129 results on '"Muraca, Monica"'
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2. European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline
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de Beijer, Ismay A. E., Skinner, Roderick, Haupt, Riccardo, Grabow, Desiree, Bardi, Edit, Beccaria, Andrea, Nieto, Adela Cañete, Essiaf, Samira, Filbert, Anna-Liesa, Gsell, Hannah, Kienesberger, Anita, Langer, Thorsten, McColgan, Patricia, Muraca, Monica, Rascon, Jelena, Tallone, Ramona, Tomasikova, Zuzana, Uyttebroeck, Anne, Kremer, Leontien C. M., van der Pal, Helena J. H., and Mulder, Renée L.
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- 2023
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3. Interindividual variation in ovarian reserve after gonadotoxic treatment in female childhood cancer survivors – a genome-wide association study: results from PanCareLIFE
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van der Perk, M.E. Madeleine, Broer, Linda, Yasui, Yutaka, Laven, Joop S.E., Robison, Leslie L., Tissing, Wim J.E., Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J.L., Lambalk, Cornelis B., Overbeek, Annelies, Loonen, Jacqueline J., Beerendonk, Catharina C.M., Byrne, Julianne, Berger, Claire, Clemens, Eva, van Dulmen-den Broeder, Eline, Dirksen, Uta, van der Pal, Helena J., de Vries, Andrica C.H., Winther, Jeanette Falck, Ranft, Andreas, Fosså, Sophie D., Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Kremer, Leontien C.M., Brooke, Russell J., Wang, Fan, Baedke, Jessica L., Uitterlinden, André G., Bos, Annelies M.E., van Leeuwen, Flora E., Ness, Kirsten K., Hudson, Melissa M., van der Kooi, Anne-Lotte L.F., and van den Heuvel-Eibrink, Marry M.
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- 2024
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4. Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study
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de Beijer, Ismay A. E., Hardijzer, Emma C., Haupt, Riccardo, Grabow, Desiree, Balaguer, Julia, Bardi, Edit, Cañete Nieto, Adela, Ciesiūniene, Audronė, Düster, Vanessa, Filbert, Anna-Liesa, Gsell, Hannah, Kapitančukė, Monika, Ladenstein, Ruth, Langer, Thorsten, Muraca, Monica, van den Oever, Selina R., Prikken, Sofie, Rascon, Jelena, Tormo, Maria Teresa, Uyttebroeck, Anne, Vercruysse, Gertrui, van der Pal, Helena J. H., Kremer, Leontien C. M., and Pluijm, Saskia M. F.
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- 2023
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5. From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors
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van den Oever, Selina R., Fuchs, Tessa, Levitt, Gill A., Haupt, Riccardo, Mulder, Renée L., Amariutei, Ana, Bardi, Edit, Becker, Tom, Brown, Morven, Gsell, Hannah, Hartogh, Jaap den, Essiaf, Samira, Muraca, Monica, Potter, Emma, Schneider, Carina, Sugden, Elaine, Tomášiková, Zuzana, Vermeulen, Herma, Kremer, Leontien C.M., Skinner, Roderick, and van der Pal, Helena J.H.
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- 2024
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6. Twinning to reduce research and innovation inequalities in paediatric solid tumours across Europe
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Rascon, Jelena, Blackute, Renata, Cerkauskiene, Alma, Taschner-Mandl, Sabine, Andrade, Nuno, Planinic, Adriana, Rutkowski, Stefan, Schuller, Ulrich, Nysom, Karsten, Tuckuviene, Ruta, Brok, Jesper, Schmiegelow, Kjeld, van den Heuvel-Eibrink, Marry M., van der Perk, M.E. Madeleine, Haupt, Riccardo, Muraca, Monica, Saraceno, Davide, Geoerger, Birgit, Manuzi, Giorgia, and Ladenstein, Ruth
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- 2024
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7. Scaling up and implementing the digital Survivorship Passport tool in routine clinical care – The European multidisciplinary PanCareSurPass project
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Filbert, Anna-Liesa, Kremer, Leontien, Ladenstein, Ruth, Chronaki, Catherine, Degelsegger-Márquez, Alexander, van der Pal, Heleen, Bardi, Edit, Uyttebroeck, Anne, Langer, Thorsten, Muraca, Monica, Nieto, Adela Cañete, Rascon, Jelena, Bagnasco, Francesca, Beyer, Stefan, te Dorsthorst, Jeroen, Essiaf, Samira, Galan, Antonio Orduña, Kienesberger, Anita, O’Brien, Kylie, Palau, Marisa Correcher, Pluijm, Saskia M.F., di Profio, Sonia, Saraceno, Davide, Schneider, Carina, Schreier, Günter, Trinkūnas, Justas, Zamberlan, Igor, Grabow, Desiree, and Haupt, Riccardo
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- 2024
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8. Correction: Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study
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de Beijer, Ismay A. E., Hardijzer, Emma C., Haupt, Riccardo, Grabow, Desiree, Balaguer, Julia, Bardi, Edit, Nieto, Adela Cañete, Ciesiūniene, Audronė, Düster, Vanessa, Filbert, Anna-Liesa, Gsell, Hannah, Kapitančukė, Monika, Ladenstein, Ruth, Langer, Thorsten, Muraca, Monica, van den Oever, Selina R., Prikken, Sofie, Rascon, Jelena, Tormo, Maria Teresa, Uyttebroeck, Anne, Vercruysse, Gertrui, van der Pal, Helena J. H., Kremer, Leontien C. M., and Pluijm, Saskia M. F.
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- 2024
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9. Fat-to-lean mass ratio as a tool to detect the dysmetabolic profile in childhood cancer survivors
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Casirati, Amanda, Somaschini, Alberto, Muraca, Monica, Cereda, Emanuele, Morsellino, Vera, Di Iorgi, Natascia, Caccialanza, Riccardo, and Haupt, Riccardo
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- 2023
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10. Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
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van den Oever, Selina R., Pluijm, Saskia M. F., Skinner, Rod, Glaser, Adam, Mulder, Renée L., Armenian, Saro, Bardi, Edit, Berger, Claire, Ehrhardt, Matthew J., Gilleland Marchak, Jordan, Haeusler, Gabrielle M., Hartogh, Jaap den, Hjorth, Lars, Kepak, Tomas, Kriviene, Izolda, Langer, Thorsten, Maeda, Miho, Márquez-Vega, Catalina, Michel, Gisela, Muraca, Monica, Najib, Mohamed, Nathan, Paul C., Panasiuk, Anna, Prasad, Maya, Roganovic, Jelena, Uyttebroeck, Anne, Winther, Jeanette F., Zadravec Zaletel, Lorna, van Dalen, Elvira C., van der Pal, Helena J. H., Hudson, Melissa M., and Kremer, Leontien C. M.
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- 2022
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11. Healthcare providers' expected barriers and facilitators to the implementation of person‐centered long‐term follow‐up care for childhood cancer survivors: A PanCareFollowUp study.
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Breij, Dionne, Hjorth, Lars, Bouwman, Eline, Walraven, Iris, Kepak, Tomas, Kepakova, Katerina, Haupt, Riccardo, Muraca, Monica, Göttgens, Irene, Stollman, Iridi, Winther, Jeanette Falck, Kienesberger, Anita, Gsell, Hannah, Michel, Gisela, Blijlevens, Nicole, Pluijm, Saskia M. F., Roser, Katharina, Skinner, Roderick, Renard, Marleen, and Uyttebroeck, Anne
- Abstract
Background: Childhood cancer survivors face high risks of adverse late health effects. Long‐term follow‐up care for childhood cancer survivors is crucial to improve their health and quality of life. However, implementation remains a challenge. To support implementation of high‐quality long‐term follow‐up care, we explored expected barriers and facilitators for establishing this follow‐up care among healthcare providers from four European clinics. Methods: A qualitative study was conducted using four focus groups comprising 30 healthcare providers in total. The semi‐structured interview guide was developed based on the Grol and Wensing framework. Data was analyzed following a thematic analysis, combining both inductive and deductive approaches to identify barriers and facilitators across the six levels of Grol and Wensing: innovation, professional, patient, social, organizational and economic and political. Results: Most barriers were identified on the organizational level, including insufficient staff, time, capacity and psychosocial support. Other main barriers included limited knowledge of late effects among healthcare providers outside the long‐term follow‐up care team, inability of some survivors to complete the survivor questionnaire and financial resources. Main facilitators included motivated healthcare providers and survivors, a skilled hospital team, collaborations with important stakeholders like general practitioners, and psychosocial care facilities, utilization of the international collaboration and reporting long‐term follow‐up care results to convince hospital managers. Conclusion: This study identified several factors for successful implementation of long‐term follow‐up care for childhood cancer survivors. Our findings showed that specific attention should be given to knowledge, capacity, and financial issues, along with addressing psychosocial issues of survivors. [ABSTRACT FROM AUTHOR]
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- 2024
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12. European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer
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van Kalsbeek, Rebecca J., van der Pal, Helena J.H., Kremer, Leontien C.M., Bardi, Edit, Brown, Morven C., Effeney, Rachel, Winther, Jeanette F., Follin, Cecilia, den Hartogh, Jaap, Haupt, Riccardo, Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Levitt, Gill, Loonen, Jacqueline J., Mangelschots, Marlies, Muraca, Monica, Renard, Marleen, Sabic, Harun, Schneider, Carina U., Uyttebroeck, Anne, Skinner, Roderick, and Mulder, Renée L.
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- 2021
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13. From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors
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Zorg en O&O, van den Oever, Selina R., Fuchs, Tessa, Levitt, Gill A., Haupt, Riccardo, Mulder, Renée L., Amariutei, Ana, Bardi, Edit, Becker, Tom, Brown, Morven, Gsell, Hannah, Hartogh, Jaap den, Essiaf, Samira, Muraca, Monica, Potter, Emma, Schneider, Carina, Sugden, Elaine, Tomášiková, Zuzana, Vermeulen, Herma, Kremer, Leontien C.M., Skinner, Roderick, van der Pal, Helena J.H., Zorg en O&O, van den Oever, Selina R., Fuchs, Tessa, Levitt, Gill A., Haupt, Riccardo, Mulder, Renée L., Amariutei, Ana, Bardi, Edit, Becker, Tom, Brown, Morven, Gsell, Hannah, Hartogh, Jaap den, Essiaf, Samira, Muraca, Monica, Potter, Emma, Schneider, Carina, Sugden, Elaine, Tomášiková, Zuzana, Vermeulen, Herma, Kremer, Leontien C.M., Skinner, Roderick, and van der Pal, Helena J.H.
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- 2024
14. IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey
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Zorg en O&O, Cancer, Child Health, de Beijer, Ismay A.E., van den Oever, Selina R., Charalambous, Eliana, Cangioli, Giorgio, Balaguer, Julia, Bardi, Edit, Alfes, Marie, Nieto, Adela Cañete, Correcher, Marisa, da Costa, Tiago Pinto, Degelsegger-Márquez, Alexander, Düster, Vanessa, Filbert, Anna Liesa, Grabow, Desiree, Gredinger, Gerald, Gsell, Hannah, Haupt, Riccardo, van Helvoirt, Maria, Ladenstein, Ruth, Langer, Thorsten, Laschkolnig, Anja, Muraca, Monica, Pluijm, Saskia, Rascon, Jelena, Schreier, Günter, Tomášikova, Zuzana, Trauner, Florian, Trinkūnas, Justas, Trunner, Kathrin, Uyttebroeck, Anne, Kremer, Leontien C.M., van der Pal, Helena J.H., Chronaki, Catherine, PanCareSurPass Consortium, Zorg en O&O, Cancer, Child Health, de Beijer, Ismay A.E., van den Oever, Selina R., Charalambous, Eliana, Cangioli, Giorgio, Balaguer, Julia, Bardi, Edit, Alfes, Marie, Nieto, Adela Cañete, Correcher, Marisa, da Costa, Tiago Pinto, Degelsegger-Márquez, Alexander, Düster, Vanessa, Filbert, Anna Liesa, Grabow, Desiree, Gredinger, Gerald, Gsell, Hannah, Haupt, Riccardo, van Helvoirt, Maria, Ladenstein, Ruth, Langer, Thorsten, Laschkolnig, Anja, Muraca, Monica, Pluijm, Saskia, Rascon, Jelena, Schreier, Günter, Tomášikova, Zuzana, Trauner, Florian, Trinkūnas, Justas, Trunner, Kathrin, Uyttebroeck, Anne, Kremer, Leontien C.M., van der Pal, Helena J.H., Chronaki, Catherine, and PanCareSurPass Consortium
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- 2024
15. Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study
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Zorg en O&O, Cancer, Child Health, van den Oever, Selina R., de Beijer, Ismay A.E., Kremer, Leontien C.M., Alfes, Marie, Balaguer, Julia, Bardi, Edit, Nieto, Adela Cañete, Cangioli, Giorgio, Charalambous, Eliana, Chronaki, Catherine, Costa, Tiago, Degelsegger, Alexander, Düster, Vanessa, Filbert, Anna Liesa, Grabow, Desiree, Gredinger, Gerald, Gsell, Hannah, Haupt, Riccardo, van Helvoirt, Maria, Ladenstein, Ruth, Langer, Thorsten, Laschkolnig, Anja, Muraca, Monica, Rascon, Jelena, Schreier, Günter, Tomasikova, Zuzana, Tormo, Maria Teresa, Trinkunas, Justas, Trollip, Jessica, Trunner, Kathrin, Uyttebroeck, Anne, van der Pal, Helena J.H., Pluijm, Saskia M.F., on behalf of the PanCareSurPass consortium, Zorg en O&O, Cancer, Child Health, van den Oever, Selina R., de Beijer, Ismay A.E., Kremer, Leontien C.M., Alfes, Marie, Balaguer, Julia, Bardi, Edit, Nieto, Adela Cañete, Cangioli, Giorgio, Charalambous, Eliana, Chronaki, Catherine, Costa, Tiago, Degelsegger, Alexander, Düster, Vanessa, Filbert, Anna Liesa, Grabow, Desiree, Gredinger, Gerald, Gsell, Hannah, Haupt, Riccardo, van Helvoirt, Maria, Ladenstein, Ruth, Langer, Thorsten, Laschkolnig, Anja, Muraca, Monica, Rascon, Jelena, Schreier, Günter, Tomasikova, Zuzana, Tormo, Maria Teresa, Trinkunas, Justas, Trollip, Jessica, Trunner, Kathrin, Uyttebroeck, Anne, van der Pal, Helena J.H., Pluijm, Saskia M.F., and on behalf of the PanCareSurPass consortium
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- 2024
16. Interindividual variation in ovarian reserve after gonadotoxic treatment in female childhood cancer survivors - a genome-wide association study: results from PanCareLIFE
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MS VPG/Gynaecologie, Cancer, Speerpunt, Zorg en O&O, Child Health, van der Perk, M E Madeleine, Broer, Linda, Yasui, Yutaka, Laven, Joop S E, Robison, Leslie L, Tissing, Wim J E, Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J L, Lambalk, Cornelis B, Overbeek, Annelies, Loonen, Jacqueline J, Beerendonk, Catharina C M, Byrne, Julianne, Berger, Claire, Clemens, Eva, van Dulmen-den Broeder, Eline, Dirksen, Uta, van der Pal, Helena J, de Vries, Andrica C H, Winther, Jeanette Falck, Ranft, Andreas, Fosså, Sophie D, Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Kremer, Leontien C M, Brooke, Russell J, Wang, Fan, Baedke, Jessica L, Uitterlinden, André G, Bos, Annelies M E, van Leeuwen, Flora E, Ness, Kirsten K, Hudson, Melissa M, van der Kooi, Anne-Lotte L F, van den Heuvel-Eibrink, Marry M, PanCareLIFE Consortium, MS VPG/Gynaecologie, Cancer, Speerpunt, Zorg en O&O, Child Health, van der Perk, M E Madeleine, Broer, Linda, Yasui, Yutaka, Laven, Joop S E, Robison, Leslie L, Tissing, Wim J E, Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J L, Lambalk, Cornelis B, Overbeek, Annelies, Loonen, Jacqueline J, Beerendonk, Catharina C M, Byrne, Julianne, Berger, Claire, Clemens, Eva, van Dulmen-den Broeder, Eline, Dirksen, Uta, van der Pal, Helena J, de Vries, Andrica C H, Winther, Jeanette Falck, Ranft, Andreas, Fosså, Sophie D, Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Kremer, Leontien C M, Brooke, Russell J, Wang, Fan, Baedke, Jessica L, Uitterlinden, André G, Bos, Annelies M E, van Leeuwen, Flora E, Ness, Kirsten K, Hudson, Melissa M, van der Kooi, Anne-Lotte L F, van den Heuvel-Eibrink, Marry M, and PanCareLIFE Consortium
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- 2024
17. Interindividual variation in ovarian reserve after gonadotoxic treatment in female childhood cancer survivors – a genome-wide association study:results from PanCareLIFE
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van der Perk, M. E.Madeleine, Broer, Linda, Yasui, Yutaka, Laven, Joop S.E., Robison, Leslie L., Tissing, Wim J.E., Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J.L., Lambalk, Cornelis B., Overbeek, Annelies, Loonen, Jacqueline J., Beerendonk, Catharina C.M., Byrne, Julianne, Berger, Claire, Clemens, Eva, van Dulmen-den Broeder, Eline, Dirksen, Uta, van der Pal, Helena J., de Vries, Andrica C.H., Winther, Jeanette Falck, Ranft, Andreas, Fosså, Sophie D., Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Kremer, Leontien C.M., Brooke, Russell J., Wang, Fan, Baedke, Jessica L., Uitterlinden, André G., Bos, Annelies M.E., van Leeuwen, Flora E., Ness, Kirsten K., Hudson, Melissa M., van der Kooi, Anne Lotte L.F., van den Heuvel-Eibrink, Marry M., van der Perk, M. E.Madeleine, Broer, Linda, Yasui, Yutaka, Laven, Joop S.E., Robison, Leslie L., Tissing, Wim J.E., Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J.L., Lambalk, Cornelis B., Overbeek, Annelies, Loonen, Jacqueline J., Beerendonk, Catharina C.M., Byrne, Julianne, Berger, Claire, Clemens, Eva, van Dulmen-den Broeder, Eline, Dirksen, Uta, van der Pal, Helena J., de Vries, Andrica C.H., Winther, Jeanette Falck, Ranft, Andreas, Fosså, Sophie D., Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Kremer, Leontien C.M., Brooke, Russell J., Wang, Fan, Baedke, Jessica L., Uitterlinden, André G., Bos, Annelies M.E., van Leeuwen, Flora E., Ness, Kirsten K., Hudson, Melissa M., van der Kooi, Anne Lotte L.F., and van den Heuvel-Eibrink, Marry M.
- Abstract
Objective: To discover new variants associated with low ovarian reserve after gonadotoxic treatment among adult female childhood cancer survivors using a genome-wide association study approach. Design: Genome-wide association study. Setting: Not applicable. Patients: A discovery cohort of adult female childhood cancer survivors from the pan-European PanCareLIFE cohort (n = 743; median age: 25.8 years), excluding those who received bilateral ovarian irradiation, bilateral oophorectomy, central nervous system or total body irradiation, or stem cell transplantation. Replication was attempted in the US-based St. Jude Lifetime Cohort (n = 391; median age: 31.3 years). Exposure: Female childhood cancer survivors are at risk of therapy-related gonadal impairment. Alkylating agents are well-established risk factors, and the interindividual variability in gonadotoxicity may be explained by genetic polymorphisms. Data were collected in real-life conditions, and cyclophosphamide equivalent doses were used to quantify alkylation agent exposure. Main Outcome Measure: Anti-Müllerian hormone (AMH) levels served as a proxy for ovarian function, and the findings were combined in a meta-analysis. Results: Three genome-wide significant (<5.0 × 10−8) and 16 genome-wide suggestive (<5.0 × 10−6) loci were associated with log-transformed AMH levels, adjusted for cyclophosphamide equivalent dose of alkylating agents, age at diagnosis, and age at study in the PanCareLIFE cohort. On the basis of the effect allele frequency (EAF) (>0.01 if not genome-wide significant), and biologic relevance, 15 single nucleotide polymorphisms were selected for replication. None of the single nucleotide polymorphisms were statistically significantly associated with AMH levels. A meta-analysis indicated that rs78861946 was associated with borderline genome-wide statistical significance (reference/effect allele: C/T; effect allele frequency: 0.04, beta (SE): −0.484 (0.091). Con
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- 2024
18. Nerve Sheath Myxoma in Pregnancy: A Case Report.
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De Chiara, Elena, Vellone, Valerio Gaetano, Ferro, Jacopo, Trambaiolo Antonelli, Chiara, Piro, Liliana, Avanzini, Stefano, Prono, Valentina, Beccaria, Andrea, Muraca, Monica, and Tallone, Ramona
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PERIPHERAL nerve tumors ,SOFT tissue tumors ,SKIN tumors ,OPERATIVE ultrasonography ,YOUNG adults - Abstract
Nerve sheath myxoma (NSM) is a rare benign peripheral nerve sheath tumor that affects young adults. NSMs are asymptomatic, slow-growing swellings located in the upper extremities, more rarely in the lower extremities. Given the high risk of recurrence, it is recommended to perform a complete exeresis. To our knowledge, the evolution and management of NMS during pregnancy have not been described yet. We report the first case of recurrent pretibial NSM in a pregnant girl and its follow-up and outcome during and after pregnancy. NSM is difficult to diagnose clinically or using imaging. The final diagnosis remains histopathological. It is known how various types of benign and malignant skin tumors can develop or change during pregnancy. With our case, however, we documented that pregnancy does not affect the growth and evolution of NSM. Given the benign nature of the lesions and their tendency to grow slowly, during pregnancy, follow-up of NSMs can be conducted through ultrasonography and surgical treatment postponed after delivery. Our case highlights the importance of careful monitoring and individualized decision making, especially in rare scenarios such as NSM, where data on the progression of benign lesions are limited. Our case highlights the importance of a careful monitoring and a tailored treatment in rare scenarios such as NSM, where data on the progression of benign lesions are limited. Considering the benign nature of the lesions and their tendency to grow slowly, follow-up of NSMs during pregnancy can be conducted through ultrasonography, and surgical treatment can be postponed after delivery. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Childhood Cancer Survivorship Passport Challenges in the European Health Data Space.
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GAZZARATA, Roberta, STRÜBIN, Michael, CHRONAKI, Catherine, CANGIOLI, Giorgio, SARACENO, Davide, SCHREIER, Günter, BEYER, Stefan, TRAUNER, Florian, GREDINGER, Gerald, LADENSTEIN, Ruth, de BEIJER, Ismay AE, CAVALCA, Giacomo, TRINKUNAS, Justas, BELTRAN, Lucas CERVERO, VANAUTGAERDEN, Mark, KOCK-SCHOPPENHAUER, Ann-Kristin, NEUMANN, Anke, MURACA, Monica, FILBERT, Anna-Liesa, and HAUPT, Riccardo
- Abstract
Innovation in cancer therapy has increased childhood cancer survival rates. However, survivors are still at risk of developing late effects. In the digital transformation of the health sector, the Survivorship Passport (SurPass) can support long-term follow-up care plans. Gaps in seamless connectivity among hospital departments, primary care, combined with the time of health professionals required to collect and fill-in health data in SurPass, are barriers to its adoption in daily clinical practice. The PanCareSurPass (PCSP) project was motivated to address these gaps by a new version of SurPass (v2.0) that supports semi-automatic assembly from organizational Electronic Health Record (EHR) systems of the treatment summary data using HL7 FHIR, to create SurPass, and to link it to regional or national digital health infrastructures in six European countries. In this paper we present the methodology used to develop the SurPass technical implementation strategy with special focus on the European Health Data Space (EHDS). The recently provisionally approved EHDS regulation instruments a digital health data ecosystem with opportunities for cost-effective SurPass implementation across Europe. Moving forward, a European HL7 FHIR SurPass Implementation Guide along with synthetic data sets, and validation tools can enrich the European Electronic Health Record Exchange Format (EEHRxF) with use cases on health & wellness of childhood cancer survivors. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results.
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SARACENO, Davide, CHRONAKI, Catherine, CANGIOLI, Giorgio, FILBERT, Anna-Liesa, MURACA, Monica, BERTI, Alessandra, RIELLI, Rita, THOMOPULOS, Nikos, KNOERR, Lisa, WALZ, Diana, NEUMANN, Anke, BECCARIA, Andrea, AULICINO, Anna, NICOLAS, Brigitte, CAVALCA, Giacomo, UYTTEBROECK, Anne, VAN HELVOIRT, Maria, BRIÉ, Tom, MEERSCH, Erik VANDEN, and LADENSTEIN, Ruth
- Abstract
The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe. [ABSTRACT FROM AUTHOR]
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- 2024
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21. The ‘Survivorship Passport’ for childhood cancer survivors
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Menoni, Stefania, Bergeron, Christophe, den Hartogh, Jaap, Karner, Sabine, Fresneau, Brice, Jones, Kathy Pritchard, Vassal, Gilles, Bode, Gerlind, Frey, Eva, Hennewig, Ulrike, Iris, Maia, Jakab, Zsuzsanna, Kosmidis, Helen, Kriviene, Izolda, Marquez, Catalina, Modan-Moses, Dalit, Panasiuk, Anna, Vetsch, Janine, Haupt, Riccardo, Essiaf, Samira, Dellacasa, Chiara, Ronckers, Cecile M., Caruso, Silvia, Sugden, Elaine, Zadravec Zaletel, Lorna, Muraca, Monica, Morsellino, Vera, Kienesberger, Anita, Blondeel, Anne, Saraceno, Davide, Ortali, Maurizio, Kremer, Leontien C.M., Skinner, Roderick, Roganovic, Jelena, Bagnasco, Francesca, Levitt, Gill A., De Rosa, Marisa, Schrappe, Martin, Hjorth, Lars, and Ladenstein, Ruth
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- 2018
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22. Current practices of follow-up programs for childhood cancer survivors in Italy
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Terenziani, Monica, primary, Tozzi, Alberto Eugenio, additional, Diaco, Laura, additional, Biasin, Eleonora, additional, Cattoni, Alessandro, additional, Croci, Ileana, additional, Fraschini, Donatella, additional, Giorgiani, Giovanna, additional, Haupt, Riccardo, additional, Muraca, Monica, additional, Pillon, Marta, additional, Sironi, Giovanna, additional, Valsecchi, Maria Grazia, additional, and Mastronuzzi, Angela, additional
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- 2023
- Full Text
- View/download PDF
23. Perceived barriers and facilitators to health behaviors in European childhood cancer survivors:A qualitative PanCareFollowUp study
- Author
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Bouwman, Eline, Pluijm, Saskia M.F., Stollman, Iridi, Araujo-Soares, Vera, Blijlevens, Nicole M.A., Follin, Cecilia, Winther, Jeanette F., Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Kremer, Leontien C.M., Muraca, Monica, van der Pal, Helena J.H., Schneider, Carina, Uyttebroeck, Anne, Vercruysse, Gertrui, Skinner, Rod, Brown, Morven C., Hermens, Rosella P.M.G., and Loonen, Jacqueline J.
- Subjects
cancer risk factors ,cancer prevention ,Cancer Survivors ,Health Behavior ,Humans ,behavioral science ,Focus Groups ,Child ,survival ,Neoplasms/epidemiology ,Qualitative Research ,pediatric cancer - Abstract
Background: Healthy behaviors, that is, engaging in regular physical activities, maintaining a healthy diet, limiting alcohol consumption, and avoiding tobacco and drug use, decrease the risk of developing late adverse health conditions in childhood cancer survivors. However, childhood cancer survivors may experience barriers to adopting and maintaining healthy behaviors. This study aimed to assess these barriers and facilitators to health behavior adoption and maintenance in childhood cancer survivors. Methods: A focus group (n = 12) and semi-structured telephone interviews (n = 20) were conducted with a selected sample of European and Dutch childhood cancer survivors, respectively. The Theoretical Domains Framework (TDF) was used to inform the topic guide and analysis. Inductive thematic analysis was applied to identify categories relating to barriers and facilitators of health behavior adoption and maintenance, after which they were deductively mapped onto the TDF. Results: Ten TDF domains were identified in the data of which “Knowledge,” “Beliefs about consequences,” “Environmental context and resources,” and “Social influences” were most commonly reported. Childhood cancer survivors expressed a need for knowledge on the importance of healthy behaviors, possibly provided by healthcare professionals. They indicated physical and long-term benefits of healthy behaviors, available professional support, and a supporting and health-consciously minded work and social environment to be facilitators. Barriers were mostly related to a lack of available time and an unhealthy environment. Lastly, (social) media was perceived as both a barrier and a facilitator to healthy behaviors. Conclusion: This study has identified education and available professional support in health behaviors and the relevance of healthy behaviors for childhood cancer survivors as key opportunities for stimulating health behavior adoption in childhood cancer survivors. Incorporating health behavior support and interventions for this population should therefore be a high priority.
- Published
- 2023
24. A Review of Infants With Localized Neuroblastoma That Evolve to Stage 4s Disease
- Author
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Caroleo, Anna M., De Bernardi, Bruno, Avanzini, Stefano, Gigliotti, Anna R., Muraca, Monica, Pota, Elvira, Provenzi, Massimo, Mazzocco, Katia, Sementa, Angela R., Granata, Claudio, and Sorrentino, Stefania
- Published
- 2019
- Full Text
- View/download PDF
25. Risk factors associated with development and mortality by invasive fungal diseases in pediatric allogeneic stem cell transplantation. A pediatric subgroup analysis of data from a prospective study of the Gruppo Italiano Trapianto di Midollo Osseo (GITMO)
- Author
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Castagnola, Elio, Bagnasco, Francesca, Menoni, Stefania, Muraca, Monica, Prete, Arcangelo, Belotti, Tamara, Iori, Anna Paola, Barberi, Walter, Severino, Alessandro, Proia, Anna, Raiola, Anna Maria, Vacca, Adriana, Cudillo, Laura, Rambaldi, Alessandro, and Girmenia, Corrado
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- 2018
- Full Text
- View/download PDF
26. European Cancer Summit 2022 submission for Digital Health NetworkThe Survivorship Passport: a digital tool for better and homogeneous long-term care for childhood cancer survivors
- Author
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Grabow, Desiree, primary, Filbert, Anna-Liesa, additional, Saraceno, Davide, additional, Kremer, Leontien, additional, Skinner, Rod, additional, Hjorth, Lars, additional, Ladenstein, Ruth, additional, Scheinemann, Katrin, additional, Kepak, Tomas, additional, Kepakova, Katerina, additional, Muraca, Monica, additional, and Haupt, Riccardo, additional
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- 2023
- Full Text
- View/download PDF
27. Current practices of follow-up programs for childhood cancer survivors in Italy
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Terenziani, M, Tozzi, A, Diaco, L, Biasin, E, Cattoni, A, Croci, I, Fraschini, D, Giorgiani, G, Haupt, R, Muraca, M, Pillon, M, Sironi, G, Valsecchi, M, Mastronuzzi, A, Terenziani, Monica, Tozzi, Alberto Eugenio, Diaco, Laura, Biasin, Eleonora, Cattoni, Alessandro, Croci, Ileana, Fraschini, Donatella, Giorgiani, Giovanna, Haupt, Riccardo, Muraca, Monica, Pillon, Marta, Sironi, Giovanna, Valsecchi, Maria Grazia, Mastronuzzi, Angela, Terenziani, M, Tozzi, A, Diaco, L, Biasin, E, Cattoni, A, Croci, I, Fraschini, D, Giorgiani, G, Haupt, R, Muraca, M, Pillon, M, Sironi, G, Valsecchi, M, Mastronuzzi, A, Terenziani, Monica, Tozzi, Alberto Eugenio, Diaco, Laura, Biasin, Eleonora, Cattoni, Alessandro, Croci, Ileana, Fraschini, Donatella, Giorgiani, Giovanna, Haupt, Riccardo, Muraca, Monica, Pillon, Marta, Sironi, Giovanna, Valsecchi, Maria Grazia, and Mastronuzzi, Angela
- Abstract
Introduction: Quality of life in childhood cancer survivors is largely affected by survivorship care and transition from treatment to long-term follow-up (LTFU). Referring to evidence-based recommendations, we wanted to evaluate LTFU care for survivors through a survey among the Italian Association for Pediatric Hematology-Oncology (AIEOP) centers. The project aimed to evaluate the availability of services in Italy, investigate strengths and weaknesses, analyze improvements of awareness in the field, and identify the gaps that need to be addressed by different centers. Methods: Together with the family representatives, on behalf of AIEOP’s Late Effects Working Group, we developed a questionnaire on assisting childhood cancer survivors. All AIEOP centers received one questionnaire including information on local health system organizations; LTFU for childhood cancer survivors; services for adult survivors of childhood cancer; information provided to survivors/caregivers and care plan delivery. Results: Forty-eight AIEOP centers were contacted and 42 replied, with a response rate of 87.5%. The majority of respondents confirmed their interest in assisting patients with a survivorship care plan (95.2%), regardless of a clinic or dedicated staff. Discussion: This is the first overview of LTFU in Italy, which provides detailed results at national levels, prompting consideration of improvements in the last decade. Although there is a high level of interest in survivorship care, many centers lack resources to implement such programs. The identification of these challenges is useful for planning future strategies.
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- 2023
28. Current practices of follow-up programs for childhood cancer survivors in Italy
- Author
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Terenziani, Monica, Tozzi, Alberto Eugenio, Diaco, Laura, Biasin, Eleonora, Cattoni, Alessandro, Croci, Ileana, Fraschini, Donatella, Giorgiani, Giovanna, Haupt, Riccardo, Muraca, Monica, Pillon, Marta, Sironi, Giovanna, Valsecchi, Maria Grazia, Mastronuzzi, Angela, Terenziani, M, Tozzi, A, Diaco, L, Biasin, E, Cattoni, A, Croci, I, Fraschini, D, Giorgiani, G, Haupt, R, Muraca, M, Pillon, M, Sironi, G, Valsecchi, M, and Mastronuzzi, A
- Subjects
childhood cancer survivor ,long-term follow-up ,Survey - Abstract
Introduction: Quality of life in childhood cancer survivors is largely affected by survivorship care and transition from treatment to long-term follow-up (LTFU). Referring to evidence-based recommendations, we wanted to evaluate LTFU care for survivors through a survey among the Italian Association for Pediatric Hematology-Oncology (AIEOP) centers. The project aimed to evaluate the availability of services in Italy, investigate strengths and weaknesses, analyze improvements of awareness in the field, and identify the gaps that need to be addressed by different centers. Methods: Together with the family representatives, on behalf of AIEOP's Late Effects Working Group, we developed a questionnaire on assisting childhood cancer survivors. All AIEOP centers received one questionnaire including information on local health system organizations; LTFU for childhood cancer survivors; services for adult survivors of childhood cancer; information provided to survivors/caregivers and care plan delivery. Results: Forty-eight AIEOP centers were contacted and 42 replied, with a response rate of 87.5%. The majority of respondents confirmed their interest in assisting patients with a survivorship care plan (95.2%), regardless of a clinic or dedicated staff. Discussion: This is the first overview of LTFU in Italy, which provides detailed results at national levels, prompting consideration of improvements in the last decade. Although there is a high level of interest in survivorship care, many centers lack resources to implement such programs. The identification of these challenges is useful for planning future strategies.
- Published
- 2023
29. sj-pdf-1-tmj-10.1177_03008916231185981 – Supplemental material for Current practices of follow-up programs for childhood cancer survivors in Italy
- Author
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Terenziani, Monica, Tozzi, Alberto Eugenio, Diaco, Laura, Biasin, Eleonora, Cattoni, Alessandro, Croci, Ileana, Fraschini, Donatella, Giorgiani, Giovanna, Haupt, Riccardo, Muraca, Monica, Pillon, Marta, Sironi, Giovanna, Valsecchi, Maria Grazia, and Mastronuzzi, Angela
- Subjects
Medicine - Abstract
Supplemental material, sj-pdf-1-tmj-10.1177_03008916231185981 for Current practices of follow-up programs for childhood cancer survivors in Italy by Monica Terenziani, Alberto Eugenio Tozzi, Laura Diaco, Eleonora Biasin, Alessandro Cattoni, Ileana Croci, Donatella Fraschini, Giovanna Giorgiani, Riccardo Haupt, Monica Muraca, Marta Pillon, Giovanna Sironi, Maria Grazia Valsecchi and Angela Mastronuzzi in Tumori Journal
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- 2023
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30. Person-centred online lifestyle coaching in childhood, adolescent, and young adult cancer survivors: protocol of the multicentre PanCareFollowUp lifestyle intervention feasibility study
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Bouwman, Eline, Hermens, Rosella P. M. G., Brown, Morven C., Araújo-Soares, Vera, Blijlevens, Nicole M. A., Kepak, Tomas, Kepakova, Katerina, Kremer, Leontien C. M., van den Oever, Selina R., van der Pal, Helena J. H., Skinner, Roderick, Pluijm, Saskia M. F., Loonen, Jacqueline J., Mulder, Renée L., van Kalsbeek, Rebecca J., Hjorth, Lars, Follin, Cecilia, Eriksson, Lill, Relander, Thomas, Engellau, Jacob, Fjordén, Karin, Bogefors, Karolina, Holmqvist, Anna S., Haupt, Riccardo, Muraca, Monica, Nicolas, Brigitte, Bagnasco, Francesca, Benvenuto, Marina, Aulicino, Anna, Laudisi, Luca, Hrstkova, Hana, Bajciova, Viera, Holikova, Marta, Strublova, Lucie, Uyttebroeck, Anne, Renard, Marleen, Jacobs, Sandra, Segers, Heidi, van Helvoirt, Monique, Winther, Jeanette F., Mader, Luzius, Frederiksen, Line E., Andersen, Elisabeth A. W., Michel, Gisela, Boes, Stefan, Roser, Katharina, Göttgens, Irene, Stollman, Iridi, Penson, Adriaan, Breij, Dionne, Araujo-Soares, Vera, Essiaf, Samira, Blondeel, Anne, Sciberras, William, Korevaar, Joke, Rijken, Mieke, Kienesberger, Anita, den Hartogh, Jaap, Gsell, Hannah, Schneider, Carina, Bardi, Edit, te Dorsthorst, Jeroen, CCA - Cancer Treatment and Quality of Life, Amsterdam Reproduction & Development (AR&D), Paediatric Oncology, and Paediatrics
- Subjects
Physical activity ,Motivational interviewing ,Medicine (miscellaneous) ,Person-centred care ,Feasibility ,and young adult cancer survivors ,Coaching ,Lifestyle ,Childhood ,Women's cancers Radboud Institute for Health Sciences [Radboudumc 17] ,Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] ,Diet ,Screen-to-screen ,All institutes and research themes of the Radboud University Medical Center ,adolescent ,eHealth ,Rare cancers Radboud Institute for Health Sciences [Radboudumc 9] ,Childhood, adolescent, and young adult cancer survivors - Abstract
Background Physical inactivity and unhealthy dietary habits are known to be disadvantageous for the development of late adverse effects in survivors of childhood, adolescent, and young adult cancer. To make interventions, aimed at improving lifestyle, fit into the daily life of survivors, interventions should be designed and delivered in a person-centred way with a limited time burden. As part of the European PanCareFollowUp project, an eHealth intervention was developed to support sustainable changes to physical activity levels and/or diet of childhood, adolescent, and young adult cancer survivors. This feasibility study aims to gain insight into the feasibility and potential effect sizes of the PanCareFollowUp lifestyle intervention. Methods The PanCareFollowUp lifestyle intervention consists of person-centred 3–6 screen-to-screen sessions with a certified lifestyle coach. The intervention will be evaluated with a single-arm pre-post feasibility study conducted at two survivorship care clinics in the Netherlands. A total of 60 participants who are (i) diagnosed with cancer Discussion Data of this study will be gathered to assess the feasibility and potential effect sizes. This will allow for further intervention refinement as needed as well as to inform a future large-scale intervention study and a manual for implementation at other centres. Trial registration International Clinical Trial Registry Platform (ICTRP) number: NL8932 (ICTRP Search Portal (who.int)). Registered on September 29, 2020.
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- 2022
31. Healthcare professionals' perceived barriers and facilitators of health behavior support provision: A qualitative study
- Author
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Bouwman, Eline, Pluijm, Saskia M. F., Stollman, Iridi, Araujo‐Soares, Vera, Blijlevens, Nicole M. A., Follin, Cecilia, Falck Winther, Jeanette, Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Kremer, Leontien C. M., Muraca, Monica, van der Pal, Helena J. H., Schneider, Carina, Uyttebroeck, Anne, Vercruysse, Gertrui, Skinner, Roderick, Brown, Morven C., Hermens, Rosella P. M. G., Loonen, Jacqueline J., Paediatric Oncology, Paediatric Pulmonology, CCA - Cancer Treatment and Quality of Life, and AR&D - Amsterdam Reproduction & Development
- Subjects
Cancer Research ,All institutes and research themes of the Radboud University Medical Center ,Oncology ,screening ,clinical management ,Radiology, Nuclear Medicine and imaging ,survival ,Women's cancers Radboud Institute for Health Sciences [Radboudumc 17] ,Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] ,Rare cancers Radboud Institute for Health Sciences [Radboudumc 9] ,pediatric cancer - Abstract
Contains fulltext : 291775.pdf (Publisher’s version ) (Open Access) BACKGROUND: Childhood cancer survivors (CCSs) have an increased risk of developing chronic health conditions. Evidence suggests that poor health behaviors further increase health risks. Healthcare professionals (HCPs) involved in survivorship care have a key role in providing health behavior support (HBS) but can feel limited in their ability to do so. This study aims to explore European HCPs perceived facilitators and barriers to providing HBS to CCSs. METHODS: Five focus groups with 30 HCPs from survivorship care clinics across Europe were conducted. Topic guides were informed by the Theoretical Domains Framework (TDF) to capture domains that may influence provision of HBS. Focus groups were analyzed with thematic analysis. Transcripts were inductively coded, after which axial coding was applied to organize codes into categories. Finally, categories were mapped onto the TDF domains. RESULTS: Nine TDF domains were identified in the data. The most commonly reported TDF domains were "Knowledge", "Skills", and "Environmental context and resources". HCPs indicated that their lack of knowledge of the association between late effects and health behaviors, besides time restrictions, were barriers to HBS. Facilitators for HBS included possession of skills needed to pass on health behavior information, good clinic organization, and an established network of HCPs. CONCLUSIONS: This study identified education and training of HCPs as key opportunities to improve HBS. Survivorship care clinics should work towards establishing well-integrated structured care with internal and external networks including HBS being part of routine care. Proper understanding of facilitators and barriers should lead to better survivorship care for CCSs.
- Published
- 2022
32. Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol
- Author
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van Kalsbeek, Rebecca J, primary, Korevaar, Joke C, additional, Rijken, Mieke, additional, Haupt, Riccardo, additional, Muraca, Monica, additional, Kepák, Tomáš, additional, Kepakova, Katerina, additional, Blondeel, Anne, additional, Boes, Stefan, additional, Frederiksen, Line E, additional, Essiaf, Samira, additional, Winther, Jeanette F, additional, Hermens, Rosella P M G, additional, Kienesberger, Anita, additional, Loonen, Jacqueline J, additional, Michel, Gisela, additional, Mulder, Renée L, additional, O'Brien, Kylie B, additional, van der Pal, Helena J H, additional, Pluijm, Saskia M F, additional, Roser, Katharina, additional, Skinner, Roderick, additional, Renard, Marleen, additional, Uyttebroeck, Anne, additional, Follin, Cecilia, additional, Hjorth, Lars, additional, and Kremer, Leontien C M, additional
- Published
- 2022
- Full Text
- View/download PDF
33. Perceived barriers and facilitators to health behaviors in European childhood cancer survivors: A qualitative PanCareFollowUp study.
- Author
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Bouwman, Eline, Pluijm, Saskia M. F., Stollman, Iridi, Araujo‐Soares, Vera, Blijlevens, Nicole M. A., Follin, Cecilia, Winther, Jeanette F., Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Kremer, Leontien C. M., Muraca, Monica, van der Pal, Helena J. H., Schneider, Carina, Uyttebroeck, Anne, Vercruysse, Gertrui, Skinner, Rod, Brown, Morven C., Hermens, Rosella P. M. G., and Loonen, Jacqueline J.
- Subjects
HEALTH behavior ,CHILDHOOD cancer ,CANCER survivors ,MEDICAL personnel ,SOCIAL influence ,ALCOHOL drinking - Abstract
Background: Healthy behaviors, that is, engaging in regular physical activities, maintaining a healthy diet, limiting alcohol consumption, and avoiding tobacco and drug use, decrease the risk of developing late adverse health conditions in childhood cancer survivors. However, childhood cancer survivors may experience barriers to adopting and maintaining healthy behaviors. This study aimed to assess these barriers and facilitators to health behavior adoption and maintenance in childhood cancer survivors. Methods: A focus group (n = 12) and semi‐structured telephone interviews (n = 20) were conducted with a selected sample of European and Dutch childhood cancer survivors, respectively. The Theoretical Domains Framework (TDF) was used to inform the topic guide and analysis. Inductive thematic analysis was applied to identify categories relating to barriers and facilitators of health behavior adoption and maintenance, after which they were deductively mapped onto the TDF. Results: Ten TDF domains were identified in the data of which "Knowledge," "Beliefs about consequences," "Environmental context and resources," and "Social influences" were most commonly reported. Childhood cancer survivors expressed a need for knowledge on the importance of healthy behaviors, possibly provided by healthcare professionals. They indicated physical and long‐term benefits of healthy behaviors, available professional support, and a supporting and health‐consciously minded work and social environment to be facilitators. Barriers were mostly related to a lack of available time and an unhealthy environment. Lastly, (social) media was perceived as both a barrier and a facilitator to healthy behaviors. Conclusion: This study has identified education and available professional support in health behaviors and the relevance of healthy behaviors for childhood cancer survivors as key opportunities for stimulating health behavior adoption in childhood cancer survivors. Incorporating health behavior support and interventions for this population should therefore be a high priority. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
34. Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol
- Author
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Von Kalsbeek, Rebecca J., Korevaar, Joke C., Rijken, Mieke, Haupt, Riccardo, Muraca, Monica, Kepák, Tomáš, Kepakova, Katerina, Blondeel, Anne, Boes, Stefan, Frederiksen, Line E, Essiaf, Samira, Winther, Jeanette F, Hermens, Rosella P M G, Kienesberger, Anita, Loonen, Jacqueline J, Michel, Gisela, Mulder, Renée L, O'Brien, Kylie B, van der Pal, Helena J H, Pluijm, Saskia M F, Roser, Katharina, Skinner, Roderick, Renard, Marleen, Uyttebroeck, Anne, Follin, Cecilia, Hjorth, Lars, Kremer, Leontien C M, Von Kalsbeek, Rebecca J., Korevaar, Joke C., Rijken, Mieke, Haupt, Riccardo, Muraca, Monica, Kepák, Tomáš, Kepakova, Katerina, Blondeel, Anne, Boes, Stefan, Frederiksen, Line E, Essiaf, Samira, Winther, Jeanette F, Hermens, Rosella P M G, Kienesberger, Anita, Loonen, Jacqueline J, Michel, Gisela, Mulder, Renée L, O'Brien, Kylie B, van der Pal, Helena J H, Pluijm, Saskia M F, Roser, Katharina, Skinner, Roderick, Renard, Marleen, Uyttebroeck, Anne, Follin, Cecilia, Hjorth, Lars, and Kremer, Leontien C M
- Abstract
Introduction: Long-term survival after childhood cancer often comes at the expense of late, adverse health conditions. However, survivorship care is frequently not available for adult survivors in Europe. The PanCareFollowUp Consortium therefore developed the PanCareFollowUp Care Intervention, an innovative person-centred survivorship care model based on experiences in the Netherlands. This paper describes the protocol of the prospective cohort study (Care Study) to evaluate the feasibility and the health economic, clinical and patient-reported outcomes of implementing PanCareFollowUp Care as usual care in four European countries.Methods and analysis In this prospective, longitudinal cohort study with at least 6 months of follow-up, 800 childhood cancer survivors will receive the PanCareFollowUp Care Intervention across four study sites in Belgium, Czech Republic, Italy and Sweden, representing different healthcare systems. The PanCareFollowUp Care Intervention will be evaluated according to the Reach, Effectiveness, Adoption, Implementation and Maintenance framework. Clinical and research data are collected through questionnaires, a clinic visit for multiple medical assessments and a follow-up call. The primary outcome is empowerment, assessed with the Health Education Impact Questionnaire. A central data centre will perform quality checks, data cleaning and data validation, and provide support in data analysis. Multilevel models will be used for repeated outcome measures, with subgroup analysis, for example, by study site, attained age, sex or diagnosis.Ethics and dissemination This study will be conducted in accordance with the guidelines of Good Clinical Practice and the Declaration of Helsinki. The study protocol has been reviewed and approved by all relevant ethics committees. The evidence and insights gained by this study will be summarised in a Replication Manual, also including the tools required to implement the PanCareFollowUp Care Interve, + ID der Publikation: unilu_61784 + Sprache: Englisch + Letzte Aktualisierung: 2022-11-30 17:16:31
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- 2022
35. Healthcare professionals' perceived barriers and facilitators of health behavior support provision: A qualitative study.
- Author
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Bouwman, Eline, Pluijm, Saskia M. F., Stollman, Iridi, Araujo‐Soares, Vera, Blijlevens, Nicole M. A., Follin, Cecilia, Falck Winther, Jeanette, Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Kremer, Leontien C. M., Muraca, Monica, van der Pal, Helena J. H., Schneider, Carina, Uyttebroeck, Anne, Vercruysse, Gertrui, Skinner, Roderick, Brown, Morven C., Hermens, Rosella P. M. G., and Loonen, Jacqueline J.
- Subjects
HEALTH behavior ,MEDICAL personnel ,INFORMATION-seeking behavior ,QUALITATIVE research ,THEMATIC analysis - Abstract
Background: Childhood cancer survivors (CCSs) have an increased risk of developing chronic health conditions. Evidence suggests that poor health behaviors further increase health risks. Healthcare professionals (HCPs) involved in survivorship care have a key role in providing health behavior support (HBS) but can feel limited in their ability to do so. This study aims to explore European HCPs perceived facilitators and barriers to providing HBS to CCSs. Methods: Five focus groups with 30 HCPs from survivorship care clinics across Europe were conducted. Topic guides were informed by the Theoretical Domains Framework (TDF) to capture domains that may influence provision of HBS. Focus groups were analyzed with thematic analysis. Transcripts were inductively coded, after which axial coding was applied to organize codes into categories. Finally, categories were mapped onto the TDF domains. Results: Nine TDF domains were identified in the data. The most commonly reported TDF domains were "Knowledge", "Skills", and "Environmental context and resources". HCPs indicated that their lack of knowledge of the association between late effects and health behaviors, besides time restrictions, were barriers to HBS. Facilitators for HBS included possession of skills needed to pass on health behavior information, good clinic organization, and an established network of HCPs. Conclusions: This study identified education and training of HCPs as key opportunities to improve HBS. Survivorship care clinics should work towards establishing well‐integrated structured care with internal and external networks including HBS being part of routine care. Proper understanding of facilitators and barriers should lead to better survivorship care for CCSs. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
36. The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer
- Author
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van Kalsbeek, Rebecca J., primary, Mulder, Renée L., additional, Haupt, Riccardo, additional, Muraca, Monica, additional, Hjorth, Lars, additional, Follin, Cecilia, additional, Kepak, Tomas, additional, Kepakova, Katerina, additional, Uyttebroeck, Anne, additional, Mangelschots, Marlies, additional, Falck Winther, Jeanette, additional, Loonen, Jacqueline J., additional, Michel, Gisela, additional, Bardi, Edit, additional, Elmerdahl Frederiksen, Line, additional, den Hartogh, Jaap, additional, Mader, Luzius, additional, Roser, Katharina, additional, Schneider, Carina, additional, Brown, Morven C., additional, Brunhofer, Melanie, additional, Göttgens, Irene, additional, Hermens, Rosella P.M.G., additional, Kienesberger, Anita, additional, Korevaar, Joke C., additional, Skinner, Roderick, additional, van der Pal, Helena J.H., additional, and Kremer, Leontine C.M., additional
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- 2022
- Full Text
- View/download PDF
37. Identification of Biochemical and Molecular Markers of Early Aging in Childhood Cancer Survivors
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Ravera, Silvia, primary, Vigliarolo, Tiziana, additional, Bruno, Silvia, additional, Morandi, Fabio, additional, Marimpietri, Danilo, additional, Sabatini, Federica, additional, Dagnino, Monica, additional, Petretto, Andrea, additional, Bartolucci, Martina, additional, Muraca, Monica, additional, Biasin, Eleonora, additional, Haupt, Riccardo, additional, Zecca, Marco, additional, Fagioli, Franca, additional, Cilloni, Daniela, additional, Podestà, Marina, additional, and Frassoni, Francesco, additional
- Published
- 2021
- Full Text
- View/download PDF
38. Coronary artery disease surveillance among childhood, adolescent and young adult cancer survivors: A systematic review and recommendations from the International Late Effects of Childhood Cancer Guideline Harmonization Group
- Author
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van Dalen, Elvira C., primary, Mulder, Renée L., additional, Suh, Eugene, additional, Ehrhardt, Matthew J., additional, Aune, Gregory J., additional, Bardi, Edit, additional, Benson, Bradley J., additional, Bergler-Klein, Jutta, additional, Chen, Ming H., additional, Frey, Eva, additional, Hennewig, Ulrike, additional, Lockwood, Liane, additional, Martinsson, Ulla, additional, Muraca, Monica, additional, van der Pal, Helena, additional, Plummer, Chris, additional, Scheinemann, Katrin, additional, Schindera, Christina, additional, Tonorezos, Emily S., additional, Wallace, W. Hamish, additional, Constine, Louis S., additional, Skinner, Roderick, additional, Hudson, Melissa M., additional, Kremer, Leontien C.M., additional, Levitt, Gill, additional, and Mulrooney, Daniel A., additional
- Published
- 2021
- Full Text
- View/download PDF
39. Facing Thyroid Nodules in Paediatric Patients Previously Treated with Radiotherapy for Non-Thyroidal Cancers: Are Adult Ultrasound Risk Stratification Systems Reliable?
- Author
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Piccardo, Arnoldo, primary, Fiz, Francesco, additional, Bottoni, Gianluca, additional, De Luca, Camilla, additional, Massollo, Michela, additional, Catrambone, Ugo, additional, Foppiani, Luca, additional, Muraca, Monica, additional, Garaventa, Alberto, additional, and Trimboli, Pierpaolo, additional
- Published
- 2021
- Full Text
- View/download PDF
40. The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers
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van Kalsbeek, Rebecca J., primary, van der Pal, Helena J.H., additional, Hjorth, Lars, additional, Winther, Jeanette F., additional, Michel, Gisela, additional, Haupt, Riccardo, additional, Uyttebroeck, Anne, additional, O'Brien, Kylie, additional, Kepakova, Katerina, additional, Follin, Cecilia, additional, Muraca, Monica, additional, Kepak, Tomas, additional, Araujo-Soares, Vera, additional, Bardi, Edit, additional, Blondeel, Anne, additional, Bouwman, Eline, additional, Brown, Morven C., additional, Frederiksen, Line E., additional, Essiaf, Samira, additional, Hermens, Rosella P.M.G., additional, Kienesberger, Anita, additional, Korevaar, Joke C., additional, Mader, Luzius, additional, Mangelschots, Marlies, additional, Mulder, Renée L., additional, van den Oever, Selina, additional, Rijken, Mieke, additional, Roser, Katharina, additional, Skinner, Rod, additional, Pluijm, Saskia M.F., additional, Loonen, Jacqueline J., additional, Kremer, Leontien C.M., additional, Van der Pal, Helena J.H., additional, van Kalsbeek, Rebecca J., additional, Van den Oever, Selina R., additional, Eriksson, Lill, additional, Relander, Thomas, additional, Engellau, Jacob, additional, Fjordén, Karin, additional, Bogefors, Karolina, additional, Holmqvist, Anna Säll fors, additional, Nicolas, Brigitte, additional, Bagnasco, Francesca, additional, Benvenuto, Marina, additional, Aulicino, Anna, additional, Laudisi, Luca, additional, Hrstkova, Hana, additional, Bajciova, Viera, additional, Holikova, Marta, additional, Strublova, Lucie, additional, Renard, Marleen, additional, Jacobs, Sandra, additional, Segers, Heidi, additional, Van Helvoirt, Monique, additional, Winther, Jeanette Falck, additional, Frederiksen, Line Elmerdahl, additional, Andersen, Elisabeth Anne Wreford, additional, Boes, Stefan, additional, Loonen, Jacqueline, additional, Hermens, Rosella, additional, Göttgens, Irene, additional, Stollman, Iridi, additional, Penson, Adriaan, additional, Skinner, Roderick, additional, Sciberras, William, additional, Korevaar, Joke, additional, Den Hartogh, Jaap, additional, Gsell, Hannah, additional, Schneider, Carina, additional, Hartogh, Jaap den, additional, and Te Dorsthorst, Jeroen, additional
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- 2021
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41. The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers
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van Kalsbeek, Rebecca J., van der Pal, Helena J.H., Hjorthc, Lars, Falck Winther, Jeanette, Michel, Gisela, Haupt, Riccardo, Uyttebroeck, Anne, O'Brien, Kylie, Kepakova, Katerina, Follin, Cecilia, Muraca, Monica, Kepakj, Tomas, Araujo-Soares, Vera, Bardi, Edit, Blondeel, Anne, Bouwman, Eline, Brown, Morven C., Elmerdahl Frederiksend, Line, Essiaf, Samira, Hermens, Rosella P.M.G., Kienesberger, Anita, Korevaar, Joke C., Roser, Katharina, Skinner, Rod, Pluijma, Saskia M.F., Loonen, Jacqueline J., and Kremer, Leontien C.M.
- Subjects
humanities - Abstract
Background The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions.
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- 2021
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42. Coronary artery disease surveillance among childhood, adolescent and young adult cancer survivors : A systematic review and recommendations from the International Late Effects of Childhood Cancer Guideline Harmonization Group
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van Dalen, Elvira C., Mulder, Renee L., Suh, Eugene, Ehrhardt, Matthew J., Aune, Gregory J., Bardi, Edit, Benson, Bradley J., Bergler-Klein, Jutta, Chen, Ming H., Frey, Eva, Hennewig, Ulrike, Lockwood, Liane, Martinsson, Ulla, Muraca, Monica, Pal, Helena van der, Plummer, Chris, Scheinemann, Katrin, Schindera, Christina, Tonorezos, Emily S., Wallace, W. Hamish, Constine, Louis S., Skinner, Roderick, Hudson, Melissa M., Kremer, Leontien C. M., Levitt, Gill, Mulrooney, Daniel A., van Dalen, Elvira C., Mulder, Renee L., Suh, Eugene, Ehrhardt, Matthew J., Aune, Gregory J., Bardi, Edit, Benson, Bradley J., Bergler-Klein, Jutta, Chen, Ming H., Frey, Eva, Hennewig, Ulrike, Lockwood, Liane, Martinsson, Ulla, Muraca, Monica, Pal, Helena van der, Plummer, Chris, Scheinemann, Katrin, Schindera, Christina, Tonorezos, Emily S., Wallace, W. Hamish, Constine, Louis S., Skinner, Roderick, Hudson, Melissa M., Kremer, Leontien C. M., Levitt, Gill, and Mulrooney, Daniel A.
- Abstract
Background: Coronary artery disease (CAD) is a concerning late outcome for cancer survivors. However, uniform surveillance guidelines are lacking. Aim: To harmonise international recommendations for CAD surveillance for survivors of childhood, adolescent and young adult (CAYA) cancers. Methods: A systematic literature review was performed and evidence graded using the Grading of Recommendations, Assessment, Development and Evaluation criteria. Eligibility included English language studies, a minimum of 20 off-therapy cancer survivors assessed for CAD, and 75% diagnosed prior to age 35 years. All study designs were included, and a multidisciplinary guideline panel formulated and graded recommendations. Results: 32 of 522 identified articles met eligibility criteria. The prevalence of CAD ranged from 0 to 72% and was significantly increased compared to control populations. The risk of CAD was increased among survivors who received radiotherapy exposing the heart, especially at doses >15 Gy (moderate-quality evidence). The guideline panel agreed that healthcare providers and CAYA cancer survivors treated with radiotherapy exposing the heart should be counselled about the increased risk for premature CAD. While the evidence is insufficient to support primary screening, monitoring and early management of modifiable cardiovascular risk factors are recommended. Initiation and frequency of surveillance should be based on the intensity of treatment exposures, family history, and presence of co-morbidities but at least by age 40 years and at a minimum of every 5 years. All were strong recommendations. Conclusion: These systematically assessed and harmonised recommendations for CAD surveillance will inform care and guide research concerning this critical outcome for CAYA cancer survivors.
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- 2021
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43. European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer
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Zorg en O&O, van Kalsbeek, Rebecca J., van der Pal, Helena J. H., Kremer, Leontien C. M., Bardi, Edit, Brown, Morven C., Effeney, Rachel, Winther, Jeanette F., Follin, Cecilia, den Hartogh, Jaap, Haupt, Riccardo, Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Levitt, Gill, Loonen, Jacqueline J., Mangelschots, Marlies, Muraca, Monica, Renard, Marleen, Sabic, Harun, Schneider, Carina U., Uyttebroeck, Anne, Skinner, Roderick, Mulder, Renee L., Zorg en O&O, van Kalsbeek, Rebecca J., van der Pal, Helena J. H., Kremer, Leontien C. M., Bardi, Edit, Brown, Morven C., Effeney, Rachel, Winther, Jeanette F., Follin, Cecilia, den Hartogh, Jaap, Haupt, Riccardo, Hjorth, Lars, Kepak, Tomas, Kepakova, Katerina, Levitt, Gill, Loonen, Jacqueline J., Mangelschots, Marlies, Muraca, Monica, Renard, Marleen, Sabic, Harun, Schneider, Carina U., Uyttebroeck, Anne, Skinner, Roderick, and Mulder, Renee L.
- Published
- 2021
44. Effect of Genetic Variation in CYP450 on Gonadal Impairment in a European Cohort of Female Childhood Cancer Survivors, Based on a Candidate Gene Approach: Results from the PanCareLIFE Study
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SCT patientenzorg, MS VPG/Gynaecologie, Child Health, Cancer, van der Perk, M E Madeleine, Broer, Linda, Yasui, Yutaka, Robison, Leslie L, Hudson, Melissa M, Laven, Joop S E, van der Pal, Helena J, Tissing, Wim J E, Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J L, de Vries, Andrica C H, Lambalk, Cornelis B, Overbeek, Annelies, Loonen, Jacqueline J, Beerendonk, Catharina C M, Byrne, Julianne, Berger, Claire, Clemens, Eva, Dirksen, Uta, Falck Winther, Jeanette, Fosså, Sophie D, Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Krijthe, Jesse H, Kremer, Leontien C M, Brooke, Russell J, Baedke, Jessica L, van Schaik, Ron H N, van den Anker, John N, Uitterlinden, André G, Bos, Annelies M E, van Leeuwen, Flora E, van Dulmen-den Broeder, Eline, van der Kooi, Anne-Lotte L F, van den Heuvel-Eibrink, Marry M, On Behalf Of The PanCareLIFE Consortium, SCT patientenzorg, MS VPG/Gynaecologie, Child Health, Cancer, van der Perk, M E Madeleine, Broer, Linda, Yasui, Yutaka, Robison, Leslie L, Hudson, Melissa M, Laven, Joop S E, van der Pal, Helena J, Tissing, Wim J E, Versluys, Birgitta, Bresters, Dorine, Kaspers, Gertjan J L, de Vries, Andrica C H, Lambalk, Cornelis B, Overbeek, Annelies, Loonen, Jacqueline J, Beerendonk, Catharina C M, Byrne, Julianne, Berger, Claire, Clemens, Eva, Dirksen, Uta, Falck Winther, Jeanette, Fosså, Sophie D, Grabow, Desiree, Muraca, Monica, Kaiser, Melanie, Kepák, Tomáš, Kruseova, Jarmila, Modan-Moses, Dalit, Spix, Claudia, Zolk, Oliver, Kaatsch, Peter, Krijthe, Jesse H, Kremer, Leontien C M, Brooke, Russell J, Baedke, Jessica L, van Schaik, Ron H N, van den Anker, John N, Uitterlinden, André G, Bos, Annelies M E, van Leeuwen, Flora E, van Dulmen-den Broeder, Eline, van der Kooi, Anne-Lotte L F, van den Heuvel-Eibrink, Marry M, and On Behalf Of The PanCareLIFE Consortium
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- 2021
45. European Healthcare Professionals’ Perceived Barriers and Facilitators to Provision of Health Behavior Support for Childhood Cancer Survivors: A Qualitative PanCareFollowUp Study
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Bouwman, Eline, primary, Pluijm, Saskia M.F., additional, Stollman, Iridi, additional, Araujo-Soares, Vera, additional, Blijlevens, Nicole M.A., additional, Follin, Cecilia, additional, Winther, Jeanette Falck, additional, Hjorth, Lars, additional, Kepak, Tomas, additional, Kepakova, Katerina, additional, Kremer, Leontien C.M., additional, Muraca, Monica, additional, van der Pal, Helena J.H., additional, Schneider, Carina, additional, Uyttebroeck, Anne, additional, Skinner, Rod, additional, Vercruysse, Gertrui, additional, Brown, Morven C., additional, Hermens, Rosella P.M.G., additional, and Loonen, Jacqueline J., additional
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- 2021
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46. Guidance regarding COVID‐19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group
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Verbruggen, Lisanne C., primary, Wang, Yuehan, additional, Armenian, Saro H., additional, Ehrhardt, Matthew J., additional, van der Pal, Helena J.H., additional, van Dalen, Elvira C., additional, van As, Jorrit W., additional, Bardi, Edit, additional, Baust, Katja, additional, Berger, Claire, additional, Castagnola, Elio, additional, Devine, Katie A., additional, Gebauer, Judith, additional, Marchak, Jordan Gilleland, additional, Glaser, Adam W., additional, Groll, Andreas H., additional, Haeusler, Gabrielle M., additional, den Hartogh, Jaap, additional, Haupt, Riccardo, additional, Hjorth, Lars, additional, Kato, Miho, additional, Kepák, Tomáš, additional, Koopman, Maria M.W. (Rianne), additional, Langer, Thorsten, additional, Maeda, Miho, additional, Michel, Gisela, additional, Muraca, Monica, additional, Nathan, Paul C., additional, van den Oever, Selina R., additional, Pavasovic, Vesna, additional, Sato, Satomi, additional, Schulte, Fiona, additional, Sung, Lillian, additional, Tissing, Wim, additional, Uyttebroeck, Anne, additional, Mulder, Renée L., additional, Kuehni, Claudia, additional, Skinner, Roderick, additional, Hudson, Melissa M., additional, and Kremer, Leontien C.M., additional
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- 2020
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47. Risk of subsequent primary leukaemias among 69,460 five-year survivors of childhood cancer diagnosed from 1940 to 2008 in Europe: A cohort study within PanCareSurFup
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Allodji, Rodrigue S., primary, Hawkins, Mike M., additional, Bright, Chloe J., additional, Fidler-Benaoudia, Miranda M., additional, Winter, David L., additional, Alessi, Daniela, additional, Fresneau, Brice, additional, Journy, Neige, additional, Morsellino, Vera, additional, Bárdi, Edit, additional, Bautz, Andrea, additional, Byrne, Julianne, additional, Feijen, Elizabeth (Lieke) AM., additional, Teepen, Jop C., additional, Vu-Bezin, Giao, additional, Rubino, Carole, additional, Garwicz, Stanislaw, additional, Grabow, Desiree, additional, Gudmundsdottir, Thorgerdur, additional, Guha, Joyeeta, additional, Hau, Eva-Maria, additional, Jankovic, Momcilo, additional, Kaatsch, Peter, additional, Kaiser, Melanie, additional, Linge, Helena, additional, Muraca, Monica, additional, Llanas, Damien, additional, Veres, Cristina, additional, Øfstaas, Hilde, additional, Diallo, Ibrahima, additional, Mansouri, Imene, additional, Ronckers, Cecile M., additional, Skinner, Roderick, additional, Terenziani, Monica, additional, Wesenberg, Finn, additional, Wiebe, Thomas, additional, Sacerdote, Carlotta, additional, Jakab, Zsuzsanna, additional, Haupt, Riccardo, additional, Lähteenmäki, Päivi, additional, Zaletel, Lorna Zadravec, additional, Kuehni, Claudia E., additional, Winther, Jeanette F., additional, Michel, Gisela, additional, Kremer, Leontien C.M., additional, Hjorth, Lars, additional, Haddy, Nadia, additional, de Vathaire, Florent, additional, and Reulen, Raoul C., additional
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- 2019
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48. A Review of Infants With Localized Neuroblastoma That Evolve to Stage 4s Disease.
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Caroleo, Anna M., De Bernardi, Bruno, Avanzini, Stefano, Gigliotti, Anna R., Muraca, Monica, Pota, Elvira, Provenzi, Massimo, Mazzocco, Katia, Sementa, Angela R., Granata, Claudio, and Sorrentino, Stefania
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- 2020
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49. The ‘Survivorship Passport’ for childhood cancer survivors
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Haupt, Riccardo, primary, Essiaf, Samira, additional, Dellacasa, Chiara, additional, Ronckers, Cecile M., additional, Caruso, Silvia, additional, Sugden, Elaine, additional, Zadravec Zaletel, Lorna, additional, Muraca, Monica, additional, Morsellino, Vera, additional, Kienesberger, Anita, additional, Blondeel, Anne, additional, Saraceno, Davide, additional, Ortali, Maurizio, additional, Kremer, Leontien C.M., additional, Skinner, Roderick, additional, Roganovic, Jelena, additional, Bagnasco, Francesca, additional, Levitt, Gill A., additional, De Rosa, Marisa, additional, Schrappe, Martin, additional, Hjorth, Lars, additional, Ladenstein, Ruth, additional, Menoni, Stefania, additional, Bergeron, Christophe, additional, den Hartogh, Jaap, additional, Karner, Sabine, additional, Fresneau, Brice, additional, Jones, Kathy Pritchard, additional, Vassal, Gilles, additional, Bode, Gerlind, additional, Frey, Eva, additional, Hennewig, Ulrike, additional, Iris, Maia, additional, Jakab, Zsuzsanna, additional, Kosmidis, Helen, additional, Kriviene, Izolda, additional, Marquez, Catalina, additional, Modan-Moses, Dalit, additional, Panasiuk, Anna, additional, and Vetsch, Janine, additional
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- 2018
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50. Iodine deficiency and its consequences for cognitive and psychomotor development of children
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Gastaldi, Roberto, primary, Muraca, Monica, additional, Beltramo, Agnese, additional, and Poggi, Elena, additional
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- 2014
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