15 results on '"Knoepke C"'
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2. Should Psychosocial Standards for DT LVAD be Different Than for Transplant? Interim Results from a Delphi Panel.
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Knoepke, C., Latimer, A., Malaer, K., Yoder, G.E., Siry-Bove, B., Mayton, C., Portz, J.E., and Khazanie, P.
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HEART assist devices , *TRANSPLANTATION of organs, tissues, etc. , *PATIENT selection , *SOCIAL workers , *SUBSTANCE abuse - Abstract
There exists a paucity of research addressing the psychosocial evaluation (PE) for DT LVAD implant, including which domains affect postoperative outcomes or criteria defining acceptable psychosocial risk. This knowledge gap creates a dynamic in which PE standards, as applied to multidisciplinary team processes, vary between LVAD centers and theoretically disadvantage patients from historically undertreated groups. To support DT LVAD patient selection and reduce potential bias in the PE, we are using a Delphi panel to develop expert consensus for acceptable PE criteria necessary for DT LVAD therapy. Delphi panel of US-based LVAD physicians, social workers, coordinators, researchers recruited specifically for previous work on PE for LVAD; completing serial rounds of survey items designed to elicit agreement regarding criteria applied to the PE. Results are reflective of the second round of survey items - an accepted presentation will include up-to-date data. At submission, 12 panel members had responded. Of respondents, 54% agreed that PE requirements should be less stringent than those for transplant (TABLE 1). Only 8% agreed that caregiving requirements should be less stringent, along with 8% for home/living situation standards and 75% for substance use criteria. While expert opinion is split about whether criteria applied to the PE be more permissive for DT LVAD therapy than for transplant, the only domain a majority of our panel agreed with treating differently is substance use. In addition to worry about strain on staff, concern about implanting patients with high PE risk are driven by fear of poor outcomes, despite limited evidence of this relationship and possible structural bias for patients from historically undertreated groups. Perceived risk may be mitigated by the availability of professional care (e.g. LTAC, SNF) post-discharge. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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3. Proposed mechanisms of cognitive dysfunction in obstructive sleep apnea.
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Knoepke C and Aloia M
- Abstract
Patients with obstructive sleep apnea (OSA) are likely to develop cognitive impairments, including problems with concentration, memory, and executive function. The etiology of these deficits is not fully resolved, although sleep fragmentation, excessive sleepiness, and hypoxemia appear to interact to produce neurologic consequences in patients with OSA. Disturbingly, a proportion of the cognitive dysfunction caused by hypoxic brain damage may be irreversible. Many patients with OSA will present in the primary care setting and may not know that they have a sleep disorder. Vigilance for the cognitive symptoms of OSA could assist in recognition by primary care physicians and aid in the prevention of lasting neurocognitive sequelae in this patient population. [ABSTRACT FROM AUTHOR]
- Published
- 2009
4. A multi-state evaluation of extreme risk protection orders: a research protocol.
- Author
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Zeoli AM, Molocznik A, Paruk J, Omaki E, Frattaroli S, Betz ME, Christy A, Kapoor R, Knoepke C, Ma W, Norko MA, Pear VA, Rowhani-Rahbar A, Schleimer JP, Swanson JW, and Wintemute GJ
- Abstract
Background: Extreme Risk Protection Orders (ERPOs) are civil court orders that prohibit firearm purchase and possession when someone is behaving dangerously and is at risk of harming themselves and/or others. As of June 2024, ERPOs are available in 21 states and the District of Columbia to prevent firearm violence. This paper describes the design and protocol of a six-state study of ERPO use., Methods: The six states included are California, Colorado, Connecticut, Florida, Maryland, and Washington. During the 3-year project period (2020-2023), ERPO case files were obtained through public records requests or through agreements with agencies with access to these data in each state. A team of over four dozen research assistants from seven institutions coded 6628 ERPO cases, abstracting 80 variables per case under domains related to respondent characteristics, events and behaviors leading to ERPO petitions, petitioner types, and court outcomes. Research assistants received didactic training through an online learning management system that included virtual training modules, quizzes, practice coding exercises, and two virtual synchronous sessions. A protocol for gaining strong interrater reliability was used. Research assistants also learned strategies for reducing the risk of experiencing secondary trauma through the coding process, identifying its occurrence, and obtaining help., Discussion: Addressing firearm violence in the U.S. is a priority. Understanding ERPO use in these six states can inform implementation planning and ERPO uptake, including promising opportunities to enhance safety and prevent firearm-related injuries and deaths. By publishing this protocol, we offer detailed insight into the methods underlying the papers published from these data, and the process of managing data abstraction from ERPO case files across the multi-state and multi-institution teams involved. Such information may also inform future analyses of this data, and future replication efforts., Registration: This protocol is registered on Open Science Framework ( https://osf.io/kv4fc/ )., (© 2024. The Author(s).)
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- 2024
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5. Suicide Prevention Effects of Extreme Risk Protection Order Laws in Four States.
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Swanson JW, Zeoli AM, Frattaroli S, Betz M, Easter M, Kapoor R, Knoepke C, Norko M, Pear VA, Rowhani-Rahbar A, Schleimer JP, and Wintemute GJ
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- Humans, Male, Female, United States, Adult, Suicide, Attempted legislation & jurisprudence, Suicide, Attempted statistics & numerical data, Suicide statistics & numerical data, Suicide legislation & jurisprudence, Middle Aged, California, Connecticut, Firearms legislation & jurisprudence, Suicide Prevention
- Abstract
More than half of suicide deaths in the United States result from self-inflicted firearm injuries. Extreme risk protection order (ERPO) laws in 21 states and the District of Columbia temporarily limit access to firearms for individuals found in a civil court process to pose an imminent risk of harm to themselves or others. Research with large multistate study populations has been lacking to determine effectiveness of these laws. This study assembled records pertaining to 4,583 ERPO respondents in California, Connecticut, Maryland, and Washington. Matched records identified suicide decedents and self-injury method. Researchers applied case fatality rates for each suicide method to estimate nonfatal suicide attempts corresponding to observed deaths. Comparison of counterfactual to observed data patterns yielded estimates of the number of lives saved and number of ERPOs needed to avert one suicide. Estimates varied depending on the assumed probability that a gun owner who attempts suicide will use a gun. Two evidence-based approaches yielded estimates of 17 and 23 ERPOs needed to prevent one suicide. For the subset of 2,850 ERPO respondents with documented suicide concern, comparable estimates were 13 and 18, respectively. This study's findings add to growing evidence that ERPOs can be an effective and important suicide prevention tool., (© 2024 American Academy of Psychiatry and the Law.)
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- 2024
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6. Long-term physical and mental health outcomes of pediatric firearm-injured victims: A prospective cohort study.
- Author
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Haasz M, Dulchavsky A, Stevens J, Nolan M, Leonard J, Phillips R, Knoepke C, Schroeppel T, Zuk J, Abbey W, and Ambroggio L
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- Adolescent, Humans, Child, Retrospective Studies, Prospective Studies, Outcome Assessment, Health Care, Firearms, Wounds, Gunshot epidemiology
- Abstract
Background: Firearms are a leading cause of injury among US youth. There is little research describing outcomes after pediatric firearm injuries, particularly past 1 year., Objective: This study aimed to assess long-term physical and mental health outcomes among nonfatal firearm versus motor vehicle collision (MVC)-injured victims and versus a standard population., Methods: We retrospectively identified firearm and MVC-injured pediatric patients seen at one of our four trauma centers (January 2008 to October 2020) and prospectively assessed outcomes using validated patient-reported outcome measures. Eligible patients were English speaking, injured ≥5 months before study start, younger than 18 years at time of injury, and 8 years or older at study start. All firearm patients were included; MVC patients were matched 1:1 with firearm patients for Injury Severity Score (dichotomized <15 or ≥15), age range (±1 year), and year of injury. We conducted structured interviews of patients and parents using validated tools (Patient-Reported Outcomes Measurement Information System tools, Children's Impact of Event Scale for younger than 18 years and parent proxies). Patient-Reported Outcomes Measurement Information System scores are reported on a T score metric (mean [SD], 50 [10]); higher scores indicate more of the measured domain. We used paired t tests, Wilcoxon signed-rank tests, and McNemar's test to compare demographics, clinical characteristics, and outcomes., Results: There were 24 participants in each of the MVC and firearm-injured groups. Compared with MVC-injured patients, firearm-injured patients younger than 18 years had similar scores, and firearm-injured patients 18 years or older had higher anxiety scores (59.4 [8.3] vs. 51.2 [9.4]). Compared with a standard population, patients younger than 18 years had worse global health scores (mean [SD], 43.4 [9.7]), and participants 18 years or older reported increased fatigue (mean [SD], 61.1 [3.3]) and anxiety (mean [SD], 59.4 [8.3])., Conclusion: Long-term effects of firearm-injured patients were poorer than matched MVC and the standard population in few domains. Further study in a larger, prospectively recruited cohort is warranted to better characterize physical and mental health outcomes., (Copyright © 2023 Wolters Kluwer Health, Inc. All rights reserved.)
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- 2023
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7. Extreme risk protection orders in response to threats of multiple victim/mass shooting in six U.S. states: A descriptive study.
- Author
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Zeoli AM, Frattaroli S, Barnard L, Bowen A, Christy A, Easter M, Kapoor R, Knoepke C, Ma W, Molocznik A, Norko M, Omaki E, Paruk JK, Pear VA, Rowhani-Rahbar A, Schleimer JP, Swanson JW, and Wintemute GJ
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- Child, Humans, United States, Violence, Washington, Colorado, Connecticut, Homicide prevention & control, Firearms, Wounds, Gunshot prevention & control
- Abstract
Extreme risk protection orders (ERPOs), also known as red flag laws, are a potential tool to prevent firearm violence, including mass shootings, but little is currently known about the extent of their use in cases of mass shooting threats or about the threats themselves. We collected and abstracted information from ERPO cases from six states (California, Colorado, Connecticut, Florida, Maryland, and Washington). Ten percent (N = 662) of all ERPO cases (N = 6787) were in response to a threat of killing at least 3 people. Using these cases, we created a typology of multiple victim/mass shooting threats, the most common of which was the maximum casualty threat. The most common target for a multiple victim/mass shooting threat was a K-12 school, followed by businesses, then intimate partners and their children and families. Judges granted 93% of petitions that involved these threats at the temporary ERPO stage and, of those cases in which a final hearing was held, judges granted 84% of final ERPOs. While we cannot know how many of the 662 ERPO cases precipitated by a threat would have resulted in a multiple victim/mass shooting event had ERPO laws not been used to prohibit the purchase and possession of firearms, the study provides evidence at least that ERPOs are being used in six states in a substantial number of these kinds of cases that could have ended in tragedy., Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (Copyright © 2022 Elsevier Inc. All rights reserved.)
- Published
- 2022
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8. Extreme risk protection orders, race/ethnicity, and equity: Evidence from California.
- Author
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Pear VA, Schleimer JP, Aubel AJ, Buggs S, Knoepke CE, Pallin R, Shev AB, Tomsich E, Wintemute GJ, and Kravitz-Wirtz N
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- Adult, Humans, United States, California, Surveys and Questionnaires, Hispanic or Latino, Ethnicity, Firearms
- Abstract
Extreme risk protection orders (ERPOs) provide a civil mechanism to temporarily remove firearm access from individuals at high risk of harming themselves or others. Evidence and theory suggest that ERPOs can prevent firearm-related harm, but the policy's impact on racial/ethnic equity is largely unknown. To examine potential inequities by race/ethnicity in public perceptions and use of California's ERPO law, we drew on two complementary data sources: 1) a 2020 state-representative survey of California adults, and 2) ERPO court documents for the first 3 years of policy implementation (2016-2018). Majorities (54-89%) of all racial/ethnic groups reported that ERPOs are at least sometimes appropriate, and 64-94% were willing to ask a judge for an ERPO for a family member. However, Black and Hispanic/Latinx survey participants less often perceived ERPOs as appropriate and were less willing to serve as petitioners, with Black participants citing lack of knowledge about ERPOs and not trusting the system to be fair as their top reasons for unwillingness. Similarly, review of ERPO court documents revealed that no family or household members served as petitioners for Black and Hispanic/Latinx ERPO respondents. Additionally, Black respondents were the least likely to have documented access to a firearm and legal representation in court. Racial/ethnic equity in ERPO use may be improved by reducing barriers to petitioning, incorporating non-law enforcement intervention professionals like behavioral health specialists into the ERPO process, providing legal assistance to respondents and petitioners, and investing in the social safety net., Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (Copyright © 2022 The Authors. Published by Elsevier Inc. All rights reserved.)
- Published
- 2022
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9. A Qualitative study on diverse perspectives and identities of firearm owners.
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Thomas AC, Siry-Bove BJ, Barnard LM, Rooney L, McCarthy M, Mustafa A, Rowhani-Rahbar A, Rivara FP, Betz ME, and Knoepke C
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- Black or African American, Female, Hispanic or Latino, Humans, Male, Ownership, Qualitative Research, Firearms
- Abstract
Objective: Research surrounding firearm ownership is often contextualised within the perspectives of older white men. We expand this description using the perceptions of a diverse group of firearm-owning stakeholders., Methods: We conducted semistructured interviews from October 2020 to May 2021 with Colorado/Washington State stakeholders representing (1) firearm ranges/retailers; (2) law enforcement agencies or (3) relevant state/national firearm organisations. Data were analysed using standard qualitative techniques and included 25 participants, representing varied sociocultural groups including racial and ethnic minorities, political minorities and sexual minorities., Results: Participants for this analysis were of different self-identified sociocultural groups including racial and ethnic minorities (African American, Hispanic and Asian), political minorities (liberal) and sexual minorities, defined as Lesbian, Gay, Bisexual, and Transgender (LGBT). Perspectives on firearm ownership included an idea of gun culture as a component of (1) personal identity, (2) an expression of full citizenship and (3) necessary for self-protection. A strong subtheme was the intersection of minority group and firearm owner identities, creating a need for divergent social communities because of ideas on traditional gun culture. These communities are a safe place for individuals belonging to minority groups to escape negative external and internal group associations with firearms., Conclusion: Perspectives on firearms and firearm ownership in the secondary analysis were heterogeneous and related to personal experiences, external and internal group pressures that influence individual behaviour. Understanding the breadth of perspectives on firearm ownership is imperative to engaging individuals for risk reduction. This study adds to the literature by expanding an understanding of the motivation for firearm ownership among diverse communities., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2022
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10. Enhancing Success of Medicare's Shared Decision Making Mandates Using Implementation Science: Examples Applying the Pragmatic Robust Implementation and Sustainability Model (PRISM).
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Matlock DD, Fukunaga MI, Tan A, Knoepke C, McNeal DM, Mazor KM, and Glasgow RE
- Abstract
The Centers for Medicare and Medicaid Services (CMS) has mandated shared decision making (SDM) using patient decision aids for three conditions (lung cancer screening, atrial fibrillation, and implantable defibrillators). These forward-thinking approaches are in response to a wealth of efficacy data demonstrating that decision aids can improve patient decision making. However, there has been little focus on how to implement these approaches in real-world practice. This article demonstrates how using an implementation science framework may help programs understand multilevel challenges and opportunities to improve adherence to the CMS mandates. Using the PRISM (Pragmatic Robust Implementation and Sustainability Model) framework, we discuss general challenges to implementation of SDM, issues specific to each mandate, and how to plan for, enhance, and assess SDM implementation outcomes. Notably, a theme of this discussion is that successful implementation is context-specific and to truly have successful and sustainable changes in practice, context variability, and adaptation to context must be considered and addressed., Competing Interests: The author(s) declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Dr. Knoepke is supported by a career development award from the American Heart Association. Dr. Ito FuKunaga served as a volunteer board member of the American Lung Association in Maine. The other authors have no conflicts of interest to disclose., (© The Author(s) 2020.)
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- 2020
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11. Content Analysis of Negative Online Reviews of Hospice Agencies in the United States.
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Brereton EJ, Matlock DD, Fitzgerald M, Venechuk G, Knoepke C, Allen LA, and Tate CE
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- Humans, Organizations, Nonprofit, Patient Satisfaction, Private Sector, Public Opinion, Hospices classification, Hospices standards, Hospices statistics & numerical data, Internet, Quality of Health Care classification, Quality of Health Care statistics & numerical data
- Abstract
Importance: As online reviews of health care become increasingly integral to patient decision-making, understanding their content can help health care practices identify and address patient concerns., Objective: To identify the most frequently cited complaints in negative (ie, 1-star) online reviews of hospice agencies across the United States., Design, Setting, and Participants: This qualitative study conducted a thematic analysis of online reviews of US hospice agencies posted between August 2011 and July 2019. The sample was selected from a Hospice Analytics database. For each state, 1 for-profit (n = 50) and 1 nonprofit (n = 50) hospice agency were randomly selected from the category of extra-large hospice agencies (ie, serving >200 patients/d) in the database. Data analysis was conducted from January 2019 to April 2019., Main Outcomes and Measures: Reviews were analyzed to identify the most prevalent concerns expressed by reviewers., Results: Of 100 hospice agencies in the study sample, 67 (67.0%) had 1-star reviews; 33 (49.3%) were for-profit facilities and 34 (50.7%) were nonprofit facilities. Of 137 unique reviews, 68 (49.6%) were for for-profit facilities and 69 (50.4%) were for nonprofit facilities. A total of 5 themes emerged during the coding and analytic process, as follows: discordant expectations, suboptimal communication, quality of care, misperceptions about the role of hospice, and the meaning of a good death. The first 3 themes were categorized as actionable criticisms, which are variables hospice organizations could change. The remaining 2 themes were categorized as unactionable criticisms, which are factors that would require larger systematic changes to address. For both for-profit and nonprofit hospice agencies, quality of care was the most frequently commented-on theme (117 of 212 comments [55.2%]). For-profit hospice agencies received more communication-related comments overall (34 of 130 [26.2%] vs 9 of 82 [11.0%]), while nonprofit hospice agencies received more comments about the role of hospice (23 of 33 [69.7%] vs 19 of 31 [61.3%]) and the quality of death (16 [48.5%] vs 12 [38.7%])., Conclusions and Relevance: Regarding actionable criticisms, hospice agencies could examine their current practices, given that reviewers described these issues as negatively affecting the already difficult experience of losing a loved one. The findings indicated that patients and their families, friends, and caregivers require in-depth instruction and guidance on what they can expect from hospice staff, hospice services, and the dying process. Several criticisms identified in this study may be mitigated through operationalized, explicit conversations about these topics during hospice enrollment.
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- 2020
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12. Response by Perman et al to Letter Regarding Article, "Public Perceptions on Why Women Receive Less Bystander Cardiopulmonary Resuscitation Than Men in Out-of-Hospital Cardiac Arrest".
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Perman SM, Shelton SK, Knoepke C, Rappaport K, Matlock DD, Adelgais K, Havranek EP, and Daugherty SL
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- Electric Countershock, Female, Humans, Male, Cardiopulmonary Resuscitation, Out-of-Hospital Cardiac Arrest
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- 2019
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13. Public Perceptions on Why Women Receive Less Bystander Cardiopulmonary Resuscitation Than Men in Out-of-Hospital Cardiac Arrest.
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Perman SM, Shelton SK, Knoepke C, Rappaport K, Matlock DD, Adelgais K, Havranek EP, and Daugherty SL
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- Adult, Female, Health Care Surveys, Health Knowledge, Attitudes, Practice, Health Status Disparities, Humans, Male, Middle Aged, Out-of-Hospital Cardiac Arrest diagnosis, Out-of-Hospital Cardiac Arrest physiopathology, Prospective Studies, Risk Assessment, Risk Factors, Sex Factors, Sex Offenses, Sexuality, Cardiopulmonary Resuscitation adverse effects, Healthcare Disparities, Out-of-Hospital Cardiac Arrest therapy, Public Opinion
- Abstract
Background: Women who suffer an out-of-hospital cardiac arrest receive bystander cardiopulmonary resuscitation (CPR) less often than men. Understanding public perceptions of why this occurs is a necessary first step toward equitable application of this potentially life-saving intervention., Methods: We conducted a national survey of members of the public using Mechanical Turk, Amazon's crowdsourcing platform, to determine reasons why women might receive bystander CPR less often than men. Eligible participants were adults (≥18 years) located in the United States. Responses were excluded if the participant was not able to define CPR correctly. Participants were asked to answer the following free-text question: "Do you have any ideas on why women may be less likely to receive CPR than men when they collapse in public?" Descriptive statistics were used to define the cohort. The free-text response was coded using open coding, and major themes were identified via classical content analysis., Results: In total, 548 subjects were surveyed. Mean age was 38.8 years, and 49.8% were female. Participants were geographically distributed as follows: 18.5% West, 9.2% Southwest, 22.0% Midwest, 27.5% Southeast, and 22.9% Northeast. After analysis, 3 major themes were detected for why the public perceives that women receive less bystander CPR. They include the following: (1) sexualization of women's bodies; (2) women are weak and frail and therefore prone to injury; and (3) misperceptions about women in acute medical distress. Overall, 41.9% (227) were trained in CPR while 4.4% reported having provided CPR in a medical emergency., Conclusions: Members of the general public perceive fears about inappropriate touching, accusations of sexual assault, and fear of causing injury as inhibiting bystander CPR for women. Educational and policy efforts to address these perceptions may reduce the sex differences in the application of bystander CPR.
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- 2019
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14. Using Shared Decision Making to Empower Sexually Exploited Youth.
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Sahl S and Knoepke C
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- Child, Human Trafficking prevention & control, Humans, Physician-Patient Relations, United States, Child Abuse, Sexual psychology, Crime Victims psychology, Decision Making, Human Trafficking psychology
- Abstract
Commercial sexual exploitation of children (CSEC) is a pervasive public health crisis that affects children across the United States. After receiving public attention in recent years, several approaches have been developed to aid in identifying and intervening with trafficked youth to prevent further exploitation. Despite these developments, intervention efforts are plagued by client dropout, treatment nonadherence, and failures in placement, partially due to the failure of service systems to recognize the child's voice and preferences in decision-making conversations. We propose a new approach to addressing CSEC by applying shared decision making, a model developed in other areas of medicine, to working with high-risk and trafficked juveniles to increase youth voice and participation in care and to prevent revictimization., (Copyright © 2018 American Academy of Child and Adolescent Psychiatry. Published by Elsevier Inc. All rights reserved.)
- Published
- 2018
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15. Implantable Cardioverter-Defibrillator Use in Older Adults: Proceedings of a Hartford Change AGEnts Symposium.
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Kramer DB, Matlock DD, Buxton AE, Goldstein NE, Goodwin C, Green AR, Kirkpatrick JN, Knoepke C, Lampert R, Mueller PS, Reynolds MR, Spertus JA, Stevenson LW, and Mitchell SL
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- Aged, Humans, Retrospective Studies, United States, Congresses as Topic, Death, Sudden, Cardiac prevention & control, Defibrillators, Implantable statistics & numerical data, Heart Arrest therapy
- Published
- 2015
- Full Text
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