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This performance is based on testimonials of LBGTQI+ professionals, carers and people with dementia. It highlights the impact of heteronormative language and discriminatory behaviours on the quality of life and human rights of LGBTQI+ people with dementia and their partners in later life.

This performance is based on testimonials of Black, Asian and Minority Ethnic professionals and carers. It highlights the importance of culturally appropriate care and the ways that institutionalised task-orientated cultures and punishing workloads contribute to poor care and elderly neglect.

This performance is based on testimonials of Deaf people who use BSL and hard of hearing carers. It highlights the difficulties in communication faced by the next of kin of people living with dementia and how lack of interpretation and good communication deprived them of their right to be equally involved in the end of their loved one’s life.

Within the updated Programme for Government is a pledge to: “Introduce an all-Wales framework to roll out social prescribing to tackle isolation”. Social prescribing is a key component of universal personalised care where patients are in control of their care package – and, as a recent Senedd Research Service briefing noted, social prescribing aligns with the Wellbeing of Future Generations (Wales) Act 2015 and the Social Services and Wellbeing (Wales) Act 2014, both of which are founded upon models that recognise the impact of social aspects on health and wellbeing. Furthermore, the ‘A Healthier Wales: plan for health and social care’ sets out a long term future vision of a ‘whole system approach to health and social care’, which is focussed on health and wellbeing, and on preventing illness. Yet despite this acceptance of social prescribing’s important role for wellbeing, an evaluation of social prescribing interventions concluded that “social prescribing is being widely advocated and implemented but current evidence fails to provide sufficient detail to judge either success or value for money”. This missing detail consists of unwritten lived experiences and knowledge that creative professionals and participants have. Furthermore, although social prescribing has been cited for its efficacy in reducing psychosocial problems stemming from social isolation in an estimated 20% of GP referrals, there is a lack of systematised evidence for its impact. There are also concerns that uptake is too often from people who are already engaging well with services and are culturally active. To help redress this balance, an innovation and research partnership between Arts Council of Wales, Nesta and Cardiff University called Health, Arts, Research & People (HARP) is testing new ideas and approaches in arts and health. The research team, based within Cardiff University’s public services innovation lab for Wales (Y Lab), recently carried out a series of in-depth interviews on the pr

Within the updated Programme for Government is a pledge to: “Introduce an all-Wales framework to roll out social prescribing to tackle isolation”. Social prescribing is a key component of universal personalised care where patients are in control of their care package. A recent Senedd Research Service briefing noted, social prescribing aligns with the Wellbeing of Future Generations (Wales) Act 2015 and the Social Services and Wellbeing (Wales) Act 2014, both of which are founded upon models that recognise the impact of social aspects on health and wellbeing. Also, Welsh Government’s plan for an Anti-Racist Wales highlights tackling health inequalities faced by the Black Asian and Minority Ethnic (BAME) community. Furthermore, ‘A Healthier Wales: plan for health and social care’ sets out a long term future vision of a ‘whole system approach to health and social care’, which is focussed on health and wellbeing, and on preventing illness. The COVID-19 pandemic occurred against a backdrop of social and economic inequalities in existing non-communicable diseases as well as inequalities in the social determinants of health. Inequalities in COVID-19 infection and mortality rates arose as a result of the cumulative effect of the COVID-19 pandemic, inequalities in chronic diseases and the social determinants of health. Therefore, when engaging under-represented groups that were disproportionately affected by the pandemic such as ethnic minorities and disabled people, care and attention needs to be paid to acknowledge the trauma of that experience in order to build relationships and overcome distrust. Questions have been raised on the applicability of arts and health interventions to different demographics, particularly on the aesthetics of the ‘art’ and the audiences that it appeals to. Diversity and inclusion are concepts that are currently widely discussed in the arts and often used interchangeably. Yet they mean very two different things: ‘diversity is being invited to th

An estimated 25,000 people of Black, Asian and Minority Ethnic (BME) origins live with dementia in the UK – a number which is expected to increase sevenfold by 2051. People from many minoritised communities experience dementia in a markedly different way to their white British counterparts. The fight for a myriad of effective information pathways, quick diagnosis, and person-centred care systems that address the health as well as psychosocial support requirements of those with dementia has long been a research, practice and policy priority. We need to build our understanding of how best to improve the lives of people living with dementia and their families and carers. Understanding the ways BME people living with dementia and their carers seek information, and how they experience the assessment process, and live with dementia is a critical step. In the coming decades the UK’s older demographic will increasingly become more diverse and thus the need for dementia services to improve how people access their screening and assessment services, to enhance their models of early intervention and to develop meaningful messaging and information platforms will become that more pressing. Moreover, the pandemic has raised the spectre of health inequalities and the disproportionate impact of dementia on population groups – not least those from Black and Minority Ethnic backgrounds where the existing evidence base is patchy and nascent. In order to (i) capture the accelerated interconnections across sectors, (ii) draw on the impact of the overhaul of existing systems and process, that cross many boundaries, and (iii) move forward, rooted in the learning and innovation that is taking place in ways that address social and health care issues exacerbated by the pandemic crisis, such work is needed. Given the Welsh Government commitment to deliver a new 10-year dementia action plan in the coming two years, not to gather necessary evidence may lead to the further cementing of health and

This report presents a review of the evidence associated with setting and monitoring safe nurse staffing levels. It also includes analysis of findings related to developing a better understanding of the availability and accessibility of nurse staffing data in medical and surgical wards in Wales. The review of evidence on safe nurse staffing levels includes, for example, nurse-to-patient ratios and skill mix, the role played by nurse staffing levels in influencing patient safety, unintended consequences of mandatory nurse staffing levels and the use of staffing level tools. Availability and accessibility of relevant data focuses on the Electronic Staff Record (ESR), public availability of Welsh NHS staff data, data quality in the ESR database system and possible other sources of data. In addition, a data acquisition exercise with Local Health Boards is outlined, setting out methods, data quality, findings from an initial analysis of the data returned and lessons for future practice.

Objectives Death is normally associated with older age and dying young goes against the natural order. Ensuring an appropriately managed transition from curative internet to a palliative approach is a key aspect of Adolescent & Young Adult (AYA) cancer care. However, this aspect of of care has not been well researched, especially its impact of professionals. The objective of the study is to identify the emotional demands of transition work and its impact on a sample of UK cancer professionals. Findings Data collection with 25 AYA cancer professionals has been undertaken. A diverse sample of professionals participated in in-depth telephone interviews about how they assist, and experience, transition care. After being transcribed the interviews were analysed to identify common experiences, as well as divergent and individual accounts of practices, difficulties and coping strategies. An Australian phase of this study is currently ongoing out of Sydney university and combined data will be presented subsequently. Key conclusions The UK data will be presented to describe how professionals experience this phase, how communication within and between teams serves to assist in the transition process, what particular needs are faced when dying is more likely in young patients and how professionals cope with the emotional demands of this work. Implications for practice, education and research will be considered.

Objectives Death is normally associated with older age and dying young goes against the natural order. Ensuring an appropriately managed transition from curative internet to a palliative approach is a key aspect of Adolescent & Young Adult (AYA) cancer care. However, this aspect of of care has not been well researched, especially its impact of professionals. The objective of the study is to identify the emotional demands of transition work and its impact on a sample of UK cancer professionals. Findings Data collection with 25 AYA cancer professionals has been undertaken. A diverse sample of professionals participated in in-depth telephone interviews about how they assist, and experience, transition care. After being transcribed the interviews were analysed to identify common experiences, as well as divergent and individual accounts of practices, difficulties and coping strategies. An Australian phase of this study is currently ongoing out of Sydney university and combined data will be presented subsequently. Key conclusions The UK data will be presented to describe how professionals experience this phase, how communication within and between teams serves to assist in the transition process, what particular needs are faced when dying is more likely in young patients and how professionals cope with the emotional demands of this work. Implications for practice, education and research will be considered.