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7 results on '"Joanne Bracken"'

1. Unlocking Engagement: Enhancing Participation in Research With Vulnerable Populations

Author

Laura Rojas-Rozo, Geneviève Arsenault-Lapierre, Diane Dumaresq, Thérèse Trépanier, Paul Lea, Karen Myers Barnett, Denis O’Connor, Rosette Fernandez Loughlin, Kori Miskucza, Mary Beth Wighton, Claire Godard-Sebillotte, Andrea Gruneir, Jean-Baptiste Beuscart, Susan E. Bronskill, Nadia Sourial, Eric E. Smith, Jennifer Bethell, Isabelle Vedel, The COVID ROSA Research Team, Juanita Bacsu, Howard Bergman, Joanne Bracken, Matthieu Calafiore, Yves Couturier, Nouha Ben Gaied, Serge Gauthier, Mario Gregorio, Sid Feldman, Ngozi Iroanyah, Aaron Jones, Vladimir Khanassov, Julie Kosteniuk, Ginny Lane, Laura C. Maclagan, Carrie McAiney, Debra Morgan, Megan O’Connell, Manuel Montero Odasso, Lisa Poole, Jacqueline Quail, Pamela Roach, Dallas Seitz, Saskia Sivananthan, Natalia Smith, and Machelle Wilchesky

Subjects
guide, dementia, vulnerability, patient engagement, participatory research, Public aspects of medicine, RA1-1270
Published
2024
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2. A stakeholder engagement strategy for an ongoing research program in rural dementia care: Stakeholder and researcher perspectives.

Author

Debra Morgan, Julie Kosteniuk, Megan E O'Connell, Norma J Stewart, Andrew Kirk, Allison Cammer, Vanina Dal Bello-Haas, Duane P Minish, Valerie Elliot, Melanie Bayly, Amanda Froehlich Chow, Joanne Bracken, Edna Parrott, and Tanis Bronner

Subjects
Medicine, Science
Abstract

Participatory research approaches have developed in response to the growing emphasis on translation of research evidence into practice. However, there are few published examples of stakeholder engagement strategies, and little guidance specific to larger ongoing research programs or those with a rural focus. This paper describes the evolution, structure, and processes of an annual Rural Dementia Summit launched in 2008 as an engagement strategy for the Rural Dementia Action Research (RaDAR) program and ongoing for more than 10 years; and reports findings from a parallel mixed-methods study that includes stakeholder and researcher perspectives on the Summit's value and impact. Twelve years of stakeholder evaluations were analyzed. Rating scale data were summarized with descriptive statistics; open-ended questions were analyzed using an inductive thematic analysis. A thematic analysis was also used to analyze interviews with RaDAR researchers. Rating scale data showed high stakeholder satisfaction with all aspects of the Summit. Five themes were identified in the qualitative data: hearing diverse perspectives, building connections, collaborating for change, developing research and practice capacity, and leaving recharged. Five themes were identified in the researcher data: impact on development as a researcher, understanding stakeholder needs, informing research design, deepening commitment to rural dementia research, and building a culture of engagement. These findings reflect the key principles and impacts of stakeholder engagement reported in the literature. Additional findings include the value stakeholders place on connecting with stakeholders from diverse backgrounds, how the Summit was revitalizing, and how it developed stakeholder capacity to support change in their communities. Findings indicate that the Summit has developed into a community of practice where people with a common interest come together to learn and collaborate to improve rural dementia care. The Summit's success and sustainability are linked to RaDAR's responsiveness to stakeholder needs, the trust that has been established, and the value that stakeholders and researchers find in their participation.

Published
2022
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3. Evolution of a Community-Based Participatory Approach in a Rural and Remote Dementia Care Research Program

Author

Megan E O'Connell, Joanne Bracken, Dorothy Forbes, Lesley McBain, Allison Cammer, Andrew Kirk, Carl D'Arcy, Vanina Dal Bello-Haas, Julie Kosteniuk, Norma Stewart, Debra Morgan, and Margaret Crossley

Subjects
Male, Community-Based Participatory Research, Research program, Health (social science), Knowledge management, Sociology and Political Science, Service delivery framework, Participatory action research, Article, Education, Resource (project management), Nursing, Humans, Cooperative Behavior, Program Development, Health policy, Health Services Needs and Demand, Cultural Characteristics, business.industry, Health services research, Stakeholder, General Medicine, Quality Improvement, Community-Institutional Relations, Saskatchewan, Sustainability, Dementia, Female, Health Services Research, Rural Health Services, Business, Program Evaluation
Abstract

Background: Community­based participatory research (CBPR) approaches are valuable strategies for addressing complex health and social problems and powerful tools to support effective transformation of social and health policy to better meet the needs of diverse stakeholders. Objectives: Since 1997, our team has utilized CBPR approaches to improve health service delivery for persons with dementia and their caregivers in rural and remote set­ tings. We describe the evolution of our approach, including benefits, challenges, and lessons learned over the last 15 years. Methods: A multistage approach initiated an ongoing CBPR research program in rural dementia care and shaped its direction based on stakeholders' recommendation to prioritize both community and facility­based care. Strategies to develop and foster collaborative partnerships have included travel to rural and remote regions, province­w ide community meetings, stakeholder workshops, creation of a Decision­Maker Advisory Council to provide ongoing direction to the overall program, development of diverse project ­ specific advisory groups, and a highly successful and much anticipated annual knowledge exchange and team­building event. Lessons Learned: Partnering with stakeholders in the full research process has enhanced the research quality, relevance, application, and sustainability. These benefits have supported the team's evolution from a relatively traditional focus to an integrated approach guiding all aspects of our research. Conclusions: Developing and sustaining the full range of stakeholder and decision­maker partnerships is resource­ and time­intensive, but our experience shows that commu­ nity­based participatory strategies are highly suited to health services research that is designed to support sustainable service delivery improvements.

Published
2014
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4. Podcast Interview Transcript

Author

Joanne Bracken, S. Darius Tandon, Megan E O'Connell, and Debra Morgan

Subjects
Health (social science), Sociology and Political Science, General Medicine, Education
Published
2014
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5. P3‐352: Evaluation of the Outreach Component of the Alzheimer Society of Saskachewan's First Link Program

Author

Joanne Michael, Debra Morgan, Joanne Bracken, Julie Kosteniuk, and Leslie J. Malloy-Weir

Subjects
Gerontology, Medical education, Epidemiology, business.industry, Health Policy, Outreach, Psychiatry and Mental health, Cellular and Molecular Neuroscience, Developmental Neuroscience, Component (UML), Medicine, Neurology (clinical), Geriatrics and Gerontology, Link (knot theory), business
Published
2016
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7. Adventures in rural and remote health services innovation: the role of researcher as collaborator

Author

Debra Morgan, Pat Kessler, Joanne Bracken, and Julie Kosteniuk

Subjects
Service (business), Emergency Medical Services, Health (social science), business.industry, Process (engineering), Public Health, Environmental and Occupational Health, Medicine (miscellaneous), Public relations, Adventure, Health services, ComputerApplications_MISCELLANEOUS, Medicine, InformationSystems_MISCELLANEOUS, business, Health needs
Abstract

Recent pockets of rural innovation illustrate the mutual benefits that result when rural and remote (rural/remote) health researchers enter into active collaborations with decision-makers and other community-based stakeholders (eg advocacy groups) to address the health needs of rural/remote communities. Ideally, collaborations bring together ‘different perspectives and competencies to produce new knowledge about a complex process’. Collaborations enable community-based partners to

Published
2014
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