21 results on '"Pusa S"'
Search Results
2. Palliativ vård vid vård-och omsorgsboenden innan COVID-19 pandemin
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Melin-Johansson, Christina, Österlind, J., Bisholt, B., Pusa, S., Lundh Hagelin, C., Melin-Johansson, Christina, Österlind, J., Bisholt, B., Pusa, S., and Lundh Hagelin, C.
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- 2023
3. Estimation of human exposure to natural radionuclides by using in vivo skull measurements
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T. Haninger, Muikku M, Paul Roth, T. Rahola, Salonen L, Pusa S, W. Wahl, and D. Kucheida
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Male ,Chronic exposure ,Water Pollutants, Radioactive ,Statistics as Topic ,Urine ,Radiation Dosage ,In vivo ,Humans ,Radiology, Nuclear Medicine and imaging ,Nuclide ,Child ,Radiometry ,Finland ,Radionuclide ,Radiation ,Radiological and Ultrasound Technology ,Chemistry ,business.industry ,Skull ,Radiochemistry ,Public Health, Environmental and Occupational Health ,Gamma ray ,Environmental Exposure ,Lead Radioisotopes ,General Medicine ,Natural uranium ,Human exposure ,Uranium ,Female ,Nuclear medicine ,business - Abstract
In a preliminary study, in vivo skull measurements and in vitro urine measurements of 210 Pb and nat U have been performed to find out the individual, chronic exposure to waterborne natural radionuclides of a small group of Finnish people. For their domestic water, the studied individuals use water from drilled wells containing elevated concentrations of natural uranium and its daughter nuclides ( 234,235,238 U, 222 Rn, 226,228 Ra, 210 Po, 210 Pb). Enhanced 210 Pb and 235 U activities were observed in several people. A positive correlation is observed between the U concentration in urine (μg d -1 ) and the number of counts (cpm) in the gamma ray energy peaks originating from the decay of 235 U and 234 Th respectively. Calibration of the detector setup and the determination of background sources are in progress.
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- 2003
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4. Estimation of human exposure to natural radionuclides by using in vivo skull measurements
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Muikku, M., primary, Rahola, T., additional, Pusa, S., additional, Salonen, L., additional, Wahl, W., additional, Roth, P., additional, Haninger, T., additional, and Kucheida, D., additional
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- 2003
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5. Comparison of chromogenic substrates for tissue plasminogen activator and the effects on the stability of plasminogen activator inhibitor type-1
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Ehnebom, J., Pusa, S., Björquist, P., and Deinum, J.
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- 1997
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6. Online education in palliative care - A national exploratory multimethod study.
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Hagelin CL, Melin-Johansson C, Österlind J, Bisholt B, and Pusa S
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- Humans, Sweden, Surveys and Questionnaires, Qualitative Research, Internet, Female, Male, Palliative Care methods, Palliative Care standards, Education, Distance methods, Education, Distance standards
- Abstract
Background: With an increased number of people living with multiple progressive diseases, online education courses have been created to address the growing need for competence in palliative care. However, there is limited knowledge about the form and content of these courses, or of participants' experiences. This study aims to map the status, content, and evaluation of online palliative care courses in Sweden., Methods: This exploratory study used both quantitative and qualitative methods. The study process involved searching for online palliative care courses on the web and through contact with Swedish palliative care organisations, and then participating in these courses, surveying education providers, and analysing and validating responses. Quantitative data were analysed using descriptive statistics, while thematic analysis was applied to the free-text responses., Results: Nine online courses provided by five different organisations were mapped. These courses educated over 30 000 healthcare professionals, predominantly assistant nurses and registered nurses. There was a large discrepancy between the number of people who enrolled in and the number who completed the online courses. Shortcomings identified related to lack of systematic evaluation from the participants' perspectives, if and how knowledge was integrated into clinical practice, and difficulties in making the courses sustainable., Conclusion: Overarching and national systems for online education are needed. These would require sustainability considerations and guidelines for implementation, evaluation and follow-up of non-university-based online educational initiatives in palliative care. In addition, it is crucial for employers to support professionals undergoing such education, ensuring that they are given opportunities to share their feelings and discuss any challenging thoughts that arise during and after the course., Competing Interests: Declarations. Human ethics and consent to participate: Permission from Ethical Review Authority was not obtained as this is not a clinical trial and we did not collect sensitive personal data that could be traced back to an individual, nor did we collect data on patients. This means that no intervention was carried out on a research subject or other intervention as specified in Sect. 4 of the Swedish Ethical Review Act. There will be no processing of personal data as specified in Sect. 3 in the same Ethical Review Act. Considering this, the study is not covered by the provisions of permissions from the Swedish Ethical Review Authority. However, this study was conducted in accordance with the Helsinki Declaration for Human Research and the International Conference on Harmonisation (ICH) guidance on Good Clinical Practice (GCP). Written information was given to the online education providers regarding the study purpose and that the provision of information was voluntary. Written consent was obtained from the online education provider who shared their evaluating data. These were data collected by the education providers from the online course participants and were anonymous, i.e., neither the education provider nor the research team had access to any personal identification information. Consent for publication: Not applicable. Competing interests: The authors declare no competing interests., (© 2024. The Author(s).)
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- 2024
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7. Nurses' Experiences of Communicating With Families in Municipal Home Health Care.
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Bruce E, Pusa S, and Sundin K
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- Humans, Sweden, Female, Adult, Male, Nurses psychology, Middle Aged, Professional-Family Relations, Interviews as Topic, Home Care Services standards, Qualitative Research, Communication, Family psychology
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Aim: To illuminate nurses' experiences of communicating with families in home health care., Design: A qualitative inductive approach., Background: An increasing number of ageing and sick people are being granted home health care. Nurses' duties involve caring for both patients and their families, which includes the important task of meeting and talking with them., Methods: Fourteen registered nurses working in home health care in Sweden participated in individual narrative semistructured interviews. The interviews were analysed with content analysis. To make sure all components of the study were clear, the Standards for Reporting Qualitative Research checklist was used as a guide., Result: Communication with families was viewed as a crucial action for building rapport to facilitate the involvement and support of families in difficult situations. The nurses highlighted the struggles they sometimes faced in communication when they found it difficult to reach the family. When the communication was supportive for the family, the nurses felt that they were empowering the family members to empower themselves., Conclusion: This study highlights the vital role of communication in home health care nursing. Effective communication fosters trust and enables nurses to meet family needs., Implications for the Profession: Effective communication between nurses and families in home health care is crucial from a health care perspective. Building reciprocal relationships fosters trust, enabling nurses to efficiently identify and address family needs and enhancing the quality of care., Patient or Public Contribution: No patient or public contribution., (© 2024 The Author(s). Nursing Open published by John Wiley & Sons Ltd.)
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- 2024
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8. Core Competencies for Serious Illness Conversations: An Integrative Systematic Review.
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Pusa S, Baxter R, Andersson S, Fromme EK, Paladino J, and Sandgren A
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- Humans, Critical Illness psychology, Clinical Competence standards, Communication, Physician-Patient Relations
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Objective: The Serious Illness Care Program was developed to support goals and values discussions between seriously ill patients and their clinicians. The core competencies , that is, the essential clinical conversation skills that are described as requisite for effective serious illness conversations (SICs) in practice, have not yet been explicated. This integrative systematic review aimed to identify core competencies for SICs in the context of the Serious Illness Care Program. Methods: Articles published between January 2014 and March 2023 were identified in MEDLINE, PsycINFO, CINAHL, and PubMed databases. In total, 313 records underwent title and abstract screening, and 96 full-text articles were assessed for eligibility. The articles were critically appraised using the Joanna Briggs Institute Critical Appraisal Guidelines, and data were analyzed using thematic synthesis. Results: In total, 53 articles were included. Clinicians' core competencies for SICs were described in 3 themes: conversation resources, intrapersonal capabilities, and interpersonal capabilities. Conversation resources included using the conversation guide as a tool, together with applying appropriate communication skills to support better communication. Intrapersonal capabilities included calibrating one's own attitudes and mindset as well as confidence and self-assurance to engage in SICs. Interpersonal capabilities focused on the clinician's ability to interact with patients and family members to foster a mutually trusting relationship, including empathetic communication with attention and adherence to patient and family members views, goals, needs, and preferences. Conclusions: Clinicians need to efficiently combine conversation resources with intrapersonal and interpersonal skills to successfully conduct and interact in SICs., Competing Interests: Declaration of Conflicting InterestsSeveral authors (SA, AS, JP, and EKF) authored articles that were reviewed in this study. These authors were not involved in the article selection, data extraction or quality appraisal processes. EKF and JP are faculty in Ariadne Labs’ Serious Illness Care Program.
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- 2024
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9. Experiences, behaviours, and perspectives of young cancer survivors on physical activity.
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Thomas E, Di Bartolo L, Galioto M, Seminara D, Pusa S, Baxter R, Ortega-Gómez S, Jiménez-Pavón D, Vasilopoulou M, Vantarakis A, Tavares P, Campos MJ, Thaller P, Thaller J, Papakonstantinou S, Kirkar M, Vivirito S, Glorioso F, Iannitto E, Lo Mauro M, and Bianco A
- Abstract
This narrative review aimed to identify young cancer survivors' behaviours, experiences, and perspectives concerning physical activity, and identify useful strategies for promoting a healthy lifestyle. A manual search on the following databases was conducted: PubMed, Scopus, and Web of Science. The search was conducted between June 1, 2023, and April 12, 2024. Articles published from database inception up to April 12, 2024, were retrieved. Articles published in any language were considered. Perspectives including ideas, perceived barriers, and facilitators have been identified. Young cancer survivors seem to engage in physical activity as a useful coping strategy to regain normality and keep healthy after the cancer diagnosis. Although emotional and social support seems fundamental to increase participation, several other factors, including physical limitations, fatigue, sex, cancer type, and socio-economic status can influence physical activity participation. For those engaged in physical activity, the preferred activities are walking, biking, going to the gym, and exercising at home, while the least preferred are exercising at the hospital or boot camp-based exercises. Yoga is more frequently chosen by those still under treatment. Young cancer survivors appear to have unique needs different from those of adult cancer survivors. Mode of treatment delivery, increased awareness concerning the effects of physical activity, including families and friends, connecting survivors, and providing social support together with increasing motivation are key strategies for the promotion of physical activity in young cancer survivors. Fitness and healthcare professionals should consider these aspects to increase young cancer survivors' involvement in physical activities., Competing Interests: The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (© 2024 The Authors.)
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- 2024
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10. Perils and payoffs for patients in serious illness conversations as described by physicians: a qualitative study.
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Baxter R, Pusa S, Andersson S, and Sandgren A
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- Humans, Sweden, Male, Female, Middle Aged, Attitude of Health Personnel, Adult, Quality Improvement, Critical Illness psychology, Qualitative Research, Focus Groups methods, Physician-Patient Relations, Physicians psychology, Physicians statistics & numerical data, Communication
- Abstract
Background: The Serious Illness Care Programme was developed to promote more, better and earlier serious illness conversations. Conversations about goals and values are associated with improved experiences and outcomes for seriously ill patients. Clinicians' attitudes and beliefs are thought to influence the uptake and performance of serious illness conversations, yet little is known about how clinicians perceive the impact of these conversations on patients. This study aimed to explore physicians' perceptions regarding the impact of serious illness conversations for patients., Methods: The Serious Illness Care Programme was implemented as a quality improvement project in two hospitals in Southern Sweden. Focus group evaluation discussions were conducted with 14 physicians and inductive thematic analysis was undertaken., Results: The results revealed that physicians considered potential perils and optimised potential payoffs for patients when engaging in serious illness conversations. Potential perils encompassed inappropriate timing, damaging emotions and shattering hopes. Potential payoffs included reflection time, secure space, and united understandings., Conclusions: Physicians depicted a balance in evaluating the perils and payoffs of serious illness conversations for patients and recognised the interrelation of these possibilities through continual assessment and adjustment., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2024
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11. Effects of resistance training on sleep quality and disorders among individuals diagnosed with cancer: A systematic review and meta-analysis of randomized controlled trials.
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Maric D, Ficarra S, Di Bartolo L, Rossi C, Asimakopoulou Z, Vantarakis A, Carbonell-Baeza A, Jiménez-Pavón D, Gomes B, Tavares P, Baxter R, Pusa S, Thaller P, Papakonstantinou S, Kirkar M, Glorioso F, Galioto M, Gentile A, Thomas E, and Bianco A
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- Humans, Sleep Wake Disorders therapy, Sleep Wake Disorders etiology, Sleep Initiation and Maintenance Disorders therapy, Sleep Initiation and Maintenance Disorders etiology, Male, Female, Resistance Training methods, Neoplasms complications, Neoplasms therapy, Randomized Controlled Trials as Topic, Cancer Survivors, Sleep Quality
- Abstract
Background: Sleep disorders are often complained by cancer patients and can last years after the end of therapies, leading to different negative consequences. Non-pharmacological strategies such as exercise interventions may be considered to counteract this phenomenon. The literature supports the beneficial effects of aerobic training (AT), while evidence on resistance training (RT) is scarce. Accordingly, our systematic review aims to investigate the potential novel effect of RT on sleep outcomes in cancer survivors., Methods: The literature search was conducted on MEDLINE (Pubmed), Web of Science, Scopus, and Cochrane Central Register of Controlled Trials databases, including only randomized controlled trials (RCTs). The screening procedure was conducted using the web-based software COVIDENCE. Sleep outcomes assessed through self-reported questionnaires or objective sleep measurements were extracted from RCTs recruiting cancer survivors of any age and gender, on or off treatment. The risk of bias (RoB) for each study was assessed using the Cochrane RoB 2 tool for RCTs. Meta-analytic syntheses were performed on sleep quality and insomnia., Results: A total of 21 studies were included in the review. Considering the mean percentage differences of all studies combined, promising positive results were found after combined aerobic and resistance exercise program (COMB) for sleep quality (-19%) and sleep disturbance (-17.3%). The meta-analysis results showed significant improvement for both sleep quality and insomnia (d = 0.28, SE: 0.11, Z = 2.51, p < 0.01, 95% CI: 0.07-0.49 and d = 0.43, SE: 0.20, Z = 2.18, p = 0.029, 95% CI: 0.07-0.49, respectively)., Conclusion: RT interventions of 60 minutes per session, performed 2-3 times a week for 12 weeks, with exercise intensity ranging from 60% to 80% of one-repetition maximum can be administered to cancer survivors, aiming to improve sleep outcomes., (© 2024 The Authors. Cancer Medicine published by John Wiley & Sons Ltd.)
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- 2024
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12. Core elements of serious illness conversations: an integrative systematic review.
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Baxter R, Pusa S, Andersson S, Fromme EK, Paladino J, and Sandgren A
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Background: Ariadne Labs' Serious Illness Care Program (SICP), inclusive of the Serious Illness Conversation Guide (SICG), has been adapted for use in a variety of settings and among diverse population groups. Explicating the core elements of serious illness conversations could support the inclusion or exclusion of certain components in future iterations of the programme and the guide., Aim: This integrative systematic review aimed to identify and describe core elements of serious illness conversations in relation to the SICP and/or SICG., Design: Literature published between 1 January 2014 and 20 March 2023 was searched in MEDLINE, PsycINFO, CINAHL and PubMed. All articles were evaluated using the Joanna Briggs Institute Critical Appraisal Guidelines. Data were analysed with thematic synthesis., Results: A total of 64 articles met the inclusion criteria. Three themes were revealed: (1) serious illness conversations serve different functions that are reflected in how they are conveyed; (2) serious illness conversations endeavour to discover what matters to patients and (3) serious illness conversations seek to align what patients want in their life and care., Conclusions: Core elements of serious illness conversations included explicating the intention, framing, expectations and directions for the conversation. This encompassed discussing current and possible trajectories with a view towards uncovering matters of importance to the patient as a person. Preferences and priorities could be used to inform future preparation and recommendations. Serious illness conversation elements could be adapted and altered depending on the intended purpose of the conversation., Competing Interests: Competing interests: EKF and JP are both faculty in Ariadne Labs’ Serious Illness Care Program and are authors in several of the cited papers., (© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ.)
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- 2024
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13. Translation, Adaptation, and Validation of the Swedish Serious Illness Conversation Guide.
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Andersson S, Granat L, Baxter R, Reimertz H, Modéus C, Pusa S, and Sandgren A
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- Humans, Sweden, Delivery of Health Care, Health Personnel, Critical Illness psychology, Communication, Physicians
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Objective: To translate and adapt the Serious Illness Conversation Guide for use within the Swedish healthcare setting and examine the validity and acceptability of the Swedish Serious Illness Conversation Guide. Methods: Three rounds of cognitive interviews were conducted (T1-3); patients (T1 n = 11; T2 n = 10; T3 n = 8), family members (T1 n = 5; T2 n = 2; T3 n = 2), and healthcare professionals (T1 n = 6; T2 n = 6; T3 n = 5). The guide was iteratively adapted based on interview feedback, clinical experience, and the literature. The guide was tested on training days with physicians and nurses. Results: The Swedish Serious Illness Conversation Guide was found to be useful in supporting serious illness conversations. Clinicians reported that some questions were emotionally challenging. Explicit questions about prognosis and timing were excluded. Instead, the dual approach of "hoping for the best and preparing for the worst" was used to explore patients' thoughts about the future. Conclusions: Patients, family members, and healthcare professionals found the Swedish Serious Illness Conversation Guide to be appropriate, sensitive, and responsive to their needs. The Swedish Serious Illness Conversation Guide may facilitate a more health-promoting approach to serious illness conversations. Further research is needed to understand the impact of these conversations on person-centered and goal-concordant care., Competing Interests: Declaration of Conflicting InterestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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- 2024
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14. Physicians' perceptions of the implementation of the serious illness care program: a qualitative study.
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Pusa S, Baxter R, and Sandgren A
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- Humans, Critical Care, Critical Illness therapy, Qualitative Research, Physician-Patient Relations, Communication, Physicians, Advance Care Planning
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Background: Conversations about goals, values and priorities with patients that are seriously ill are associated with improved palliative healthcare. The Serious Illness Care Program is a multi-component program that can facilitate more, better, and earlier conversations between clinicians and seriously ill patients. For successful and sustainable implementation of the Serious Illness Care Program, it is important to consider how stakeholders perceive it. The aim of our study was to explore physicians' perceptions and experiences of implementing the Serious Illness Care Program., Methods: Data were collected through four focus group discussions with physicians (n = 14) working at a hospital where the Serious Illness Care program was in the process of being implemented. Data were analyzed with inductive thematic analysis., Results: Physicians' perceptions of the implementation encompassed three thematic areas: hovering between preparedness and unpreparedness, being impacted and being impactful, and picking pieces or embracing it at all., Conclusions: This study identified key aspects related to the individual physician, the care team, the impact on the patient, and the organizational support that were perceived to influence the implementation and sustainable integration of the Serious Illness Care Program. Describing these aspects provides insight into how the Serious Illness Care Program is implemented in practice and indicates areas for future training and development., Trial Registration: Not applicable., (© 2023. The Author(s).)
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- 2023
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15. Family systems nursing conversations: influences on families with stroke.
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Pusa S, Saveman BI, and Sundin K
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Background: Since a family member's stroke affects the entire family, family systems nursing conversations (FSNCs) may be an appropriate intervention to support the family as a whole. The purpose of our study was to illuminate family members' experiences within their family situations 6 months after participating in FSNCs when a family member under 65 years of age had suffered a stroke., Methods: Fourteen semi-structured follow-up interviews were conducted with family members 6 months after they had completed a series of 3 FSNCs. The interview transcripts were subjected to qualitative content analysis., Results: Family members experienced that the FSNCs had contributed to greater understanding of each other and greater closeness in the family. The FSNCs had also facilitated a mutual understanding of the family's situation, which they could better manage and move forward with together., Conclusions: FSNCs can support relational aspects and healthy transitions within families. However, long-term follow-up research is needed to generate sound evidence and inform education about FSNCs, as well as to facilitate their implementation. As a result, families may become better able to prevent the negative outcomes of illness in the family., (© 2022. The Author(s).)
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- 2022
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16. Social processes in academic-community partnership in health care. A grounded theory study.
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Pusa S, Lind S, and Häggström M
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Background: International and national guidelines state that palliative care should be offered to everyone who needs it. To promote the implementation of palliative care in nursing homes, a partnership collaboration was initiated with the goal of implementing high quality palliative care. The partnership consisted of three partner groups: a project group from a non-profit organisation providing health care, managers at the nursing homes and an academic partner. The aim was to explore the social processes within academic-community partnership in a collaboration project., Methods: Digital focus group discussions were conducted with 16 participants, representing all three partner groups. One individual digital interview was also carried out. A constructivist perspective of a grounded theory approach was used for data analysis., Results: The core category, partnership positioning, covers the social processes of the academic-community partnership in a collaboration project to implement and evaluate health-promoting interventions in clinical health care. The core category was found to have four categories: Pre-positioning, Co-positioning, Re-positioning and GoOn-positioning. The process of partnership positioning is conceptualised in a model., Conclusions: Our findings indicate that a new partnership in an implementation project needs holistic, systemic thinking. To enhance implementation in a collaborative project involving different professionals and actors a plan is required to facilitate positioning activities. The process, the roles and the components need to be clearly defined and documented, and the management of a system requires knowledge of the interrelationships between all the components within the system. The development of a conceptual model of Partnership Positioning contributes to knowledge concerning the social dynamic processes which can be applied to support future academic-community collaboration and/or implementation projects., Trial Registration: Not applicable. The present study has not been considered as a clinical trial., (© 2021. The Author(s).)
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- 2021
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17. Evaluation of the Implementation Process of a Family Systems Nursing Approach in Home Health Care: A Mixed-Methods Study.
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Pusa S, Isaksson U, and Sundin K
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- Humans, Home Care Services
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To support the incorporation of Family Systems Nursing (FSN) in clinical practice, more understanding is needed about the implementation of FSN in home health practice settings. Thus, the aim of this study was to evaluate nurses' perspectives about the implementation process of Family Systems Nursing Conversations (FSNCs) in home health care. A mixed-methods research design was used, integrating qualitative and quantitative data, and using triangulation as a methodological metaphor. The Quality Implementation Framework (QIF) was applied to guide the implementation process, and Proctor et al.'s taxonomy of implementation outcomes was used to evaluate the process. The findings demonstrated that FSN implementation was in progress. Overall, acceptability and appropriateness of FSNCs were evaluated as positive by home health nurses; however, some obstacles were found relating to feasibility, adoption, and fidelity. These results contribute to an increased understanding of the process and challenges of implementing FSNCs in home health care.
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- 2021
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18. Nurses' perceptions about a web-based learning intervention concerning supportive family conversations in home health care.
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Pusa S, Dorell Å, Erlingsson C, Antonsson H, Brännström M, and Sundin K
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- Adult, Aged, Female, Humans, Internet, Male, Middle Aged, Qualitative Research, Young Adult, Education, Nursing, Continuing methods, Home Care Services organization & administration, Nurses psychology, Professional-Family Relations
- Abstract
Aims and Objectives: To describe the perceptions that municipal primary healthcare nurses and municipal registered nurses had about a web-based learning intervention concerning supportive family health conversations in municipal home health care., Background: Even though family health conversations are well grounded in theory with several reported benefits for patients and families, most working nurses have little or no training in practising family systems nursing including family health conversations. Continued learning is necessary for nurses, where web-based learning may be one answer of updating the professional skills and knowledge of nurses regarding supporting families., Design: The study used a descriptive design and followed the "Consolidated criteria for reporting qualitative research" (COREQ) checklist., Methods: Twenty-one nurses participated in an educational intervention that consisted of web-based learning and two face-to-face seminars about family systems nursing including family health conversations. The nurses were interviewed after completion, and the audio-recorded interviews were transcribed verbatim and analysed using qualitative content analysis., Results: The findings consist of nurses' perceptions regarding the disposition of instruction, the prerequisites for learning and a changed approach when working with families. The findings are further reflected on through Illeris' theory concerning learning triangle., Conclusions: The findings are encouraging for educating nurses in family health conversations at their workplace, with the purpose of supporting patients and families. However, it is important to be aware of the different dimensions of learning, in addition to the appraisal of social aspects and organisational circumstances when educating nurses as they influence the utilisation of the knowledge., Relevance to Clinical Practice: This web-based learning intervention seems to be suitable for educating nurses in family health conversations and could be an appropriate step towards implementing these conversations in home health care with the purpose of supporting families., (© 2018 The Authors. Journal of Clinical Nursing Published by John Wiley & Sons Ltd.)
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- 2019
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19. Envisioning the future as expressed within family health conversations by families of persons suffering from stroke.
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Sundin K, Pusa S, Jonsson C, Saveman BI, and Östlund U
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- Adult, Aged, Aged, 80 and over, Female, Humans, Male, Middle Aged, Sweden, Caregivers psychology, Communication, Family psychology, Stroke psychology
- Abstract
Background: The whole family is affected when a person suffers from stroke, but few studies have focused on families' expectations following the stroke., Objective: The aim of this study was to illuminate what persons with stroke and their family members talk about in Family Health Conversations (FamHCs) with focus on the future and how nurses leading these conversations apprehended the families' future shown in closing letters based on these conversations., Method: In this study, seven families with a member ≤65 years who had suffered a stroke participated in FamHC in their homes after the person with stroke had been discharged from the rehabilitation clinic. The FamHC comprised a series of three conversations conducted every other week and a closing letter sent by the nurses to the family to conclude the series. In this study, the third conversations were recorded and they and the closing letters were transcribed and analysed using qualitative content analysis., Result: The family members including the persons with stroke were found to be able to tell their stories and express their feelings, worries, losses, hopes and wishes for the future within the context of the Family Health Conversations. Support within the family was highlighted as essential to the satisfactory management of future situations., Conclusion: The persons with stroke and their belonging family members' vision of the future was reflected over in the light of theories about beliefs, possible selves, hope and suffering, and the findings highlight the need for broader use of family conversations to support persons with stroke and their families to manage the future., (© 2017 Nordic College of Caring Science.)
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- 2018
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20. District nurses' lived experiences of meeting significant others in advanced home care.
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Pusa S, Hägglund K, Nilsson M, and Sundin K
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- Focus Groups, Humans, Sweden, Workforce, Community Health Nursing, Home Care Services, Nursing Staff psychology
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Aim: The aim of this study was to illuminate the meanings of district nurses' lived experiences of meeting significant others in the home when giving advanced home care to patients., Methods: The data was collected through 10 audio-taped narrative focus-group interviews with 36 district nurses and interpreted using a phenomenological hermeneutic approach., Findings: Three themes emerged. The first theme, Feeling close, consists of three subthemes: Being available, Sharing understanding and Being aware. The second theme, Mediating strength, contains the subthemes Being a resource and Sharing trust. Being emotionally influenced is the third theme and involves the subthemes Experiencing emotional distress and Experiencing emotional gratitude., Conclusion: Meeting significant others as a district nurse in advanced home care means creating and maintaining a trustful relationship with significant others, both on a personal and family level, aiming to illuminate and respond to their needs and desires. The district nurses strive to reach a mutual understanding and co-operate to mediate support. Being a district nurse in advanced home care is both emotionally demanding and emotionally rewarding., (© 2014 Nordic College of Caring Science.)
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- 2015
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21. Significant others' lived experiences following a lung cancer trajectory: from diagnosis through and after the death of a family member.
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Pusa S, Persson C, and Sundin K
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- Adult, Aged, Bereavement, Female, Humans, Male, Middle Aged, Professional-Family Relations, Quality of Life, Spouses psychology, Adaptation, Psychological, Attitude to Death, Family psychology, Lung Neoplasms psychology
- Abstract
Purpose: The purpose of this study was to illuminate the meanings of significant others' lived experiences of their situation from diagnosis through and after the death of a family member as a consequence of inoperable lung cancer., Methods: The data was collected through narrative interviews from eleven significant others and interpreted using a phenomenological hermeneutic approach. KEYRESULTS: Four themes emerged: being unbalanced, being transitional, being cared for, and moving forward., Conclusion: The significant others' experiences can be viewed as a transition process, beginning with a sense of dislocation in life and continuing through struggling, enduring and conquering the consequences of the altered life situation until finally approaching a point characterized by a sense of stability. Different strategies of adjustment and adaptation to the new living conditions are considered. Furthermore, the results indicate the need to develop a framework for family-centered health care in order to enhance the wellbeing for the significant others both in the anticipatory grief phase and during the bereavement phase., (Copyright © 2011 Elsevier Ltd. All rights reserved.)
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- 2012
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