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1. Repercusión de la disfagia y la desnutrición en la supervivencia de pacientes hospitalizados

Author: Garcia Rodríguez, Irene, Romero Gangonells, Elisabet, Montserrat Gil de Bernabé, Mònica, Adamuz Tomas, Jordi, and Virgili Casas, Núria
Published: 2022
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2. Impact of dysphagia and malnutrition on the survival of hospitalized patients

Author: Garcia Rodríguez, Irene, Romero Gangonells, Elisabet, Montserrat Gil de Bernabé, Mònica, Adamuz Tomas, Jordi, and Virgili Casas, Núria
Published: 2022
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3. Effects of a (poly)phenol-rich supplement on anthropometric, biochemical, and inflammatory parameters in participants with morbid obesity: Study protocol for a randomised controlled trial

Author: Gil-Lespinard, Mercedes, Bambarén Capurro, Carlos, Montserrat, Mónica, Virgili-Casas, Núria, and Zamora-Ros, Raul
Published: 2022
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4. Genetic factors associated with alterations in liver function test results in adult hospitalized patients treated with parenteral nutrition: A substudy of a clinical trial

Author: Llop-Talaveron, Josep, Leiva-Badosa, Elisabet, Alia-Ramos, Pedro, Rigo-Bonnin, Raül, Virgili-Casas, Núria, Farran-Teixidor, Leandre, Miró-Martín, Mónica, Garrido-Sanchez, Leticia, Suárez-Lledó, Ana, and Badía-Tahull, Maria B.
Published: 2022
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5. Phytosterolemia and γ-glutamyl transferase in adults with parenteral nutrition: Fish versus vegetal lipids: A randomized clinical trial

Author: Llop-Talaveron, Josep, Badía-Tahull, Maria, Lozano-Andreu, Toni, Rigo-Bonnin, Raúl, Virgili-Casas, Núria, Farran-Teixidó, Leandre, Miró-Martín, Monica, Suárez-Lledó, Ana, and Leiva-Badosa, Elisabet
Published: 2020
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6. Effect of Fish Oil Parenteral Emulsion Supplementation on Inflammatory Parameters after Esophagectomy

Author: Suárez-Lledó Grande, Ana, primary, Llop Talaveron, Josep M., additional, Leiva Badosa, Elisabet, additional, Farran Teixido, Leandre, additional, Miró Martín, Mónica, additional, Bas Minguet, Jordi, additional, Navarro Velázquez, Sergio, additional, Creus Costas, Gloria, additional, Virgili Casas, Nuria, additional, Fernández Álvarez, Mónica, additional, and Badía Tahull, María B., additional
Published: 2023
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7. Nutrición parenteral domiciliaria en pacientes con obstrucción intestinal maligna. Consideraciones éticas.

Author: Moreno-Villares, José Manuel, Virgili-Casas, Nuria, Ashbaugh, Rosa Ana, Wanden-Berghe-Lozano, Carmina, and Cantón-Blanco, Ana
Subjects: *BOWEL obstructions, *PATIENTS' families, *PARENTERAL feeding, *FUNCTIONAL status, *PALLIATIVE treatment
Abstract: Background: patients with cancer are one of the main group of patients on home parenteral nutrition (HPN). Patients with malignant bowel obstruction (MBO) represent a challenging group when considering HPN. At the Ethics Working Group of SENPE ethical considerations on this subject were reviewed and a guidelines proposal was made. Methods: a literature search was done and a full set of questions arose: When, if ever, is HPN indicated for patients with MBO? How should the training program be? When withdrawal of HPN should be considered? Other questions should be also taken into consideration. May any Oncologist send home a patient with HPN? The educational program could be shortened? When considering to withdraw parenteral nutrition? Results: HPN in MBO has better outcomes when patients have a good functional status (Karnofsky ≥ 50 or ECOG ≤ 2), expected survival > 2-3 months, and low inflammatory markers. Very few data have been reported on quality of life, but HPN allows a valuable time at home albeit with a considerable burden for both patients and their families. Proposal: once a patient is considered for HPN, there is a need for a deep talk on the benefits, complications and risks. In this initial talk, when HNP should be stopped needs to be included. The palliative care team with the help of the nutrition support team should follow the patient, whose clinical status must be assessed regularly. HPN should be withdrawn when no additional benefits are achieved. Conclusion: HPN may be considered an option in patients with MBO when they have a fair or good functional status and a desire to spend their last days at home. [ABSTRACT FROM AUTHOR]
Published: 2024
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8. Effect of Fish Oil Parenteral Emulsion Supplementation on Inflammatory Parameters after Esophagectomy.

Author: Suárez-Lledó Grande, Ana, Llop Talaveron, Josep M., Leiva Badosa, Elisabet, Farran Teixido, Leandre, Miró Martín, Mónica, Bas Minguet, Jordi, Navarro Velázquez, Sergio, Creus Costas, Gloria, Virgili Casas, Nuria, Fernández Álvarez, Mónica, and Badía Tahull, María B.
Abstract: (Background) Esophagectomy (EPG) presents high morbidity and mortality. Omega-3 fatty acids (ω-3FA) are a pharmaconutrient with benefits for postoperative morbidity. Studies of ω-3FA administered parenterally after esophagectomy are scarce. This study proposes to investigate the effect of combining fish oil lipid emulsions (LE) administered parenterally with enteral nutrition support. (Methods) Randomization was 1:1:1 in three groups: Group A received a LE mixture of 0.4 g/kg/day of fish oil and 0.4 g/kg/day of LCT/MCT 50:50, Group B received 0.8 g/kg/day of fish oil LE, and Group C received 0.8 g/kg/day of LCT/MCT 50:50. Variables were measured at recruitment time and day +1, +3, and +5. Inflammatory variables studied were Interlukin-6, C-reactive protein (CRP), tumoral necrosis factor-α (TNF-α), IL-10, IL-8 and CD25s. Safety, nutritional parameters and complications were analyzed. (Results) Administration of ω-3LE in the immediate postoperative period did not modulate the earlier inflammatory response. Statistically significant differences were found in IL-6 and CRP overall temporal evolution but were not found when studying the type of LE administered or in patients needing critical care. Administration of ω-3 resulted in safe and improved hypertriglyceridemia, depending on the dose. (Conclusions) ω-3FA has no impact on the early inflammatory postoperative response assessed for a short period but was safe. More studies for longer periods are needed. [ABSTRACT FROM AUTHOR]
Published: 2024
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9. Nutrición en cuidados paliativos: resumen de recomendaciones del grupo de trabajo de Ética de la SENPE

Author: Universidad de Sevilla. Departamento de Medicina, Olmo García, Dolores del, Moreno Villares, José Manuel, Álvarez Hernández, Julia, Ferrero López, María Isabel, Bretón Lesmes, Irene, Virgili Casas, Nuria, Irles Rocamora, José Antonio, Cantón Blanco, Ana, Universidad de Sevilla. Departamento de Medicina, Olmo García, Dolores del, Moreno Villares, José Manuel, Álvarez Hernández, Julia, Ferrero López, María Isabel, Bretón Lesmes, Irene, Virgili Casas, Nuria, Irles Rocamora, José Antonio, and Cantón Blanco, Ana
Abstract: Los cuidados paliativos proporcionan una atención integral que tiene en cuenta los aspectos físicos, emocionales, sociales y espirituales del paciente con enfermedad terminal y su entorno familiar. El tratamiento nutricional debe formar parte activa de los equipos de cuidados paliativos. La necesidad de iniciar o no un tratamiento nutricional sigue siendo, desde hace décadas, uno de los principales problemas éticos a los que se enfrentan los profesionales dedicados a la nutrición clínica. El origen de tal controversia radica, fundamentalmente, en cómo se consideran la nutrición y la hidratación: cuidado/soporte o tratamiento médico. Los objetivos fundamentales del tratamiento nutricional en los pacientes en cuidados paliativos deben ser otros: la mejoría de la calidad de vida, de la supervivencia o de ambas. La decisión de indicar o no el tratamiento nutricional en cuidados paliativos debe tomarse tras considerar el pronóstico, la calidad de vida y la relación “riesgo/beneficio”. En relación a la alimentación por vía oral (con o sin suplementos orales), prevalece la idea de la “alimentación de confort”, que se basa en intentos de alimentación oral hasta que se produzcan la incomodidad y/o el rechazo del paciente. No existen evidencias que justifiquen el uso de nutrientes específicos, aunque desde hace años se señala la posibilidad de lograr beneficios cuando se utilizan ácidos grasos omega-3 en los pacientes con cáncer. En cuanto al tratamiento nutricional (enteral o parenteral), en ausencia de evidencia, las decisiones sobre si iniciar una nutrición artificial en un paciente paliativo deben tomarse teniendo en cuenta los deseos y creencias del paciente y sus familiares, y basarse en el consenso del equipo interdisciplinar sobre los objetivos que se persiguen al iniciarla., Palliative care provides a holistic approach and care for patients with a terminal illness and their families. In palliative care physical complaints as well as emotional, social and spiritual aspects are considered. Nutritional care should be also considered within palliative support. For those working in the nutritional support field, to withhold or withdraw nutritional support may be an ethical dilemma in this scenario. The controversy starts when considering nutrition and hydration as basic care or a treatment. The goals of nutrition support in palliative care patients differ from common ones, aiming to improve quality of life, survival or both. The decision should be based on a consideration of prognosis (length of survival), quality of life, and risks-benefits ratio. Regarding oral nutrition (with or without oral supplements) the idea prevails of “comfort feeding”, based on providing oral feeding till discomfort or avoidance develop. There is no evidence on the benefit of specific nutrients, despite the fact that omega-3 FAs may have some positive effects in patients with cancer. Regarding nutritional support (enteral or parenteral), no scientific evidence is present, so the decision needs to be agreed according to the desires and beliefs of the patient and their family, and based on a consensus with the interdisciplinary team on the aims of this support.
Published: 2022

10. Nutrition in palliative care: guidelines from the Working Group on Bioethics, Spanish Society of Clinical Nutrition and Metabolism (SENPE)

Author: Cantón Blanco, Ana, primary, del Olmo García, M.ª Dolores, additional, Moreno Villares, José Manuel, additional, Álvarez Hernández, Julia, additional, Ferrero López, Isabel, additional, Bretón Lesmes, Irene, additional, Virgili Casas, Nuria, additional, Ashbaugh Enguídanos, Rosana, additional, Lozano Fuster, Francisca Margarita, additional, Wanden-Berghe, Carmina, additional, Irles Rocamora, José A., additional, Molina Soria, Juan B., additional, and Montejo González, Juan Carlos, additional
Published: 2022
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11. Nutrición parenteral domiciliaria en España, 2019: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe, Carmina, Virgili Casas, Nuria, Cuerda Compés, Cristina, Ramos Boluda, Esther, Pereira Cunill, José Luis, Maíz Jiménez, María Irene, Burgos Peláez, Rosa, Gómez Candela, Carmen, Penacho Lázaro, María Ángeles, Sánchez Martos, Eva Ángeles, Luis Román, Daniel Antonio de, Zugasti Murillo, Ana, Martínez Faedo, Ceferino, Álvarez Hernández, Julia, Campos Martín, Cristina, Rioja Vázquez, Rosalía, Irles Rocamora, Juan Antonio, Díaz Guardiola, Patricia, Sanz París, Alejandro, Matía Martín, Pilar, Carabaña Pérez, Fátima, Martín Folgueras, Tomás, Martín Palmero, María Ángela, Luengo Pérez, Luis Miguel, Martínez Costa, Cecilia, Tejera Pérez, Cristina, Arraiza Irigoyen, Carmen, Sánchez-Vilar Burdiel, Olga, García Delgado, Yaiza, Ponce González, Miguel Á., Mauri Roca, Sílvia, García Zafra, María Victoria, Germán Díaz, Marta, Morán López, Jesús M., Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Sánchez Sánchez, Rebeca, Calañas Continente, Alfonso, Garde Orbaiz, Carmen, Martínez Olmos, Miguel Ángel, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Forga Visa, María De Talló, Gil Martinez, M.ª Carmen, Carrera Santaliestra, María José, Padín López, Susana, Lobo, Gabriela, Apezetxea Celaya, Antxón, Ballesta Sánchez, Carmen, Bonada Sanjaume, Anna, Cánovas Gaillemin, Bárbara, Cardona Pera, Daniel, García Puente, Ignacio, Higuera Pulgar, Isabel, Miserachs Aranda, Nuria, Olmo García, María Dolores del, Palma Milla, Samara, Parés Marimón, Rosa María, and Pintor de la Maza, Begoña
Subjects: Alimentació parenteral, Parenteral feeding, Home care services, Atenció domiciliària
Abstract: RESUMEN Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadyasenpe.com) del año 2019. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2019. Resultados: se registraron 283 pacientes (51,9 %, mujeres), 31 niños y 252 adultos procedentes de 47 hospitales españoles, lo que representa una tasa de prevalencia de 6,01 pacientes/millón de habitantes/año 2019. El diagnóstico más frecuente en los adultos fue “oncológico paliativo” y “otros” (21,0 %). En los niños fue la enfermedad de Hirschsprung junto a la enterocolitis necrotizante, las alteraciones de la motilidad intestinal y la pseudoobstrucción intestinal crónica, con 4 casos cada uno (12,9 %). El primer motivo de indicación fue el síndrome del intestino corto tanto en los niños (51,6 %) como en los adultos (37,3 %). El tipo de catéter más utilizado fue el tunelizado tanto en los niños (75,9 %) como en los adultos (40,8 %). Finalizaron 68 episodios, todos en adultos: la causa más frecuente fue el fallecimiento (54,4 %). Pasaron a la vía oral el 38,2 %. Conclusiones: el número de centros y profesionales colaboradores con el registro NADYA va incrementándose. Se mantienen estables las principales indicaciones y los motivos de finalización de la NPD.
Published: 2021

12. Home and Ambulatory Artificial Nutrition (NADYA) Group report: home parenteral nutrition in Spain, 2019

Author: Wanden-Berghe,Carmina, Virgili Casas,Nuria, Cuerda Compes,Cristina, Ramos Boluda,Esther, Pereira Cunill,José Luis, Maiz Jiménez,María Irene, Universidad de Sevilla. Departamento de Medicina, and Universidad de Sevilla. CTS444 : Endocrinología, Metabolismo y Nutrición clínica.
Subjects: Home parenteral nutrition, Registry, Soporte nutricional, Epidemiology, Cuidados domiciliarios, Registros, Epidemiología, Records, Nutrición parenteral domiciliaria, Nutrición parenteral, Home care services, Parenteral nutrition, Nutritional support
Abstract: Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe. com) del año 2019. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2019. Resultados: se registraron 283 pacientes (51,9 %, mujeres), 31 niños y 252 adultos procedentes de 47 hospitales españoles, lo que representa una tasa de prevalencia de 6,01 pacientes/millón de habitantes/año 2019. El diagnóstico más frecuente en los adultos fue “oncológico paliativo” y “otros” (21,0 %). En los niños fue la enfermedad de Hirschsprung junto a la enterocolitis necrotizante, las alteraciones de la motilidad intestinal y la pseudoobstrucción intestinal crónica, con 4 casos cada uno (12,9 %). El primer motivo de indicación fue el síndrome del intestino corto tanto en los niños (51,6 %) como en los adultos (37,3 %). El tipo de catéter más utilizado fue el tunelizado tanto en los niños (75,9 %) como en los adultos (40,8 %). Finalizaron 68 episodios, todos en adultos: la causa más frecuente fue el fallecimiento (54,4 %). Pasaron a la vía oral el 38,2 %. Conclusiones: el número de centros y profesionales colaboradores con el registro NADYA va incrementándose. Se mantienen estables las principales indicaciones y los motivos de finalización de la NPD. Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019. Results: a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was “palliative oncological” and “others” (21.0 %). In children, it was Hirschsprung’s disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral. Conclusions: the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable.
Published: 2021

13. Nutrición parenteral domiciliaria en España, 2019: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Universidad de Sevilla. Departamento de Medicina, Universidad de Sevilla. CTS444 : Endocrinología, Metabolismo y Nutrición clínica., Wanden-Berghe, Carmina, Virgili Casas, Nuria, Cuerda Compés, Cristina de la, Ramos Boluda, Esther, Pereira Cunill, José Luis, Maiz Jiménez, María Irene, Universidad de Sevilla. Departamento de Medicina, Universidad de Sevilla. CTS444 : Endocrinología, Metabolismo y Nutrición clínica., Wanden-Berghe, Carmina, Virgili Casas, Nuria, Cuerda Compés, Cristina de la, Ramos Boluda, Esther, Pereira Cunill, José Luis, and Maiz Jiménez, María Irene
Abstract: Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe. com) del año 2019. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2019. Resultados: se registraron 283 pacientes (51,9 %, mujeres), 31 niños y 252 adultos procedentes de 47 hospitales españoles, lo que representa una tasa de prevalencia de 6,01 pacientes/millón de habitantes/año 2019. El diagnóstico más frecuente en los adultos fue “oncológico paliativo” y “otros” (21,0 %). En los niños fue la enfermedad de Hirschsprung junto a la enterocolitis necrotizante, las alteraciones de la motilidad intestinal y la pseudoobstrucción intestinal crónica, con 4 casos cada uno (12,9 %). El primer motivo de indicación fue el síndrome del intestino corto tanto en los niños (51,6 %) como en los adultos (37,3 %). El tipo de catéter más utilizado fue el tunelizado tanto en los niños (75,9 %) como en los adultos (40,8 %). Finalizaron 68 episodios, todos en adultos: la causa más frecuente fue el fallecimiento (54,4 %). Pasaron a la vía oral el 38,2 %. Conclusiones: el número de centros y profesionales colaboradores con el registro NADYA va incrementándose. Se mantienen estables las principales indicaciones y los motivos de finalización de la NPD., Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019. Results: a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was “palliative oncological” and “others” (21.0 %). In children, it was Hirschsprung’s disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral. Conclusions: the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable.
Published: 2021

14. Clinical, randomized, double blind clinical trial to study the effect of parenteral supplementation with fish oil emulsion in the nutritional support in esophagectomized patients

Author: Suárez-Lledó, Ana, primary, Leiva-Badosa, Elisabet, additional, Llop-Talaveron, Josep M., additional, Fernández-Alvarez, Mónica, additional, Farran-Teixidor, Leandre, additional, Miró-Martín, Mónica, additional, Virgili-Casas, Nuria, additional, Creus-Costas, Glòria, additional, Bas-Minguet, Jordi, additional, Poyatos-Canton, Elisabet, additional, Navarro-Velazquez, Sergio, additional, and Badia-Tahull, María B., additional
Published: 2021
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15. Manejo nutricional de la esclerosis lateral amiotrófica: resumen de recomendaciones

Author: Olmo García, Mª Dolores del, Virgili Casas, Nuria, Cantón Blanco, Ana, Lozano Fuster, Francisca Margarita, Wanden-Berghe, Carmina, Avilés, Victoria, Ashbaugh Enguídanos, Rosana, Ferrero López, Isabel, Molina Soria, Juan Bautista, Montejo González, Juan Carlos, Bretón Lesmes, Irene, Hernández, Julia Álvarez, and Moreno Villares, José Manuel
Published: 2020

16. Nutrición parenteral domiciliaria en España 2018. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe,Carmina, Cuerda Compes,Cristina, Maíz Jiménez,María Irene, Pereira Cunill,José Luis, Ramos Boluda,Esther, Gómez Candela,Carmen, Virgili Casas,Nuria, Burgos Peláez,Rosa, Luis Román,Daniel Antonio de, Penacho Lázaro,Mª Ángeles, Sánchez Martos,Eva Ángeles, Martínez Faedo,Ceferino, Díaz Guardiola,Patricia, Álvarez Hernández,Julia, Zugasti Murillo,Ana, Campos Martín,Cristina, Sanz Paris,Alejandro, Martín Fontalba,María de los Ángeles, Lobo,Gabriela, Matía Martín,Pilar, Carabaña Pérez,Fátima, Martín Folgueras,Tomás, Martín Palmero,Mª Ángela, Luengo Pérez,Luis Miguel, Sánchez-Vilar Burdiel,Olga, Martínez Costa,Cecilia, Tejera Pérez,Cristina, Martínez Ramírez,María José, García Delgado,Yaiza, Ponce González,Miguel Á, Mauri Roca,Silvia, García Zafra,Mª Victoria, Germán Díaz,Marta, Romero Gabino,Victoria, Molina Baeza,Begoña, Gonzalo Marín,Montserrat, Irles Rocamora,José Antonio, Sánchez Sánchez,Rebeca, Apezetxea Celaya,Antxón, Joaquín Ortiz,Clara, Suárez Llanos,José Pablo, Pintor de la Maza,Begoña, Leyes García,Pere, Gil Martínez,Mª Carmen, and Carrera Santaliestra,María José
Subjects: Soporte nutricional, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral
Abstract: Resumen Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (http://www.nadya-senpe.com) del año 2018. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE del 1 de enero al 31 de diciembre de 2018. Resultados: se registraron 278 pacientes (54,7 % mujeres), 23 niños y 255 adultos, procedentes de 45 hospitales españoles, lo que representa una tasa de prevalencia de 5,95 pacientes/millón de habitantes/año 2018. El diagnóstico más frecuente en adultos fue “oncológico paliativo” (22,0 %), seguido de “otros”. En niños fue la enfermedad de Hirschsprung junto con la enterocolitis necrotizante, con cuatro casos (17,4 %). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (60,9 %) como en adultos (35,7 %). El tipo de catéter más utilizado fue el tunelizado tanto en niños (81,0 %) como en adultos (41,1 %). Finalizaron 75 episodios, la causa más frecuente fue el fallecimiento (52,0 %) y el paso a vía oral (33,3 %). Conclusiones: el número de centros y profesionales colaboradores en el registro de pacientes que reciben NPD se mantiene estable, así como las principales indicaciones y los motivos de finalización de la NPD.
Published: 2020

17. Home and Ambulatory Artificial Nutrition (NADYA) Group report: home parenteral nutrition in Spain, 2019

Author: Wanden-Berghe, Carmina, primary, Virgili Casas, Nuria, additional, Cuerda Compés, Cristina, additional, Ramos Boluda, Esther, additional, Pereira Cunill, José Luis, additional, Maíz Jiménez, María Irene, additional, Burgos Peláez, Rosa, additional, Gómez Candela, Carmen, additional, Penacho Lázaro, María Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, de Luis Román, Daniel Antonio, additional, Zugasti Murillo, Ana, additional, Martínez Faedo, Ceferino, additional, Álvarez Hernández, Julia, additional, Campos Martín, Cristina, additional, Rioja-vázquez, Rosalía, additional, Irles Rocamora, Juan Antonio, additional, Díaz Guardiola, Patricia, additional, Sanz París, Alejandro, additional, Matía Martín, Pilar, additional, Carabaña Pérez, Fátima, additional, Martín Folgueras, Tomás, additional, Martín Palmero, María Ángela, additional, Luengo Pérez, Luis Miguel, additional, Martínez Costa, Cecilia, additional, Tejera Pérez, Cristina, additional, Arraiza Irigoyen, Carmen, additional, Sánchez-Vilar Burdiel, Olga, additional, García Delgado, Yaiza, additional, Ponce González, Miguel Á., additional, Mauri Roca, Sílvia, additional, García Zafra, María Victoria, additional, Germán Díaz, Marta, additional, Morán López, Jesús M., additional, Molina Baeza, Begoña, additional, Gonzalo Marín, Montserrat, additional, Sánchez Sánchez, Rebeca, additional, Calañas Continente, Alfonso, additional, Garde Orbaiz, Carmen, additional, Martínez Olmos, Miguel Ángel, additional, Joaquín Ortiz, Clara, additional, Suárez Llanos, José Pablo, additional, Forga Visa, María de Talló, additional, Gil Martinez, M.ª Carmen, additional, Carrera Santaliestra, María José, additional, Padín López, Susana, additional, Lobo, Gabriela, additional, Apezetxea Celaya, Antxón, additional, Ballesta Sánchez, Carmen, additional, Bonada Sanjaume, Anna, additional, Cánovas Gaillemin, Bárbara, additional, Cardona Pera, Daniel, additional, García Puente, Ignacio, additional, Higuera Pulgar, Isabel, additional, Miserachs Aranda, Nuria, additional, del Olmo García, María Dolores, additional, Palma Milla, Samara, additional, Parés Marimón, Rosa María, additional, and Pintor de la Maza, Begoña, additional
Published: 2021
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18. The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019

Author: Wanden-Berghe, Carmina, primary, Campos Martín, Cristina, additional, Álvarez Hernández, Julia, additional, Burgos Peláez, Rosa, additional, Matía Martín, Pilar, additional, Cuerda Compés, Cristina, additional, Lobo, Gabriela, additional, Martínez Olmos, Miguel Ángel, additional, De Luis Román, Daniel Antonio, additional, Palma Milla, Samara, additional, Gonzalo Marín, Montserrat, additional, Padín López, Susana, additional, Luengo Pérez, Luis Miguel, additional, Santacruz Carmona, Nieves, additional, Pintor de la Maza, Begoña, additional, Suárez Llanos, José Pablo, additional, Irles Rocamora, José Antonio, additional, Forga Visa, María de Talló, additional, Martín Palmero, María Ángela, additional, Sánchez Sánchez, Rebeca, additional, Cardona Pera, Daniel, additional, Tejera Pérez, Cristina, additional, Ballesta Sánchez, Carmen, additional, Higuera Pulgar, Isabel, additional, Bonada Sanjaume, Anna, additional, Penacho Lázaro, María Ángeles, additional, Garde Orbaiz, Carmen, additional, Arraiza Irigoyen, Carmen, additional, Martín Folgueras, Tomás, additional, Virgili Casas, Nuria, additional, Cánovas Gaillemin, Bárbara, additional, Maíz Jiménez, María Irene, additional, del Olmo García, María Dolores, additional, Carabaña Pérez, Fátima, additional, Parés Marimón, Rosa María, additional, Morán López, Jesús M., additional, Mauri Roca, Sílvia, additional, García Puente, Ignacio, additional, Sánchez-Vilar Burdiel, Olga, additional, García Delgado, Yaiza, additional, Miserachs Aranda, Nuria, additional, Calañas Continente, Alfonso, additional, Apezetxea Celaya, Antxón, additional, Pereira Soto, Manuel Ángel, additional, Sánchez Martos, Eva Ángeles, additional, and Ponce González, Miguel Á., additional
Published: 2021
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19. Manejo nutricional de la demencia avanzada: resumen de recomendaciones del Grupo de Trabajo de Ética de la SENPE

Author: Cantón Blanco, Ana, Lozano Fuster, Francisca Margarita, Olmo García, Mª Dolores del, Virgili Casas, Nuria, Wanden-Berghe, Carmina, Avilés, Victoria, Ashbaugh Enguídanos, Rosana, Ferrero López, Isabel, Molina Soria, Juan Bautista, Montejo González, Juan Carlos, Bretón Lesmes, Irene, Álavarez Hernández, Julia, and Moreno Villares, José Manuel
Subjects: Terminal Care, Malnutrition, Demencia avanzada. Nutrición. Sonda. Enteral, Feeding and Eating Disorders, Treatment Refusal, Eating, Enteral Nutrition, Food Quality, Humans, Dementia, Advance Directives, Deglutition Disorders, Societies, Medical, Aged
Abstract: This paper from the ethics Working Group presents a summary of the recommendations of the nutritional management of patients with advanced dementia.
Published: 2019

20. [Home and Ambulatory Artificial Nutrition (NADYA) Report. Home Parenteral Nutrition in Spain, 2017]

Author: Wanden-Berghe Lozano, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Ramos Boluda, Esther, Maiz Jiménez, María Irene, Gómez Candela, Carmen, Virgili Casas, Nuria, Burgos Peláez, Rosa, Pérez de la Cruz, Antonio, Penacho Lázaro, M ª Ángeles, Sánchez Martos, Eva Ángeles, De Luis Román, Daniel Antonio, Martínez Faedo, Ceferino, Martín Fontalba, María de Los Ángeles, Álvarez Hernández, Julia, Matía Martín, Pilar, Díaz Guardiola, Patricia, Carabaña Pérez, Fátima, Sanz París, Alejandro, Garde Orbaiz, Carmen, Sánchez-Vilar Burdiel, Olga, Martín Folgueras, Tomás, Martín Palmero, M ª Ángela, Luengo Pérez, Luis Miguel, Zugasti Murillo, Ana, Martínez Costa, Cecilia, Suárez Llanos, José Pablo, Tejera Pérez, Cristina, Irles Rocamora, José Antonio, Arraiza Irigoyen, Carmen, García Delgado, Yaiza, Campos Martín, Cristina, Ponce González, Miguel Ángel, Mauri Roca, Silvia, García Zafra, M ª Victoria, Morán López, Jesús M, Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Joaquín Ortiz, Clara, Pintor de la Maza, Begoña, Gil Martínez, M ª Carmen, Carrera Santaliestra, María José, Forga Visa, M ª Del Talló, Apezetxea Celaya, Antxón, Sánchez Sánchez, Rebeca, and Urgeles Planella, Juan Ramón
Subjects: Adult, Male, Short Bowel Syndrome, Spain, Neoplasms, Palliative Care, Humans, Female, Hirschsprung Disease, Registries, Child, Parenteral Nutrition, Home
Abstract: to communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2017.descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2017 to December 31st, 2017.there were 308 patients from 45 Spanish hospitals (54.5% women), 38 children and 270 adults, with 3,012 episodes, which represent a prevalence rate of 6.61 patients/million inhabitants/year 2017. The most frequent diagnosis in adults was "palliative cancer" (25.6%), followed by "others". In children, it was Hirschsprung's disease with six cases (15.8%). The first indication was short bowel syndrome in both children (55.3%) and adults (33.7%). The most frequently used type of catheter was tunneled in both children (73.4%) and adults (38.2%). Ending 81 episodes, the most frequent cause was death (62.9%) and transition to oral feeding (34.7%).the progressive increase of collaborating centers and professionals in the registry of patients receiving NPD is maintained. The main indications of HPN and the motive for ending have remained stable.OBJETIVO: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe. com) del año 2017. MATERIAL Y MÉTODOS: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2017. RESULTADOS: se registraron 308 pacientes (54,5% mujeres), 38 niños y 270 adultos, procedentes de 45 hospitales españoles, en total 312 episodios, lo que representa una tasa de prevalencia de 6,61 pacientes/millón de habitantes/año 2017. El diagnóstico más frecuente en adultos fue “oncológico paliativo” (25,6%), seguido de “otros”. En niños fue la enfermedad de Hirschsprung, con seis casos (15,8%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (55,3%) como en adultos (33,7%). El tipo de catéter más utilizado fue el tunelizado tanto en niños (74,3%) como en adultos (38,2%). Finalizaron 81 episodios; la causa más frecuente fue el fallecimiento (62,9%) y que pasaron a vía oral (34,7%). CONCLUSIONES: se mantiene el incremento progresivo de centros y profesionales colaboradores en el registro de pacientes que reciben NPD. Las principales indicaciones de NPD y de motivo de finalización se mantienen estables.
Published: 2018

21. Manejo nutricional de la esclerosis lateral amiotrófica: resumen de recomendaciones

Author: Olmo García,Mª Dolores del, Virgili Casas,Nuria, Cantón Blanco,Ana, Lozano Fuster,Francisca Margarita, Wanden-Berghe,Carmina, Avilés,Victoria, Ashbaugh Enguídanos,Rosana, Ferrero López,Isabel, Molina Soria,Juan Bautista, Montejo González,Juan Carlos, Bretón Lesmes,Irene, Hernández,Julia Álvarez, and Moreno Villares,José Manuel
Published: 2018

22. Hospital malnutrition screening at admission: malnutrition increases mortality and length of stay

Author: Leiva Badosam,Elisabet, Badia Tahull,María, Virgili Casas,Nuria, Elguezabal Sangrador,Gema, Faz Méndez,Concepción, Herrero Meseguer,Ignacio, Izquierdo González,Àngels, López Urdiales,Rafael, Oca Burguete,Francisco Javier de, Tubau Molas,María, Vilarasau Farré,Concepció, and Llop Talaveron,Josep Manel
Subjects: Nutrition surveys, Malnutrition, Nutritional assessment
Abstract: Introduction: Malnutrition is common in patients admitted to hospital and is associated with morbidity and mortality. We conducted a study to assess the prevalence of nutritional risk, risk factors associated and its consequences in a third-level hospital. Methods: This is a prospective nutritional screening study of hospitalized patients evaluated within the first 72 hours of admission, by Malnutrition Universal Screening Tool (MUST) and Short Nutritional Assessment Questionnaire (SNAQ) screening tests. The variables recorded included demographic, anthropometric, hospitalization and clinical data. Results: Out of 409 patients, 12.7% and 15.3% were nutritionally at risk according to MUST and SNAQ, respectively, with the highest prevalence in critical care units (33.3%; 25.5%), amongst oncologic patients (17.5%; 28.4%) and those with higher Charlson comorbidity indices (CCI). Length of stay (LOS) was longer in patients at severe malnutrition risk (15.4 vs 9.9 days for MUST; 13.3 vs 9.9 days for SNAQ). Mortality was higher in those with high malnutrition risk (66.7% vs 10.9% for MUST; 50.0% vs 14.2% for SNAQ). Multivariate analysis showed that malnutrition was associated with CCI and mortality. Risk factors associated with LOS were admission as emergencies for both MUST and SNAQ tests. Conclusions: The prevalence of malnutrition is high in patients on admission to a third-level hospital, with a higher prevalence in critical care units, amongst oncologic patients and those with a higher CCI. Malnutrition is associated with longer LOS and higher mortality. The systematic clinical use of screening tools enables to detect patients at risk of malnutrition and take appropriate action.
Published: 2017

23. Home and Ambulatory Artiificial Nutrition (NADYA) Group Report - Home parenteral nutrition in Spain, 2016

Author: Wanden-Berghe, Carmina, Virgili Casas, Nuria, Ramos Boluda, Esther, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Gómez Candela, Carmen, Burgos Peláez, Rosa, Penacho Lázaro, M.ª Ángeles, Pérez de la Cruz, Antonio, Álvarez Hernández, Julia, Gonzalo Marín, Montserrat, Matía Martín, Pilar, Martínez Faedo, Ceferino, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Campos Martín, Cristina, Martín Folgueras, Tomás, Martín Palmero, M. Ángela, Martín Fontalba, María de los Ángeles, Luengo Pérez, Luis Miguel, Zugasti Murillo, Ana, Martínez Ramírez, María José, Carabaña Pérez, Fátima, Martínez Costa, Cecilia, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, Parés Marimón, Rosa M.ª, Irles Rocamora, José Antonio, Garde Orbaiz, Carmen, Ponce González, Miguel Ángel, García Zafra, María Victoria, Sánchez Sánchez, Rebeca, Urgeles Planella, Juan Ramón, Apezetxea Celaya, Antxón, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Pintor de la Maza, Begoña, Leyes García, Pere, Gil Martínez, M.ª Carmen, Mauri Roca, Silvia, and Carrera Santaliestra, María José
Subjects: Home parenteral nutrition, Soporte nutricional, Epidemiology, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract: Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA-SENPE; www.nadya-senpe.com) del año 2016. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2016. Resultados: se registraron 286 pacientes (54,2% mujeres), 34 niños y 252 adultos, procedentes de 42 hospitales españoles con 294 episodios, lo que representa una tasa de prevalencia de 6,16 pacientes/millón de habitantes/año 2016. El diagnóstico más frecuente en adultos fue de oncológico paliativo (25,8%), seguido de otros. En niños, fue de alteraciones de la motilidad con 6 casos (17,6%), la enfermedad de Hirschsprung y la enterocolitis necrotizante, ambos con 5 niños (14,7%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (64,7%) como en adultos (37,3%), seguido de obstrucción intestinal, 28,6% en adultos y 14,7% en niños. El tipo de catéter más utilizado fue el tunelizado tanto en niños (70,6%) como en adultos (37,9%), y la complicación más frecuente en adultos fue la infección relacionada con el catéter, que presentó una tasa de 0,48 infecciones/1.000 días de NPD. Durante este periodo, finalizaron 71 episodios en adultos siendo la causa de finalización principal el fallecimiento (57,7%) y paso a vía oral (31%). Conclusiones: se constata un incremento progresivo de centros y profesionales colaboradores en el registro de pacientes que reciben NPD. Las principales indicaciones de NPD y de motivo de finalización se mantienen estables. Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016. Material and methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31 st, 2016. Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%). Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.
Published: 2017

24. Nutrición parenteral domiciliaria en España 2017. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe Lozano, Carmina, primary, Pereira Cunill, José Luis, additional, Cuerda Compes, Cristina, additional, Ramos Boluda, Esther, additional, Maiz Jiménez, María Irene, additional, Gómez Candela, Carmen, additional, Virgili Casas, Nuria, additional, Burgos Peláez, Rosa, additional, Pérez de la Cruz, Antonio, additional, Penacho Lázaro, M.ª Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, De Luis Román, Daniel Antonio, additional, Martínez Faedo, Ceferino, additional, Martín Fontalba, María de los Ángeles, additional, Álvarez Hernández, Julia, additional, Matía Martín, Pilar, additional, Díaz Guardiola, Patricia, additional, Carabaña Pérez, Fátima, additional, Sanz París, Alejandro, additional, Garde Orbaiz, Carmen, additional, Sánchez-Vilar Burdiel, Olga, additional, Martín Folgueras, Tomás, additional, Martín Palmero, M.ª Ángela, additional, Luengo Pérez, Luis Miguel, additional, Zugasti Murillo, Ana, additional, Martínez Costa, Cecilia, additional, Suárez Llanos, José Pablo, additional, Tejera Pérez, Cristina, additional, Irles Rocamora, José Antonio, additional, Arraiza Irigoyen, Carmen, additional, García Delgado, Yaiza, additional, Campos Martín, Cristina, additional, Ponce González, Miguel Ángel, additional, Mauri Roca, Silvia, additional, García Zafra, M.ª Victoria, additional, Morán López, Jesús M., additional, Molina Baeza, Begoña, additional, Gonzalo Marín, Montserrat, additional, Joaquín Ortiz, Clara, additional, Pintor de la Maza, Begoña, additional, Gil Martínez, M.ª Carmen, additional, Carrera Santaliestra, María José, additional, Forga Visa, M.ª del Talló, additional, Apezetxea Celaya, Antxón, additional, Sánchez Sánchez, Rebeca, additional, and Urgeles Planella, Juan Ramón, additional
Published: 2018
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25. Manejo nutricional de la esclerosis lateral amiotrófica: resumen de recomendaciones

Author: Del Olmo García, M.ª Dolores, primary, Virgili Casas, Nuria, additional, Cantón Blanco, Ana, additional, Lozano Fuster, Francisca Margarita, additional, Wanden-Berghe, Carmina, additional, Avilés, Victoria, additional, Ashbaugh Enguídanos, Rosana, additional, Ferrero López, Isabel, additional, Molina Soria, Juan Bautista, additional, Montejo González, Juan Carlos, additional, Bretón Lesmes, Irene, additional, Álvarez Hernández, Julia, additional, Moreno Villares, José Manuel, additional, and SENPE, Grupo de Trabajo de Ética de la Socieda, additional
Published: 2018
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26. Registro del Grupo NADYA-SENPE de nutrición enteral domiciliaria en España, años 2014 y 2015

Author: Bioquímica i Biotecnologia, Universitat Rovira i Virgili, Wanden-Berghe Lozano, Carmen; Luengo Pérez, Luis Miguel; Álvarez Hernández, Julia; Burgos Peláez, Rosa; Cuerda Compés, Cristina de la; Matía Martín, Pilar; Gómez Candela, Carmen; Martínez Olmos, Miguel A; Gonzalo Marín, M; Calleja Fernández, Alicia; Campos Martín, C; Pérez de la Cruz, A J; Irles Rocamora, José Antonio; Leyes García, Pere; Sánchez Sánchez, Rebeca; Luis Román, Daniel Antonio de; Cardona, D; Santacruz, Nieves; Suárez Llanos, José Pablo; Ballesta Sánchez, Carmen; Salas Salvadó, Jordi; Penacho Lázaro, María Ángeles; Gardez, Carmen; Martínez Ramírez, María José; Cánovas Gaillemin, Bárbara; Moreno Villares, José Manuel; Olmo García, Dolores del; Carabaña Pérez, Fátima; Virgili Casas, Nuria; Higuera Pulgar, Isabel; Mauri, Silvia; Sánchez-Vilar Burdiel, Olga; Miserachs Aranda, N; Ponce González, Miguel Ángel; García Delgado, Y; Morán López, Jesús Manuel; Apezetxea Celaya, Antonio; Tejera Pérez, Cristina; Calañas Continente, Alfonso; Cantón Blanco, Ana; Díaz Guardiola, Patricia; Grupo NADYA-SENPE, Bioquímica i Biotecnologia, Universitat Rovira i Virgili, and Wanden-Berghe Lozano, Carmen; Luengo Pérez, Luis Miguel; Álvarez Hernández, Julia; Burgos Peláez, Rosa; Cuerda Compés, Cristina de la; Matía Martín, Pilar; Gómez Candela, Carmen; Martínez Olmos, Miguel A; Gonzalo Marín, M; Calleja Fernández, Alicia; Campos Martín, C; Pérez de la Cruz, A J; Irles Rocamora, José Antonio; Leyes García, Pere; Sánchez Sánchez, Rebeca; Luis Román, Daniel Antonio de; Cardona, D; Santacruz, Nieves; Suárez Llanos, José Pablo; Ballesta Sánchez, Carmen; Salas Salvadó, Jordi; Penacho Lázaro, María Ángeles; Gardez, Carmen; Martínez Ramírez, María José; Cánovas Gaillemin, Bárbara; Moreno Villares, José Manuel; Olmo García, Dolores del; Carabaña Pérez, Fátima; Virgili Casas, Nuria; Higuera Pulgar, Isabel; Mauri, Silvia; Sánchez-Vilar Burdiel, Olga; Miserachs Aranda, N; Ponce González, Miguel Ángel; García Delgado, Y; Morán López, Jesús Manuel; Apezetxea Celaya, Antonio; Tejera Pérez, Cristina; Calañas Continente, Alfonso; Cantón Blanco, Ana; Díaz Guardiola, Patricia; Grupo NADYA-SENPE
Abstract: Objetivo: exponer los resultados del registro de nutrición enteral domiciliaria (NED) del año 2014 y 2015 del Grupo NADYA-SENPE.
Published: 2017

27. Nutrición parenteral domiciliaria en España durante 2015: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe, Carmina, Campos Martín, Cristina, Cuerda Compes, Cristina, Gómez Candela, Carmen, Burgos Peláez, Rosa, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Pérez de la Cruz, Antonio, Virgili Casas, Nuria, Martínez Faedo, Ceferino, Álvarez Hernández, Julia, Garde Orbaiz, Carmen, Penacho Lázaro, M.ª Ángeles, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Gonzalo Marín, Montserrat, Zugasti Murillo, Ana, Matía Martín, Pilar, Martín Folgueras, Tomás, Carabaña Pérez, Fátima, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, Luis Román, Daniel de, Luengo Pérez, Luis Miguel, Santacruz Carmona, Nieves, Apezetxea Celaya, Antxón, Ponce González, Miguel Ángel, Urgeles Planella, Juan Ramón, Laborda González, Lucía, Martínez Olmos, Miguel Ángel, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Martínez Costa, Cecilia, Suárez Llanos, José Pablo, Calleja Fernández, Alicia, Leyes García, Pere, Gil Martínez, M.ª Carmen, Mauri, Silvia, García Zafra, María Victoria, and Carrera Santaliestra, Maria José
Subjects: Home parenteral nutrition, Soporte nutricional, Epidemiolgy, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract: Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2015. Material y métodos: recopilación de los datos de NPD del registro online del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2015 al 31 de diciembre de 2015. Resultados: se registraron 236 pacientes, con 243 episodios de NPD procedentes de 40 hospitales, lo que representa una tasa de 5,08 pacientes/millón de habitantes/año 2015. La patología más frecuente en los adultos fue "otros" (26,3%) seguido por "oncológico paliativo" (21,6%). La complicación más frecuente fue la séptica relacionada con el catéter, que presentó una tasa de 0,53 infecciones/1.000 días de NPD. Finalizaron 64 episodios, la principal causa fue el fallecimiento (43,7%) y el "paso a la vía oral" (32,8%). Conclusiones: constatamos el aumento de los centros y profesionales colaboradores, dando respuesta a la cantidad progresivamente mayor de pacientes con soporte nutricional parenteral en domicilio. Se mantienen estables las principales indicaciones para el establecimiento de NPD y las causas de finalización del tratamiento. Aim: To communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYA-SENPE group for the year 2015. Material and methods: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2015. Results: Two hundred and thirty-six patients with 243 episodes of NPD were recorded from 40 hospitals. This represents a rate of 5.08 patients/million habitants for 2015. The most frequent pathology in adults was other (26.3%) followed by palliative oncological (21.6%). The most common complication was catheter-related sepsis which presented a rate of 0.53 infections/1,000 days of HPN. Sixty-four episodes were finished; the main cause was death (43.7%) and resuming to oral via (32.8%). Conclusions: we find increasing centers and professional partners, responding to the progressively more patients with parenteral nutrition support at home. The main indications for the establishment of NPD and causes termination of treatment remain stable.
Published: 2016

28. Nutrición parenteral domiciliaria en España durante 2015: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe,Carmina, Campos Martín,Cristina, Cuerda Compes,Cristina, Gómez Candela,Carmen, Burgos Peláez,Rosa, Moreno Villares,José Manuel, Pereira Cunill,José Luis, Pérez de la Cruz,Antonio, Virgili Casas,Nuria, Martínez Faedo,Ceferino, Álvarez Hernández,Julia, Garde Orbaiz,Carmen, Penacho Lázaro,M.ª Ángeles, Sánchez Martos,Eva Ángeles, Sanz Paris,Alejandro, Gonzalo Marín,Montserrat, Zugasti Murillo,Ana, Matía Martín,Pilar, Martín Folgueras,Tomás, Carabaña Pérez,Fátima, Díaz Guardiola,Patricia, Tejera Pérez,Cristina, Luis Román,Daniel de, Luengo Pérez,Luis Miguel, Santacruz Carmona,Nieves, Apezetxea Celaya,Antxón, Ponce González,Miguel Ángel, Urgeles Planella,Juan Ramón, Laborda González,Lucía, Martínez Olmos,Miguel Ángel, Sánchez-Vilar Burdiel,Olga, Joaquín Ortiz,Clara, Martínez Costa,Cecilia, Suárez Llanos,José Pablo, Calleja Fernández,Alicia, Leyes García,Pere, Gil Martínez,M.ª Carmen, Mauri,Silvia, García Zafra,María Victoria, and Carrera Santaliestra,Maria José
Subjects: Soporte nutricional, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral
Abstract: Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2015. Material y métodos: recopilación de los datos de NPD del registro online del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2015 al 31 de diciembre de 2015. Resultados: se registraron 236 pacientes, con 243 episodios de NPD procedentes de 40 hospitales, lo que representa una tasa de 5,08 pacientes/millón de habitantes/año 2015. La patología más frecuente en los adultos fue "otros" (26,3%) seguido por "oncológico paliativo" (21,6%). La complicación más frecuente fue la séptica relacionada con el catéter, que presentó una tasa de 0,53 infecciones/1.000 días de NPD. Finalizaron 64 episodios, la principal causa fue el fallecimiento (43,7%) y el "paso a la vía oral" (32,8%). Conclusiones: constatamos el aumento de los centros y profesionales colaboradores, dando respuesta a la cantidad progresivamente mayor de pacientes con soporte nutricional parenteral en domicilio. Se mantienen estables las principales indicaciones para el establecimiento de NPD y las causas de finalización del tratamiento.
Published: 2016

29. [HOME AND AMBULATORY ARTIFICIAL NUTRITION (NADYA) GROUP REPORT, HOME PARENTERAL NUTRITION IN SPAIN, 2014]

Author: Wanden-Berghe, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pérez de la Cruz, Antonio, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Penacho Lázaro, M Angeles, Martinez Faedo, Ceferino, Garde Orbaiz, Carmen, Gonzalo Marín, Montserrat, Sanz Paris, Alejandro, Álvarez, Julia, Sánchez Martos, Eva Angeles, Martín Folgueras, Tomás, Campos Martín, Cristina, Matía Martín, Pilar, Zugasti, Ana, Carabaña Pérez, Fátima, García Zafra, Maria Victoria, Ponce Gonzalez, Miguel Angel, Suárez Llanos, José Pablo, Martínez Costa, Cecilia, De Luis, Daniel, Apezetxea Celaya, Antxón, Luengo Pérez, Luis Miguel, Díaz Guardiola, Patricia, Gil Martinez, M Carmen, Del Olmo García, M Dolores, Leyes García, Pere, Vidal Casariego, Alfonso, Joaquin Ortiz, Clara, Sánchez-Vilar Burdiel, Olga, and Laborda González, Lucía
Subjects: Adult, Aged, 80 and over, Adolescent, Infant, Newborn, Infant, Middle Aged, Young Adult, Spain, Child, Preschool, Health Care Surveys, Humans, Nutrition Therapy, Child, Parenteral Nutrition, Home, Aged
Abstract: to communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYASENPE group for the year 2014.data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2014.a total of 220 patients and 229 episodes of HPN were registered from 37 hospitals that represents a rate of 4.7 patients/million habitants/year 2014. The most frequent disease in adults was other diseases (23.3%), neoplasm (20.4%) followed by radical active neoplasm (11.8%) and mesenteric ischemia (10.9%). The most frequent diagnosis for children were the congenital intestinal disorders (33.3%) followed by traumatic short bowel and other diagnosis.the number of participating centers and registered patients increased progressively respect to preceding years. We consider that the HPN should be regulated by the Sanitary Administration within the framework of the National Health Service Interregional Council. And its inclusion in the portfolio of health services of the different Autonomous Comunities would be beneficial for patients and professionals.Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro “on-line” del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: ‘otros diagnósticos’ (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: ‘alteraciones congénitas intestinales’ (33,3%), seguidas por ‘intestino corto traumático’ y ‘otro diagnóstico’. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales.
Published: 2015

30. Nutrición parenteral domiciliaria en España durante 2014: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pérez de la Cruz, Antonio, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Penacho Lázaro, M.ª Ángeles, Martínez Faedo, Ceferino, Garde Orbaiz, Carmen, Gonzalo Marín, Montserrat, Sanz Paris, Alejandro, Álvarez, Julia, Sánchez Martos, Eva Ángeles, Martín Folgueras, Tomás, Campos Martín, Cristina, Matía Martín, Pilar, Zugasti, Ana, Carabaña Pérez, Fátima, García Zafra, María Victoria, Ponce González, Miguel Ángel, Suárez Llanos, José Pablo, Martínez Costa, Cecilia, Luis, Daniel de, Apezetxea Celaya, Antxón, Luengo Pérez, Luis Miguel, Díaz Guardiola, Patricia, Gil Martínez, M.ª Carmen, Olmo García, M.ª Dolores del, Leyes García Grupo, Pere, Vidal Casariego, Alfonso, Joaquín Ortiz, Clara, Sánchez-Vilar Burdiel, Olga, and Laborda González, Lucía
Subjects: Home parenteral nutrition, Soporte nutricional, Epidemiolgy, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract: Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro "on-line" del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: ‘otros diagnósticos' (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: ‘alteraciones congénitas intestinales' (33,3%), seguidas por ‘intestino corto traumático' y ‘otro diagnóstico'. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales. Aim: to communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYASENPE group for the year 2014. Material and methods: data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2014. Results: a total of 220 patients and 229 episodes of HPN were registered from 37 hospitals that represents a rate of 4.7 patients/million habitants/year 2014. The most frequent disease in adults was other diseases (23.3%), neoplasm (20.4%) followed by radical active neoplasm (11.8%) and mesenteric ischemia (10.9%). The most frequent diagnosis for children were the congenital intestinal disorders (33.3%) followed by traumatic short bowel and other diagnosis. Conclusions: the number of participating centers and registered patients increased progressively respect to preceding years. We consider that the HPN should be regulated by the Sanitary Administration within the framework of the National Health Service Interregional Council. And its inclusion in the portfolio of health services of the different Autonomous Comunities would be beneficial for patients and professionals.
Published: 2015

31. A home enteral nutrition (HEN); spanish registry of NADYA-SENPE group; for the year 2013

Author: Wanden-Berghe, Carmina, Álvarez Hernández, Julia, Burgos Peláez, Rosa, Cuerda Compes, Cristina, Matía Martín, Pilar, Luengo Pérez, Luis Miguel, Gómez Candela, Carmen, Pérez de la Cruz, Antonio, Calleja Fernández, Alicia, Martínez Olmos, Miguel Ángel, Laborda González, Lucía, Campos Martín, Cristina, Leyes García, Pere, Irles Rocamora, José Antonio, Suárez Llanos, José Pablo, Cardona Pera, Daniel, Gonzalo Marín, Monserrat, Penacho Lázaro, María Ángeles, Ballesta Sáncez, Carmen, Rabasa Soler, Antoni, Garde Orbaiz, Carmen, Cánovas Gaillemin, Bárbara, Moreno Villares, José Manuel, del Olmo García, María Dolores, Carabaña Pérez, Fátima, Arraiza Irigoyen, Carmen, Mauri, Silvia, Sánchez-Vilar Burdiel, Olga, Virgili Casas, Nuria, Miserachs Aranda, Nuria, Apezetxea Celaya, Antxón, Pereira Soto, Manuel Ángel, Ponce González, Miguel Ángel, Grupo NADYA-SENPE, and [Wanden-Berghe,C]Hospital General Universitario de Alicante. Universidad Miguel Hernández. [Álvarez Hernández,J] Hospital Príncipe de Asturias, Alcalá de Henares, Madrid. [Burgos Peláez,R] Hospital Vall d’Hebrón, Barcelona. [Cuerda Compes,C] Hospital Gregorio Marañón, Madrid. [Matía Martín,C] Hospital Clínico San Carlos, Madrid. [Luengo Pérez,LM] Hospital Infanta Cristina, Badajoz. [Gómez Candela,C] Hospital La Paz, Madrid. [Pérez de la Cruz,A] Hospital Virgen de las Nieves, Granada. [Calleja Fernández,A] Complejo Asistencial de León. [Martínez Olmos,MA] Hospital de Conxo-CHUS, Santiago de Compostela. [Laborda González,L] Hospital de Cruces, Bilbao. [Campos Martín,C] Hospital Universitario Virgen Macarena, Sevilla. [Leyes García,P] Hospital Clinic, Barcelona. [Irles Rocamora,JA] Hospital Universitario Ntra. Sra. de Valme, Sevilla. [Suárez Llanos,JP] Hospital Universitario Nuestra Señora de la Candelaria, Santa Cruz de Tenerife. [Cardona Pera1,D] Hospital de la Santa Creu i Sant Pau, Barcelona. [Gonzalo Marín,M] Hospital Universitario Carlos Haya, Málaga. [Penacho Lázaro,MA] Hospital El Bierzo, Ponferrada, León. [Ballesta Sáncez,C] Hospital Sant Joan, Sant Joan de Alicante. [Rabassa Soler,A] Hospital Universitari Sant Joan de Reus, Tarragona. [Garde Orbaiz,C] Hospital Universitario Donostia, Guipuzkoa. [Cánovas Gaillemin,B] Hospital Virgen de la Salud, Toledo. [Moreno Villares,JM] Hospital Universitario 12 de Octubre, Madrid. [del Olmo García,MC] Hospital Universitario Severo Ochoa, Leganés, Madrid. [Carabaña Pérez,F] Hospital Ramón y Cajal, Madrid. [Arraiza Irigoyen,C] Complejo Hospitalario de Jaén. [Mauri,S] Hospital Josep Trueta, Girona. [Sánchez-Vilar Burdiel,O] Fundación Jiménez Díaz, Madrid. [Virgili Casas,N] Hospital Universitario Bellvitge, L’Hospitalet de Llobregat, Barcelona. [Miserachs Aranda,N] Hospital Fundació Esperit Sant (Santa Coloma de Gramanet), Barcelona. [Apezetxea Celaya,A] Hospital Basurto, Bilbao. [Pereira Soto,MA] Hospital Clínico Universitario Santiago de Compostela. [Ponce González,MA] Hospital Universitario Dr. Negrín, Gran Canaria, Spain.
Subjects: Adult, Male, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Feeding Methods::Enteral Nutrition [Medical Subject Headings], Adolescent, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Patient Care::Withholding Treatment [Medical Subject Headings], Check Tags::Male [Medical Subject Headings], Analytical, Diagnostic and Therapeutic Techniques and Equipment::Surgical Procedures, Operative::Digestive System Surgical Procedures::Gastrostomy [Medical Subject Headings], Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans [Medical Subject Headings], Young Adult, Named Groups::Persons::Age Groups::Adult [Medical Subject Headings], Organisms::Eukaryota::Animals [Medical Subject Headings], Registros, Humans, Registries, Nutritional support, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Vital Statistics::Morbidity::Prevalence [Medical Subject Headings], Child, Named Groups::Persons::Age Groups::Child [Medical Subject Headings], Aged, Health Care::Health Care Facilities, Manpower, and Services::Health Facilities::Hospitals [Medical Subject Headings], Aged, 80 and over, Organisms::Eukaryota::Animals::Chordata::Vertebrates::Birds::Galliformes::Chickens [Medical Subject Headings], Infant, Newborn, Infant, Middle Aged, Home care services, Home Care Services, Soporte nutricional, Check Tags::Female [Medical Subject Headings], Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Intubation::Intubation, Gastrointestinal [Medical Subject Headings], Spain, Child, Preschool, Nutrición enteral, Cuidados domiciliarios, Female, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries [Medical Subject Headings], Enteral nutrition, Parenteral Nutrition, Home
Abstract: AIM: To present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013. MATERIAL AND METHODS: From January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done. RESULTS: In this period 3 223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in 33 Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult's mean age was 69,14 years (sd 17,64) and men were younger than women p-value
Published: 2015

32. A Home and Ambulatory Artificial Nutrition (NADYA) group report, Home Parenteral Nutrition in Spain, 2013

Author: Wanden-Berghe, Carmina, Cuerda Compes, J Cristina, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Pérez de la Cruz, Antonio, Moreno Villares, José Manuel, Carabaña Pérez, Fátima, Garde Orbaiz, Carmen, Martínez Faedo, Ceferino, Penacho Lázaro, Ma Ángeles, Gonzalo Marín, Montserrat, García Luna, Pedro Pablo, Matía Martín, Pilar, Sanz Paris, Alejandro, Luengo Pérez, Luis Miguel, Martín Folgueras, Tomás, García Zafra, María Victoria, Álvarez Hernández, Campos Martín, Cristina, Suárez Llanos, José Pablo, Zugasti, Ana, Apezetxea Celaya, Antxón, Urgeles Planella, Juan Ramon, Laborda González, Lucía, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Martínez Costa, Cecilia, Vidal Casariego, Alfonso, Leyes García, Pere, Ponce González, Miguel Angel, Gil Martínez, Ma Carmen, Sánchez Martos, Eva Ángeles, del Olmo García, Ma Dolores, Díaz Guardiola, Patricia, Grupo NADYA-SENPE, and [Wanden-Berghe,C] FISABIO-Hospital General Universitario de Alicante. Universidad Miguel Hernández (Elche), Alicante. [Cuerda Compes,JC] Hospital Gregorio Marañón. [Burgos Peláez,R] Hospital Vall d’Hebrón, Barcelona. [Gómez Candela,C] Hospital La Paz. [Virgili Casas,N] Hospital Universitario Bellvitge, L’Hospitalet de Llobregat, Barcelona. [Pérez de la Cruz,A] Hospital Virgen de las Nieves, Granada. [Moreno Villares,JM] Hospital Universitario 12 de Octubre, Madrid. [Carabaña Pérez,F] Hospital Ramón y Cajal, Madrid. [Garde Orbaiz,C] Hospital Universitario Donostia, Guipuzkoa. [Martínez Faedo,C] Hospital Universitario Central de Asturias. [Penacho Lázaro,MA] Hospital El Bierzo, Ponferrada, León. [Gonzalo Marín,M] Hospital Universitario Carlos Haya. Málaga. [García Luna,PP] Hospital Universitario Virgen del Rocío, Sevilla. [Matía Martín,P] Hospital Clínico San Carlos, Madrid. [Sanz Paris,A] Hospital Universitario Miguel Servet, Zaragoza. [Luengo Pérez,LM] Hospital Infanta Cristina, Badajoz. [Martín Folgueras,T] Complejo Hospitalario Universitario de Canarias, Santa Cruz de Tenerife. [García Zafra,MV] Hospital Universitario Virgen de la Arrixaca, Murcia. [Álvarez Hernández] Hospital Príncipe de Asturias ,Alcalá de Henares, Madrid. [Campos Martín,C] Hospital Universitario Virgen Macarena, Sevilla. [Suárez Llanos,JP] Hospital Universitario Nuestra Señora de la Candelaria, Santa Cruz de Tenerife. [Zugasti,A] Hospital Virgen del Camino, Pamplona. [Apezetxea Celaya,A] Hospital Basurto, Bilbao. [Urgeles Planella,JR] Hospital Universitario Son Espases, Palma de Mallorca. [Laborda González,L] Hospital de Cruce, Bilbao. [Sánchez-Vilar Burdiel,O] Fundación Jiménez Díaz, Madrid. [Joaquín Ortiz,C] Hospital Germans Trias i Pujol, Barcelona. [Martínez Costa,C] Hospital Clínico Universitario, Valencia. [Vidal Casariego,A] Complejo Asistencial de León. [Leyes García,P] Hospital Clinic, Barcelona. [Ponce González,MA] Hospital Universitario Dr Negrín, Gran Canaria. [Gil Martínez,MC] Hospital Central de la Defensa Gomez Ulla, Madrid. [Sánchez Martos,EA ] Corporació Sanitària Parc Taulí, Barcelona. [del Olmo García,MD] Hospital Universitario Severo Ochoa , Leganés, Madrid. [Díaz Guardiola,P] Hospital Infanta Sofía, San Sebastian de los Reyes, Madrid. Spain.
Subjects: Adult, Male, Adolescent, Nutrición parenteral domiciliaria, Nutrición parenteral, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Feeding Methods::Parenteral Nutrition::Parenteral Nutrition, Home [Medical Subject Headings], Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans [Medical Subject Headings], Young Adult, Epidemiolgy, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Epidemiologic Study Characteristics as Topic::Epidemiologic Studies::Cohort Studies::Longitudinal Studies::Follow-Up Studies [Medical Subject Headings], Named Groups::Persons::Age Groups::Adult [Medical Subject Headings], Ambulatory Care, Registros, Epidemiología, Humans, Registries, Nutritional support, Child, Named Groups::Persons::Age Groups::Child [Medical Subject Headings], Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases [Medical Subject Headings], Aged, Aged, 80 and over, Home parenteral nutrition, Disciplines and Occupations::Social Sciences::Sociology::Minority Groups [Medical Subject Headings], Age Factors, Infant, Home care services, Diseases::Neoplasms [Medical Subject Headings], Middle Aged, Parenteral nutrition, Soporte nutricional, Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Intestinal Obstruction [Medical Subject Headings], Spain, Child, Preschool, Cuidados domiciliarios, Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Mesenteric Ischemia [Medical Subject Headings], Female, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries [Medical Subject Headings], Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Malabsorption Syndromes::Short Bowel Syndrome [Medical Subject Headings], Parenteral Nutrition, Home
Abstract: AIM: To communicate the results of the Spanish Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE group for the year 2013. MATERIAL AND METHODS: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2013. RESULTS: A total of 197 patients and 202 episodes of HPN were registered from 35 hospitals that represents a rate of 4,22 patients/million habitants/year 2013. The median age was 53 years (IQR 40-64) for 189 adult patients and 7 months (IQR 6-35,5) for children. The most frequent disease in adults was neoplasm (30,7%) followed by other diseases (20,1%) and mesenteric ischemia (12,7%). Short bowel syndrome and intestinal obstruction (25,9%) were in 35.7% cases the indications for HPN. The most frequent diagnosis for children were the congenital intestinal disorders and other diagnosis, both with a (37,5%) and short bowel syndrome and intestinal obstruction were the indication for treatment, each was present in 50% of the sample. Tunneled catheters (50%) and subcutaneous reservoirs (27,7%) were frequently used. The septic complications related with catheter were commonly frequent with a rate of 0.74 infections/1000 HPN days. HPN duration presented a median of 1,69 days. A total of 86 episodes finalized during the year, death was the principal reason (45%), followed by "resumed oral via" (43,75%) while it happened inversely for children, 66,7% of them resumed oral via and 16,7% deceased. Fifteen per cent were considered for intestinal transplant, children were proportionally candidates, p-value 0.002. CONCLUSIONS: The number of participating centers and registered patients increased progressively respect to preceding years. Since 2003 Neoplasm is still being the principal pathological group. Death is adult's principal reason for finalizing HPN and "resuming oral via" for children. Despite that NADYA registry is consolidate as a essential source of relevant information about the advances in Home Artificial Nutrition in our country, currently is in an improvement process of the available information about patients characteristics with a special emphasis on children even though they still being a minority group. Yes Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del años 2013. Material y métodos: recopilación de los datos del registro “on-line” introducidos por los colaboradores del grupo NADYA responsables del seguimiento de la NPD desde el 1 de enero de 2013 al 31 de diciembre de 2013. Resultados: se registraron 197 pacientes, procedentes de 35 hospitales, lo que representa una tasa de 4,22 pacientes/ millón habitantes/año 2013, con 202 episodios de NPD. La edad media de los 189 pacientes mayores de 14 años fue de 53 años (IIQ 40 – 64), y en los niños de 7 meses (IIQ 6 – 35,5). La patología más frecuente en los adultos fue la neoplasia (30,7%) seguida por otras patologías (20,1%) y la isquemia mesentérica (12,7%). En el 35,4% de los casos el motivo de indicación fue el síndrome de intestino corto, seguido de la obstrucción intestinal (25,9%). En los niños el diagnóstico más frecuente fueron las alteraciones congénitas intestinales y ‘otros diagnósticos’, ambas con un 37,5 %, y la causa de la indicación el síndrome de intestino corto y la obstrucción intestinal, que se repartieron el 50% de la muestra. Los catéteres más utilizados fueron los tunelizados (50%) y los reservorios subcutáneos (27,7%). Las complicaciones más frecuentes fueron las sépticas, relacionadas con el catéter, con una tasa de 0,74 infecciones/1.000 días de NPD. La duración de la NPD presentó una mediana de 1,69 años. Durante el año finalizaron 86 episodios, la principal causa de la finalización en adultos fue el fallecimiento (45%) seguido del ‘paso a la vía oral’ (43,75%) y en los niños a la inversa 66,7% pasan a vía oral y 16,7% fallecen. Se consideraron candidatos para trasplante intestinal el 15% de los pacientes, siendo proporcionalmente los candidatos niños, p-valor 0,002. Conclusiones: se observa un aumento progresivo de los centros participantes y de los pacientes registrados respecto a años anteriores. El principal grupo patológico sigue siendo oncológico, ocupando el primer lugar desde 2003. La principal causa de finalización de la NPD es en los adultos el fallecimiento y en los niños el ‘paso a vía oral’. Aunque el registro NADYA es un registro consolidado y ha sido y es fuente imprescindible de información relevante para el conocimiento de los avances de la Nutrición Artificial Domiciliaria en nuestro país, se encuentra en proceso de mejorar la información que ofrece sobre las características de los pacientes, con especial atención en el grupo de niños, aunque estos siguen siendo un número reducido.
Published: 2015

33. A home enteral nutrition (HEN); Spanish registry of NADYA-SENPE group; for the year 2013

Author: Wanden-Berghe,Carmina, álvarez Hernández,Julia, Burgos Peláez,Rosa, Cuerda Compes,Cristina, Matía Martín,Pilar, Luengo Pérez,Luis Miguel, Gómez Candela,Carmen, Pérez de la Cruz,Antonio, Calleja Fernández,Alicia, Martínez Olmos,Miguel ángel, Laborda González,Lucía, Campos Martín,Cristina, Leyes García,Pere, Irles Rocamora,José Antonio, Suárez Llanos,José Pablo, Cardona Pera,Daniel, Gonzalo Marín,Monserrat, Penacho Lázaro,María ángeles, Ballesta Sáncez,Carmen, Rabassa Soler,Antoni, Garde Orbaiz,Carmen, Cánovas Gaillemin,Bárbara, Moreno Villares,José Manuel, Olmo García,María Dolores del, Carabaña Pérez,Fátima, Arraiza Irigoyen,Carmen, Mauri,Silvia, Sánchez-Vilar Burdiel,Olga, Virgili Casas,Nuria, Miserachs Aranda,Nuria, Apezetxea Celaya,Antxón, Pereira Soto,Manuel ángel, and Ponce González,Miguel ángel
Subjects: Registries, Home care services, Enteral nutrition, Nutritional support
Abstract: Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013. Material and methods: from January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done. Results: in this period 3223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in 33 Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult's mean age was 69,14 years (sd 17,64) and men were younger than women p-value
Published: 2015

34. Nutrición parenteral domiciliaria en España durante 2014: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe,Carmina, Pereira Cunill,José Luis, Cuerda Compes,Cristina, Moreno Villares,José Manuel, Pérez de la Cruz,Antonio, Burgos Peláez,Rosa, Gómez Candela,Carmen, Virgili Casas,Nuria, Penacho Lázaro,M.ª Ángeles, Martínez Faedo,Ceferino, Garde Orbaiz,Carmen, Gonzalo Marín,Montserrat, Sanz Paris,Alejandro, Álvarez,Julia, Sánchez Martos,Eva Ángeles, Martín Folgueras,Tomás, Campos Martín,Cristina, Matía Martín,Pilar, Zugasti,Ana, Carabaña Pérez,Fátima, García Zafra,María Victoria, Ponce González,Miguel Ángel, Suárez Llanos,José Pablo, Martínez Costa,Cecilia, Luis,Daniel de, Apezetxea Celaya,Antxón, Luengo Pérez,Luis Miguel, Díaz Guardiola,Patricia, Gil Martínez,M.ª Carmen, Olmo García,M.ª Dolores del, Leyes García Grupo,Pere, Vidal Casariego,Alfonso, Joaquín Ortiz,Clara, Sánchez-Vilar Burdiel,Olga, and Laborda González,Lucía
Subjects: Soporte nutricional, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral
Abstract: Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro "on-line" del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: otros diagnósticos' (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: alteraciones congénitas intestinales' (33,3%), seguidas por intestino corto traumático' y otro diagnóstico'. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales.
Published: 2015

35. Nutrición Parenteral Domiciliaria en España durante 2015; informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author: Wanden-Berghe Lozano, Carmina, primary, Campos Martín, Cristina, additional, Cuerda Compes, Cristina, additional, Gómez Candela, Carmen, additional, Burgos Peláez, Rosa, additional, Moreno Villares, José Manuel, additional, Pereira Cunill, José Luis, additional, Pérez de la Cruz, Antonio, additional, Virgili Casas, Nuria, additional, Martinez Faedo, Ceferino, additional, Álvarez Hernández, Julia, additional, Garde Orbaiz, Carmen, additional, Penacho Lázaro, Mª Ángeles, additional, Sánchez Martos, Eva Ángeles, additional, Sanz Paris, Alejandro, additional, Gonzalo Marín, Montserrat, additional, Zugasti Murillo, Ana, additional, Matía Martín, Pilar, additional, Martín Folgueras, Tomás, additional, Carabaña Pérez, Fátima, additional, Díaz Guardiola, Patricia, additional, Tejera Pérez, Cristina, additional, De Luis Román, Daniel, additional, Luengo Pérez, Luis Miguel, additional, Santacruz Carmona, Nieves, additional, Apezetxea Celaya, Antxón, additional, Ponce González, Miguel Ángel, additional, Urgeles Planella, Juan Ramón, additional, Laborda González, Lucía, additional, Martinez Olmos, Miguel Ángel, additional, Sánchez-Vilar Burdiel, Olga, additional, Joaquín Ortiz, Clara, additional, Martínez Costa, Cecilia, additional, Suárez Llanos, José Pablo, additional, Calleja Fernández, Alicia, additional, Leyes García, Pere, additional, Gil Martinez, Mª Carmen, additional, Mauri Roca, Silvia, additional, García Zafra, Maria Victoria, additional, Carrera Santaliestra, María José, additional, and NADYA-SENPE, Grupo, additional
Published: 2016
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36. Nutrición parenteral domiciliaria en España 2016; informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Author: Wanden-Berghe, Carmina, Virgili Casas, Nuria, Ramos Boluda, Esther, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Gómez Candela, Carmen, Burgos Peláez, Rosa, Penacho Lázaro, Maria Ángeles, de la Cruz, Antonio Pérez, Álvarez Hernández, Julia, Gonzalo Marín, Montserrat, Matía Martín, Pilar, Martínez Faedo, Ceferino, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Campos Martín, Cristina, Martín Folgueras, Tomás, Palmero, M. Ángela Martín, and de los Ángeles Martín Fontalba, María
Subjects: *GASTROINTESTINAL disease treatment, *HOME care service statistics, *OUTPATIENT medical care, *GASTROINTESTINAL diseases, *HOME care services, *NUTRITION, *ACQUISITION of data
Abstract: Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016.Material and Methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016.Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%).Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable. [ABSTRACT FROM AUTHOR]
Published: 2017
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37. Revisión sobre la experiencia en vida real de teduglutida.

Author: Campos-Martín, Cristina, Tejera-Pérez, Cristina, Virgili-Casas, Nuria, and Irles-Rocamora, José A.
Subjects: *SHORT bowel syndrome, *COLON polyps, *PARENTERAL feeding, *PEPTIDES, *QUALITY of life
Abstract: Background: teduglutide is an agonist of glucagon-related peptide (aGLP2) effective as a treatment for patients with short bowel syndrome (SBS), an entity that affects quality of life, usually requires home parenteral nutrition (HPN) and generates significant health costs. The objective of the present narrative review was to assess the real-life experience reported with teduglutide. Methods and results: in real life, one meta-analysis and studies published with 440 patients indicate that Teduglutide is effective after the period of intestinal adaptation after surgery, reducing the need for HPN and in some cases even allowing it to be suspended. The response is heterogeneous, increasing progressively up to 2 years after the start of treatment and reaching 82 % in some series. The presence of colon in continuity is a negative predictor of early response, but a positive predictive factor for the withdrawal of HPN. The most common side effects are gastrointestinal in the early stages of treatment. There are late complications related to the stoma or the occurrence of colon polyps, although the frequency of the latter is very low. In adults, data on improved quality of life and cost-effectiveness are scarce. Conclusions: teduglutide is effective and safe and data from pivotal trials for the treatment of patients with SBS are confirmed in real life and can reduce or even stop HPN in some cases. Although it seems cost-effective, more studies are needed to identify those patients with the greatest benefit. [ABSTRACT FROM AUTHOR]
Published: 2023
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38. D-lactic acidosis: A rare cause of metabolic acidosis

Author: Planas-Vilaseca, Alejandra, Guerrero-Pérez, Fernando, Marengo, Agustina P., Lopez-Urdiales, Rafael, and Virgili-Casas, Núria
Published: 2016
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39. Acidosis por D-lactato: una causa inusual de acidosis metabólica

Author: Planas-Vilaseca, Alejandra, Guerrero-Pérez, Fernando, Marengo, Agustina P., Lopez-Urdiales, Rafael, and Virgili-Casas, Núria
Published: 2016
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40. Hospital malnutrition screening at admission: malnutrition increases mortality and length of stay.

Author: Badosa, Elisabet Leiva, Tahull, María Badia, Virgili Casas, Nuria, Elguezabal Sangrador, Gema, Faz Méndez, Concepción, Herrero Meseguer, Ignacio, González, Àngels Izquierdo, López Urdiales, Rafael, Javier de Oca Burguete, Francisco, Molas, María Tubau, Farré, Concepció Vilarasau, Llop Talaveron, Josep Manel, Leiva Badosa, Elisabet, Badia Tahull, Maria, Virgili Casas, Núria, Izquierdo González, Àngels, Oca Burguete, Francisco Javier, Tubau Molas, María, and Vilarasau Farré, Concepció
Subjects: *MALNUTRITION, *LENGTH of stay in hospitals, *DISEASE prevalence, *DISEASE risk factors, *NUTRITION disorders, *MEDICAL emergencies
Abstract: Introduction: Malnutrition is common in patients admitted to hospital and is associated with morbidity and mortality. We conducted a study to assess the prevalence of nutritional risk, risk factors associated and its consequences in a third-level hospital.Methods: This is a prospective nutritional screening study of hospitalized patients evaluated within the first 72 hours of admission, by Malnutrition Universal Screening Tool (MUST) and Short Nutritional Assessment Questionnaire (SNAQ) screening tests. The variables recorded included demographic, anthropometric, hospitalization and clinical data.Results: Out of 409 patients, 12.7% and 15.3% were nutritionally at risk according to MUST and SNAQ, respectively, with the highest prevalence in critical care units (33.3%; 25.5%), amongst oncologic patients (17.5%; 28.4%) and those with higher Charlson comorbidity indices (CCI). Length of stay (LOS) was longer in patients at severe malnutrition risk (15.4 vs 9.9 days for MUST; 13.3 vs 9.9 days for SNAQ). Mortality was higher in those with high malnutrition risk (66.7% vs 10.9% for MUST; 50.0% vs 14.2% for SNAQ). Multivariate analysis showed that malnutrition was associated with CCI and mortality. Risk factors associated with LOS were admission as emergencies for both MUST and SNAQ tests.Conclusions: The prevalence of malnutrition is high in patients on admission to a third-level hospital, with a higher prevalence in critical care units, amongst oncologic patients and those with a higher CCI. Malnutrition is associated with longer LOS and higher mortality. The systematic clinical use of screening tools enables to detect patients at risk of malnutrition and take appropriate action. [ABSTRACT FROM AUTHOR]
Published: 2017
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41. Nutrición en cuidados paliativos: resumen de recomendaciones del Grupo de Trabajo de Ética de la SENPE.

Author: del Olmo García, María Dolores, Moreno Villares, José Manuel, Hernández, Julia Álvarez, López, Isabel Ferrero, Lesmes, Irene Bretón, Casas, Nuria Virgili, Enguídanos, Rosana Ashbaugh, Lozano Fuster, Francisca Margarita, Wanden-Berghe, Carmina, Irles Rocamora, Juan Antonio, Molina Soria, Juan Bautista, Montejo González, Juan Carlos, Blanco, Ana Cantón, Del Olmo García, M ª Dolores, Álvarez Hernández, Julia, Ferrero López, Isabel, Bretón Lesmes, Irene, Virgili Casas, Nuria, Ashbaugh Enguídanos, Rosana, and Irles Rocamora, José A
Abstract: Introduction: Palliative care provides a holistic approach and care for patients with a terminal illness and their families. In palliative care physical complaints as well as emotional, social and spiritual aspects are considered. Nutritional care should be also considered within palliative support. For those working in the nutritional support field, to withhold or withdraw nutritional support may be an ethical dilemma in this scenario. The controversy starts when considering nutrition and hydration as basic care or a treatment. The goals of nutrition support in palliative care patients differ from common ones, aiming to improve quality of life, survival or both. The decision should be based on a consideration of prognosis (length of survival), quality of life, and risks-benefits ratio. Regarding oral nutrition (with or without oral supplements) the idea prevails of "comfort feeding", based on providing oral feeding till discomfort or avoidance develop. There is no evidence on the benefit of specific nutrients, despite the fact that omega-3 FAs may have some positive effects in patients with cancer. Regarding nutritional support (enteral or parenteral), no scientific evidence is present, so the decision needs to be agreed according to the desires and beliefs of the patient and their family, and based on a consensus with the interdisciplinary team on the aims of this support. [ABSTRACT FROM AUTHOR]
Published: 2022
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42. Nutrición parenteral domiciliaria en España 2018. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Author: Wanden-Berghe, Carmina, Cuerda Compes, Cristina, Maíz Jiménez, María Irene, Pereira Cunill, José Luis, Ramos Boluda, Esther, Gómez Candela, Carmen, Virgili Casas, Nuria, Burgos Peláez, Rosa, Antonio de Luis Román, Daniel, Penacho Lázaro, Maria Ángeles, Sánchez Martos, Eva Ángeles, Martínez Faedo, Ceferino, Díaz Guardiola, Patricia, Álvarez Hernández, Julia, Murillo, Ana Zugasti, Campos Martín, Cristina, Sanz Paris, Alejandro, de los Ángeles Martín Fontalba, María, Lobo, Gabriela, and Matía Martín, Pilar
Subjects: *PARENTERAL feeding, *CHILD patients, *PALLIATIVE treatment of cancer, *ENTEROCOLITIS, *INTESTINAL diseases
Abstract: Introduction: Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2018 Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: there were 278 patients from 45 Spanish hospitals (54.7% women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was "palliative cancer" (22.0%), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4%). The first indication was short bowel syndrome in both children (60.9%) and adults (35.7%). The most frequently used type of catheter was tunneled in both children (81.0%) and adults (41.1%). Ending 75 episodes, the most frequent cause was death (52.0%) and change to oral feeding (33.3%). Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN. [ABSTRACT FROM AUTHOR]
Published: 2020
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43. Home Parenteral Nutrition in Spain, 2015. Home and Ambulatory Artificial Nutrition (NADYA) Group report

Author: Wanden-Berghe C, Martin C, Compes C, Candela C, Pelaez R, Villares J, Cunill J, de la Cruz A, Casas N, Faedo C, Hernandez J, Orbaiz C, Lazaro M, Martos E, Paris A, Marin M, Murillo A, Martin P, Folgueras T, Perez F, Guardiola P, Perez C, Roman D, Perez L, Carmona N, Celaya A, Gonzalez M, Planella J, Gonzalez L, Olmos M, Burdiel O, Ortiz C, Costa C, Llanos J, Fernandez A, Garcia P, Martinez M, Mauri S, Zafra M, Santaliestra M, Grp NADYA-SENPE, [Wanden-Berghe, Carmina] Hosp Gral Univ Alicante, ISABIAL FISABIO, Alicante, Spain, [Campos Martin, Cristina] Univ Hosp Virgen Macarena, UGC Endocrinol Nutr, Unidad Nutr Clin & Dietet, Seville, Spain, [Cuerda Compes, Cristina] Hosp Gral Univ Gregorio Maranon, Madrid, Spain, [Gomez Candela, Carmen] Hosp Univ La Paz, Madrid, Spain, [Burgos Pelaez, Rosa] Hosp Valle De Hebron, Barcelona, Spain, [Moreno Villares, Jose Manuel] Hosp Univ 12 Octubre, Madrid, Spain, [Pereira Cunill, Jose Luis] Hosp Univ Virgen del Rocio, Seville, Spain, [Perez de la Cruz, Antonio] Hosp Univ Virgen de las Nieves, Granada, Spain, [Virgili Casas, Nuria] Hosp Univ Bellvitge, Barcelona, Spain, [Martinez Faedo, Ceferino] Hosp Univ Cent Asturias, Oviedo, Spain, [Alvarez Hernandez, Julia] Hosp Univ Principe Asturias, Madrid, Spain, [Garde Orbaiz, Carmen] Hosp Univ Donostia, Guipuzkoa, Spain, [Penacho Lazaro, Ma Angeles] Hosp El Bierzo, Leon, Spain, [Sanchez Martos, Eva Angeles] Corp Sanitaria Parc Tauli, Barcelona, Spain, [Sanz Paris, Alejandro] Hosp Univ Miguel Servet, Zaragoza, Spain, [Gonzalo Marin, Montserrat] Hosp Univ Carlos Haya, Malaga, Spain, [Zugasti Murillo, Ana] Hosp Virgen del Camino, Pamplona, Spain, [Matia Martin, Pilar] Hosp Clin San Carlos, Madrid, Spain, [Martin Folgueras, Tomas] Complejo Hosp Univ Canarias, Santa Cruz De Tenerife, Spain, [Carabana Perez, Fatima] Hosp Univ Ramon y Cajal, Madrid, Spain, [Diaz Guardiola, Patricia] Hosp Univ Infanta Sofia, Madrid, Spain, [Tejera Perez, Cristina] Complejo Hosp Univ Ferrol, La Coruna, Spain, [de Luis Roman, Daniel] Hosp Clin Univ Valladolid, Valladolid, Spain, [Luengo Perez, Luis Miguel] Hosp Infanta Cristina, Badajoz, Spain, [Santacruz Carmona, Nieves] Hosp Gral Univ Alicante, Alicante, Spain, [Apezetxea Celaya, Antxon] Hosp Basurto, Bilbao, Spain, [Ponce Gonzalez, Miguel Angel] Hosp Univ Gran Canaria Dr Negrin, Las Palmas Gran Canaria, Spain, [Urgeles Planella, Juan Ramon] Hosp Univ Son Espases, Palma De Mallorca, Spain, [Laborda Gonzalez, Lucia] Hosp Cruces, Bilbao, Spain, [Martinez Olmos, Miguel Angel] Complejo Hosp Univ Santiago, Santiago De Compostela, A Coruna, Spain, [Sanchez-Vilar Burdiel, Olga] Fdn Jimenez Diaz, Madrid, Spain, [Joaquin Ortiz, Clara] Hosp Germans Trias i Pujol, Barcelona, Spain, [Martinez Costa, Cecilia] Hosp Clin Univ, Valencia, Spain, [Suarez Llanos, Jose Pablo] Hosp Univ Nuestra Senora de la Candelaria, Santa Cruz De Tenerife, Spain, [Calleja Fernandez, Alicia] Complejo Asistencial Leon, Leon, Spain, [Leyes Garcia, Pere] Hosp Clin Barcelona, Barcelona, Spain, [Gil Martinez, Ma Carmen] Hosp Cent Def Gomez Ulla, Madrid, Spain, [Mauri, Silvia] Hosp Univ Dr Josep Trueta, Girona, Spain, [Garcia Zafra, Maria Victoria] Hosp Univ Virgen de la Arrixaca, Murcia, Spain, and [Carrera Santaliestra, Maria Jose] Hosp del Mar, Barcelona, Spain
Subjects: Home parenteral nutrition, Epidemiolgy, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract: Aim: To communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYA-SENPE group for the year 2015.Material and methods: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2015.Results: Two hundred and thirty-six patients with 243 episodes of NPD were recorded from 40 hospitals. This represents a rate of 5.08 patients/million habitants for 2015. The most frequent pathology in adults was other (26.3%) followed by palliative oncological (21.6%). The most common complication was catheter-related sepsis which presented a rate of 0.53 infections/1,000 days of HPN. Sixty-four episodes were finished; the main cause was death (43.7%) and resuming to oral via (32.8%).Conclusions: we find increasing centers and professional partners, responding to the progressively more patients with parenteral nutrition support at home. The main indications for the establishment of NPD and causes termination of treatment remain stable.
Published: 2016

44. [The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019].

Author: Wanden-Berghe C, Campos Martín C, Álvarez Hernández J, Burgos Peláez R, Matía Martín P, de la Cuerda Compés C, Lobo G, Martínez Olmos MÁ, De Luis Román DA, Palma Milla S, Gonzalo Marín M, Padín López S, Luengo Pérez LM, Santacruz Carmona N, Pintor de la Maza B, Suárez Llanos JP, Irles Rocamora JA, Forga Visa MT, Martín Palmero MÁ, Sánchez Sánchez R, Cardona Pera D, Tejera Pérez C, Ballesta Sánchez C, Higuera Pulgar I, Bonada Sanjaume A, Penacho Lázaro MÁ, Garde Orbaiz C, Arraiza Irigoyen C, Martín Folgueras T, Virgili Casas N, Cánovas Gaillemin B, Maíz Jiménez MI, Del Olmo García MD, Carabaña Pérez F, Parés Marimón RM, Morán López JM, Mauri Roca S, García Puente I, Sánchez-Vilar Burdiel O, García Delgado Y, Miserachs Aranda N, Calañas Continente A, Apezetxea Celaya A, Pereira Soto MÁ, Sánchez Martos EÁ, and Ponce González MÁ
Subjects: Aged, Child, Female, Gastrostomy, Humans, Male, Registries, Spain epidemiology, Enteral Nutrition, Parenteral Nutrition, Home
Abstract: Introduction: Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.
Published: 2022
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45. [Nutritional management of amyotrophic lateral sclerosis: summary of recommendations].

Author: Del Olmo García MªD, Virgili Casas N, Cantón Blanco A, Lozano Fuster FM, Wanden-Berghe C, Avilés V, Ashbaugh Enguídanos R, Ferrero López I, Molina Soria JB, Montejo González JC, Bretón Lesmes I, Álvarez Hernández J, Moreno Villares JM, and Senpe GTÉS
Subjects: Guidelines as Topic, Humans, Nutritional Requirements, Amyotrophic Lateral Sclerosis therapy, Nutrition Therapy methods
Published: 2018
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46. [Home and Ambulatory Artificial Nutrition (NADYA) Group Report - Home parenteral nutrition in Spain, 2016].

Author: Wanden-Berghe Lozano C, Virgili Casas N, Ramos Boluda E, Cuerda Compés C, Moreno Villares JM, Pereira Cunill JL, Gómez Candela C, Burgos Peláez R, Penacho Lázaro MÁ, Pérez de la Cruz A, Álvarez Hernández J, Gonzalo Marín M, Matía Martín P, Martínez Faedo C, Sánchez Martos EÁ, Sanz Paris A, Campos Martín C, Martín Folgueras T, Martín Palmero MÁ, Martín Fontalba MLÁ, Luengo Pérez LM, Zugasti Murillo A, Martínez Ramírez MJ, Carabaña Pérez F, Martínez Costa C, Díaz Guardiola P, Tejera Pérez C, Parés Marimón RM, Irles Rocamora JA, Garde Orbaiz C, Ponce González MÁ, García Zafra MV, Sánchez Sánchez R, Urgeles Planella JR, Apezetxea Celaya A, Sánchez-Vilar Burdiel O, Joaquín Ortiz C, Suárez Llanos JP, Pintor de la Maza B, Leyes García P, Gil Martínez MC, Mauri Roca S, and Carrera Santaliestra MJ
Subjects: Adolescent, Adult, Aged, Aged, 80 and over, Ambulatory Care, Child, Child, Preschool, Female, Gastrointestinal Diseases epidemiology, Gastrointestinal Diseases therapy, Home Care Services, Humans, Infant, Male, Middle Aged, Registries, Spain, Young Adult, Parenteral Nutrition, Home statistics & numerical data
Abstract: Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016., Material and Methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016., Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%)., Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.
Published: 2017
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