17 results on '"Joletta Belton"'
Search Results
2. Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners
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Dawn P. Richards, Hetty Mulhall, Joletta Belton, Savia de Souza, Trudy Flynn, Alex Haagaard, Linda Hunter, Amy Price, Sara Riggare, Janice Tufte, Rosie Twomey, and Karim M. Khan
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Patient engagement in research ,Patient and public involvement ,Consumer involvement ,Service user research ,Patient-led conference ,Co-production ,Medicine ,Medicine (General) ,R5-920 - Abstract
Abstract Research projects, initiatives and conferences that include patients as partners rather than as participants are becoming more common. Including patients as partners (what we will call ‘patient partners’) is an approach called patient engagement or involvement in research, and we will call it patient engagement throughout this paper. Patient engagement moves traditional health research conferences and events to include a broader audience for their knowledge exchange and community building efforts, beyond academics and healthcare professionals. However, there are few examples of conferences where patients are given the opportunity to fully lead. Our conference went beyond patient engagement – it was patient-led. Patient partners conceived, planned, and decided on all aspects of a virtual conference. We present the work and processes we undertook throughout 2023 to create and produce a free conference called “PxP: For patients, by patients” or PxP for short, with a tagline of “Partnering to make research stronger.” PxP was patient-led and about patient engagement in research rather than a specific disease or condition. PxP was supported by the Canadian Institutes of Health Research Institute of Musculoskeletal Health and Arthritis. The PxP website, known as the PxP Hub, now houses the conference recordings along with resources about patient engagement in research. These resources were recommended by the PxP Steering Committee members, speakers, and others who attended the 2023 conference. Here we lead you through how the idea for PxP was generated; how the international patient partner Steering Committee was convened and supported; how PxP was brought to life over nine months; the PxP 3-day event and feedback collected to improve future efforts; trade-offs, challenges and learnings; and resources required to support this type of event. We close with what the future holds for PxP in 2024 and beyond. It’s time to elevate patients into leadership roles for conferences and events, and we encourage you to adopt the PxP ethos by using or adapting our approach and resources to support your opportunity.
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- 2024
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3. One step at a time. Shaping consensus on research priorities and terminology in telehealth in musculoskeletal pain: an international modified e-Delphi study
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Junior V. Fandim, Rana S. Hinman, Cecilie K. Øverås, Saurab Sharma, Joletta Belton, Vinícius C. Oliveira, Blake F. Dear, Romy Parker, Babita Ghai, Kim L. Bennell, Paulo Ferreira, Jan Hartvigsen, and Bruno T. Saragiotto
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Telehealth ,Telerehabilitation ,Delphi technique ,Research priorities ,Terminology ,Musculoskeletal pain ,Diseases of the musculoskeletal system ,RC925-935 - Abstract
Abstract Background Telehealth has emerged as an alternative model for treatment delivery and has become an important component of health service delivery. However, there is inconsistency in the use of terminologies and a lack of research priorities in telehealth in musculoskeletal pain. The purpose of this international, multidisciplinary expert panel assembled in a modified three-round e-Delphi survey is to achieve a consensus on research priorities and for the standard terminology for musculoskeletal pain telehealth practice. Methods In this international modified e-Delphi survey, we invited an expert panel consisting of researchers, clinicians, consumer representatives, industry partners, healthcare managers, and policymakers to participate in a three-round e-Delphi. Expert panels were identified through the Expertscape website, PubMed database, social media, and a snowball approach. In Round 1, potential research priorities and terminologies were presented to panel members. Panel members rated the agreement of each research priority on a 5-point Likert scale and an 11-point numerical scale, and each terminology on a 5-point Likert scale for the "telehealth in musculoskeletal pain " field over rounds. At least 80% of the panel members were required to agree to be deemed a consensus. We analyzed the data descriptively and assessed the stability of the results using the Wilcoxon matched-pairs signed rank test. Results We performed an international e-Delphi survey from February to August 2022. Of 694 invited people, 160 panel members participated in the first round, 133 in the second round (83% retention), and 134 in the third round (84% retention). Most of the panel members were researchers 76 (47%), clinicians 57 (36%), and consumer representatives 9 (6%) of both genders especially from Brazil 31 (19%), India 22 (14%), and Australia 19 (12%) in the first round. The panel identified fourteen telehealth research priorities spanned topics including the development of strategies using information and communication technology, telehealth implementation services, the effectiveness and cost-effectiveness of telehealth interventions, equity of telehealth interventions, qualitative research and eHealth literacy in musculoskeletal pain conditions from an initial list of 20 research priorities. The consensus was reached for "digital health" and "telehealth" as standard terminologies from an initial list of 37 terminologies. Conclusion An international, multidisciplinary expert consensus recommends that future research should consider the 14 research priorities for telehealth musculoskeletal pain reached. Additionally, the terms digital health and telehealth as the most appropriate terminologies to be used in musculoskeletal telehealth research. Register Open Science Framework ( https://osf.io/tqmz2/ ).
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- 2023
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4. Patient-centered consultations for persons with musculoskeletal conditions
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Joletta Belton, Hollie Birkinshaw, and Tamar Pincus
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Patient-centered ,Reassurance ,Validation ,Communication ,Chiropractic ,RZ201-275 ,Diseases of the musculoskeletal system ,RC925-935 - Abstract
Abstract Consultations between practitioners and patients are more than a hypothesis-chasing exploration, especially when uncertainty about etiology and prognosis are high. In this article we describe a single individual's account of their lived experience of pain and long journey of consultations. This personal account includes challenges as well as opportunities, and ultimately led to self-awareness, clarity, and living well with pain. We follow each section of this narrative with a short description of the emerging scientific evidence informing on specific aspects of the consultation. Using this novel structure, we portray a framework for understanding consultations for persistent musculoskeletal pain from a position of patient-centered research to inform practice.
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- 2022
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5. Health systems strengthening to arrest the global disability burden: empirical development of prioritised components for a global strategy for improving musculoskeletal health
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Dieter Wiek, Richard Brown, Andrew M Briggs, Saurab Sharma, James Waddell, Anthony D Woolf, Lyn March, Helen Slater, Enrique R Soriano, Kristina E Åkesson, Fiona M Blyth, Ali Mobasheri, Ben Horgan, Helen E Foster, Neil Betteridge, Joanne E Jordan, Anil Jain, Francesca Gimigliano, Nuzhat Ali, Margareta C Nordin, Shuichi Matsuda, Carmen Huckel Schneider, Sarika Parambath, James J Young, Deborah Kopansky-Giles, Swatee Mishrra, Joletta Belton, Demelash Debere, Karsten E Dreinhöfer, Laura Finucane, Scott Haldeman, Syed A Haq, Manjul Joshipura, Asgar A Kalla, Jakob Lothe, Lillian Mwaniki, Marilyn Pattison, Felipe J J Reis, and Heather Tick
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Medicine (General) ,R5-920 ,Infectious and parasitic diseases ,RC109-216 - Abstract
Introduction Despite the profound burden of disease, a strategic global response to optimise musculoskeletal (MSK) health and guide national-level health systems strengthening priorities remains absent. Auspiced by the Global Alliance for Musculoskeletal Health (G-MUSC), we aimed to empirically derive requisite priorities and components of a strategic response to guide global and national-level action on MSK health.Methods Design: mixed-methods, three-phase design.Phase 1: qualitative study with international key informants (KIs), including patient representatives and people with lived experience. KIs characterised the contemporary landscape for MSK health and priorities for a global strategic response.Phase 2: scoping review of national health policies to identify contemporary MSK policy trends and foci.Phase 3: informed by phases 1–2, was a global eDelphi where multisectoral panellists rated and iterated a framework of priorities and detailed components/actions.Results Phase 1: 31 KIs representing 25 organisations were sampled from 20 countries (40% low and middle income (LMIC)). Inductively derived themes were used to construct a logic model to underpin latter phases, consisting of five guiding principles, eight strategic priority areas and seven accelerators for action.Phase 2: of the 165 documents identified, 41 (24.8%) from 22 countries (88% high-income countries) and 2 regions met the inclusion criteria. Eight overarching policy themes, supported by 47 subthemes, were derived, aligning closely with the logic model.Phase 3: 674 panellists from 72 countries (46% LMICs) participated in round 1 and 439 (65%) in round 2 of the eDelphi. Fifty-nine components were retained with 10 (17%) identified as essential for health systems. 97.6% and 94.8% agreed or strongly agreed the framework was valuable and credible, respectively, for health systems strengthening.Conclusion An empirically derived framework, co-designed and strongly supported by multisectoral stakeholders, can now be used as a blueprint for global and country-level responses to improve MSK health and prioritise system strengthening initiatives.
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- 2021
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6. Public and patient perceptions of diagnostic labels for non-specific low back pain: a content analysis
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Mary O’Keeffe, Zoe A. Michaleff, Ian A. Harris, Rachelle Buchbinder, Giovanni E. Ferreira, Joshua R. Zadro, Adrian C. Traeger, Rae Thomas, Joletta Belton, Ben Darlow, and Chris G. Maher
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Orthopedics and Sports Medicine ,Surgery - Abstract
Purpose An online randomised experiment found that the labels lumbar sprain, non-specific low back pain (LBP), and episode of back pain reduced perceived need for imaging, surgery and second opinions compared to disc bulge, degeneration, and arthritis among 1447 participants with and without LBP. They also reduced perceived seriousness of LBP and increased recovery expectations. Methods In this study we report the results of a content analysis of free-text data collected in our experiment. We used two questions: 1. When you hear the term [one of the six labels], what words or feelings does this make you think of? and 2. What treatment (s) (if any) do you think a person with [one of the six labels] needs? Two independent reviewers analysed 2546 responses. Results Ten themes emerged for Question1. Poor prognosis emerged for disc bulge, degeneration, and arthritis, while good prognosis emerged for lumbar sprain, non-specific LBP, and episode of back pain. Thoughts of tissue damage were less common for non-specific LBP and episode of back pain. Feelings of uncertainty frequently emerged for non-specific LBP. Twenty-eight treatments emerged for Question2. Surgery emerged for disc bulge, degeneration, and arthritis compared to lumbar sprain, non-specific LBP, and episode of back pain. Surgery did not emerge for non-specific LBP and episode of back pain. Conclusion Our results suggest that clinicians should consider avoiding the labels disc bulge, degeneration and arthritis and opt for labels that are associated with positive beliefs and less preference for surgery, when communicating with patients with LBP.
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- 2022
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7. Outcome domains that matter to people with chronic musculoskeletal pain, informal caregivers, and healthcare professionals: An international online survey
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Johansen, Simon Kristoffer, Møller, Lars B., McCracken, Lance, Chevance, Astrid, Hoegh, Morten, Lee, Rebecca, Kogi, Mette Ø., Djurtoft, Chris, Lyng, Kristian, Kamper, Steven, Goff, Anthony, Joletta Belton, and Prof. Michael Skovdal Rathleff
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People living with chronic pain ,Chronic musculoskeletal pain ,Caregivers ,Healthcare professionals ,Medicine and Health Sciences ,Core outcome set ,Outcome domain ,Qualitative content analysis ,Survey - Abstract
We will conduct an online international survey using large-scale qualitative content analyses of open-text answers. This current study aims to provide a comprehensive list of outcome domains that are important to people with chronic musculoskeletal pain, informal caregivers, and healthcare professionals.
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- 2023
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8. A Healing Journey with Chronic Pain: A Meta-Ethnography Synthesizing 195 Qualitative Studies
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Joletta Belton, Karen Barker, Francine Toye, Kate Seers, and Erin Hannink
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Adult ,Psychotherapist ,Energy (esotericism) ,media_common.quotation_subject ,Psychological intervention ,Psychology of self ,03 medical and health sciences ,0302 clinical medicine ,Patient experience ,Humans ,Medicine ,Active listening ,030212 general & internal medicine ,Anthropology, Cultural ,Qualitative Research ,media_common ,business.industry ,Chronic pain ,General Medicine ,medicine.disease ,Anesthesiology and Pain Medicine ,GN ,Conceptual model ,Neurology (clinical) ,Chronic Pain ,RB ,business ,Delivery of Health Care ,RA ,030217 neurology & neurosurgery ,Qualitative research - Abstract
Objective There is a large body of research exploring what it means for a person to live with chronic pain. However, existing research does not help us understand what it means to recover. We aimed to identify qualitative research that explored the experience of living with chronic pain published since 2012 and to understand the process of recovery. Design A synthesis of qualitative research using meta-ethnography. Methods We used the seven stages of meta-ethnography. We systematically searched for qualitative research, published since 2012, that explored adults’ experiences of living with, and being treated for, chronic pain. We used constant comparison to distill the essence of ideas into themes and developed a conceptual model. Results We screened 1,328 titles and included 195 studies. Our conceptual model indicates that validation and reconnection can empower a person with chronic pain to embark on a journey of healing. To embark on this journey requires commitment, energy, and support. Conclusions The innovation of our study is to conceptualize healing as an ongoing and iterating journey rather than a destination. Health interventions for chronic pain would usefully focus on validating pain through meaningful and acceptable explanations; validating patients by listening to and valuing their stories; encouraging patients to connect with a meaningful sense of self, to be kind to themselves, and to explore new possibilities for the future; and facilitating safe reconnection with the social world. This could make a real difference to people living with chronic pain who are on their own healing journeys.
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- 2021
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9. Effect of diagnostic labelling on management intentions for non-specific low back pain: A randomized scenario-based experiment
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Mary O'Keeffe, Giovanni E Ferreira, Ian A Harris, Ben Darlow, Rachelle Buchbinder, Adrian C Traeger, Joshua R Zadro, Rob D Herbert, Rae Thomas, Joletta Belton, and Chris Maher
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Background Diagnostic labels may influence treatment intentions. We examined the effect of labelling low back pain (LBP) on beliefs about imaging, surgery, second opinion,seriousness, recovery, work, and physical activities. Methods Six-arm online randomized experiment with blinded participants with and without LBP. Participants received one of six labels:‘disc bulge’,‘degeneration’,‘arthritis’,‘lumbar sprain’,‘non-specific LBP’,‘episode of back pain’. The primary outcome was the belief about the need for imaging. Results A total of 1375 participants (mean [SD] age, 41.7 years [18.4 years]; 748 women [54.4%]) were included. The need for imaging was rated lower with the labels‘episode of back pain’(4.2 [2.9]),‘lumbar sprain’(4.2 [2.9]) and‘non-specific LBP’(4.4 [3.0]) compared to the labels‘arthritis’(6.0 [2.9]),‘degeneration’(5.7 [3.2]) and‘disc bulge’(5.7 [3.1]). The same labels led to higher recovery expectations and lower ratings of need for a second opinion, surgery and perceived seriousness compared to‘disc bulge’,‘degeneration’and‘arthritis’. Differences were larger amongst participants with current LBP who had a history of seeking care. No differences were found in beliefs about physical activity and work between the six labels. Conclusions ‘Episode of back pain’,‘lumbar sprain’and‘non-specific LBP’reduced need for imaging, surgery and second opinion compared to‘arthritis’,‘degeneration’and‘disc bulge’amongst public and patients with LBP as well as reducing the perceived seriousness of LBP and enhancing recovery expectations. The impact of labels appears most relevant amongst those at risk of poor outcomes (participants with current LBP who had a history of seeking care).
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- 2022
10. Pain management programmes via video conferencing: a rapid review
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Jackie Walumbe, Joletta Belton, and Diarmuid Denneny
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Telemedicine ,020205 medical informatics ,Psychological intervention ,02 engineering and technology ,PsycINFO ,computer.software_genre ,03 medical and health sciences ,0302 clinical medicine ,Videoconferencing ,Health care ,0202 electrical engineering, electronic engineering, information engineering ,medicine ,Humans ,Pain Management ,030212 general & internal medicine ,Remote Consultation ,Medical education ,business.industry ,Chronic pain ,Peer group ,medicine.disease ,Anesthesiology and Pain Medicine ,Neurology (clinical) ,Chronic Pain ,business ,computer - Abstract
Objectives During the current COVID-19 pandemic, healthcare has been transformed by the rapid switch from in person care to use of remote consulting, including video conferencing technology. Whilst much has been published on one-to-one video consultations, little literature exists on use of this technology to facilitate group interventions. Group pain management programmes are a core treatment provided by many pain services. This rapid review aimed to identify the extent of use of video conferencing technology for delivery of group pain management programmes and provide an overview of its use. Methods A rapid review of the literature published up to April 2020 (PubMed, PsycINFO and PEDro) was performed. The search string consisted of three domains: pain/CP (MeSH term) AND Peer group[MeSH] AND Videoconferencing[MeSH]/Telemedicine[MeSH]/Remote Consultation[MeSH]. The studies were of poor methodological quality and study design, and interventions and chronic pain conditions were varied. Results Literature searching yielded three eligible papers for this review. All studies had low methodological quality and risk of bias. Heterogeneity and variability in outcome reporting did not allow any pooling of data. The results demonstrated that videoconferencing for delivery of group programmes is possible, yet there is little extant literature on how to develop, deliver and measure outcomes of such programmes. Conclusions This review demonstrates that there is little evidence to support or guide the use of synchronous videoconferencing to deliver pain management programmes. We present issues to consider, informed by this review and our experience, when implementing video conferencing. Study quality of existing work is variable, and extensive future research is necessary.
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- 2020
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11. Terminology and Research Priorities in Telehealth in Musculoskeletal Pain Research: An International Modified e-Delphi Study
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Dear, Blake, Oliveira, Vinicius Cunha, Hinman, Rana S, Hartvigsen, Jan, Ghai, Babita, Saragiotto, Bruno, Parker, Romy, Fandim, Junior V., Bennell, Kim L, Ferreira, Paulo Henrique, Øverås, Cecilie Krage, Sharma, Saurab, and Joletta Belton
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health services administration ,education ,health care economics and organizations - Abstract
This is a modified three-stage international e-Delphi survey. The main objective of this e-Delphi survey is to reach consensus between stakeholders on telehealth terminology and research priorities in musculoskeletal pain research.
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- 2022
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12. Patients as Partners in Research: There Is Plenty of Help for Researchers
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Alex Scott, Joletta Belton, Clare L Ardern, and Alison M. Hoens
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030203 arthritis & rheumatology ,Research Subjects ,business.industry ,Best practice ,Physical Therapy, Sports Therapy and Rehabilitation ,General Medicine ,Public relations ,Domain (software engineering) ,03 medical and health sciences ,0302 clinical medicine ,General partnership ,Research community ,Health care ,Selection (linguistics) ,Humans ,Medicine ,030212 general & internal medicine ,Patient Participation ,business - Abstract
If including patients as equal partners in health care research is increasingly regarded as "the right thing to do," then it is important that researchers and patients "do it right." The research community should be aware of, use, and share resources that support best practices in this domain. The first editorial in the series focused on why researchers should engage patient partners on research teams. In this, the second editorial in the series, we concentrate on how to engage patient partners and highlight a selection of resources to help researchers and to demystify patient partnerships in research. J Orthop Sports Phys Ther 2020;50(5):219-221. doi:10.2519/jospt.2020.0104.
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- 2020
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13. Patients as Partners in Research: It's the Right Thing to Do
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Clare L Ardern, Alex Scott, Joletta Belton, and Alison M. Hoens
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media_common.quotation_subject ,Energy (esotericism) ,Physical Therapy, Sports Therapy and Rehabilitation ,Patient engagement ,Sports Medicine ,03 medical and health sciences ,0302 clinical medicine ,Musculoskeletal Pain ,Health care ,Humans ,Medicine ,Quality (business) ,030212 general & internal medicine ,health care economics and organizations ,Uncategorized ,media_common ,Medical education ,business.industry ,Research ,030503 health policy & services ,General Medicine ,Investment (macroeconomics) ,Orthopedics ,Sports physical therapy ,General partnership ,Patient Participation ,Periodicals as Topic ,0305 other medical science ,business - Abstract
The health research landscape is changing, and it is time for the Journal of Orthopaedic & Sports Physical Therapy (JOSPT) community to foster authentic opportunities for patient engagement in musculoskeletal research and practice. Although authentic engagement has challenges, the benefits are well worth the investment of time and energy to overcome these challenges and improve the quality of physical therapy research. In this editorial, the authors outline 3 steps JOSPT is taking to promote and support patient partnership in musculoskeletal research. J Orthop Sports Phys Ther 2019;49(9):623-626. doi:10.2519/jospt.2019.0106.
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- 2019
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14. IASP Presidential Taskforce on Cannabis and Cannabinoid Analgesia: Research Agenda on the Use of Cannabinoids, Cannabis, and Cannabis-Based Medicines for Pain Management
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Louisa Degenhardt, Christopher Eccleston, Fiona M. Blyth, Joletta Belton, Simon Haroutounian, Eija Kalso, Nadia Soliman, Elliot J. Krane, R Andrew Moore, Andrea G. Hohmann, Lars Arendt-Nielsen, Nantthasorn Zinboonyahgoon, Michael C. Rowbotham, Emma Fisher, Alexandra E. Fogarty, Ian Gilron, Andrew S.C. Rice, Mohammed Mohiuddin, Marta Di Forti, David P. Finn, Nanna B. Finnerup, and Mark S. Wallace
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medicine.medical_specialty ,medicine.medical_treatment ,Analgesic ,MEDLINE ,Pain ,Context (language use) ,Article ,03 medical and health sciences ,Patient safety ,0302 clinical medicine ,030202 anesthesiology ,Medicine ,Animals ,Humans ,Pain Management ,Psychiatry ,Cannabis ,Analgesics ,biology ,business.industry ,Cannabinoids ,Reproducibility of Results ,biology.organism_classification ,3. Good health ,Clinical trial ,Anesthesiology and Pain Medicine ,Systematic review ,Neurology ,Neurology (clinical) ,Cannabinoid ,Analgesia ,business ,030217 neurology & neurosurgery ,Systematic Reviews as Topic - Abstract
The President of the International Association for the Study of Pain (IASP) established a Taskforce on Cannabis and Cannabinoid Analgesia, to systematically examine the evidence on (i) analgesic pharmacology of cannabinoids and preclinical evidence on their efficacy in animal models of injury-related or pathological persistent pain, (ii) the clinical efficacy of cannabis, cannabinoids and cannabis-based medicines (CBM) for pain, (iii) harms related to long-term use of cannabinoids, as well as (iv) societal issues and policy implications related to the use of these compounds for pain management. Here, we summarize key knowledge gaps identified in the Taskforce outputs and propose a research agenda for generating high-quality evidence on the topic. The systematic assessment of preclinical and clinical literature identified gaps in rigor of study design and reporting across the translational spectrum. We provide recommendations to improve the quality, rigor, transparency, and reproducibility of preclinical and clinical research on cannabis and cannabinoids for pain, as well as for the conduct of systematic reviews on the topic. Gaps related to comprehensive understanding of the endocannabinoid system and cannabinoid pharmacology, including pharmacokinetics and drug formulation aspects, are discussed. We outline key areas where high quality clinical trials with cannabinoids are needed. Important remaining questions about long-term and short-term safety of cannabis and cannabinoids are emphasized. Finally, regulatory, societal and policy challenges associated with medicinal and non-medicinal use of cannabis are highlighted, with recommendations for improving patient safety and reducing societal harms in the context of pain management.
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- 2021
15. Public and patient perceptions of diagnostic labels for non-specific low back pain: a content analysis
- Author
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Mary, O'Keeffe, Zoe A, Michaleff, Ian A, Harris, Rachelle, Buchbinder, Giovanni E, Ferreira, Joshua R, Zadro, Adrian C, Traeger, Rae, Thomas, Joletta, Belton, Ben, Darlow, and Chris G, Maher
- Abstract
An online randomised experiment found that the labels lumbar sprain, non-specific low back pain (LBP), and episode of back pain reduced perceived need for imaging, surgery and second opinions compared to disc bulge, degeneration, and arthritis among 1447 participants with and without LBP. They also reduced perceived seriousness of LBP and increased recovery expectations.In this study we report the results of a content analysis of free-text data collected in our experiment. We used two questions: 1. When you hear the term [one of the six labels], what words or feelings does this make you think of? and 2. What treatment (s) (if any) do you think a person with [one of the six labels] needs? Two independent reviewers analysed 2546 responses.Ten themes emerged for Question1. Poor prognosis emerged for disc bulge, degeneration, and arthritis, while good prognosis emerged for lumbar sprain, non-specific LBP, and episode of back pain. Thoughts of tissue damage were less common for non-specific LBP and episode of back pain. Feelings of uncertainty frequently emerged for non-specific LBP. Twenty-eight treatments emerged for Question2. Surgery emerged for disc bulge, degeneration, and arthritis compared to lumbar sprain, non-specific LBP, and episode of back pain. Surgery did not emerge for non-specific LBP and episode of back pain.Our results suggest that clinicians should consider avoiding the labels disc bulge, degeneration and arthritis and opt for labels that are associated with positive beliefs and less preference for surgery, when communicating with patients with LBP.
- Published
- 2021
16. The Socio-cultural Context of Pediatric Pain: An Examination of the Portrayal of Pain in Children’s Popular Media
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Alexandra Neville, Kendra Mueri, Joletta Belton, Melanie Noel, Tatiana Lund, Abbie Jordan, Maria Pavlova, and Madison Kennedy
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Male ,Parents ,media_common.quotation_subject ,Pain ,Empathy ,03 medical and health sciences ,Sex Factors ,0302 clinical medicine ,030202 anesthesiology ,medicine ,Humans ,Girl ,Parent-Child Relations ,Child ,Sociocultural evolution ,media_common ,Chronic pain ,Social environment ,medicine.disease ,Popularity ,Distress ,Anesthesiology and Pain Medicine ,Neurology ,Female ,Observational study ,Neurology (clinical) ,Psychology ,030217 neurology & neurosurgery ,Clinical psychology - Abstract
Pain (e.g., needle injections, injuries, chronic pain) is highly prevalent in childhood and occurs in social contexts. Nevertheless, broader socio-cultural influences on pediatric pain, such as popular media, have not been empirically examined. The present study examined how pain is portrayed and gendered in children’s popular media. A cross-section of children’s media targeted towards 4-6-year-old children was selected based on popularity, including 10 movies and the first season of 6 television shows. Pain instances were extracted and coded using two established observational coding systems assessing sufferer pain characteristics, and observer responses (e.g., empathic responses). Findings identified 454 instances of pain across the selected media. Violent pain (i.e., intentionally inflicted) and injuries were most commonly represented, whereas everyday, chronic-type and procedural pains were infrequently portrayed. Pain instances were more commonly experienced by boy characters, who also expressed greater distress, yet observers were more responsive (e.g., expressed greater concern) towards girl characters’ pain. Overall, observer responses to pain were infrequent, with observers witnessing but not responding to nearly half of pain instances. Observers that did respond expressed an overall lack of empathy towards sufferers. These findings reveal a very narrow depiction of pain presented in children’s popular media, with an overall underrepresentation of pain, numerous maladaptive portrayals of pain, and gender differences in both sufferer and observer responses. This study underscores the need for further research to inform how children’s popular media is perceived by parents and children, and how media may be transformed and harnessed for effective pain education in childhood.
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- 2021
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17. Meanings of Pain
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Brandon Barndt, Helena Lööf, Lester E. Jones, Florin Oprescu, Christopher J Graham, Sara E. Appleyard, Joletta Belton, Chandler L. Bolles, Marc A. Russo, James E. Eubanks, Deborah Gillon, Marie Crowe, Melanie Galbraith, James W. Atchison, Tim V. Salomons, Colleen Johnston-Devin, John Quintner, Andrew W Horne, Chris Clarke, Maria Vanushkina, Laura Y. Whitburn, Michael E. Farrell, Grant Duncan, Cate McCall, Zehra Gok Metin, Milton Cohen, Bronwyn Lennox Thompson, Emma Borg, Nathaniel Hansen, Smadar Bustan, Marion Gray, Jennifer Jordan, and Shona L. Brown
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medicine.medical_specialty ,business.industry ,Physical therapy ,Medicine ,business ,Volume (compression) - Published
- 2019
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