4 results on '"Patient and Public Perceptions"'
Search Results
2. The Human Dimension: Putting the Person into Personalised Medicine.
- Author
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Horne, Rob
- Subjects
- *
MEDICINE , *PUBLIC opinion , *MEDICAL care , *IDIOSYNCRATIC drug reactions , *DISEASES - Abstract
Technological advances enabling us to personalise medical interventions at the biological level must be matched by parallel advances in how we support the informed choices essential to patient and public participation. We cannot take participation for granted. To be truly personalised, medicine must take account of the perceptions and capabilities that shape participation. To do this, we need a better understanding of how people perceive personalised medicine and how they judge its value and risks. To realise the promise of 4P medicine we need to personalise at the psychosocial as well as biological dimension, putting the person into personalised medicine. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
3. Survey of patient and public perceptions of electronic health records for healthcare, policy and research: Study protocol.
- Author
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Luchenski, Serena, Balasanthiran, Anjali, Marston, Cicely, Sasaki, Kaori, Majeed, Azeem, Bell, Derek, and Reed, Julie E.
- Subjects
- *
MEDICAL care , *FAMILY medicine , *ELECTRONIC journals , *HEALTH planning , *TEACHING hospitals - Abstract
Background: Immediate access to patients' complete health records via electronic databases could improve healthcare and facilitate health research. However, the possible benefits of a national electronic health records (EHR) system must be balanced against public concerns about data security and personal privacy. Successful development of EHR requires better understanding of the views of the public and those most affected by EHR: users of the National Health Service. This study aims to explore the correlation between personal healthcare experience (including number of healthcare contacts and number and type of longer term conditions) and views relating to development of EHR for healthcare, health services planning and policy and health research. Methods/design: A multi-site cross-sectional self-complete questionnaire designed and piloted for use in waiting rooms was administered to patients from randomly selected outpatients' clinics at a university teaching hospital (431 beds) and general practice surgeries from the four primary care trusts within the catchment area of the hospital. All patients entering the selected outpatients clinics and general practice surgeries were invited to take part in the survey during August-September 2011. Statistical analyses will be conducted using descriptive techniques to present respondents' overall views about electronic health records and logistic regression to explore associations between these views and participants' personal circumstances, experiences, sociodemographics and more specific views about electronic health records. Discussion: The study design and implementation were successful, resulting in unusually high response rates and overall recruitment (85.5%, 5336 responses). Rates for face-to-face recruitment in previous work are variable, but typically lower (mean 76.7%, SD 20). We discuss details of how we collected the data to provide insight into how we obtained this unusually high response rate. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
4. Survey of patient and public perceptions of electronic health records for healthcare, policy and research: Study protocol
- Author
-
Julie E Reed, Kaori Sasaki, Anjali Balasanthiran, Serena Luchenski, Cicely Marston, Derek Bell, and Azeem Majeed
- Subjects
Questionnaires ,Male ,Quality management ,Quality Assurance, Health Care ,020205 medical informatics ,Pilot Projects ,02 engineering and technology ,Public opinion ,Ambulatory Care Facilities ,Masking (Electronic Health Record) ,Health informatics ,Health administration ,Study Protocol ,0302 clinical medicine ,Catchment Area, Health ,Surveys and Questionnaires ,London ,Health care ,0202 electrical engineering, electronic engineering, information engineering ,Cluster Analysis ,Medicine ,Electronic Health Records ,030212 general & internal medicine ,Patient and Public Perceptions ,Catchment Area (Health) ,Health Policy ,Health services research ,Middle Aged ,Quality Improvement ,MEDICAL INFORMATICS ,3. Good health ,Computer Science Applications ,lcsh:R858-859.7 ,Female ,Health Services Research ,Life Sciences & Biomedicine ,Adult ,Adolescent ,Patients ,Waiting Lists ,Health Informatics ,lcsh:Computer applications to medicine. Medical informatics ,03 medical and health sciences ,Nursing ,0909 Geomatic Engineering ,Humans ,Hospitals, Teaching ,Health policy ,Science & Technology ,business.industry ,1103 Clinical Sciences ,Health Surveys ,Cross-Sectional Studies ,Logistic Models ,0806 Information Systems ,Public Opinion ,business - Abstract
Background Immediate access to patients’ complete health records via electronic databases could improve healthcare and facilitate health research. However, the possible benefits of a national electronic health records (EHR) system must be balanced against public concerns about data security and personal privacy. Successful development of EHR requires better understanding of the views of the public and those most affected by EHR: users of the National Health Service. This study aims to explore the correlation between personal healthcare experience (including number of healthcare contacts and number and type of longer term conditions) and views relating to development of EHR for healthcare, health services planning and policy and health research. Methods/design A multi-site cross-sectional self-complete questionnaire designed and piloted for use in waiting rooms was administered to patients from randomly selected outpatients’ clinics at a university teaching hospital (431 beds) and general practice surgeries from the four primary care trusts within the catchment area of the hospital. All patients entering the selected outpatients clinics and general practice surgeries were invited to take part in the survey during August-September 2011. Statistical analyses will be conducted using descriptive techniques to present respondents’ overall views about electronic health records and logistic regression to explore associations between these views and participants’ personal circumstances, experiences, sociodemographics and more specific views about electronic health records. Discussion The study design and implementation were successful, resulting in unusually high response rates and overall recruitment (85.5%, 5336 responses). Rates for face-to-face recruitment in previous work are variable, but typically lower (mean 76.7%, SD 20). We discuss details of how we collected the data to provide insight into how we obtained this unusually high response rate.
- Published
- 2012
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