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1. A qualitative study on the perceived benefits of back to basics-diabesties session among individuals with type 1 diabetes mellitus and caregivers in India

Author

Jazz Sethi, Lakshmi Natarajan, Deeksha Dev, Sanjana R Kothapalli, Sumeet Dhagia, Viswanathan Mohan, Ayyalasomayajula S Subrahmanyam, Yash Bhale, Hetansh S Shah, AnuHasini Bommathula, and Pramodkumar T Aravindakshan

Subjects
caregivers, counseling, peer educators, qualitative, type 1 diabetes mellitus, Diseases of the endocrine glands. Clinical endocrinology, RC648-665
Abstract

Aim: Type 1 diabetes mellitus (T1DM) is a chronic metabolic disorder that makes self-care challenging for T1DM individuals and their caregivers. This qualitative study aimed to explore the perceived benefits of the Back to Basics-Diabesties (B2B) session among T1DM individuals and their caregivers in India. Materials and Methods: The B2B session is a structured intervention provided through telephonic peer counseling, aimed at enhancing the understanding of T1DM that provides practical knowledge of diabetes management, insulin administration, blood glucose monitoring, diet, exercise, and psychosocial aspects of living with T1DM. Overall, more than 1560 participants (T1DM/caregivers/family/friends) have opted for B2B session. A qualitative telephonic interview was conducted (n = 96) using a semistructured open-ended questionnaire to collect data on the perceived benefits of B2B session. The information obtained was then coded, and grouped to form themes. Results: According to T1DM individuals, B2B sessions enhanced diabetes knowledge and confidence, self-management abilities, increased sense of community and peer support, and easy accessibility. Caregivers reported that the B2B session provided emotional support, disease knowledge, shared experiences, practical ideas, and coping strategies. Most widely appreciated salient feature of B2B session was the peer counselors were themselves with T1DM or caregivers of T1DM, which created unbreakable trust among the study participants. Clinical evidence after B2B session showed a 23% of improvement in the glycated hemoglobin (

Published
2023
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2. DIY artificial pancreas: A narrative of the first patient and the physicians’ experiences from India

Author

Jazz Sethi, Partha Kar, Jothydev Kesavadev, and Banshi Saboo

Subjects
Pancreas, Artificial, Endocrinology, Diabetes and Metabolism, India, 030209 endocrinology & metabolism, Hypoglycemia, Artificial pancreas, Young Adult, 03 medical and health sciences, Insulin Infusion Systems, 0302 clinical medicine, Quality of life, Nursing, Physicians, Surveys and Questionnaires, Internal Medicine, Humans, Medicine, Narrative, 030212 general & internal medicine, Disease management (health), Glycemic, Type 1 diabetes, Narration, business.industry, Perspective (graphical), General Medicine, medicine.disease, Diabetes Mellitus, Type 1, Quality of Life, Female, business
Abstract

Background aims Frustrated with the slow-pace of innovations in diabetes technologies, the type 1 diabetes community have started closing the loop by themselves to automate insulin delivery. While the regulatory and ethical concerns over the systems are still high, these have contributed to enhanced glycemic control characterized by improved estimated HbA1c and time-in-range above 90% as for many users. Our objective is to provide the real-world experience of the first successful patient from India on the Do-It-Yourself Artificial Pancreas (DIYAP) and the perspective of her physicians. Methods A narrative recounting of a personal experience on DIYAP. The patient completed a Hypoglycemia Fear Survey II and Diabetes Quality of Life instrument before and after looping. Results The patient emphasized the personal/social benefits and the concerns of using the system. Looping has produced a clinically meaningful difference in the quality of life, better sleep patterns, and reduced the disease management burden. We also highlighted the relevant perspectives of the physicians to give deeper insights into the aspect. Conclusion The patient highlighted better time-in-range, negligible time spent in hypoglycemia, and superior Quality of Life. Globally, more and more patients are adopting this technology; therefore, real-life patient stories will enlighten the medical community.

Published
2021
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