934 results on '"McGuire, Amy L."'
Search Results
2. Bio-Psycho-Spiritual Perspectives on Psychedelics: Clinical and Ethical Implications
3. Large-scale genotype prediction from RNA sequence data necessitates a new ethical and policy framework
4. A Transformative Trip? Experiences of Psychedelic Use
5. Deciding with Others: Interdependent Decision‐Making
6. Correction: Core values of genomic citizen science: results from a qualitative interview study
7. Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing
8. Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents
9. Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development
10. Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research
11. IGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy
12. Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening
13. “The truth should not be hidden”: Experiences and recommendations of individuals making NPE discoveries through genetic genealogy databases
14. Conceptualization of utility in translational clinical genomics research
15. Toward better governance of human genomic data
16. Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research.
17. Actionability of unanticipated monogenic disease risks in newborn genomic screening: Findings from the BabySeq Project
18. Quantifying Downstream Healthcare Utilization in Studies of Genomic Testing
19. Parents’ decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project
20. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial
21. Developing an Ethics and Policy Framework for Psychedelic Clinical Care: A Consensus Statement
22. Genetic Researchers’ Use of and Interest in Research With Diverse Ancestral Groups
23. Core values of genomic citizen science: results from a qualitative interview study
24. The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research
25. Short-term costs of integrating whole-genome sequencing into primary care and cardiology settings: a pilot randomized trial
26. Increasing physician participation as subjects in scientific and quality improvement research
27. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations
28. Research Participants’ Perspectives on Precision Diagnostics for Alzheimer’s Disease
29. Families' experiences accessing care after genomic sequencing in the pediatric cancer context: “It's just been a big juggle”
30. Ethics in Genetic and Genomic Research
31. Newborn Sequencing in Genomic Medicine and Public Health
32. Direct-to-Consumer Drug Advertisement and Prescribing Practices: Evidence Review and Practical Guidance for Clinicians
33. Genome Sequencing in the Parkinson Disease Clinic
34. Quantifying Downstream Healthcare Utilization in Studies of Genomic Testing
35. Solving Crimes While Protecting Genetic Privacy
36. Benefits of sharing neurophysiology data from the BRAIN Initiative Research Opportunities in Humans Consortium
37. The road ahead in genetics and genomics
38. Behavioral and psychological impact of genome sequencing: a pilot randomized trial of primary care and cardiology patients
39. Who’s on third? Regulation of third-party genetic interpretation services
40. Participants’ recall and understanding of genomic research and large-scale data sharing
41. Responsibility, culpability, and parental views on genomic testing for seriously ill children
42. Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies
43. Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines
44. Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families
45. Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents
46. Ethically cleared to launch?
47. Ethics Education for Healthcare Professionals in the Era of ChatGPT and Other Large Language Models: Do We Still Need It?
48. Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi
49. Citizen science, public policy
50. Genealogy databases and the future of criminal investigation
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