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1. International consensus on sleep problems in pediatric palliative care: Paving the way

Author

Li, Albert, Wolfson, Amy R., Marinetto, Anna, Santini, Anna, Zanin, Anna, Kuhn, Brett R., Angelhoff, Charlotte, Santos, Cristiane Fumo dos, Goh, Daniel Y.T., Verrillo, Elisabetta, Zhou, Eric S., Ferreira, Esther Angélica Luiz, Bergstraesser, Eva, Pizza, Fabio, Nilsson, Frans, Plazzi, Giuseppe, Wang, Guanghai, Traslaviña, Guillermo Andrey Ariza, Moreira, Gustavo Antonio, Siden, Hal, Hauch, Holger, Huijer, Huda Abu-Saad, Catalano, Igor, Narang, Indra, Avagnina, Irene, Lopez, Jaime Gutierrez Del Alamo, Wille, Joakim, Mindell, Jodi, Bogetz, Jori, Downing, Julia, Hauer, Julie, Streuli, Jürg, Baker, Justin, Spruyt, Karen, Chan, Kate Ching Ching, Soster, Leticia Azevedo, Oliveira, Lia, Ragsdale, Lindsay, Nobili, Lino, Matlen, Lisa, Nosetti, Luana, De Zen, Lucia, Strambi, Luigi Ferini, Stenmarker, Margaretha, Lopes, Maria Cecilia, Blankenburg, Markus, Rios, Marta, Bernadá, Mercedes, Farquhar, Michael, Frühwald, Michael, Gradisar, Michael, Simakajornboon, Narong, Lazzarin, Pierina, Chong, Poh-Heng, Ferri, Raffaele, Martino-Alba, Ricardo, Findling, Robert L., Ferreira, Rosário, Bin-Hasan, Saadoun, Kudchadkar, Sapna R., Mercadante, Sebastiano, Amarri, Sergio, Keenan, Sharon, Noce, Silvia, de Oliveira Iglesias, Simone Brasil, Fagondes, Simone, Suh, Sooyeon, Sheldon, Stephen H., Sejersen, Thomas, Ceranoglu, Tolga Atilla, Crabtree, Valerie, Castronovo, Vincenza, Mercante, Anna, Owens, Judith, Bruni, Oliviero, Nunes, Magda L., Gringras, Paul, Li, Shirley Xin, Papa, Simonetta, Kreicbergs, Ulrika, Wolfe, Joanne, Zernikow, Boris, Lacerda, Ana, and Benini, Franca

Published
2024
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2. International consensus on sleep problems in pediatric palliative care: paving the way

Author

MERCANTE, Anna, primary, OWENS, Judith, additional, BRUNI, Oliviero, additional, NUNES, Magda L., additional, GRINGRAS, Paul, additional, LI, Shirley Xin, additional, PAPA, Simonetta, additional, KREICBERGS, Ulrika, additional, WOLFE, Joanne, additional, ZERNIKOW, Boris, additional, LACERDA, Ana, additional, BENINI, Franca, additional, Li, Albert, additional, Wolfson, Amy R., additional, Marinetto, Anna, additional, Santini, Anna, additional, Zanin, Anna, additional, Kuhn, Brett R., additional, Angelhoff, Charlotte, additional, Santos, Cristiane Fumo dos, additional, Goh, Daniel YT., additional, Verrillo, Elisabetta, additional, Zhou, Eric S., additional, Ferreira, Esther Angélica Luiz, additional, Bergstraesser, Eva, additional, Pizza, Fabio, additional, Nilsson, Frans, additional, Plazzi, Giuseppe, additional, Wang, Guanghai, additional, Traslaviña, Guillermo Andrey Ariza, additional, Moreira, Gustavo Antonio, additional, Siden, Hal, additional, Hauch, Holger, additional, Huijer, Huda Abu-Saad, additional, Catalano, Igor, additional, Narang, Indra, additional, Avagnina, Irene, additional, Lopez, Jaime Gutierrez Del Alamo, additional, Wille, Joakim, additional, Mindell, Jodi, additional, Bogetz, Jori, additional, Downing, Julia, additional, Hauer, Julie, additional, Streuli, Jürg, additional, Baker, Justin, additional, Spruyt, Karen, additional, Chan, Kate Ching Ching, additional, Soster, Leticia Azevedo, additional, Oliveira, Lia, additional, Ragsdale, Lindsay, additional, Nobili, Lino, additional, Matlen, Lisa, additional, Nosetti, Luana, additional, De Zen, Lucia, additional, Strambi, Luigi Ferini, additional, Stenmarker, Margaretha, additional, Lopes, Maria Cecilia, additional, Blankenburg, Markus, additional, Rios, Marta, additional, Bernadá, Mercedes, additional, Farquhar, Michael, additional, Frühwald, Michael, additional, Gradisar, Michael, additional, Simakajornboon, Narong, additional, Lazzarin, Pierina, additional, Chong, Poh-Heng, additional, Ferri, Raffaele, additional, Martino-Alba, Ricardo, additional, Findling, Robert L., additional, Ferreira, Rosário, additional, Bin-Hasan, Saadoun, additional, Kudchadka, Sapna, additional, Mercadante, Sebastiano, additional, Amarri, Sergio, additional, Keenan, Sharon, additional, Noce, Silvia, additional, de Oliveira Iglesias, Simone Brasil, additional, Fagondes, Simone, additional, Suh, Sooyeon, additional, Sheldon, Stephen H., additional, Sejersen, Thomas, additional, Ceranoglu, Tolga Atilla, additional, Crabtree, Valerie, additional, and Castronovo, Vincenza, additional

Published
2024
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3. Patientdelaktighet vid extubation : Don’t put the patient in the corner - En observationsstudie

Author

Andersson, Lina, Nilsson, Frans, Andersson, Lina, and Nilsson, Frans

Abstract

SAMMANFATTNINGBakgrund: Specialistsjuksköterskor anser att extubation är svårare och mer komplext än intubation. Extubation kräver mycket fokus på patientens fysiska behov vilket kan försvåra för vårdpersonal att uppfylla patientens psykosociala behov. Forskning visar att patienter har obehagliga minnen från att vara intuberade och bli extuberade. Syftet: Syftet var att undersöka hur patienten görs delaktig vid extubation på intensivvårdsavdelning. Metod: Designen var en fokuserad etnografiskt observationsstudie med deduktiv ansats. Urvalet var patienter som opererades elektivt och vårdades postoperativt på Thoraxintensivvårdsavdelning vid ett universitetssjukhus. Tio patienter observerades när de blev extuberade av intensivvårdspersonalen. Sedan utfördes en semistrukturerad intervju om patientens erfarenhet av att bli extuberad och om de kände sig delaktiga. Resultat: För att göra patienten delaktig gav personalen information, var stöttande, närvarande och respekterade patientens värdighet och integritet. Detta gjorde personalen genom fysisk beröring, att benämna patienten med namn, samt att utföra extubation avskilt. Resultatet kan inte säkerställa att det går att etablera en vårdrelation under extubation då en vårdrelation endast etablerades vid två av tio tillfällen. Majoriteten av patienterna hade inga minnen av att bli extuberade. Slutsats: Personalen gjorde patienterna delaktiga under extubation genom att ge information, vara närvarande och stöttande samt genom att visa patienten värdighet och respekt. Patienterna kunde göras delaktiga utan att en vårdrelation etablerades, detta tyder på att begreppet vårdrelation behöver en tydligare definition. Trots att majoriteten av deltagarna inte hade minnen från extubationen bör de göras delaktiga., Background: Specialist nurses consider extubation more difficult and complext than intubation. Extubation requires a lot of focus on the patient's physical needs, which can prove it difficult for specialist nurses to fulfill the patient's psychosocial needs. Research shows that patients have unpleasant memories of being intubated and being extubated. Aim: The aim was to investigate how patient participation was fulfilled during extubation in a intensive care unit. Method: The design was a focused ethnographic observational study with a deductive approach. The sample was patients who underwent elective surgery and received postoperative care in the thoracic intensive care unit in a university hospital. Ten patients were observed as they were extubated by the intensive care personnel. A semi-structured interview was then conducted about the patient's experience of being extubated and whether they felt involved. Main result: To increase the patience participation, the staff were informative and supportive, present and respected the patient's dignity and privacy. Staff did this through physical touch, calling the patient by name, and performing extubation separately. The results cannot ensure that it is possible to establish a care relationship during extubation as a care relationship was only established on two out of ten occasions. The majority of patients had no memory of being extubated. Conclusion: Patient participation during extubation can be achieved through information, staff presence and support. It’s possible to achieve patientparticipant without establishing a caring relationship. The majority of participants did not have memories of extubation, however, patient participation should still be achieved.

Published
2023

5. Low numbers of COVID-19 in Swedish pediatric oncology patients during the first pandemic year despite an open society

Author

Sundberg, Emil, Georgantzi, Kleopatra, Langenskiöld, Cecilia, Krol, Ladislav, Nilsson, Frans, Vogt, Hartmut, Palle, Josefine, Ek, Torben, Nilsson, Anna, Sundberg, Emil, Georgantzi, Kleopatra, Langenskiöld, Cecilia, Krol, Ladislav, Nilsson, Frans, Vogt, Hartmut, Palle, Josefine, Ek, Torben, and Nilsson, Anna

Abstract

Background Sweden adopted a different strategy than many other countries to combat the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic and kept most schools open. Initial reports from China suggested that coronavirus disease 2019 (COVID-19) was milder in children compared to adults, but there was a lack of data from immunocompromised children. Therefore, we investigated the rate of verified SARS-CoV-2 infections in our Swedish pediatric oncology patients. Procedure This was a multicenter retrospective study. A questionnaire including patient data as well as SARS-CoV-2 data was sent to the six Swedish childhood cancer centers in May 2021. Results During the first pandemic year, 49 patients were identified as SARS-CoV-2 positive, and 22 (45%) children were hospitalized with COVID-19. Two children needed intensive care, but no COVID-19-related deaths were reported. Most patients (n = 36, 73%) were on active chemotherapy treatment and 23 children (49%) attended school or daycare at least part-time. Half of the SARS-CoV-2-positive patients experienced a delay in cancer treatment. Conclusions Despite the rapid spread of SARS-CoV-2 in Sweden, without a strict lockdown of the society, the number of nationally reported pediatric oncology patients with polymerase chain reaction (PCR)-verified infection was low, and the majority of children had mild disease. Our data show that treatment interruptions occurred frequently and this should clearly be avoided for the coming years., Funding Agencies|Swedish Childhood Cancer Fund [KP2021-0034, 2020-0008]

Published
2022
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8. Postoperative speech impairment and surgical approach to posterior fossa tumours in children: a prospective European multicentre cohort study

Author

Grønbæk, Jonathan Kjær, primary, Wibroe, Morten, additional, Toescu, Sebastian, additional, Frič, Radek, additional, Thomsen, Birthe Lykke, additional, Møller, Lisbeth Nørgaard, additional, Grillner, Pernilla, additional, Gustavsson, Bengt, additional, Mallucci, Conor, additional, Aquilina, Kristian, additional, Fellows, Greg Adam, additional, Molinari, Emanuela, additional, Hjort, Magnus Aasved, additional, Westerholm-Ormio, Mia, additional, Kiudeliene, Rosita, additional, Mudra, Katalin, additional, Hauser, Peter, additional, van Baarsen, Kirsten, additional, Hoving, Eelco, additional, Zipfel, Julian, additional, Nysom, Karsten, additional, Schmiegelow, Kjeld, additional, Sehested, Astrid, additional, Juhler, Marianne, additional, Mathiasen, René, additional, Grønbæk, Jonathan Kjær, additional, Kjærsgaard, Mimi, additional, Bøgeskov, Lars, additional, Skjøth-Rasmussen, Jane, additional, Hauerberg Tamm, John, additional, Poulsgaard, Lars, additional, Gudrunardottir, Thora, additional, Grønbæk, Sylvester Kløcker, additional, Blichfeldt, Alberte, additional, Raben-Levetzau, Felix Nicolai, additional, Thude Callesen, Michael, additional, Rathe, Mathias, additional, Klokker, Rikke Bassø, additional, von Oettingen, Gorm, additional, Mikkelsen, Torben, additional, Henriksen, Louise Tram, additional, Cortnum, Søren, additional, Tofting-Olesen, Kamilla, additional, Karppinen, Atte, additional, Solem, Kristin, additional, Torsvik, Ingrid Kristin, additional, Mosand, Ann-Karin, additional, Simonsen, Line Rapp, additional, Ehrstedt, Christoffer, additional, Kristiansen, Ingela, additional, Fritzson, Karin, additional, Balestrand Haga, Line, additional, Fagerholt, Hege Kristine, additional, Stømqvist Blixt, Helene, additional, Sundgren, Hanna, additional, Håkansson, Yvonne, additional, Castor, Charlotte, additional, Nyman, Per, additional, Wretman, Anne, additional, Nilsson, Pelle, additional, Bjørklund, Ann-Christin, additional, Sabel, Magnus, additional, Haij, Inga-Lill, additional, Nilsson, Frans, additional, Olausson, Hanna, additional, Cummings, Claire, additional, Flemming, Jade, additional, Afolabi, Deborah, additional, Phipps, Kim, additional, Kamaly, Ian, additional, Williams, Sharon, additional, Jeelani, Noor-ul-Owase, additional, McArthur, Donald, additional, Wiles, Elisabeth, additional, Walker, David, additional, Cooper, Rebecca, additional, Fellows, Greg, additional, Hoole, Lizzy, additional, Slater, Kirsty, additional, Kandasamy, Jothy, additional, McAndrew, Rachel, additional, McLaughlin, Katie, additional, Schumann, Martin, additional, Avula, Shivaram, additional, Pizer, Barry, additional, Rutkauskiene, Giedre, additional, Matukevicius, Algimantas, additional, van den Abbeele, Leonie, additional, Markia, Balázs, additional, Pálmafy, Beatrix, additional, Clausen, Niels, additional, Ottosen Møller, Karen Margrethe, additional, Thomassen, Harald, additional, Cappelen, Johan, additional, Stensvold, Einar, additional, Devennay, Irene, additional, Lønnqvist, Tuula, additional, Nordfors, Kristiina, additional, and Lähteenmäki, Päivi, additional

Published
2021
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12. Kan geografiska informationssystem effektivisera skapandet av beslutsunderlag?

Author

Larsson, Patrick and Nilsson, Frans

Subjects
Geografiska informationssystem, Beslutsprocess, Geographical Information, Systems, Efficiency, decision-making, GIS, Beslutsunderlag, Data for decision making, Samhälls, Social Behaviour Law, beteendevetenskap, process, Effektivitet, juridik
Abstract

Validerat; 20101217 (root)

Published
2001

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