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5 results on '"Valentina Taucar"'

1. Pediatricians’ awareness of galenic drugs for children with special needs: a regional survey

Author

Francesca Burlo, Davide Zanon, Paola Minghetti, Valentina Taucar, Giulia Benericetti, Giada Bennati, Egidio Barbi, and Lucia De Zen

Subjects
Children, Medical complexity, Galenic compounds, Pediatricians, Magistral formula, Pediatrics, RJ1-570
Abstract

Abstract The prevalence of children with medical complexity is increasing, therefore drug formulations must be updated in accordance with their needs. Furthermore, a different drug formulation may be also needed for patients who require a very low dosage which is not easily reachable with those of the industrial products or for those following a ketogenic diet. Galenic (or compounded) drugs have been recently pointed out as effective in treating children. Nonetheless, their knowledge among healthcare providers is limited. We investigated how much did pediatricians know about galenic compounds by a short questionnaire administered to family and hospital pediatricians and pediatric residents in Friuli Venezia Giulia, Italy. We collected answers from 65 family pediatricians (57,5%), 39 hospital pediatricians (36,1%), and 47 pediatric residents (41,2%). Overall, both family and hospital pediatricians substantially know what is a galenic compound and the indications to its use. Of note, most of pediatricians ignore which is the legislation that allows the galenic compounds’ preparation and use, and which is the correct procedure to prescribe them. Moreover, half of the hospital pediatricians and one-third of the family ones erroneously stated that galenic formulations cost more or like the industrial products, and around the 15% of both categories affirmed that galenic compounds are less safe than the commercial product. In conclusion, the use of galenic drug may significantly improve children’s and caregivers’ quality of life. We believe that all pediatricians should be updated on this quite new and interesting topic.

Published
2023
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2. The ongoing impact of Covid-19 pandemic on children with medical complexity: the experience of an Italian pediatric palliative care network

Author

Veronica Grigoletto, Bianca Nardin, Valentina Taucar, Egidio Barbi, and Lucia De Zen

Subjects
Pediatric palliative care, Network, Health facilities, Home assistance, Sars-coV-2, Covid-19, Pediatrics, RJ1-570
Abstract

Abstract Background Italy was the first European country to experience a massive outbreak of Sars-coV-2 in March 2020. Severe measures were introduced to face the pandemic, significantly impacting all healthcare services, including pediatric palliative care (PPC) networks. We investigated how the Covid-19 pandemic modified the provision of PPC services in Friuli Venezia Giulia, Italy. Both the acute and long-term impacts on the families were addressed. Methods We administered a retrospective three-sections online questionnaire to the eligible families assisted by our regional PPC network. Inclusion criteria were: child needing specialistic PPC, adequate knowledge of the Italian language, being in charge of the PPC regional network of Friuli Venezia Giulia from February 1, 2020. The three sections examined the same issues in different periods: the pre-covid period (until February 29, 2020), the lockdown period (March 1, 2020, to April 30, 2020), and the post-lockdown period (May 2021). Results Twelve patients were included. During the lockdown period, 54.6% of children had to stop physiotherapy sessions, while, among those who continued, 80.0% experienced a reduction in the sessions’ frequency. In the post-lockdown period, 45.5% of children did not have physiotherapy as often as before the pandemic onset. Overall, the access to medical visits during the lockdown and after its end was significantly reduced (p = 0.01). The level of support perceived by the families descended from grade 3 (intermediate) in the pre-covid period to 2 (low) during the lockdown (p

Published
2022
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3. Impact of compounded drugs on the caregivers’ burden of home therapy management in pediatric palliative care: A descriptive study

Author

Francesca Burlo, Davide Zanon, Eva Passone, Maristella Toniutti, Giuliano Ponis, Egidio Barbi, Valentina Taucar, Lucia De Zen, Burlo, Francesca, Zanon, Davide, Passone, Eva, Toniutti, Maristella, Ponis, Giuliano, Barbi, Egidio, Taucar, Valentina, and De Zen, Lucia

Subjects
therapy, Anesthesiology and Pain Medicine, Caregivers, children, drugs, drug, General Medicine, Caregiver
Abstract

Background: Children with medical complexity need complex assistance, that considerably affects caregivers’ quality of life. They often need multiple medications, with a consequent relevant risk of errors or poor compliance. Galenic (or compounded) drugs are blended in the pharmacy’s laboratory worldwide according to different rules and tailoring the patient’s needs. While their use may sometimes simplify these therapies, little is known about parents’ attitude about this issue. Aim: This study aimed at investigating the complexity of the daily therapy management and exploring the parents’ opinions about galenic compounds. Design: Parents were interviewed by using a structured questionnaire. Setting: Children followed by the Pediatric Palliative Care Network in Friuli Venezia Giulia, Italy, were included from November 2021 to April 2022. Those diagnosed with malignancies were excluded, since therapies are mainly administered through a central venous catheter. Results: Thirty-four parents were interviewed. Fourteen patients took drugs orally, one via nasogastric tube (NGT), 18 via gastrostomy, and one orally + NGT. The mean number of drugs taken every day was six (2–14), in mean 10 (3–18) administrations, that overall required a mean of 44 (8–180) minutes to be delivered. Twenty-eight parents used galenic compounds, and 24 reported relevant advantages, because of a ready-to-use and safe formulation. Conclusions: The therapy management of children with medical complexity relies on parents. Galenic compounds may improve both patients’ and caregivers’ quality of life, either in terms of shorter time of administration or smaller risk of errors. Therefore, their use should be encouraged worldwide, according to the different reference rules.

Published
2023

4. Home Intranasal Dexmedetomidine for Refractory Dystonia in Pediatric Palliative Care

Author

Sara Della Paolera, Lucia De Zen, Irene Del Rizzo, Aldo Skabar, Egidio Barbi, Valentina Taucar, De Zen, Lucia, Della Paolera, Sara, Del Rizzo, Irene, Taucar, Valentina, Skabar, Aldo, and Barbi, Egidio

Subjects
Dystonia, medicine.medical_specialty, business.industry, Palliative Care, MEDLINE, dexmedetomidine, medicine.disease, Pediatric palliative care, Anesthesiology and Pain Medicine, palliative, Refractory, medicine, Humans, Hypnotics and Sedatives, Nasal administration, dystonia, Neurology (clinical), Dexmedetomidine, Child, Intensive care medicine, business, Administration, Intranasal, General Nursing, medicine.drug
Abstract

N/A

Published
2020
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5. Adolescents with chronic disease and social media: A cross-sectional study

Author

Maria Rita Lucia Genovese, Andrea Trombetta, Sergio Ghirardo, Egidio Barbi, Laura De Nardi, Valentina Taucar, De Nardi, L., Trombetta, A., Ghirardo, S., Genovese, M. R. L., Barbi, E., and Taucar, V.

Subjects
Male, medicine.medical_specialty, Facebook, 020205 medical informatics, Adolescent, Cross-sectional study, Friends, 02 engineering and technology, Disease, Inflammatory bowel disease, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Diabetes mellitus, 0202 electrical engineering, electronic engineering, information engineering, medicine, Humans, Social media, Interpersonal Relations, 030212 general & internal medicine, Parent-Child Relations, Descriptive statistics, business.industry, Loneliness, social networking, Social Support, Professional-Patient Relations, medicine.disease, adolescent health, Cross-Sectional Studies, chronic disease, Social Isolation, Adolescent Behavior, Family medicine, Pediatrics, Perinatology and Child Health, Cohort, Female, business, Attitude to Health, Social Media, Adolescent health
Abstract

ObjectiveThis study aims to explore the attitude of adolescents with chronic diseases toward social media exposure, focusing in particular on Facebook.DesignCross-sectional study.SettingAn anonymous semistructured survey was distributed to an Italian hospital-based cohort of adolescents with chronic disease to explore the role of Facebook in their daily life.PatientsWe recruited 212 adolescents (aged between 13 and 24 years) with a diagnosis of inflammatory bowel disease, coeliac disease, diabetes mellitus type 1 and cystic fibrosis.ResultsTwo hundred and seven of the 212 (97.6%) expressed the need of sharing their illness experience with friends, 201 out of 212 (94.8%) usually searched information on the internet to find new therapies and to discover their prognosis. One hundred and forty-nine out of 212 adolescents (70.3%) perceived dependence on their parents as the most negative aspect of having a chronic disease, and 200 out of 212 (94.3%) were looking for friends with the same disease on Facebook. Two hundred and ten out of 212 (99.1%) did not want their doctors or nurse on their social media platforms. During the active disease periods, the time spent with social media increased from an average of 5 to 11 hours.ConclusionsThis descriptive analysis focused on the Facebook impact on chronic disease perception among affected adolescents. It showed that they used to spend an increased amount of time on this platform during disease flare-up and highlighted their wish of keeping doctors and nurses away from their social dimension.

Published
2020

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