589 results on '"Tibben, Aad"'
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2. Hope, but never expect?: Comparing parents' pre- and post-disclosure attitudes toward return of results from diagnostic exome sequencing for their child
3. Hope, but never expect? Comparing parents' pre- and post-disclosure attitudes toward return of results from diagnostic exome sequencing for their child
4. Parents, their children, whole exome sequencing and unsolicited findings: growing towards the child’s future autonomy
5. Hope, but never expect? Comparing parents' pre‐ and post‐disclosure attitudes toward return of results from diagnostic exome sequencing for their child
6. Offering a choice between NIPT and invasive PND in prenatal genetic counseling: the impact of clinician characteristics on patients’ test uptake
7. Uncertainties in Genome Sequencing
8. Summary of Key Areas for Research
9. Genetic Testing Expanded
10. List of Contributors
11. The Effect of Predictive Testing in Adult-Onset Neurodegenerative Diseases on Social and Personal Life
12. “Watching time tick by…”: Decision making for Duchenne muscular dystrophy trials
13. “Be an ambassador for change that you would like to see”: a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease
14. Psychosocial Needs and Facilitators of Mothers Caring for Children with Duchenne/Becker Muscular Dystrophy
15. A plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physician
16. Mindfulness-Based Stress Reduction in Pre-symptomatic Genetic Frontotemporal Dementia:A Pilot Study
17. Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma
18. Do Attachment Style and Emotion Regulation Strategies Indicate Distress in Predictive Testing?
19. Surveillance for hereditary cancer: Does the benefit outweigh the psychological burden?—A systematic review
20. Body image and psychological distress after prophylactic mastectomy and breast reconstruction in genetically predisposed women: A prospective long-term follow-up study
21. Mindfulness-Based Stress Reduction in Pre-symptomatic Genetic Frontotemporal Dementia: A Pilot Study
22. Melanoma risk factors, perceived threat and intentional tanning : an international online survey
23. Genetic discrimination in Huntington's disease
24. Estimating Decreased Risks for Huntington Disease without a Test
25. A counselee-oriented perspective on risk communication in genetic counseling: Explaining the inaccuracy of the counselees' risk perception shortly after BRCA1/2 test result disclosure
26. Family communication matters: The impact of telling relatives about unclassified variants and uninformative DNA-test results
27. Information-seeking behaviour and coping style of women opting for either implant or DIEP-flap breast reconstruction
28. Women’s motives to opt for either implant or DIEP-flap breast reconstruction
29. Thinking about the end of life: a common issue for patients with Huntington’s disease
30. Cancer risk communication, predictive testing and management in France, Germany, the Netherlands and the UK: general practitioners' and breast surgeons' current practice and preferred practice responsibilities
31. Reply to Oliver W Quarrell et al.: 'Letter in response to Tibben et al., Risk Assessment for Huntington's Disease for (Future) Offspring Requires Offering Preconceptional CAG Analysis to Both Partners'
32. Risk Assessment for Huntington's Disease for (Future) Offspring Requires Offering Preconceptional CAG Analysis to Both Partners
33. Distress in partners of high-risk women undergoing breast cancer surveillance
34. High satisfaction rates in women after DIEP flap breast reconstruction
35. A Counselling Model for BRCA1/2 Genetic Susceptibility Testing
36. Disentangling the Babylonian speech confusion in genetic counseling: An analysis of the reliability and validity of the nomenclature for BRCA1/2 DNA-test results other than pathogenic
37. Body image issues after bilateral prophylactic mastectomy with breast reconstruction in healthy women at risk for hereditary breast cancer
38. Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists
39. Value-based healthcare in Lynch syndrome
40. Genetic Counseling and Testing
41. Contributors to and consequences of burnout among clinical genetic counselors in the United States
42. Parents, their children, whole exome sequencing and unsolicited findings: growing towards the child’s future autonomy
43. Parents, their children, whole exome sequencing and unsolicited findings: growing towards the child’s future autonomy
44. Putting it all behind: long-term psychological impact of an inconclusive DNA test result for breast cancer
45. Genetic testing for familial/hereditary breast cancer—comparison of guidelines and recommendations from the UK, France, the Netherlands and Germany
46. A whisper-game perspective on the family communication of DNA-test results: a retrospective study on the communication process of BRCA1/2-test results between proband and relatives
47. De invloed van de ziekte van Huntington op het arbeidsproces
48. Offspring of a Parent With Genetic Disease: Childhood Experiences and Adult Psychological Characteristics
49. On the biomedicalization of alcoholism
50. Impact of delayed implant and DIEP flap breast reconstruction on body image and sexual satisfaction: a prospective follow-up study
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