5,804 results on '"Persons with Mental Disabilities"'
Search Results
2. Assessment of Relationship between Intelligence Quotient and Orthodontic Treatment Need
- Author
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Betul Sen Yavuz, Muesser Ahu Yilmaz, Hanife Nuray Yilmaz, Omer Birkan Agrali, Seda Ozsalih Bilsel, and Betul Kargul
- Subjects
Persons with Mental Disabilities ,Index of Orthodontic Treatment Need ,Malocclusion ,Intelligence Test ,Child ,Adolescent ,Dentistry ,RK1-715 - Abstract
Objective: Low cognitive ability may reduce the ability to understand the importance of oral health and to perform the necessary practices to maintain proper oral hygiene. Early loss of primary teeth following high caries risk may lead to malocclusion of permanent dentition. This study aimed to evaluate the relationship between the cognitive levels of adolescents and their orthodontic treatment needs. Material and Methods: Between January 2018 and May 2018, 200 adolescents aged 10 – 15 who applied to the Pediatric Dentistry Clinic of Marmara University and sought orthodontic treatment were invited to participate in the study. The orthodontic treatment needs of 150 adolescents who agreed to participate were evaluated with the Index of Orthodontic Treatment Need - Aesthetic Component and their cognitive levels were evaluated with the Raven Standard Progressive Matrices (SPM) Test. P-value < 0.05 was considered statistically significant. Results: The mean age (± stan-dard deviation) of 126 adolescents (77 females and 49 males) who completed the SPM test was 11.8 (± 1.3). There was no consistency between the intellectual level and the need for orthodontic treatment (Kappa value = 0.071, p-value = 0.081). There was no correlation between malocclusion severity and intelligence quotient scores of adolescents (ρ [rho] = -0.089, p = 0.322). According to Multiple logistic regression results, there was no difference between ‘borderline need’ (p = 0.059) and ‘great need’ (p = 0.881) from ‘no need’ for orthodontic treatment in adolescents with different intelligence quotients. Conclusions: The results showed no evidence for an association between malocclusion and intelligence quotient.
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- 2023
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- View/download PDF
3. One Form of Protection for Persons with Mental Disabilities: An Exploration Study of Indonesian Legislations on the Protection of Inheritance Rights of Persons with Mental Disabilities
- Author
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Rizka Rizka and Anindia Fadhilah
- Subjects
inheritance law ,legal decision ,persons with mental disabilities ,Social Sciences - Abstract
Indonesia ratified the Convention on the Rights of Persons with Disabilities (CRPD) and enacted Laws that provide for the right to justice and legal protection for persons with mental disabilities, including the right to own and inherit a legacy. Paradoxically, the same laws legalize actions that undermine their rights. This study examines the legal protection accorded to persons with mental/intellectual disabilities over their inheritance rights as per the Indonesian three-pronged inheritance laws comprising Islamic law, adat law and the civil code. This research is descriptive, using a normative approach with a measure of doctrinal research. Indonesian laws still provide for substituted decision-making for persons with mental disabilities, which legalizes denying their right to legal agency. Ambiguities abound in the laws on important aspects, like how one is declared incapable of making legal decisions. Supported decision-making mechanisms for persons with mental disabilities in Indonesian laws would provide the basis for setting up support centers where persons with mental disabilities can access the necessary support to enable them to make legal decisions. This study can be useful in addressing issues that infringe on the legal rights and protections of people with mental disabilities.
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- 2022
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4. REFLEXIONES DESDE LA DISCIPLINA DE LA ENFERMERÍA SOBRE AJUSTES RAZONABLES EN SALUD PARA LA ATENCIÓN DE PERSONAS CON DISCAPACIDAD PSICOSOCIAL EN COLOMBIA.
- Author
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González Hurtado, Lauren Melissa, Ramírez Gordillo, Erika Alexandra, and Buitrago Gutiérrez, Ivonne
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MEDICAL quality control ,HEALTH care teams ,MEDICAL care ,PEOPLE with disabilities ,CARE of people ,SOCIAL impact - Abstract
Copyright of Revista Paradigmas Socio-Humanísticos is the property of Fundacion Universitaria Juan N. Corpas and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2023
- Full Text
- View/download PDF
5. Intellectual disabilities and risk of cardiovascular diseases: A population-based cohort study.
- Author
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Cho IY, Koo HY, Um YJ, Park YM, Kim KM, Lee CE, and Han K
- Abstract
Background: While intellectual disability is associated with higher mortality rates due to circulatory diseases, it is unclear whether intellectual disability is associated with higher risk of myocardial infarction (MI) and stroke than the general population., Objectives: We aimed to analyze the risk of cardiovascular diseases (CVD), specifically myocardial infarction (MI) and ischemic stroke, and death due to circulatory diseases in individuals with disability., Methods: This retrospective cohort study used data from the National Disability Registration System linked to the Korean National Health Insurance Service database. Individuals who underwent national health examinations in 2009 were followed until 2020. Cox-proportional hazard analyses were performed to estimate the risk of CVD, MI, ischemic stroke, and circulatory disease deaths with adjustment for covariates., Results: A total of 3642 individuals with intellectual disability (mean [SD] age 39.1 [12.6], 28.8 % female) and 3,889,794 individuals without intellectual disability (mean [SD] age 47.1 [13.9], 45.6 % female) were included. Compared to those without intellectual disability, those with intellectual disability had higher risk of CVD (adjusted hazard ratio [aHR] 1.71, 95 % confidence interval [CI] 1.45-2.02), ischemic stroke (aHR 2.21, 95 % CI 1.81-2.69), and death due to circulatory diseases (aHR 4.20, 95 % CI 3.24-5.45), and a non-significant risk for MI (aHR 1.24, 95 % CI 0.95-1.63) after full adjustment for covariates., Conclusions: Individuals with intellectual disability were at increased risk of CVD, in particular ischemic stroke, and death due to circulatory diseases. Healthcare professionals should be aware of increased CVD risk in individuals with intellectual disability., Competing Interests: Declaration of competing interest The authors have no potential conflicts of interest to declare., (Copyright © 2024 Elsevier Inc. All rights reserved.)
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- 2024
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6. The evaluation of the effectiveness of conventional and pulsating toothbrushes on the oral health of healthy and mentally disabled pediatric patients.
- Author
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Ballı Akgöl B and Ulukapı I
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- Humans, Child, Male, Female, Oral Health, Disabled Children, Dental Care for Disabled, Equipment Design, Persons with Mental Disabilities, Toothbrushing instrumentation, Cross-Over Studies
- Abstract
Objectives: Children, especially the mentally disabled, are generally incapable of obtaining adequate oral hygiene levels by manual brushing due to their lack of knowledge about oral hygiene and their limited motor skills. In order to handle those limited skills, different designs of manual and electric toothbrushes are developed and put on markets. The aim of this study was to evaluate the effectiveness of pulsating toothbrushes with easy-to-use properties, against conventional toothbrushes and to analyze their benefits on mentally disabled pediatric patients., Methods: Thirty-one healthy and 31 mentally disabled children (aged between 7 and 12) participated in this study. The effectiveness of three different toothbrushes (Oral-B Pulsar, Colgate 360° Micro Sonic Power, Oral-B Stages 3) was investigated with a cross-over study design. DMFT, dft, modified sulcus bleeding index (MOD-SBI), approximal plaque index (API) and Green and Vermillion simplified oral hygiene index (G&V OHI-S) measurements are performed to evaluate the oral hygiene status., Results: In the mentally disabled group the manual toothbrush for MOD-SBI, and Colgate 360° Micro Sonic Power for API showed the best results respectively., Conclusion: The ability of tooth brushing was improved both in healthy and in disabled children during this 5 months study. Unfortunately, it was not obvious in disabled children. Persevering training for tooth brushing might be the most important regardless of the kind of toothbrush., (© 2024 Special Care Dentistry Association and Wiley Periodicals LLC.)
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- 2024
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7. State-to-State Variation in SSI Enrollment for Children With Mental Disabilities: An Administrative and Ethical Challenge
- Author
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Hoagwood, Kimberly E, Zima, Bonnie T, Buka, Stephen L, Houtrow, Amy, and Kelleher, Kelly J
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Allied Health and Rehabilitation Science ,Health Sciences ,Mental health ,Good Health and Well Being ,Quality Education ,Child ,Disabled Children ,Humans ,Income ,Persons with Mental Disabilities ,Public Assistance ,United States ,Mentally Disabled Persons ,Child and adolescent mental disorders ,Child psychiatry/general ,Mental disabilities ,Public policy issues ,State policy ,Supplemental Security Income ,Public Health and Health Services ,Psychiatry ,Clinical sciences ,Health services and systems - Abstract
ObjectiveThe study examined state variation in rates of Supplemental Security Income (SSI) determinations, allowances, and receipt of benefits for ten selected child mental disabilities in 2013.MethodsSSI administrative and U.S. Census Bureau data collected by a multidisciplinary consensus committee convened by the National Academies of Science, Engineering, and Medicine in 2015 were examined.ResultsLess than 1% of children in 2013 were recipients of SSI for mental disabilities. Determination rates ranged from 1,441 to 251 per 100,000 low-income children, an almost sixfold difference. Allowance rates varied from 16% to 78%, a fivefold difference. Receipt of benefits ranged from .7% to 5.3%, a sevenfold difference.ConclusionsLarge unexplained discrepancies across states were found in review and receipt of SSI benefits for low-income children with mental disabilities. Inequities that cannot be explained by disability severity or financial need violate the ethos of equitable access to federally entitled services.
- Published
- 2017
8. The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic.
- Author
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Puig Llobet M, Roca Roger M, Nicolàs Silva T, Pérez Gimenez G, Agüera Z, Lluch Canut MT, Roldan Merino JF, Moreno Arroyo C, Prats Arimon M, Sánchez Ortega MA, Domènech Mascaró X, Hidalgo Blanco MA, and Moreno Poyato A
- Subjects
- Child, Humans, Communicable Disease Control, Developmental Disabilities epidemiology, Family, Pandemics, Residential Facilities, COVID-19 epidemiology, Intellectual Disability, Persons with Mental Disabilities
- Abstract
Background: The global COVID-19 pandemic has shown the vulnerability of some population groups, including persons with intellectual and developmental disabilities (IDD)., Aim: The present paper will provide more clarity and understanding of the experiences of family members of persons with IDD housed in residential facilities in Catalonia within the period of maximum restrictions during the COVID-19 pandemic., Methods and Procedures: Semi-structured interviews were conducted using an interpretive phenomenological qualitative approach. Study participants consisted of 14 relatives of IDD individuals who were institutionalized in residence facilities or homes. The guiding questions emerged from group discussions with relatives of those with IDD who did not participate in the subsequent interviews. Drawing from this group, the factors that were identified to have had the greatest impact on their lives were later used to guide the interviews. Data collection was carried out in face-to-face individual interviews that were recorded together with the observations of two researchers between February and October 2022., Results: Our analysis identified 4 main themes that developed into additional factors: the decision to stay at home or in the residence, fear, illness, and protocol. Individuals with IDD lost their daily routines, suffered from social isolation, and did not understand the situation., Conclusion: The results of this study allow for a better understanding of the experiences of families of persons with IDD in residential centres during the lockdown by identifying their needs and how to better support them in the future., Outcomes and Results: Knowledge and understanding of these events should allow for better management of similar situations in the future.
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- 2024
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9. THE TWENTY-FIRST CENTURY – THE BEGINNING OF A NEW ERA IN THE PROTECTION OF HUMAN RIGHTS OF PERSONS WITH MENTAL HEALTH DISABILITIES
- Author
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Marissabell Škorić
- Subjects
crpd ,persons with mental disabilities ,human rights ,legal capacity ,mental capacity ,supported decision making ,Law - Abstract
The paper analyses Art. 12 of the Convention on the Rights of Persons with Disabilities and its implications for the position of persons with mental disabilities. The new concept of legal capacity contained in Art. 12 should ensure that fundamental human rights of these persons are no longer “a dead letter on paper”. However, once the Convention came into force, the implementation of this provision has proved to be problematic for States Parties. Diane Kingston, former Vice-Chairperson of the Committee on the Rights of Persons with Disabilities, best expressed the scale of the problem in October 2015 when she emphasized that no country had until that point fully met the requirements contained in Art. 12. Given that the Convention is a document that prescribes the fundamental human rights, the statement that no national legislation is consistent with its key provision is confusing and worrying. Therefore, a special attention should be paid to Art. 12 and its implementation in practice.
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- 2020
- Full Text
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10. Clinical and Social Variables Association on the Frequency of Intellectual Disability Persons to Dental Care
- Author
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Francielle Ribeiro Alves, Victor Pinheiro Gavina, Nayara Silva Alves, Flavia Maia Silveira, Karine Laura Cortellazzi, and Andréa Videira Assaf
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Health Services ,Intellectual Disability ,Persons with Mental Disabilities ,Oral Health ,Dentistry ,RK1-715 - Abstract
Objective: To evaluate the association of oral health indicators and social variables on the frequency of visit to the dentist by persons with intellectual disability (ID). Material and Methods: The study comprised a sample consisting of 149 participants with ID, aged from 11 to 29 years, from non-governmental institutions. Semi-structured interviews were held to collect sociodemographic and psychosocial information with their parents/guardians, followed by oral health evaluations in accordance with World Health Organization criteria. Crude analyses and multiple analysis were conducted to test whether oral health indicators and social data were predictors of the visit to dental care services. Results: In the multiple logistic regression model, individuals with lower DMF-t (OR=3.13; 95% CI=1.40-6.97) and those with less crowded housing (OR=2.33; 95% CI=1.06-5.12) presented less frequency of visits to oral health services. Conclusion: DMFT and crowded housing are associated to the frequency of persons with intellectual disability to dental care as well as this outcome measure affects the oral health of persons with ID. Therefore, identifying limiting factors to dental care of persons with intellectual disability is needed so that this group can receive adequate attention.
- Published
- 2021
11. 'To Wander Off in Shame': Deconstructing the Shaming and Shameful Arrest Policies of Urban Police Departments in Their Treatment of Persons with Mental Disabilities
- Author
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Perlin, Michael L., Lynch, Alison J., and Rothbart, Daniel, editor
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- 2018
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12. Covid-19 Pandemic and Mental Health of Persons with Disabilities: In a Legal Perspective.
- Author
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Abbas, Hafiz Ghulam, Asad, Muhammad, Sajjad, Muhammad, and Razi, Naseem
- Subjects
COVID-19 pandemic ,PEOPLE with disabilities ,MENTAL health ,DISABILITY rights movement ,INTELLECTUAL disabilities ,MENTAL health laws - Abstract
COVID-19 has a significant threat to global health, which has peculiar implications for people suffering from mental health and disabilities. Considering this issue, this research paper examines laws on persons with mental disabilities in Pakistan protecting their rights especially mental health. It addresses the main question whether the legal framework on persons with mental disabilities is sufficient to deal with present challenges. The current findings show that the current legal framework and policies are inadequate and insufficient in nature and based on the archaic and outmoded laws that do not meet the needs of modern health crises like Coid-19 pandemic. It concludes that Pakistan needs to amend laws on the subject to overcome the present challenges. The qualitative and analytical method of research has been followed. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
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13. Comportamiento de las discapacidades en el Consejo Popular Hermanos Barcón, septiembre - diciembre de 2020.
- Author
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Naranjo Ferregut, Jorge Augusto, Delgado Cruz, Amarily, Morejón Estévez, Rosa Lidia, Rodríguez Camejo, Bárbara María, and Rodríguez Camejo, Jorge Jesús
- Abstract
Copyright of Revista de Ciencias Médicas de Pinar del Río is the property of Editorial Ciencias Medicas and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2021
14. Family caregivers' liability for damage inflicted by persons with dementia under their care: a study of the 2016 Japanese Supreme Court ruling.
- Author
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Murayama, Kayo
- Subjects
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CAREGIVERS , *DEMENTIA , *LEGAL judgments , *APPELLATE courts , *CONSTITUTIONAL courts , *CUSTODY of children , *DOMESTIC relations , *NURSING home employees , *PEOPLE with disabilities - Abstract
By analysing the 2016 Japanese Supreme Court case concerning family caregivers' liability for damages caused by a person with dementia who was killed by a train while wandering, this article suggests how to address similar cases in the future, considering the rights of persons with dementia to live in the community. The Court absolved the deceased's wife and son from liability and defined four criteria to find a person liable for damages: (a) the caregiver's living, mental, and physical conditions; (b) the conditions of the caregiver's involvement with a person with a mental disability; (c) the nature and incidence of the problematic behaviours of the person with a mental disability; and (d) the circumstances surrounding their supervision and care. This was the Supreme Court's first presentation of the criteria for establishing liability for a 'Person Equivalent to a Supervisor'. To guarantee the rights of a person with dementia to live in the community, the burden on family caregivers must be reduced, and the range of caregivers broadened to include non-family providers. The Court sought to reduce the caregivers' burden, and if these criteria are applied appropriately, the human rights of dementia patients and caregivers will be protected. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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15. SOCIAL ENTREPRENEURSHIP AS A TOOL FOR THE DEVELOPMENT OF NON-GOVERNMENT ORGANIZATION’S ACTIVITIES: A CASE STUDY OF THE ASSOCIATION “ORANZAIS STARS”.
- Author
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Bale, Inga and Auzina, Anita
- Subjects
- *
SOCIAL entrepreneurship , *MUNICIPAL budgets , *SOCIAL enterprises , *SOCIAL planning , *SOCIAL impact - Abstract
t. In Latvia, de-institutionalization is gradually taking place, which is envisaged in the European Social Development Plan at the level of public policy. In Latvia, the non-governmental sector (NGO) sector is largely dependent on external funding. In addition, competition for external financing is increasing. One of the solutions to reduce the effect of external financing is to engage in economic activity. Social entrepreneurship is becoming increasingly popular in Latvia - a business model that allows economic activities to be carried out without losing the mission, goals and social impact of NGOs. Social entrepreneurship is a way of effectively addressing the concerns of different groups at risk of social exclusion, which can have a positive long-term impact on the development of both the city and society itself. Social entrepreneurship has the potential to solve various social problems, thus facilitating municipal work and reducing municipal budget expenditures. For municipalities, social enterprises are a tool for solving social problems, which allows them to solve social problems in the municipalities by using a trans-regional approach, without taking risks on investments, failure, changes in market demand. The aim of the study is to create scenarios for the development of NGO activities, using the example of Association “Oranzais stars” (Orange Ray). Main research methods used: monographic method, strategic analysis and planning methods - PEST, SWOT, VRIO matrix, scenario method. The main result of the methods applied in the thesis is the development of a suitable and sustainable business model as the society moves towards the implementation of social entrepreneurship [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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16. Clinical and Social Variables Association on the Frequency of Intellectual Disability Persons to Dental Care.
- Author
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Ribeiro Alves, Francielle, Pinheiro Gavina, Victor, Silva Alves, Nayara, Maia Silveira, Flavia, Laura Cortellazzi, Karine, and Videira Assaf, Andréa
- Subjects
INTELLECTUAL disabilities ,SOCIAL factors ,DENTAL care ,CARE of people ,PEOPLE with disabilities ,DENTAL care utilization ,COST of dental care ,DENTISTS - Abstract
Objective: To evaluate the association of oral health indicators and social variables on the frequency of visit to the dentist by persons with intellectual disability (ID). Material and Methods: The study comprised a sample consisting of 149 participants with ID, aged from 11 to 29 years, from non-governmental institutions. Semi-structured interviews were held to collect sociodemographic and psychosocial information with their parents/guardians, followed by oral health evaluations in accordance with World Health Organization criteria. Crude analyses and multiple analysis were conducted to test whether oral health indicators and social data were predictors of the visit to dental care services. Results: In the multiple logistic regression model, individuals with lower DMF-t (OR=3.13; 95% CI=1.40-6.97) and those with less crowded housing (OR=2.33; 95% CI=1.06-5.12) presented less frequency of visits to oral health services. Conclusion: DMFT and crowded housing are associated to the frequency of persons with intellectual disability to dental care as well as this outcome measure affects the oral health of persons with ID. Therefore, identifying limiting factors to dental care of persons with intellectual disability is needed so that this group can receive adequate attention. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
17. COVID 19 Pandemic Experiences Among Caregivers of Persons with Intellectual Disability.
- Author
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Bhaumik M, Kapil Y, and Narayan J
- Subjects
- Humans, Caregivers, Surveys and Questionnaires, COVID-19, Intellectual Disability, Persons with Mental Disabilities
- Abstract
An online survey on experiences of 47 caregivers of persons with intellectual disability during COVID 19 pandemic was carried out to find out their experiences, with the aim to understand the focus areas of challenges, so as to organise need-based support systems. A validated questionnaire was used to collect data. The participants belonged to different states of India with varied socio-economic backgrounds. The results revealed that most of them experienced challenges in supporting persons with intellectual disability. Many found online classes beneficial, while some caregivers had difficulty in keeping the person occupied or managing challenging behaviour. Some caregivers were happy to get more time to spend with the person with intellectual disability at home. The outcome of this study suggests that irrespective of the background, the families faced challenges, the needs were varied and therefore specific efforts are to be taken to support the families so that they are prepared.
- Published
- 2024
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18. A Literature Review of the Challenges Experienced by Home Visiting Support Staff for Persons with Mental Disabilities
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Literature review ,文献レビュー ,精神障害者 ,Persons with mental disabilities ,Home visiting support ,訪問支援 - Published
- 2022
19. THE TWENTY-FIRST CENTURY - THE BEGINNING OF A NEW ERA IN THE PROTECTION OF HUMAN RIGHTS OF PERSONS WITH MENTAL HEALTH DISABILITIES.
- Author
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Škorić, Marissabell
- Subjects
- *
INTELLECTUAL disabilities , *HUMAN rights , *MENTAL health , *TWENTY-first century , *CIVIL rights , *DISCRIMINATION against people with disabilities , *DISABILITY rights movement - Abstract
The paper analyses Art. 12 of the Convention on the Rights of Persons with Disabilities and its implications for the position of persons with mental disabilities. The new concept of legal capacity contained in Art. 12 should ensure that fundamental human rights of these persons are no longer "a dead letter on paper". However, once the Convention came into force, the implementation of this provision has proved to be problematic for States Parties. Diane Kingston, former Vice-Chairperson of the Committee on the Rights of Persons with Disabilities, best expressed the scale of the problem in October 2015 when she emphasized that no country had until that point fully met the requirements contained in Art. 12. Given that the Convention is a document that prescribes the fundamental human rights, the statement that no national legislation is consistent with its key provision is confusing and worrying. Therefore, a special attention should be paid to Art. 12 and its implementation in practice. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
20. НЕКИ АСПЕКТИ ПРАВА НА СУДСКУ ЗАШТИТУ ЛИЦА СА МЕНТАЛНИМ СМЕТЊАМА У ПОСТУПКУ ЛИШЕЊА ПОСЛОВНЕ СПОСОБНОСТИ - ПРАКСА ЕВРОПСКОГ СУДА ЗА ЉУДСКА ПРАВА
- Author
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Палачковић, Душица and Ћорац, Санда
- Subjects
- *
FAIR trial , *INTELLECTUAL disabilities , *PEOPLE with disabilities , *TRIAL courts , *HUMAN rights , *CIVIL rights , *DISABILITY rights movement , *SELF advocacy - Abstract
The paper analyzes certain important aspects of the procedural position of persons with mental disabilities in the procedures for deprivation of legal capacity. Regardless of the normative framework, both international and national, particularly the UN Convention on the Rights of Persons with Disabilities, which largely protects the rights of this sensitive group of people, a significant number of cases before the European Court of Human Rights and decisions in which Contracting States are declared responsible indicate that there is a problem of their procedural position. They are principally conditioned by applying (or not applying) the procedural safeguards provided by Article 6 of the European Convention for the Protection of Human Rights and Fundamental Freedoms, or the right to a fair trial. Namely, the special features of persons with mental disabilities also cause the particularities in the application of the right to a fair trial in the court procedures in which these persons are involved. Therefore, we could talk about formulated specific standards that essentially elaborate one of the key concepts of the UN Convention on the Rights of Persons with Disabilities - "reasonable adaptation", as well as a direct link to the need for a specific application of the already mentioned Article 6 of the European Convention. The standards that follow from the application of Article 6 are numerous and the analysis of all from the aspect of protecting the rights of persons with mental disabilities is not possible in the paper of this volume, and therefore, special attention was given to the right of these persons to initiate and conduct the procedures for deprivation of legal capacity, personal participation and representation in that procedures. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
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21. استراتيجيات تدريس بعض المهارات الفنية لذوي الإعاقة العقلية
- Author
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عائشة بنت حسين السادة
- Abstract
Copyright of Basic Education College Magazine For Educational & Humanities Sciences is the property of Republic of Iraq Ministry of Higher Education & Scientific Research (MOHESR) and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2019
22. 'It's not easy to change the mentality': Challenges to sex education delivery for persons with intellectual disability
- Author
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Claire Azzopardi-Lane
- Subjects
Sexual Behavior ,media_common.quotation_subject ,Persons with Mental Disabilities ,Taboo ,Legislation ,Context (language use) ,Sex Education ,medicine.disease ,language.human_language ,Education ,Maltese ,Nursing ,Intellectual Disability ,Intellectual disability ,Developmental and Educational Psychology ,medicine ,language ,Spite ,Humans ,Empowerment ,Psychology ,Qualitative Research ,media_common ,Qualitative research - Abstract
BACKGROUND Sex education for people with intellectual disability is in its infancy in countries where their sexual expression is still considered a taboo. This study aimed at exploring the experiences of professionals involved in providing sex education to people with intellectual disability across a number of services in a Maltese context. METHOD Qualitative research was conducted using interviews to explore professionals' experiences of sex education provision. RESULTS Amid a persistent culture of sexual suppression, desexualisation, infantalization and control remain barriers to sex education delivery. Findings underline the need for services to have clear policies that aid professionals in delivering sex education, while mitigating conflicts encountered. Recommendations highlight sex positive environments and services, with a pro-active approach to sex education. CONCLUSION In spite of internationally binding legislation and local policies, further changes need to be made on the ground to provide persons with intellectual disability with effective access to sex education.
- Published
- 2021
23. Intestinal parasitic infection among mentally handicapped students in the Islamic Republic of Iran
- Author
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Mina Piri, Mohammad Matini, and Maryam Khedri
- Subjects
Male ,medicine.medical_specialty ,Adolescent ,Persons with Mental Disabilities ,Helminthiasis ,Prevalence ,Mentally Disabled Persons ,Iran ,medicine.disease_cause ,Feces ,Environmental health ,Protozoan infection ,parasitic diseases ,medicine ,Humans ,Giardia lamblia ,Intestinal Diseases, Parasitic ,Students ,Blastocystis ,biology ,business.industry ,Public health ,Entamoeba coli ,General Medicine ,medicine.disease ,biology.organism_classification ,Cross-Sectional Studies ,Female ,business - Abstract
Intestinal parasitic infections are among the most common public health problems in populations with poor hygiene. Consequently, mental retardation increases the risk of infection.The aim of this study was to investigate the prevalence of intestinal parasitic infections among mentally disabled young people in Hamadan, western Islamic Republic of Iran.This descriptive cross-sectional study was conducted on 318 students in 9 special schools in 2017. Triplicate faecal specimens for each student were subjected to stool analysis using direct wet mount, sedimentation concentration, and permanent staining technique. Chi-squared or Fisher's exact test were used for statistical analysis.Out of 318 students, 135 (42.5%, 95% CI: 37.1-47.9) were infected with intestinal parasites. Prevalence rates for females and males were 45.2% (61/135) and 40.4% (74/183) respectively. Protozoan infections (42.5%, 135) were more numerous than helminthiasis (0.6%, 2). Blastocystis hominis (28%, 89) was the most common parasite, followed by Giardia lamblia (9.7%, 31), Entamoeba coli (9.1%, 29) and Trichomonas hominis (6%, 19).The high prevalence rate of intestinal protozoan infection reflects poor personal hygiene among the students and inappropriate environmental conditions. Therefore, specific public health measures are required for the mentally handicapped students in special schools.العدوى الطفيلية المعوية في صفوف الطلاب المعوَّقين ذهنيًّا في جمهورية إيران الإسلامية.مريم خضري، مينا بيري ، محمد متيني.تُعد العدوى الطفيلية المعوية من أكثر مشاكل الصحة العامة شيوعًا في صفوف السكان الذين يعانون من قلة النظافة الشخصية. ومن ثَمَّ، فإن التخلف العقلي يزيد من خطر العدوى.هدفت هذه الدراسة إلى استقصاء معدل انتشار العدوى الطفيلية المعوية في صفوف الأطفال المعوَّقين ذهنيًّا في همدان، غرب جمهورية إيران الإسلامية.أُجريت هذه الدراسة المقطعية الوصفية على 318 طالبًا في 9 مدارس خاصة في عام 2017. وخضعت عينات البراز الثلاثية لكل طالب للتحليل بأسلوب إضافة السائل للشريحة مباشرةً لفحصها ميكروسكوبيًّا، وتركيز الترسيب، وتقنية التلوين الدائم. واستُخدم اختبار كاي تربيع أو اختبار فيشر الدقيق للتحليل الإحصائي.أُصيب 135 طالبًا من بين 318 طالبًا بالطفيليات المعوية (42.5٪، فاصل ثقة 95٪: 37.1–47.9). وكانت معدلات الانتشار في صفوف الإناث والذكور 45.2٪ (135/61) و40.4٪ (183/74) على التوالي. وكانت حالات العدوى بالطفيليات الأحادية الخلية (42.5٪، 135) أكثر عددًا من داء الديدان (0.6٪، 2). وكانت المتبرعمة الكيسية البشرية (28٪، 89) أكثر الطفيليات شيوعًا، تلتها الجياردية اللمبلية (9.7٪، 31)، والمتحولة القولونية (9.1٪، 29)، والمُشعَّرة البشرية (6٪، 19).يعكس ارتفاع معدل انتشار عدوى الطفيليات المعوية الأحادية الخلية قلة النظافة الشخصية في صفوف الطلاب والظروف البيئية غير الملائمة. ولذلك، يلزم اتخاذ تدابير محددة في مجال الصحة العامة للطلاب المعوَّقين ذهنيًّا في المدارس الخاصة.Infection parasitaire intestinale chez les élèves atteints d'un handicap mental, République islamique d'Iran.Les infections parasitaires intestinales comptent parmi les problèmes de santé publique les plus courants dans les populations dont l’hygiène est insuffisante. Par conséquent, le retard mental augmente le risque d'infection.La présente étude avait pour objectif d'étudier la prévalence des infections parasitaires intestinales chez les jeunes présentant un handicap mental à Hamadan, dans l'ouest de la République islamique d'Iran.Cette étude transversale descriptive a été menée auprès de 318 élèves de neuf écoles spéciales en 2017. Des échantillons de selles en triplicata pour chaque élève ont été soumis à analyse en utilisant la technique de montage humide direct, de concentration par sédimentation et de coloration permanente. Le test du khi carré et le test exact de Fisher ont été utilisés pour l'analyse statistique.Sur 318 élèves, 135 (42,5 %, IC 95 % : 37,1 à 47,9) étaient infectés par des parasites intestinaux. Les taux de prévalence chez les filles et les garçons étaient de 45,2 % (61/135) et 40,4 % (74/183) respectivement. Les infections à protozoaires (42,5 %, 135) ont été plus nombreuses que les helminthiases (0,6 %, 2). Blastocystis hominis (28 %, 89) était le parasite le plus fréquent, suivi par Giardia lamblia (9,7 %, 31), Entamoeba coli (9,1 %, 29) et Trichomonas hominis (6 %, 19).Le taux élevé de prévalence des infections intestinales à protozoaires reflète le manque d'hygiène personnelle des étudiants et des conditions environnementales inappropriées. Par conséquent, des mesures de santé publique spécifiques sont nécessaires pour les étudiants atteints d’un handicap mental dans les écoles spéciales.
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- 2021
24. National legal system in relation to vulnerable population groups
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Sjeničić Marta
- Subjects
vulnerable groups ,legal system ,Roma ,palliative care ,persons with mental disabilities ,Demography. Population. Vital events ,HB848-3697 - Abstract
Vulnerable social groups can be recognized in everyday life, and local legal regulations identify them as well. Strategies and laws clearly identify the increased needs of vulnerable groups. Local legislation, for example, observes comparative law trends and attempts to prevent discrimination of persons with disabilities, emphasizes their human rights and creates the legal framework for taking these persons out of the institutional form of protection and including them into the community. In Serbia however, strategies and laws, as well as by-laws, are written in sectors, and not in cross-sectors manner. Proper caring for persons with disabilities, including persons with mental disabilities, requires an integral approach, namely a mutual approach of the social, health, educational and other sectors. True enough, local regulations stress the need for an intersectional approach, but such an approach is scantily applied in practice, so the comprehensive care that would satisfy the multiple needs of persons with mental disabilities often turns out to be less than expected in the community. Pursuant to national laws and basic ethic principals, all citizens of the Republic of Serbia have the right to health protection without discrimination. Therefore, methods for using health protection, easier than the existing ones, should be found for certain vulnerable groups, depending on their characteristics, and so for the Roma as well, and bearing in mind that systemic health regulations in Serbia open the door to special treatment of these groups. The inaccessible approach to health care of the Roma population persists primarily due to insufficient basic health documentation and basic personal documentation. Personal documents are linked with the registered place of residence, which the Roma, largely do not have. The problem is thus on a wider scale and is not only focused on the health sector. As such, it requires a wider, intersectional approach and a coordinated solution to the problem. In the field of palliative care of terminally ill persons, a solution is on the way to be reached through the Strategy for Palliative Care, by reorganizing the health system. The health system as it is cannot fulfill the needs of persons requiring palliative care. Coextensive systems enable establishing hospices as charity organizations in the non-governmental sector, mainly financed from donations. They represent a support to the health system in taking care of terminally ill patients. For now, our legal system does now allow non-governmental organizations to engage in health activities, although there were initiatives in that direction. To some extent, national regulations offer a basis for treatment of patients with rare illnesses, but without specifying their rights to a diagnosis or treatment and without more detailed regulations on the allocation of funds directed towards diagnosing rare illnesses and treatment of the ill. A lack of legal and financial prerequisites makes them subject to discrimination. The very fact that a large number of these patients are children makes them twice as endangered category of population. The legal system has recently started dealing with a regulation that would support persons suffering from rare illnesses, but the implementation of these provisions has still not completely become a reality. The Law on Health Care and Insurance defines children and women in their reproductive period as an especially vulnerable group. The Law on Rights to Healthcare for Children, Pregnant Women and Women on Maternity Leave, has recently been brought. The Law has been brought with an aim of ensuring rights to health care and transportation costs benefits for children, pregnant women and mothers during maternity leave, regardless of the basis on which they have health insurance. The reason for bringing such a law is noble, but the form of the legal act, which was supposed to realize the set goal, was overemphasized and contributed to the already existing over-norming of Serbian legislature. The legal basis for regulating this issue already existed in the umbrella health laws and should have been realized through by-law regulations.
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- 2015
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25. THE RHEOENCEPHALOGRAPHIC STUDY OF THE INTERHEMISPHERIC ASYMMETRY OF CEREBRAL BLOOD FLOW IN HEALTHY AND MENTALLY RETARDED CHILDREN.
- Author
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Azatyan T
- Subjects
- Child, Humans, Task Performance and Analysis, Cerebrovascular Circulation, Intellectual Disability, Persons with Mental Disabilities
- Abstract
Aim - to study functional organization of hemodynamic processes in brain basins of healthy children and children with mild mental retardation depending on the nature of asymmetry and gradient of cerebral blood filling are investigated. The research executed in the scientific laboratory of the special and inclusive education department of the Armenian State Pedagogical University after Kh. Abovyan and Armenian State Institute of Physical Culture and Sport. The study involved children aged 8 to 11 years, a total of 131. 73 of them are healthy schoolchildren and 58 children with a low degree of mental retardation. Each category of subjects was divided into 2 age groups: 8-9 years and 10-11 years. The results of the experimental study of task performance show that interesting data have been obtained which will serve as a basis for the development of necessary means, methods, and conditions for the development of elementary practical orientation in mentally retarded elementary school children. The analysis of the results of the study allows us to highlight the following important points: in the control group, 88% of the examined patients showed a hyperfrontal pattern in terms of RI (rheogramm amplitude). In seven children, the hypermastoidal pattern was observed, and in the two children of the control group, no significant differences between the RI values in the frontal and mastoidal basins were found. The study involved 131 children aged 8 to 11 years old. 73 of them were healthy with normal physical and mental development as well as 58 children with a weak degree of mental retardation. The study was undertaken to determine which sport and physical activity allowed children with mental retardation. Established that the parameter of TPWV in 8-9-year-old and 10-11-year-old schoolchildren of the control group was significantly higher than that of experimental children in the frontal, bimostoidal and hemispheric basins.
- Published
- 2023
26. Efficacy of light intervention in improving mood and behaviour, but not sleep in intellectually disabled older adults.
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Annarumma L and De Gennaro L
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- Aged, Humans, Sleep, Persons with Mental Disabilities, Phototherapy, Affect
- Abstract
Competing Interests: Competing interests: None declared.
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- 2023
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27. Supported employment interventions for workplace mental health of persons with mental disabilities in low-to-middle income countries: A scoping review.
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Mavindidze E, Nhunzvi C, and Van Niekerk L
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- Humans, Developing Countries, Mental Health, Workplace, Employment, Supported, Persons with Mental Disabilities, Intellectual Disability
- Abstract
Objective: To review the evidence of supported employment interventions in low-to-middle income countries, documents their impact for persons with mental disorders in the open labour market and well as support decision making for its wider implementation in the workplace., Design: The scoping review is conducted following guidelines in the Arksey and O'Malley (2005) Framework., Data Sources and Eligibility: Eleven databases which are PubMed, Scopus, Academic Search Premier, the Cumulative Index to Nursing and Allied Health Literature, Africa-Wide Information, Humanities International Complete, Web of Science, PsychInfo, SocINDEX, Open Grey and Sabinet were searched for articles published between January 2006 and January 2022. Both peer-reviewed articles and grey literature were eligible if they were on supported employment interventions in low-to-middle income countries. Only articles published in English were included., Study Appraisal and Synthesis: Articles were screened at title, abstract and full article levels by two independent teams with the use of Rayyan software. Deductive thematic analysis was used to synthesize evidence on the supported employment interventions implemented in LMICs, capturing evidence of their outcomes for persons with mental disabilities securing competitive work., Results: The search yielded 7347 records and after screening by title and abstract, 188 studies were eligible for full article screening. Eight studies were included in this scoping review. Thematic descriptions of the findings were based on the availability of supported employment interventions within the context, the type of supported employment interventions as well as mental health and vocational outcomes in the workplace., Conclusions: There is limited evidence of supported employment interventions in low-to-middle income countries despite the promising potential it has as an intervention to address mental health problems in the workplace and facilitate work participation by persons with mental disabilities., Competing Interests: The authors have declared that no competing interests exist., (Copyright: © 2023 Mavindidze et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
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- 2023
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28. [Dental care and prevention possibilities for the mentally disabled currently].
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Szmirnova I, Szmirnov G, Haba N, Csomó K, Németh Z, and Szabó G
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- Humans, Academies and Institutes, Hospitalization, Dental Care, Persons with Mental Disabilities, Disabled Persons, Periodontal Diseases
- Abstract
Introduction: In Hungary, dental care and prevention for mentally disabled individuals are becoming increasingly challenging. Currently, there are 100,000 intellectually disabled individuals in the country who require "special medical care"., Objective: The objective of this study was to develop and modify a relatively simple preventive procedure, adjusted to the mental capabilities of the patients, and implement it within a selected group. The study aimed to assess the results after 3 and 6 months, respectively, and to compare them with the international literature., Method: The preventive procedure was introduced to 49 patients admitted to the institute of Csömör Nursing Home and Daycare Institute of the Foundation for Equal Opportunities. To ensure the accuracy of the data, the patients were examined separately by 3 doctors. The program began with dental care training for both patients and nursing staff. The periodontal examinations were carried out by the team's periodontologist. The patients were checked after 3 and 6 months, respectively, and the data were recorded., Results: No changes were registered in terms of the DMF-T index during this short period of time, therefore we applied the restorative index. However, a significant improvement was observed in the periodontal condition., Discussion: The preventive procedure proved to be effective, considering the fact that all patients had periodontal problems due to neglected oral hygiene. As there was a significant improvement in the periodontal condition, an improvement of the DMF-T index dentition of the patients can also be expected in the future., Conclusion: Enhanced oral hygiene (advancing towards "normal oral hygiene" from the neglected oral hygiene of the patients) can bring about considerable improvement in the case of patients needing special medical care. To attain positive results, a proper approach and regular motivation are essential for both patients and caregivers. Orv Hetil. 2023; 164(37): 1456-1461.
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- 2023
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29. Anterior segment indices in mentally retarded children.
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Hashemi H, Mohayeji A, Farzaneh A, Yekta A, Ostadimoghaddam H, Asharlous A, and Khabazkhoob M
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- Humans, Child, Adolescent, Physical Examination, Persons with Mental Disabilities, Intellectual Disability, Cerebral Palsy diagnosis, Keratoconus
- Abstract
To compare the anterior segment indices between mentally retarded and normal children. The current study was conducted as a cohort. In this study, 73 mentally retarded and 76 normal children were selected from normal school and special schools for mentally retarded children using random cluster sampling method. Mental retardation in children was confirmed by a psychologist. Optometry examinations including visual acuity and refraction were performed for all participants, and ultimately, corneal imaging measurements were taken by Pentacam. The mean age of mentally retarded and normal children was of 13.30 ± 1.83 and 13.05 ± 1.82 years, respectively (P = 0.180). A multiple generalized estimating equations model demonstrated that there is a significant association between central corneal thickness (CCT) (coef = 1.011, P < 0.001), corneal diameter (CD) (coef = 0.444, P = 0.046), anterior chamber depth (ACD) (coef = 0.23), P < 0.001) and index of vertical asymmetry (IVA) (coef = 0.12, P < 0.001) and mental retardation. Cerebral palsy children had higher keratoconus index (KI), central keratoconus index (CKI), index of height asymmetry(IHA), and index of height decentration (IHD) compared to those without cerebral palsy (P < 0.05). Children with moderate mental retardation had higher index of surface variance (ISV), IVA, IHA, and IHD than those with mild mental retardation (P < 0.05). The mean and standard deviation of CCT, CD, ACD and IVA index in mentally retarded children were 535.3 ± 46.68 micron, 11.87 ± 0.42 mm, 3.29 ± 0.24 mm and 0.25 ± 0.18 mm, respectively. These indices in the normal group were 525.53 ± 47.52 micron, 11.84 ± 0.38 mm, 3.15 ± 0.28 mm and 0.17 ± 0.05 mm, respectively. The findings of this study showed that some anterior segment indices were different in mentally retarded compared to normal children. Moreover, some keratoconus indicators were worse in cerebral palsy children and children with higher grade mental retardation. So, it is important to consider keratoconus screening in these children., (© 2023. Springer Nature Limited.)
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- 2023
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30. Tacit knowledge in dyads of persons with profound intellectual and multiple disabilities and their caregivers: An interpretative literature study.
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Hoogsteyns M, Zaal-Schuller I, Huisman S, Nieuwenhuijse AM, van Etten-Jamaludi F, Willems D, and Kruithof K
- Subjects
- Humans, Caregivers, Intellectual Disability, Persons with Mental Disabilities, Disabled Persons
- Abstract
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer., Aim: To gain understanding of the nature and development of tacit knowledge between persons with PIMD and their caregivers., Method: We conducted an interpretative synthesis of literature on tacit knowledge in caregiving dyads with persons with PIMD, persons with dementia or infants. Twelve studies were included., Results: Tacit knowledge is about caregivers and care-recipients becoming sensitive and responsive to each other's cues and together crafting care routines. Learning takes place in a constant process of action and response that transforms those involved., Conclusion: Building tacit knowledge together is necessary for persons with PIMD to learn to recognise and express their needs. Suggestions are made for ways to facilitate its development and transfer., (© 2023 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.)
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- 2023
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31. Effect of Indoor Climbing on Occupational Self-Efficacy and Employability: Results of a 10-Month Randomised Controlled Study of Persons with Intellectual Disability
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Ruud Joseph Alida Vreuls, Jonas Mockenhaupt, Vera Tillmann, and Volker Anneken
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Research Design ,Intellectual Disability ,Health, Toxicology and Mutagenesis ,Persons with Mental Disabilities ,Public Health, Environmental and Occupational Health ,indoor climbing ,intellectual disability ,RCT ,employability ,occupational self-efficacy ,Humans ,Female ,Self Efficacy ,Sports - Abstract
(1) Background: Indoor climbing has different effects at various levels, including physical, psychological, and social ones. It is of high interest to assess whether social skills developed through climbing can be transferred to another environment, such as the working environment. This study investigates the effects of indoor climbing on employability and occupational self-efficacy of people with intellectual disability, who possess lower levels of social competences in general. (2) Methods: A randomised controlled study (RCT) experimental study design with three groups was formed—one intervention (IG) and two control groups (CGI&II). For 10 months, the IG went climbing (two times per week), whereas the first CG followed a sports programme and the second CG served as controls. (3) Results: IG participants showed significant improvement in mental and somatic health over time. Regarding occupational self-efficacy, females had a significantly lower mean. Nevertheless, only the IG’s female participants mean increased significantly over time. (4) Conclusions: Indoor climbing can be effective for improving occupational health and can be beneficial for specific groups; however, additional research is needed to further specify the influence of indoor climbing on a wider variety of aspects of the life of people with intellectual disability.
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- 2022
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32. Assessment of dementia in a clinical sample of persons with intellectual disability
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Tanja Sappok, Justus Berger, Joana Birkner, Albert Diefenbacher, Peggy Rösner, Daria Tarasova, and Heika Kaiser
- Subjects
medicine.diagnostic_test ,business.industry ,Persons with Mental Disabilities ,Neuropsychology ,Area under the curve ,Cognition ,Neuropsychological test ,Neuropsychological Tests ,medicine.disease ,Education ,Intellectual Disability ,Intellectual disability ,Learning disability ,Developmental and Educational Psychology ,medicine ,Humans ,Dementia ,Neuropsychological assessment ,medicine.symptom ,business ,Retrospective Studies ,Clinical psychology - Abstract
Background Assessment of age-associated disorders has become increasingly important. Methods In a clinical setting, people with intellectual disability with and without dementia were assessed retrospectively using the Neuropsychological Test Battery (NTB) and the Dementia Questionnaire for People with Learning Disabilities (DLD) at two different times to analyse neuropsychological changes and diagnostic validity. One group (n = 44) was assessed with both instruments, while the DLD was applied in 71 patients. Results In the NTB (n = 44), only patients with dementia (n = 26) showed a decline in the NTB total score and three subscales. Receiver operating characteristic analysis revealed a diagnostic sensitivity of .67, a specificity of .81, and an area under the curve (AUC) of .767. In the DLD group (n = 71), only those with dementia displayed a decrease in the cognitive and social scale; diagnostic sensitivity and specificity values were low (.61/.63) and the AUC was .704. Conclusions Neuropsychological assessment was sensitive to detect cognitive changes over time. Sensitivity values of both instruments suggest a reassessment at a later time point.
- Published
- 2021
33. Coercion as a response to violence in mental health-care settings
- Author
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Angela, Hassiotis, Roger, Almvik, and Frans, Fluttert
- Subjects
Behavior Control ,Europe ,Mental Health Services ,Psychiatry and Mental health ,Coercion ,Mentally Ill Persons ,Persons with Mental Disabilities ,Humans ,Violence ,Biological Psychiatry - Published
- 2022
34. Mental, Neurological, and Somatic Comorbidities and Their Treatment in Persons With Intellectual Disability: An Analysis of Outpatient Billing Data for the Year 2018
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Weih, Markus, Köhler, Sabine, Schöll, Norbert, Schulz, Mandy, and Hering, Ramona
- Subjects
Adult ,Aged, 80 and over ,Psychotropic Drugs ,Adolescent ,Persons with Mental Disabilities ,Middle Aged ,Young Adult ,Anti-Anxiety Agents ,Intellectual Disability ,Humans ,Hypnotics and Sedatives ,Original Article ,Anticonvulsants ,Aged ,Antipsychotic Agents - Abstract
BACKGROUND: Persons with intellectual disability (ID) often suffer from significant comorbidities. As data have been lacking until now, the present report is the first one containing outpatient data on the prevalence of ID in Germany, its comorbidities, and outpatient (drug) treatment. METHODS: This study is based on the nationwide outpatient billing data and drug prescription data of all SHI-insured adults (SHI, statutory health insurance) (age 18–109) who were seen at least once in an outpatient medical practice in 2018. Patients with at least two F70–F79 diagnoses in two quarters were included in the study group (SG) (n = 324 428). A random sample of patients without ID served as the control/comparison group (CG) (n = 648 856). The odds ratios (SG vs. CG) for comorbidities, prescriptions of selected classes of drugs, and involvement of medical specialties were each analyzed by multivariate logistic regression. RESULTS: The prevalence of ID was 0.55%. ID was found to be associated with a variety of comorbidities. The highest odds ratios [OR] were for infantile cerebral palsy (OR: 121.71; 95% confidence interval: [111.67; 132.67]), autism spectrum disorders (OR: 83.85 [75.54; 93.08]), and developmental disabilities (OR: 61.34 [58.86; 63.94]). The most frequently prescribed drug categories (as classified by the anatomic-therapeutic-chemical (ATC) convention) were psychoactive drugs (antipsychotic, anxiolytic, and hypnotic drugs and sedatives) and antiepileptic drugs (OR: 10.40 [10.27; 10.53] and 9.90 [9.75; 10.05], respectively). Both general practitioners (OR: 2.64 [2.59; 2.69]) and medical specialists were consulted by the SG more frequently than by the CG; the type of specialist most commonly consulted was in the neuropsychiatric field, i.e., a neurologist or psychiatrist (OR: 6.85 [6.77; 6.92]). CONCLUSION: A diagnosis of ID frequently appears in outpatient billing data. Future analyses should be devoted to the specific care of people with intellectual disability, who constitute an especially multimorbid and vulnerable patient group.
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- 2022
35. Oral health status of people with mental disabilities in the municipality of Banja Luka
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Ilić Sanja, Đeri Aleksandra, Pašagić Ljubica, Pavlić Verica, and Janković Ognjenka
- Subjects
persons with mental disabilities ,caries ,DMFT ,PCI ,ACI ,TCI ,Dentistry ,RK1-715 - Abstract
Introduction. Oral health of mentally disabled people in Republika Srpska is on very low level. The greatest number of these persons is often edentulous or with a small number of teeth with extensive caries, high DMFT index and severe periodontal diseases. The aim of this study was to determine oral health status of people with mental disabilities in the municipality of Banja Luka. Material and Methods. Study included 95 patients (45 females and 50 males), aged 15 to 45 years. The subjects were divided into two groups according to the degree of mental impairment: ICD-10 F71 (65 respondents) and F72 (30 respondents). Dental assessment included: number of present teeth, presence of caries, restorations, number of extracted teeth, presence of residual roots, fractures, presence and number of fixed restorations, gingival and plaque index. Results. The mean DMFT index in patients with severe mental disability was high (17.4), while it was 12.3 in patients with mild disability. The mean value of person caries index (PCI) was 100%. In addition, the mean value of teeth caries index (TCI) in severely disabled persons was 58.1 whereas in those with mild intellectual disability it was 42.4. Average caries index (ACI) in patients with severe mental disability was 16.9 while in the group of patients with mild disability this value was 10.2. Plaque index in severely disabled people was 2.4, while in the second group (mild disability) it was 1.9. Gingival index in patients with severe mental disability was 1.8 and in mild disability group it was 1.3. Conclusion. People with mental disabilities in the municipality of Banjaluka have poor oral health. They do not have habits, attitudes and behavior towards oral health.
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- 2014
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36. Collaboration and guidelines for the coordination of health care for frail older persons with intellectual disability: A national survey of nurses working in municipal care
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Jan Åke Hansson, Christina Bökberg, Jimmie Kristensson, Ingrid Runesson, Magnus C Persson, and Gerd Ahlström
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Next of kin ,Frail Elderly ,Persons with Mental Disabilities ,Psychological intervention ,Nurses ,Nursing ,Compliance (psychology) ,Intellectual Disability ,Health care ,Intellectual disability ,medicine ,Humans ,survey ,Patient participation ,Research Articles ,General Nursing ,Aged ,integrated care ,Aged, 80 and over ,lcsh:RT1-120 ,Social work ,lcsh:Nursing ,business.industry ,questionnaire ,Omvårdnad ,medicine.disease ,older patients ,collaboration ,community nursing ,Integrated care ,Cross-Sectional Studies ,disability ,specialist nursing ,patient participation ,business ,Psychology ,care plan ,Delivery of Health Care ,Research Article - Abstract
Aims: To describe and compare perceptions of collaboration between care providers on the part of three groups of Registered Nurses working in municipal care and having particular responsibility concerning the care of frail older people with intellectual disability (ID); and, furthermore, to investigate the presence of and compliance with guidelines for the coordination of care. Design: National survey study with cross-sectional design. Methods: Nurses (N = 110) with key positions concerning people with ID answered a national questionnaire about collaboration, guidelines and coordinated individual plans. Descriptive and comparative statistical analyses were applied. Results: The meetings on cooperation and coordination of interventions were attended most frequently by nurses, and least frequently by social workers. The nurses were overall satisfied with the collaboration but perceived shortcomings in the case of inpatient and outpatient psychiatric care. Only in about half of the meetings for making care plans participated the people with intellectual disability and next of kin. (Less)
- Published
- 2021
37. Comparing the effect of two educational interventions on mothers’ awareness, attitude, and self-efficacy regarding sexual health care of educable intellectually disabled adolescent girls: a cluster randomized control trial
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Mehrdad Salehi, Mahnaz Noroozi, and Shadi Goli
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Adult ,Health Knowledge, Attitudes, Practice ,030506 rehabilitation ,medicine.medical_specialty ,Adolescent ,Sexual health ,Persons with Mental Disabilities ,education ,Reproductive medicine ,Intellectual disability ,Mothers ,Human sexuality ,Iran ,lcsh:Gynecology and obstetrics ,03 medical and health sciences ,0302 clinical medicine ,Intervention (counseling) ,medicine ,Humans ,Training ,030212 general & internal medicine ,Cluster randomised controlled trial ,lcsh:RG1-991 ,Reproductive health ,Self-efficacy ,business.industry ,Public health ,Research ,Obstetrics and Gynecology ,Awareness ,medicine.disease ,Self Efficacy ,Education of Intellectually Disabled ,Reproductive Medicine ,Attitude ,Female ,0305 other medical science ,business ,Psychology ,Clinical psychology - Abstract
Background Sexual problems of intellectually disabled adolescents are associated with their inability to understand sexuality. Given the important role of parents in forming the attitude of their adolescents towards sexuality, the present study aimed to compare the effect of two educational interventions on mothers’ awareness, attitude and self-efficacy regarding sexual health care of intellectually disabled adolescent girls. Materials and methods This cluster randomized control trial was conducted in six intellectually disabled adolescent education centers in Isfahan, Iran in 2018. The centers were randomly assigned to intervention groups (group training and training through booklet) and control group. Mothers of educable intellectually disabled adolescent girls (n = 81) were entered into the three groups using convenience sampling and their awareness, attitude and self-efficacy regarding sexual health care of adolescent girls were assessed using questionnaires before and after the educational intervention. Data were analyzed using descriptive and inferential statistical methods. Results The mean score of mothers’ awareness, attitude and self-efficacy in each of the “group training”, “training through booklet group” and “control group” was significantly different after the intervention compared to before the intervention (p 0.05). Conclusion Implementation of the group training intervention for mothers of intellectually disabled adolescent girls in comparison with training through booklet was associated with a greater increase in their awareness, attitude and self-efficacy regarding sexual health care of adolescent girls. Therefore, group training is suggested as a suitable way to educate mothers about sexual health care of intellectually disabled adolescent girls. Trial registration IRCT, IRCT20160224026756N5. Registered 22 June 2018, https://en.irct.ir/user/trial/31704/view.
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- 2021
38. Vitamins K and D deficiency in severe motor and intellectually disabled patients
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Tokumitsu Shirai, Tomoko Sakai, and Tsutomu Oishi
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Adult ,Male ,medicine.medical_specialty ,Vitamin K ,Osteocalcin ,Persons with Mental Disabilities ,Osteoporosis ,chemistry.chemical_element ,Motor Activity ,Calcium ,Bone remodeling ,03 medical and health sciences ,0302 clinical medicine ,Developmental Neuroscience ,Bone Density ,Intellectual Disability ,Internal medicine ,Vitamin K deficiency ,Vitamin D and neurology ,Humans ,Medicine ,Vitamin D ,Aged ,biology ,business.industry ,Acid phosphatase ,Institutionalization ,Vitamins ,General Medicine ,Middle Aged ,Vitamin D Deficiency ,medicine.disease ,Resorption ,Motor Skills Disorders ,Endocrinology ,chemistry ,Pediatrics, Perinatology and Child Health ,biology.protein ,Alkaline phosphatase ,Female ,Vitamin K Deficiency ,Neurology (clinical) ,business ,Biomarkers ,030217 neurology & neurosurgery - Abstract
Objectives We aimed to determine serum 25-hydroxyvitamin D (25(OH)D) and undercarboxylated osteocalcin (ucOC) levels in severe motor and intellectual disabilities (SMID) patients and their association with bone turnover biomarkers. Methods We assessed vitamin D and K levels as indicators of osteoporosis in institutionalized adults with SMID. From December 2019 to February 2020, 93 institutionalized patients (48 men, 45 women; median age, 49 years) underwent annual routine examinations. Serum ucOC, 25(OH)D, bone-specific alkaline phosphatase (BAP), and tartrate-resistant acid phosphatase A 5b (TRACP-5b) levels as bone formation and resorption markers and calcium and phosphorous levels were measured. Vitamin K deficiency was indirectly assessed based on ucOC levels. Results Mean ucOC levels were higher than normal (i.e., vitamin K deficiency). Serum 25(OH)D levels were markedly diminished. Overall, 86% of patients had deficient 25(OH)D levels. These 25(OH)D-deficient patients had higher ucOC levels. Multiple linear regression analysis revealed an inverse correlation between 25(OH)D and ucOC levels. ucOC levels were significantly higher and 25(OH)D levels were significantly lower in tube feeding. TRACP-5b levels were significantly higher in elderly than in young women. BAP and TRACP-5b levels were normal in adults. No relationship existed between vitamin D and antiepileptic drug use. Conclusions Vitamin K and D co-deficiency was common in SMID patients. Vitamin K and D deficiencies were worse in tube-fed patients than in oral intake patients. SMID patients should undergo regular monitoring of vitamin D and K levels and supplementation of these vitamins.
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- 2021
39. Factors related to preventive COVID-19 infection behaviors among people with mental illness
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Carol Strong, Amir H. Pakpour, Mark D. Griffiths, Chung Ying Lin, and Kun Chia Chang
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Adult ,Male ,Coronavirus disease 2019 (COVID-19) ,Health Behavior ,Persons with Mental Disabilities ,Pneumonia, Viral ,Social Stigma ,Preventive behavior ,Taiwan ,Psychological distress ,Models, Psychological ,Trust ,Structural equation modeling ,Article ,03 medical and health sciences ,Betacoronavirus ,0302 clinical medicine ,Medicine ,Humans ,Pandemics ,Self-stigma ,Depression (differential diagnoses) ,Psychiatric Status Rating Scales ,lcsh:R5-920 ,business.industry ,SARS-CoV-2 ,Mental Disorders ,COVID-19 ,Mean age ,Anxiety stress ,Regression analysis ,General Medicine ,Fear ,Middle Aged ,Patient Acceptance of Health Care ,Mental illness ,medicine.disease ,Cross-Sectional Studies ,Latent Class Analysis ,030220 oncology & carcinogenesis ,Regression Analysis ,030211 gastroenterology & hepatology ,Female ,business ,Coronavirus Infections ,lcsh:Medicine (General) ,Healthcare providers ,Clinical psychology - Abstract
Background/Purpose: Because of the spread of novel coronavirus disease 2019 (COVID-2019), preventive COVID-19 infection behaviors become important for individuals, especially those who are vulnerable. The present study proposes a model to explain the preventive COVID-19 infection behaviors among people with mental illness in Taiwan.\ud \ud Methods: A cross-sectional design was carried out and 414 patients with mental illness (230 males [55.6%]; mean age = 46.32 [SD = 10.86]) agreed to participate in the study. All the participants completed the Preventive COVID-19 Infection Behaviors Scale, Self-Stigma Scale-Short, Believing COVID-19 Information Scale, Fear of COVID-19 Scale, and Depression Anxiety Stress Scale-21. Regression models and structural equation modeling (SEM) were applied to examine the factors associated with preventive COVID-19 infection behaviors.\ud \ud Results: Both regression models and SEM showed that trust in COVID-19 information sources (standardized coefficient [β] = 0.211 in regression; β = 0.194 in SEM) and fear of COVID-19 (β = −0.128 in regression; β = −0.223 in SEM) significantly explained preventive behaviors among individuals with mental illness. The SEM further showed that fear of COVID-19 was significantly explained by trust in COVID-19 information sources (β = 0.220) and self-stigma (β = 0.454).\ud \ud Conclusions: Based on the results, healthcare providers should help individuals with mental illness reduce self-stigma and fear of COVID-19 which would consequently improve their preventive COVID-19 infection behaviors. Moreover, improving trust in COVID-19 information sources for individuals with mental illness may be another method to improve their preventive behaviors.
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- 2020
40. [The practice of providing continuous employment support for the mentally handicapped by public health nurses]
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Rika, Nishitani, Sayaka, Tabuchi, and Rumi, Tsukinoki
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Employment ,Intellectual Disability ,Persons with Mental Disabilities ,Humans ,Nurses, Public Health - Published
- 2022
41. CHALLENGES IN CASE MANAGEMENT OF PERSONS WITH MENTAL DISABILITIES IN MALAYSIA.
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Mohd Nor, Mohd Iqbal Haqim, Aun, Nur Saadah Mohamad, and Amin, Aizan Sofia
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- *
PEOPLE with intellectual disabilities , *INTELLECTUAL disabilities , *SOCIAL work administration , *SOCIAL perception , *DATA analysis , *MALAYSIANS , *MANAGEMENT - Abstract
Case management of Persons with Disabilities (PWD) particularly the mental category has been scarcely studied in Malaysia. With mental illness rapidly growing into a public health issue, more research especially in the aspects of case management is needed. In relation to that, this paper aimed to explore on the challenges in case management that case workers for persons with mental disabilities (PWMD) faced in Malaysia. This qualitative study conducts in-depth interviews twice with 10 case workers from Medical Social Work Department and Social Welfare Department. Data were analysed thematically using content analysis method. The study discovered that challenges arise were negative perception towards PWMD, lack of specialized trainings, and lack of effective collaborations between agencies. The findings suggest that the Health Ministry and Welfare Department should enhance collaboration between them in getting their resources such as information and manpower together in fulfilling the needs of PWMD. On top of that, the study highlights the importance of case workers' roles in brokering between the agencies in order to increase client functionality in society. This paper is important for policy makers to take into account the needs and the capacity of the PWMD and also caseworkers to ensure the effectiveness of both welfare and health services. Thus, the case management services for persons with mental disabilities will be improved which are aligned with Malaysia's social work competency standards. [ABSTRACT FROM AUTHOR]
- Published
- 2017
42. Importance of a multi-tiered treatment approach for intellectually and developmentally disabled patients with hidradenitis suppurativa.
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Nosrati A, Torpey ME, Andriano TM, Benesh G, Babbush KM, Hosgood HD, Campton KL, and Cohen SR
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- Humans, Retrospective Studies, Anti-Bacterial Agents therapeutic use, Infliximab therapeutic use, Triamcinolone therapeutic use, Contraceptives, Oral therapeutic use, Male, Female, Child, Adolescent, Adult, Middle Aged, Hidradenitis Suppurativa drug therapy, Hidradenitis Suppurativa epidemiology, Hidradenitis Suppurativa surgery, Persons with Mental Disabilities
- Abstract
Hidradenitis suppurativa (HS) is a chronic, debilitating skin condition that is characterized by painful pustules, nodules, abscesses, and sinus tracts. The complicated and fast-evolving treatment of HS consists of a multi-tiered approach that includes, antibacterial, antihormonal, anti-inflammatory, and surgical options. Studies have demonstrated an earlier age of onset and increased prevalence of HS in patients with intellectual and developmental disability (IDD) compared to patients without IDD. To explore the use of an intensive multi-tiered HS management algorithm that requires monthly office visits, monthly intravenous therapy, and several daily treatment modalities in an HS population with IDD, we conducted an IRB-approved retrospective chart review of HS patients treated at the Albert Einstein College of Medicine-Montefiore HS Center (HSC) with diagnoses of concurrent IDD to investigate their demographic and diagnostic characteristics, as well as the spectrum of therapies employed in this cohort. A total of 22 HS patients with concomitant IDD, including trisomy 21, unspecified intellectual disability, autism spectrum disorder, and trisomy 13 were identified. Therapies utilized in this cohort for HS included topical and oral antibiotics, spironolactone, finasteride, oral contraceptive pills, infliximab, adalimumab, isotretinoin, intralesional and intramuscular triamcinolone injections, and excisional surgery. In conclusion, our findings indicate that despite the practical challenges, daily oral antibiotic regimens, anti-androgen combinations, oral retinoids, infliximab, adalimumab, and surgery collectively play important roles in treating HS patients with IDD. Our cases underscore the importance of utilizing the full range of modalities as the HS treatment algorithm continues to evolve., (© 2023. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.)
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- 2023
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43. Prevalence and clinical characteristics of children with medical complexity in Tottori Prefecture, Japan: A population-based longitudinal study
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Shinjiro Akaboshi, Koyo Ohno, Hiroyuki Yamada, Masami Togawa, Hisashi Noma, Shigeru Higami, Yasushi Utsunomiya, Yoshihiro Maegaki, Madoka Shiota, Takayoshi Okada, Masayosi Oguri, and Hirokazu Tsuchie
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Male ,musculoskeletal diseases ,Longitudinal study ,Adolescent ,medicine.medical_treatment ,media_common.quotation_subject ,Persons with Mental Disabilities ,Population ,macromolecular substances ,Population based ,Medical care ,Young Adult ,03 medical and health sciences ,0302 clinical medicine ,Japan ,Developmental Neuroscience ,Prevalence ,Humans ,Medicine ,Longitudinal Studies ,Child ,education ,media_common ,Administrative services organization ,education.field_of_study ,Rehabilitation ,business.industry ,technology, industry, and agriculture ,General Medicine ,Disabled Children ,Secular variation ,Equipment and Supplies ,Child, Preschool ,Pediatrics, Perinatology and Child Health ,Female ,Neurology (clinical) ,business ,Delivery of Health Care ,Welfare ,030217 neurology & neurosurgery ,Demography - Abstract
To investigate the prevalence and background of children with medical complexity (CMC) and its secular trend in Japan.CMC were defined as patients under the age of 20 years requiring medical care and devices. The patients were enrolled using the national health insurance claims data of three hospitals and two rehabilitation centers in Tottori Prefecture. The study period was divided into three periods: Period 1, 2007-2010; Period 2, 2011-2014; and Period 3, 2015-2018.A total of 378 CMC were enrolled. The prevalence of CMC was 1.88 per 1000 population among subjects aged20 years in 2018, and it increased by approximately 1.9 times during the study period. The number of CMC who presented with severe motor and intellectual disabilities did not change from Period 1 to Period 3. Meanwhile, the number of CMC who had relatively preserved motor and intellectual abilities increased from 58 to 98. The proportion of CMC who required respiratory management and oxygen therapy increased by 1.3 and 1.8 times, respectively. By contrast, the proportion of CMC who need tube feeding decreased significantly between periods 1 and 3 (P 0.05).The prevalence of CMC increased almost twice during the 12-year study period; however, the increase in the number of patients with relatively preserved motor and intellectual abilities was pronounced. This study showed that the need for medical care and devices differed based on the underlying disorders and severity of CMC; therefore, individualized medical, welfare, and administrative services and education about the various types of CMC must be provided.
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- 2020
44. Identifying Individuals With Intellectual Disability Within a Population Study
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Sharron L. Docherty, Michelle S. Franklin, Susan G. Silva, Elizabeth Merwin, Gary Maslow, and Carolyn Tucker Halpern
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Adult ,Male ,Gerontology ,Longitudinal study ,Adolescent ,Persons with Mental Disabilities ,Population ,Psychological intervention ,Standard score ,Article ,03 medical and health sciences ,Cognition ,0302 clinical medicine ,Borderline intellectual functioning ,Risk Factors ,Intellectual Disability ,Peabody Picture Vocabulary Test ,Adaptation, Psychological ,Intellectual disability ,medicine ,Humans ,Attention ,Longitudinal Studies ,030212 general & internal medicine ,education ,General Nursing ,education.field_of_study ,030504 nursing ,Mental Disorders ,medicine.disease ,Mental Health ,Population study ,Female ,0305 other medical science ,Psychology - Abstract
BACKGROUND: Much remains unknown about the longitudinal health and well-being of individuals with intellectual disability (ID), thus new methods to identify those with ID within nationally representative population studies are critical for harnessing these data sets to generate new knowledge. OBJECTIVE: Our objective was to describe the development of a new method for identifying individuals with ID within large, population-level studies not targeted on ID. METHODS: We used a secondary analysis of the de-identified, restricted-use National Longitudinal Study of Adolescent to Adult Health (Add Health) database representing 20,745 adolescents to develop a method for identifying individuals who meet the criteria of ID. The three criteria of ID (intellectual functioning, adaptive functioning, and disability originating during the developmental period) were derived from the definitions of ID used by the American Psychiatric Association and the American Association on Intellectual and Developmental Disabilities. The ID Indicator was developed from the variables indicative of intellectual and adaptive functioning limitations included in the Add Health database from Waves 1–3. RESULTS: This method identified 441 adolescents who met criteria of ID and had sampling weights. At Wave 1, the mean age of this subsample of adolescents with ID was 16.1 years (range: 12, 21). About half of the adolescents were male (53.1%) and from minority racial groups. Their parents were predominately female (97.6%), married (53.2%), had less than a high school education (47.4%), and their median age was 41.62 years. The adolescents’ mean maximum abridged Peabody Picture Vocabulary Test standardized score was 69.6 (range: 7, 89), and all demonstrated at least one adaptive functioning limitation. DISCUSSION: This study demonstrates the development of a data-driven method to identify individuals with ID using commonly available data elements in nationally representative population datasets. By utilizing this method, researchers can leverage existing rich data sets holding potential for answering research questions, guiding policy, and informing interventions to improve the health of the ID population.
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- 2020
45. Comparing everyday autonomy and adult identity in young people with and without intellectual disabilities
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Andrew Jahoda and Emily Salt
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Adult ,030506 rehabilitation ,Adolescent ,media_common.quotation_subject ,Persons with Mental Disabilities ,Self-concept ,Identity (social science) ,Peer Group ,Education ,Developmental psychology ,03 medical and health sciences ,Typically developing ,Intellectual Disability ,Mild intellectual disabilities ,Intellectual disability ,Developmental and Educational Psychology ,medicine ,Humans ,0501 psychology and cognitive sciences ,Young adult ,media_common ,Schools ,05 social sciences ,medicine.disease ,Card sorting ,0305 other medical science ,Psychology ,Autonomy ,050104 developmental & child psychology - Abstract
Aim This study was undertaken to investigate how young people with and without mild intellectual disabilities experience and perceive their own behavioural autonomy. Method Fifty-six young people with mild intellectual disabilities and 49 young people without disabilities aged 16-19 participated in a novel picture card sorting task to investigate their participation in a range of activities, and the obstacles preventing them from doing so. Results School pupils with intellectual disabilities engaged in significantly fewer activities than their typically developing peers and were more likely to state not to be allowed to. In contrast, the college students with and without disabilities were equally as likely to undertake each activity, and those with intellectual disabilities were more likely to express lack of interest in doing so. Conclusions The move from school to college may represent an opportunity for young people with intellectual disabilities to "catch-up" with their typically developing peers.
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- 2020
46. Healthcare services utilization among people with intellectual disability and comparison with the general population
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Diane Morin, Julie Maltais, and Marc J. Tassé
- Subjects
Adult ,Male ,030506 rehabilitation ,medicine.medical_specialty ,Adolescent ,Screening test ,Persons with Mental Disabilities ,Population ,Health Services Accessibility ,Education ,Young Adult ,03 medical and health sciences ,Health services ,Intellectual Disability ,Intellectual disability ,Health care ,Developmental and Educational Psychology ,medicine ,Humans ,0501 psychology and cognitive sciences ,Healthcare Disparities ,education ,Health needs ,Aged ,Aged, 80 and over ,education.field_of_study ,Health professionals ,business.industry ,05 social sciences ,Quebec ,Middle Aged ,Patient Acceptance of Health Care ,medicine.disease ,3. Good health ,Family medicine ,Female ,0305 other medical science ,Psychology ,business ,Facilities and Services Utilization ,050104 developmental & child psychology - Abstract
Background Studies have reported unmet health needs in individuals with intellectual disability (ID). This study illustrated and analysed patterns of healthcare services utilization among people with intellectual disability and compared their use to that of the general population. Method Participants (N = 791, aged 15-82) were mainly recruited through government-financed agencies specializing in services for people with intellectual disabilities in Quebec, Canada. Comparisons were possible by using health administrative data. Results Some services were more used by people with intellectual disability than the general population (general medicine, psychiatry, PSA blood tests), and others were accessed at significantly lower frequencies (optometry, physiotherapy, Pap tests). Similar rates were found for mammography, dentistry and psychology. Inequities were more salient for individuals who had more severe levels of intellectual disability. Conclusions Our findings support that the population with intellectual disability would benefit from policies and practices aimed at enhancing the access to healthcare services.
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- 2020
47. Challenges to community transitions through Money Follows the Person
- Author
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Martha Porter, Julie Robison, Kristin Baker, and Noreen Shugrue
- Subjects
Male ,Gerontology ,Social Work ,Time Factors ,Multivariate analysis ,Physical disability ,Persons with Mental Disabilities ,Sample (statistics) ,Residential Facilities ,03 medical and health sciences ,0302 clinical medicine ,Humans ,Disabled Persons ,030212 general & internal medicine ,Closure (psychology) ,Aged ,Aged, 80 and over ,Patient Care Team ,030503 health policy & services ,Health Policy ,digestive, oral, and skin physiology ,Age Factors ,Service provider ,Mental health ,Connecticut ,Long-term care ,Housing ,Female ,Financial Incentives to Induce Change ,0305 other medical science ,Psychology ,Medicaid - Abstract
Objective To examine the effects of transition challenges on the success and timeliness of transitions from institutions to community living for long-stay participants in the Money Follows the Person (MFP) Rebalancing Demonstration and determine whether outcomes vary by age and disability. Data source Secondary data on transition challenges for individuals enrolled in Connecticut's MFP program between December 2008 and December 2017. Study design Challenges were analyzed for older adults, people with mental health disability, and people with physical disability. Bivariate and multivariate analyses investigated which transition challenges and selected demographic variables predict transition versus closure and length of transition period for each group. Data extraction methods The sample includes 3506 persons who attempted transition from institutions to community living and whose case concluded with transition or closure from 2015 to 2017. Principal findings The association between most transition challenges and the ability of long-stay institutional residents to return to the community, and to do so in a timely manner, varies significantly among older adults and younger persons with physical or mental health disabilities. For all groups, however, consumer engagement challenges predicted closure without transition (OR: 1.3-3.9) and housing challenges predicted longer transition periods (84-132 days). Length of institutional stay was associated with both outcomes for older adults and persons with physical disability. Other challenges, such as issues with services and supports, differed among the three groups on both outcomes. Conclusions Knowledge of the effects of transition challenges on success and timeliness of transition for each group allows program managers and health and service providers to focus resources on addressing the most serious challenges. Particular emphasis should be placed on consumer engagement and housing challenges, and on targeting persons for transition early in their institutional stay. Federal and state transition programs can benefit by individualizing supports for residents to yield successful outcomes.
- Published
- 2020
48. Challenges of inclusion
- Author
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Joske Bunders-Aelen, Barbara J. Regeer, Ikenna Desmond Ebuenyi, Esther S Rottenburg, Science and Society, Athena Institute, APH - Global Health, APH - Quality of Care, Network Institute, and Amsterdam Sustainability Institute
- Subjects
030506 rehabilitation ,SDG 16 - Peace ,education ,Persons with Mental Disabilities ,Employability ,03 medical and health sciences ,0302 clinical medicine ,vocational training ,Intellectual Disability ,medicine ,Humans ,Disabled Persons ,employability ,Implementation ,Curriculum ,Vocational Education ,Government ,Medical education ,Rehabilitation ,SDG 16 - Peace, Justice and Strong Institutions ,SDG 10 - Reduced Inequalities ,Africa, Eastern ,Mental illness ,medicine.disease ,East Africa ,Justice and Strong Institutions ,labour market inclusion ,disability ,Vocational education ,0305 other medical science ,Psychology ,Inclusion (education) ,030217 neurology & neurosurgery ,Qualitative research - Abstract
Purpose: To explore barriers and pathways to the inclusion of persons with mental and intellectual disabilities in technical and vocational education and training programmes in four East African countries, in order to pave the way to greater inclusion. Materials and methods: An explorative, qualitative study including 10 in-depth interviews and a group discussion was conducted with coordinators of different programmes in four East African countries. Two independent researchers coded the interviews inductively using Atlas.ti. The underlying framework used is the culture, structure, and practice model. Results: Barriers and pathways to inclusion were found in the three interrelated components of the model. They are mutually reinforcing and are thus not independent of one another. Barriers regarding culture include negative attitudes towards persons with mental illnesses, structural barriers relate to exclusion from primary school, rigid curricula and untrained teachers and unclear policies. Culture and structure hence severely hinder a practice of including persons with mental disabilities in technical and vocational education and training programmes. Pathways suggested are aiming for a clearer policy, more flexible curricula, improved teacher training and more inclusive attitudes. Conclusions: In order to overcome the identified complex barriers, systemic changes are necessary. Suggested pathways for programme coordinators serve as a starting point. Implications for rehabilitation: Clear and up-to-date information on mental disability is required to engender societal participation; especially that of stakeholders in technical and vocational education and training programmes. Affirmative action and policy implementations of national and international human rights legislations are required to address the challenges of enrolment in technical and vocational education and training programmes. Disability organisations and government should adopt a more open and strengths-based attitude, tailor-made curricula, specific teacher training as well as clearer policies to ensure better inclusion of persons with mental disabilities in technical and vocational education and training programmes.
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- 2020
49. The burden of mental disorders across the states of India: the Global Burden of Disease Study 1990–2017
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Chris M Varghese, JS Thakur, Akhil Soman ThekkePurakkal, Atul Ambekar, Christopher M Odell, Rajesh Sagar, Rajesh Dhaliwal, Christopher J L Murray, Joy K Chakma, Parul Mutreja, Sanjay Prakash, Lalit Dandona, Scott D Glenn, Soumya Swaminathan, Ana Maria Mantilla Herrera, K. Srinath Reddy, Harvey Whiteford, Neerja Chowdhary, Fiona J Charlson, Alize J. Ferrari, Hendrik J Bekedam, Lakshmi Vijayakumar, G Anil Kumar, Holly E. Erskine, Varsha Krish, Pramod Kumar Pal, Theo Vos, Thara Rangaswamy, Tarun Dua, Mathew Varghese, Atreyi Ganguli, Rinu P Krishnankutty, Rakhi Dandona, Rohit Bhatia, Vivek Agarwal, Aditya Singh, Gopalkrishna Gururaj, D K Shukla, K S Shaji, R K Lenin Singh, Ravinder Singh, and Damian Santomauro
- Subjects
Adult ,Male ,Adolescent ,Persons with Mental Disabilities ,India ,Article ,Global Burden of Disease ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Prevalence of mental disorders ,Sex Factors ,Cost of Illness ,Intellectual disability ,Suicide, Completed ,Prevalence ,Medicine ,Humans ,030212 general & internal medicine ,Bipolar disorder ,Biological Psychiatry ,Disease burden ,Aged ,Aged, 80 and over ,Depressive Disorder ,business.industry ,Mental Disorders ,Malaysia ,Middle Aged ,medicine.disease ,Anxiety Disorders ,030227 psychiatry ,Psychiatry and Mental health ,Eating disorders ,Socioeconomic Factors ,Conduct disorder ,Schizophrenia ,Anxiety ,Female ,Quality-Adjusted Life Years ,medicine.symptom ,business ,Demography - Abstract
Summary Background Mental disorders are among the leading causes of non-fatal disease burden in India, but a systematic understanding of their prevalence, disease burden, and risk factors is not readily available for each state of India. In this report, we describe the prevalence and disease burden of each mental disorder for the states of India, from 1990 to 2017. Methods We used all accessible data from multiple sources to estimate the prevalence of mental disorders, years lived with disability (YLDs), and disability-adjusted life-years (DALYs) caused by these disorders for all the states of India from 1990 to 2017, as part of the Global Burden of Diseases, Injuries, and Risk Factors Study. We assessed the heterogeneity and time trends of mental disorders across the states of India. We grouped states on the basis of their Socio-demographic Index (SDI), which is a composite measure of per-capita income, mean education, and fertility rate in women younger than 25 years. We also assessed the association of major mental disorders with suicide deaths. We calculated 95% uncertainty intervals (UIs) for the point estimates. Findings In 2017, 197·3 million (95% UI 178·4–216·4) people had mental disorders in India, including 45·7 million (42·4–49·8) with depressive disorders and 44·9 million (41·2–48·9) with anxiety disorders. We found a significant, but modest, correlation between the prevalence of depressive disorders and suicide death rate at the state level for females (r2=0·33, p=0·0009) and males (r2=0·19, p=0·015). The contribution of mental disorders to the total DALYs in India increased from 2·5% (2·0–3·1) in 1990 to 4·7% (3·7–5·6) in 2017. In 2017, depressive disorders contributed the most to the total mental disorders DALYs (33·8%, 29·5–38·5), followed by anxiety disorders (19·0%, 15·9–22·4), idiopathic developmental intellectual disability (IDID; 10·8%, 6·3–15·9), schizophrenia (9·8%, 7·7–12·4), bipolar disorder (6·9%, 4·9–9·6), conduct disorder (5·9%, 4·0–8·1), autism spectrum disorders (3·2%, 2·7–3·8), eating disorders (2·2%, 1·7–2·8), and attention-deficit hyperactivity disorder (ADHD; 0·3%, 0·2–0·5); other mental disorders comprised 8·0% (6·1–10·1) of DALYs. Almost all (>99·9%) of these DALYs were made up of YLDs. The DALY rate point estimates of mental disorders with onset predominantly in childhood and adolescence (IDID, conduct disorder, autism spectrum disorders, and ADHD) were higher in low SDI states than in middle SDI and high SDI states in 2017, whereas the trend was reversed for mental disorders that manifest predominantly during adulthood. Although the prevalence of mental disorders with onset in childhood and adolescence decreased in India from 1990 to 2017, with a stronger decrease in high SDI and middle SDI states than in low SDI states, the prevalence of mental disorders that manifest predominantly during adulthood increased during this period. Interpretation One in seven Indians were affected by mental disorders of varying severity in 2017. The proportional contribution of mental disorders to the total disease burden in India has almost doubled since 1990. Substantial variations exist between states in the burden from different mental disorders and in their trends over time. These state-specific trends of each mental disorder reported here could guide appropriate policies and health system response to more effectively address the burden of mental disorders in India. Funding Bill & Melinda Gates Foundation; and Indian Council of Medical Research, Department of Health Research, Ministry of Health and Family Welfare, Government of India.
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- 2020
50. Re: AB (Termination of Pregnancy) [2019] EWCA CIV 1215: ‘Wishes and Feelings’ Under the Mental Capacity Act 2005
- Author
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Lisa Cherkassky
- Subjects
Pregnancy ,Common law ,Pregnant patient ,media_common.quotation_subject ,Persons with Mental Disabilities ,Perspective (graphical) ,Appeal ,Medicine (miscellaneous) ,Abortion, Induced ,Patient Preference ,Best interests ,medicine.disease ,Feeling ,Mentally Ill Persons ,Mental capacity ,medicine ,Mental Competency ,Psychology ,Law ,Social psychology ,media_common - Abstract
In Re: AB (Termination of Pregnancy), the Court of Appeal was asked to consider an assumption made about the future living arrangements of a pregnant patient, and the weight to be ascribed to her wishes and feelings when she had no real understanding of her predicament. This commentary explores the importance of taking into account the perspective of the patient, even if suffering from a mental disorder, and it will analyse the existing common law to show that the weaker the ability of the patient to form her own wishes and feelings, the more appropriate it would be to rely on the remaining evidence.
- Published
- 2020
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