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12 results on '"Wiggins, Nadine"'

1. Chronic Kidney Disease in Tasmania: Protocol for a Data Linkage Study

Author

Saunder, Timothy, Kitsos, Alex, Radford, Jan, Jose, Kim, McKercher, Charlotte, Raj, Rajesh, Wiggins, Nadine, Stokes, Brian, and Jose, Matthew D

Subjects
Medicine, Computer applications to medicine. Medical informatics, R858-859.7
Abstract

BackgroundChronic kidney disease (CKD) is a significant and growing health burden globally. Tasmania has the highest state prevalence for non-Indigenous Australians and it has consistently had the lowest incidence and prevalence of dialysis in Australia. ObjectiveTo examine the gap between the high community prevalence of CKD in Tasmania and the low use of dialysis. MethodsThis is a retrospective cohort study using linked data from 5 health and 2 pathology data sets from the island state of Tasmania, Australia. The study population consists of any person (all ages including children) who had a blood measurement of creatinine with the included pathology providers between January 1, 2004, and December 31, 2017. This study population (N=460,737) includes within it a CKD cohort, which was detected via pathology or documentation of kidney replacement therapy (KRT; dialysis or kidney transplant). Kidney function (estimated glomerular filtration rate [eGFR]) was calculated using the Chronic Kidney Disease Epidemiology Collaboration (CKD-EPI) formula. Individuals with 2 measures of eGFR

Published
2020
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12. Development and implementation of a national online application system for cross-jurisdictional linked data

Author

Natalie, Wray, Kate, Miller, Katie, Irvine, Elizabeth, Moore, Alice, Crisp, Kathleen, Bapaume, Catherine, Taylor, Rob, Smetak, Nadine, Wiggins, Mikhalina, Dombrovskaya, Felicity, Flack, Wray, Natalie, Miller, Kate, Irvine, Katie, Moore, Elizabeth, Crisp, Alice, Bapaume, Kathleen, Taylor, Catherine, Smetak, Rob, Wiggins, Nadine, Dombrovskaya, Mikhalina, and Flack, Felicity

Subjects
Information Systems and Management, Data Collection, Australia, cross-jurisdictional, Information Storage and Retrieval, ComputingMilieux_LEGALASPECTSOFCOMPUTING, Health Informatics, linked data, Government, Humans, approval, application, Semantic Web, Information Systems, Demography
Abstract

The Population Health Research Network (PHRN) is an Australian national data linkage infrastructure that links a wide range of health and human services data in privacy-preserving ways. The data linkage infrastructure enables researchers to apply for access to routinely collected, linked, administrative data from the six states and two territories which make up the Commonwealth of Australia, as well as data collected by the Australian Government. The PHRN is a distributed network where data is collected and managed at the respective jurisdictional and/or cross-jurisdictional levels. As a result, access to linked data from multiple jurisdictions requires complex approval processes. This paper describes Australia's approach to enabling access to linked data from multiple jurisdictions. It covers the identification of, and agreement to, a minimum set of data items to be included in a unified national application form, the development and implementation of a national online application system and the harmonisation of business processes for cross-jurisdictional research projects. Utilisation of the online application system and the ongoing challenges of data linkage across jurisdictions are discussed. Changes to the data custodian and ethics committee approval criteria were out of scope for this project.

Published
2022

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