39 results on '"Need for support"'
Search Results
2. Climate worry: associations with functional impairment, pro-environmental behaviors and perceived need for support.
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Lenhard, Fabian, Fernández de la Cruz, Lorena, Wahlund, Tove, Andersson, Erik, Åhlén, Johan, Fuso Nerini, Francesco, Akay, Haluk, and Mataix-Cols, David
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GREEN behavior ,SLEEP ,STRUCTURAL equation modeling ,SOCIAL adjustment ,MENTAL depression - Abstract
Copyright of BMC Psychology is the property of BioMed Central and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2024
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3. Einfluss von Faktoren auf die Resilienz und Belastung pflegender Angehöriger (FARBE) – Fragenbogen zur Angehörigenresilienz und -belastung.
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Lübben, Alena, Peters, Lara, Przysucha, Mareike, and Büscher, Andreas
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MULTIPLE regression analysis ,CAREGIVERS ,SOCIAL support ,SOCIAL networks ,DEMOGRAPHIC change - Abstract
Copyright of Prävention und Gesundheitsförderung is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2024
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4. Climate worry: associations with functional impairment, pro-environmental behaviors and perceived need for support
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Fabian Lenhard, Lorena Fernández de la Cruz, Tove Wahlund, Erik Andersson, Johan Åhlén, Francesco Fuso Nerini, Haluk Akay, and David Mataix-Cols
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Climate change ,Climate worry ,Climate anxiety ,Pro-environmental behaviors ,Impairment ,Need for support ,Psychology ,BF1-990 - Abstract
Abstract Background A large proportion of individuals experience functional impairment in everyday life due to climate worry. However, the current understanding of this functional impairment is limited by the use of suboptimal measures. Furthermore, it is not known whether functional impairment due to climate worry affects pro-environmental behaviors (PEBs) or whether individuals who experience such impairment perceive a need for support. The aims of the current study were (1) to extend previous research using an established measure of functional impairment (the Work and Social Adjustment Scale, WSAS), (2) to explore the associations between climate worry, functional impairment, and PEBs, and (3) to describe the characteristics and the perceived need for support of individuals with functional impairment due to climate worry. Methods A cross-sectional survey targeting adult individuals who experience climate worry. Participants were recruited nationally in Sweden between September and October 2022. The survey included measures of climate worry severity, climate worry frequency, functional impairment, PEBs, depressive symptoms, sleep problems, and questions related to perceived need for support. Results A total of 1221 adults (75% women, mean age 46.3 years) were included in the analyses. Multivariate structural equation modeling revealed that climate worry severity and frequency were significantly associated with PEBs (β = 0.34 and β = 0.45, respectively). Climate worry frequency was associated with functional impairment (β = 0.41). Functional impairment was only marginally associated with PEBs (β = 0.05). Approximately 40% of the sample (n = 484) reported a high frequency and high severity of climate worry. Among these, one-third (n = 153) scored above the cutoff for significant impairment on the WSAS. Individuals in this group (high severity and frequency of climate worry as well as significant functional impairment) were more likely to experience depressed mood and sleep problems and were more interested in receiving support, specifically concerning strategies for worry management and sustainable behavior change. Conclusions Using an established measure of functional impairment, we found an association of climate worry with functional impairment and PEBs. Importantly, as there is a perceived need for support in individuals with impairment due to climate worry, interventions targeting this specific subgroup should be developed.
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- 2024
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5. Perceived burden and need for support among caregivers of cancer patients.
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Gjerset, Gunhild M., Kiserud, Cecilie E., Wisløff, Torbjørn, McCarthy, Jane B., and Thorsen, Lene
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SERVICES for caregivers , *HEALTH education , *EVALUATION of human services programs , *BURDEN of care , *CANCER patients , *PSYCHOLOGY of caregivers , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *RESEARCH funding , *PATIENT education , *DATA analysis software - Abstract
The aims of this study were to examine (1) the perceived burden among caregivers and identify those in risk of high burden and (2) the need for support among caregivers and identify associated factors. Cancer patients who participated in an educational program at the Montebello Center (MBC) in Norway between May 2021 and February 2022 were asked to invite a caregiver to answer a questionnaire. The caregiving burden was assessed with the Caregivers Reaction Assessment (CRA) that consists of 24 questions scored from 1 (strongly disagree) to 5 (strongly agree), covering five domains. A mean sum score was calculated for each domain. Higher subscale scores indicate higher levels of burden, except for caregiver esteem where a high score indicates a low burden. Need for support was assessed with 13 questions. Of 464 invitations, 185 caregivers responded (response 40%), median age was 58.0 years and 58% were male. Caregiver burden mean scores were: 2.6 (SD 1.03) for Impact on schedule, 2.1 (SD 0.79) for Lack of family support, 2.1 (SD 0.76) for Impact on health, 2.0 (SD 0.86) for Impact on finances, and 4.2 (SD 0.47) for Caregiver esteem. Female caregivers, younger, higher education, having comorbidities, caring for patients having recurrence of cancer, and shorter time since diagnosis were associated with higher burden measured on individual subscales of the CRA. Most reported needs were information about: cancer, late effects and rehabilitation services and support from peers and professionals to cope with the new situation. Younger, caregiver comorbidity and recurrence of cancer of the patient were associated with more needs. The results indicate that caregivers of cancer patients participating at the MBC report moderate caregiver burden, however, numerous caregivers reported need for support within several areas. Our findings need to be confirmed in a larger unselected group. [ABSTRACT FROM AUTHOR]
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- 2023
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6. Elterliche Belastungen, Unterstützungsbedarf und Ressourcen nach fast zwei Jahren COVID-19-Pandemie: Ergebnisse einer repräsentativen Studie in Deutschland.
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Engelke, Lara, Winter, Sibylle M., Renneberg, Babette, and Calvano, Claudia
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COVID-19 pandemic ,CHILDREN'S health ,PARENTS ,POLITICAL communication ,SOCIAL interaction ,MINORS - Abstract
Copyright of Praxis der Kinderpsychologie und Kinderpsychiatrie is the property of Vandenhoeck & Ruprecht GmbH & Co. KG and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2023
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7. Opiskelijoiden aineelliset ja kokemukselliset etä opiskeluympäristöt Covid-19-pandemian aikana.
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Upola, Solja, Väätäjä, Janne, Paksuniemi, Merja, Korte, Satu-Maarit, Lakkala, Suvi, and Keskitalo, Pigga
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Copyright of Journal of Professional & Vocational Education (JPVE) / Ammattikasvatuksen Aikakauskirja is the property of Finnish Vocational Education Research Association and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2023
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8. Australian first-year teachers need support when transitioning to work during the Covid-19 Pandemic.
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Zixi Liang and Hongzhi Zhang
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COVID-19 pandemic ,EDUCATIONAL leadership ,SPECIAL needs students ,TEACHERS ,THEMATIC analysis - Abstract
The Covid-19 pandemic has considerably disrupted teacher education. In Australian, the placement days required to meet the Australian Institute for Teaching and School Leadership (AITSL) standards were reduced for the 2020 final-year graduate teachers. Simultaneously, the Covid-19 disruptions posed significant challenges for first-year teachers. This study investigated how the Covid-19 pandemic shaped three first-year teachers' needs for support in transitioning into teaching in Australian schools. Data for the study were generated through semi-structured Zoom interviews and analysed using thematic analysis. The findings revealed a tension between the unpredictability of the classroom realities and insufficient practical skills. The situated learning experiences were disrupted to varying degrees, affecting the development of close relationships and reducing the possibility of frequent interactions and productive conversations with other community members. First-year teachers need support handling workloads, managing students' behaviour and differentiating instructional strategies for students with special needs. The findings of this study emphasis the urgent need to embed a comprehensive school support structure to facilitate first-year teachers in their transition to the teaching workforce. [ABSTRACT FROM AUTHOR]
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- 2023
9. Towards OPtimal TIming and Method for promoting sUstained adherence to lifestyle and body weight recommendations in postMenopausal breast cancer survivors (the OPTIMUM-study): protocol for a longitudinal mixed-method study
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Sandra J. M. van Cappellen-van Maldegem, Floortje Mols, Nicole Horevoorts, Anja de Kruif, Laurien M. Buffart, Dounya Schoormans, Hester Trompetter, Sandra Beijer, Nicole P. M. Ezendam, Michiel de Boer, Renate Winkels, Ellen Kampman, Jantine Schuit, Lonneke van de Poll-Franse, Jacob C. Seidell, Meeke Hoedjes, and the OPTIMUM research team
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Postmenopausal breast cancer survivors ,Body weight ,Lifestyle ,Stages of change ,Need for support ,Behavior Change Techniques ,Gynecology and obstetrics ,RG1-991 ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background The majority of postmenopausal breast cancer (PMBC) survivors do not adhere to lifestyle recommendations and have excess body weight. In this group, this is associated with poorer health-related quality of life and an increased risk of type II diabetes mellitus, cardiovascular disease, second primary cancers, cancer recurrences, and mortality. Gaining and maintaining a healthy lifestyle and body composition is therefore important. It is unknown when and how sustained adherence to these recommendations can be promoted optimally in PMBC survivors. Therefore, the OPTIMUM study aims to identify the optimal timing and method for promoting sustained adherence to lifestyle and body weight recommendations in PMBC survivors. Methods The OPTIMUM-study has a mixed-methods design. To assess optimal timing, a longitudinal observational study will be conducted among approximately 1000 PMBC survivors. The primary outcomes are adherence to lifestyle and body weight recommendations, readiness for change, and need for support. Questionnaires will be administered at 4–6 months after cancer diagnosis (wave 1: during treatment and retrospectively before diagnosis), 1 year after diagnosis (wave 2: after completion of initial treatment), and 1.5 years after diagnosis (wave 3: during follow-up). Wave 2 and 3 include blood sampling, and either wearing an accelerometer for 7 days or completing a 3-day online food diary (randomly assigned at hospital level). To assess the optimal method, behavioural determinants of the primary outcomes will be matched with Behavior Change Techniques using the Behaviour Change Technique Taxonomy. Qualitative research methods will be used to explore perceptions, needs and preferences of PMBC survivors (semi-structured interviews, focus groups) and health care providers (Delphi study). Topics include perceptions on optimal timing to promote adherence; facilitators and motivators of, and barriers towards (sustained) adherence to recommendations; and acceptability of the selected methods. Discussion The OPTIMUM study aims to gain scientific knowledge on when and how to promote sustained adherence to lifestyle and body weight recommendations among PBMC survivors. This knowledge can be incorporated into guidelines for tailored promotion in clinical practice to improve health outcomes.
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- 2021
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10. Die Methode der „Rathausgespräche": ein Studienprotokoll.
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Wiloth, Stefanie, Kramer, Birgit, Kiefer, Anna, Wittek, Maren, Böttner, Stephanie, Fraas, Claudia, and Kruse, Andreas
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Copyright of Zeitschrift für Gerontologie und Geriatrie is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2021
- Full Text
- View/download PDF
11. Towards OPtimal TIming and Method for promoting sUstained adherence to lifestyle and body weight recommendations in postMenopausal breast cancer survivors (the OPTIMUM-study): protocol for a longitudinal mixed-method study.
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van Cappellen-van Maldegem, Sandra J. M., Mols, Floortje, Horevoorts, Nicole, de Kruif, Anja, Buffart, Laurien M., Schoormans, Dounya, Trompetter, Hester, Beijer, Sandra, Ezendam, Nicole P. M., de Boer, Michiel, Winkels, Renate, Kampman, Ellen, Schuit, Jantine, van de Poll-Franse, Lonneke, Seidell, Jacob C., Hoedjes, Meeke, and OPTIMUM research team
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BREAST cancer ,BODY weight ,MEDICAL personnel ,CANCER survivors ,SCIENTIFIC knowledge ,BREAST tumor treatment ,LIFESTYLES ,RESEARCH ,MONONUCLEAR leukocytes ,RESEARCH methodology ,RETROSPECTIVE studies ,CANCER relapse ,EVALUATION research ,TYPE 2 diabetes ,COMPARATIVE studies ,QUALITY of life ,POSTMENOPAUSE ,EXERCISE - Abstract
Background: The majority of postmenopausal breast cancer (PMBC) survivors do not adhere to lifestyle recommendations and have excess body weight. In this group, this is associated with poorer health-related quality of life and an increased risk of type II diabetes mellitus, cardiovascular disease, second primary cancers, cancer recurrences, and mortality. Gaining and maintaining a healthy lifestyle and body composition is therefore important. It is unknown when and how sustained adherence to these recommendations can be promoted optimally in PMBC survivors. Therefore, the OPTIMUM study aims to identify the optimal timing and method for promoting sustained adherence to lifestyle and body weight recommendations in PMBC survivors.Methods: The OPTIMUM-study has a mixed-methods design. To assess optimal timing, a longitudinal observational study will be conducted among approximately 1000 PMBC survivors. The primary outcomes are adherence to lifestyle and body weight recommendations, readiness for change, and need for support. Questionnaires will be administered at 4-6 months after cancer diagnosis (wave 1: during treatment and retrospectively before diagnosis), 1 year after diagnosis (wave 2: after completion of initial treatment), and 1.5 years after diagnosis (wave 3: during follow-up). Wave 2 and 3 include blood sampling, and either wearing an accelerometer for 7 days or completing a 3-day online food diary (randomly assigned at hospital level). To assess the optimal method, behavioural determinants of the primary outcomes will be matched with Behavior Change Techniques using the Behaviour Change Technique Taxonomy. Qualitative research methods will be used to explore perceptions, needs and preferences of PMBC survivors (semi-structured interviews, focus groups) and health care providers (Delphi study). Topics include perceptions on optimal timing to promote adherence; facilitators and motivators of, and barriers towards (sustained) adherence to recommendations; and acceptability of the selected methods.Discussion: The OPTIMUM study aims to gain scientific knowledge on when and how to promote sustained adherence to lifestyle and body weight recommendations among PBMC survivors. This knowledge can be incorporated into guidelines for tailored promotion in clinical practice to improve health outcomes. [ABSTRACT FROM AUTHOR]- Published
- 2021
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12. Anxiety and need for support of college students during the SARS-CoV-2 pandemic: An exploratory study
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A. Torres, R. Melo, F. Príncipe, A. Ferreira, and A. Quesado
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SARS-CoV-2 ,Anxiety ,need for support ,College students ,Psychiatry ,RC435-571 - Abstract
Introduction During the pandemic state, college students are exposed to additional stressful factors, including but not limited to: fear of being infected; fear of infecting a significant person; deal with a new reality of economic uncertainty; challenges of distance education; new rules in face-to-face classes; restrictions on access to internships and higher demanding in internships. Objectives This exploratory study aims to assess levels of anxiety and the perception of the need for support of students of a Portuguese Higher Education Institution (HEI). Methods An exploratory study was developed, on the return of students to the presential classes after the academic lockdown. It was spread out an email for all students with a link for an online form, which includes sociodemographic questions, a screening question of the anxiety level, and the need for support level (rating scales 0-10). Results It was obtained 36 answers from mostly female students (92%) with 17 to 21 years old (67%). Answers present an average anxiety level of 5.4 (Min=1; Max=9; SD=2.23), with 58% of answers with a score of anxiety level of 5 or higher. The need for support average was 3.7 (Min=1; Max=9; SD=2.23), with 33% of answers with a score of 5 or higher. Conclusions It is necessary to continuously monitor the anxiety level and the need for support of college students during the SARS-Cov-2 pandemic. It is similarly relevant to have responses of HEI to promote mental health and to answer to the high levels of students’ anxiety and needs for support during the pandemic.
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- 2021
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13. Mieux articuler ses croyances et ses pratiques en matière d'inclusion grâce au soutien d'un dispositif ULIS : perspectives et limites.
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KHEROUFI-ANDRIOT, Olivier
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SECONDARY school teachers , *HIGH school teachers , *INTELLECTUAL disabilities , *CHILDREN with intellectual disabilities , *INTERDISCIPLINARY research , *PEOPLE with disabilities , *TEENAGERS - Abstract
A French secondary school teacher is committed to the inclusion of adolescents with intellectual disabilities, and aligning her beliefs with her inclusion practices is by no means obvious. She nevertheless succeeds with the support of a school adaptation system at her college, and the results of our field survey, which took the form of a socio-anthropological approach centered on the case study, help to better understand how and why the support she receives from this system allows her to align her beliefs and practices in terms of inclusion. Her beliefs about the education of adolescents with intellectual disabilities are identified, and her practices and the support she receives from the ULIS system are described, and related to her beliefs about inclusion. Our results, which are based on the articulation of three theoretical approaches (multidisciplinary analysis of work situations, clinical activity and constructive ergonomics) allow, in the context of this case study, to better understand the construction of a link between beliefs and practices, but nevertheless questions the support provided by this device for the inclusion of French teachers in the inclusive paradigm. [ABSTRACT FROM AUTHOR]
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- 2021
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14. Robotische Assistenz bei den Aktivitäten des täglichen Lebens am Beispiel der Nahrungsaufnahme.
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Klein, Barbara and Baumeister, Annalies
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Copyright of Zeitschrift für Gerontologie und Geriatrie is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2020
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15. Clinical characteristics and quality of life, depression, and anxiety in adults with neurofibromatosis type 1: A nationwide study.
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Doser, Karoline, Andersen, Elisabeth Wreford, Kenborg, Line, Dalton, Susanne Oksbjerg, Jepsen, Jens Richardt Møllegaard, Krøyer, Anja, Østergaard, John, Hove, Hanne, Sørensen, Sven Asger, Johansen, Christoffer, Mulvihill, John, Winther, Jeanette Falck, and Bidstrup, Pernille Envold
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Neurofibromatosis type 1 (NF1) is a genetic condition characterized by numerous somatic manifestations. The psychosocial burden in adults has rarely been studied. We examined the prevalence of self‐reported impairment of quality of life (QoL), symptoms of anxiety and depression and need for support, associated with disease severity and visibility. We conducted a nationwide cross‐sectional study of all 467 adults with NF1 diagnosed between 1977 and 2016 at one of the two national centers for rare diseases in Denmark. A total of 244 (56% response rate) completed a questionnaire that included standard measures of QoL, symptoms of depression and anxiety, indicators of disease‐related severity, visibility, and need for professional support. Associations between disease severity and visibility and psychosocial burden were analyzed in descriptive and multivariate models. We observed impaired QoL (mean = 81.3; 95% CI, 76.2; 86.4); 19% reported symptoms of depression (mean = 5.7; SD = 5.4), and 15% reported anxiety (mean = 5.1; SD = 5.2) at a clinical level. Adults with NF1 also reported requiring professional support for physical, psychological, and work‐related problems. Disease severity and (partly) visibility were significantly (p <.0001) associated with psychosocial well‐being and a requirement for support. This study provides new understanding of the factors associated with impaired QoL, indicating that follow‐up care should be optimized into adult life. [ABSTRACT FROM AUTHOR]
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- 2020
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16. Ältere Patienten in der onkologischen Rehabilitation: Besonderheiten der psychosozialen Rehabilitation von Patienten im Rentenalter.
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Glander, Heike and Schulte, Thomas
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Copyright of Der Onkologe is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2019
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17. Factors associated with DSM-5 severity level ratings for autism spectrum disorder.
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Mazurek, Micah O., Lu, Frances, Macklin, Eric A., and Handen, Benjamin L.
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DIAGNOSIS of autism , *TREATMENT of autism , *AGE distribution , *INTELLECT , *CLASSIFICATION of mental disorders , *STEREOTYPES , *DISABILITIES , *SYMPTOMS - Abstract
The newest edition of the Diagnostic and Statistical Manual of Mental Disorders (5th ed., DSM-5) introduced substantial changes to the diagnostic criteria for autism spectrum disorder, including new severity level ratings for social communication and restricted and repetitive behavior domains. The purpose of this study was to evaluate the use of these new severity ratings and to examine their relation to other measures of severity and clinical features. Participants included 248 children with autism spectrum disorder who received diagnostic evaluations at one of six Autism Treatment Network sites. Higher severity ratings in both domains were associated with younger age, lower intelligence quotient, and greater Autism Diagnostic Observation Schedule-Second Edition domain-specific symptom severity. Greater restricted and repetitive behavior severity was associated with higher parent-reported stereotyped behaviors. Severity ratings were not associated with emotional or behavioral problems. The new DSM-5 severity ratings in both domains were significantly associated with behavioral observations of autism severity but not with measures of other behavioral or emotional symptoms. However, the strong associations between intelligence quotient and DSM-5 severity ratings in both domains suggest that clinicians may be including cognitive functioning in their overall determination of severity. Further research is needed to examine clinician decision-making and interpretation of these specifiers. [ABSTRACT FROM AUTHOR]
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- 2019
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18. Stuðningur við skólastjóra í grunnskólum: Staða og væntingar.
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Róbertsdóttir, Sigurbjörg, Hansen, Börkur, and Björnsdóttir, Amalía
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CAREER changes ,SCHOOL principals ,SCHOOL administration ,RESIGNATION of employees ,SELF-actualization (Psychology) ,MENTORING - Abstract
Copyright of Netla: Online Journal on Pedagogy & Education is the property of University of Iceland, School of Education and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2019
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19. Disability and the Use of Support by Immigrants and Canadian born population in Canada.
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Hansen, Stine, Bruce Newbold, K., and Wilton, Robert
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SERVICES for people with disabilities ,IMMIGRANTS ,IMMIGRATION status - Abstract
Immigrants account for a large proportion of Canada's population. Despite an emphasis on immigrant health issues within the literature, there is surprisingly limited attention given to disability within the immigrant population, although differential prevalence rates between immigrants and the Canadian born population have been noted. The observed differences in prevalence rates by gender and immigrant status raise questions around the use of support services. In this paper, analysis draws on Statistics Canada's 2006 Participation and Activity Limitation Survey (PALS). A mix of descriptive and multivariate techniques are used to explore who provides support, differences in the use of support between immigrants and the Canadian born and need for additional support. The descriptive results suggest that there was a broad parity in terms of the use of support, with immigrants and Canadian born nearly equally likely to use support. Use of support was also greater amongst those with a more severe disability. Multivariate analysis revealed that particular sub-groups of immigrants, and in particular immigrant females, severely disabled immigrants, and some age, income and educational groups were less likely to use support after controlling for other correlates of use. The difficulties confronted by people with disabilities appear to be magnified within the immigrant community, and particularly amongst sub-groups of the immigrant population. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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20. Alzheimer-Demenz: Verlauf und Belastung der Pflegepersonen.
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Hager, K., Henneges, C., Schneider, E., Lieb, M., and Kraemer, S.
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GERAS ist eine internationale Beobachtungsstudie mit Demenzpatienten vom Alzheimer-Typ (AD) und ihren Pflegepersonen im Versorgungsalltag. Es werden die in Deutschland erfassten 18-Monats-Daten vorgestellt. Krankheitsverlauf, medizinische und psychosoziale Folgen sowohl für Patienten als auch Pflegepersonen wurden mittels in der klinischen Versorgung üblichen Instrumente erfasst: Mini-Mental-Status-Test (MMST), Alzheimer’s Disease Assessment Scale (ADAS-Cog14), Alzheimer’s Disease Cooperative Study Activities of Daily Living Inventory (ADCS-ADL), Neuropsychiatric Inventory (NPI-12), Resource Utilization in Dementia (RUD), Zarit Burden Interview (ZBI); Definition des AD-Schweregrad (MMST): 21-26 leicht (lAD), 15-20 moderat (mAD), <15 mittelschwer bis schwer (m/sAD). Bei den 550 Teilnehmern (Mittelwert: 75,2 Jahre, SD [„standard deviation“] 7,6), (lAD [41,5 %], mAD [28,4 %], m/sAD [30,2 %]) verschlechterte sich der MMST nach 18 Monaten bei lAD um −2,4 (Konfidenzintervall [KI] −3,1; −1,7), bei mAD um −3,9 (KI −5,0; −2,8), bei m/sAD um −2,5 (KI −3,5; −1,5), der ADAS-Cog14 um 6,2 (lAD-KI 4,6; 7,8) und 7,1 Punkte (mAD-KI 3,9; 10,3). Veränderungen beim ADCS-ADL-Gesamtwert betrugen −8,4 (KI −10,1; −6,2) für lAD, −12,9 (KI −15,3; −10,4) für mAD, −10,2 Punkte (KI −12,8; −7,7) für m/sAD. Der Leidensdruck der Pflegepersonen (NPI-12) nahm bei lAD um 1,2 (KI −0,2; 2,2), bei mAD um 3,4 (KI 1,8; 5,1) und bei m/sAD um 1,5 Punkte (KI 0,2; 3,3) zu. Der Gesamtzeitaufwand der Pflegepersonen (RUD) betrug zu Beginn 3,1 h/Tag (SD 5,4) für lAD, 6,6 (SD 7,5) für mAD, 12,7 (SD 9,3) für m/sAD. Nach 18 Monaten war bei mAD die Zunahme mit 4,4 (SD 9,4) h/Tag am größten. Die Belastung der Pflegenden (ZBI) nahm am deutlichsten bei mAD mit 7,2 (KI 4,2; 9,7) zu. Antidementiva erhielten 90,7 % der Patienten, 26,6 % Psychopharmaka. [ABSTRACT FROM AUTHOR]
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- 2018
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21. Children with Osteogenesis Imperfecta
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Lalić, Lucca and Krampač-Grljušić, Aleksandra
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predškolski sustav odgoja i obrazovanja ,preschool educational system ,need for support ,DRUŠTVENE ZNANOSTI. Edukacijsko-rehabilitacijske znanosti. Inkluzivna edukacija i rehabilitacija ,osteogenesis imperfecta ,potrebe za podrškom ,SOCIAL SCIENCES. Education/Rehabilitation Sciences. Inclusive Education and Rehabilitation - Abstract
Tema završnog rada Djeca s osteogenesis imperfectom odabrana iz intrinzične motivacije za učenjem o toj dijagnozi jer sam imala radno iskustvo s djetetom oboljelim od staklenih kostiju. U hrvatskoj akademskoj zajednici nedovoljno je predstavljena ova rijetka bolest, a na način opisivanja funkcioniranja i potreba za podrškom. Temeljem navedenoga ukazala se potreba za osvještavanjem svih važnih dionika, koji sudjeluju u kreiranju i pružanju podrške kod ove dijagnoze, o odrednicama koje treba uzeti u obzir pri planiranju i provedbi podrške. Jedan od ključnih dionika u pružanju podrške djeci s osteogenesis imperfectom je predškolski sustav odgoja i obrazovanja. Uključivanje djeteta u predškolski sustav je prva velika prekretnica u životu djeteta i obitelji. Iz tog razloga odgojitelji i stručna služba dječjeg vrtića igraju iznimno važnu ulogu u pružanju podrške i uključivanju djeteta. Osteogenesis imperfecta također je imenovana kao bolest staklenih kostiju, a karakteristike kostiju su da su krhke, oslabljene i lako lomljive te je potreban holistički pristup djetetu radi prevencije dodatnih teškoća ili oštećenja.U ovom radu će se koristiti termin osteogenesis imperfecta. Stručna i znanstvena literatura uvelike olakšava odabir primjerenog pristupa, pružanje potrebne podrške i donošenje ispravnih odluka o adekvatnom didaktičko metodičkom pristupu u radu s djecom s osteogenesis imperfectom. S obzirom da je dostupna znanstvena i stručna literatura pretežito medicinska, u ovom radu ću dati dostupne informacije i približiti dijagnozu odgojiteljima u svrhu pružanja adekvatne podrške od strane stručnjaka i ovoj skupini djece. The topic of the final paper Children with osteogenesis imperfecta was chosen from intrinsic motivation for learning about that diagnosis because I had work experience with a child suffering from brittle bones. In the Croatian academic community this rare desease is insufficiently presented, and in a way of describing the functioning and need for support. Based on the above, there appeared a need to raise awareness of every crucial participant in creating and providing support with this diagnosis, about the facts that should be considered while planning and implementating support. One of the crucial participants in providing support to children with osteogenesis imperfecta is the preschool education system. Including a child in a preschool system is the first big milestone in the life of a child and the family. Because of that reason, the educators and the expert service of the kindergarden play a crucial role in providing support and including the child. Osteogenesis imperfecta is also named as brittle bone desease, and the characteristics of the bones are that they are fragile, weakened and easily breakable, so the holistic approach to a child is needed to prevent additional difficulties or damages. In this paper, the used expression will be osteogenesis imperfecta. The professional and scientific literature greatly easens choosing the adequate approach, providing the needed support and making the right decisions about an adequate didactic and methodic approach in working with children with osteogenesis imperfecta. Considering that the accessible scientific and professional literature is predominantly medical, in this paper I will give accessible information and bring the diagnosis closer to educators, in purpose of providing this group of children the adequate support of professionals.
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- 2022
22. Patients' experiences of their everyday life 14 months after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy - a qualitative follow-up study.
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Leo Swenne, Christine, Jangland, Eva, and Arakelian, Erebouni
- Subjects
- *
ACADEMIC medical centers , *PSYCHOLOGICAL adaptation , *CANCER chemotherapy , *CANCER patients , *CONVALESCENCE , *PATIENT aftercare , *INTERNET , *INTERVIEWING , *LIFE change events , *LONGITUDINAL method , *PATIENT satisfaction , *PERITONEAL cancer , *HEALTH self-care , *THERMOTHERAPY , *QUALITATIVE research , *JUDGMENT sampling , *ACTIVITIES of daily living , *SOCIAL support , *SOCIOECONOMIC factors , *THEMATIC analysis , *TREATMENT effectiveness , *CYTOREDUCTIVE surgery , *REHABILITATION - Abstract
Background Patients with peritoneal carcinomatosis treated with cytoreductive surgery and hyperthermic intraperitoneal chemotherapy have a long recovery process. Aim To describe patients' experiences of their everyday lives after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy. Method A follow-up study with a qualitative, descriptive design. Data were collected by individual, in-depth telephone interviews with 16 patients who had been treated for peritoneal carcinomatosis 14 months earlier at a university hospital in Sweden. The interviews were performed between May and June 2013 and analysed using systematic text condensation. Results Five themes were identified: (i) finding one's new self and relating to the new situation; (ii) the disease making its presence felt through bodily complications or mental fatigue; (iii) worrying about the return of the disease and passing it on to one's children; (iv) experiencing difficulties contacting various care facilities, not having a clear plan for ongoing rehabilitation; and (v) the need for online support through the Internet and counselling for both patients and their family members. Conclusions Despite bodily complications, mental fatigue and worries about the return of the disease, the patient's everyday life was focused on finding his/her new self and adapting to the new circumstances. Difficulties in contacting care facilities and the lack of an ongoing medical and nursing rehabilitation plan called for a need for network support for patients and their families. Clinical relevance After advanced surgery, patients require a continuous medical and nursing rehabilitation plan, and a platform of support such as meetings via social media and Internet which would connect former patients and their families with future patients and their family members. A contact nurse with specific expertise should design an individual rehabilitation plan and continuously identify the individual needs for long-term support. [ABSTRACT FROM AUTHOR]
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- 2017
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23. Experiences and challenges of family caregivers of stroke victims in the home setting
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Alcantara, Valerie
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experience ,pflegende Angehörige [Schlüsselbegriffe] ,Schlaganfall ,Herausforderungen ,Unterstützungsbedarf ,informal caregivers ,Erfahrungen ,need for support ,challenges ,stroke ,family caregivers [Keywords] - Abstract
Einleitung: Der Schlaganfall ist ein Ereignis, welches für Betroffene und ihre pflegenden Angehörigen eine große Lebensveränderung darstellt. Im häuslichen Setting übernehmen die Familienmitglieder der betroffenen Person die neue Rolle als pflegende Angehörige, wobei sie mit großen Herausforderungen und hohen Belastungen konfrontiert sind. Daher ist das Ziel dieser Arbeit zu beschreiben, welche Erfahrungen und welche Herausforderungen pflegende Angehörige von Menschen nach einem Schlaganfall im häuslichen Setting zur Bewältigung ihres Alltags erleben. Methodik: Zur Beantwortung der Forschungsfrage erfolgte eine systematische Literaturrecherche in den elektrischen Datenbanken PubMed, CINAHL und Google Scholar im Zeitraum vom September 2020 bis Anfang Dezember 2020. Die acht passend ausgewählten Studien wurden bezüglich der Studienqualität mittels der Bewertungskriterien des German Center for Evidence-based Nursing (2020) bewertet. Anschließend wurden die Ergebnisse in Anlehnung an die qualitative Inhaltsanalyse nach Kuckartz synthetisiert. Ergebnisse: Anhand der gefundenen Ergebnisse konnten drei Kategorien gebildet werden: Veränderungen den Alltag betreffend, Umgang mit den Auswirkungen im Leben der pflegenden Angehörigen und deren großen Unterstützungsbedarf. Aus diesen Kategorien sind 11 Subkategorien entstanden. Schlussfolgerung: Es ist wichtig, dass Personen aus dem Gesundheitswesen sich mit den Erfahrungen, den Herausforderungen und dem daraus resultierenden Unterstützungsbedarf der pflegenden Angehörigen von Menschen nach einem Schlaganfall auseinandersetzen und diesen in der Praxis berücksichtigen sollen. Introduction: A stroke leads to a major life change for those, who suffered from a stroke and for their informal family caregivers. In the home setting, family members take the new role as family caregivers, who face big challenges and high levels of stress. Therefore, the aim of this study is to identify the experiences and challenges of family caregivers of people after a stroke to cope with their everyday life at home. Methodology: To answer the research question, a systematic literature search was conducted in the period from September 2020 to the beginning of December 2020 in the electrical databases PubMed, CINAHL, and Google Scholar. The eight selected studies were evaluated in terms of study quality based on the evaluation criteria of the German Center for Evidence-based Nursing (2020). The results were synthesized following the qualitative content analysis according to Kuckartz. Results: Based on the results, three categories were created, which were the changes in everyday life, dealing with the impact in the lives of family caregivers and their great need for support. From three categories 11 subcategories were formed. Conclusion: It is important that health care professionals address the experiences, challenges and resulting support needs of family caregivers of people, who survived a stroke. Health care professionals should consider these in the practice.
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- 2022
24. [Parental Burden, Need for Support and Resources After Almost Two Years of COVID-19-Pandemic: Results of a Representative Study in Germany].
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Engelke L, Winter SM, Renneberg B, and Calvano C
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- Child, Humans, Female, Male, Pandemics, Germany, Parents, COVID-19 epidemiology, Academic Performance
- Abstract
Studies assessing the burden of families in the second year of the COVID-19-pandemic and the need for support are scarce. Burden, negative and positive changes, resources, and the need for support during the COVID-19-pandemic of a representative sample of 1,087 parents (52,0 % female; mean age 40,4) of minors in Germany were assessed in December 2021. We used a mixed-method approach.More than 50 % percent of parents were burdened about the development of the pandemic (58,5 %), restrictions in activities outside (54,8 %), the mental health of others (54,0 %), and social distance (53,7 %). Parents reported negative changes in partnership (esp. increase in conflicts and crises; 29,4 %), school development (esp. deterioration of school performance; 25,7 %), and mental health of children (38,1 %). In retrospect, over one-third of the parents saw a need for better political communication (36,0 %) and financial support (34,1 %) during the pandemic. In December, 23,8 % of parents still reported the need for support: financial (51,3 %), social (26,6 %), and psychotherapy for themselves (25,8 %). However, parents reported positive changes, especially within the family, feelings of gratitude and new attitudes. Social interaction and positive activities were identified as resources. In the second year of the pandemic, parents experienced much burden and needed support. Interventions and policies should be more targeted and needs-oriented.
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- 2023
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25. Towards OPtimal TIming and Method for promoting sUstained adherence to lifestyle and body weight recommendations in postMenopausal breast cancer survivors (the OPTIMUM-study) : protocol for a longitudinal mixed-method study
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van Cappellen-van Maldegem, Sandra J.M., Mols, Floortje, Horevoorts, Nicole, de Kruif, Anja, Buffart, Laurien M., Schoormans, Dounya, Trompetter, Hester, Beijer, Sandra, Ezendam, Nicole P.M., de Boer, Michiel, Winkels, Renate, Kampman, Ellen, Schuit, Jantine, van de Poll-Franse, Lonneke, Seidell, Jacob C., Hoedjes, Meeke, van Cappellen-van Maldegem, Sandra J.M., Mols, Floortje, Horevoorts, Nicole, de Kruif, Anja, Buffart, Laurien M., Schoormans, Dounya, Trompetter, Hester, Beijer, Sandra, Ezendam, Nicole P.M., de Boer, Michiel, Winkels, Renate, Kampman, Ellen, Schuit, Jantine, van de Poll-Franse, Lonneke, Seidell, Jacob C., and Hoedjes, Meeke
- Abstract
BACKGROUND: The majority of postmenopausal breast cancer (PMBC) survivors do not adhere to lifestyle recommendations and have excess body weight. In this group, this is associated with poorer health-related quality of life and an increased risk of type II diabetes mellitus, cardiovascular disease, second primary cancers, cancer recurrences, and mortality. Gaining and maintaining a healthy lifestyle and body composition is therefore important. It is unknown when and how sustained adherence to these recommendations can be promoted optimally in PMBC survivors. Therefore, the OPTIMUM study aims to identify the optimal timing and method for promoting sustained adherence to lifestyle and body weight recommendations in PMBC survivors. METHODS: The OPTIMUM-study has a mixed-methods design. To assess optimal timing, a longitudinal observational study will be conducted among approximately 1000 PMBC survivors. The primary outcomes are adherence to lifestyle and body weight recommendations, readiness for change, and need for support. Questionnaires will be administered at 4-6 months after cancer diagnosis (wave 1: during treatment and retrospectively before diagnosis), 1 year after diagnosis (wave 2: after completion of initial treatment), and 1.5 years after diagnosis (wave 3: during follow-up). Wave 2 and 3 include blood sampling, and either wearing an accelerometer for 7 days or completing a 3-day online food diary (randomly assigned at hospital level). To assess the optimal method, behavioural determinants of the primary outcomes will be matched with Behavior Change Techniques using the Behaviour Change Technique Taxonomy. Qualitative research methods will be used to explore perceptions, needs and preferences of PMBC survivors (semi-structured interviews, focus groups) and health care providers (Delphi study). Topics include perceptions on optimal timing to promote adherence; facilitators and motivators of, and barriers towards (sustained) adherence to recommendations; and
- Published
- 2021
26. [Robotic assistance in activities of daily living exemplified by food intake]
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Barbara, Klein and Annalies, Baumeister
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Unterstützungsbedarf ,Drinking ,Trinken ,Robotics ,Self-Help Devices ,Eating ,Need for support ,Assistive technology ,Germany ,Essen ,Activities of Daily Living ,Themenschwerpunkt ,Robotik ,Humans ,Hilfsmittel - Abstract
Die Ausübung der Aktivitäten des täglichen Lebens (ADL, auch Basisaktivitäten) ist bei Funktionseinschränkungen und -verlusten, die mit dem Altern, mit Krankheiten oder Behinderung einhergehen, eingeschränkt bzw. nicht mehr möglich. Dafür gibt es heute schon eine Reihe von Hilfsmitteln und sogar robotische Produkte. Ziel dieses Beitrages ist es, exemplarisch für die Basisaktivität Nahrungsaufnahme einen Überblick über die vorhandenen Produkte für Menschen mit einer Tetraplegie aufgrund eines Unfalls oder neurologischer Erkrankungen wie multipler Sklerose oder amyotrophischer Lateralsklerose zu geben. Die Verbreitung dieser Systeme ist heute noch sehr überschaubar. Dazu werden hemmende und fördernde Faktoren für deren Verbreitung und Nutzung aufgezeigt.
- Published
- 2020
27. Novice in secondary school – the coin has two sides
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Ulvik, Marit, Smith, Kari, and Helleve, Ingrid
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- *
BEGINNING teacher attitudes , *HIGH school teachers , *TEACHER training , *INTERVIEWING , *SENSORY perception - Abstract
The aim of this study is to gain an insight into novice teachers’ diverse experiences. The study is conducted among nine beginning teachers in upper secondary school in Norway, and the research instrument was semi structured interviews. The main findings indicate that there are two sides of the coin of being a new teacher, positive as well as less positive aspects. The beginning teachers want to be recognised as who they are, new to the job, and on the other hand, they want to be accepted as fully qualified teachers. The two contradictory perceptions of themselves as professionals represent two sides of the same coin. [Copyright &y& Elsevier]
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- 2009
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28. Palliative care in pediatrics The care of parents after they lose their child in neonatology
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Schulz, Julia
- Subjects
grief counselling ,Unterstützungsbedarf ,verwaiste Eltern ,need for support ,orphaned parents ,Trauerbegleitung - Abstract
Einleitung: Verstirbt ein Neugeborenes nach der Geburt, ist es emotional und psychisch ein äußerst belastendes Erlebnis. Da das Kind so frühzeitig verstirbt, bleibt oft nicht lange Zeit, in die Elternrolle zu schlüpfen und das Neugeborene kennenzulernen. Häufig kann die Trauer der Eltern im Familienkreis nicht nachvollzogen werden, was dazu führt, dass sie allein trauern. Die Betreuung und Begleitung verwaister Eltern ist nicht damit beendet, wenn das Kind verstirbt, sondern die Pfleger*innen haben die Aufgabe, die Betreuung mit bedarfsorientierten Unterstützungsangeboten fortzuführen. Methodik: Zur Erlangung des theoretischen Hintergrundwissens wird eine Literaturrecherche von Fachliteratur in Datenbanken durchgeführt. Folgende Datenbanken wurden verwendet: „CINAHL“, und „SpringerLink“. Dabei wurde englisch- und deutschsprachige Literatur zwischen 2004 und 2019 herangezogen. Ergebnisse: Die Ergebnisse verdeutlichen, dass Eltern die medizinischen Hintergründe zum Tod ihres Kindes erfahren und verstehen möchten. Insbesondere wurde hervorgehoben, dass die Familie die Chance erhalten sollte, Abschied vom Kind nehmen zu können. Diese Erfahrung wird auch bei Anfangsunsicherheiten von den Eltern als sehr positiv empfunden. Trotz der Fortschritte in der Trauerbegleitung zeigen die Ergebnisse, dass an den theoretischen und praktischen Aspekten der professionellen Trauerbegleitung weitergeforscht werden muss. Diskussion: Die Resultate verweisen darauf, dass sich die pädiatrische Palliativversorgung in den letzten Jahren weiterentwickelt hat. Im Bereich der professionellen Trauerbegleitung und der theoretischen Konzeptentwicklung bedarf es dennoch weiterer Forschung, um die Begleitung der Angehörigen während des Trauerprozesses weiter zu optimieren Introduction: When a newborn baby dies after birth, it is an extremely stressful experience both emotionally and psychologically. Because the child dies so prematurely, there is often not much time to slip into the role of parent and get to know the newborn. Often the mourning of the parents cannot be understood within the family circle, which leads to them grieving alone. The care and support of orphaned parents does not end when the child dies, but the carers* have the task of continuing the care with needs-oriented support services. Methods: To obtain the theoretical background knowledge, a literature search of technical literature in databases is carried out. The following databases were used: “CINAHL” and “SpringerLink”. English and German language literature between 2004 and 2019 was used. Results: The results show that parents want to know and understand the medical background of their child's death. In particular, it was stressed that the family should be given the chance to say goodbye to the child. This experience is also perceived as very positive by the parents in case of initial uncertainties. Despite the progress made in grief counselling, the results show that further research is needed on the theoretical and practical aspects of professional grief counselling. Discussion: The results indicate that paediatric palliative care has evolved in recent years. However, in the area of professional grief counselling and theoretical concept development, further research is needed to further optimise the support of relatives during the grieving process.
- Published
- 2020
29. End-of-Life Care – need for support of relatives at intensive care units
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Toth, Barbara
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relatives ,Unterstützungsbedarf ,End-of-Life Care ,need for support ,Angehörige ,Intensivstation ,intensive care unit - Abstract
Einleitung: Angehörige von Patient*innen auf einer Intensivstation, sind während der End-of-Life Care (EOLC) einer großen emotionalen Belastung ausgesetzt. Posttraumatische Belastungsstörungen können folglich auftreten. Die professionelle Gesundheits- und Krankenpflege nimmt eine zentrale Rolle in der emotionalen Unterstützung von Familien ein, da sie durch ihre stetige Anwesenheit, die Berufsgruppe ist, die am meisten Kontakt zu den Angehörigen hat. Methodik: Mit thematisch passenden Suchbegriffen sowie festgelegten Ein- und Ausschlusskriterien, wurde im Zeitraum von Jänner bis März 2020, im Zuge einer systematischen Literaturrecherche, in den Datenbanken PubMed, CINAHL ScienceDirect und WILEY Online Library nach relevanter Literatur recherchiert. Zwölf Studien wurden in diese Arbeit eingeschlossen. Ergebnisse: Die Unterstützung Angehöriger zeichnet sich durch eine einfühlsame Beziehungsgestaltung sowie Fachwissen aus. Erinnerungsarbeit, Atmosphärengestaltung und Kommunikation sind dabei zentrale Bestandteile. Es ist wichtig, Bedürfnisse sowie Ängste von Familien zu erkennen und individuell darauf zu reagieren. Angehörige möchten kontinuierlich, verständliche Informationen über den Prozessverlauf erhalten. Um einen würdevollen Abschied zu ermöglichen, wird Angehörigen Zeit zur Verarbeitung gegeben und auf individuelle Rituale Rücksicht genommen. Schlussfolgerung: Es ist wichtig von einer rein patient*innenzentrierten Denkweise auf eine familienorientierte Denkweise umzusteigen. Kontinuierliche Fortbildungen und Schulungen für Gesundheits- und Krankenpflegepersonen im Fachgebiet der intensivmedizinischen Pflege und Betreuung wären sinnvoll, um Angehörige, während der EOLC eines Familienmitgliedes auf einer ICU, professionell unterstützen zu können. Introduction: Relatives of patients in an intensive care unit are exposed to great emotional stress during End-of-Life Care (EOLC). Post-traumatic stress disorder can therefore occur. Healthcare workers and nurses play a central role in the emotional support of families during the dying process of a patient in the ICU. Because of their constant presence, nurses have the most contact with relatives. Methodology: In the period from January to March 2020, in the course of a systematic literature research, relevant literature was searched in the databases PubMed, CINAHL, ScienceDirect and WILEY Online Library, using suitable search terms, as well as defined inclusion and exclusion criteria. Twelve studies were included in this bachelor thesis. Results: Nursing support of relatives is characterized by a sensitive relationship and expert knowledge. Central components are memory work, atmosphere design as well as communication. It is important to identify the needs and fears of families and to react individually. Relatives want to receive continuous, comprehensible information about the course of the process. To enable a dignified farewell, relatives are given time for processing the events and individual rituals are taken into consideration. Conclusion: It is significant to change from patient-centered care to a family-oriented care. Continuous education and training for health care professionals in the field of intensive care would be useful to provide professional support to family members during the EOLC of a family member at an ICU.
- Published
- 2020
30. Quality of family life and family support requirements children and adolescents with disabilities
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Luiz, Érika de Aquino Marques and Della Barba, Patrícia Carla de Souza
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Need for support ,Disabilities ,FISIOTERAPIA E TERAPIA OCUPACIONAL [CIENCIAS DA SAUDE] ,Qualidade de vida familiar ,Quality of family life ,Necessidade de apoio ,Deficiência - Abstract
Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) Deficiencies bring harm to the overall development of the individual; In this context, the family becomes the main support for children with disabilities, assuming the role of caregiver. The caregiver is required to participate less and less in activities for themselves, being involved in the routine of care, without valuing their own demands and their quality of life. For this reason, it is important to identify the needs of families and their demands to enhance the care and quality of life of caregivers. Thus, this study had the objective of knowing the support needs and the quality of life of the families of children / adolescents with disabilities in the municipalities of the State of São Paulo and to identify if the needs and quality of family life influence each other and if they are influenced by age, type of disability, severity of disability, family income and family composition. It is a cross-sectional, descriptive, comparative and correlational study, with a quantitative approach. Families of children and adolescents aged 0 to 17 years, 11 months and 29 days with disabilities were recruited by non-probabilistic sampling of convenience in municipalities of the State of São Paulo. As instruments were used: a questionnaire of general information about the person with disability and the family; "Family Needs Assessment" (ANF); and the Family Life Quality Assessment Questionnaire (QQVdF). The data collection was performed using the instrument self-application method, in places that provide care to children and adolescents with disabilities in municipalities of the State of São Paulo. To evaluate the data, we used simple percentages and frequencies, the Spearman correlation test and the chi-square test. The analyzes were carried out in environment R version 3.5.1. A total of 100 families of children / adolescents with disabilities participated in this study. Among the family members who answered the questionnaires, 85% were mothers, 11% were fathers and 4% grandparents, 96% of them were primary caregivers of children and adolescents with disabilities, of whom all mothers are included. Most families showed average levels of support needs, and were indifferent when their quality of life, that is, they are not satisfied or dissatisfied with it. It was possible to observe a moderate inverse correlation between the levels of support needs and the levels of satisfaction with the quality of family life. It was also possible to verify that there is an influence of the type and severity of the disability in the level of need of support and the quality life is influenced by family composition. The present study showed that families have moderate levels of support needs, and the main ones are related to therapies and physicians specific to their children's needs, appropriate educational services for them; they also have financial demands and emotional support, as well as to plan for the future when the family can no longer offer care. Families point out these needs as priorities, as well as promoting greater independence for their children with disabilities in day-to-day activities. The results also showed that the majority of families are indifferent to family quality of life. The highest levels of satisfaction are linked to the relationships they have with the professionals who attend them and with the members of their family. However, they are more dissatisfied with foreign aid to care for their children with disabilities, over time they are dedicated to individual interests, security and economic issues. As deficiências trazem prejuízos ao desenvolvimento global do indivíduo; nesse contexto, a família torna-se o principal suporte para crianças com deficiências, assumindo a função de cuidador. É exigido do cuidador que ele participe cada vez menos de atividades para si, sendo envolvido pela rotina do cuidado, sem valorizar suas próprias demandas e sua qualidade de vida. Por esse motivo, torna-se importante identificar as necessidades das famílias e suas demandas para potencializar o cuidado e a qualidade de vida dos cuidadores. Assim, este estudo teve o objetivo de conhecer as necessidades de apoio e a qualidade de vida das famílias de crianças/adolescentes com deficiências de municípios do Estado de São Paulo e identificar se as necessidades e qualidade de vida familiar influenciam uma na outra e se são influenciadas pela idade, tipo de deficiência, gravidade da deficiência, renda familiar e composição familiar. Trata-se de um estudo transversal, descritivo, comparativo e correlacional, com abordagem quantitativa. Foram recrutadas por amostragem não probabilística de conveniência famílias de crianças/adolescentes, com idades entre 0 e 17 anos, 11 meses e 29 dias, com deficiências, em municípios do Estado de São Paulo. Como instrumentos foram utilizados: um questionário de informações gerais sobre a pessoa com deficiência e a família; “Avaliação das Necessidades da Família” (ANF); e o Questionário de Avaliação da Qualidade de Vida da Família (QQVdF). A coleta de dados foi realizada pelo método de autoaplicação dos instrumentos, em locais que oferecem atendimento a crianças e adolescentes com deficiências em municípios do Estado de São Paulo. Para avaliar os dados utilizou-se porcentagens simples e frequências, o teste de correlação de Spearman e o teste de qui-quadrado. As análises foram realizadas em ambiente R versão 3.5.1. Participaram desta pesquisa 100 famílias de crianças/adolescentes com deficiências. Dentre os familiares que responderam os questionários, 85% eram mães, 11% pais e 4% avós, sendo que 96% do total eram cuidadores principais das crianças e adolescentes com deficiência, destes, todas as mães estão incluídas. A maioria das famílias apresentaram níveis médios de necessidades de apoio, e se mostraram indiferentes quando a sua qualidade de vida, ou seja, não estão satisfeitos nem insatisfeitos com ela. Foi possível observar uma correlação inversa moderada entre os níveis de necessidades de apoio e os níveis de satisfação com a qualidade de vida familiar, também foi possível constatar que existe uma influência do tipo e da gravidade da deficiência no nível de necessidade de apoio e a qualidade de vida é influenciada pela composição familiar. O presente estudo mostrou que as famílias possuem níveis moderados de necessidades de apoio, e as principais são relacionadas às terapias e médicos específicos para as necessidades de seus filhos, serviços educacionais adequados para os mesmos; possuem também demandas financeiras e de suporte emocional, como para planejar o futuro quando a família não puder mais ofertar o cuidado. As famílias apontam estas necessidades como prioritárias, assim como a promoção de maior independência para seus filhos com deficiência nas atividades do dia-a-dia. Os resultados também mostraram que a maioria das famílias se encontram indiferentes em relação à qualidade de vida familiar. Os maiores índices de satisfação estão vinculados aos relacionamentos que elas possuem com os profissionais que as atendem e com os próprios membros da sua família. Entretanto, apresentam-se mais insatisfeitas com a ajuda externa para cuidar de seus filhos com deficiência, com o tempo que se dedicam a interesses individuais, com a segurança e com as questões econômicas. CAPES: 1686757
- Published
- 2019
31. Supportive communication on social networking sites: The impact of post valence and relational closeness on support provision.
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Li, Siyue and Zhang, Guanjin
- Subjects
ONLINE social networks ,TELECOMMUNICATION systems - Abstract
• This project adopted a mixed-method approach to examine supportive exchange on SNSs. • Post valence affected intended support through liking and perceived support need. • Relational closeness positively affected liking of a seeker and intended support. This project adopted a mixed-method approach to examine relational and contextual factors that influence people's intention to provide support on SNSs. A pilot survey examined people's use of SNSs for supportive exchange. Facebook was found to be the most used SNS for support seeking. People responded more often to a close friend's support-seeking post than to an acquaintance's post. Building on the findings in the pilot study, a main experiment was conducted to examine the impact of valence of a support seeker's previous posts and relational closeness on viewers' perceptions of the support seeker and their intention to provide support. Findings showed that valence of a support seeker's previous posts affects viewers' liking and perceived need for support in opposite directions, which in turn influences viewers' intended support provision. In addition, relational closeness positively affects viewers' liking of a support seeker and thus their intention to provide support. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
32. Interactions mère-fille et vécu de la grossesse.Étude descriptive à partir de onze entretiens dans un cabinet de sages-femmes libérales de la région Auvergne-Rhône-Alpes
- Author
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Gomart, Sibylle, École de Sages-Femmes - Clermont-Auvergne (ESF - UCA), CHU Clermont-Ferrand-Université Clermont Auvergne [2017-2020] (UCA [2017-2020]), Clémentine Raineau, Alix Dacquin, and Université Clermont Auvergne [2017-2020] (UCA [2017-2020])-CHU Clermont-Ferrand
- Subjects
Motherhood ,[SDV.MHEP.GEO]Life Sciences [q-bio]/Human health and pathology/Gynecology and obstetrics ,Role of the midwife ,Place de la mère ,Bouleversement de vie ,Need for support ,Lien mère-fille ,Life upheaval ,Place de la sage-femme ,Maternité ,Besoin de soutien ,Link between mother and daughter ,Role of the mother ,[SDV.MHEP]Life Sciences [q-bio]/Human health and pathology - Abstract
Background: Pregnancy is a time of physical, psychological and affective upheavals that lead a woman to become a mother. She and her own mother acquire a new status with this pregnancy. Identification to an idealized other woman is necessary to live peacefully this transition toward motherhood.Objectives: To know the main topics discussed between a pregnant woman and her mother and the advices, anecdotes and opinions given by the mother to her pregnant daughter. To know the way of living pregnancy, the fears and anxieties that still exist for a pregnant woman after her various conversations with her mother so that midwives can be able to intervene with more accurate advices and a better coaching. To identify possible oppositions between familial and domestic background of the mother-to-be and professional recommendations.Method: This qualitative, transversal and interpretative survey was conducted in 2017 within a sample of eleven first-time mothers from region Auvergne-Rhône-Alpes.Results and discussion: Topics discussed between mothers and daughters were essentially about corporal alterations, alimentation of the mother and her infant, baby devices and organization of the mother’s life. The way of living pregnancy was sometimes difficult and often related to the mother’s behavior. Pregnant women were wise enough to let the professionals teach them about their pregnancy without rejecting their own family’s advices.Conclusion: The need for examples and support from the mother as well as presence and support from the midwives seem to be fundamental to encompass as best a pregnant woman.; Introduction : La grossesse est une période de bouleversements physiques, psychologiques et affectifs menant une femme à devenir mère. Elle et sa mère acquièrent par là un nouveau statut. L’identification à une femme idéalisée est nécessaire pour vivre sereinement cette transition vers la maternité.Objectifs : Connaître les principaux sujets abordés entre une femme enceinte et sa mère et les conseils, anecdotes et avis donnés par cette dernière à sa fille. Connaître le vécu de la grossesse, les craintes et angoisses persistantes chez une femme enceinte après ses divers échanges avec sa mère pour que les sages-femmes puissent intervenir et affiner au mieux leurs conseils et leur accompagnement. Identifier d’éventuelles oppositions entre le façonnage familial et domestique de la future mère et les préconisations professionnelles. Méthode : Cette étude qualitative descriptive transversale et interprétative a été menée en 2017 au sein d’un échantillon de onze futures primipares de la région Auvergne-Rhône-Alpes. Résultats et discussion : Les sujets abordés entre mères et filles portaient essentiellement sur les modifications corporelles, l’alimentation de la femme et du nourrisson, des objets de puériculture et l’organisation de la vie de mère. Le vécu de la grossesse a été parfois complexe et souvent relié à l’attitude de la mère. Les parturientes ont su laisser aux professionnels la tâche de les renseigner sur la grossesse sans renier les apports de leur entourage.Conclusion : Le besoin de modèle et de soutien maternel ainsi que la nécessité de la présence et du soutien des sages-femmes semblent primordiaux pour entourer au mieux une femme enceinte.
- Published
- 2018
33. Könsskillnader i socialt stöd : Att söka manligt respektive kvinnligt stöd
- Author
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Engberg, Miranda and Engberg, Miranda
- Abstract
Socialt stöd är ett etablerat begrepp som har undersökts främst i relation till stressreduktion och hälsa. I denna undersökning är syftet att få kännedom om skillnader mellan män och kvinnor i socialt stöd, samt undersöka om det sociala stödet generellt söks från män eller kvinnor. Deltagarna bestod av 113 studenter från en högskola i Mellansverige, varvid 76.6 % var kvinnor. Data inhämtades med Berlin Social Support Scale, samt genom egenutformade frågor beträffande vilket kön människor generellt vänder sig till vid sökande av socialt stöd. Envägs variansanalys för oberoende respektive beroende mätningar användes som analysmetod. Män och kvinnor upplevde samt sökte socialt stöd i lika stor utsträckning. Kvinnor upplevde däremot ett högre behov av stöd än män. Både män och kvinnor vände generellt sig till kvinnor vid sökande av socialt stöd. Slutsatsen som drogs var att kvinnor i högre grad tillskrivs egenskaper som korrelerar positivt med socialt stöd.
- Published
- 2018
34. The 2013 Flood in the community of Elbe-Havel-Land in the eyes of the population
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Reiter, Jessica, Wenzel, Bettina, Dittmer, Cordula, Lorenz, Daniel, and Voss, Martin
- Subjects
quantitative survey ,impact on living conditions ,2013 European floods ,300 Sozialwissenschaften::300 Sozialwissenschaften, Soziologie ,need for support - Abstract
Im Sommer 2013 wurde die Verbandsgemeinde Elbe-Havel-Land in Sachsen-Anhalt während des Elbehochwassers nach einem Deichbruch weiträumig überflutet: Häuser, Straßen und Grundstücke wurden zerstört. Der Bericht beleuchtet die Folgen des Hochwassers 2013 und ihre Bewältigung aus Sicht der Bewohner*innen, basierend auf Ergebnissen einer quantitativen Bevölkerungsbefragung drei Jahre nach dem Ereignis. Ausgehend von erlebten materiellen und immateriellen Auswirkun-gen und dem Stand der Verarbeitung des Ereignisses, wird der Bedarf an Unterstützung aufgezeigt, fehlende Hilfeleistungen identifiziert und die Bedeutung verschiedener Akteure im Verlauf der Katastrophe dargestellt. Dabei zeigen sich insbesondere zeitliche Variationen der Hilfebedarfe und ein anhaltender Bedarf an Unterstützung sowie Nachwirkungen des Ereignisses bis zum Zeitpunkt der Befragung., During the 2013 European floods, the municipalities of the Elbe-Havel-Land in Saxony-Anhalt were flooded after the water masses of the Elbe River caused a levee to break; houses, streets and plots of land were destroyed. This report, based on the results of a quantitative survey carried out three years after the event, shines light on the effects of the 2013 Flood, and how well, according to the perception of residents, the disaster has been dealt with. Based on personally experienced materi-al and immaterial impacts and on the state of psychological recuperation, we highlight the need for further support needed, identify what kinds of aid have been missing, and illustrate the relative importance of different actors throughout the disaster. The results indicate that the need for assis-tance varies especially with regard to time, that after-effects continued to linger at the time of questioning, and that accordingly there is a continued need for support.
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- 2018
- Full Text
- View/download PDF
35. Anxiety and need for support of college students during the SARS-CoV-2 pandemic: An exploratory study.
- Author
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Torres, A., Melo, R., Príncipe, F., Ferreira, A., and Quesado, A.
- Subjects
COVID-19 pandemic ,COLLEGE students ,ECONOMIC uncertainty ,ANXIETY ,UNIVERSITIES & colleges - Abstract
Introduction: During the pandemic state, college students are exposed to additional stressful factors, including but not limited to: fear of being infected; fear of infecting a significant person; deal with a new reality of economic uncertainty; challenges of distance education; new rules in face-to-face classes; restrictions on access to internships and higher demanding in internships. Objectives: This exploratory study aims to assess levels of anxiety and the perception of the need for support of students of a Portuguese Higher Education Institution (HEI). Methods: An exploratory study was developed, on the return of students to the presential classes after the academic lockdown. It was spread out an email for all students with a link for an online form, which includes sociodemographic questions, a screening question of the anxiety level, and the need for support level (rating scales 0-10). Results: It was obtained 36 answers from mostly female students (92%) with 17 to 21 years old (67%). Answers present an average anxiety level of 5.4 (Min=1; Max=9; SD=2.23), with 58% of answers with a score of anxiety level of 5 or higher. The need for support average was 3.7 (Min=1; Max=9; SD=2.23), with 33% of answers with a score of 5 or higher. Conclusions: It is necessary to continuously monitor the anxiety level and the need for support of college students during the SARSCov-2 pandemic. It is similarly relevant to have responses of HEI to promote mental health and to answer to the high levels of students' anxiety and needs for support during the pandemic. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
36. Matematiskt begåvade elever : Undervisning i teori och praktik
- Author
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Enevoldsen, Madelene
- Subjects
mathematic ,stöd ,Matematik ,Begåvning ,need for support ,påverkansfaktorer ,influencing factors ,giftedness ,undervisning ,Mathematics ,Education - Abstract
Den föreliggande systematiska litteraturstudien behandlar matematiskt begåvade elevers skolsituation i grundskolan. Studien syftar till att undersöka hur matematiskt begåvade elever egentligen undervisas och vilket reellt stöd de får i sin akademiska progression. Matematiskt begåvade elever undervisas vanligtvis genom inkluderande eller exkluderande undervisning. De olika undervisningspraktikerna har olika fördelar och nackdelar och påverkar både begåvade elever och normalbegåvade elevers akademiska progression och personliga utveckling, men på olika sätt., The systematic literature study processes mathematically talented students' school situation in elementary school. The study aims to investigate how mathematically talented students are actually taught and what real support they receive in their academic progression. Mathematically talented students are usually taught through inclusive or exclusive teaching. The different teaching practices results in different advantages and disadvantages and affect both talented students and the normal progressive students' academic progression and personal development, but in different ways.
- Published
- 2017
37. Patients' experiences of their everyday life 14 months after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy : a qualitative follow-up study
- Author
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Swenne, Christine Leo, Jangland, Eva, Arakelian, Erebouni, Swenne, Christine Leo, Jangland, Eva, and Arakelian, Erebouni
- Abstract
BACKGROUND: Patients with peritoneal carcinomatosis treated with cytoreductive surgery and hyperthermic intraperitoneal chemotherapy have a long recovery process. AIM: To describe patients' experiences of their everyday lives after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy. METHOD: A follow-up study with a qualitative, descriptive design. Data were collected by individual, in-depth telephone interviews with 16 patients who had been treated for peritoneal carcinomatosis 14 months earlier at a university hospital in Sweden. The interviews were performed between May and June 2013 and analysed using systematic text condensation. RESULTS: Five themes were identified: (i) finding one's new self and relating to the new situation; (ii) the disease making its presence felt through bodily complications or mental fatigue; (iii) worrying about the return of the disease and passing it on to one's children; (iv) experiencing difficulties contacting various care facilities, not having a clear plan for ongoing rehabilitation; and (v) the need for online support through the Internet and counselling for both patients and their family members. CONCLUSIONS: Despite bodily complications, mental fatigue and worries about the return of the disease, the patient's everyday life was focused on finding his/her new self and adapting to the new circumstances. Difficulties in contacting care facilities and the lack of an ongoing medical and nursing rehabilitation plan called for a need for network support for patients and their families. CLINICAL RELEVANCE: After advanced surgery, patients require a continuous medical and nursing rehabilitation plan, and a platform of support such as meetings via social media and Internet which would connect former patients and their families with future patients and their family members. A contact nurse with specific expertise should design an individual rehabilitation plan and continuously identify the individual needs for long-term s
- Published
- 2017
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38. Der Zusammenhang zwischen psychoonkologischem Betreuungsbedarf, Wunsch nach Unterstützung und tatsächlicher Behandlung bei Krebspatientinnen und -patienten
- Author
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de Zwaan, Martina, Mösch, Patricia, Sinzinger, Hannelore, Stresing, Kerstin, Oberhof, Pia, Kohl, Christine, Schilke, Carolin, and Müller, Astrid
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- 2012
- Full Text
- View/download PDF
39. Supportive care needs for women with gynecological cancer and their relatives during the prediagnostic period
- Author
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Helle Ploug Hansen, Ole Mogensen, and Kamila Beata Adellund Holt
- Subjects
Adult ,medicine.medical_specialty ,Genital Neoplasms, Female ,Denmark ,MEDLINE ,Social support ,Young Adult ,Need for support ,Prediagnostic period ,Information ,eHealth ,Medicine ,Humans ,Family ,Young adult ,Qualitative Research ,Aged ,Oncology (nursing) ,business.industry ,Treatment process ,Social Support ,Middle Aged ,Gynecological cancer ,Relatives ,Oncology ,Family medicine ,Female ,business ,Period (music) ,Qualitative research - Abstract
Background: The prediagnostic process for gynecological cancer has become quite rapid. It gives the woman limited time to handle new information about her illness and make decisions. The existing support initiatives in Denmark focus on aftercare rather than on needs for support in the prediagnostic period. Objective: The purpose of this study was to investigate the need for supportive care among women with gynecological cancer and their relatives during the prediagnostic period. Method: A qualitative descriptive method was applied to semistructured interviews. We interviewed, at different times in the prediagnostic period, 16 women with gynecological cancer and 16 relatives. Participants were recruited at 1 hospital during a 3-month period. Results: Women in the prediagnostic period require an overview of the treatment process supplemented with information, involvement, and help to prepare themselves for treatment. Relatives need involvement, someone to talk to, an overview of the prediagnostic period, and advice on communication about cancer with children and teenagers in the family. Conclusions: Women with gynecological cancer should be encouraged to let their relatives get involved in the prediagnostic period. Information about the prediagnostic period should be readily accessible at a time when the women and their relatives need this. Internet-based information could be a relevant solution in the prediagnostic period. Implications for Practice: Issues concerning support of the relatives and needs among families with children should be spotted in the early diagnostic phase of patients with gynecological cancer. More knowledge about the prediagnostic period should be made available as eHealth solutions.
- Published
- 2014
- Full Text
- View/download PDF
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