Search

Your search keyword '"Grootenhuis, M. A."' showing total 345 results
Start Over Author "Grootenhuis, M. A."
345 results on '"Grootenhuis, M. A."'

16. Children with Cancer

Author

Grootenhuis, M. A., Last, B. F., Schlag, P. M., editor, Senn, H. -J., editor, Kleihues, P., editor, Stiefel, F., editor, Groner, B., editor, Wallgren, A., editor, Rentchnik, P., editor, and Stiefel, Friedrich, editor

Published
2006
Full Text
View/download PDF

17. Support needs of Dutch young adult childhood cancer survivors

Author

Erp, L., Maurice-Stam, H., Kremer, L., Tissing, W., Pal, H., Beek, L., Vries, A., Den Heuvel-Eibrink, M., Versluys, B., Heiden-Van Loo, M., Marloes van Gorp, Huizinga, G., Grootenhuis, M., Paediatric Oncology, CCA - Cancer Treatment and Quality of Life, ARD - Amsterdam Reproduction and Development, Child and Adolescent Psychiatry & Psychosocial Care, Pediatrics, and Guided Treatment in Optimal Selected Cancer Patients (GUTS)

Subjects
Adult, Health Services Needs and Demand, Adolescent, Psychosocial support, Survivorship care, Social Support, Survivorship, Young Adult, Cancer Survivors, Oncology, SDG 3 - Good Health and Well-being, Neoplasms, Surveys and Questionnaires, Quality of Life, Humans, Original Article, Child, Childhood cancer, Needs, Young adults
Abstract

Background Studies about support needs of young adult childhood cancer survivors (YACCS) previously focused mainly on information needs. This study assessed support needs and associated factors (sociodemographic, medical, and psychosocial functioning) in Dutch YACCS. Methods YACCS (aged 18–30, diagnosed ≤ 18 years, time since diagnosis ≥ 5 years) cross-sectionally filled out a questionnaire regarding their need for various types of support (concrete information, personal counseling, and peer contact) in eight domains (physical consequences of childhood cancer, social-emotional consequences, relationships and sexuality, fertility, lifestyle, school and work, future perspective, insurance and mortgage), and questionnaires assessing health-related quality of life (PedsQL-YA), anxiety and depression (HADS), and fatigue (CIS-20R). Descriptive statistics were used to describe support needs. Linear regression was used to identify characteristics associated with support needs. Results One hundred fifty-one YACCS participated (response = 40%). Most YACCS reported a need for support in one or more domains (88.0%, N = 133). More than half of the participants reported a need for concrete information in the domains lifestyle, fertility, and physical consequences of childhood cancer and 25–50% in the domains insurance and mortgages, future perspective, and social-emotional consequences of childhood cancer. In the domains lifestyle and physical as well as emotional consequences of childhood cancer, 25–50% reported a need for counseling. Overall need for support was positively associated with middle (β = 0.26, p = 0.024) and high (β = 0.35, p = 0.014) compared to low educational attainment and (sub)clinical anxiety (β = 0.22, p = 0.017), and negatively associated with social functioning (β = − 0.37, p = 0.002) in multivariate analyses. Conclusion YACCS report the strongest need for support, for concrete information, in the domains lifestyle, fertility, and physical consequences of childhood cancer. Associated factors were mostly socioeconomic and psychosocial in nature. Psychosocial care should be an integral part of survivorship care for YACCS, with screening for psychosocial problems, information provision including associated emotional consequences and support if necessary (psycho-education) and tailored interventions, and adequate referrals to more specialized care if necessary.

Published
2022

46. Impaired cognition and schooling in adults with end stage renal disease since childhood. (Original Article)

Author

Groothoff, J.W., Grootenhuis, M., Dommerholt, A., Gruppen, M.P., Offringa, M., and Heymans, H.S.A.

Subjects
Academic achievement -- Measurement -- Social aspects, Chronic kidney failure -- Social aspects -- Measurement, Cognition -- Measurement -- Social aspects, Family and marriage, Health, Social aspects, Measurement
Abstract

Aims: To determine cognitive and educational attainment in adults with end stage renal disease (ESRD) since childhood. Methods: All Dutch patients with onset of ESRD at age 0-14 years between [...]

Published
2002

Catalog

Books, media, physical & digital resources
See catalog results