1. Earnings losses in young-onset dementia: Population-based study with admin data.
- Author
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Bagnasco G, Bakx P, Licher S, van Exel J, and Wouterse B
- Subjects
- Humans, Male, Female, Middle Aged, Income statistics & numerical data, Social Security statistics & numerical data, Social Security economics, Insurance, Disability statistics & numerical data, Insurance, Disability economics, Adult, Dementia economics, Dementia epidemiology, Age of Onset, Employment statistics & numerical data
- Abstract
Introduction: Young-onset dementia is often diagnosed late, leaving gaps in understanding its impact on employment, income, and social security., Methods: Analyzing health insurance claims and medical records, we studied 16,010 young-onset dementia cases and 129,616 matched controls. Using a non-parametric event study, we assessed earnings, earnings plus benefits, employment losses, and benefit use, considering demographic and socio-economic factors., Results: Earnings fell by 58.7% in the years prior to dementia identification, totaling €144,013 in losses, and earnings plus benefits decreased by 20.7% (€68,533). We observed a 35.5 percentage point decrease in employment, a 23.9 percentage point increase in disability insurance, and a 2.7 percentage point rise in welfare benefit use. Primary education and lack of a partner correlated with higher earning losses and lower disability insurance uptake., Discussion: Early diagnosis and robust social support systems are vital to alleviate the financial and professional challenges faced by individuals with dementia under age 65., Highlights: Working-age persons experience job loss at least 21 years before dementia identification. Job loss is linked to 59% (€16,643) earnings drop 16 years before dementia identification. Losses in earning were not fully compensated by social insurance. A generous social insurance system eases the financial impact of young-onset dementia. Attention is needed in the work environment and on disability benefit decisions., (© 2025 The Author(s). Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.)
- Published
- 2025
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