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3. What to Measure in Aneurysmal Subarachnoid Haemorrhage Research—An International Delphi Survey

Author

Andersen, Christopher R., Presseau, Justin, Shea, Bev, Marti, Maria Luisa, McCoy, Madeline, Fernie, Gordon, McIntyre, Lauralyn, Delaney, Anthony, Chassé, Michaël, Saigle, Victoria, Marshall, Shawn, Fergusson, Dean A., Graham, Ian, Brehaut, Jamie, Turgeon, Alexis F., Lauzier, François, Tugwell, Peter, Zha, Xiaohui, Talbot, Phil, Muscedere, John, Marshall, John C., Thavorn, Kednapa, Griesdale, Donald, and English, Shane W.

Published
2024
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4. Behavior Change Techniques Included in Reports of Social Media Interventions for Promoting Health Behaviors in Adults: Content Analysis Within a Systematic Review

Author

Simeon, Rosiane, Dewidar, Omar, Trawin, Jessica, Duench, Stephanie, Manson, Heather, Pardo Pardo, Jordi, Petkovic, Jennifer, Hatcher Roberts, Janet, Tugwell, Peter, Yoganathan, Manosila, Presseau, Justin, and Welch, Vivian

Subjects
Computer applications to medicine. Medical informatics, R858-859.7, Public aspects of medicine, RA1-1270
Abstract

BackgroundSocial media are an increasingly commonly used platform for delivering health promotion interventions. Although recent research has focused on the effectiveness of social media interventions for health promotion, very little is known about the optimal content within such interventions, and the active ingredients to promote health behavior change using social media are not clear. Identifying which behavior change techniques (BCTs) are reported may help to clarify the content of interventions using a generalizable terminology that may facilitate future intervention development. ObjectiveThis study aimed to identify which BCTs are reported in social media interventions for promoting health behavior change in adults. MethodsWe included 71 studies conducted with adult participants (aged ≥18 years) and for which social media intervention was considered interactive in a Cochrane review of the effectiveness of such interventions. We developed a coding manual informed by the Behavior Change Technique Taxonomy version 1 (BCTTv1) to identify BCTs in the included studies. We identified BCTs in all study arms (including control) and described BCTs in the group and self-directed components of studies. We characterized the dose of delivery for each BCT by low and high intensity. We used descriptive analyses to characterize the reported BCTs. ResultsOur data consisted of 71 studies published from 2001 to 2017, mainly conducted in high-income countries (n=65). Most studies (n=31) used tailored, interactive websites to deliver the intervention; Facebook was the most used mainstream platform. In developing our coding manual, we adapted some BCTTv1 instructions to better capture unique nuances of how BCTs were operationalized in social media with respect to likes, retweets, smiles, congratulations, and badges. Social support (unspecified), instruction on how to perform the behavior, and credible source were most frequently identified BCTs in intervention arms of studies and group-delivery settings, whereas instruction on how to perform the behavior was most commonly applied in self-directed components of studies, control arms, and individual participant settings. Instruction on how to perform the behavior was also the most frequently reported BCT in both intervention and control arms simultaneously. Instruction on how to perform the behavior, social support (unspecified), self-monitoring of behavior, information about health consequences, and credible source were identified in the top 5 BCTs delivered with the highest intensity. ConclusionsThis study within a review provides a detailed description of the BCTs and their dose to promote behavior change in web-based, interactive social media interventions. Clarifying active ingredients in social media interventions and the intensity of their delivery may help to develop future interventions that can more clearly build upon the existing evidence.

Published
2020
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5. Pragmatic Strategy Empowering Paramedics to Assess Low-Risk Trauma Patients With the Canadian C-Spine Rule and Selectively Transport Them Without Immobilization: Protocol for a Stepped-Wedge Cluster Randomized Trial

Author

Vaillancourt, Christian, Charette, Manya, Taljaard, Monica, Thavorn, Kednapa, Hall, Elizabeth, McLeod, Brent, Fergusson, Dean, Brehaut, Jamie, Graham, Ian, Calder, Lisa, Ramsay, Tim, Tugwell, Peter, Kelly, Peter, Cheskes, Sheldon, Saskin, Refik, Plint, Amy, Osmond, Martin, Macarthur, Colin, Straus, Sharon, Rochon, Paula, Prud'homme, Denis, Dahrouge, Simone, Marlin, Susan, and Stiell, Ian G

Subjects
Medicine, Computer applications to medicine. Medical informatics, R858-859.7
Abstract

BackgroundEach year, half a million patients with a potential neck (c-spine) injury are transported to Ontario emergency departments (EDs). Less than 1.0% (1/100) of these patients have a neck bone fracture. Even less (1/200, 0.5%) have a spinal cord injury or nerve damage. Currently, paramedics transport all trauma victims (with or without an injury) by ambulance using a backboard, cervical collar, and head immobilizers. Importantly, prolonged immobilization is often unnecessary; it causes patient discomfort and pain, decreases community access to paramedics, contributes to ED crowding, and is very costly. We therefore developed the Canadian C-Spine Rule (CCR) for alert and stable trauma patients. This decision rule helps ED physicians and triage nurses to safely and selectively remove immobilization, without x-rays and missed injury. We successfully taught Ottawa paramedics to use the CCR in the field in a single-center study. ObjectiveThis study aimed to improve patient care and health system efficiency and outcomes by allowing paramedics to assess eligible low-risk trauma patients with the CCR and selectively transport them without immobilization to the ED. MethodsWe propose a pragmatic stepped-wedge cluster randomized design with health economic evaluation, designed collaboratively with knowledge users. Our 36-month study will consist of a 12-month setup and training period (year 1), followed by the stepped-wedge trial (year 2) and a 12-month period for study completion, analyses, and knowledge translation. A total of 12 Ontario paramedic services of various sizes distributed across the province will be randomly allocated to one of three sequences. Paramedic services in each sequence will cross from the control condition (usual care) to the intervention condition (CCR implementation) at intervals of 3 months until all communities have crossed to the intervention. Data will be collected on all eligible patients in each paramedic service for a total duration of 12 months. A major strength of our design is that each community will have implemented the CCR by the end of the study. ResultsInterim results are expected in December 2019 and final results in 2020. If this multicenter trial is successful, we expect the Ontario Ministry of Health will recommend that paramedics evaluate all eligible patients with the CCR in the Province of Ontario. ConclusionsWe conservatively estimate that in Ontario, more than 60% of all eligible trauma patients (300,000 annually) could be transported safely and comfortably, without c-spine immobilization devices. This will significantly reduce patient pain and discomfort, paramedic intervention times, and ED length of stay, thereby improving access to paramedics and ED care. This could be achieved rapidly and with lower health care costs compared with current practices (possible cost saving of Can $36 [US $25] per immobilization or Can $10,656,000 [US $7,335,231] per year). Trial RegistrationClinicalTrials.gov NCT02786966; https://clinicaltrials.gov/ct2/show/NCT02786966. International Registered Report Identifier (IRRID)DERR1-10.2196/16966

Published
2020
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6. Protocol for the development of guidance for collaborator and partner engagement in health care evidence syntheses

Author

Tugwell, Peter, Welch, Vivian, Magwood, Olivia, Todhunter-Brown, Alex, Akl, Elie A., Concannon, Thomas W., Khabsa, Joanne, Morley, Richard, Schunemann, Holger, Lytvyn, Lyubov, Agarwal, Arnav, Antequera, Alba, Avey, Marc T., Campbell, Pauline, Chang, Christine, Chang, Stephanie, Dans, Leonila, Dewidar, Omar, Ghersi, Davina, Graham, Ian D., Hazlewood, Glen, Hilgart, Jennifer, Horsley, Tanya, John, Denny, Jull, Janet, Maxwell, Lara J., McCutcheon, Chris, Munn, Zachary, Nonino, Francesco, Pardo Pardo, Jordi, Parker, Roses, Pottie, Kevin, Rada, Gabriel, Riddle, Alison, Synnot, Anneliese, Ghogomu, Elizabeth Tanjong, Tomlinson, Eve, Toupin-April, Karine, and Petkovic, Jennifer

Published
2023
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7. “I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis

Author

Toupin-April, Karine, Gaboury, Isabelle, Proulx, Laurie, Huber, Adam M., Duffy, Ciarán M., Morgan, Esi M., Li, Linda C., Stringer, Elizabeth, Connelly, Mark, Weiss, Jennifer E., Gibbon, Michele, Sachs, Hannah, Sivakumar, Aditi, Sirois, Alexandra, Sirotich, Emily, Trehan, Natasha, Abrahams, Naomi, Cohen, Janice S., Cavallo, Sabrina, Hindi, Tania El, Ragusa, Marco, Légaré, France, Brinkman, William B., Fortin, Paul R., Décary, Simon, Lee, Rebecca, Gmuca, Sabrina, Paterson, Gail, Tugwell, Peter, and Stinson, Jennifer N.

Published
2023
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8. Improving social justice in observational studies: protocol for the development of a global and Indigenous STROBE-equity reporting guideline

Author

Funnell, Sarah, Jull, Janet, Mbuagbaw, Lawrence, Welch, Vivian, Dewidar, Omar, Wang, Xiaoqin, Lesperance, Miranda, Ghogomu, Elizabeth, Rizvi, Anita, Akl, Elie A., Avey, Marc T., Antequera, Alba, Bhutta, Zulfiqar A., Chamberlain, Catherine, Craig, Peter, Cuervo, Luis Gabriel, Dicko, Alassane, Ellingwood, Holly, Feng, Cindy, Francis, Damian, Greer-Smith, Regina, Hardy, Billie-Jo, Harwood, Matire, Hatcher-Roberts, Janet, Horsley, Tanya, Juando-Prats, Clara, Kasonde, Mwenya, Kennedy, Michelle, Kredo, Tamara, Krentel, Alison, Kristjansson, Elizabeth, Langer, Laurenz, Little, Julian, Loder, Elizabeth, Magwood, Olivia, Mahande, Michael Johnson, Melendez-Torres, G. J., Moore, Ainsley, Niba, Loveline Lum, Nicholls, Stuart G., Nkangu, Miriam Nguilefem, Lawson, Daeria O., Obuku, Ekwaro, Okwen, Patrick, Pantoja, Tomas, Petkovic, Jennifer, Petticrew, Mark, Pottie, Kevin, Rader, Tamara, Ramke, Jacqueline, Riddle, Alison, Shamseer, Larissa, Sharp, Melissa, Shea, Bev, Tanuseputro, Peter, Tugwell, Peter, Tufte, Janice, Von Elm, Erik, Waddington, Hugh Sharma, Wang, Harry, Weeks, Laura, Wells, George, White, Howard, Wiysonge, Charles Shey, Wolfenden, Luke, and Young, Taryn

Published
2023
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9. Developing an Outcome Measures in Rheumatology (OMERACT) Core set of Outcome Measures for FOot and ankle disorders in RheumaTic and musculoskeletal diseases (COMFORT): core domain set study protocol

Author

Chapman, Lara S., Redmond, Anthony C., Flurey, Caroline A., Richards, Pamela, Smith, Toby O., Arnold, John B., Beaton, Dorcas, Conaghan, Philip G., Golightly, Yvonne M., Hannan, Marian T., Hofstetter, Catherine, Maxwell, Lara J., Menz, Hylton B., Shea, Beverley, Tugwell, Peter, Helliwell, Philip, and Siddle, Heidi J.

Published
2023
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10. Prioritising Cochrane reviews to be updated with health equity focus

Author

Tomlinson, Eve, Pardo Pardo, Jordi, Sivesind, Torunn, Szeto, Mindy D, Laughter, Melissa, Foxlee, Ruth, Brown, Michael, Skoetz, Nicole, Dellavalle, Robert P, VA Franco, Juan, Clarke, Mike, Krentel, Alison, Reveiz, Ludovic, Saran, Ashrita, Tse, Frances, A Wells, George, Boyle, Robert, Hilgart, Jennifer, Ndi, Euphrasia Ebai-Atuh, Welch, Vivian, Petkovic, Jennifer, and Tugwell, Peter

Published
2023
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11. Key issues for stakeholder engagement in the development of health and healthcare guidelines

Author

Petkovic, Jennifer, Magwood, Olivia, Lytvyn, Lyubov, Khabsa, Joanne, Concannon, Thomas W., Welch, Vivian, Todhunter-Brown, Alex, Palm, Marisha E., Akl, Elie A., Mbuagbaw, Lawrence, Arayssi, Thurayya, Avey, Marc T., Marusic, Ana, Morley, Richard, Saginur, Michael, Slingers, Nevilene, Texeira, Ligia, Ben Brahem, Asma, Bhaumik, Soumyadeep, Bou Akl, Imad, Crowe, Sally, Dormer, Laura, Ekanem, Comfort, Lang, Eddy, Kianzad, Behrang, Kuchenmüller, Tanja, Moja, Lorenzo, Pottie, Kevin, Schünemann, Holger, and Tugwell, Peter

Published
2023
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17. Defining domains: developing consensus-based definitions for foundational domains in OMERACT core outcome sets

Author

Maxwell, Lara J., Jones, Caitlin, Bingham, Clifton O, Boers, Maarten, Boonen, Annelies, Choy, Ernest, Christensen, Robin, Conaghan, Philip G., D'Agostino, Maria Antonietta, Doria, Andrea S., Grosskleg, Shawna, Hill, Catherine L., Hofstetter, Catherine, Horgan, Ben, Kroon, Féline, Leung, Ying Ying, Mackie, Sarah, Meara, Alexa, Shea, Beverley J, Simon, Lee S, Touma, Zahi, Tugwell, Peter, Wells, George A, and Beaton, Dorcas E

Published
2024
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19. Establishing a Core Outcome Measure for Peritoneal Dialysis-related Peritonitis: A Standardized Outcomes in Nephrology—Peritoneal Dialysis Consensus Workshop Report

Author

Shen, Jenny I, Cho, Yeoungjee, Manera, Karine E, Brown, Fiona, Dong, Jie, Sahlawi, Muthana Al, Acevedo, Rafael G, Htay, Htay, Ito, Yasuhiko, Kanjanabuch, Talerngsak, Nessim, Sharon J, Ngaruiya, Grace, Piraino, Beth, Szeto, Cheuk-Chun, Teitelbaum, Isaac, Amir, Noa, Craig, Jonathan C, Baumgart, Amanda, Gonzalez, Andrea M, Scholes-Robertson, Nicole, Viecelli, Andrea K, Wilkie, Martin, Tong, Allison, Perl, Jeffrey, Committee, SONG Executive, Craig, Jonathan, Wang, Angela, Hemmelgarn, Brenda, Manns, Braden, Wheeler, David, Gill, John, Tugwell, Peter, Pecoits-Filho, Roberto, Crowe, Sally, Harris, Tess, Van Biesen, Wim, Winkelmayer, Wolfgang, Group, SONG-PD Steering, Johnson, David W, Brown, Edwina, Brunier, Gillian, Manera, Karine, Mehrotra, Rajnish, Dunning, Sue-Ann, Dunning, Tony, Group, SONG-PD Infection Expert Working, Perl, Jeff, Szeto, CC, Forfang, Derek, Gomez, Rafael, Nessim, Sharon, Shen, Jenny, Committee, SONG Coordinating, Martin, Adam, Bernier-Jean, Amelie, Gonzalez, Andrea Matus, Viecelli, Andrea, Ju, Angela, Teixera-Pinto, Armando, Sautenet, Benedicte, Hanson, Camilla, Guha, Chandana, Sumpton, Daniel, Hannan, Elyssa, O’Lone, Emma, Au, Eric, Kerklaan, Jasmijn, Dunn, Louese, Howell, Martin, Nataatmadja, Melissa, Evangelidis, Nicole, Natale, Patrizia, Cazzolli, Rosanna, Anumudu, Samaya, Carter, Simon, Gutman, Talia, and Vastani, Thomas Vastani Rahim

Subjects
Health Services and Systems, Biomedical and Clinical Sciences, Clinical Sciences, Health Sciences, Clinical Research, Clinical Trials and Supportive Activities, Neurodegenerative, core outcome measure, peritoneal dialysis, peritonitis, trial design, SONG-PD Infection Workshop Investigators, Biomedical and clinical sciences, Health sciences
Abstract

IntroductionPeritoneal dialysis (PD)-related peritonitis is one of the leading causes of discontinuation of PD and is considered a critically important outcome for patients on PD. However, there is no universally accepted method of measuring this outcome in clinical trials.MethodsWe convened an online consensus workshop to establish a core outcome measure for PD-related peritonitis in clinical trials.ResultsA total of 53 participants, including 18 patients and caregivers, from 12 countries engaged in breakout discussions in this workshop. Transcripts were analyzed thematically. We identified the following 3 themes: (i) feasibility and applicability across diverse settings, which reflected the difficulty with implementing laboratory-based measures in resource-limited environments; (ii) ensuring validity, which included minimizing false positives and considering the specificity of symptoms; and (iii) being meaningful and tangible to patients, which meant that the measure should be easy to interpret, reflect the impact that symptoms have on patients, and promote transparency by standardizing the reporting of peritonitis among dialysis units.ConclusionA core outcome measure for PD-related peritonitis should include both symptom-based and laboratory-based criteria. Thus, the International Society for Peritoneal Dialysis (ISPD) definition of peritonitis is acceptable. However, there should be consideration of reporting suspected peritonitis in cases where laboratory confirmation is not possible. The measure should include all infections from the time of catheter insertion and capture both the rate of infection and the number of patients who remain peritonitis free. A core outcome measure with these features would increase the impact of clinical trials on the care and decision-making of patients receiving PD.

Published
2022

20. Presenting Evidence to Patients Online: What Do Web Users Think of Consumer Summaries of Cochrane Musculoskeletal Reviews?

Author

Brehaut, Jamie C, Santesso, Nancy, O'Connor, Annette M, Lott, Alison, Lindgaard, Gitte, Syrowatka, Ania, Graham, Ian D, and Tugwell, Peter S

Subjects
Computer applications to medicine. Medical informatics, R858-859.7, Public aspects of medicine, RA1-1270
Abstract

Background The Internet has the potential to be an effective medium for delivering health care knowledge to consumers. While computer usability research makes recommendations about how to present Web-based information generally, there remains no clear guidance on how to present specific forms of health care research evidence online in a way that facilitates understanding and good health care decision making. Objective The two goals of this study were to describe the Cochrane Musculoskeletal Group’s (CMSG’s) process for developing online patient-focused summaries of systematic reviews and to evaluate the impressions of these summaries formed by users. Methods A process for summarizing the results of systematic reviews via consumer summaries has evolved over 15 years. An evaluation of this approach took the form of Internet surveys on the Arthritis Society of Canada website and surveys of members of the Canadian Arthritis Patient Alliance (CAPA). Respondents provided information on background, relationship to the decision, their satisfaction with and preparation for decision making, and suggestions for improvements to the summaries. Survey data were collected between August 1, 2005, and February 28, 2006. Results A total of 261 respondents completed the survey. The majority (226/261 or 87%) of respondents reported having an arthritis-related condition. The consumer summary approach was generally reviewed favorably by respondents, with most agreeing that the summary provided appropriate information (177/261 or 68%), would be useful to others (160/261 or 61%), was well laid out (159/261 or 61%), was easy to learn from (157/261 or 60%), and was useful to the reader (153/261 or 59%). Areas of potential improvement were indicated by relatively fewer respondents agreeing that they could easily find all the information they wanted (118/261 or 45%), by a substantial proportion being unable to judge whether the providers of the information are reliable (80/261 or 31%), and by a similar proportion being unable to determine whether the information presented was the best available (68/261 or 26%). Conclusions The CMSG has developed an approach to summarizing the results of often-technical systematic reviews into public-friendly consumer summaries. Our online survey showed that this approach was generally well liked but identified specific areas for improvement. Feedback from this survey will help to reshape and improve the current template for consumer summaries used by the CMSG.

Published
2011
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21. Motivations for investigating health inequities in observational epidemiology: a content analysis of 320 studies

Author

Dewidar, Omar, McHale, Georgia, Al Zubaidi, Ali, Bondok, Mostafa, Abdelrazeq, Leenah, Huang, Jimmy, Jearvis, Alyssa, Aliyeva, Khadija, Alghamyan, Amjad, Jahel, Fatima, Greer-Smith, Regina, Tufte, Janice, Barker, Lucy C., Elmestekawy, Nour, Sharp, Melissa K., Horsley, Tanya, Prats, Clara Juandro, Jull, Janet, Wolfenden, Luke, Cuervo, Luis Gabriel, Hardy, Billie-Jo, Roberts, Janet Hatchet, Ghogomu, Elizabeth, Obuku, Ekwaro, Owusu-Addo, Ebenezer, Nicholls, Stuart G., Mbuagbaw, Lawrence, Funnell, Sarah, Shea, Bev, Rizvi, Anita, Tugwell, Peter, Bhutta, Zulfiqar, Welch, Vivian, and Melendez-Torres, G.J.

Published
2024
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22. Methods proposed for monitoring the implementation of evidence-based research: a cross-sectional study

Author

Puljak, Livia, Bala, Małgorzata M., Zając, Joanna, Meštrović, Tomislav, Buttigieg, Sandra, Yanakoulia, Mary, Briel, Matthias, Lunny, Carole, Lesniak, Wiktoria, Poklepović Peričić, Tina, Alonso-Coello, Pablo, Clarke, Mike, Djulbegovic, Benjamin, Gartlehner, Gerald, Giannakou, Konstantinos, Glenny, Anne-Marie, Glenton, Claire, Guyatt, Gordon, Hemkens, Lars G., Ioannidis, John P.A., Jaeschke, Roman, Juhl Jørgensen, Karsten, Martins-Pfeifer, Carolina Castro, Marušić, Ana, Mbuagbaw, Lawrence, Meneses Echavez, Jose Francisco, Moher, David, Nussbaumer-Streit, Barbara, Page, Matthew J., Pérez-Gaxiola, Giordano, Robinson, Karen A., Salanti, Georgia, Saldanha, Ian J., Savović, Jelena, Thomas, James, Tricco, Andrea C., Tugwell, Peter, van Hoof, Joost, and Pieper, Dawid

Published
2024
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23. Evolving and evaluating the OMERACT fellows program: insights and implications from OMERACT 2023 fellows

Author

Chapman, Lara S., Kelly, Ayano, Balay-Dustrude, Erin, Bekker, Charlotte, Berthelsen, Dorthe B., Ghosh, Nilasha, Gordon, Rachael A., Haas, Romi, Jones, Caitlin, Luquini, Andre, Weinbrecht-Mischkewitz, Max, Pickles, Tim, Saygin, Didem, Nielsen, Wils, Webers, Casper, Grosskleg, Shawna, Tugwell, Peter, D'Agostino, Maria Antonietta, Guillemin, Francis, and March, Lyn

Published
2024
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24. The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Author

Gordon, Rachael A., Nguyen, Yann, Foulquier, Nathan, Beydon, Maxime, Gheita, Tamer A, Hajji, Raouf, Sahbudin, Ilfita, Hoi, Alberta, Ng, Wan-Fai, Mendonça, Jose Alexandre, Wallace, Daniel J, Shea, Beverley, Bruyn, George AW, Goodman, Susan M, Fisher, Benjamin A, Baldini, Chiara, Torralba, Karina D, Bootsma, Hendrika, Akpek, Esen K, Karakus, Sezen, Baer, Alan N, Chakravarty, Soumya D, Terslev, Lene, D'Agostino, Maria-Antonietta, Mariette, Xavier, DiRenzo, Dana, Rasmussen, Astrid, Papas, Athena, Montoya, Cristina, Arends, Suzanne, Yusof, Md Yuzaiful Md, Pintilie, Ionut, Warner, Blake M., Hammitt, Katherine M., Strand, Vibeke, Bouillot, Coralie, Tugwell, Peter, Inanc, Nevsun, Andreu, José Luis, Wahren-Herlenius, Marie, Devauchelle-Pensec, Valerie, Shiboski, Caroline H., Benyoussef, Anas, Masli, Sharmila, Lee, Adrian Y.S., Cornec, Divi, Bowman, Simon, Rischmueller, Maureen, McCoy, Sara S, and Seror, Raphaele

Published
2024
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25. Consensus on the definitions and descriptions of the domains of the OMERACT Core Outcome Set for shared decision making interventions in rheumatology trials

Author

Décary, Simon, de Wit, Maarten, Naye, Florian, Barton, Jennifer L., Fraenkel, Liana, Li, Linda C., Brooks, Peter, Stacey, Dawn, Maxwell, Lara J., Campbell, Willemina, Hofstetter, Cathie, Voshaar, Marieke, Meara, Alexa, Christensen, Robin, Boonen, Annelies, Suarez-Almazor, Maria E., Meade, Tanya, March, Lyn, Jull, Janet Elizabeth, Alten, Rieke, Morgan, Esi M., Stewart Hazlewood, Glen, Barber, Claire E.H., Guillemin, Francis, El-Miedany, Yasser, Mittoo, Shikha, Robertson, Tiffany Westrich, Bartlett, Susan J., Singh, Jasvinder A., Mannion, Melissa, Nasef, Samah Ismail, Boel, Anne, Adebajo, Adewale, Arnaud, Laurent, Gill, Tiffany K., Moholt, Ellen, Burt, Jennifer, Jayatilleke, Arundathi, Hmamouchi, Ihsane, Berthelsen, Dorthe B, Blanco, Francisco J., Mather, Kate, Maharaj, Ajesh, Sharma, Saurab, Caso, Francesco, Beaton, Dorcas, Shea, Beverly, Fong, Christopher, Fernandez, Anthony P., Mackie, Sarah, Nikiphorou, Elena, Jones, Allyson, Greer-Smith, Regina, Sloan, Victor S., Akpabio, Akpabio, Strand, Vibeke, Lee, Rebecca R., Umaefulam, Valerie, Monti, Sara, Abaza, Nouran, Schultz, Grayson, Stones, Simon, Gossec, Laure, Nielsen, Sabrina Mai, Cavallo, Sabrina, Srinivasalu, Hemalatha, Constien, Deb, Evans, Vicki, Tugwell, Peter, and Toupin-April, Karine

Published
2024
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26. Generating a list of potentially important contextual factors covering randomized trials, cohorts, and measurement property studies: An OMERACT initiative

Author

Weinbrecht-Mischkewitz, Max, Kamal, Midhat, Asim, Farwa, Guillemin, Francis, Goel, Niti, Voshaar, Marieke, Boonen, Annelies, Berthelsen, Dorthe Bang, Toupin-April, Karine, Lopez-Olivo, Maria A., Sloan, Victor S., Boers, Maarten, Jones, C. Allyson, van der Horst-Bruinsma, Irene, Cashin, Aidan G., Sharma, Saurab, Leong, Amye, Alten, Rieke, Shea, Beverley, March, Lyn, Tugwell, Peter, Christensen, Robin, and Nielsen, Sabrina Mai

Published
2024
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27. OMERACT Core outcome measurement set for shared decision making in rheumatic and musculoskeletal conditions: a scoping review to identify candidate instruments

Author

Naye, Florian, Toupin-April, Karine, de Wit, Maarten, LeBlanc, Annie, Dubois, Olivia, Boonen, Annelies, Barton, Jennifer L., Fraenkel, Liana, Li, Linda C., Stacey, Dawn, March, Lyn, Barber, Claire E.H., Hazlewood, Glen Stewart, Guillemin, Francis, Bartlett, Susan J., Berthelsen, Dorthe B., Mather, Kate, Arnaud, Laurent, Akpabio, Akpabio, Adebajo, Adewale, Schultz, Grayson, Sloan, Victor S., Gill, Tiffany K., Sharma, Saurab, Scholte-Voshaar, Marieke, Caso, Francesco, Nikiphorou, Elena, Nasef, Samah Ismail, Campbell, Willemina, Meara, Alexa, Christensen, Robin, Suarez-Almazor, Maria E., Jull, Janet Elizabeth, Alten, Rieke, Morgan, Esi M., El-Miedany, Yasser, Singh, Jasvinder A., Burt, Jennifer, Jayatilleke, Arundathi, Hmamouchi, Ihsane, Blanco, Francisco J., Fernandez, Anthony P., Mackie, Sarah, Jones, Allyson, Strand, Vibeke, Monti, Sara, Stones, Simon R., Lee, Rebecca R., Nielsen, Sabrina Mai, Evans, Vicki, Srinivasalu, Hemalatha, Gérard, Thomas, Demers, Juliette LeBlanc, Bouchard, Roxanne, Stefan, Théo, Dugas, Michèle, Bergeron, Frédéric, Beaton, Dorcas, Maxwell, Lara J., Tugwell, Peter, and Décary, Simon

Published
2024
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28. Patient outcomes in longitudinal observational studies (POLOS) of rheumatoid arthritis: Determining the OMERACT core domain set

Author

Benavent, Diego, Carmona, Loreto, Lopez-Olivo, Maria A., Hill, Catherine L., Westrich-Robertson, Tiffany, Goel, Niti, Strand, Vibeke, Shea, Beverley, Grosskleg, Shawna, Leong, Amye, Hofstetter, Catherine, Bingham, Clifton, Meyer, Daniel, Constien, Deb, Berthelsen, Dorthe B., Schultz, Grayson, de Groot, Ingrid, Weiner, Joan, Mather, Kate, de Wit, Maarten, Böhm, Peter, Cembalo, Sam Michel, Tugwell, Peter, Bruera, Sebastian, and Suarez-Almazor, Maria E.

Published
2024
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30. Developing consensus on core outcome sets of domains for acute, the transition from acute to chronic, recurrent/episodic, and chronic pain: results of the INTEGRATE-pain Delphi process

Author

Bova, Giulia, Domenichiello, Anthony, Letzen, Janelle E., Rosenberger, Daniela C., Siddons, Andrew, Kaiser, Ulrike, Anicich, Adam, Baron, Ralf, Birch, Judy, Bouhassira, Didier, Casey, George, Golden, Katie, Iyengar, Smriti, Karp, Barbara I., Liedgens, Hiltrud, Meissner, Winfried, Nicholson, Kate, Pogorzala, Leah, Ryan, Deirdre, Treede, Rolf-Detlef, Tugwell, Peter, Turk, Dennis C., Vincent, Katy, Vollert, Jan, Williamson, Paula R., Woller, Sarah A., Zaslansky, Ruth, Wandner, Laura D., and Pogatzki-Zahn, Esther M.

Published
2023
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31. Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group

Author

Berthelsen, Dorthe B., Simon, Lee S., Ioannidis, John P.A., Voshaar, Marieke, Richards, Pam, Goel, Niti, Strand, Vibeke, Nielsen, Sabrina M., Shea, Beverly J., Tugwell, Peter, Bartlett, Susan J., Hazlewood, Glen S., March, Lyn, Singh, Jasvinder A., Suarez-Almazor, Maria E., Boers, Maarten, Stevens, Randall M., Furst, Daniel E., Woodworth, Thasia, Leong, Amye, Brooks, Peter M., Flurey, Caroline, and Christensen, Robin

Published
2023
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33. Factors to Consider During Identification and Invitation of Individuals in a Multi-stakeholder Research Partnership

Author

Parker, Roses, Tomlinson, Eve, Concannon, Thomas W., Akl, Elie, Petkovic, Jennifer, Welch, Vivian A., Crowe, Sally, Palm, Marisha, Marusic, Ana, Ekanem, Comfort, Akl, Imad Bou, Saginur, Michael, Moja, Lorenzo, Kuchenmüller, Tanja, Slingers, Nevilene, Teixeira, Ligia, Dormer, Laura, Lang, Eddy, Arayssi, Thurayya, Greer-Smith, Regina, Brahem, Asma Ben, Avey, Marc, and Tugwell, Peter

Published
2022
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35. Equity issues rarely addressed in the development of COVID-19 formal recommendations and good practice statements: a cross-sectional study

Author

Dewidar, Omar, Bondok, Mostafa, Abdelrazeq, Leenah, Aliyeva, Khadija, Solo, Karla, Welch, Vivian, Brignardello-Petersen, Romina, Mathew, Joseph L., Hazlewood, Glen, Pottie, Kevin, Hartling, Lisa, Khalifa, Dina Sami, Duda, Stephanie, Falavigna, Maicon, Khabsa, Joanne, Lotfi, Tamara, Petkovic, Jennifer, Elliot, Sarah, Chi, Yuan, Parker, Roses, Kristjansson, Elizabeth, Riddle, Alison, Darzi, Andrea J., Magwood, Olivia, Saad, Ammar, Rada, Gabriel, Neumann, Ignacio, Loeb, Mark, Reveiz, Ludovic, Mertz, Dominik, Piggott, Thomas, Turgeon, Alexis F., Schünemann, Holger, and Tugwell, Peter

Published
2023
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36. Improving the quality of toxicology and environmental health systematic reviews: What journal editors can do.

Author

Whaley, Paul, Blaauboer, Bas J, Brozek, Jan, Cohen Hubal, Elaine A, Hair, Kaitlyn, Kacew, Sam, Knudsen, Thomas B, Kwiatkowski, Carol F, Mellor, David T, Olshan, Andrew F, Page, Matthew J, Rooney, Andrew A, Radke, Elizabeth G, Shamseer, Larissa, Tsaioun, Katya, Tugwell, Peter, Wikoff, Daniele, and Woodruff, Tracey J

Subjects
environmental health, epidemiology, research standards, systematic review, toxicology, Agricultural and Veterinary Sciences, Medical and Health Sciences, Toxicology
Abstract

Systematic reviews are fast increasing in prevalence in the toxicology and environmental health literature. However, how well these complex research projects are being conducted and reported is unclear. Since editors have an essential role in ensuring the scientific quality of manuscripts being published in their journals, a workshop was convened where editors, systematic review practitioners, and research quality control experts could discuss what editors can do to ensure the systematic reviews they publish are of sufficient scientific quality. Interventions were explored along four themes: setting standards; reviewing protocols; optimizing editorial workflows; and measuring the effectiveness of editorial interventions. In total, 58 editorial interventions were proposed. Of these, 26 were shortlisted for being potentially effective, and 5 were prioritized as short-term actions that editors could relatively easily take to improve the quality of published systematic reviews. Recent progress in improving systematic reviews is summarized, and outstanding challenges to further progress are highlighted.

Published
2021

37. Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session

Author

Chapman, Lara S., Jones, Jennifer, Redmond, Anthony C., Flurey, Caroline A., Richards, Pamela, Hofstetter, Catherine, Smith, Toby O., Arnold, John B., Hannan, Marian T., Maxwell, Lara J., Menz, Hylton B., Shea, Beverley, Golightly, Yvonne M., Tugwell, Peter, Beaton, Dorcas, Conaghan, Philip G., Helliwell, Philip S., and Siddle, Heidi J.

Published
2023
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38. A scoping review establishes need for consensus guidance on reporting health equity in observational studies

Author

Wang, Xiaoqin, Dewidar, Omar, Rizvi, Anita, Huang, Jimmy, Desai, Payaam, Doyle, Rebecca, Ghogomu, Elizabeth, Rader, Tamara, Nicholls, Stuart G., Antequera, Alba, Krentel, Alison, Shea, Beverley, Hardy, Billie-Jo, Chamberlain, Catherine, Wiysonge, Charles S., Feng, Cindy, Juando-Prats, Clara, Lawson, Daeria O., Obuku, Ekwaro A., Kristjansson, Elizabeth, von Elm, Erik, Wang, Harry, Ellingwood, Holly, Waddington, Hugh Sharma, Ramke, Jacqueline, Jull, Janet Elizabeth, Hatcher-Roberts, Janet, Tufte, Janice, Little, Julian, Mbuagbaw, Lawrence, Weeks, Laura, Niba, Loveline Lum, Cuervo, Luis Gabriel, Wolfenden, Luke, Kasonde, Mwenya, Avey, Marc T., Sharp, Melissa K., Mahande, Michael Johnson, Nkangu, Miriam, Magwood, Olivia, Craig, Peter, Tugwell, Peter, Funnell, Sarah, Noorduyn, Stephen G., Kredo, Tamara, Horsley, Tanya, Young, Taryn, Pantoja, Tomas, Bhutta, Zulfiqar, Martel, Andrea, and Welch, Vivian A.

Published
2023
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39. Outcome reporting in randomized trials in gout: A systematic scoping review from the OMERACT gout working group assessing the uptake of the core outcome set

Author

Morillon, Melanie B., Nørup, Alexander, Singh, Jasvinder A., Dalbeth, Nicola, Taylor, William J., Kennedy, Martin A., Pedersen, Birthe Mette, Grainger, Rebecca, Tugwell, Peter, Perez-Ruiz, Fernando, Diaz-Torne, Cesar, Edwards, N. Lawrence, Shea, Beverley, Ellingsen, Torkell J., Christensen, Robin, and Stamp, Lisa K.

Published
2023
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41. Geographical and Gender Diversity in Cochrane and non-Cochrane Reviews Authorship: A Meta-Research Study

Author

Sofi-Mahmudi, Ahmad, primary, Vounzoulaki, Elpida, additional, Stojanova, Jana, additional, Tomlinson, Eve, additional, Beatriz-Pizarro, Ana, additional, Khademioore, Sahar, additional, Ngeh, Etienne, additional, Sharifan, Amin, additional, Mrema, Lucy Elauteri, additional, Britten-Jones, Alexis Ceecee, additional, Castiello-de Obeso, Santiago, additional, Welch, Vivian A., additional, Mbuagbaw, Lawrence, additional, and Tugwell, Peter, additional

Published
2024
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42. Reporting of equity in observational epidemiology: A methodological review

Author

Dewidar, Omar, primary, Al-Zubaidi, Ali, additional, Bondok, Mostafa, additional, Abdelrazeq, Leenah, additional, Huang, Jimmy, additional, Jearvis, Alyssa, additional, Barker, Lucy C, additional, Elmestekawy, Nour, additional, Goghomu, Elizabeth, additional, Rader, Tamara, additional, Tufte, Janice, additional, Greer-Smith, Regina, additional, Waddington, Hugh S, additional, Nicholls, Stuart G, additional, Little, Julian, additional, Hardy, Billie-Jo, additional, Horsley, Tanya, additional, Young, Taryn, additional, Cuervo, Luis Gabriel, additional, Sharp, Melissa K, additional, Chamberlain, Catherine, additional, Shea, Beverley, additional, Craig, Peter, additional, Lawson, Daeria O, additional, Rizvi, Anita, additional, Wiysonge, Charles S, additional, Kredo, Tamara, additional, Francis, Damian, additional, Kristjansson, Elizabeth, additional, Bhutta, Zulfiqar, additional, Antequera, Alba, additional, Melendez-Torres, GJ, additional, Pantoja, Tomas, additional, Wang, Xiaoqin, additional, Jull, Janet, additional, Roberts, Janet Hatcher, additional, Funnell, Sarah, additional, White, Howard, additional, Krentel, Alison, additional, Mahande, Michael Johnson, additional, Ramke, Jacqueline, additional, Wells, George, additional, Petkovic, Jennifer, additional, Pottie, Kevin, additional, Niba, Loveline, additional, Feng, Cindy, additional, Nguliefem, Miriam N, additional, Tugwell, Peter, additional, Mbuagbaw, Lawrence, additional, and Welch, Vivian, additional

Published
2024
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43. Considering health equity when moving from evidence-based guideline recommendations to implementation : a case study from an upper-middle income country on the GRADE approach

Author

Eslava-Schmalbach, Javier, Mosquera, Paola, Alzate, Juan Pablo, Pottie, Kevin, Welch, Vivian, Akl, Elie A, Jull, Janet, Lang, Eddy, Katikireddi, Srinivasa Vittal, Morton, Rachel, Thabane, Lehana, Shea, Bev, Stein, Airton T, Singh, Jasvinder, Florez, Ivan D, Guyatt, Gordon, Schünemann, Holger, and Tugwell, Peter

Published
2017

47. Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop

Author

Tong, Allison, Manns, Braden, Wang, Angela Yee Moon, Hemmelgarn, Brenda, Wheeler, David C, Gill, John, Tugwell, Peter, Pecoits-Filho, Robert, Crowe, Sally, Harris, Tess, Van Biesen, Wim, Winkelmayer, Wolfgang C, Levin, Adeera, Thompson, Aliza, Perkovic, Vlado, Ju, Angela, Gutman, Talia, Bernier-Jean, Amelie, Viecelli, Andrea K, O’Lone, Emma, Shen, Jenny, Josephson, Michelle A, Cho, Yeoungjee, Johnson, David W, Sautenet, Bénédicte, Tonelli, Marcello, Craig, Jonathan C, Investigators, SONG Implementation Workshop, Craig, Jonathan, Wang, Angela, Wheeler, David, Pecoits-Filho, Roberto, van Biesen, Wim, Winkelmayer, Wolfgang, Sinha, Aditi, Ong, Albert, Denny, Alexis, Dart, Allison, Eddy, Allison, Kelly, Amy, Viecelli, Andrea, Davenport, Andrew, Narva, Andrew, Sharma, Ankit, Warrens, Anthony, Chapman, Arlene, Teixeira-Pinto, Armando, Kelly, Ayano, Murphy, Barbara, Sautenet, Benedicte, Padilla, Benita, Canaud, Bernard, Pullin, Brian, Schiller, Brigitte, Robinson, Bruce, Hanson, Camilla, Hawley, Carmel, Logeman, Charlotte, Lok, Charmaine, Wanner, Christoph, Herzog, Chuck, Rutherford, Claudia, Ahn, Curie, Sumpton, Daniel, Rosenbloom, David, Harris, David, Baron, David, Johnson, David, White, David, Gipson, Debbie, Fouque, Denis, Eilers, Denise, Bockenhauer, Detlef, O'Donoghue, Donal, Chen, Dongping, Dunning, Dyke, Brown, Edwina, Bavlovlenkov, Elena, Mannon, Elinor, Poggio, Emilo, O'Lone, Emma, Chemla, Eric, Dobbels, Fabienne, Zannad, Faiez, Caskey, Fergus, Tentori, Francesca, Hurst, Frank, Schaefer, Franz, and Wong, Germaine

Subjects
Clinical Trials and Supportive Activities, Kidney Disease, Clinical Research, Comparative Effectiveness Research, Renal and urogenital, Generic health relevance, Good Health and Well Being, Consensus, Endpoint Determination, Humans, Randomized Controlled Trials as Topic, Renal Insufficiency, Chronic, Research Design, Stakeholder Participation, Treatment Outcome, core outcome sets, implementation, kidney disease, outcomes, patient-centered care, trials, SONG Implementation Workshop Investigators, Clinical Sciences, Urology & Nephrology
Abstract

There are an estimated 14,000 randomized trials published in chronic kidney disease. The most frequently reported outcomes are biochemical endpoints, rather than clinical and patient-reported outcomes including cardiovascular disease, mortality, and quality of life. While many trials have focused on optimizing kidney health, the heterogeneity and uncertain relevance of outcomes reported across trials may limit their policy and practice impact. The international Standardized Outcomes in Nephrology (SONG) Initiative was formed to identify core outcomes that are critically important to patients and health professionals, to be reported consistently across trials. We convened a SONG Implementation Workshop to discuss the implementation of core outcomes. Eighty-two patients/caregivers and health professionals participated in plenary and breakout discussions. In this report, we summarize the findings of the workshop in two main themes: socializing the concept of core outcomes, and demonstrating feasibility and usability. We outline implementation strategies and pathways to be established through partnership with stakeholders, which may bolster acceptance and reporting of core outcomes in trials, and encourage their use by end-users such as guideline producers and policymakers to help improve patient-important outcomes.

Published
2018

48. A multistakeholder development process to prioritize and translate COVID-19 health recommendations for patients, caregivers and the public. A case study of the COVID-19 recommendation map

Author

Pottie, Kevin, Smith, Maureen, Matthews, Micayla, Santesso, Nancy, Magwood, Olivia, Kredo, Tamara, Scott, Sarah, Bayliss, Kerin, Saad, Ammar, Haridas, Rinila, Detambel, Nicole, Motilall, Ashley, Tan, Yvonne, Steinberg, Sally, Litynska, Justyna, Dietl, Bart, Ioiri, Alfonso, Reveiz, Ludovic, Welch, Vivian, Klugar, Miloslav, Mbuagbaw, Lawrence, Rojas, Maria Ximena, Florez, Ivan D., Lotfi, Tamara, Qaseem, Amir, Mathew, Joseph L., Akl, Elie A., Tugwell, Peter, and Schünemann, Holger J.

Published
2022
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49. An evaluation of the COVID-19 recommendation map identified diverging clinical and public health guidance

Author

Nasir, Zil H., Mertz, Dominik, Nieuwlaat, Robby, Santesso, Nancy, Lotfi, Tamara, Motilall, Ashley, Moja, Lorenzo, Mbuagbaw, Lawrence, Klugar, Miloslav, Turgeon, Alexis F., Mathew, Joseph L., Canelo-Aybar, Carlos, Pottie, Kevin, Dewidar, Omar, Langendam, Miranda W., Iorio, Alfonso, Vist, Gunn Elisabeth, Meerpohl, Joerg J., Flottorp, Signe, Kredo, Tamara, Piggott, Thomas, Mathews, Micayla, Qaseem, Amir, Chu, Derek K., Tugwell, Peter, Klugarová, Jitka, Nelson, Harrison, Hussein, Heba, Suvada, Jozef, Neumann, Ignacio, and Schünemann, Holger J.

Published
2022
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