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Your search keyword '"Tapia, Carolina Barnett"' showing total 19 results
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19 results on '"Tapia, Carolina Barnett"'

1. First Cross-sectional Analysis from the ME&MGopen Study: A Decentralized Study on App-based Myasthenia Gravis (P4-11.005)

Author

Tapia, Carolina Barnett, primary, Lehnerer, Sophie, additional, Ahamada, Laïtissia, additional, Carment, Loic, additional, Drareni, Kenza, additional, Drouin, Pierre, additional, Gorin, Clarissa, additional, Ravindra, Dellini, additional, Cuq, Emma Touré, additional, Vivès, Alizé, additional, Aras, Emrah, additional, Keller, Martin, additional, Zinaï, Saad, additional, and Howard, James, additional

Published
2024
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2. Amyotrophic Lateral Sclerosis–Bulbar Dysfunction Index–Remote: Test–Retest and Interrater Reliability of Candidate Items

Author

Bouvier, Liziane, primary, Green, Jordan R., additional, Tapia, Carolina Barnett, additional, Tilton-Bolowsky, Victoria, additional, Maffei, Marc F., additional, Fless, Zuzana, additional, Seaver, Katie, additional, Huynh, Anna, additional, Gutz, Sarah E., additional, Martino, Rosemary, additional, Abrahao, Agessandro, additional, Berry, James, additional, Zinman, Lorne, additional, and Yunusova, Yana, additional

Published
2023
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6. Face and content validation of the amyotrophic lateral sclerosis--Bulbar dysfunction index (ALS-BDI).

Author

Yunusova, Yana, Waito, Ashley, Tapia, Carolina Barnett, Huynh, Anna, Martino, Rosemary, Abrahao, Agessandro, Pattee, Gary L., Berry, James D., Zinman, Lorne, and Green, Jordan R.

Subjects
AMYOTROPHIC lateral sclerosis, COGNITIVE interviewing, SPEECH therapists, PSYCHOMETRICS, TEST validity
Abstract

Purpose: Early detection and tracking of bulbar dysfunction in amyotrophic lateral sclerosis (ALS) are critical for directing management of the disease. Existing physiological assessments of bulbar dysfunction are often inaccessible and cost-prohibitive for clinical application. Existing clinical assessments are limited. The overall goal of our research is to develop a brief and reliable, clinician-administered assessment tool, the ALS Bulbar Dysfunction Index (ALS-BDI) to evaluate bulbar dysfunction. The aim of this study was to establish content and face validity of the ALS-BDI through itemgeneration and reduction, including item scoring. Methods: The design of the ALS-BDI followed guidelines outlined by the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN). The design stage of the ALS-BDI involved two steps: (Step 1) the generation of candidate items from a literature review of commonly used clinical tools, and selection of items following a review of item reliability and item relevance and expert consensus; (Step 2) the assessment of their content and face validity via online survey feedback from experts (n = 35). The initial design was followed by a semi-structured cognitive interview with Speech-Language Pathologists (n = 5) to finalize a testable draft of the instrument. Results: Two drafts of the ALS-BDI were developed. The first draft contained 48 items, after a review of existing clinical tools for their relevance to bulbar dysfunction in ALS. Of the 48 items, 35 items were retained after surveying experts and clinician users for their relevance, feasibility, interpretability, and appropriateness. The second draft of the ALS-BDI contained 37 items, due to one item splitting, based on users cognitive interviews. Conclusions: The ALS-BDI described in this study aims to provide a brief and reliable, clinician-administered assessment tool to evaluate bulbar dysfunction in patients with ALS. Future research will evaluate the psychometric properties of this tool including its reliability, validity, and responsiveness to change over time. [ABSTRACT FROM AUTHOR]

Published
2023
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