1. Management of HIV-related stigma and adherence to HAART: Evidence from a large representative sample of outpatients attending French hospitals (ANRS-EN12-VESPA 2003)
- Author
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P. Peretti-Watel, B. Spire, J. Pierret, F. Lert, Y. Obadia, null The VESPA Group, Epidémiologie et Sciences Sociales Appliquées à l'Innovation Médicale, Université de la Méditerranée - Aix-Marseille 2-Institut National de la Santé et de la Recherche Médicale (INSERM), Observatoire Régional de la Santé de Provence-Alpes-Cote d'Azur, ORS PACA, CERMES - Centre de recherche Médecine, Science, Santé Société (CERMES - UMR 8169 / U750), Université Paris-Sud - Paris 11 (UP11)-École des hautes études en sciences sociales (EHESS)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Centre National de la Recherche Scientifique (CNRS), Epidémiologie, santé publique et environnement professionnel et général: méthodes et applications, Epidémiologie, sciences sociales, santé publique (IFR 69), Université Paris 1 Panthéon-Sorbonne (UP1)-Université Paris-Sud - Paris 11 (UP11)-École des hautes études en sciences sociales (EHESS)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Université Paris Descartes - Paris 5 (UPD5)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Centre National de la Recherche Scientifique (CNRS)-Université Paris 1 Panthéon-Sorbonne (UP1)-Université Paris-Sud - Paris 11 (UP11)-École des hautes études en sciences sociales (EHESS)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Université Paris Descartes - Paris 5 (UPD5)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Centre National de la Recherche Scientifique (CNRS)-Institut National de la Santé et de la Recherche Médicale (INSERM), (ANRS-EN12-VESPA 2003)., Observatoire régional de la santé Provence-Alpes-Côte d'Azur [Marseille] (ORS PACA), and Kaniewski, Nadine
- Subjects
Male ,Health (social science) ,Cross-sectional study ,Psychological intervention ,HIV Infections ,MESH: Family Relations ,MESH: Self Disclosure ,MESH: Research Support, Non-U.S. Gov't ,MESH: Antiretroviral Therapy, Highly Active ,0302 clinical medicine ,Antiretroviral Therapy, Highly Active ,Medicine ,030212 general & internal medicine ,10. No inequality ,Prejudice (legal term) ,MESH: Middle Aged ,MESH: HIV Infections ,Middle Aged ,MESH: Interpersonal Relations ,MESH: Patient Compliance ,3. Good health ,Self-disclosure ,Female ,Family Relations ,France ,0305 other medical science ,Hiv related stigma ,Prejudice ,MESH: Prejudice ,Adult ,medicine.medical_specialty ,Self Disclosure ,Social Psychology ,MEDLINE ,Hiv disclosure ,03 medical and health sciences ,Interpersonal relationship ,MESH: Cross-Sectional Studies ,Humans ,Interpersonal Relations ,Psychiatry ,Stereotyping ,MESH: Humans ,030505 public health ,business.industry ,Public Health, Environmental and Occupational Health ,MESH: Adult ,MESH: Male ,MESH: France ,Cross-Sectional Studies ,[SDV.SPEE] Life Sciences [q-bio]/Santé publique et épidémiologie ,Patient Compliance ,[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie ,business ,MESH: Female - Abstract
This study investigated patterns of HIV disclosure to significant others (parents, siblings, children, other relatives, friends and colleagues) and describe them in terms of socio-demographic background and other characteristics, including experiences of AIDS-related discrimination. It also assessed the relationship between disclosure patterns and adherence to HAART. We used a cross-sectional survey conducted among a national representative sample of 2,932 HIV-infected people recruited in French hospitals. HIV disclosure patterns were both selective and cumulative: disclosure was more frequent for friends and siblings, while concealment prevailed concerning children, other relatives, and colleagues; but patients who disclosed their seropositivity to one significant other were also more likely to disclose it to other significant others. Patients reporting experiences of discrimination from sexual partners were less likely to be highly adherent, and we also found a significant relationship between uncontrolled disclosure and non-adherence. Patients who have opted for concealment probably consider non-adherence and uncontrolled disclosure as competing risks, but among them a significant minority loses on both counts. Counselling provided to HIV-infected people should not separate the adherence and disclosure issues, and adherence interventions should seek to help patients to manage concurrently disclosure/concealment of their seropositivity and its consequences.
- Published
- 2006