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2. A Patient Charter for Chronic Urticaria

Author

Maurer, Marcus, Albuquerque, Mónica, Boursiquot, Jean-Nicolas, Dery, Elaine, Giménez-Arnau, Ana, Godse, Kiran, Guitiérrez, Guillermo, Kanani, Amin, Lacuesta, Gina, McCarthy, Jessica, Nigen, Simon, and Winders, Tonya

Published
2024
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5. A challenging diagnosis: hereditary angioedema presenting during pregnancy

Author

Chair, Irene, Lacuesta, Gina, Nash, Christopher M., and Cook, Victoria

Subjects
Pregnant women -- Health aspects, Angioneurotic edema -- Diagnosis -- Care and treatment, Health
Abstract

A 23-year-old pregnant woman (gravida 2, abortion/miscarriage 1, para 0) with a history of anxiety (treated with citalopram) and cocaine use (stopped before pregnancy) and no family history of swelling [...]

Published
2022
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10. A Patient Charter for Chronic Urticaria

Author

Maurer, Marcus, primary, Albuquerque, Mónica, additional, Boursiquot, Jean-Nicolas, additional, Dery, Elaine, additional, Giménez-Arnau, Ana, additional, Godse, Kiran, additional, Guitiérrez, Guillermo, additional, Kanani, Amin, additional, Lacuesta, Gina, additional, McCarthy, Jessica, additional, Nigen, Simon, additional, and Winders, Tonya, additional

Published
2023
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12. 2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema

Author

Bowen, Tom, Cicardi, Marco, Farkas, Henriette, Bork, Konrad, Longhurst, Hilary J, Zuraw, Bruce, Aygoeren-Pürsün, Emel, Craig, Timothy, Binkley, Karen, Hebert, Jacques, Ritchie, Bruce, Bouillet, Laurence, Betschel, Stephen, Cogar, Della, Dean, John, Devaraj, Ramachand, Hamed, Azza, Kamra, Palinder, Keith, Paul K, Lacuesta, Gina, Leith, Eric, Lyons, Harriet, Mace, Sean, Mako, Barbara, Neurath, Doris, Poon, Man-Chiu, Rivard, Georges-Etienne, Schellenberg, Robert, Rowan, Dereth, Rowe, Anne, Stark, Donald, Sur, Smeeksha, Tsai, Ellie, Warrington, Richard, Waserman, Susan, Ameratunga, Rohan, Bernstein, Jonathan, Björkander, Janne, Brosz, Kristylea, Brosz, John, Bygum, Anette, Caballero, Teresa, Frank, Mike, Fust, George, Harmat, George, Kanani, Amin, Kreuz, Wolfhart, Levi, Marcel, Li, Henry, Martinez-Saguer, Inmaculada, Moldovan, Dumitru, Nagy, Istvan, Nielsen, Erik W, Nordenfelt, Patrik, Reshef, Avner, Rusicke, Eva, Smith-Foltz, Sarah, Späth, Peter, Varga, Lilian, and Xiang, Zhi

Abstract

Abstract Background We published the Canadian 2003 International Consensus Algorithm for the Diagnosis, Therapy, and Management of Hereditary Angioedema (HAE; C1 inhibitor [C1-INH] deficiency) and updated this as Hereditary angioedema: a current state-of-the-art review: Canadian Hungarian 2007 International Consensus Algorithm for the Diagnosis, Therapy, and Management of Hereditary Angioedema. Objective To update the International Consensus Algorithm for the Diagnosis, Therapy and Management of Hereditary Angioedema (circa 2010). Methods The Canadian Hereditary Angioedema Network (CHAEN)/Réseau Canadien d'angioédème héréditaire (RCAH) http://www.haecanada.com and cosponsors University of Calgary and the Canadian Society of Allergy and Clinical Immunology (with an unrestricted educational grant from CSL Behring) held our third Conference May 15th to 16th, 2010 in Toronto Canada to update our consensus approach. The Consensus document was reviewed at the meeting and then circulated for review. Results This manuscript is the 2010 International Consensus Algorithm for the Diagnosis, Therapy and Management of Hereditary Angioedema that resulted from that conference. Conclusions Consensus approach is only an interim guide to a complex disorder such as HAE and should be replaced as soon as possible with large phase III and IV clinical trials, meta analyses, and using data base registry validation of approaches including quality of life and cost benefit analyses, followed by large head-to-head clinical trials and then evidence-based guidelines and standards for HAE disease management.

Published
2010

14. Correction to: The International/Canadian Hereditary Angioedema Guideline

Author

Betschel, Stephen, Badiou, Jacquie, Binkley, Karen, Borici-Mazi, Rozita, Hébert, Jacques, Kanani, Amin, Keith, Paul, Lacuesta, Gina, Waserman, Susan, Yang, Bill, Aygören-Pürsün, Emel, Bernstein, Jonathan, Bork, Konrad, Caballero, Teresa, Cicardi, Marco, Craig, Timothy, Farkas, Henriette, Grumach, Anete, Katelaris, Connie, Longhurst, Hilary, Riedl, Marc, Zuraw, Bruce, Berger, Magdelena, Boursiquot, Jean-Nicolas, Boysen, Henrik, Castaldo, Anthony, Chapdelaine, Hugo, Connors, Lori, Fu, Lisa, Goodyear, Dawn, Haynes, Alison, Kamra, Palinder, Kim, Harold, Lang-Robertson, Kelly, Leith, Eric, McCusker, Christine, Moote, Bill, O’Keefe, Andrew, Othman, Ibraheem, Poon, Man-Chiu, Ritchie, Bruce, St-Pierre, Charles, Stark, Donald, and Tsai, Ellie

Published
2020
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15. A multicenter chart review of patient characteristics, treatment, and outcomes in hereditary angioedema: unmet need for more effective long-term prophylaxis

Author

Mendivil, Joan, primary, DerSarkissian, Maral, additional, Banerji, Aleena, additional, Diwakar, Lavanya, additional, Katelaris, Constance H., additional, Keith, Paul K., additional, Kim, Harold, additional, Lacuesta, Gina, additional, Magerl, Markus, additional, Slade, Charlotte, additional, Smith, William B., additional, Choudhry, Zia, additional, Simon, Angela, additional, Sarda, Sujata P., additional, and Busse, Paula J., additional

Published
2023
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16. The International/Canadian Hereditary Angioedema Guideline

Author

Betschel, Stephen, Badiou, Jacquie, Binkley, Karen, Borici-Mazi, Rozita, Hébert, Jacques, Kanani, Amin, Keith, Paul, Lacuesta, Gina, Waserman, Susan, Yang, Bill, Aygören-Pürsün, Emel, Bernstein, Jonathan, Bork, Konrad, Caballero, Teresa, Cicardi, Marco, Craig, Timothy, Farkas, Henriette, Grumach, Anete, Katelaris, Connie, Longhurst, Hilary, Riedl, Marc, Zuraw, Bruce, Berger, Magdelena, Boursiquot, Jean-Nicolas, Boysen, Henrik, Castaldo, Anthony, Chapdelaine, Hugo, Connors, Lori, Fu, Lisa, Goodyear, Dawn, Haynes, Alison, Kamra, Palinder, Kim, Harold, Lang-Robertson, Kelly, Leith, Eric, McCusker, Christine, Moote, Bill, O’Keefe, Andrew, Othman, Ibraheem, Poon, Man-Chiu, Ritchie, Bruce, St-Pierre, Charles, Stark, Donald, and Tsai, Ellie

Published
2019
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18. Additional file 1 of A multicenter chart review of patient characteristics, treatment, and outcomes in hereditary angioedema: unmet need for more effective long-term prophylaxis

Author

Mendivil, Joan, DerSarkissian, Maral, Banerji, Aleena, Diwakar, Lavanya, Katelaris, Constance H., Keith, Paul K., Kim, Harold, Lacuesta, Gina, Magerl, Markus, Slade, Charlotte, Smith, William B., Choudhry, Zia, Simon, Angela, Sarda, Sujata P., and Busse, Paula J.

Abstract

Additional file 1: Fig. S1. Study design and patient eligibility criteria. Narrative S1. Patient death.

Published
2023
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24. Hereditary angiodema: a current state-of-the-art review, VII: Canadian Hungarian 2007 International Consensus Algorithm for the Diagnosis, Therapy, and Management of Hereditary Angioedema

Author

Bowen, Tom, Cicardi, Marco, Bork, Konrad, Zuraw, Bruce, Frank, Mike, Ritchie, Bruce, Farkas, Henriette, Varga, Lilian, Zingale, Lorenza C., Binkley, Karen, Wagner, Eric, Adomaitis, Peggy, Brosz, Kristylea, Burnham, Jeanne, Warrington, Richard, Kalicinsky, Chrystyna, Mace, Sean, McCusker, Christine, Schellenberg, Robert, Celeste, Lucia, Hebert, Jacques, Valentine, Karen, Poon, Man-Chiu, Serushago, Bazir, Neurath, Doris, Yang, William, Lacuesta, Gina, Issekutz, Andrew, Hamed, Azza, Kamra, Palinder, Dean, John, Kanani, Amin, Stark, Donald, Rivard, Georges-Etienne, Leith, Eric, Tsai, Ellie, Waserman, Susan, Keith, Paul K., Page, David, Marchesin, Silvia, Longhurst, Hilary J., Kreuz, Wolfhart, Rusicke, Eva, Martinez-Saguer, Inmaculada, Aygören-Pürsün, Emel, Harmat, George, Füst, George, Li, Henry, Bouillet, Laurence, Caballero, Teresa, Moldovan, Dumitru, Späth, Peter J., Smith-Foltz, Sara, Nagy, Istvan, Nielsen, Erik W., Bucher, Christoph, Nordenfelt, Patrik, and Xiang, Zhi Yu

Published
2008
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26. Canadian 2003 International Consensus Algorithm for the Diagnosis, Therapy, and Management of Hereditary Angioedema

Author

Bowen, Tom, Cicardi, Marco, Farkas, Henriette, Bork, Konrad, Kreuz, Wolfhart, Zingale, Lorenza, Varga, Lilian, Martinez-Saguer, Inmaculada, Aygören-Pürsün, Emel, Binkley, Karen, Zuraw, Bruce, Davis, Alvin, III, Hebert, Jacques, Ritchie, Bruce, Burnham, Jeanne, Castaldo, Anthony, Menendez, Alejandra, Nagy, Istvan, Harmat, George, Bucher, Christoph, Lacuesta, Gina, Issekutz, Andrew, Warrington, Richard, Yang, William, Dean, John, Kanani, Amin, Stark, Donald, McCusker, Christine, Wagner, Eric, Rivard, Georges-Etienne, Leith, Eric, Tsai, Ellie, MacSween, Michael, Lyanga, John, Serushago, Bazir, Leznoff, Art, Waserman, Susan, and de Serres, Jean

Published
2004
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28. Canadian hereditary angioedema guideline

Author

Betschel, Stephen, Badiou, Jacquie, Binkley, Karen, Hébert, Jacques, Kanani, Amin, Keith, Paul K., Lacuesta, Gina, Yang, Bill, Aygören-Pürsün, Emel, Bernstein, Jonathan A., Bork, Konrad, Caballero, Teresa, Cicardi, Marco, Craig, Timothy, Farkas, Henriette, Longhurst, Hilary, Zuraw, Bruce, Boysen, Henrik B., Borici-Mazi, Rozita, Bowen, Tom, Dallas, Karen, Dean, John, Lang-Robertson, Kelly, Laramée, Benoît, Leith, Eric, Mace, Sean, McCusker, Christine, Moote, Bill, Poon, Man-Chiu, Ritchie, Bruce, Stark, Donald, Sussman, Gordon, and Waserman, Susan

Subjects
ddc:610
Abstract

Hereditary angioedema (HAE) is a disease which is associated with random and often unpredictable attacks of painful swelling typically affecting the extremities, bowel mucosa, genitals, face and upper airway. Attacks are associated with significant functional impairment, decreased Health Related Quality of Life, and mortality in the case of laryngeal attacks. Caring for patients with HAE can be challenging due to the complexity of this disease. The care of patients with HAE in Canada is neither optimal nor uniform across the country. It lags behind other countries where there are more organized models for HAE management, and where additional therapeutic options are licensed and available for use. The objective of this guideline is to provide graded recommendations for the management of patients in Canada with HAE. This includes the treatment of attacks, short-term prophylaxis, long-term prophylaxis, and recommendations for self-administration, individualized therapy, quality of life, and comprehensive care. It is anticipated that by providing this guideline to caregivers, policy makers, patients and their advocates, that there will be an improved understanding of the current recommendations regarding management of HAE and the factors that need to be considered when choosing therapies and treatment plans for individual patients. The primary target users of this guideline are healthcare providers who are managing patients with HAE. Other healthcare providers who may use this guideline are emergency physicians, gastroenterologists, dentists and otolaryngologists, who will encounter patients with HAE and need to be aware of this condition. Hospital administrators, insurers and policy makers may also find this guideline helpful.

Published
2014

29. Insights and advances in chronic urticaria: a Canadian perspective

Author

Sussman, Gordon, primary, Hébert, Jacques, additional, Gulliver, Wayne, additional, Lynde, Charles, additional, Waserman, Susan, additional, Kanani, Amin, additional, Ben-Shoshan, Moshe, additional, Horemans, Spencer, additional, Barron, Carly, additional, Betschel, Stephen, additional, Yang, William H, additional, Dutz, Jan, additional, Shear, Neil, additional, Lacuesta, Gina, additional, Vadas, Peter, additional, Kobayashi, Kenneth, additional, Lima, Hermenio, additional, and Simons, F Estelle R, additional

Published
2015
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31. Canadian hereditary angioedema guideline

Author

Betschel, Stephen, primary, Badiou, Jacquie, additional, Binkley, Karen, additional, Hébert, Jacques, additional, Kanani, Amin, additional, Keith, Paul, additional, Lacuesta, Gina, additional, Yang, Bill, additional, Aygören-Pürsün, Emel, additional, Bernstein, Jonathan, additional, Bork, Konrad, additional, Caballero, Teresa, additional, Cicardi, Marco, additional, Craig, Timothy, additional, Farkas, Henriette, additional, Longhurst, Hilary, additional, Zuraw, Bruce, additional, Boysen, Henrik, additional, Borici-Mazi, Rozita, additional, Bowen, Tom, additional, Dallas, Karen, additional, Dean, John, additional, Lang-Robertson, Kelly, additional, Laramée, Benoît, additional, Leith, Eric, additional, Mace, Sean, additional, McCusker, Christine, additional, Moote, Bill, additional, Poon, Man-Chiu, additional, Ritchie, Bruce, additional, Stark, Donald, additional, Sussman, Gordon, additional, and Waserman, Susan, additional

Published
2014
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33. Revaccination outcomes among adolescents and adults with suspected hypersensitivity reactions following COVID-19 vaccination: A Canadian immunization research network study.

Author

Fitzpatrick, Tiffany, Yamoah, Peter, Lacuesta, Gina, Sadarangani, Manish, Cook, Victoria, Pourshahnazari, Persia, Kalicinsky, Chrystyna, Upton, Julia E.M., Cameron, Scott B., Zaborniak, Karver, Kanani, Amin, Lam, Godfrey, Burton, Catherine, Constantinescu, Cora, Pernica, Jeffrey M., Abdurrahman, Zainab, Betschel, Stephen, Drolet, Jean-Philippe, De Serres, Gaston, and Quach, Caroline

Subjects
*COVID-19, *ADVERSE health care events, *COVID-19 vaccines, *ALLERGIES, *VIRAL vaccines
Abstract

• We evaluated people with suspected hypersensitivity after COVID-19 vaccination. • 92% of 180 referred for hypersensitivity reactions were recommended for revaccination. • 85% with physician-diagnosed hypersensitivity had no recurrent symptoms after revaccination. • Patients with COVID-19 vaccine hypersensitivity reactions can be safely revaccinated. COVID-19 vaccination has been associated with anaphylaxis and hypersensitivity reactions. Infectious disease physicians and allergists in the Canadian Special Immunization Clinic (SIC) Network developed guidance for evaluating patients with adverse events following immunization (AEFI) including suspected hypersensitivity. This study evaluated management and adverse event recurrence following subsequent COVID-19 vaccinations. Individuals aged 12 years and older enrolled at participating SICs before February 28, 2023 who were referred for suspected or diagnosed hypersensitivity reaction following COVID-19 vaccination, or for prevaccination assessment of suspected allergy to a COVID-19 vaccine component were included. De-identified clinical assessments and revaccination data, captured in a centralized database, were analyzed. The Brighton Collaboration case definition (BCCD) for anaphylaxis (2023 version) was applied. The analysis included 206 participants from 13 sites: 26 participants referred for pre-vaccination assessment and 180 participants referred for adverse events following COVID-19 vaccination (15/180 [8.3%] with BCCD confirmed anaphylaxis, 84 [46.7%] with immediate hypersensitivity symptoms not meeting BCCD, 33 [18.3%] with other diagnosed hypersensitivity reactions, and 48 [26.7%] participants with a final diagnosis of non-hypersensitivity AEFI). Among participants referred for AEFIs following COVID-19 vaccination, 166/180 (92.2%) were recommended for COVID-19 revaccination after risk assessment, of whom 158/166 (95.2%) were revaccinated (all with a COVID-19 mRNA vaccine). After revaccination, 1/15 (6.7%) participants with prior anaphylaxis, 1/77 (1.3%) with immediate hypersensitivity not meeting criteria for anaphylaxis and 1/24 (4.2%) with other physician diagnosed hypersensitivity developed recurrent AEFI symptoms that met the BCCD for anaphylaxis. All 26 participants referred pre-vaccination, including 9 (34.6%) with history of polyethylene glycol-asparaginase reactions, were vaccinated without occurrence of immediate hypersensitivity symptoms. Most individuals in this national cohort who experienced a hypersensitivity event following COVID-19 vaccination and were referred for specialist review were revaccinated without AEFI recurrence, suggesting that specialist evaluation can facilitate safe revaccination. [ABSTRACT FROM AUTHOR]

Published
2024
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