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2. Development and Preliminary Testing of the Staffordshire Questionnaire for Adolescent Idiopathic Scoliosis (SQ‐AIS): Content and Face Validity.

Author

Leone, Enza, Chockalingam, Nachiappan, Needham, Robert, Healy, Aoife, Eddison, Nicola, Jevtic, Nikola, and Jasani, Vinay

Subjects
ADOLESCENT idiopathic scoliosis, TEST validity, SPINE abnormalities, LIKERT scale, SCOLIOSIS
Abstract

Introduction: Adolescent Idiopathic Scoliosis (AIS) is a structural spinal deformity with implications for health‐related quality of life (HR‐QoL). The Scoliosis Research Society‐22 revised (SRS‐22r) questionnaire is the standard for HR‐QoL assessment. However, studies have identified limitations with the SRS‐22r, including content and face validity issues, reliability concerns, and language appropriateness. This study aimed to develop and validate a patient‐reported questionnaire, the Staffordshire Questionnaire for Adolescent Idiopathic Scoliosis (SQ‐AIS), to assess the impact of AIS on HR‐QoL. Methods: The SQ‐AIS comprises six domains: general health, pain, function/activity, self‐image/appearance, mental health, and intervention. Individuals with AIS aged 10–19 years and clinicians from a range of countries with expertise in AIS contributed to the testing process. Face validity and clinical applicability were assessed using Likert scales, while content validity was evaluated through a categorical binary variable (yes/no). Results: Involving 8 AIS patients and 43 clinicians, face validity scores demonstrated an acceptable level of understanding (≥ 4/5) for both individuals with AIS and clinicians. Most individuals with AIS (85.71%) and clinicians (80.95%) affirmed that the questionnaire sufficiently covers various aspects of scoliosis, indicating a satisfactory level of content validity. Ratings for applicability to clinical practice indicated an acceptable level of practical relevance (≥ 4/5). Discussion and Conclusion: The SQ‐AIS emerges as a valid and promising tool to overcome existing challenges in AIS‐related outcome assessment. Pending further validation studies, the favorable reception from the international community of clinicians suggests its potential as a new benchmark for evaluating AIS impact on HR‐QoL and monitoring scoliosis management. [ABSTRACT FROM AUTHOR]

Published
2024
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23. Preoperative MRI in patients with adolescent idiopathic scoliosis

Author

Bandi, Surendra, Sethi, Tapan D., Davis, Ben J., Jasani, Vinay, Trivedi, Jayesh B., and Ahmed, El-Nasri B.

Subjects
Scoliosis -- Care and treatment, Magnetic resonance imaging, Medical research, Medicine, Experimental, Health
Abstract

Table of Contents Abstract Introduction Patients and Methods Results Discussion Conclusion References Abstract Introduction: The literature supporting routine preoperative MRI scanning in patients with late onset idiopathic scoliosis is less [...]

Published
2006

26. 13th International Conference on Conservative Management of Spinal Deformities and First Joint Meeting of the International Research Society on Spinal Deformities and the Society on Scoliosis Orthopaedic and Rehabilitation Treatment – SOSORT-IRSSD 2016 meeting: Banff, Canada. 25-28 May 2016

Author

Bagheri, Aria, Liu, Xue-Cheng, Tassone, Channing, Thometz, John, Chaloupka, Amie, Tarima, Sergey, Cohen, Larry, Simic, Milena, Dennis, Sarah, Refshauge, Kathryn, Pappas, Evangelos, Parent, Eric C., Pietrosanu, Matthew, Redford, Emily, Schmidt, Sheri, Hill, Douglas, Moreau, Marc, Hedden, Douglas, Adeeb, Samer, Lou, Edmond, Brink, Rob C., Schlösser, Tom P. C., Colo, Dino, Vincken, Koen L., van Stralen, Marijn, Hui, Steve C. N., Chu, Winnie C. W., Cheng, Jack C. Y., Castelein, René M., Kechagias, Vasileios, Grivas, Theodoros B., Vlasis, Konstantinos, Michas, Konstantinos, Tam, Elisa M. S., Yu, Fiona W. P., Hung, Vivian W. Y., Shi, Lin, Qin, Ling, Ng, Bobby K. W., Griffith, James, Lam, Tsz Ping, Xue, Cindy, Pialasse, Jean-Philippe, Wong, Judy Y. H., Vo, Quang N., Le, Lawrence H., Lou, Edmond H. M., Zheng, Rui, Hill, Douglas L., Moreau, Marc J., Hedden, Douglas M., Mahood, James K., Southon, Sarah, Brignol, Arnaud, Cheriet, Farida, Miron, Marie-Claude, Laporte, Catherine, Qiu, Yong, Liu, Hao, Liu, Zhen, Zhu, Ze-zhang, Qian, Bang-ping, Liu, XueCheng, Rizza, Robert, Rosol, Derek, North, Paula, Zaina, Fabio, Pesenti, Francesca, Negrini, Stefano, Persani, Luca, Capodaglio, Paolo, Polli, Nicoletta, Yip, Benjamin Hon Kei, Yu, Fiona Wai Ping, Hung, Vivian Wing Yin, Ng, Bobby Kin Wah, Cheng, Jack Chun Yiu, Zhang, Jiajun, Lee, Wayne Yuk Wai, Chen, Huanxiong, Tam, Elisa Man Shan, Man, Gene Chiwai, Zhu, Zezhang, Qian, Bang Ping, Harasymczuk, P., Andrusiewicz, M., Janusz, P., Biecek, P., Kotwicki, T., Kotwicka, M., Lee, Jung Sub, Shin, Jong Ki, Goh, Tae Sik, Son, Seung Min, Man, Gene Chi Wai, Schwartz, Mark, Gilday, Sarah, Bylski-Austrow, Donita I., Glos, David L., Schultz, Lindsay, O’Hara, Sara, Jain, Viral V., Sturm, Peter F., Wang, Xiaoyu, Crandall, Dennis G., Parent, Stefan, Larson, Noelle, Labelle, Hubert, Aubin, Carl-Eric, Fard, Negar Behzadi, Duke, Kajsa, Lukenchuk, Leeann, Kerslake, Matthew, Huynh, Geraldine, Chorney, Jill, Tsui, Ban, Tobert, Daniel, Bakarania, Prachi, Berdishevsky, Hagit, Grimes, Kelly, Matsumoto, Hiroko, Hyman, Joshua, Roye, Benjamin, Roye, David, Vitale, Michael, Black, Jason, Bradley, Michael, Drake, Shawn, Glynn, David, Maude, Erika, Lindgren, Amelia, Feinberg, Nicholas, Bloom, Zachary, Dupuis, Sarah, Fortin, Carole, Caouette, Christiane, Aubin, Carl-Éric, Gur, Gozde, Yakut, Yavuz, Jevtić, Nikola, Schreiber, Sanja, Hennes, Axel, Pantović, Milan, de Mauroy, Jean-Claude, Barral, Frédéric, Pourret, Sophie, Aulisa, Angelo Gabriele, Guzzanti, Vincenzo, Galli, Marco, Falciglia, Francesco, Aulisa, Lorenzo, Bernard, Jean-Claude, Deceuninck, Julie, Berthonnaud, Eric, Rougelot, Adrien, Pickering, Marie-Eva, Chaleat-Valayer, Emmanuelle, Webb, Richard, Bettany-Saltikov, Josette, Neil, Barbara, Poggio, Martina, Donzelli, Sabrina, Lusini, Monia, Minnella, Salvatore, Hoang, Alith, Mao, Saihu, Shi, Benlong, Qian, Bangping, Sun, Xu, Cobetto, Nikita, Barch, Soraya, Turgeon, Isabelle, Raihan, Hasan Md Arif, Kumar, Datta Tarit, Khasnabis, Chapal, Equbal, Ameed, Chakraborty, Ashis Kumar, Biswas, Abhishek, Dilek, Burcu, Ayhan, Cigdem, Simsek, Engin, Aras, Ozgen, Aksoy, Songul, Hill, Doug, Donauer, Andreas, Tilburn, Melissa, Raso, Jim, Morau, Marc, Chen, He, Man-Sang, Wong, Kobayashi, Sarah, Aslanzadeh, Fatemeh, MacIntosh, Brian, Maragkoudakis, Emmanouil G., Gelalis, Ioannis D., Mazioti, Christina, Tsilimidos, Gerasimos, Burwell, R. Geoffrey, Zheng, Yu, Wu, Xiao-Jun, Dang, Yi-Ni, Sun, Ning, Yang, Yan, Wang, Tao, He, Cheng-Qi, Wong, Man-Sang, Martinez, Gregorio, Negrini, Alberto, Shirley, Matthew, Swindell, Hasani, Roye, David P., Akbarnia, Behrooz A., Garg, Sumeet, Sanders, James O., Skaggs, David L., Smith, John T., Vitale, Michael G., Healy, Aoife, Farmer, Sybil, Chockalingam, Nachiappan, Pizzetti, Paolo, Maruyama, Toru, Kobayashi, Yosuke, Nakao, Yusuke, Mao, Sai-hu, Wang, Bin, Yu, Yang, Lindgren, Amelia M., Makhni, Melvin C., Shillingford, Jamal, Turland, Abbie, Caronni, Antonio, Sciumè, Luciana, Moez, Elham Khodayari, Watkins, Elise M., Southon, Sarah C., Sloan, Preston, Hedden, Douglass, Watkins, Elise, Ghaneei, Maliheh, Karavidas, Nikos, Dritsa, Despoina, Hanchard, Nigel, Kim, Donghyun, Kim, Junlae, Sbihli, Amy, Parent, Eric, Levey, Lauren, Holowka, Mark, Davis, Leigh, Dolan, Lori A, Weinstein, Stuart L., Larson, Jill E., Meyer, Maximilian A., Boody, Barrett, Sarwark, John F., Gundlach, Benjamin, Grant, Alison, Kalyan, Raman, Hekal, Waleed, Honeyman, Cheryl, Cook, Tim, Murray, Scott, Pitruzzella, Morena, Hope, Jennifer, Yoshimachi, Julie, Touchette, Julie, St-Jean, Anissa, Brousseau, Danica, Marcotte, Louise, Théroux, Jean, Doucet, Chantal, Lin, Yangmin, Wong, Man Sang, MacMahon, John, MacMahon, Edward, Boyette, Jeremy, Stikeleather, Luke, Lebel, Andrea, Lebel, Victoria Ashley, Pancholi-Parekh, Chintan A., Stolze, Lise, Selthafner, Marissa, Hong, Kaitlin, Morrison, Pamela R., Hanke, Timothy A., Knott, Patrick, Krumdick, Nathaniel D., Shannon, Thomas, Davenhill, Ryan, Needham, Robert, Jasani, Vinay, Ahmed, El-Nasri, Gordano, Marco, Mastantuoni, Giuseppe, Chandrinos, Michail, Głowka, Paweł, Gaweł, Dominik, Kasprzak, Bartosz, Nowak, Michał, Morzyński, Marek, Kotwicki, Tomasz, Lecante, Cyril, Aubin-Fournier, Jean-François, Feldman, Debbie Ehrmann, Zhang, Wen, Hu, Zongshan, Zhu, Weiguo, Jin, Mengran, Han, Xiao, Guo, Jing, Wu, Tao, Zhu, Feng, Jiang, Jian, Yan, Huang, Di Felice, Francesca, Needham, Robert A, Chatzistergos, Panagiotis, Reynolds, Joseph E., Wall, Eric J., Igoumenou, Vasilios G., Megaloikonomos, Panayiotis D., Tsiavos, Konstantinos, Panagopoulos, Georgios N., Mavrogenis, Andreas F., Soultanis, Konstantinos, Papagelopoulos, Panayiotis J., Chan, Andrew, Kobayashi, Sho, Togawa, Daisuke, Hasegawa, Tomohiko, Yamato, Yu, Oe, Shin, Banno, Tomohiro, Mihara, Yuuki, and Matsuyama, Yukihiro

Published
2017
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27. Bracing Adolescent Idiopathic Scoliosis (BASIS) study - night-time versus full-time bracing in adolescent idiopathic scoliosis: study protocol for a multicentre, randomized controlled trial.

Author

Swaby L, Perry DC, Walker K, Hind D, Mills A, Jayasuriya R, Totton N, Desoysa L, Chatters R, Young B, Sherratt F, Latimer N, Keetharuth A, Kenison L, Walters S, Gardner A, Ahuja S, Campbell L, Greenwood S, Cole A, Turtle C, Waterhouse S, Davidson N, Shafafy M, Marjoram T, Oxborrow N, Sedra F, Harris M, Leong J, Lucas J, Lui D, Isaacson A, Bowey A, Harding I, Davies E, Jasani V, Khan A, Thorpe P, Tsirikos T, and Sloan S

Abstract

Aims: Scoliosis is a lateral curvature of the spine with associated rotation, often causing distress due to appearance. For some curves, there is good evidence to support the use of a spinal brace, worn for 20 to 24 hours a day to minimize the curve, making it as straight as possible during growth, preventing progression. Compliance can be poor due to appearance and comfort. A night-time brace, worn for eight to 12 hours, can achieve higher levels of curve correction while patients are supine, and could be preferable for patients, but evidence of efficacy is limited. This is the protocol for a randomized controlled trial of 'full-time bracing' versus 'night-time bracing' in adolescent idiopathic scoliosis (AIS)., Methods: UK paediatric spine clinics will recruit 780 participants aged ten to 15 years-old with AIS, Risser stage 0, 1, or 2, and curve size (Cobb angle) 20° to 40° with apex at or below T7. Patients are randomly allocated 1:1, to either full-time or night-time bracing. A qualitative sub-study will explore communication and experiences of families in terms of bracing and research. Patient and Public Involvement & Engagement informed study design and will assist with aspects of trial delivery and dissemination., Discussion: The primary outcome is 'treatment failure' (Cobb angle progression to 50° or more before skeletal maturity); skeletal maturity is at Risser stage 4 in females and 5 in males, or 'treatment success' (Cobb angle less than 50° at skeletal maturity). The comparison is on a non-inferiority basis (non-inferiority margin 11%). Participants are followed up every six months while in brace, and at one and two years after skeletal maturity. Secondary outcomes include the Scoliosis Research Society 22 questionnaire and measures of quality of life, psychological effects of bracing, adherence, anxiety and depression, sleep, satisfaction, and educational attainment. All data will be collected through the British Spine Registry., Competing Interests: A. A. Cole, D. C. Perry, D. Hind, N. Totton, B. Young, N. Latimer, L. Kenison, S. Walters, A. Gardner, S. Ahuja, F. Sherratt, L. Campbell, R. Jayasuriya, A. J. Mills, S. Greenwood, and R. Chatters obtained grant funding for this project. This project was funded by the UK NIHR HTA Programme (project number NIHR131081). S. Walters reports book royalties from Wiley and Blackwell, unrelated to this study. A. Gardner also reports grants from Innovate UK, ORUK, and the Freda Ashmore Memorial Fund, payment for medicolegal services from A C Gardner Ltd, and support to attend the British Scoliosis Society meeting 2022 and BritSpine 2023, all of which are unrelated to this study. A. Gardner is also an unpaid research lead for the British Scoliosis Society. L. Campbell reports payment for online meetings, unrelated to this study. D. C. Perry is funded by a National Institute for Health Research Professorship Award, was a committee member on the NIHR Commissioning Board (2016-2021), and is a member of the editorial board of The Bone & Joint Journal. A. J. Mills is shareholder and director of the SpineCorporation Limited, which designs and supplies braces to a number of BASIS sites. A. J. Mills also holds a patent for TechnoSpine, and is an unpaid SOSORT Bracing Expert Advisor. The funder has not been involved in the design of the study. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health. L. Swaby reports grants from the National Institute for Health and Care Research, unrelated to this study. D. Hind's salary was partly funded by a research grant from the NIHR HTA., (© 2023 Swaby et al.)

Published
2023
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