442 results on '"Taylor, Julie P."'
Search Results
2. Exploring Parent and Autistic Youth Perspectives to Inform Adaptations for an Advocacy Program
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Burke, Meghan M., Johnston, Amanda N., Ramos-Torres, Saury, Singh, Sanskriti, DaWalt, Leann Smith, and Taylor, Julie Lounds
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- 2025
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3. Pushing the boundaries of rare disease diagnostics with the help of the first Undiagnosed Hackathon
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Delgado-Vega, Angelica Maria, Cederroth, Helene, Taylan, Fulya, Ekholm, Katja, Ek, Marlene, Thonberg, Håkan, Jemt, Anders, Nilsson, Daniel, Eisfeldt, Jesper, Bilgrav Saether, Kristine, Höijer, Ida, Akgun-Dogan, Ozlem, Asano, Yui, Barakat, Tahsin Stefan, Batkovskyte, Dominyka, Baynam, Gareth, Bodamer, Olaf, Chetruengchai, Wanna, Corcoran, Pádraic, Couse, Madeline, Danis, Daniel, Demidov, German, Dohi, Eisuke, Erhardsson, Mattias, Fernandez-Luna, Luis, Fujiwara, Toyofumi, Garg, Neha, Giugliani, Roberto, Gonzaga-Jauregui, Claudia, Grigelioniene, Giedre, Groza, Tudor, Gunnarsson, Cecilia, Hammarsjö, Anna, Hammond, Charles Kumi, Hatirnaz Ng, Özden, Hesketh, Sirisha, Hettiarachchi, Dineshani, Johansson Soller, Maria, Kirmani, Umn Ahmed, Kjellberg, Martin, Kvarnung, Malin, Kvlividze, Oleg, Lagerstedt-Robinson, Kristina, Lasko, Paul, Lassmann, Timo, Lau, Lynette Y. S., Laurie, Steven, Lim, Weng Khong, Liu, Zhandong, Lysenkova Wiklander, Mariya, Makay, Prince, Maiga, Alassane Baneye, Maya-González, Carolina, Meyn, M. Stephen, Neethiraj, Ramprasad, Nigro, Vincenzo, Nordgren, Felix, Nordlund, Jessica, Orrsjö, Sara, Ottosson, Jesper, Ozbek, Ugur, Özdemir, Özkan, Partin, Clyde, Pearce, David A., Peck, Raquel, Pedersen, Annie, Pettersson, Maria, Pongpanich, Monnat, Posada de la Paz, Manuel, Ramani, Arun, Romero, Juan Andres, Romero, Vanessa I., Rosenquist, Richard, Saw, Aung Min, Spencer, Matthew, Stattin, Eva-Lena, Srichomthong, Chalurmpon, Tapia-Paez, Isabel, Taruscio, Domenica, Taylor, Julie P., Tkemaladze, Tinatin, Tully, Ian, Tümer, Zeynep, van Zelst-Stams, Wendy A. G., Verloes, Alain, Västerviga, Emma, Wang, Sailan, Yang, Rachel, Yamamoto, Shinya, Yépez, Vicente A., Zhang, Qing, Shotelersuk, Vorasuk, Wiafe, Samuel Agyei, Alanay, Yasemin, Botto, Lorenzo D., Kirmani, Salman, Lumaka, Aimé, Palmer, Elizabeth Emma, Puri, Ratna Dua, Wirta, Valtteri, Lindstrand, Anna, Buske, Orion J., Cederroth, Mikk, and Nordgren, Ann
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- 2024
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4. Investigating College Students' and Instructors' Perspectives on Adopting Technologies for Public Speaking Skills Development in a Hispanic Serving University
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Cheng, Ying, Boyraz, Maggie, Taylor, Julie L., and Gilbert, Rosemarie
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Technology has been shown to reduce students' public speaking anxiety, enhance their delivery skills, and increase presentation self-efficacy. However, students can only garner benefits if technology designed for improving public speaking skills has been adopted and implemented. This study aims to analyze the relationship between students' communication competence, perceived technology features, technology satisfaction, and intention to use technology designed for improving public speaking. In addition, we examined instructors' insights into incorporating such technologies for public speaking into classrooms. Based on the technology acceptance model (TAM), the study focuses on decision-making surrounding the adoption of two technologies for public speaking (a video-based technology that facilitates real-time feedback from humans, and an AI-based technology for automatic feedback) in a Hispanic-Serving Institution. A quantitative survey with students (n = 80) and a qualitative survey with instructors (n = 11) were conducted. Findings of a path analysis indicate that students with lower levels of competence in communication tended to find public speaking technologies more useful. Moreover, students' perceived technology usefulness and ease of use were positively associated with intentions of future technology use through technology satisfaction. Additionally, a qualitative analysis of instructors' responses revealed that technologies could be helpful for teaching public speaking if they assist rather than replace instructors in offering feedback.
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- 2023
5. Patterns and correlates of two-year changes in depressive symptoms for autistic adults.
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Zheng, Shuting, Farmer, Cristan, Taylor, Julie, Adams, Ryan, Olson, Lindsay, and Bishop, Somer
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depression ,employment ,income level ,longitudinal trajectories ,school - Abstract
BACKGROUND: Autistic adults are at elevated risk for depression. However, longitudinal data on the trajectory of depressive symptoms and its associated factors in autistic adults are scarce. METHODS: A community sample of 315 autistic adults participated in a two-year longitudinal study from the beginning of (March 2020) to the recovery from the COVID-19 pandemic (March 2022). They provided five waves of data on self-reported depressive symptoms and sociodemographic and life circumstances information. RESULTS: Multilevel model results showed that autistic adults reported large between-individual variability in self-reported depressive symptoms, and on average, they experienced an increase (i.e., worsening) in self-reported depressive symptoms over the two years of the study. Autistic adults with a depression history and lower annual household income reported higher levels of depressive symptoms. More importantly, autistic adults reported lower depressive symptoms when they were engaged in work or school, and those who had higher levels of depressive symptoms at the start of the study were more reactive to changes in work or school participation. CONCLUSIONS: Findings from the current study have implications for potential venues of depression treatment in autistic adults around promoting employment/education, providing symptom monitoring, and addressing mental health disparities for those with lower incomes.
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- 2024
6. Measuring what Matters: Considerations for the Measurement of Services for Individuals with Autism
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Burke, Meghan M., Cheung, W. Catherine, Best, Megan, DaWalt, Leann S., and Taylor, Julie Lounds
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- 2024
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7. Challenges and Opportunities for Clinician Implicit Bias Training: Insights from Perinatal Care Stakeholders
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Garrett, Sarah B, Jones, Linda, Montague, Alexandra, Fa-Yusuf, Haleemat, Harris-Taylor, Julie, Powell, Breezy, Chan, Erica, Zamarripa, Stephen, Hooper, Sarah, and Butcher, Brittany D Chambers
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Health Services and Systems ,Midwifery ,Public Health ,Health Sciences ,Clinical Research ,Minority Health ,Women's Health ,Prevention ,Health Disparities ,Health Services ,Social Determinants of Health ,7.3 Management and decision making ,8.1 Organisation and delivery of services ,Reproductive health and childbirth ,Generic health relevance ,Good Health and Well Being ,stakeholder engagement ,implicit bias training ,maternal health ,health equity intervention ,community-based participatory research ,qualitative research ,Public health - Abstract
IntroductionIn an attempt to address health inequities, many U.S. states have considered or enacted legislation requiring antibias or implicit bias training (IBT) for health care providers. California's "Dignity in Pregnancy and Childbirth Act" requires that hospitals and alternative birthing centers provide IBT to perinatal clinicians with the goal of improving clinical outcomes for Black women and birthing people. However, there is as yet insufficient evidence to identify what IBT approaches, if any, achieve this goal. Engaging the experiences and insights of IBT stakeholders is a foundational step in informing nascent IBT policy, curricula, and implementation.MethodsWe conducted a multimethod community-based participatory research study with key stakeholders of California's IBT policy to identify key challenges and recommendations for effective clinician IBT. We used focus groups, in-depth interviews, combined inductive/deductive thematic analysis, and multiple techniques to promote rigor and validity. Participants were San Francisco Bay Area-based individuals who identified as Black or African American women with a recent hospital birth (n=20), and hospital-based perinatal clinicians (n=20).ResultsWe identified numerous actionable challenges and recommendations regarding aspects of (1) state law; (2) IBT content and format; (3) health care facility IBT implementation; (4) health care facility environment; and (5) provider commitment and behaviors. Patient and clinician insights overlapped substantially. Many respondents felt IBT would improve outcomes only in combination with other antiracism interventions.Health equity implicationsThese stakeholder insights offer policy-makers, health system leaders, and curriculum developers crucial guidance for the future development and implementation of clinician antibias interventions.
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- 2023
8. Associations between Social Experiences and Psychological Health for Autistic Youth with Low IQ
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Taylor, Julie Lounds, Sullivan, Virginia, Bishop, Somer L., Zheng, Shuting, and Adams, Ryan E.
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- 2024
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9. Self-reported Everyday Sources of Happiness and Unhappiness in Autistic Adults
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Parenteau, China I., Lampinen, Linnea A., Ghods, Sheila S., Taylor, Julie L., Adams, Ryan E., Bishop, Somer L., and Zheng, Shuting
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- 2024
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10. Perspectives on Employer-Initiated Terminations Among Young Adults on the Autism Spectrum
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Pezzimenti, Florencia, Durrani, Eman, Zheng, Shuting, Adams, Ryan E., Bishop, Somer L., and Taylor, Julie Lounds
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- 2024
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11. Self-reported Everyday Sources of Happiness and Unhappiness in Autistic Adults
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Parenteau, China I, Lampinen, Linnea A, Ghods, Sheila S, Taylor, Julie L, Adams, Ryan E, Bishop, Somer L, and Zheng, Shuting
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Clinical Research ,Mental Health ,Mind and Body ,Behavioral and Social Science ,Mental health ,Good Health and Well Being ,Mood ,Happiness ,Daily life experiences ,Autism ,Adulthood ,Qualitative study ,Education ,Psychology and Cognitive Sciences ,Developmental & Child Psychology - Abstract
PurposeDaily mood can be influenced by a range of experiences. Identifying everyday life experiences that make autistic adults happy and unhappy holds potential to foster positive mood and tackle mental health problems amongst this group.MethodsA total of 293 autistic adults between the ages of 18 to 35 years old (mean age of 26.51 years old (SD = 4.62); 43.3% female gender, 4.8% nonbinary) provided open-text responses regarding everyday sources of happiness and unhappiness. Using an iterative process of inductive coding, 14 happy themes and 22 unhappy themes of mood-changing life experiences were identified based on self-report qualitative data.ResultsCommon themes across the happy and unhappy domain involved social partners, social interactions, and engagement in recreational and employment activities, with additional distinct themes specific to happy or unhappy mood. Top themes identified in the happy domain emphasizes encouraging quality relationships and positive interactions with others and cultivating supportive work/societal environments to build a sense of achievement and value. Meanwhile, emotional tolls accompanied negative relationships and interactions, underscoring the necessity to provide autistic adults with conflict resolution and coping skills to increase feelings of happiness.ConclusionOverall, the wide range of sources of happy and unhappy everyday experiences highlights the importance of considering personal preferences in engagement with others and activities in treatment.
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- 2023
12. Perspectives on Employer-Initiated Terminations Among Young Adults on the Autism Spectrum
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Pezzimenti, Florencia, Durrani, Eman, Zheng, Shuting, Adams, Ryan E, Bishop, Somer L, and Taylor, Julie Lounds
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Pediatric ,Autism ,Intellectual and Developmental Disabilities (IDD) ,Clinical Research ,Behavioral and Social Science ,Mental Health ,Brain Disorders ,Mental health ,Good Health and Well Being ,Employer-initiated termination ,Employment ,Fired ,Job ,Work ,Education ,Psychology and Cognitive Sciences ,Developmental & Child Psychology - Abstract
Job instability is high among autistic adults, with employer-initiated terminations a common reason for job loss. The current study used qualitative methods to code reasons that autistic adults identified for their employer-initiated termination. From 315 autistic individuals ages 18-35 who completed an online survey, 93 (29.5%) reported having been terminated from a job. These individuals were asked about the reasons for their termination and responses were coded into thematic categories. Common reasons included work performance, social difficulties, attendance, and mental health challenges. Adults were more likely to attribute terminations to internal causes (related to the individual) than to external causes (environment-related). A good fit between workplace, individual preferences, skills, and abilities is likely key to promoting job continuity for autistic adults.
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- 2023
13. Patterns of sleep disturbances and associations with depressive symptoms in autistic young adults
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Lampinen, Linnea A, Zheng, Shuting, Taylor, Julie Lounds, Adams, Ryan E, Pezzimenti, Florencia, Asarnow, Lauren D, and Bishop, Somer L
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Clinical and Health Psychology ,Psychology ,Depression ,Sleep Research ,Brain Disorders ,Pediatric ,Clinical Research ,Neurosciences ,Autism ,Mental Illness ,Basic Behavioral and Social Science ,Mental Health ,Behavioral and Social Science ,Intellectual and Developmental Disabilities (IDD) ,2.3 Psychological ,social and economic factors ,2.1 Biological and endogenous factors ,Mental health ,Good Health and Well Being ,Humans ,Young Adult ,Child ,Adolescent ,Adult ,Autistic Disorder ,Autism Spectrum Disorder ,Sleep Wake Disorders ,Sleep ,delayed phase ,depression ,sleep ,sleep efficiency ,young adults ,Clinical Sciences ,Developmental & Child Psychology ,Applied and developmental psychology ,Clinical and health psychology - Abstract
Autistic individuals are at an increased risk for both sleep disturbances and depression. While studies in the general population and in autistic adults have drawn general links between sleep disturbances and mental health, few studies have examined the extent to which specific sleep problems may be implicated in the extremely high rates of depression among autistic adults. This study aimed to describe the patterns of sleep disturbances in autistic young adults, and their associations with depressive symptoms while controlling for relevant demographic factors. A sample of 304 legally independent adults (age 18-35 years old) with a childhood diagnosis of autism spectrum disorder self-reported on their average sleep behaviors during the past week and depressive symptoms on the Beck Depressive Inventory-II. A significant proportion (86.01%) of autistic young adults experienced at least one of the primary sleep disturbances of interest, including short total sleep time (39.59%), poor sleep efficiency (60.07%), and delayed sleep phase (36.18%). Additionally, lower sleep efficiency and delayed sleep phase were both associated with higher depressive symptoms. The associations between sleep and depressive symptoms identified in our study suggest that sleep treatments may hold potential for ameliorating depressive symptoms in autistic adults who also experience sleep problems. Further research using daily sleep diaries and objective measures of sleep behaviors, as well as longitudinal studies, are needed to understand how changes in sleep may relate to changes in depressive symptoms in autistic adults.
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- 2022
14. A Longitudinal RCT of P-ESDM with and without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes
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Weitlauf, Amy S., Broderick, Neill, Alacia Stainbrook, J., Slaughter, James C., Taylor, Julie Lounds, Herrington, Catherine G., Nicholson, Amy G., Santulli, Madeline, Dorris, Kristin, Garrett, LaTamara Jackson, Hopton, Michelle, Kinsman, Amy, Morton, Mary, Vogel, Ashley, Dykens, Elisabeth M., Pablo Juárez, A., and Warren, Zachary E.
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This randomized controlled trial (NCT03889821) examined Mindfulness Based Stress Reduction (MBSR) in conjunction with the Parent-implemented Early Start Denver Model (P-ESDM). A previous report described improved metrics of parental distress (Weitlauf et al. in Pediatrics 145(Supplement 1):S81-S92, 2020). This manuscript examines child outcomes. 63 children with ASD (< 36 months) and their parents received 12 P-ESDM sessions. Half of parents also received MBSR. Longitudinal examination of whole sample means revealed modest improvements in autism severity, cognitive, and adaptive skills. There was not a significant time × group interaction for children whose parents received MBSR. Future work should examine more proximal markers of child or dyadic change to enhance understanding of the impact of providing direct treatment for parents as part of early intervention initiatives.
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- 2022
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15. Job loss predicts worsening depressive symptoms for young adults with autism: A COVID‐19 natural experiment
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Taylor, Julie Lounds, Adams, Ryan E, Pezzimenti, Florencia, Zheng, Shuting, and Bishop, Somer L
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Clinical and Health Psychology ,Psychology ,Mental Health ,Intellectual and Developmental Disabilities (IDD) ,Brain Disorders ,Depression ,Behavioral and Social Science ,Autism ,Pediatric ,Clinical Research ,Aetiology ,2.3 Psychological ,social and economic factors ,Mental health ,Good Health and Well Being ,Decent Work and Economic Growth ,Autism Spectrum Disorder ,Autistic Disorder ,COVID-19 ,Humans ,SARS-CoV-2 ,United States ,Young Adult ,adults ,autism spectrum disorder ,depression ,employment ,Clinical Sciences ,Neurosciences ,Developmental & Child Psychology ,Applied and developmental psychology ,Clinical and health psychology - Abstract
Adults with autism spectrum disorder (ASD) experience high rates of both unemployment and depression. Though job loss predicts increased risk of depression in the general population, studies have yet to directly examine this relationship among individuals with ASD. With the backdrop of rising unemployment due to COVID-19, we used a longitudinal design to examine whether employment changes predicted increasing depressive symptoms among young adults with ASD. Online surveys were collected from young adults with ASD at two times: just before widespread social distancing measures were adopted in the United States, and again 10 weeks later. Both time points included measurement of depressive symptoms (Beck Depression Inventory-2). At Time 2, COVID-related employment changes and the perceived impact of those changes on well-being were collected. Of the young adults who were employed at Time 1 (n = 144), over one-third (37.5%) reported employment changes during the first 2 months of COVID-19. Most of this change was job loss or reductions in hours or pay ("job loss/reduction"). Controlling for Time 1 depressive symptoms, young adults who experienced job loss/reduction had significantly higher depressive symptoms at Time 2 than those without an employment change. Individuals' perceived impact of employment change also predicted depressive symptoms. These findings suggest that losing a job or experiencing reductions in hours or pay leads to worsening depressive symptoms among adults with ASD. Better supporting autistic adults in the workplace may not only decrease the likelihood of job loss, but also combat the exceedingly high rates of depression in this group. LAY SUMMARY: Though unemployment has been linked to mental health problems in the general population, this relationship is seldom considered among adults with autism. In this study, we found that adults on the autism spectrum who lost their jobs or experienced reductions in pay or hours during the first 2 months of COVID-19 had worsening depression compared to adults who did not have job changes. Our findings suggest that increasing access to employment may help alleviate poor mental health among autistic adults.
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- 2022
16. Parental Perceptions of Service Access for Transition-Aged Youth with Autism during COVID-19
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Burke, Meghan M., Cheung, W. Catherine, Li, Chak, DaWalt, Leann, Segal, Jordan, and Taylor, Julie Lounds
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Services are critical for youth with autism spectrum disorder (ASD), especially during the transition to adulthood. Under the best of circumstances, though, it can be difficult to access needed adult services. With COVID-19, services were more difficult to obtain and retain. In this study, we explored parent perceptions of accessing new services and maintaining current services during the first year of the COVID-19 pandemic. Structured interviews were conducted with 65 parents of transition-aged youth (aged 16-26) with ASD living in three states (IL, TN, and WI) in the United States. None of the participants reported receiving new services during the pandemic, and many struggled to access services via online applications. In addition, participants reported that service suspensions and changes in modality (e.g., from in-person to telehealth) were spearheaded by professionals and not families. Participants, especially those in TN, were more likely to pay out-of-pocket for services during the COVID-19 pandemic to compensate for service disruptions. Implications for research and practice are discussed.
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- 2022
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17. Variants in ZFX are associated with an X-linked neurodevelopmental disorder with recurrent facial gestalt
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Shepherdson, James L., Hutchison, Katie, Don, Dilan Wellalage, McGillivray, George, Choi, Tae-Ik, Allan, Carolyn A., Amor, David J., Banka, Siddharth, Basel, Donald G., Buch, Laura D., Carere, Deanna Alexis, Carroll, Renée, Clayton-Smith, Jill, Crawford, Ali, Dunø, Morten, Faivre, Laurence, Gilfillan, Christopher P., Gold, Nina B., Gripp, Karen W., Hobson, Emma, Holtz, Alexander M., Innes, A. Micheil, Isidor, Bertrand, Jackson, Adam, Katsonis, Panagiotis, Amel Riazat Kesh, Leila, Küry, Sébastien, Lecoquierre, François, Lockhart, Paul, Maraval, Julien, Matsumoto, Naomichi, McCarrier, Julie, McCarthy, Josephine, Miyake, Noriko, Moey, Lip Hen, Németh, Andrea H., Østergaard, Elsebet, Patel, Rushina, Pope, Kate, Posey, Jennifer E., Schnur, Rhonda E., Shaw, Marie, Stolerman, Elliot, Taylor, Julie P., Wadman, Erin, Wakeling, Emma, White, Susan M., Wong, Lawrence C., Lupski, James R., Lichtarge, Olivier, Corbett, Mark A., Gecz, Jozef, Nicolet, Charles M., Farnham, Peggy J., Kim, Cheol-Hee, and Shinawi, Marwan
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- 2024
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18. Autism through midlife: trajectories of symptoms, behavioral functioning, and health
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Hong, Jinkuk, DaWalt, Leann Smith, Taylor, Julie Lounds, Haider, Aasma, and Mailick, Marsha
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- 2023
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19. Concurrent Associations between Expressive Language Ability and Independence in Adolescents and Adults with Fragile X Syndrome.
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Abbeduto, Leonard, Klusek, Jessica, Taylor, Julie Lounds, Abdelnur, Nadia, Sparapani, Nicole, and Thurman, Angela John
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daily living skills ,expressive language ,fragile X syndrome ,independent functioning ,Intellectual and Developmental Disabilities (IDD) ,Clinical Research ,Brain Disorders ,Pediatric ,Mental Health ,Fragile X Syndrome ,Rare Diseases ,Behavioral and Social Science ,Neurosciences ,Psychology ,Cognitive Sciences - Abstract
BackgroundFew individuals with fragile X syndrome (FXS) successfully meet adult normative expectations in education, employment, peer relations, and habitation, although there is within-syndrome variability in this regard. The primary goal of this study was to determine whether expressive language skills contribute to the capacity for independent functioning in adulthood even after controlling for nonverbal cognitive ability.MethodsParticipants were 18- to 23-year-olds with FXS. Expressive language was assessed using the psychometrically validated Expressive Language Sampling (ELS) conversation and narration procedures. The language produced was transcribed and analyzed to yield measures of expressive vocabulary, syntax, and intelligibility. Parents concurrently completed questionnaires on the independent functioning of the participants with FXS.ResultsAll three ELS measures were significantly corelated with multiple measures of independence. The magnitudes of the correlations were reduced when nonverbal IQ was controlled through partial correlation. Nonetheless, many of the partial correlations were medium to large and several were statistically significant.ConclusionsExpressive language skills appear to contribute uniquely to the capacity for independence, although longitudinal data are needed to evaluate the possibility of a bidirectional relationship between these domains. Thus, language intervention may be a prerequisite for preparing youth with FXS for an independent adult life.
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- 2021
20. Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access during the Transition to Adulthood for Youth with ASD
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Taylor, Julie Lounds, Pezzimenti, Florencia, Burke, Meghan M., DaWalt, Leann Smith, Lee, Chung eun, and Rabideau, Carol
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Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention--named ASSIST--was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST.
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- 2022
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21. Publishing standards for promoting excellence in autism research
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Fletcher-Watson, Sue, Bölte, Sven, Crompton, Catherine J, Jones, Desi, Lai, Meng-Chuan, Mandy, William, Pellicano, Liz, Stahmer, Aubyn, Taylor, Julie, and Mandell, David
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Autism Spectrum Disorder ,Autistic Disorder ,Humans ,Publishing ,Quality Improvement ,Specialist Studies in Education ,Psychology ,Cognitive Sciences ,Developmental & Child Psychology - Published
- 2021
22. Correction: Self-reported Everyday Sources of Happiness and Unhappiness in Autistic Adults
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Parenteau, China I., Lampinen, Linnea L., Ghods, Sheila S., Taylor, Julie L., Adams, Ryan E., Bishop, Somer L., and Zheng, Shuting
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- 2023
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23. The Role of Parental Advocacy in Addressing Service Disparities for Transition-Aged Youth on the Autism Spectrum
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Lee, Chung eun, Burke, Meghan M., DaWalt, Leann Smith, Li, Chak, and Taylor, Julie Lounds
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Youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. Correlates of service access identified in the literature--such as family resources, race/ethnicity, or youth functioning--can be difficult to change and may not be feasible targets for intervention. This study focused on a potential contributor to service access that is malleable: parental advocacy. Specifically, we examined the association between parental advocacy activities and number of services among transition-aged youth with ASD, after accounting for indicators of youth functioning and family demographic variables (high school exit, co-occurring intellectual disability, social impairments, adaptive behaviors, race/ethnicity, state of residence, family income, and parental depression). Participants included 185 families of youth with ASD who are part of an ongoing randomized controlled trial. Data were collected at baseline (prior to intervention) via parental questionnaire and structured interview. Using hierarchical regression analyses, we found that parental advocacy activities were significantly and strongly associated with service receipt after controlling for youth functioning and family demographic factors. Youth whose parents are less involved in advocacy activities might be at-risk for service disparities. To close the gaps for service disparities, future interventions may target parental advocacy skills.
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- 2022
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24. Pursuing Paid Employment for Youth with Severe Disabilities: Multiple Perspectives on Pressing Challenges
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Awsumb, Jessica, Schutz, Michele, Carter, Erik, Schwartzman, Ben, Burgess, Leah, and Lounds Taylor, Julie
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The road to employment begins in high school. However, few youth with severe disabilities currently participate in paid employment before graduation. The purpose of this study was to map the breadth of barriers that can hinder youth from accessing this influential transition experience. We held individual (n = 8) and focus group (n = 16) interviews with 74 transition stakeholders, including parents, educators, adult agency staff, school district leaders, and local employers. Collectively, they identified 47 barriers falling within eight broad categories of challenges: school, student, family, workplace, service system, partnership, transportation, and community. Although there were areas of clear consensus, noticeable differences were evident in the concerns raised by each of these five stakeholder groups. We present recommendations for research and practice aimed at connecting more youth with severe disabilities to early work experiences that can change their post-school employment trajectories.
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- 2022
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25. Sex Differences in Social Participation of High School Students with Autism Spectrum Disorder
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DaWalt, Leann Smith, Taylor, Julie Lounds, Bishop, Somer, Hall, Laura J, Steinbrenner, Jessica Dykstra, Kraemer, Bonnie, Hume, Kara A, and Odom, Samuel L
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Biological Psychology ,Social and Personality Psychology ,Psychology ,Clinical Research ,Brain Disorders ,Behavioral and Social Science ,Intellectual and Developmental Disabilities (IDD) ,Mental Health ,Pediatric ,Autism ,2.3 Psychological ,social and economic factors ,Aetiology ,Mental health ,Adolescent ,Autism Spectrum Disorder ,Female ,Humans ,Male ,Schools ,Sex Characteristics ,Sex Factors ,Social Participation ,Students ,adolescence ,autism spectrum disorder ,sex differences ,social interactions ,Clinical Sciences ,Neurosciences ,Developmental & Child Psychology ,Applied and developmental psychology ,Clinical and health psychology - Abstract
There is lack of consensus in the literature regarding sex differences in social outcomes for individuals on the autism spectrum. Furthermore, little research has focused on the social experiences of high school students with autism spectrum disorder (ASD) during the school day. Using a large racially/ethnically diverse sample of high school students with ASD receiving special education services (n = 547; 76 females, 471 males), we examined sex differences in social interactions of youth both during and after school. We also tested for sex differences in background and phenotypic characteristics including autism severity, IQ, adaptive behavior, and mental health. Results indicated few statistically significant differences between males and females in social interactions and phenotypic characteristics (including raw scores of autism symptom severity). However, analysis of standardized scores of autism symptoms suggested that symptom scores for females with ASD diverged more from same-sex peers in the normed sample than scores of males with ASD. Lack of sex difference in social participation for youth with ASD in this study stands in contrast to patterns of sex differences in the general population. Findings suggest that few differences between males and females with ASD, both in social participation and autism symptom severity, might result in females with ASD being more dissimilar to their same-sex peers than males with ASD. Implications of findings for understanding sex differences in ASD across the life course are discussed. LAY SUMMARY: The present study examined sex differences in social participation in a large, diverse sample of high school students with autism spectrum disorder (ASD). Males and females were very similar in their social interactions both at school and outside of school, based on reports by teachers and parents. Level of autism symptoms was also similar for males and females. However, standardized scores of autism symptoms, which take into account age and sex specific norms, suggested that females with ASD may have behaviors that are more divergent from their same-sex peers than males with ASD.
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- 2020
26. A Review of the Benefits and Barriers to Postsecondary Education for Students with Intellectual and Developmental Disabilities
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Lee, Chung Eun and Taylor, Julie Lounds
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Postsecondary educational programs (PSEs) are increasingly an option for students with intellectual and developmental disabilities (IDD). This scoping review synthesized research to understand the impacts of these programs for students with IDD and for campus, and barriers to these programs across stages of engagement (exploration, participation, completion). Studies were identified by searching PubMed, PsycINFO, ERIC, and Web of Science databases and reference lists of included articles. Twenty-one studies met inclusion criteria. Multiple benefits were identified for students with IDD and campus. Persistent barriers across all stages of program engagement included lack of funding and lack of collaboration. Barriers specific to stages included lack of knowledge, options, individualized support, integration into campus, and transportation. Implications for research and practice are discussed.
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- 2022
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27. Scoping Reviews: The PAGER Framework for Improving the Quality of Reporting
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Bradbury-Jones, Caroline, Aveyard, Helen, Herber, Oliver Rudolf, Isham, Louise, Taylor, Julie, and O'Malley, Lisa
- Abstract
Literature reviews generally analyse and synthesis the evidence (or lack thereof) in a particular topic area and they are an increasingly popular form of scholarly activity. The scoping review is a popular literature review approach that has been adopted across the social and health sciences over the last fifteen years. With this upsurge in use, differences of opinion about how to analyse and report scoping reviews has also grown. Drawing on work carrying out a scoping review on oral health and child maltreatment, we put forward a structured approach to analysis and reporting of such reviews: the PAGER (Patterns, Advances, Gaps, Evidence for practice and Research recommendations) framework. In this article, we reflect on the strengths and limitations of the framework, drawing on examples, laying out the methodological processes, and making suggestions as to how it might improve reporting. The article makes a contribution to efforts that seek to improve the reporting and utility of scoping reviews in health and social research.
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- 2022
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28. Goal Attainment Scaling--Community-Based: A Method to Incorporate Personalized Outcomes into Intervention Research with Youth and Adults on the Autism Spectrum
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Lee, Chung Eun, Shogren, Karrie A., Segal, Jordan, Pezzimenti, Florencia, Aleman-Tovar, Janeth, and Taylor, Julie Lounds
- Abstract
Given the wide heterogeneity in the autism population, one challenge for intervention studies is to identify outcome measures that have similar meaning across individuals. This is particularly pronounced in intervention studies of adults with autism spectrum disorder, where outcomes such as employment, independence, or community living are common targets. However, these outcomes can be more challenging to obtain for those who have greater support needs, for example, and therefore may be more or less salient depending on the sample under study. Goal attainment scaling can help address this issue as it allows individuals to identify personally meaningful goals and track progress toward these goals. While goal attainment scaling is gaining popularity in the autism field as an outcome measure, most intervention studies that use goal attainment scaling have been situated in clinical or school settings. Generating reliable and scalable goals outside of these settings can be challenging. In this article, we describe the promise of goal attainment scaling for tailoring individualized outcomes among youth and adults with autism spectrum disorder and discuss the challenges of current goal attainment scaling methods in community-based intervention research. We then describe a new goal attainment scaling approach that is rigorous, practical, and can be used across research settings to measure individualized outcomes.
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- 2022
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29. Ten Weeks In: COVID-19-Related Distress in Adults with Autism Spectrum Disorder
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Adams, Ryan E., Zheng, Shuting, Taylor, Julie Lounds, and Bishop, Somer L.
- Abstract
This study examined COVID-19-related distress among adults with autism spectrum disorder and its associations with demographic and mental health information. A sample of 275 adults (ages 18-35) in the United States, all capable of providing self-reports, was recruited from a large national registry. Adults completed online surveys of mental health symptoms just before COVID-19 was declared a pandemic. Two months later, they completed the same surveys of mental health symptoms, and also reported about distress they had experienced as a result of the COVID-19 pandemic. Nearly two-thirds (65.9%) endorsed some form of COVID-related distress with a little over half reporting any individual form of distress. Although depressive and anxiety symptoms did not change from Time 1 to Time 2 on average, higher levels of COVID-related distress was associated with an increase in depressive and anxiety symptoms between Time 1 and Time 2. In addition, women and those who reported higher anxiety symptoms before the pandemic were more likely to report some form of COVID-related distress. The findings suggest that as this global crisis continues to unfold, it will be critical to ensure that adults with autism spectrum disorder who were experiencing mental health challenges prior to the pandemic receive appropriate monitoring.
- Published
- 2021
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30. Depression in Independent Young Adults on the Autism Spectrum: Demographic Characteristics, Service Use, and Barriers
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Zheng, Shuting, Adams, Ryan, Taylor, Julie Lounds, Pezzimenti, Florencia, and Bishop, Somer L.
- Abstract
Depression is a common problem for adults on the autism spectrum, but little is known about depression-related service receipt in this group. To understand depression diagnostic and treatment status better, we collected information on current depressive symptoms, depression diagnosis, and treatment status of 315 young adults with a childhood diagnosis of autism from the Simons Foundation Powering Autism Research for Knowledge registry. About two-thirds (65.4%) of the adults had been diagnosed with depression, and 46.7% currently met clinical cut-offs for depression on depressive symptoms measures. Among the currently depressed, the majority (83.0%) had a formal depression diagnosis. Despite being no more likely than males to be currently depressed, females (biological sex) were more likely to have received a depression diagnosis. As for depression treatment, 58.5% of currently depressed adults were currently being treated, and 68% had previously received treatment. Medication was the most common form of treatment, followed by individual therapy. Likelihood of receiving depression treatment was higher among those with a formal depression diagnosis and with higher levels of education. Adults reported several barriers to accessing treatment for depression, including financial and insurance issues, accessibility to appropriate care, and professionals' lack of understanding about depression in autism.
- Published
- 2021
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31. Enhancing Developmental-Behavioral Pediatric Rotations by Teaching Residents How to Evaluate Autism in Primary Care
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Hine, Jeffrey F., Wagner, Liliana, Goode, Rachel, Rodrigues, Verity, Taylor, Julie Lounds, Weitlauf, Amy, and Warren, Zachary E.
- Abstract
Most pediatric residency programs do not provide adequate practical experiences for residents in autism-related care, with a specific dearth of training in diagnostic processes. Without this training, residents enter the primary care workforce with uncertainty surrounding implementation of standard-of-care recommendations for children with autism. Our curriculum was designed to improve upon previously passive shadowing experiences within our developmental-behavioral pediatric rotation by integrating hands-on training in within-practice diagnostic identification and care coordination. In addition to multiple web-based learning activities (including a tutorial teaching administration of an interactive assessment tool), residents were required to actively participate in autism evaluations under supervision of an attending provider. Data were collected to assess feasibility of curricular changes as well as increased comfort level across recommended practice behaviors. Regarding feasibility, 95% of residents completed training components and pre-/post-ratings indicated significant increases in comfort in identifying symptoms/risk for autism, providing feedback about diagnostic decision, and effectively connecting families with services. Outcomes suggest feasibility of model and significantly increased resident comfort level across a range of recommended practice behaviors. This project reflects a first step in advancing incorporation of autism training into pediatric residency programs.
- Published
- 2021
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32. Goal Attainment Scaling: A Framework for Research and Practice in the Intellectual and Developmental Disabilities Field
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Shogren, Karrie A., Dean, Evan E., Burke, Kathryn M., Raley, Sheida K., and Taylor, Julie Lounds
- Abstract
Goal setting and attainment is often a targeted outcome in the intellectual and developmental disabilities field; however, standardizing the measurement of attainment of individualized goals is challenging. The purpose of this article is to introduce a four-domain framework that provides a series of questions to research and evaluation teams in planning for the use of goal attainment scaling (GAS) as an outcome measure at the individual or aggregate level. We intend to stimulate discussion and ongoing work to further systematize how GAS is used in (a) intervention research to establish evidence-based practices and (b) practice to assess the extent to which interventions and supports lead to intended outcomes. The goal is to promote a clear planning process to inform data collection on individualized goal attainment outcomes that are rooted in goals and outcomes valued by people with intellectual and developmental disabilities.
- Published
- 2021
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33. Characteristics of Students with Disabilities Who Do and Do Not Receive Transition Services
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Mello, Maria P., Burke, Meghan M., Taylor, Julie Lounds, Urbano, Richard, and Hodapp, Robert M.
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As transition services foster better post-school outcomes, all students with disabilities should be receiving these services as they traverse their final high school years. Using a national, web-based parent survey, we examined the frequency and correlates of the receipt of transition services for 189 students with disabilities. Parents reported their children's age, functioning level, maladaptive behavior, and number of services received. Only 54% of the child of the participants received transition services. Students with higher (vs. lower) levels of adaptive skills were less likely to receive transition services. Students with more services on average and who were older were more likely to receive transition services. Implications are discussed for increasing the implementation of transition services for all students with disabilities and increasing parent knowledge of transition services and transition planning.
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- 2021
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34. Exploring Key Physiological System Profiles at Rest and the Association with Depressive Symptoms in Autism Spectrum Disorder
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Muscatello, Rachael A., Andujar, Justin, Taylor, Julie L., and Corbett, Blythe A.
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Depression is often associated with dysfunction in the hypothalamic-pituitary-adrenal (HPA) axis and autonomic nervous system (ANS). Individuals with autism spectrum disorder (ASD) may experience physiological dysregulation and psychological comorbidities; however, the extent to which the interactions between these systems predict internalizing symptoms in ASD has not been investigated. The study examined interactions with the HPA axis and ANS in 10-13-year-old children with ASD (n = 41) and typical development (TD; n = 46). The interrelated systems uniquely contributed to depressive symptoms in ASD above and beyond any system in isolation. A reciprocal, parasympathetic-dominant ANS was related to fewer affective symptoms in ASD. Findings highlight the importance of examining arousal across multiple systems to more precisely identify profiles associated with maladaptive psychiatric outcomes in ASD.
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- 2021
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35. Brief Report: ASD-Related Behavior Problems and Negative Peer Experiences among Adolescents with ASD in General Education Settings
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Adams, Ryan E., Taylor, Julie Lounds, and Bishop, Somer L.
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The goal of the current study was to test associations between various ASD-related behavior problems and negative peer experiences in adolescents with ASD. Data were obtained from the Bullying and School Experiences of Children with ASD Survey completed by parents in the Interactive Autism Network (IAN). The current study focused on data from 279 parents of 7th-11th graders with ASD who spent at least half of the school day in a general education setting. Logistic regression analyses found that frequent meltdowns, poor hygiene, rigid rule-keeping, and self-injury were associated with negative peer experiences. Surprisingly, repetitive behaviors and verbal tics were associated with a lower likelihood of experiencing verbal victimization.
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- 2020
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36. A new era for autism research, and for our journal
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Pellicano, Liz, Mandy, Will, Bölte, Sven, Stahmer, Aubyn, Lounds Taylor, Julie, and Mandell, David S
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Biomedical and Clinical Sciences ,Psychology ,Autistic Disorder ,Biomedical Research ,Child ,Humans ,Periodicals as Topic ,Research Support as Topic ,United States ,Specialist Studies in Education ,Cognitive Sciences ,Developmental & Child Psychology ,Biomedical and clinical sciences - Published
- 2018
37. The Gothic Revival in nineteenth century Catholic America: Patrick Charles Keely (1816–1896) and his extensive contribution
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Taylor, Julie
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- 2022
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38. Single-Dose, Preoperative Vitamin-D Supplementation Decreases Infection in a Mouse Model of Periprosthetic Joint Infection
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Hegde, Vishal, Dworsky, Erik M, Stavrakis, Alexandra I, Loftin, Amanda H, Zoller, Stephen D, Park, Howard Y, Richman, Sherif, Johansen, Daniel, Hu, Yan, Taylor, Julie A, Hamad, Christopher D, Chun, Rene F, Xi, Weixian, Adams, John S, and Bernthal, Nicholas M
- Subjects
Biomedical and Clinical Sciences ,Clinical Sciences ,Nutrition ,Complementary and Integrative Health ,Dietary Supplements ,Infectious Diseases ,Clinical Research ,2.1 Biological and endogenous factors ,5.1 Pharmaceuticals ,Animals ,Arthroplasty ,Replacement ,Knee ,Bacterial Load ,Biomarkers ,Drug Administration Schedule ,Injections ,Intraperitoneal ,Knee Prosthesis ,Male ,Mice ,Neutrophil Infiltration ,Preoperative Care ,Prosthesis-Related Infections ,Random Allocation ,Risk Factors ,Staphylococcal Infections ,Vitamin D ,Vitamin D Deficiency ,Vitamins ,Biomedical Engineering ,Orthopedics ,Clinical sciences - Abstract
BackgroundDespite recent advances, infection remains the most common etiology of arthroplasty failure. Recent work suggests that 25-hydroxyvitamin D (25D) deficiency correlates with the frequency of periprosthetic joint infection (PJI). We endeavored to examine whether 25D3 deficiency leads to increased bacterial burden in vivo in an established mouse model of PJI and, if so, whether this effect can be reversed by preoperative 25D3 supplementation.MethodsMice (lys-EGFP) possessing fluorescent neutrophils were fed a vitamin D3-sufficient (n = 20) or deficient (n = 40) diet for 6 weeks. A group of 25D3-deficient mice (n = 20) were "rescued" with 1 intraperitoneal dose of 25D3 at 3 days before surgery. A stainless steel implant was inserted into the knee joint and the joint space was inoculated with bioluminescent Staphylococcus aureus (1 × 10 colony forming units [CFUs]). In vivo imaging was used to monitor bacterial burden and neutrophil infiltration. Blood was drawn to confirm 25D3 levels 3 days before surgery and on postoperative days (PODs) 0 and 14. Mice were killed at POD 21, and CFUs were quantified after culture. Myeloperoxidase (MPO) and β-N-acetylglucosaminidase (NAG) were assayed to look at neutrophil infiltration and activated tissue macrophage recruitment, respectively.ResultsSerum values confirmed 25D3 deficiency and repletion of the 25D3-rescued group. Bacterial bioluminescence and neutrophil fluorescence were significantly greater (p < 0.05) in the 25D3-deficient group. CFU counts from the joint tissue and implant were also significantly greater in this group (p < 0.05). Rescue treatment significantly decreased bacterial burden and neutrophil infiltration (p < 0.05). Compared with the 25D3-sufficient and 25D3-rescued groups, MPO activity was higher (p < 0.02) and NAG activity was lower (p < 0.03) in the 25D3-deficient group.ConclusionsThis study demonstrated in vivo in a mouse model of PJI that (1) 25D3 deficiency results in increased bacterial burden and neutrophil infiltration, and (2) this effect can be reversed with preoperative repletion of 25D3.Clinical relevanceConsidering that >65% of patients undergoing arthroplasty have insufficient or low levels of total 25D and that 25D levels can be replenished with ease using a U.S. Food and Drug Administration (FDA)-approved, oral 25D3 product, 25D deficiency may be an important modifiable risk factor in humans undergoing joint replacement.
- Published
- 2017
39. Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school
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Taylor, Julie Lounds, Adams, Ryan E, and Bishop, Somer L
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Biomedical and Clinical Sciences ,Applied and Developmental Psychology ,Clinical and Health Psychology ,Neurosciences ,Psychology ,Intellectual and Developmental Disabilities (IDD) ,Autism ,Mental Health ,Behavioral and Social Science ,Brain Disorders ,Pediatric ,Aetiology ,2.3 Psychological ,social and economic factors ,Mental health ,Adolescent ,Adult ,Autism Spectrum Disorder ,Child ,Female ,Humans ,Internal-External Control ,Longitudinal Studies ,Male ,Personality Development ,Social Environment ,Social Participation ,Social Support ,Young Adult ,autism spectrum disorder ,transition to adulthood ,social participation ,internalizing ,Clinical Sciences ,Developmental & Child Psychology ,Applied and developmental psychology ,Clinical and health psychology - Abstract
In the present study, we examined how unstructured (e.g., spending time with friends or co-workers) and structured (e.g., attending social events at a place of workshop, sports teams) social participation changed from before to after high school for youth with autism spectrum disorders (ASD), as well as the longitudinal and concurrent relations between social participation and internalizing symptoms. Participants included 36 families of youth with ASD who were all in their last year of high school at the first time point of data collection, and who were out of high school for an average of 9 months at the second time point. Social participation and internalizing symptoms were determined using parental report. There was no average change in the amount of unstructured social participation after high school exit, although substantial individual variability was observed. Participation in structured social activities significantly declined after high school exit. Youth who had more structured social participation while in high school were significantly more likely to have gains in their unstructured social participation after high school exit. Turning to relationships between internalizing and social activities, more internalizing symptoms while youth with ASD were in high school significantly predicted increasing social isolation after high school exit (both in terms of structured and unstructured activities). Results point to the likely need for additional supports during the transition to adulthood for youth with ASD who have internalizing problems. Autism Res 2016. © 2016 International Society for Autism Research, Wiley Periodicals, Inc. Autism Res 2017, 10: 663-672. © 2016 International Society for Autism Research, Wiley Periodicals, Inc.
- Published
- 2017
40. Social Studies Education and Public Art: The Detroit Billboard Project
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Taylor, Julie Anne and Iroha, Okezie
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The aim of this action-research project was to evaluate the impact of high school students' involvement in community-oriented, art-based work in the social studies. In Detroit, high school students engaged in persuasive writing and design while exploring community issues. The project culminated in the installation of student artwork on a billboard in the city's cultural center. Mixed methods were employed to evaluate the project; forty-seven students completed surveys at its conclusion. The findings suggest that creative projects with real-world applications are motivational, and they promote civic education. The majority of the students reported that their awareness of community issues had increased. This study has implications for the implementation of projects for democratic education and service learning, arts integration in the social studies, and the use of authentic assessments in contextual, culturally responsive teaching.
- Published
- 2015
41. COMMcast: Producing Podcasts for Communication Theory
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Taylor, Julie L. and Blevins, Maria
- Abstract
Students are often inseparable from Internet and streaming services through various technologies. This reality invites instructors to think about nuanced ways of employing technologies to engage students through both consumption and production of media in classrooms. Our assignment uses the modality of podcasts to encourage critical thinking and theoretical application. Student groups are tasked with producing informative podcast episodes on communication theories learned in class. Importantly, this assignment is a great way for students to adopt a strategy for lifelong learning with an introduction to podcasts, and the practice of making theory more widely accessible. Furthermore, the narrative focus of podcast episodes enhances assimilation of course content in ways students had not previously exhibited in assessments. The podcast assignment functions as a formative assessment for students who are both creating the content and listening to the production. Courses: Communication Theory and other courses that engage communication theories. Objectives: By the end of creating the podcast, students will be able to: (1) define a communication theory/concept according to course readings and content; (2) analyze a communication theory by applying learned concepts; (3) co-produce knowledge with others; and (4) identify and apply necessary skills for a compelling presentation.
- Published
- 2020
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42. Sex Differences in Employment and Supports for Adults with Autism Spectrum Disorder
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Taylor, Julie Lounds, Smith DaWalt, Leann, Marvin, Alison R., Law, J. Kiely, and Lipkin, Paul
- Abstract
This study explored sex differences in employment, reasons for unemployment, benefits, and supports among a large, international sample of adults with autism spectrum disorder. The sample included 443 adults with autism spectrum disorder (60% female; 74% residing in the United States) who consented to be part of an autism research registry and completed an Internet survey. Outcome variables included current employment status, number of hours working, number of jobs in the past 5 years, reasons for unemployment, as well as the number of benefits received and the amount of financial support currently being received from families of origin. Using multiple regression models, we found that males and females were working at similar rates. Females were more likely than males to say that their unemployment was a result of choosing to withdraw from the labor market. Similar percentages of males and females reported receiving some form of benefits or family support, but of those receiving benefits/family support, males received more than females. These results are consistent with other studies finding subtle, but potentially important sex differences in life-course outcomes of individuals with autism spectrum disorder.
- Published
- 2019
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43. Measuring the Service System Impact of a Novel Telediagnostic Service Program for Young Children with Autism Spectrum Disorder
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Stainbrook, J. Alacia, Weitlauf, Amy S., Juárez, A. Pablo, Taylor, Julie Lounds, Hine, Jeffrey, Broderick, Neill, Nicholson, Amy, and Warren, Zachary
- Abstract
As prevalence of autism spectrum disorder continues to increase, so too does the need for timely, accessible diagnostic consultation. The present work extends from a previous study which provided preliminary evidence for the feasibility of expert clinicians to utilize telemedicine to triage autism spectrum disorder risk in young children. However, it did not examine whether a telediagnostic model had a demonstrable impact on tertiary care center referrals and usage. We therefore examined whether the introduction of telemedicine-based diagnostic consultation for families served by a rural medical facility affected referrals overall as well as to a metropolitan tertiary care diagnostic center. Results suggest that telemedicine diagnostic consultation in partnership with a referring early intervention system may positively impact referrals for diagnostic evaluation as well as the ability of families to schedule and attend appointments.
- Published
- 2019
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44. Factors Impacting Employment for People with Autism Spectrum Disorder: A Scoping Review
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Scott, Melissa, Milbourn, Ben, Falkmer, Marita, Black, Melissa, Bolte, Sven, Halladay, Alycia, Lerner, Matthew, Taylor, Julie Lounds, and Girdler, Sonya
- Abstract
The aim of this study is to holistically synthesise the extent and range of literature relating to the employment of individuals with autism spectrum disorder. Database searches of Medline, CINAHL, PsychINFO, Scopus, ERIC, Web of Science and EMBASE were conducted. Studies describing adults with autism spectrum disorder employed in competitive, supported or sheltered employment were included. Content analysis was used to identify the strengths and abilities in the workplace of employees with autism spectrum disorder. Finally, meaningful concepts relating to employment interventions were extracted and linked to the International Classification of Functioning, Disability and Health Core Sets for autism spectrum disorder. The search identified 134 studies for inclusion with methodological quality ranging from limited to strong. Of these studies, only 36 evaluated employment interventions that were coded and linked to the International Classification of Functioning, Disability and Health, primarily focusing on modifying autism spectrum disorder characteristics for improved job performance, with little consideration of the impact of contextual factors on work participation. The International Classification of Functioning, Disability and Health Core Sets for autism spectrum disorder are a useful tool in holistically examining the employment literature for individuals with autism spectrum disorder. This review highlighted the key role that environmental factors play as barriers and facilitators in the employment of people with autism spectrum disorder and the critical need for interventions which target contextual factors if employment outcomes are to be improved.
- Published
- 2019
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45. "She Punched, Punched, and Scratched Me While I Was Holding My Children After We Broke Up": Men's Experience of Postseparation Domestic Abuse.
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Bates, Elizabeth A., Taylor, Julie C., Hope, Katie A., and Smith, Jade L.
- Abstract
There is a paucity of literature relating to male victims of intimate partner violence and their experiences postseparation. This study explored men's experiences of abuse after the end of a relationship using an anonymous online survey distributed via social media. The survey included questions of a demographic nature followed by a series of open-ended questions. A hundred and thirty men aged between 18 and 68 years participated. All participants were reporting on their experiences within opposite sex relationships. A thematic analysis identified four master themes (preseparation abuse, postseparation abuse, abuse impact, and help-seeking). The analysis revealed significant experiences of abuse occurring preseparation, followed by accounts of postseparation abuse and the challenges men faced in terms of help-seeking. The collection of preseparation data helped to situate the postseparation experiences in the wider context of an existing abusive relationship and illustrated the impact of this across a range of experiential domains. We conclude that men's experiences of physical abuse as well as coercive and controlling behavior that exist preseparation often continue postseparation, albeit changing and escalating through different mechanisms. Suggestions for future research and recommendations for practice have been identified. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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46. Development of a comprehensive genome-wide cardiovascular disease genetic risk assessment test
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Amendola, Laura M, primary, Coffey, Alison J, additional, Lowry, Josh, additional, Avecilla, James, additional, Malhotra, Alka, additional, Chawla, Aditi, additional, Thacker, Stetson, additional, Taylor, Julie P, additional, Rajkumar, Revathi, additional, Brown, Carolyn M, additional, Golden-Grant, Katie, additional, Hejja, Rueben, additional, Lee, Jennifer A, additional, Medrano, Phillip, additional, Milewski, Becky, additional, Mullen, Felipe, additional, Walker, Andrew, additional, Huertez-Vasquez, Adriana, additional, Longoni, Mauro, additional, Perry, Denise L, additional, Hostin, Damon, additional, Ajay, Subramanian S, additional, Kesari, Akanchha, additional, Strom, Samuel P, additional, Margulies, Elliott, additional, Belmont, John, additional, Lanfear, David E, additional, and Taft, Ryan J, additional
- Published
- 2024
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47. Pulling Back the Curtain: Issues in Conducting an Intervention Study with Transition-Aged Youth with Autism Spectrum Disorder and Their Families
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Burke, Meghan M., Waitz-Kudla, Sydney N., Rabideau, Carol, Taylor, Julie Lounds, and Hodapp, Robert M.
- Abstract
The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information?), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs--both explicit and implicit--of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood.
- Published
- 2019
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48. Advancing the Science of Literature Reviewing in Social Research: The Focused Mapping Review and Synthesis
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Bradbury-Jones, Caroline, Breckenridge, Jenna P., Clark, Maria T., Herber, Oliver R., Jones, Christine, and Taylor, Julie
- Abstract
Literature reviews are an important and popular part of synthesising evidence across a range of disciplines. There are numerous approaches, each with their distinctive features and purposes. The aim of this article is to advance the science of literature reviewing by describing a new form of review: The 'Focused Mapping Review and Synthesis' (FMRS). We critique the approach and highlight its similarities and differences in relation to existing review methodologies. There are four key features of FMRS. It: 1) focuses on a defined field of knowledge rather than a body of evidence; 2) creates a descriptive map or topography of key features of research within the field rather than a synthesis of findings; 3) comments on the overall approach to knowledge production rather than the state of the evidence; 4) examines this within a broader epistemological context. The FMRS can be used to answer questions that might not be appropriate for other review types and potentially offers a useful addition to the methodological toolkit of social researchers from multiple disciplines.
- Published
- 2019
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49. The risk of COVID-19 in survivors of domestic violence and abuse
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Chandan, Joht Singh, Subramanian, Anuradhaa, Chandan, Jaidev Kaur, Gokhale, Krishna M., Vitoc, Alecs, Taylor, Julie, Bradbury-Jones, Caroline, Bandyopadhyay, Siddhartha, and Nirantharakumar, Krishnarajah
- Published
- 2021
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50. Brief Report: Postsecondary Work and Educational Disruptions for Youth on the Autism Spectrum
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Taylor, Julie Lounds and DaWalt, Leann Smith
- Abstract
This study examined vocational/educational disruption in the 2-3 years after high school for 36 youth with autism spectrum disorder (ASD). Data were collected three times from parents: during youth's last year of high school and two times after high school exit. Data were coded into categories indicating any versus no disruptions in postsecondary vocation/education, and group differences in individual (behavior problems, IQ, adaptive behavior, autism severity, stress reactivity) and family (parent depression, anxiety, quality of life; family income and climate) factors were examined. One-half of youth had experienced a postsecondary vocational/educational disruption; parents of those with a disruption had more depressive and anxiety symptoms and lower quality of life while their son/daughter was still in high school.
- Published
- 2017
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