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2. Getting Past the Gatekeeper: Cultural Competence, Field Access and Researching Gender-Based Violence -- Evidence from Four Countries

Author

Miller, Paul, Kirkman, Gillian, Timmins, Susan, Banerjee, Rukmini, Panicker, Anne, Nelson, Kenisha, Jones, Adele, and Ochen, Eric

Abstract

Background: Increasingly researchers are recognising the importance of including the perspectives of children and young people in research and in the development of interventions and innovations, in order to understand children's lives on their own terms. Purpose: This article reflects on the potential risks posed to children and young people in research and the role of gatekeepers in granting access and, in direct field activities, especially where the research could be deemed as 'sensitive'. Research Design: Using a combined descriptive and autoethnographic research design, questionnaires and reflections were gathered from the field experiences of researchers in four countries (India, Jamaica, Uganda and the UK) conducting research on children's experiences of violence victimisation as part of a gender-based violence prevention project. Data was collected retrospectively and analysed thematically with the aid of QSR NVivo. Results: Based on the five themes that emerged: accessing schools; approach to access; accessing participants; lessons learnt; and advice for other researchers, the overall findings indicate that researching sensitive topics with children and young people is necessarily problematic in order to safeguard them. This is especially the case in contexts where discrimination and stigma relating to certain topics may be a significant barrier to children's participation. Conclusion: Research planning requires attention to gatekeeper power, safeguarding children and young people, and understanding how processes and attitudes concerning the status and rights of children at national and institutional levels might influence the research process.

Published
2022
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19. Young adults with congenital heart disease heading to college: Are college health centers and providers prepared?

Author

Hardy, Rose Y., Jackson, Jamie L., George, Sandra, Andrews, Jennifer G., Daskalov, Rachel, May, Susan C., Miller, Paula, Timmins, Susan, and Pike, Nancy A.

Subjects
HEALTH facilities, CONTINUING education centers, STUDENT health services, CONGENITAL heart disease in adolescence, CHRONIC diseases, EPIDEMIOLOGICAL transition, INTERVIEWING, PUBLIC health, QUALITATIVE research, THEMATIC analysis, STATISTICAL sampling
Abstract

Background: An estimated 1.4 million adults in the United States have congenital heart disease (CHD). As this population grows and many pursue postsecondary education, these adults' health care needs and concerns should be at the forefront for providers, particularly nurse practitioners, at college health centers. Purpose: To understand how college health centers and providers identify and manage the care of students with chronic conditions to further support their health care transition, with a focus on students with CHD. Methodology: Qualitative key informant interviews were performed with providers at five college health centers to understand the processes in place and the challenges health care providers on college campuses face when caring for students with CHD. Results: Most of the college health centers did not have formalized processes in place to care for these students. Although many felt that they had the capabilities in their health centers to manage these students' maintenance/preventive care needs, fewer felt comfortable with their urgent or emergent care needs. The onus was often on students or parents/guardians to initiate these transitions. Conclusions: This study highlights some challenges to providing care to students with chronic conditions like CHD. More collaborative relationships with specialists may be critical to ensuring that all the care needs of chronic disease students are met on college campuses. Implications: Nurse practitioners, who often staff these clinics, are well positioned to support this transition onto campuses and lead the development of processes to identify these students, ease care management transitions, and ensure easy provider communication that allow students with chronic diseases to thrive on campus. [ABSTRACT FROM AUTHOR]

Published
2023
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20. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association

Author

John, Anitha S, Jackson, Jamie L, Moons, Philip, Uzark, Karen, Mackie, Andrew S, Timmins, Susan, Lopez, Keila N, Kovacs, Adrienne H, and Gurvitz, Michelle

Subjects
Adult, Heart Defects, Congenital, Patient Transfer, Transition to Adult Care, Adolescent, digestive, oral, and skin physiology, American Heart Association, heart defects, congenital, AHA Scientific Statements, transition to adult care, adolescent, social determinants of health, Quality of Life, self‐management, Humans, Cardiology and Cardiovascular Medicine, Child
Abstract

It is now expected that most individuals with congenital heart disease will survive to adulthood, including those with complex heart conditions. Maintaining lifelong medical care requires those with congenital heart disease to eventually transfer from pediatric to adult-oriented health care systems. Developing health care transition skills and gaining independence in managing one's own health care is imperative to this process and to ongoing medical and psychosocial success. This scientific statement reviews the recent evidence regarding transition and provides resources, components, and suggestions for development of congenital heart disease transition programs with the goals of improving patient knowledge, self-management, and self-efficacy skills to the level they are capable to eventually integrate smoothly into adult-oriented health care. Specifically, the scientific statement updates 3 sections relevant to transition programming. First, there is a review of specific factors to consider, including social determinants of health, psychosocial well-being, and neurocognitive status. The second section reviews costs of inadequate transition including the public health burden and the impairment in individual quality of life. Finally, the last section discusses considerations and suggestions for transition program design including communication platforms, a family-centered approach, and individual models. Although this scientific statement reviews recent literature surrounding transitions of care for individuals with congenital heart disease there remain significant knowledge gaps. As a field, we have yet to determine ideal timing and methods of transition, and barriers to transition and transfer remain, particularly for the underserved populations. The consequences of poor health care transition are great and garnering outcomes and information through organized, multifaceted, collaborative approaches to transition is critical to improving the lifelong care of individuals with congenital heart disease. ispartof: JOURNAL OF THE AMERICAN HEART ASSOCIATION vol:11 issue:7 ispartof: location:England status: published

Published
2022

23. Childhood Abuse and Neglect, Exposure to Domestic Violence and Sibling Violence: Profiles and Associations With Sociodemographic Variables and Mental Health Indicators.

Author

Sharratt, Kathryn, Mason, Samantha J., Kirkman, Gillian, Willmott, Dominic, McDermott, Danielle, Timmins, Susan, and Wager, Nadia M.

Subjects
CHILD abuse & psychology, VIOLENCE & psychology, MENTAL illness risk factors, SIBLINGS, STRUCTURAL equation modeling, CONFIDENCE intervals, CROSS-sectional method, MULTIPLE regression analysis, DOMESTIC violence, MENTAL health, SUICIDAL ideation, SURVEYS, RESEARCH funding, MENTAL depression, QUESTIONNAIRES, DESCRIPTIVE statistics, SOCIODEMOGRAPHIC factors, ANXIETY, ODDS ratio, PSYCHOLOGICAL adaptation
Abstract

Research indicates substantial overlap between child abuse and neglect (CAN), exposure to domestic violence and sibling abuse, with multiple victimisation experiences conferring greater risk for adverse mental health outcomes than does exposure to a single subtype. The application of latent class analysis (LCA) to child maltreatment has gained momentum, but it remains the case that few studies have incorporated a comprehensive range of subtypes, meaning that real-life patterns in victimisation experiences cannot be accurately modelled. Based on self-report data from an ethnically diverse sample (N = 2813) of 10–17 year olds in the United Kingdom, the current study used LCA to model constellations among nine types of maltreatment in the home (physical, emotional and sexual abuse; physical and emotional neglect; exposure to physical and verbal domestic violence, or a drug-related threat; and sibling violence). A four-class solution comprising of a low victimisation class (59.3% of participants), an emotional abuse and neglect class (19.0%), a high verbal domestic violence class (10.5%) and a maltreatment and domestic violence class (11.2%) provided the best fit for the data. Associations with sociodemographic variables were examined, revealing differences in the composition of the classes. Compared to the low victimisation class, participants in the verbal domestic violence class, emotional abuse and neglect class and especially the maltreatment and domestic violence class, reported higher symptoms of anxiety and depression and an increased likelihood of non-suicidal self-injury, suicide ideation and suicide attempt. The findings carry important implications for understanding patterns of child maltreatment, and the implications for preventative strategies and support services are discussed. [ABSTRACT FROM AUTHOR]

Published
2023
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26. A Cross-Cultural Consideration of Teacher Leaders' Narratives of Power, Agency and School Culture : England, Jamaica and the United States

Author

Blair, Eleanor J., Roofe, Carmel, Timmins, Susan, Blair, Eleanor J., Roofe, Carmel, and Timmins, Susan

Subjects
Educational leadership--England, Teacher effectiveness--United States, Educational leadership--United States, Educational leadership--Jamaica, Educational leadership--Cross-cultural studies, Teacher effectiveness--Cross-cultural studies, Teacher effectiveness--Jamaica, Teacher effectiveness--England
Abstract

A 2021 SPE Outstanding Book Award Winner Studies of teacher leadership have proliferated over the past fifty years. Earlier work tended to focus exclusively on the link between teacher leadership and school improvement. Now, however, cross-cultural research on the relationship between teacher leadership and power, agency and school culture has the potential to contribute to a deeper understanding of the teaching profession in diverse geographical and social contexts. A Cross-Cultural Consideration of Teacher Leaders'Narratives of Power, Agency and School Culture presents groundbreaking work that expands discussions of teachers'work to highlight the struggles of a profession in three different countries: England, Jamaica and the United States. This research provides examples of teacher leaders'narratives about power, agency and school culture, presenting the voices of teacher leaders across diverse contexts. It identifies the “lessons” that transcend culture and speaks to the importance of understanding how teachers'work (and teacher leadership) functions within complex school cultures. This work has profound implications for teaching, learning and leading in a 21st century global economy.Perfect for courses such as:Teacher Leadership | Educational Leadership and Management | Teaching and Teaching Methods | Action Research/Applied Research

Published
2020

28. Databases for Congenital Heart Defect Public Health Studies Across the Lifespan

Author

Riehle‐Colarusso, Tiffany J., primary, Bergersen, Lisa, additional, Broberg, Craig S., additional, Cassell, Cynthia H., additional, Gray, Darryl T., additional, Grosse, Scott D., additional, Jacobs, Jeffrey P., additional, Jacobs, Marshall L., additional, Kirby, Russell S., additional, Kochilas, Lazaros, additional, Krishnaswamy, Asha, additional, Marelli, Arianne, additional, Pasquali, Sara K., additional, Wood, Thalia, additional, Oster, Matthew E., additional, Abarbanell, Ginnie Lee, additional, Adams, Faith, additional, Allen, Steven W., additional, Allen, Sydney, additional, Ambrose, Anand, additional, Backer, Carl Lewis, additional, Baer, Andrea, additional, Baker‐Smith, Carissa Marie, additional, Barmash, Mona, additional, Basken, Amy, additional, Bates, Cassandra, additional, Batlivala, Sarosh Percy, additional, Beekman, Robert H., additional, Belmont, John William, additional, Benke, Joshua, additional, Berger, Stuart, additional, Bockerstette, JR, additional, Boris, Jeffrey R., additional, Botto, Lorenzo, additional, Boucher, Jackie, additional, Hageman, Dana Brock, additional, Soto, Cheryl Brosig, additional, Burns, Kristin Marie, additional, Cameron, Lenore, additional, Campbell, Robert M., additional, Colan, Steven E., additional, Colegrove, Lynn, additional, Coleman, Christina, additional, Colson, Angie, additional, Correa, Adolfo, additional, Costa, Pamela, additional, Couser, Chris, additional, Crenshaw, Melissa Lynnn, additional, Crume, Tessa, additional, Daskalov, Rachel, additional, Del Monte, Mark D., additional, DeSantis, Lindsay, additional, Doherty, Kaitlin, additional, Dooley, Kenneth, additional, Duke, Charles (Wes), additional, Eghtesady, Pirooz, additional, Elayda, Saiza, additional, Ellison, Alison, additional, Elsner, Tim, additional, Erntz, Cori, additional, Esquivel, Michelle Z., additional, Evans, Bethany, additional, Feit, Lloyd Robert, additional, Feldkamp, Marcia, additional, Foley, William, additional, Foster, Elyse, additional, Franklin, Wayne, additional, Freeley, Bridget, additional, Galioto, Frank M., additional, George, Mary, additional, Gewitz, Michael H., additional, Gist, Katja Michelle, additional, Glenn, Thomas, additional, Glidewell, Melissa (Jill), additional, Gore, Lorraine A., additional, Gray, Johanna, additional, Green, Hannah, additional, Gurvitz, Michelle Z., additional, Handa, Sonia, additional, Harvey, Melissa, additional, Heath, Emilie, additional, Hile, Danielle, additional, Hokanson, John Smith, additional, Honein, Margaret (Peggy), additional, Hubbell, Marius M., additional, Hudson, Jeff, additional, Huhn, Kelly, additional, Ilardi, Dawn, additional, Jacobs, Dawn C., additional, Jaquiss, Robert Douglas Benjamin, additional, Jenkins, Kathy J., additional, John, Anitha, additional, Johnson, Patrick, additional, Johnson, Shakila, additional, Jones, Emily, additional, Jossif, Antonios P., additional, Kaltman, Jonathan Ross, additional, Kasnic, David, additional, Kemper, Alex R., additional, Kenny, Natalie, additional, Khairy, Paul, additional, King, Valerie, additional, Knapp, Donna, additional, Kobayashi, Daisuke, additional, Kovacs, Adrienne, additional, Kucik, James, additional, Kuehl, Karen S., additional, Kuznetsov, Alexandra, additional, Leezer, Scott, additional, Lemacks, Jodi, additional, Libby, Patty, additional, Lipkin, Paul H., additional, Lloyd‐Puryear, Michele Ann, additional, Lopez, Keila Natilde, additional, Madsen, Nicolas L., additional, Mai, Cara, additional, Mann, Monica, additional, Marino, Bradley, additional, Martin, Gerard Robert, additional, Paul Matherne, G., additional, Mauller, Phillip, additional, May, Susan, additional, McCabe, Edward R. B., additional, McCabe, Nancy, additional, McCardle, Michelle, additional, McCathran, Ty, additional, McCathran, Amy, additional, McConnell, Michael E., additional, McCormick, Kristine Brite, additional, Melsom, Eric, additional, Milionis, William Kelly, additional, Miller, Paula, additional, Miller, Erika, additional, Mitchell, Stephanie, additional, Moore, Cynthia A., additional, Morris, Laura, additional, Murray, Angela, additional, Mussatto, Kathleen, additional, Neish, Steven R., additional, Nelson, Sue, additional, Newburger, Jane W., additional, Nicolarsen, Jeremy, additional, Niggles, Autumn, additional, Noonan, Jacqueline Anne, additional, Ober, Gail, additional, O'Keefe, Lori, additional, Overcash, Marc, additional, Page, Jennifer, additional, Park, Matthew Vaughn, additional, Patel, Mehul D., additional, Patel, Jasmin, additional, Pearson, Gail Denise, additional, Pellegrini, Cindy, additional, Pierce, Corrie, additional, Pinto, Nelangi M., additional, Polen, Kara, additional, Quinones, Jose Alcides, additional, Raimondi, Carol, additional, Richter, Pat, additional, Rintamaki, Michelle, additional, Robles, Elisa, additional, Rosenthal, Geoffrey L., additional, Rush, Grahame, additional, Russell, Laura, additional, Saarinen, Annamarie, additional, Sable, Craig Andrew, additional, Saltz, Joel, additional, Schaefer, Terri, additional, Schubert, Kathryn, additional, Schwartz, Vida, additional, Shapira, Stuart K., additional, Sheehan, Kathleen, additional, Silverman, Brenda, additional, Simeone, Regina, additional, Smith, Juanita, additional, Smith, Kimberly E., additional, Smith, Kristina, additional, Sontag, Marci, additional, Srivastava, Shubhika, additional, Stassen, Corrie, additional, Stiver, Corey, additional, Taubert, Kathryn, additional, Thibadeau, Judy, additional, Thomas, John P., additional, Thomas, Dena, additional, Thorne, Vivian Baldassari, additional, Tiernan, Linda, additional, Timmins, Susan, additional, Tiner, Colby, additional, Torentinos, Natalie, additional, Tringali, Glenn, additional, Tweddell, James S., additional, Vasquez, Lisa M., additional, Verstappen, Amy, additional, Ware, Janice, additional, Watkins, Caron, additional, Webb, Catherine L., additional, Weiss, Ellen, additional, Weiss, Marina, additional, Wernovsky, Gil, additional, Whitehurst, Gretchen, additional, Whitley, Herbert, additional, Witten, Jennifer, additional, Wong, Austin Henry, additional, Wright, Matthew, additional, Wynbrant, Robert, additional, and Zheleva, Bistra, additional

Published
2016
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38. Milford Sound development plan : botanical report

Author

Johnson, P. N.; Timmins, Susan M. and Johnson, P. N.; Timmins, Susan M.

Abstract

Six major vegetation types clothe the area at Milford to be altered by proposed developments: shore pimpernel-Scirpus cernuus-selliera herbfield, jointed wire-rush land, flax-Coprosma propinqua shrubland, grassy banks, low pioneer scrub, and silver beech/kamahi forest. All these vegetation types are represented in other parts of Freshwater Basin and are not unique to the Milford site nor Milford Sound. The present vegetation has a role in enhancing the setting at Milford. With care this role can be maintained even after the proposed developments have been completed. Revegetation should have consideration to the natural distribution of plants and to suitable habitats (auth)

Published
1985
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