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Immunization is considered one of the most successful and cost-effective public health interventions by the World Health Organization, preventing an estimated 2 to 3 million deaths per year globally (WHO, 2018). From a public health perspective, there is growing concern that vaccination rates are insufficient to effectively control the spread of infectious diseases. From a public trust perspective, there is increasing doubt in some groups of the claims made about vaccination by authorities. Active and meaningful public engagement in health service delivery and health research is considered essential to quality improvement of health services, greater responsiveness to public needs, and more legitimate, transparent, and accountable decision-making. Public engagement through deliberative processes has garnered increasing interest from public health researchers and policy makers on a number of health-related topics, including priority setting, planning and governance of health services, and health technology assessment (Degeling et al., 2015). Calls for deliberative approaches relating to vaccine-related policy decisions have also been made. Nevertheless, to our knowledge, there has not been any official, government-sponsored public engagement event for members of the public in Ontario to deliberate on the topic of childhood vaccination. In this chapter, we begin by providing a brief overview of the current regulatory context in Ontario with regard to childhood vaccination. We then outline the Ontario Vaccine Deliberation, an academic-led project in which a lay public was convened to discuss challenges and controversies regarding childhood vaccination in Ontario, and the recommendations that were generated and endorsed by the participants through small and large group discussions during the deliberation. We draw on the Ontario Vaccine Deliberation, as well as scholarly literature, to illustrate the importance of engaging publics in decision-making about childhood vaccination. We focus our discussion on the main issues that were raised during the deliberation, namely mandatory vaccination and non-medical exemptions, communication about vaccination, and compensation for serious adverse events following immunization. The chapter includes an appendix that examines the application of democratization processes through public deliberation to the COVID-19 pandemic.

Empirical research in psychology and political science shows that individuals collect, process, and interpret information in a goal-driven fashion. Several theorists have argued that rather than striving for accuracy in their conclusions, individuals are motivated to arrive at conclusions that align with their previous beliefs, values, or identity commitments. The literature refers to this phenomenon broadly as ‘motivated reasoning’. In the context of risk governance, motivated reasoning can help to explain why people vary in their risk perceptions, evaluations, and preferences about risk management. But our current understanding of the phenomenon is incomplete, including the degree to which motivated reasoning should be considered rational and reasonable. Further, the research on motivated reasoning is largely unknown among risk practitioners. This chapter identifies key theoretical models of motivated reasoning, discusses the conceptual differences between them, and explores the implications of motivated reasoning for risk governance. Motivated reasoning is often labeled as ‘irrational’ and thus seen to prevent effective decision-making about risk, but this chapter challenges this assessment. The chapter concludes by identifying theoretical and empirical implications for researchers studying motivated reasoning and risk, as well as practical implications for policymakers and regulators involved in risk governance.

Children and adolescents with Inflammatory Bowel Disease (IBD) face significant and unique challenges related to their condition. The aim of this study was to better understand some of these challenges, and to explore how Canadian youth respond to them. We interviewed 25 pediatric patients with IBD, ranging in age from 10–17, to find out about their illness experiences. Using a thematic analysis, we discerned three themes: challenges related to diagnosis, making sense of change, and navigating sociability. Taken together, they paint a picture of young people facing great uncertainty prior to diagnosis, pronounced changes to selfhood as they make lifestyle adjustments, and facing difficulties with the implications of reduced sociability because of their disease. We conclude by providing recommendations for the development of resources aimed at helping newly diagnosed pediatric patients navigate these issues.

Governments are increasingly interested in measuring quality of life (QoL) among older adults to inform policy. We demonstrate the advantages of situating an investigation of QoL in local contexts through a thematic analysis of focus group data collected in Chatham-Kent, Ontario, Canada. Local and broader factors relating to QoL among older adults were explored. We examine three themes: Natural Environment considers how participants derive aspects of their sense of QoL from the unique natural environment in Chatham-Kent; Amalgamation's Influence on Identity explores how participants' sense of belongingness and place-based identity were shaped by the amalgamation of townships and communities that now constitute Chatham-Kent; and Ease of Travel and Independence examines how older adults' conceptions of QoL are closely connected to their ease of travel, which they connect with a sense of independence. Our findings provide further support for the importance of engaging directly with older adults to understand their perspectives of QoL in a local context, particularly when seeking to inform policy changes.

PurposeWe carried out the first public deliberation to elicit lay input regarding guidelines for the design and evaluation of decision aids, focusing on the example of colorectal (“colon”) cancer screening.MethodsA random, demographically stratified sample of 28 laypeople convened for 4 days, during which they were informed about key issues regarding colon cancer, screening tests, risk communication, and decision aids. Participants then deliberated in small and large group sessions about the following: 1) What information should be included in all decision aids for colon screening? 2) What risk information should be in a decision aid and how should risk information be presented? 3) What makes a screening decision a good one (reasonable or legitimate)? 4) What makes a decision aid and the advice it provides trustworthy? With the help of a trained facilitator, the deliberants formulated recommendations, and a vote was held on each to identify support and alternative views.ResultsTwenty-one recommendations (“deliberative conclusions”) were strongly supported. Some conclusions matched current recommendations, such as that decision aids should be available for use with and without providers present (conclusions 1–4) and should support informed choice (conclusion 9). Some conclusions differed from current recommendations, at least in emphasis—for example, that decision aids should disclose cost of screening (conclusion 11) and should be kept simple and understandable (conclusion 14). Deliberants recommended that decision aids should disclose the baseline risk of getting colon cancer (conclusions 15, 17).LimitationsSingle location and medical decision.ConclusionsGuidelines for design of decision aids should consider putting a greater focus on disclosing cost and keeping decision aids simple, and they possibly should recommend disclosing less extensive amounts of quantitative information than currently recommended.

Daily, millions of North American women turn to popular media, like women's health magazines, for health-related advice and information. “Magazines continue to be a popular medium” and, given their power and reach, remain an important site for critical analysis. In this article, we examine the ways in which three popular women's health magazines provide “health” advice to their readers. We first provide an overview of research in feminist media studies exploring postfeminist sensibility, healthism, and now a postfeminist healthism. We then conduct a critical discourse analysis of articles from all 30 issues of Health, Women's Health, and Shape magazines published in 2018. Our investigation of how the magazines portray what it means to have “good health,” suggests that health continues to be conflated with appearance. Moreover, health is presented as confusing, such that maintaining health requires expert help, and as purchasable, and thus linked to economic practices.

The 30th year of publication of Theory & Psychology has coincided with local and global disruption and upheaval. The COVID-19 pandemic has affected everyone, and in so doing has reemphasized (and in some instances reinforced and exacerbated) systemic inequities. The year has also been characterized by a resurgence of the Black Lives Matter movement and antiracism protests, as well as counter protests from the far right. There has been a dramatic upsurge in public disagreement about knowledge claims in what some have been calling a post-truth world. Given this, it is worth reexamining the role of theoretical psychology in the discipline and beyond. The occasion of the 30-year anniversary of Theory & Psychology is used to reaffirm the vibrancy and relevance of theoretical work in psychology. The question is raised to what degree we have an obligation to make our theoretical work intelligible beyond the specific scholarly communities engaged in work similar to our own. Ten articles featured in this anniversary issue are introduced.

Vaginal cleansing products such as douches, sprays, wipes, powders, washes, and deodorants are part of a growing $2 billion industry in North America. Part of the appeal of these products is supposedly attaining vaginal cleanliness, which is marketed in association with product use. Although these products are promoted as healthy, medical research indicates potential health risks for some of these products (e.g. yeast infections, bacterial vaginosis, and disruption of the vaginal microbiota). Despite these risks, many women use these products. In this paper, we draw on interviews with women who use vaginal cleansing products to examine the ways in which particular portrayals of the vagina are connected with broader societal messages about female genitalia and with motivations to use vaginal cleansing practices. These portrayals include the healthy vagina, the clean vagina, and the dirty vagina. We show that although participants in our study valued both a clean vagina and a healthy vagina, when tension occurred between these two portrayals, participants prioritized vaginal cleanliness over vaginal health. We argue that this prioritization of the idealized clean vagina is connected to societal pressures of needing to attain unrealistic standards of vaginal cleanliness.

Faecal microbiota transplantation is an effective therapy for recurrent Clostridioides difficile infection, with potential therapeutic applications in other health conditions. As research uncovers potential associations between the intestinal microbiome and various disease states, stool donor screening has become increasingly stringent, leading to low donor acceptance. Many stool banks have opted to recruit universal stool donors, who are encouraged to donate frequently over a prolonged period and whose stool is used to treat multiple patients. However, various ethical concerns arise when recruiting universal stool donors, which need to be addressed to mitigate harm to donors. In this Personal View, we describe the major ethical issues with universal stool banks across six domains: informed consent, privacy, the imposing of restrictions on autonomy, stewardship of microbiome information, financial incentives, and preventing a sense of obligation. We also suggest several priorities for future research that should be pursued to address these crucial issues and develop more donor-centric stool banks.

Humans are inextricably linked to each other and our natural world, and microorganisms lie at the nexus of those interactions. Microorganisms form genetically flexible, taxonomically diverse, and biochemically rich communities, i.e., microbiomes that are integral to the health and development of macroorganisms, societies, and ecosystems. Yet engagement with beneficial microbiomes is dictated by access to public resources, such as nutritious food, clean water and air, safe shelter, social interactions, and effective medicine. In this way, microbiomes have sociopolitical contexts that must be considered. The Microbes and Social Equity (MSE) Working Group connects microbiology with social equity research, education, policy, and practice to understand the interplay of microorganisms, individuals, societies, and ecosystems. Here, we outline opportunities for integrating microbiology and social equity work through broadening education and training; diversifying research topics, methods, and perspectives; and advocating for evidence-based public policy that supports sustainable, equitable, and microbial wealth for all.

IntroductionResearch using linked data sets can lead to new insights and discoveries that positively impact society. However, the use of linked data raises concerns relating to illegitimate use, privacy, and security (e.g., identity theft, marginalization of some groups). It is increasingly recognized that the public needs to be consulted to develop data access systems that consider both the potential benefits and risks of research. Indeed, there are examples of data sharing projects being derailed because of backlash in the absence of adequate consultation. (e.g., care.data in the UK). Objectives and methodsThis paper describes the results of a public deliberation event held in April 2018 in Vancouver, British Columbia. The purpose of this event was to develop informed and civic-minded public advice regarding the use and the sharing of linked data for research with a focus on the processes and regulations employed to release data. The event brought together 23 members of the public over two weekends. ResultsParticipants developed and voted on 19 policy-relevant statements. Voting results and the rationale behind any disagreements are reported here. Taken together, these statements provide a broad view of public support and concerns regarding the use of linked data sets for research and offer guidance on measures that can be taken to improve the trustworthiness of policies and process around data sharing and use. ConclusionsGenerally, participants were supportive of research using linked data because of the value they provide to society. Participants expressed a desire to see the data access request process made more efficient to facilitate more research, as long as there are adequate protections in place around security and privacy of the data.

Over the counter vaginal cleansing products are part of a growing market. In the United States, for example, consumers spend over two billion dollars a year on douches, deodorant sprays, washes, pe...

It is widely recognized that fracking is a topic of debate in the news, which is largely “compartmentalized” into stories on fracking as economically beneficial or risky to environment and health. Building on previous scholarship, we take a constructivist position and focus on fracking as potentially technical and social, or sociotechnical. Our qualitative textual analysis of news printed in two high-circulation newspapers in Canada (2013-2015) reveals that normative positions on fracking are furthered alongside normative descriptions of Indigenous Peoples and regional cultures. We argue that science communication practitioners perform specific normative work via their communicative acts.

Research conducted on humans has a long history of ethical protections, with the Nuremberg trials in 1945 and 1946 triggering stronger protection across most jurisdictions. While there have been many reorientations and corrections in the emphasis of codes protecting human research participants, all have implicitly assumed a conception of human decision-making and the person that are psychologically not feasible. In this paper, we examine two problematic assumptions dominant in many research ethics guidelines: (1) implicit reliance on a model of classical rationality in conceptualizing the process whereby individuals make a decision of whether to give consent to participate in a study and (2) the assumption of autonomous subjects in the bioethical principle of autonomy and in operationalizing informed consent processes. For both of these problems, we outline theoretical psychological work that provides more compelling accounts of (1) human decision-making and rationality as bounded and ecological and (2) of personhood and agency as relational and emergent. We conclude by considering approaches to bioethics that are compatible with such conceptions of personhood and therefore provide a more satisfactory framework for a relational ethics.

In this Commentary, we argue that in line with the dramatic increase in the collection, storage, and curation of human genomic data for biomedical research, genomic data repositories and consortia have adopted governance frameworks to address the dual objectives of enabling wide access while protecting against possible harms. However, there are ongoing debates in the scientific community about the merits and limitations of different governance frameworks in achieving these twin aims; and indeed, best practices and points for consideration are notably absent when it comes to devising a governance framework for genomic databases. Based on our collective experience of devising and assessing governance frameworks, our Commentary identifies five key functions of “good governance” (or what makes “better governance”) and three areas where trade-offs should be considered when specifying policies within those functions. We apply these functions as a benchmark to describe, as an example, the governance frameworks of six large-scale international genomic projects. ispartof: NATURE GENETICS vol:53 issue:1 pages:2-8 ispartof: location:United States status: published

The prevalence of dominant health discourses has been observed in many Western countries. These discourses tend to associate fatness with ill health, perpetuating stigma and negative attrib...

Rationale Asthma is a common respiratory condition with high prevalence rates globally. While there are effective treatments, asthma remains an important health concern as people continue to die from severe attacks. Improving the experiences of, and health outcomes for, people with asthma depends heavily on their interactions with healthcare professionals. Understanding negative clinical encounters will benefit people with asthma and healthcare providers. Objective To examine epistemic tensions in negative clinical encounters from a patient perspective, with an aim to better understand how patients respond to these tensions. Much of the scholarship on patient interactions with healthcare providers examines interpersonal or structural factors. Thus, focusing our analysis on tensions between lay and expert knowledge in negative clinical encounters provides a novel contribution to this body of scholarship. Method As part of a larger qualitative study (n = 70) examining the lived experiences of people who have asthma or a child with asthma, semi-structured interviews with 17 participants who described having negative clinical encounters were analyzed for themes. Results Participants responded to epistemic tensions in two main ways: (1) by incorporating expert knowledge; and (2) by resisting/challenging expert knowledge. In both cases, participants also described feeling frustrated and uncertain about their or their child's clinical care. We analyze these responses by drawing on Lindstrom and Karlsson's (2016) conceptualization of epistemic tensions as arising from 3 characteristics of epistemic asymmetry: access, rights, and responsibility. Conclusion Based on this study, (1) a patient's confidence in claiming epistemic access and asserting epistemic rights when epistemic tensions arise are related to the context and their own history of living with asthma; and (2), epistemic tensions can make visible the power relations in the patient-clinician relationship, which can lead to the exertion of biomedical authority, or the taking up of patient's lay knowledge.

A “standard” historiographical overview of the development of health psychology in the United States, alongside behavioral medicine, first summarizes previous disciplinary and professional histories. A “historicist” approach follows, focussing on a collective biographical summary of accumulated contributions of one cohort (1967–1971) at State University of New York at Stony Brook. Foundational developments of the two areas are highlighted, contextualized within their socio-political context, as are innovative cross-boundary collaboration on “precursor” studies from the 1960s and 1970s, before the official disciplines emerged. Research pathways are traced from social psychology to health psychology and from clinical psychology to behavioral medicine.

Healthcare institutions face widespread challenges of delivering high-quality and cost-effective care, while keeping up with rapid advances in biomedical knowledge and technologies. Moreover, there is increased emphasis on developing personalized or precision medicine targeted to individuals or groups of patients who share a certain biomarker signature. Learning healthcare systems (LHS) have been proposed for integration of research and clinical practice to fill major knowledge gaps, improve care, reduce healthcare costs, and provide precision care. To date, much discussion in this context has focused on the potential of human genomic data, and not yet on human microbiome data. Rapid advances in human microbiome research suggest that profiling of, and interventions on, the human microbiome can provide substantial opportunity for improved diagnosis, therapeutics, risk management, and risk stratification. In this study, we discuss a potential role for microbiome science in LHSs. We first review the key elements of LHSs, and discuss possibilities of Big Data and patient engagement. We then consider potentials and challenges of integrating human microbiome research into clinical practice as part of an LHS. With rapid growth in human microbiome research, patient-specific microbial data will begin to contribute in important ways to precision medicine. Hence, we discuss how patient-specific microbial data can help guide therapeutic decisions and identify novel effective approaches for precision care of inflammatory bowel disease. To the best of our knowledge, this expert analysis makes an original contribution with new insights poised at the emerging intersection of LHSs, microbiome science, and postgenomics medicine.

Participation in research is associated with benefits and burdens for individual research participants. Children living with a chronic illness are considered particularly vulnerable as they are already burdened with symptoms of their illness. In particular contexts, such as learning health care systems (LHS), where research and clinical care are integrated, children with chronic illnesses may be asked to participate in research related to their illness. A growing body of literature has focused on children's perspectives as research subjects; however, a relatively understudied aspect concerns children's experiences of research in clinics where they are also patients.We interviewed 25 Canadian children and adolescents living with inflammatory bowel disease (IBD) about their experiences of research participation.Our participants described aspects of the research process and particular experiences as benefits and others as burdens. Benefits included helping others, receiving incentives, receiving the results of previous studies, and participating in fun activities. Burdens included the time required for particular types of research, physical and psychological discomfort, and feelings of obligation.Our study describes the experiences of children participating in research at a site that integrates research and clinical care. Our participants described experiences that often go unreported (such as feelings of obligation); we mention these as important considerations to be mindful of when interacting with children as (potential) research participants in an LHS and when thinking about research ethics protocols or the assent/consent process.

Human microbiome science examines the microbiota that live in and on the human body and their role in human health. This paper examines clinicians’ views and expectations of microbiome science in a...

Beskow and Weinfurt (2019) demonstrate that experts who achieve consensus on the need for a basic level of understanding for informed consent to be valid have difficulty justifying excluding people...

Generally, public opinion is measured via polls or survey instruments, with a majority of responses in a particular direction taken to indicate the presence of a given ‘public opinion’. However, discursive psychological and related scholarship has shown that the ontological status of both individual opinion and public opinion is highly suspect. In the first part of this article I draw on this body of work to demonstrate that there is currently no meaningful theoretical foundation for the construct of public opinion as it is typically measured in surveys, polls, or focus groups. I then argue that there is a particular sense in which the construct of public opinion does make sense. In deliberative democratic forums participants engage in dialogue with the aim of coming to collective positions on particular issues. Here I draw on examples of deliberative democratic forums conducted on the social and ethical implications of science and technology. Conversation between participants in deliberative democratic forums is ideally characterized by individuals becoming informed about the issues being discussed, respectful interactions between participants, individuals being open to changing their positions, and a convergence towards collective positions in the interest of formulating civic solutions. The end-product of deliberation on a given issue might thus be termed a deliberative public opinion. ‘Deliberative public opinion’ is neither a cognitive nor an aggregate construct, but rather a socio-historical product. Criteria for its legitimacy rely on the inclusiveness of diversity of perspectives and the degree to which collective positions are defensible to a larger society.

We explore Canadian women’s use of vaginal hygiene products including feminine washes, douches, sprays, deodorants, wipes, and powders. Vaginal hygiene products in North America are part of a two billion dollar industry, which focuses on cleanliness and freshness in their advertising toward women. In interviewing women who were currently using or had previously used vaginal hygiene products, we found that vaginal cleanliness and freshness were also frequently brought up as reasons for using these products. Using an inductive thematic analysis informed by Braun and Clarke (2013) we explore how attaining a clean-and-fresh vagina has become a subjective physical need for the participants in our study. In a society where female genitalia are constructed as unclean, we argue the marketing of vaginal hygiene products contributes to the problematization of women’s genitalia by suggesting women need to use these products to attain an ideal (i.e., clean and fresh) vagina. The reliance on vaginal hygiene products reported by participants in attaining sensations of vaginal cleanliness and freshness raises concerns in the context of medical literature suggesting adverse health risks that may result from using some of these products. Potential risks include bacterial vaginosis, pelvic inflammatory disease, and a higher susceptibility to sexually transmitted infections, among others. We believe that companies that advertise these products as beneficial for vaginal health and hygiene can be perceived as not just misinforming women but also profiting from products that are harmful.

Research participants often report wanting to help as a reason for participation, but who they want to help and why is rarely explored. We examined meanings associated with helping among 21 adults with cystic fibrosis (CF)—a group with high participation in research. Meanings included helping to advance research, helping others with CF, helping as their job, helping themselves, helping because they are special, and helping to give back. While some meanings were primarily oriented toward helping others, some also involved hoping for benefits for oneself, and some included feelings of responsibility. Despite indicating that they understood that research is not designed to help them directly, participants nevertheless hoped that it might. We discuss implications for research ethics oversight.

Women’s genitalia are constructed as a bodily site requiring ongoing surveillance, maintenance and modification to conform to social norms. Women engage in a range of genital health, hygiene and beauty practices, including the use of commercial and homemade vaginal douches, washes, wipes, sprays and pubic hair removal, to modify their bodies. Using a social constructionist framework, we draw on interviews with 49 Canadian women to examine the construction of idealized (Western) genitalia as hairless, odourless and free of discharge, and “natural” female genitalia as problematic through the mobilization of normative femininity and (hetero)sexuality discourses. Theorizing women’s genital health, hygiene and beauty practices as a form of body work, we examine how women’s genital body work is constructed as a necessary and thus normative practice of femininity undertaken in the pursuit of idealized genitalia. A minority perspective that drew on alternative discourses to construct female genitalia as acceptable irrespective of genital body work is examined. Throughout our analysis, we examine the ways in which women negotiate issues of agency and choice in relation to their genital body work. Implications for women’s health in the context of the vaginal microbiome are explored.

In this issue, Theory & Psychology is trialing a new format for engaging readers and contributors to the journal. In particular, we designated a target article for which we solicited open peer commentaries. Open peer commentaries should reflect engagement from diverse perspectives with the key themes and arguments of the target paper. Future calls for open peer commentaries will focus on different topics. Authors interested in writing commentaries should ensure that they are familiar with the research literature on the topic before submitting proposals.

IntroductionResearch using linked data sets can lead to new insights and discoveries that positively impact society. However, the use of linked data raises concerns relating to illegitimate use, privacy, and security (e.g., identity theft, marginalization of some groups). It is increasingly recognized that the public needs to be consulted to develop data access systems that consider both the potential benefits and risks of research. Indeed, there are examples of data sharing projects being derailed because of backlash in the absence of adequate consultation. (e.g., care.data in the UK). Objectives and methodsThis talk will describe the results of public deliberations held in Vancouver, British Columbia in April 2018 and the fall of 2019. The purpose of these events was to develop informed and civic-minded public advice regarding the use and the sharing of linked data for research in the context of rapidly evolving data availability and researcher aspirations. ResultsIn the first deliberation, participants developed and voted on 19 policy-relevant statements. Taken together, these statements provide a broad view of public support and concerns regarding the use of linked data sets for research and offer guidance on measures that can be taken to improve the trustworthiness of policies and process around data sharing and use. The second deliberation will focus on the interplay between public and private sources of data, and role of individual and collective or community consent I the future. ConclusionGenerally, participants were supportive of research using linked data because of the value such uses can provide to society. Participants expressed a desire to see the data access request process made more efficient to facilitate more research, as long as there are adequate protections in place around security and privacy of the data. These protections include both physical and process-related safeguards as well as a high degree of transparency.

Purpose: A growing body of scientific evidence supports the role of food and diet in the pathogenesis and management of inflammatory bowel diseases (IBD). However, little is known about the role of food and diet from the perspectives of pediatric patients and their parents. This study aimed to explore how children and adolescents with IBD and their parents coped with the illness through food and diet in their daily lives. Methods: We conducted semi-structured interviews with 28 children and adolescents with IBD, 26 parents and one grandparent. Results: Two major themes, dietary strategies and family food practices, were identified through thematic analysis. There were three types of dietary strategies: food avoidance and moderation; following a specific diet; and healthy eating. For family food practices, two subthemes were identified: impact on grocery shopping, meal planning, and cooking; and maintaining routine and normality. Conclusions: Our findings have important implications for the clinical care of pediatric IBD. Notably, IBD not only influenced the food practices of the pediatric patients, but also their parents and other family members. Healthcare professionals should consider the family unit when giving nutritional advice or developing nutritional guidelines. Personalized nutritional counselling and ongoing nutritional assessment are also warranted.

Science and technology are central to almost all domains of human activity. The study of science and technology is evident in subdisciplines such as philosophy of science, philosophy of technology, sociology of knowledge, and history of science and technology, and in interdisciplines such as Science and Technology Studies. To date, psychology has been marginal in this space. We argue that this is in part owing to psychology viewing itself as a science (and not an object of study). It is also a result of previous attempts toward developing a psychology of science and technology explicitly adopting a narrow epistemological stance that is at odds with the broader epistemic foundation of Science and Technology Studies and related fields.

Human microbiome research is a rapidly developing area of science. There is arguably much hype in the promises of the science for improved health of individuals and society. Nevertheless, important applications of this field of research for treatment and prevention of health problems are already emerging. One area in which this is the case is in developing new understandings of the nature of asthma. In particular, emerging biomedical research demonstrates important links between the human gut microbiome and the risk of developing asthma. To date, research on the human microbiome has been almost exclusively biomedical. There has been relatively little attention to the consequences of human microbiome science on psychological and social levels. In this chapter, we use recent developments in biomedical science connecting the microbiome and asthma as a vehicle to examine potential implications of emerging science for individuals’ experience of illness. Based on an analysis of 70 interviews with individuals with asthma and parents of children with asthma, we show that in spite of likely positive outcomes of microbiome science on treatment and prevention of asthma, there may be inadvertent negative consequences from associating a bacterial etiology with asthma. In particular, participants in our study explain the problems they may encounter if public understandings of asthma were to become linked with bacteria.

In their Policy Forum "Toward unrestricted use of public genomic data" (25 January, p. 350), R. I. Amann et al. argue that once data has been cleared for release to the public domain by institutions, it should be open for use without further restrictions. However, they neglect the key point that researchers and their institutions are entrusted by research participants, funders, and others with weighing the pros and cons of public data release. By suggesting that informed consent can provide a straightforward path to data release, they overlook evidence that once people understand their options, only a little more than half opt for open data sharing, and some refuse data sharing altogether.