1,010 results on '"Joffe, Steven"'
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2. Weight Changes and Adverse Pregnancy Outcomes With Dolutegravir- and Tenofovir Alafenamide Fumarate–Containing Antiretroviral Treatment Regimens During Pregnancy and Postpartum
3. Can Research and Care Be Ethically Integrated?
4. Bench to Bedside: Mapping the Moral Terrain of Clinical Research
5. Ethical issues in implementation science: perspectives from a National Heart, Lung, and Blood Institute workshop
6. Evaluating the Therapeutic Misconception
7. Dana-Farber Cancer Institute Ethics Rounds: Life-Threatening Illness and the Desire to Adopt
8. Rethink "Affirmative Agreement," but Abandon "Assent"
9. Establishing a global regulatory floor for children’s decisions about participation in clinical research
10. Access to affordable medicines: obligations of universities and academic medical centers
11. The design and baseline characteristics for the HOPE Consortium Trial to reduce pain and opioid use in hemodialysis
12. Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium
13. The ethical value of consulting community members in non-emergency trials conducted with waivers of informed consent for research.
14. Prescription Requirements and Patient Autonomy : Considering an Over-the-Counter Default
15. The Importance of Engaging Children in Research Decision-Making : A Preliminary Mixed-Methods Study
16. Real-world integration of genomic data into the electronic health record: the PennChart Genomics Initiative
17. Engaging children and adolescents in the design and conduct of paediatric research.
18. Rethinking ethical oversight in the era of the learning health system
19. Attitudes Toward Genetics and Genetic Testing Among Participants in the Jackson and Framingham Heart Studies
20. Transplant center characteristics and survival after allogeneic hematopoietic cell transplantation in adults
21. Actionable exomic incidental findings in 6503 participants: challenges of variant classification
22. Managing institutional conflicts: Stakeholder accounts of communication between conflict of interest and technology transfer offices.
23. The limits of acceptable political influence over the FDA
24. How neonatologists use genetic testing: findings from a national survey
25. Easy-to-Read Informed Consent Form for Hematopoietic Cell Transplantation Clinical Trials: Results from the Blood and Marrow Transplant Clinical Trials Network 1205 Study
26. COVID-19 Moves Medicine into a Virtual Space: A Paradigm Shift From Touch to Talk to Establish Trust
27. The design and baseline characteristics for the HOPE Consortium Trial to reduce pain and opioid use in hemodialysis
28. Justification and authority in institutional review board decision letters
29. A taxonomy of medical uncertainties in clinical genome sequencing
30. Ethical considerations in genomic testing for hematologic disorders
31. Assigning clinical meaning to somatic and germ-line whole-exome sequencing data in a prospective cancer precision medicine study
32. Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents
33. Including Patients in the Governance of Learning Health Systems
34. Frequency and reasons that parents decline genetic testing for critically ill neonates
35. Parental Decision-Making Preferences in Neonatal Intensive Care
36. Oncologists’ and cancer patients’ views on whole-exome sequencing and incidental findings: results from the CanSeq study
37. Justifying Clinical Nudges
38. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine
39. Ethics knowledge of recent paediatric residency graduates: the role of residency ethics curricula
40. The ETHICS of Infection Challenges in PRIMATES
41. Response to Open Peer Commentaries on "Ethical Responsibilities for Companies That Process Personal Data".
42. Ethical Responsibilities for Companies That Process Personal Data
43. Enhancing social value considerations in prioritising publicly funded biomedical research: the vital role of peer review
44. Comparison of Characteristics and Outcomes of Trial Participants and Nonparticipants: Example of Blood and Marrow Transplant Clinical Trials Network 0201 Trial
45. National Survey of Hematopoietic Cell Transplantation Center Personnel, Infrastructure, and Models of Care Delivery
46. Investigator Experiences and Attitudes About Research With Biospecimens
47. Monitoring Multiple U.S. Government–Supported Covid-19 Vaccine Trials
48. Hospital Length of Stay in the First 100 Days after Allogeneic Hematopoietic Cell Transplantation for Acute Leukemia in Remission: Comparison among Alternative Graft Sources
49. Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group
50. Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children’s Hospital Gene Partnership Informed Cohort Oversight Board
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