1. Health-related quality of life in children with cerebral palsy associated with congenital Zika infection.
- Author
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Pinto Marques, Fernanda Jordão, Lemos de Carvalho, Alessandra, Magro Borigato, Eliana Valverde, Vieira de Oliveira, Luiz Felipe, Rocha Duarte, Lenamaris Mendes, Goncalves da Silva, Adriana, Dias Amarante, Claret Luiz, Jácome de Melo Pereira, Laura, Ferreira Tavares, Elise, Gleice de Sena da Costa, Lilian, Rezende Alcântara, Carolina Alves, Salinas, Andrea Nakamura, de Lourdes da Cunha Pinto, Fernanda, Carvalho de Alcântara, Gerliane, Utsch, Fabiana, Diniz Silva, Cinthia Ramos, Araujo dos Reis, Dirlene, Marques Bessa, Wilerson, Christine Dutra, Rafaela, and Ventura, Paloma
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CHILDREN with cerebral palsy , *QUALITY of life , *ZIKA virus infections , *CONGENITAL disorders , *MAYER-Rokitansky-Kuster-Hauser syndrome , *ACTIVITIES of daily living , *EPILEPSY , *DROOLING , *NEUROREHABILITATION - Abstract
Objective: To describe the health-related quality of life (QOL) in children with cerebral palsy (CP) associated with congenital Zika infection. Methods: Cross-sectional study of a consecutive series of children, followed in a referral multi centric rehabilitation network in Brazil. We invited the caregivers to respond to the Brazilian version of the Caregiver Priorities & Child Health Index of Life with Disabilities (CPCHILDTM) questionnaire. Statistical analysis was performed with the Statistical Package for the Social Sciences (SPSS) 26.0™. We used absolute and relative frequencies for categorical variables and mean and standard deviation for continuous variables. Results: The sample consisted of 193 children, at mean age of 50.3±7.6 months. We observed a predominance of children with cerebral palsy (CP) with Gross Motor Function Classification System (GMFCS) level V (93.7%). Epilepsy (88.4%) was the most common comorbidity. CPCHILDTM mean scores were activities of daily living (ADL)/personal care 43.2±12.6; positioning, transferring and mobility 33.7±16.5; comfort and emotions 84.4±15.2; communication and social interaction (CoSI) 48.2±24.3; health 70.9±17.1; and overall quality of life (OQOL) 72.1±17.1. Total score was 54.8±11.3. Conclusions: Among children with cerebral palsy (CP) related to congenital Zika syndrome, the quality of life (QOL) scores were very similar to other populations with cerebral palsy (CP). The activities of positioning, transferring and mobility had the greatest impact on health-related quality of life (QOL). Rehabilitation strategies and public policies should prioritize aspects related to mobility for this population. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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