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Approximately 70,000 Italians live with urinary or intestinal stomas, primarily due to cancer, chronic inflammatory intestinal diseases, and trauma. These individuals face physical, psychological, and social challenges, reducing their quality of life. No study has yet mapped this situation in Italy. The ONIS-STOMA study aims to collect sociodemographic, clinical, health status, and quality of life data from patients with stomas to identify pathways and interventions for improving clinical outcomes and overall quality of life. This multicenter observational prospective study will involve at least four centers and adhere to the Strengthening the Reporting of Observational Studies in Epidemiology Checklist. Eligible participants are adults with temporary or permanent intestinal or urinary stomas attending specialized outpatient clinics. Data will be collected via ONIS, a dedicated online platform. Descriptive and correlation analyses will be conducted, targeting a sample size of 3,000-6,000 patients.•The study will provide valuable insights into the lives of patients with stomas in Italy, guiding personalized interventions.•The number of patients with stomas is expected to increase due to the aging population and rising prevalence of chronic conditions.•The registry could enroll patients to monitor their progress and provide decision-makers with information on the overall health status of this population., Competing Interests: The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (© 2024 The Authors. Published by Elsevier B.V.)

Competing Interests: Conflict of interest: The Authors declare no conflict of interest.

Background: The ostomy patient's quality of life also depends on their peristomal health and thus first and foremost on keeping healthy peristomal skin. This is by no means an easy task, given that the incidence of peristomal skin disorders can be a factor in up to 80% of cases. Over the past 15 years, several tools have been developed to classify peristomal skin lesions to facilitate the management of the problem. These tools, however, meet the needs of healthcare professionals and those of patients. Hence the decision to work on an advanced version of the SACS © , currently the most widely used tool, with the setting up of the SACS Evolution Consensus Group., Methods: By applying the simplified Delphi method, the SACS Evolution Consensus Group critically re-read what had been garnered from the literature in the light of their personal clinical experience, identified the key issues to be addressed, and processed and refined the relevant statements. This made it possible to achieve the challenging objective of creating a peristomal health tool to help prevent peristomal skin lesions., Results: SACS Evolution is, indeed, a promising tool for preventing peristomal lesions. It is structured on two different levels, one for the patient and one for the healthcare professional, each characterized by specific language and based on an innovative concept of healthy peristomal skin, which is essential for those who work on peristomal health., Conclusions: The SACS Evolution Consensus Group thus aims to validate this peristomal health tool and has already started a validation process so that the tool can be used in clinical practice.

Subjects undergoing ostomy are increasing and share a reduced quality of life. The patient flow (PF) is the pathway of a patient from hospital admission to discharge and should provide care appropriateness to the patient himself. In the recent literature no paper exists regarding the PF of the patient undergoing (intestinal or urinary) ostomy, which is the objective of the present article. This paper stems from the work done during the Educational Camp entitled "The Patient Flow in Stoma Care," which took place on three separate days (27 th May, 18 th September, and 21 st November 2019) at B. Braun Milano S.p.A. and regarded 33 stomatherapy nurses from all over Italy supervised by the authors. The participants, divided into heterogeneous groups, developed the PF by means of three specific work methodologies: mental maps, timeline and appreciative inquiry. The elaborated PF was inspired to the International Charter of the Ostomates' Rights. The efficacious and empathic communication and the role of the patient and/or the caregiver as the main characters are transversal to every step and must be always pursued. The PF is developed in eight macro-areas: diagnosis; pre-admission; admission and preoperative phase; surgical operation; awakening; postoperative phase; discharge; follow-up. In agreement with the recent literature, this systematic approach will give benefits to the patients in terms of outcome and perception of taking charge before, during and after the ostomy. At the same time the performances, the therapeutic appropriateness, the optimization of technology and healthcare resources and the staff satisfaction will equally be guaranteed.