243 episodios de NPD procedentes de 40 hospitales, lo que representa una tasa de 5,08 pacientes/millón de habitantes/año 2015. La patología más frecuente en los adultos fue "otros" (26,3%) seguido por "oncológico paliativo" (21,6%). La complicación más frecuente fue la séptica relacionada con el catéter, que presentó una tasa de 0,53 infecciones/1.000 días de NPD. Finalizaron 64 episodios, la principal causa fue el fallecimiento (43,7%) y el "paso a la vía oral" (32,8%). Conclusiones: constatamos el aumento de los centros y profesionales colaboradores, dando respuesta a la cantidad progresivamente mayor de pacientes con soporte nutricional parenteral en domicilio. Se mantienen estables las principales indicaciones para el establecimiento de NPD y las causas de finalización del tratamiento. Aim: To communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYA-SENPE group for the year 2015. Material and methods: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2015. Results: Two hundred and thirty-six patients with 243 episodes of NPD were recorded from 40 hospitals. This represents a rate of 5.08 patients/million habitants for 2015. The most frequent pathology in adults was other (26.3%) followed by palliative oncological (21.6%). The most common complication was catheter-related sepsis which presented a rate of 0.53 infections/1,000 days of HPN. Sixty-four episodes were finished; the main cause was death (43.7%) and resuming to oral via (32.8%). Conclusions: we find increasing centers and professional partners, responding to the progressively more patients with parenteral nutrition support at home. The main indications for the establishment of NPD and causes termination of treatment remain stable.
- Published
- 2016
27. Nutrición parenteral domiciliaria en España durante 2015: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
- Author
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Wanden-Berghe,Carmina, Campos Martín,Cristina, Cuerda Compes,Cristina, Gómez Candela,Carmen, Burgos Peláez,Rosa, Moreno Villares,José Manuel, Pereira Cunill,José Luis, Pérez de la Cruz,Antonio, Virgili Casas,Nuria, Martínez Faedo,Ceferino, Álvarez Hernández,Julia, Garde Orbaiz,Carmen, Penacho Lázaro,M.ª Ángeles, Sánchez Martos,Eva Ángeles, Sanz Paris,Alejandro, Gonzalo Marín,Montserrat, Zugasti Murillo,Ana, Matía Martín,Pilar, Martín Folgueras,Tomás, Carabaña Pérez,Fátima, Díaz Guardiola,Patricia, Tejera Pérez,Cristina, Luis Román,Daniel de, Luengo Pérez,Luis Miguel, Santacruz Carmona,Nieves, Apezetxea Celaya,Antxón, Ponce González,Miguel Ángel, Urgeles Planella,Juan Ramón, Laborda González,Lucía, Martínez Olmos,Miguel Ángel, Sánchez-Vilar Burdiel,Olga, Joaquín Ortiz,Clara, Martínez Costa,Cecilia, Suárez Llanos,José Pablo, Calleja Fernández,Alicia, Leyes García,Pere, Gil Martínez,M.ª Carmen, Mauri,Silvia, García Zafra,María Victoria, and Carrera Santaliestra,Maria José
- Subjects
Soporte nutricional ,Cuidados domiciliarios ,Registros ,Epidemiología ,Nutrición parenteral domiciliaria ,Nutrición parenteral - Abstract
Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2015. Material y métodos: recopilación de los datos de NPD del registro online del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2015 al 31 de diciembre de 2015. Resultados: se registraron 236 pacientes, con 243 episodios de NPD procedentes de 40 hospitales, lo que representa una tasa de 5,08 pacientes/millón de habitantes/año 2015. La patología más frecuente en los adultos fue "otros" (26,3%) seguido por "oncológico paliativo" (21,6%). La complicación más frecuente fue la séptica relacionada con el catéter, que presentó una tasa de 0,53 infecciones/1.000 días de NPD. Finalizaron 64 episodios, la principal causa fue el fallecimiento (43,7%) y el "paso a la vía oral" (32,8%). Conclusiones: constatamos el aumento de los centros y profesionales colaboradores, dando respuesta a la cantidad progresivamente mayor de pacientes con soporte nutricional parenteral en domicilio. Se mantienen estables las principales indicaciones para el establecimiento de NPD y las causas de finalización del tratamiento.
- Published
- 2016
28. [HOME AND AMBULATORY ARTIFICIAL NUTRITION (NADYA) GROUP REPORT, HOME PARENTERAL NUTRITION IN SPAIN, 2014]
- Author
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Wanden-Berghe, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pérez de la Cruz, Antonio, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Penacho Lázaro, M Angeles, Martinez Faedo, Ceferino, Garde Orbaiz, Carmen, Gonzalo Marín, Montserrat, Sanz Paris, Alejandro, Álvarez, Julia, Sánchez Martos, Eva Angeles, Martín Folgueras, Tomás, Campos Martín, Cristina, Matía Martín, Pilar, Zugasti, Ana, Carabaña Pérez, Fátima, García Zafra, Maria Victoria, Ponce Gonzalez, Miguel Angel, Suárez Llanos, José Pablo, Martínez Costa, Cecilia, De Luis, Daniel, Apezetxea Celaya, Antxón, Luengo Pérez, Luis Miguel, Díaz Guardiola, Patricia, Gil Martinez, M Carmen, Del Olmo García, M Dolores, Leyes García, Pere, Vidal Casariego, Alfonso, Joaquin Ortiz, Clara, Sánchez-Vilar Burdiel, Olga, and Laborda González, Lucía
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Adult ,Aged, 80 and over ,Adolescent ,Infant, Newborn ,Infant ,Middle Aged ,Young Adult ,Spain ,Child, Preschool ,Health Care Surveys ,Humans ,Nutrition Therapy ,Child ,Parenteral Nutrition, Home ,Aged - Abstract
to communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYASENPE group for the year 2014.data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2014.a total of 220 patients and 229 episodes of HPN were registered from 37 hospitals that represents a rate of 4.7 patients/million habitants/year 2014. The most frequent disease in adults was other diseases (23.3%), neoplasm (20.4%) followed by radical active neoplasm (11.8%) and mesenteric ischemia (10.9%). The most frequent diagnosis for children were the congenital intestinal disorders (33.3%) followed by traumatic short bowel and other diagnosis.the number of participating centers and registered patients increased progressively respect to preceding years. We consider that the HPN should be regulated by the Sanitary Administration within the framework of the National Health Service Interregional Council. And its inclusion in the portfolio of health services of the different Autonomous Comunities would be beneficial for patients and professionals.Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro “on-line” del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: ‘otros diagnósticos’ (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: ‘alteraciones congénitas intestinales’ (33,3%), seguidas por ‘intestino corto traumático’ y ‘otro diagnóstico’. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales.
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- 2015
29. Nutrición parenteral domiciliaria en España durante 2014: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
- Author
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Wanden-Berghe, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pérez de la Cruz, Antonio, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Penacho Lázaro, M.ª Ángeles, Martínez Faedo, Ceferino, Garde Orbaiz, Carmen, Gonzalo Marín, Montserrat, Sanz Paris, Alejandro, Álvarez, Julia, Sánchez Martos, Eva Ángeles, Martín Folgueras, Tomás, Campos Martín, Cristina, Matía Martín, Pilar, Zugasti, Ana, Carabaña Pérez, Fátima, García Zafra, María Victoria, Ponce González, Miguel Ángel, Suárez Llanos, José Pablo, Martínez Costa, Cecilia, Luis, Daniel de, Apezetxea Celaya, Antxón, Luengo Pérez, Luis Miguel, Díaz Guardiola, Patricia, Gil Martínez, M.ª Carmen, Olmo García, M.ª Dolores del, Leyes García Grupo, Pere, Vidal Casariego, Alfonso, Joaquín Ortiz, Clara, Sánchez-Vilar Burdiel, Olga, and Laborda González, Lucía
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Home parenteral nutrition ,Soporte nutricional ,Epidemiolgy ,Cuidados domiciliarios ,Registros ,Epidemiología ,Nutrición parenteral domiciliaria ,Nutrición parenteral ,Registries ,Home care services ,Parenteral nutrition ,Nutritional support - Abstract
Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro "on-line" del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: ‘otros diagnósticos' (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: ‘alteraciones congénitas intestinales' (33,3%), seguidas por ‘intestino corto traumático' y ‘otro diagnóstico'. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales. Aim: to communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYASENPE group for the year 2014. Material and methods: data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2014. Results: a total of 220 patients and 229 episodes of HPN were registered from 37 hospitals that represents a rate of 4.7 patients/million habitants/year 2014. The most frequent disease in adults was other diseases (23.3%), neoplasm (20.4%) followed by radical active neoplasm (11.8%) and mesenteric ischemia (10.9%). The most frequent diagnosis for children were the congenital intestinal disorders (33.3%) followed by traumatic short bowel and other diagnosis. Conclusions: the number of participating centers and registered patients increased progressively respect to preceding years. We consider that the HPN should be regulated by the Sanitary Administration within the framework of the National Health Service Interregional Council. And its inclusion in the portfolio of health services of the different Autonomous Comunities would be beneficial for patients and professionals.
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- 2015
30. A Home and Ambulatory Artificial Nutrition (NADYA) group report, Home Parenteral Nutrition in Spain, 2013
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Wanden-Berghe, Carmina, Cuerda Compes, J Cristina, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Pérez de la Cruz, Antonio, Moreno Villares, José Manuel, Carabaña Pérez, Fátima, Garde Orbaiz, Carmen, Martínez Faedo, Ceferino, Penacho Lázaro, Ma Ángeles, Gonzalo Marín, Montserrat, García Luna, Pedro Pablo, Matía Martín, Pilar, Sanz Paris, Alejandro, Luengo Pérez, Luis Miguel, Martín Folgueras, Tomás, García Zafra, María Victoria, Álvarez Hernández, Campos Martín, Cristina, Suárez Llanos, José Pablo, Zugasti, Ana, Apezetxea Celaya, Antxón, Urgeles Planella, Juan Ramon, Laborda González, Lucía, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Martínez Costa, Cecilia, Vidal Casariego, Alfonso, Leyes García, Pere, Ponce González, Miguel Angel, Gil Martínez, Ma Carmen, Sánchez Martos, Eva Ángeles, del Olmo García, Ma Dolores, Díaz Guardiola, Patricia, Grupo NADYA-SENPE, and [Wanden-Berghe,C] FISABIO-Hospital General Universitario de Alicante. Universidad Miguel Hernández (Elche), Alicante. [Cuerda Compes,JC] Hospital Gregorio Marañón. [Burgos Peláez,R] Hospital Vall d’Hebrón, Barcelona. [Gómez Candela,C] Hospital La Paz. [Virgili Casas,N] Hospital Universitario Bellvitge, L’Hospitalet de Llobregat, Barcelona. [Pérez de la Cruz,A] Hospital Virgen de las Nieves, Granada. [Moreno Villares,JM] Hospital Universitario 12 de Octubre, Madrid. [Carabaña Pérez,F] Hospital Ramón y Cajal, Madrid. [Garde Orbaiz,C] Hospital Universitario Donostia, Guipuzkoa. [Martínez Faedo,C] Hospital Universitario Central de Asturias. [Penacho Lázaro,MA] Hospital El Bierzo, Ponferrada, León. [Gonzalo Marín,M] Hospital Universitario Carlos Haya. Málaga. [García Luna,PP] Hospital Universitario Virgen del Rocío, Sevilla. [Matía Martín,P] Hospital Clínico San Carlos, Madrid. [Sanz Paris,A] Hospital Universitario Miguel Servet, Zaragoza. [Luengo Pérez,LM] Hospital Infanta Cristina, Badajoz. [Martín Folgueras,T] Complejo Hospitalario Universitario de Canarias, Santa Cruz de Tenerife. [García Zafra,MV] Hospital Universitario Virgen de la Arrixaca, Murcia. [Álvarez Hernández] Hospital Príncipe de Asturias ,Alcalá de Henares, Madrid. [Campos Martín,C] Hospital Universitario Virgen Macarena, Sevilla. [Suárez Llanos,JP] Hospital Universitario Nuestra Señora de la Candelaria, Santa Cruz de Tenerife. [Zugasti,A] Hospital Virgen del Camino, Pamplona. [Apezetxea Celaya,A] Hospital Basurto, Bilbao. [Urgeles Planella,JR] Hospital Universitario Son Espases, Palma de Mallorca. [Laborda González,L] Hospital de Cruce, Bilbao. [Sánchez-Vilar Burdiel,O] Fundación Jiménez Díaz, Madrid. [Joaquín Ortiz,C] Hospital Germans Trias i Pujol, Barcelona. [Martínez Costa,C] Hospital Clínico Universitario, Valencia. [Vidal Casariego,A] Complejo Asistencial de León. [Leyes García,P] Hospital Clinic, Barcelona. [Ponce González,MA] Hospital Universitario Dr Negrín, Gran Canaria. [Gil Martínez,MC] Hospital Central de la Defensa Gomez Ulla, Madrid. [Sánchez Martos,EA ] Corporació Sanitària Parc Taulí, Barcelona. [del Olmo García,MD] Hospital Universitario Severo Ochoa , Leganés, Madrid. [Díaz Guardiola,P] Hospital Infanta Sofía, San Sebastian de los Reyes, Madrid. Spain.
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Adult ,Male ,Adolescent ,Nutrición parenteral domiciliaria ,Nutrición parenteral ,Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Feeding Methods::Parenteral Nutrition::Parenteral Nutrition, Home [Medical Subject Headings] ,Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans [Medical Subject Headings] ,Young Adult ,Epidemiolgy ,Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Epidemiologic Study Characteristics as Topic::Epidemiologic Studies::Cohort Studies::Longitudinal Studies::Follow-Up Studies [Medical Subject Headings] ,Named Groups::Persons::Age Groups::Adult [Medical Subject Headings] ,Ambulatory Care ,Registros ,Epidemiología ,Humans ,Registries ,Nutritional support ,Child ,Named Groups::Persons::Age Groups::Child [Medical Subject Headings] ,Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases [Medical Subject Headings] ,Aged ,Aged, 80 and over ,Home parenteral nutrition ,Disciplines and Occupations::Social Sciences::Sociology::Minority Groups [Medical Subject Headings] ,Age Factors ,Infant ,Home care services ,Diseases::Neoplasms [Medical Subject Headings] ,Middle Aged ,Parenteral nutrition ,Soporte nutricional ,Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Intestinal Obstruction [Medical Subject Headings] ,Spain ,Child, Preschool ,Cuidados domiciliarios ,Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Mesenteric Ischemia [Medical Subject Headings] ,Female ,Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries [Medical Subject Headings] ,Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Malabsorption Syndromes::Short Bowel Syndrome [Medical Subject Headings] ,Parenteral Nutrition, Home - Abstract
AIM: To communicate the results of the Spanish Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE group for the year 2013. MATERIAL AND METHODS: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2013. RESULTS: A total of 197 patients and 202 episodes of HPN were registered from 35 hospitals that represents a rate of 4,22 patients/million habitants/year 2013. The median age was 53 years (IQR 40-64) for 189 adult patients and 7 months (IQR 6-35,5) for children. The most frequent disease in adults was neoplasm (30,7%) followed by other diseases (20,1%) and mesenteric ischemia (12,7%). Short bowel syndrome and intestinal obstruction (25,9%) were in 35.7% cases the indications for HPN. The most frequent diagnosis for children were the congenital intestinal disorders and other diagnosis, both with a (37,5%) and short bowel syndrome and intestinal obstruction were the indication for treatment, each was present in 50% of the sample. Tunneled catheters (50%) and subcutaneous reservoirs (27,7%) were frequently used. The septic complications related with catheter were commonly frequent with a rate of 0.74 infections/1000 HPN days. HPN duration presented a median of 1,69 days. A total of 86 episodes finalized during the year, death was the principal reason (45%), followed by "resumed oral via" (43,75%) while it happened inversely for children, 66,7% of them resumed oral via and 16,7% deceased. Fifteen per cent were considered for intestinal transplant, children were proportionally candidates, p-value 0.002. CONCLUSIONS: The number of participating centers and registered patients increased progressively respect to preceding years. Since 2003 Neoplasm is still being the principal pathological group. Death is adult's principal reason for finalizing HPN and "resuming oral via" for children. Despite that NADYA registry is consolidate as a essential source of relevant information about the advances in Home Artificial Nutrition in our country, currently is in an improvement process of the available information about patients characteristics with a special emphasis on children even though they still being a minority group. Yes Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del años 2013. Material y métodos: recopilación de los datos del registro “on-line” introducidos por los colaboradores del grupo NADYA responsables del seguimiento de la NPD desde el 1 de enero de 2013 al 31 de diciembre de 2013. Resultados: se registraron 197 pacientes, procedentes de 35 hospitales, lo que representa una tasa de 4,22 pacientes/ millón habitantes/año 2013, con 202 episodios de NPD. La edad media de los 189 pacientes mayores de 14 años fue de 53 años (IIQ 40 – 64), y en los niños de 7 meses (IIQ 6 – 35,5). La patología más frecuente en los adultos fue la neoplasia (30,7%) seguida por otras patologías (20,1%) y la isquemia mesentérica (12,7%). En el 35,4% de los casos el motivo de indicación fue el síndrome de intestino corto, seguido de la obstrucción intestinal (25,9%). En los niños el diagnóstico más frecuente fueron las alteraciones congénitas intestinales y ‘otros diagnósticos’, ambas con un 37,5 %, y la causa de la indicación el síndrome de intestino corto y la obstrucción intestinal, que se repartieron el 50% de la muestra. Los catéteres más utilizados fueron los tunelizados (50%) y los reservorios subcutáneos (27,7%). Las complicaciones más frecuentes fueron las sépticas, relacionadas con el catéter, con una tasa de 0,74 infecciones/1.000 días de NPD. La duración de la NPD presentó una mediana de 1,69 años. Durante el año finalizaron 86 episodios, la principal causa de la finalización en adultos fue el fallecimiento (45%) seguido del ‘paso a la vía oral’ (43,75%) y en los niños a la inversa 66,7% pasan a vía oral y 16,7% fallecen. Se consideraron candidatos para trasplante intestinal el 15% de los pacientes, siendo proporcionalmente los candidatos niños, p-valor 0,002. Conclusiones: se observa un aumento progresivo de los centros participantes y de los pacientes registrados respecto a años anteriores. El principal grupo patológico sigue siendo oncológico, ocupando el primer lugar desde 2003. La principal causa de finalización de la NPD es en los adultos el fallecimiento y en los niños el ‘paso a vía oral’. Aunque el registro NADYA es un registro consolidado y ha sido y es fuente imprescindible de información relevante para el conocimiento de los avances de la Nutrición Artificial Domiciliaria en nuestro país, se encuentra en proceso de mejorar la información que ofrece sobre las características de los pacientes, con especial atención en el grupo de niños, aunque estos siguen siendo un número reducido.
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- 2015
31. Nutrición parenteral domiciliaria en España durante 2014: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
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Wanden-Berghe,Carmina, Pereira Cunill,José Luis, Cuerda Compes,Cristina, Moreno Villares,José Manuel, Pérez de la Cruz,Antonio, Burgos Peláez,Rosa, Gómez Candela,Carmen, Virgili Casas,Nuria, Penacho Lázaro,M.ª Ángeles, Martínez Faedo,Ceferino, Garde Orbaiz,Carmen, Gonzalo Marín,Montserrat, Sanz Paris,Alejandro, Álvarez,Julia, Sánchez Martos,Eva Ángeles, Martín Folgueras,Tomás, Campos Martín,Cristina, Matía Martín,Pilar, Zugasti,Ana, Carabaña Pérez,Fátima, García Zafra,María Victoria, Ponce González,Miguel Ángel, Suárez Llanos,José Pablo, Martínez Costa,Cecilia, Luis,Daniel de, Apezetxea Celaya,Antxón, Luengo Pérez,Luis Miguel, Díaz Guardiola,Patricia, Gil Martínez,M.ª Carmen, Olmo García,M.ª Dolores del, Leyes García Grupo,Pere, Vidal Casariego,Alfonso, Joaquín Ortiz,Clara, Sánchez-Vilar Burdiel,Olga, and Laborda González,Lucía
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Soporte nutricional ,Cuidados domiciliarios ,Registros ,Epidemiología ,Nutrición parenteral domiciliaria ,Nutrición parenteral - Abstract
Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro "on-line" del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: otros diagnósticos' (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: alteraciones congénitas intestinales' (33,3%), seguidas por intestino corto traumático' y otro diagnóstico'. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales.
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- 2015
32. Nutrición enteral domiciliaria en España: registro Nadya del año 2011-2012
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Wanden-Berghe, Carmina, Matía Martín, P., Luengo Pérez, Luis Miguel, De La Cuerda, C. C., Burgos Peláez, Rosa, Álvarez Hernández, Julia, Calleja Fernández, Alicia R., Pérez De La Cruz, Antonio Jesús, Gómez Candela, Carmen, Leyes García, Pere, Laborda González, Lucía, Martínez Olmos, Miguel Ángel, Campos Martín, Cristina, Suárez Llanos, José Pablo, Penacho Lázaro, María Ángeles, Gonzalo Marín, Montserrat, Salas-Salvadó, Jordi, Irles Rocamora, José Antonio, Cánovas Gaillemin, Bárbara, Carrero Caballero, Ma Carmen, Moreno Villarés, José Manuel, Garde Orbáiz, Carmen, Miserachs Aranda, N., Del Olmo García, M. D., Apezetxea Celaya, A., Mauri, Silvia, Grupo NADYA-SENPE, [Wanden-Berghe,C] Hospital General Universitario de Alicante. Universidad CEU Cardenal Herrera, Elche. Alicante. [Matía Martín,P] Hospital Clínico San Carlos, Madrid. [Luengo Pérez,LM] Hospital Infanta Cristina, Badajoz. [Cuerda Compes,C] Hospital Gregorio Marañón, Madrid. [Burgos Peláez,R] Hospital Vall d'Hebrón, Barcelona. [Alvarez Hernández,J] Hospital Príncipe de Asturias. Alcalá de Henares. Madrid. [Calleja Fernández,A] Complejo Asistencial de León. [Pérez de la Cruz,A] Hospital Virgen de las Nieves, Granada. [Gómez Candela,C] Hospital La Paz, Madrid. [Leyes García,P] Hospital Clinic, Barcelona. [Laborda González,L] Hospital de Cruces, Bilbao. [Martínez Olmos,MA] Hospital Universitario Santiago de Compostela. [Campos Martín,C] Hospital Universitario Virgen Macarena, Sevilla. [Suárez Llanos,JP] Hospital Universitario la Candelaria, Tenerife. [Penacho Lázaro,MA] Hospital El Bierzo, Ponferrada, León. [Gonzalo Marín,M] Hospital Carlos Haya, Madrid [sic]. [Salas Salvadó,J] Hospital Universitari Sant Joan de Reus, Tarragona. [Irles Rocamora,JA] Hospital Universitario Ntra. Sra. de Valme. [Cánovas Gaillemin,B] Hospital Virgen de la Salud, Toledo. [Carrero Caballero,MC] Hospital Ramón y Cajal, Madrid. [Moreno Villares,JM] Hospital Universitario 12 de Octubre, Madrid. [Garde Orbaiz,C] Hospital Donostia, San Sebastián. [Miserachs Aranda,N] Hospital Fundació Esperit Sant, Santa Coloma de Gramanet, Barcelona. [Del Olmo García,MD] Hospital Universitario Severo Ochoa, Leganés, Madrid. [Apezetxea Celaya,A] Hospital Basurto, Bilbao. [Mauri,S] Hospital Josep Trueta, Girona, Spain, and UAM. Departamento de Medicina
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Adult ,Male ,Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Feeding Methods::Enteral Nutrition [Medical Subject Headings] ,Medicina ,Named Groups::Persons::Age Groups::Adult [Medical Subject Headings] ,Humans ,Registros ,Registries ,Named Groups::Persons::Age Groups::Adult::Aged [Medical Subject Headings] ,Child ,lcsh:RC620-627 ,Cuidados ambulatorios ,Named Groups::Persons::Age Groups::Child [Medical Subject Headings] ,Geographicals::Geographic Locations::Europe::Spain [Medical Subject Headings] ,Health Care::Health Care Quality, Access, and Evaluation::Quality of Health Care::Epidemiologic Factors::Age Factors [Medical Subject Headings] ,Ambulatory care ,lcsh:Nutritional diseases. Deficiency diseases ,Spain ,Named Groups::Persons::Age Groups::Adolescent [Medical Subject Headings] ,Health Care::Health Care Facilities, Manpower, and Services::Health Services::Community Health Services::Home Care Services::Parenteral Nutrition, Home [Medical Subject Headings] ,Nutrición enteral ,Female ,Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries [Medical Subject Headings] ,Disciplines and Occupations::Health Occupations::Medicine::Public Health::Epidemiology [Medical Subject Headings] ,Parenteral Nutrition, Home ,Enteral nutrition - Abstract
Objective: To describe the results of the home enteral nutrition (HEN) registry of the NADYA-SENPE group in 2011 and 2012. Material and methods: We retrieved the data of the patients recorded from January 1st 2011 to December 31st 2012. Results: There were 3021 patients in the registry during the period from 29 hospitals, which gives 65.39 per million inhabitants. 97.95% were adults, 51.4% male. Mean age was 67.64 ± 19.1, median age was 72 years for adults and 7 months for children. Median duration with HEN was 351 days and for 97.5% was their first event with HEN. Most patients had HEN because of neurological disease (57.8%). Access route was nasogastric tube for 43.5% and gastrostomy for 33.5%. Most patients had limited activity level and, concerning autonomy, 54.8% needed total help. Nutritional formula was supplied from chemist’s office to 73.8% of patients and disposables, when necessary, was supplied from hospitals to 53.8% of patients. HEN was finished for 1,031 patients (34.1%) during the period of study, 56.6% due to decease and 22.2% due to recovery of oral intake. Conclusions: Data from NADYA-SENPE registry must be explained cautiously because it is a non-compulsory registry. In spite of the change in the methodology of the registry in 2010, tendencies regarding HEN have been maintained, other than oral route, Objetivos: Describir los resultados del registro de nutrición enteral domiciliaria (NED) del grupo NADYASENPE de los años 2011 y 12. Material y métodos: Se recopilaron los datos introducidos en el registro desde el 1 de enero de 2011 al 31 de diciembre de 2012. Resultados: Hubo 3021 pacientes en el registro durante el periodo, procedentes de 29 hospitales, lo que da una prevalencia de 65,39 casos por millón de habitantes. 97.95% fueron adultos, 51,4% varones. La edad media fue 67,64 ± 19,1 años y la mediana 72 años para los adultos y 7 meses para los niños. La duración media de la NED fue 351 días y para el 97,5% fue el primer episodio con NED. La mayoría de pacientes tenían NED por una enfermedad neurológica (57,8%). La vía de acceso fue sonda nasogástrica para el 43,5% y gastrostomía para el 33,5%. La mayoría de pacientes tuvieron un nivel de actividad física limitado y, respecto a la autonomía, 54,8% necesitaba ayuda total. La fórmula de nutrición se suministró desde las oficinas de farmacia para el 73,8% y los fungibles, cuando fueron necesarios, desde los hospitales para el 53,8%. La NED se suspendió en 1.031 pacientes (34,1%) durante el periodo de estudio, 56,6% debido a fallecimiento y 22,2% debido a recuperación de la vía oral. Conclusiones: Los datos del registro NADYA-SENPE deben ser interpretados con precaución ya que se trata de un registro voluntario. A pesar del cambio de metodología del registro en 2010, las tendencias en NED se han mantenido, salvo la importancia cuantitativa de la vía oral
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- 2014
33. Nutrición Parenteral Domiciliaria en España durante 2015; informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA
- Author
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Wanden-Berghe Lozano, Carmina, primary, Campos Martín, Cristina, additional, Cuerda Compes, Cristina, additional, Gómez Candela, Carmen, additional, Burgos Peláez, Rosa, additional, Moreno Villares, José Manuel, additional, Pereira Cunill, José Luis, additional, Pérez de la Cruz, Antonio, additional, Virgili Casas, Nuria, additional, Martinez Faedo, Ceferino, additional, Álvarez Hernández, Julia, additional, Garde Orbaiz, Carmen, additional, Penacho Lázaro, Mª Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, Sanz Paris, Alejandro, additional, Gonzalo Marín, Montserrat, additional, Zugasti Murillo, Ana, additional, Matía Martín, Pilar, additional, Martín Folgueras, Tomás, additional, Carabaña Pérez, Fátima, additional, Díaz Guardiola, Patricia, additional, Tejera Pérez, Cristina, additional, De Luis Román, Daniel, additional, Luengo Pérez, Luis Miguel, additional, Santacruz Carmona, Nieves, additional, Apezetxea Celaya, Antxón, additional, Ponce González, Miguel Ángel, additional, Urgeles Planella, Juan Ramón, additional, Laborda González, Lucía, additional, Martinez Olmos, Miguel Ángel, additional, Sánchez-Vilar Burdiel, Olga, additional, Joaquín Ortiz, Clara, additional, Martínez Costa, Cecilia, additional, Suárez Llanos, José Pablo, additional, Calleja Fernández, Alicia, additional, Leyes García, Pere, additional, Gil Martinez, Mª Carmen, additional, Mauri Roca, Silvia, additional, García Zafra, Maria Victoria, additional, Carrera Santaliestra, María José, additional, and NADYA-SENPE, Grupo, additional
- Published
- 2016
- Full Text
- View/download PDF
34. Fear of Hypoglycemia Scale
- Author
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Anarte Ortiz, Maria Teresa, primary, Caballero, Francisco Felix, additional, de Adana, Maria Soledad Ruiz, additional, Rondán, Rosa Maria, additional, Carreira, Monica, additional, Domínguez-López, Marta, additional, Machado, Alberto, additional, Gonzalo-Marín, Montserrat, additional, Tapia, Maria Jose, additional, Valdés, Sergio, additional, González-Romero, Stella, additional, and Soriguer, Federico C., additional
- Published
- 2011
- Full Text
- View/download PDF
35. Impact of Intensive Therapy With Continuous Subcutaneous Insulin Infusion on Quality of Life in Patients With Type 1 Diabetes
- Author
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Ortiz, María Teresa Anarte, primary, Díaz, Francisco Félix Caballero, additional, Romero, Alberto Machado, additional, Ruiz de Adana Navas, María Soledad, additional, Domínguez‐López, Marta, additional, Gonzalo‐Marín, Montserrat, additional, Guerrero, María José Tapia, additional, Hernández, Sergio Valdés, additional, González‐Romero, Stella, additional, Rojo‐Martínez, Gemma, additional, and Escofet, Federico J. Casimiro‐Soriguer, additional
- Published
- 2010
- Full Text
- View/download PDF
36. Pro12Ala Sequence Variant of the PPARG Gene Is Associated with Postprandial Hypertriglyceridemia in Non-E3/E3 Patients with the Metabolic Syndrome
- Author
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Cardona, Fernando, primary, Morcillo, Sonsoles, primary, Gonzalo-Marín, Montserrat, primary, Garrido-Sanchez, Lourdes, primary, Macias-Gonzalez, Manuel, primary, and Tinahones, Francisco J, primary
- Published
- 2006
- Full Text
- View/download PDF
37. Impact of Intensive Therapy With Continuous Subcutaneous Insulin Infusion on Quality of Life in Patients With Type 1 Diabetes.
- Author
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ANARTE ORTIZ, MARÍA TERESA, CABALLERO DÍAZ, FRANCISCO FÉLIX, ROMERO, ALBERTO MACHADO, RUIZ DE ADANA NAVAS, MARIacute;A SOLEDAD, DOMÍNGUEZ-LÓPEZ, MARTA, GONZALO-MARÍN, MONTSERRAT, TAPIA GUERRERO, MARÍA JOSÉ, HERNÁNDEZ, SERGIO VALDÉS, GONZÁLEZ-ROMERO, STELLA, ROJO-MARTÍNEZ, GEMMA, and CASIMIRO-SORIGUER ESCOFET, FEDERICO J.
- Subjects
INSULIN ,QUALITY of life ,SOCIAL accounting ,DIABETES ,BECK Depression Inventory - Abstract
The purpose of this research was to study the effects of treatment with continuous subcutaneous insulin infusion (CSII) on quality of life in patients with type 1 diabetes. A quasi-experimental pretest-posttest design was used. Thirty-seven patients were evaluated before and after receiving treatment. The Diabetes Quality of Life Questionnaire, Beck Depression Inventory-II, State-Trait Anxiety Inventory, and Multidimensional Health Locus of Control Scale were applied. Patients treated with CSII reported a significant improvement in their quality of life (better total quality of life, higher diabetes life satisfaction, and less social and vocational concerns) when compared with patients with Multiple Daily Injections. Although some limitations are described, the results of this study show some evidence of positive effect of pump therapy in patients with poor glycemic control prior to pump start. [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
38. Consenso sobre criterios y conjunto mínimo de datos para la derivación de pacientes candidatos a teleconsulta de nutrición enteral domiciliaria: proyecto TElENUT.
- Author
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Rabat Restrepo, Juana María, Rebollo Pérez, Isabel M.ª, García de Luna, Pedro Pablo, Pereira Cunill, José Luis, Vílchez López, Francisco Javier, Gonzalo Marín, Montserrat, Yeste Doblas, Carmen, Martínez Ortega, Antonio Jesús, Martínez Ramírez, M.ª José, Losada Morell, Concha, Rojas, Julio, Ortiz, Manuela, Obando de la Corte, Joaquín, and Macías Colorado, María Eulalia
- Subjects
- *
MEDICAL personnel , *DIET therapy , *ENTERAL feeding , *PRIMARY care , *PUBLIC hospitals - Abstract
Introduction: teleconsultation is a useful healthcare tool in the multidisciplinary management of patients with indications of home enteral nutrition (HEN). The use of different teleconsultation platforms, as it happens in the Andalusian Health System (SAS), results in heterogeneous referral processes between Primary Care and hospital services in the same region. Objectives: to establish a consensus on patient profiles and the minimum data set necessary to guarantee an adequate referral to NED teleconsultation regardless of the existing platform. These agreed aspects in Andalusia can serve as a reference in other regions. Methods: three consecutive steps were followed: a) non-systematic review of the indexed literature on teleconsultation in clinical nutrition in Spain; b) survey to know the implementation and unmet needs of teleconsultation platforms in Andalusian public hospitals; and c) working meetings and consensus of 14 health professionals of Primary Care (n = 4) and endocrinology and hospital clinical nutrition (n = 10). Results: three referral forms were agreed in which three patient profiles were defined, with the corresponding minimum set of data necessary to request NED teleconsultation. The Primary Care team should provide this set of data to the clinical nutrition specialist via a teleconsultation platform, implemented in the SAS. Conclusions: three agreed forms between healthcare professionals involved in the referral process serve to standardize the request for teleconsultation of NED between healthcare teams based on patient profiles. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
39. Registro del Grupo NADYA-SENPE de Nutrición Enteral Domiciliaria en España: años 2018 y 2019.
- Author
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Wanden-Berghe, Carmina, Campos Martín, Cristina, Álvarez Hernández, Julia, Burgos Peláez, Rosa, Matía Martín, Pilar, Cuerda Compes, Cristina, de la Cuerda Compés, Cristina, Lobo, Gabriela, Martínez Olmos, Miguel Ángel, De Luis Román, Daniel Antonio, Palma Milla, Samara, Gonzalo Marín, Montserrat, Padín López, Susana, Luengo Pérez, Luis Miguel, Santacruz Carmona, Nieves, Pintor de la Maza, Begoña, Suárez Llanos, José Pablo, Irles Rocamora, José A, Forga Visa, María de Talló, and Martín Palmero, María Ángela
- Abstract
Introduction: Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed. [ABSTRACT FROM AUTHOR]- Published
- 2022
- Full Text
- View/download PDF
40. Nutrición parenteral domiciliaria en España 2016; informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.
- Author
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Wanden-Berghe, Carmina, Virgili Casas, Nuria, Ramos Boluda, Esther, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Gómez Candela, Carmen, Burgos Peláez, Rosa, Penacho Lázaro, Maria Ángeles, de la Cruz, Antonio Pérez, Álvarez Hernández, Julia, Gonzalo Marín, Montserrat, Matía Martín, Pilar, Martínez Faedo, Ceferino, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Campos Martín, Cristina, Martín Folgueras, Tomás, Palmero, M. Ángela Martín, and de los Ángeles Martín Fontalba, María
- Subjects
- *
GASTROINTESTINAL disease treatment , *HOME care service statistics , *OUTPATIENT medical care , *GASTROINTESTINAL diseases , *HOME care services , *NUTRITION , *ACQUISITION of data - Abstract
Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016.Material and Methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016.Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%).Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable. [ABSTRACT FROM AUTHOR]- Published
- 2017
- Full Text
- View/download PDF
41. Nutrición parenteral domiciliaria en España durante 2015; informe del Grupo de Nutrición Arti? cial Domiciliaria y Ambulatoria NADYA.
- Author
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Wanden-Berghe, Carmina, Martínez Faedo, Ceferino, Álvarez Hernandez, Julia, Garde Orbaiz, Carmen, Penacho Lázaro, Maria Ángeles, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Gonzalo Marín, Montserrat, Zugasti Murillo, Ana, Matía Martín, Pilar, Martín Folgueras, Tomás, Campos Martín, Cristina, Carabaña Pérez, Fátima, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, de Luis Román, Daniel, Luengo Pérez, Luis Miguel, Santacruz Carmona, Nieves, Apezetxea Celaya, Antxón, and Ponce González, Miguel Ángel
- Abstract
Aim: To communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYA-SENPE group for the year 2015. Material and methods: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2015. Results: Two hundred and thirty-six patients with 243 episodes of NPD were recorded from 40 hospitals. This represents a rate of 5.08 patients/million habitants for 2015. The most frequent pathology in adults was other (26.3%) followed by palliative oncological (21.6%). The most common complication was catheter-related sepsis which presented a rate of 0.53 infections/1,000 days of HPN. Sixty-four episodes were finished; the main cause was death (43.7%) and resuming to oral via (32.8%). Conclusions: we find increasing centers and professional partners, responding to the progressively more patients with parenteral nutrition support at home. The main indications for the establishment of NPD and causes termination of treatment remain stable. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
42. [The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019].
- Author
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Wanden-Berghe C, Campos Martín C, Álvarez Hernández J, Burgos Peláez R, Matía Martín P, de la Cuerda Compés C, Lobo G, Martínez Olmos MÁ, De Luis Román DA, Palma Milla S, Gonzalo Marín M, Padín López S, Luengo Pérez LM, Santacruz Carmona N, Pintor de la Maza B, Suárez Llanos JP, Irles Rocamora JA, Forga Visa MT, Martín Palmero MÁ, Sánchez Sánchez R, Cardona Pera D, Tejera Pérez C, Ballesta Sánchez C, Higuera Pulgar I, Bonada Sanjaume A, Penacho Lázaro MÁ, Garde Orbaiz C, Arraiza Irigoyen C, Martín Folgueras T, Virgili Casas N, Cánovas Gaillemin B, Maíz Jiménez MI, Del Olmo García MD, Carabaña Pérez F, Parés Marimón RM, Morán López JM, Mauri Roca S, García Puente I, Sánchez-Vilar Burdiel O, García Delgado Y, Miserachs Aranda N, Calañas Continente A, Apezetxea Celaya A, Pereira Soto MÁ, Sánchez Martos EÁ, and Ponce González MÁ
- Subjects
- Aged, Child, Female, Gastrostomy, Humans, Male, Registries, Spain epidemiology, Enteral Nutrition, Parenteral Nutrition, Home
- Abstract
Introduction: Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.
- Published
- 2022
- Full Text
- View/download PDF
43. [Spanish home enteral nutrition registry of the year 2016 and 2017 from the NADYA-SENPE Group].
- Author
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Wanden-Berghe Lozano C, Campos C, Burgos Peláez R, Álvarez J, Frias Soriano L, Matia Martín MP, Lobo-Támer G, de Luis Román DA, Gonzalo Marín M, Gómez Candela C, Martínez Olmos MA, Pintor Calleja B, Luengo Pérez LM, Santacruz N, Irles Rocamora JA, Higuera Pulgar I, Padín S, Leyes García P, Sánchez R, Cardona D, Martín MªÁ, Ballesta C, Suárez JP, Tejera C, Bonada A, Gardez C, Penacho MÁ, Martínez MJ, Virgili Casas MN, Martín T, Cánovas B, Díaz MI, Del Olmo D, Carabaña Pérez F, Parés Marimón RMª, Mauri Roca S, Romero V, García I, Sánchez-Vilar Burdiel O, García Y, Miserachs N, Tenorio Jiménez C, Apezetxea Celaya A, Pereira MA, Sánchez EA, and Ponce González MÁ
- Subjects
- Adolescent, Adult, Age Factors, Aged, Aged, 80 and over, Child, Child, Preschool, Enteral Nutrition trends, Female, Humans, Infant, Infant, Newborn, Male, Middle Aged, Parenteral Nutrition, Home trends, Sex Factors, Spain epidemiology, Young Adult, Enteral Nutrition statistics & numerical data, Parenteral Nutrition, Home statistics & numerical data, Registries
- Abstract
Introduction: Objective: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2016 and 2017. Material and methods: from January 1st 2016 to December 31st 2017, the HEN registry was recorded and afterwards a further descriptive and analytical analysis was done. Results: in 2016, 4,578 active patients were recorded and prevalence was 98.33 patients per one million inhabitants; in 2017, 4,777 patients were recorded, with a prevalence of 102.57 per one million inhabitants; 50.8% were males in 2016 and 50.5% in 2017. During the period 2016-17, median age was 71.5 years (IIQ 57-83), 1,558 HEN episodes were finished and the main cause was death (793 patients, 50.89%). Adult males were younger than females (65.3 vs. 73.3 years, p-value < 0.001). The most frequent diagnosis was the neurological disorder that presents with aphagia or severe dysphagia (59%). Nasogastric tube was the most frequent administration route (48.3%) and it is the most widely used in elderly patients (p < 0.001). One hundred and twenty-six pediatric patients were registered (57.1% females). Median age at the beginning of HEN in children was four months. "Other disorders" was the most recorded diagnostic group (41.3%), followed by the group of neurological disorder that presents with aphagia or severe dysphagia. Regarding children, 57.6% were fed through gastrostomy and the younger ones were fed through nasogastric tube (p-value 0.001). Conclusions: the number of patients in the registry, as well as the number of participating centers, is progressively increasing. The main characteristics of the patients have not changed. Despite the increase in diagnostic possibilities in the pediatric population, the classification within the group of "Other pathologies" is quite significant.
- Published
- 2019
- Full Text
- View/download PDF
44. [Home and Ambulatory Artificial Nutrition (NADYA) Group Report - Home parenteral nutrition in Spain, 2016].
- Author
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Wanden-Berghe Lozano C, Virgili Casas N, Ramos Boluda E, Cuerda Compés C, Moreno Villares JM, Pereira Cunill JL, Gómez Candela C, Burgos Peláez R, Penacho Lázaro MÁ, Pérez de la Cruz A, Álvarez Hernández J, Gonzalo Marín M, Matía Martín P, Martínez Faedo C, Sánchez Martos EÁ, Sanz Paris A, Campos Martín C, Martín Folgueras T, Martín Palmero MÁ, Martín Fontalba MLÁ, Luengo Pérez LM, Zugasti Murillo A, Martínez Ramírez MJ, Carabaña Pérez F, Martínez Costa C, Díaz Guardiola P, Tejera Pérez C, Parés Marimón RM, Irles Rocamora JA, Garde Orbaiz C, Ponce González MÁ, García Zafra MV, Sánchez Sánchez R, Urgeles Planella JR, Apezetxea Celaya A, Sánchez-Vilar Burdiel O, Joaquín Ortiz C, Suárez Llanos JP, Pintor de la Maza B, Leyes García P, Gil Martínez MC, Mauri Roca S, and Carrera Santaliestra MJ
- Subjects
- Adolescent, Adult, Aged, Aged, 80 and over, Ambulatory Care, Child, Child, Preschool, Female, Gastrointestinal Diseases epidemiology, Gastrointestinal Diseases therapy, Home Care Services, Humans, Infant, Male, Middle Aged, Registries, Spain, Young Adult, Parenteral Nutrition, Home statistics & numerical data
- Abstract
Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016., Material and Methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016., Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%)., Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.
- Published
- 2017
- Full Text
- View/download PDF
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