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3. Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences

Author

Micai, Martina, Ciaramella, Antonio, Salvitti, Tommaso, Fulceri, Francesca, Fatta, Laura Maria, Poustka, Luise, Diehm, Robert, Iskrov, Georgi, Stefanov, Rumen, Guillon, Quentin, Rogé, Bernadette, Staines, Anthony, Sweeney, Mary Rose, Boilson, Andrew Martin, Leósdóttir, Thora, Saemundsen, Evald, Moilanen, Irma, Ebeling, Hanna, Yliherva, Anneli, Gissler, Mika, Parviainen, Tarja, Tani, Pekka, Kawa, Rafal, Vicente, Astrid, Rasga, Célia, Budisteanu, Magdalena, Dale, Ian, Povey, Carol, Flores, Noelia, Jenaro, Cristina, Monroy, Maria Luisa, Primo, Patricia García, Charman, Tony, Cramer, Susanne, Warberg, Christine Kloster, Canal-Bedia, Ricardo, Posada, Manuel, Scattoni, Maria Luisa, and Schendel, Diana

Abstract

The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults.

Published
2022
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4. Real-World Experiences in Autistic Adult Diagnostic Services and Post-Diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study

Author

Scattoni, Maria Luisa, Micai, Martina, Ciaramella, Antonio, Salvitti, Tommaso, Fulceri, Francesca, Fatta, Laura Maria, Poustka, Luise, Diehm, Robert, Iskrov, Georgi, Stefanov, Rumen, Guillon, Quentin, Rogé, Bernadette, Staines, Anthony, Sweeney, Mary Rose, Boilson, Andrew Martin, Leósdóttir, Thora, Saemundsen, Evald, Moilanen, Irma, Ebeling, Hanna, Yliherva, Anneli, Gissler, Mika, Parviainen, Tarja, Tani, Pekka, Kawa, Rafal, Vicente, Astrid, Rasga, Célia, Budisteanu, Magdalena, Dale, Ian, Povey, Carol, Flores, Noelia, Jenaro, Cristina, Monroy, Maria Luisa, Primo, Patricia García, Charman, Tony, Cramer, Susanne, Warberg, Christine Kloster, Canal-Bedia, Ricardo, Posada, Manuel, and Schendel, Diana

Abstract

Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.

Published
2021
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6. Autism Spectrum Disorder prevalence in Italy: A nationwide study promoted by the Ministry of Health

Author

Scattoni, Maria Luisa, primary, Fatta, Laura Maria, additional, Micai, Martina, additional, Sali, Maria Enrica, additional, Bellomo, Marina, additional, Salvitti, Tommaso, additional, Fulceri, Francesca, additional, Castellano, Angela, additional, Molteni, Massimo, additional, Gambino, Giovanna, additional, Posada, Manuel, additional, Romano, Giovanna, additional, and Puopolo, Maria, additional

Published
2023
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7. Autistic Adult Services Availability, Preferences, and User Experiences: Results From the Autism Spectrum Disorder in the European Union Survey

Author

Micai, Martina, primary, Fulceri, Francesca, additional, Salvitti, Tommaso, additional, Romano, Giovanna, additional, Poustka, Luise, additional, Diehm, Robert, additional, Iskrov, Georgi, additional, Stefanov, Rumen, additional, Guillon, Quentin, additional, Rogé, Bernadette, additional, Staines, Anthony, additional, Sweeney, Mary Rose, additional, Boilson, Andrew Martin, additional, Leósdóttir, Thora, additional, Saemundsen, Evald, additional, Moilanen, Irma, additional, Ebeling, Hanna, additional, Yliherva, Anneli, additional, Gissler, Mika, additional, Parviainen, Tarja, additional, Tani, Pekka, additional, Kawa, Rafal, additional, Pisula, Eva, additional, Vicente, Astrid, additional, Rasga, Célia, additional, Budişteanu, Magdalena, additional, Dale, Ian, additional, Povey, Carol, additional, Flores, Noelia, additional, Jenaro, Cristina, additional, Monroy, Maria Luisa, additional, Primo, Patricia García, additional, Charman, Tony, additional, Cramer, Susanne, additional, Warberg, Christine Kloster, additional, Canal-Bedia, Ricardo, additional, Posada, Manuel, additional, Schendel, Diana, additional, and Scattoni, Maria Luisa, additional

Published
2022
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8. Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project

Author

Micai, Martina, primary, Ciaramella, Antonio, additional, Salvitti, Tommaso, additional, Fulceri, Francesca, additional, Fatta, Laura Maria, additional, Poustka, Luise, additional, Diehm, Robert, additional, Iskrov, Georgi, additional, Stefanov, Rumen, additional, Guillon, Quentin, additional, Rogé, Bernadette, additional, Staines, Anthony, additional, Sweeney, Mary Rose, additional, Boilson, Andrew Martin, additional, Leósdóttir, Thora, additional, Saemundsen, Evald, additional, Moilanen, Irma, additional, Ebeling, Hanna, additional, Yliherva, Anneli, additional, Gissler, Mika, additional, Parviainen, Tarja, additional, Tani, Pekka, additional, Kawa, Rafal, additional, Vicente, Astrid, additional, Rasga, Célia, additional, Budişteanu, Magdalena, additional, Dale, Ian, additional, Povey, Carol, additional, Flores, Noelia, additional, Jenaro, Cristina, additional, Monroy, Maria Luisa, additional, Primo, Patricia García, additional, Charman, Tony, additional, Cramer, Susanne, additional, Warberg, Christine Kloster, additional, Canal-Bedia, Ricardo, additional, Posada, Manuel, additional, Scattoni, Maria Luisa, additional, and Schendel, Diana, additional

Published
2021
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9. Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences

Author

Micai, Martina, primary, Ciaramella, Antonio, additional, Salvitti, Tommaso, additional, Fulceri, Francesca, additional, Fatta, Laura Maria, additional, Poustka, Luise, additional, Diehm, Robert, additional, Iskrov, Georgi, additional, Stefanov, Rumen, additional, Guillon, Quentin, additional, Rogé, Bernadette, additional, Staines, Anthony, additional, Sweeney, Mary Rose, additional, Boilson, Andrew Martin, additional, Leósdóttir, Thora, additional, Saemundsen, Evald, additional, Moilanen, Irma, additional, Ebeling, Hanna, additional, Yliherva, Anneli, additional, Gissler, Mika, additional, Parviainen, Tarja, additional, Tani, Pekka, additional, Kawa, Rafal, additional, Vicente, Astrid, additional, Rasga, Célia, additional, Budişteanu, Magdalena, additional, Dale, Ian, additional, Povey, Carol, additional, Flores, Noelia, additional, Jenaro, Cristina, additional, Monroy, Maria Luisa, additional, Primo, Patricia García, additional, Charman, Tony, additional, Cramer, Susanne, additional, Warberg, Christine Kloster, additional, Canal-Bedia, Ricardo, additional, Posada, Manuel, additional, Scattoni, Maria Luisa, additional, and Schendel, Diana, additional

Published
2021
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11. Usefulness of conventional transbronchial needle aspiration in the diagnosis, staging and molecular characterization of pulmonary neoplasias by thin-prep based cytology: experience of a single oncological institute

Author

Ramieri, Maria Teresa, primary, Marandino, Ferdinando, additional, Visca, Paolo, additional, Salvitti, Tommaso, additional, Gallo, Enzo, additional, Casini, Beatrice, additional, Giordano, Francesca Romana, additional, Frigieri, Claudia, additional, Caterino, Mauro, additional, Carlini, Sandro, additional, Rinaldi, Massimo, additional, Ceribelli, Anna, additional, Pennetti, Annarita, additional, Alò, Pier Luigi, additional, Marino, Mirella, additional, Pescarmona, Edoardo, additional, and Filippetti, Massimo, additional

Published
2016
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