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3. Patients with a Ruptured Abdominal Aortic Aneurysm Are Better Informed in Hospitals with an “EVAR-preferred” Strategy: An Instrumental Variable Analysis of the Dutch Surgical Aneurysm Audit

Author

Van den Akker, P.J., Akkersdijk, G.J., Akkersdijk, G.P., Akkersdijk, W.L., van Andringa de Kempenaer, M.G., Arts, C.H., Avontuur, J.A., Bakker, O.J., Balm, R., Barendregt, W.B., Bekken, J.A., Bender, M.H., Bendermacher, B.L., van den Berg, M., Berger, P., Beuk, R.J., Blankensteijn, J.D., Bleker, R.J., Blok, J.J., Bode, A.S., Bodegom, M.E., van der Bogt, K.E., Boll, A.P., Booster, M.H., Borger van der Burg, B.L., de Borst, G.J., Bos- van Rossum, W.T., Bosma, J., Botman, J.M., Bouwman, L.H., Brehm, V., de Bruijn, M.T., de Bruin, J.L., Brummel, P., van Brussel, J.P., Buijk, S.E., Buijs, M.A., Buimer, M.G., Burger, D.H., Buscher, H.C., Cancrinus, E., Castenmiller, P.H., Cazander, G., Coester, A.M., Cuypers, P.H., Daemen, J.H., Dawson, I., Dierikx, J.E., Dijkstra, M.L., Diks, J., Dinkelman, M.K., Dirven, M., Dolmans, D.E., van Doorn, R.C., van Dortmont, L.M., Drouven, J.W., van der Eb, M.M., Eefting, D., van Eijck, G.J., Elshof, J.W., Elsman, B.H., van der Elst, A., van Engeland, M.I., van Eps, R.G., Faber, M.J., de Fijter, W.M., Fioole, B., Fokkema, T.M., Frans, F.A., Fritschy, W.M., Fung Kon Jin, P.H., Geelkerken, R.H., van Gent, W.B., Glade, G.J., Govaert, B., Groenendijk, R.P., de Groot, H.G., van den Haak, R.F., de Haan, E.F., Hajer, G.F., Hamming, J.F., van Hattum, E.S., Hazenberg, C.E., Hedeman Joosten, P.P., Helleman, J.N., van der Hem, L.G., Hendriks, J.M., van Herwaarden, J.A., Heyligers, J.M., Hinnen, J.W., Hissink, R.J., Ho, G.H., den Hoed, P.T., Hoedt, M.T., van Hoek, F., Hoencamp, R., Hoffmann, W.H., Hogendoorn, W., Hoksbergen, A.W., Hollander, E.J., Hommes, M., Hopmans, C.J., Huisman, L.C., Hulsebos, R.G., Huntjens, K.M., Idu, M.M., Jacobs, M.J., van der Jagt, M.F., Jansbeken, J.R., Janssen, R.J., Jiang, H.H., de Jong, S.C., Jongbloed-Winkel, T.A., Jongkind, V., Kapma, M.R., Keller, B.P., Khodadade Jahrome, A., Kievit, J.K., Klemm, P.L., Klinkert, P., Koedam, N.A., Koelemaij, M.J., Kolkert, J.L., Koning, G.G., Koning, O.H., Konings, R., Krasznai, A.G., Krol, R.M., Kropman, R.H., Kruse, R.R., van der Laan, L., van der Laan, M.J., van Laanen, J.H., van Lammeren, G.W., Lamprou, D.A., Lardenoye, J.H., Lauret, G.J., Leenders, B.J., Legemate, D.A., Leijdekkers, V.J., Lemson, M.S., Lensvelt, M.M., Lijkwan, M.A., Lind, R.C., van der Linden, F.T., Liqui Lung, P.F., Loos, M.J., Loubert, M.C., van de Luijtgaarden, K.M., Mahmoud, D.E., Manshanden, C.G., Mattens, E.C., Meerwaldt, R., Mees, B.M., von Meijenfeldt, G.C., Menting, T.P., Metz, R., Minnee, R.C., de Mol van Otterloo, J.C., Molegraaf, M.J., Montauban van Swijndregt, Y.C., Morak, M.J., van de Mortel, R.H., Mulder, W., Nagesser, S.K., Naves, C.C., Nederhoed, J.H., Nevenzel-Putters, A.M., de Nie, A.J., Nieuwenhuis, D.H., Nieuwenhuizen, J., van Nieuwenhuizen, R.C., Nio, D., Noyez, V.J., Oomen, A.P., Oranen, B.I., Oskam, J., Palamba, H.W., Peppelenbosch, A.G., van Petersen, A.S., Petri, B.J., Pierie, M.E., Ploeg, A.J., Pol, R.A., Ponfoort, E.D., Post, I.C., Poyck, P.P., Prent, A., ten Raa, S., Raymakers, J.T., Reichart, M., Reichmann, B.L., Reijnen, M.M., de Ridder, J.A., Rijbroek, A., van Rijn, M.J., de Roo, R.A., Rouwet, E.V., Saleem, B.R., Salemans, P.B., van Sambeek, M.R., Samyn, M.G., van ’t Sant, H.P., van Schaik, J., van Schaik, P.M., Scharn, D.M., Scheltinga, M.R., Schepers, A., Schlejen, P.M., Schlosser, F.J., Schol, F.P., Scholtes, V.P., Schouten, O., Schreve, M.A., Schurink, G.W., Sikkink, C.J., te Slaa, A., Smeets, H.J., Smeets, L., Smeets, R.R., de Smet, A.A., Smit, P.C., Smits, T.M., Snoeijs, M.G., Sondakh, A.O., Speijers, M.J., van der Steenhoven, T.J., van Sterkenburg, S.M., Stigter, D.A., Stokmans, R.A., Strating, R.P., Stultiëns, G.N., Sybrandy, J.E., Teijink, J.A., Telgenkamp, B.J., Teraa, M., Testroote, M.J., Tha-In, T., The, R.M., Thijsse, W.J., Thomassen, I., Tielliu, I.F., van Tongeren, R.B., Toorop, R.J., Tournoij, E., Truijers, M., Türkcan, K., Tutein Nolthenius, R.P., Ünlü, Ç., Vaes, R.H., Vafi, A.A., Vahl, A.C., Veen, E.J., Veger, H.T., Veldman, M.G., Velthuis, S., Verhagen, H.J., Verhoeven, B.A., Vermeulen, C.F., Vermeulen, E.G., Vierhout, B.P., van der Vijver-Coppen, R.J., Visser, M.J., van der Vliet, J.A., Vlijmen - van Keulen, C.J., Voorhoeve, R., van der Vorst, J.R., Vos, A.W., de Vos, B., Vos, C.G., Vos, G.A., Voute, M.T., Vriens, B.H., Vriens, P.W., de Vries, A.C., de Vries, D.K., de Vries, J.P., de Vries, M., van der Waal, C., Waasdorp, E.J., Wallis de Vries, B.M., van Walraven, L.A., van Wanroij, J.L., Warlé, M.C., van de Water, W., van Weel, V., van Well, A.M., Welten, G.M., Welten, R.J., Wever, J.J., Wiersema, A.M., Wikkeling, O.R., Willaert, W.I., Wille, J., Willems, M.C., Willigendael, E.M., Wilschut, E.D., Wisselink, W., Witte, M.E., Wittens, C.H., Wong, C.Y., Wouda, R., Yazar, O., Yeung, K.K., Zeebregts, C.J., van Zeeland, M.L., Karthaus, Eleonora G., Lijftogt, Niki, Vahl, Anco, van der Willik, Esmee M., Amodio, Sonia, van Zwet, Erik W., and Hamming, Jaap F.

Published
2020
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5. Toward Optimizing Risk Adjustment in the Dutch Surgical Aneurysm Audit

Author

Van den Akker, L.H., Van den Akker, P.J., Akkersdijk, G.J., Akkersdijk, G.P., Akkersdijk, W.L., van Andringa de Kempenaer, M.G., Arts, C.H., Avontuur, J.A., Baal, J.G., Bakker, O.J., Balm, R., Barendregt, W.B., Bender, M.H., Bendermacher, B.L., van den Berg, M., Berger, P., Beuk, R.J., Blankensteijn, J.D., Bleker, R.J., Bockel, J.H., Bodegom, M.E., Bogt, K.E., Boll, A.P., Booster, M.H., Borger van der Burg, B.L., de Borst, G.J., Bos-van Rossum, W.T., Bosma, J., Botman, J.M., Bouwman, L.H., Breek, J.C., Brehm, V., Brinckman, M.J., van den Broek, T.H., Brom, H.L., de Bruijn, M.T., de Bruin, J.L., Brummel, P., van Brussel, J.P., Buijk, S.E., Buimer, M.G., Burger, D.H., Buscher, H.C., den Butter, G., Cancrinus, E., Castenmiller, P.H., Cazander, G., Coveliers, H.M., Cuypers, P.H., Daemen, J.H., Dawson, I., Derom, A.F., Dijkema, A.R., Diks, J., Dinkelman, M.K., Dirven, M., Dolmans, D.E., van Doorn, R.C., van Dortmont, L.M., van der Eb, M.M., Eefting, D., van Eijck, G.J., Elshof, J.W., Elsman, B.H., van der Elst, A., van Engeland, M.I., van Eps, R.G., Faber, M.J., de Fijter, W.M., Fioole, B., Fritschy, W.M., Geelkerken, R.H., van Gent, W.B., Glade, G.J., Govaert, B., Groenendijk, R.P., de Groot, H.G., van den Haak, R.F., de Haan, E.F., Hajer, G.F., Hamming, J.F., van Hattum, E.S., Hazenberg, C.E., Hedeman Joosten, P.P., Helleman, J.N., van der Hem, L.G., Hendriks, J.M., van Herwaarden, J.A., Heyligers, J.M., Hinnen, J.W., Hissink, R.J., GH, Ho, den Hoed, P.T., Hoedt, M.T., van Hoek, F., Hoencamp, R., Hoffmann, W.H., Hoksbergen, A.W., Hollander, E.J., Huisman, L.C., Hulsebos, R.G., Huntjens, K.M., Idu, M.M., Jacobs, M.J., van der Jagt, M.F., Jansbeken, J.R., Janssen, R.J., Jiang, H.H., de Jong, S.C., Jongkind, V., Kapma, M.R., Keller, B.P., Khodadade Jahrome, A., Kievit, J.K., Klemm, P.L., Klinkert, P., Knippenberg, B., Koedam, N.A., Koelemaij, M.J., Kolkert, J.L., Koning, G.G., Koning, O.H., Krasznai, A.G., Krol, R.M., Kropman, R.H., Kruse, R.R., van der Laan, L., van der Laan, M.J., van Laanen, J.H., Lardenoye, J.H., Lawson, J.A., Legemate, D.A., Leijdekkers, V.J., Lemson, M.S., Lensvelt, M.M., Lijkwan, M.A., Lind, R.C., van der Linden, F.T., Liqui Lung, P.F., Loos, M.J., Loubert, M.C., Mahmoud, D.E., Manshanden, C.G., Mattens, E.C., Meerwaldt, R., Mees, B.M., Metz, R., Minnee, R.C., de Mol van Otterloo, J.C., Moll, F.L., Montauban van Swijndregt, Y.C., Morak, M.J., van de Mortel, R.H., Mulder, W., Nagesser, S.K., Naves, C.C., Nederhoed, J.H., Nevenzel-Putters, A.M., de Nie, A.J., Nieuwenhuis, D.H., Nieuwenhuizen, J., van Nieuwenhuizen, R.C., Nio, D., Oomen, A.P., Oranen, B.I., Oskam, J., Palamba, H.W., Peppelenbosch, A.G., van Petersen, A.S., Peterson, T.F., Petri, B.J., Pierie, M.E., Ploeg, A.J., Pol, R.A., Ponfoort, E.D., Poyck, P.P., Prent, A., ten Raa, S., Raymakers, J.T., Reichart, M., Reichmann, B.L., Reijnen, M.M., Rijbroek, A., van Rijn, M.J., de Roo, R.A., Rouwet, E.V., Rupert, C.G., Saleem, B.R., van Sambeek, M.R., Samyn, M.G., van 't Sant, H.P., van Schaik, J., van Schaik, P.M., Scharn, D.M., Scheltinga, M.R., Schepers, A., Schlejen, P.M., Schlosser, F.J., Schol, F.P., Schouten, O., Schreinemacher, M.H., Schreve, M.A., Schurink, G.W., Sikkink, C.J., Siroen, M.P., te Slaa, A., Smeets, H.J., Smeets, L., de Smet, A.A., de Smit, P., Smit, P.C., Smits, T.M., Snoeijs, M.G., Sondakh, A.O., van der Steenhoven, T.J., van Sterkenburg, S.M., Stigter, D.A., Stigter, H., Strating, R.P., Stultiëns, G.N., Sybrandy, J.E., Teijink, J.A., Telgenkamp, B.J., Testroote, M.J., The, R.M., Thijsse, W.J., Tielliu, I.F., van Tongeren, R.B., Toorop, R.J., Tordoir, J.H., Tournoij, E., Truijers, M., Türkcan, K., Tutein Nolthenius, R.P., Ünlü, Ç., Vafi, A.A., Vahl, A.C., Veen, E.J., Veger, H.T., Veldman, M.G., Verhagen, H.J., Verhoeven, B.A., Vermeulen, C.F., Vermeulen, E.G., Vierhout, B.P., Visser, M.J., van der Vliet, J.A., Vlijmen - van Keulen, C.J., Voesten, H.G., Voorhoeve, R., Vos, A.W., de Vos, B., Vos, G.A., Vriens, B.H., PW, Vriens, de Vries, A.C., de Vries, J.P., de Vries, M., van der Waal, C., Waasdorp, E.J., Wallis de Vries, B.M., van Walraven, L.A., van Wanroij, J.L., Warlé, M.C., van Weel, V., van Well, A.M., Welten, G.M., Welten, R.J., Wever, J.J., Wiersema, A.M., Wikkeling, O.R., Willaert, W.I., Wille, J., Willems, M.C., Willigendael, E.M., Wisselink, W., Witte, M.E., Wittens, C.H., Wolf-de Jonge, I.C., Yazar, O., Zeebregts, C.J., van Zeeland, M.L., Lijftogt, Niki, Vahl, Anco, van der Willik, Esmee M., Leijdekkers, Vanessa J., Wouters, Michel W.J.M., and Hamming, Jaap F.

Published
2019
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6. Failure to Rescue – a Closer Look at Mortality Rates Has No Added Value for Hospital Comparisons but Is Useful for Team Quality Assessment in Abdominal Aortic Aneurysm Surgery in The Netherlands

Author

Van den Akker, L.H., Van den Akker, P.J., Akkersdijk, G.J., Akkersdijk, G.P., Akkersdijk, W.L., van Andringa de Kempenaer, M.G., Arts, C.H., Avontuur, J.A., Baal, J.G., Bakker, O.J., Balm, R., Barendregt, W.B., Bender, M.H., Bendermacher, B.L., van den Berg, M., Berger, P., Beuk, R.J., Blankensteijn, J.D., Bleker, R.J., Bockel, J.H., Bodegom, M.E., Bogt, K.E., Boll, A.P., Booster, M.H., Borger van der Burg, B.L., de Borst, G.J., Bos-van Rossum, W.T., Bosma, J., Botman, J.M., Bouwman, L.H., Breek, J.C., Brehm, V., Brinckman, M.J., van den Broek, T.H., Brom, H.L., de Bruijn, M.T., de Bruin, J.L., Brummel, P., van Brussel, J.P., Buijk, S.E., Buimer, M.G., Burger, D.H., Buscher, H.C., den Butter, G., Cancrinus, E., Castenmiller, P.H., Cazander, G., Coveliers, H.M., Cuypers, P.H., Daemen, J.H., Dawson, I., Derom, A.F., Dijkema, A.R., Diks, J., Dinkelman, M.K., Dirven, M., Dolmans, D.E., van Doorn, R.C., van Dortmont, L.M., van der Eb, M.M., Eefting, D., van Eijck, G.J., Elshof, J.W., Elsman, B.H., van der Elst, A., van Engeland, M.I., van Eps, R.G., Faber, M.J., de Fijter, W.M., Fioole, B., Fritschy, W.M., Geelkerken, R.H., van Gent, W.B., Glade, G.J., Govaert, B., Groenendijk, R.P., de Groot, H.G., van den Haak, R.F., de Haan, E.F., Hajer, G.F., Hamming, J.F., van Hattum, E.S., Hazenberg, C.E., Hedeman Joosten, P.P., Helleman, J.N., van der Hem, L.G., Hendriks, J.M., van Herwaarden, J.A., Heyligers, J.M., Hinnen, J.W., Hissink, R.J., Ho, G.H., den Hoed, P.T., Hoedt, M.T., van Hoek, F., Hoencamp, R., Hoffmann, W.H., Hoksbergen, A.W., Hollander, E.J., Huisman, L.C., Hulsebos, R.G., Huntjens, K.M., Idu, M.M., Jacobs, M.J., van der Jagt, M.F., Jansbeken, J.R., Janssen, R.J., Jiang, H.H., de Jong, S.C., Jongkind, V., Kapma, M.R., Keller, B.P., Khodadade Jahrome, A., Kievit, J.K., Klemm, P.L., Klinkert, P., Knippenberg, B., Koedam, N.A., Koelemaij, M.J., Kolkert, J.L., Koning, G.G., Koning, O.H., Krasznai, A.G., Krol, R.M., Kropman, R.H., Kruse, R.R., van der Laan, L., van der Laan, M.J., van Laanen, J.H., Lardenoye, J.H., Lawson, J.A., Legemate, D.A., Leijdekkers, V.J., Lemson, M.S., Lensvelt, M.M., Lijkwan, M.A., Lind, R.C., van der Linden, F.T., Liqui Lung, P.F., Loos, M.J., Loubert, M.C., Mahmoud, D.E., Manshanden, C.G., Mattens, E.C., Meerwaldt, R., Mees, B.M., Metz, R., Minnee, R.C., de Mol van Otterloo, J.C., Moll, F.L., Montauban van Swijndregt, Y.C., Morak, M.J., van de Mortel, R.H., Mulder, W., Nagesser, S.K., Naves, C.C., Nederhoed, J.H., Nevenzel-Putters, A.M., de Nie, A.J., Nieuwenhuis, D.H., Nieuwenhuizen, J., van Nieuwenhuizen, R.C., Nio, D., Oomen, A.P., Oranen, B.I., Oskam, J., Palamba, H.W., Peppelenbosch, A.G., van Petersen, A.S., Peterson, T.F., Petri, B.J., Pierie, M.E., Ploeg, A.J., Pol, R.A., Ponfoort, E.D., Poyck, P.P., Prent, A., ten Raa, S., Raymakers, J.T., Reichart, M., Reichmann, B.L., Reijnen, M.M., Rijbroek, A., van Rijn, M.J., de Roo, R.A., Rouwet, E.V., Rupert, C.G., Saleem, B.R., van Sambeek, M.R., Samyn, M.G., van ’t Sant, H.P., van Schaik, J., van Schaik, P.M., Scharn, D.M., Scheltinga, M.R., Schepers, A., Schlejen, P.M., Schlosser, F.J., Schol, F.P., Schouten, O., Schreinemacher, M.H., Schreve, M.A., Schurink, G.W., Sikkink, C.J., Siroen, M.P., te Slaa, A., Smeets, H.J., Smeets, L., de Smet, A.A., de Smit, P., Smit, P.C., Smits, T.M., Snoeijs, M.G., Sondakh, A.O., van der Steenhoven, T.J., van Sterkenburg, S.M., Stigter, D.A., Stigter, H., Strating, R.P., Stultiëns, G.N., Sybrandy, J.E., Teijink, J.A., Telgenkamp, B.J., Testroote, M.J., The, R.M., Thijsse, W.J., Tielliu, I.F., van Tongeren, R.B., Toorop, R.J., Tordoir, J.H., Tournoij, E., Truijers, M., Türkcan, K., Tutein Nolthenius, R.P., Ünlü, Ç., Vafi, A.A., Vahl, A.C., Veen, E.J., Veger, H.T., Veldman, M.G., Verhagen, H.J., Verhoeven, B.A., Vermeulen, C.F., Vermeulen, E.G., Vierhout, B.P., Visser, M.J., van der Vliet, J.A., Vlijmen-van Keulen, C.J., Voesten, H.G., Voorhoeve, R., Vos, A.W., de Vos, B., Vos, G.A., Vriens, B.H., Vriens, P.W., de Vries, A.C., de Vries, J.P., de Vries, M., van der Waal, C., Waasdorp, E.J., Wallis de Vries, B.M., van Walraven, L.A., van Wanroij, J.L., Warlé, M.C., van Weel, V., van Well, A.M., Welten, G.M., Welten, R.J., Wever, J.J., Wiersema, A.M., Wikkeling, O.R., Willaert, W.I., Wille, J., Willems, M.C., Willigendael, E.M., Wisselink, W., Witte, M.E., Wittens, C.H., Wolf-de Jonge, I.C., Yazar, O., Zeebregts, C.J., van Zeeland, M.L., Lijftogt, Niki, Karthaus, Eleonora G., Vahl, Anco, van Zwet, Erik W., van der Willik, Esmee M., Tollenaar, Robertus A.E.M., Hamming, Jaap F., and Wouters, Michel W.J.M.

Published
2018
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7. Effect of residual kidney function and dialysis adequacy on chronic pruritus in dialysis patients

Author

Lengton, Robin, van der Willik, Esmee M, de Rooij, Esther N M, Meuleman, Yvette, Cessie, Saskia Le, Michels, Wieneke M, Hemmelder, Marc, Dekker, Friedo W, Hoogeveen, Ellen K, Interne Geneeskunde, MUMC+: MA Nefrologie (9), and RS: Carim - V02 Hypertension and target organ damage

Subjects
Transplantation, Nephrology
Abstract

Background Chronic kidney disease–associated pruritus (CKD-aP) is common in dialysis patients, and is associated with lower quality of life and increased risk of death. We investigated the association between residual estimated glomerular filtration rate (eGFR), dialysis adequacy or serum phosphate level and CKD-aP in incident dialysis patients. Methods A total of 1256 incident hemodialysis (HD) and 670 peritoneal dialysis (PD) patients (>18 years) from the Netherlands Cooperative Study on the Adequacy of Dialysis (NECOSAD) study were included (1997–2007) and followed until death, transplantation or a maximum of 10 years. CKD-aP was measured using a single item of the Kidney Disease Quality of Life Instrument-36. The associations were studied by logistic and linear regression analyses, adjusted for potential baseline confounders. Results At baseline mean (standard deviation) age was 60 (16) years, 62% were men and median (interquartile range) residual eGFR was 3.4 (1.7; 5.3) mL/min/1.73 m2. The prevalence of CKD-aP (∼70%) was similar in HD and PD. It was observed that 12 months after starting dialysis (after multivariable adjustment) each 1 mL/min/1.73 m2 higher residual eGFR, one unit higher total weekly Kt/V, or 1 mmol/L lower serum phosphate level was associated with lower burden of CKD-aP in HD and PD patients of –0.05 (95% CI –0.09; –0.02) and –0.09 (95% CI –0.13; –0.05), –0.15 (95% CI –0.26; –0.05) and –0.35 (95% CI –0.54; –0.16), and of –0.34 (95%CI: –0.51; –0.17) and –0.45 (95%CI: –0.71; –0.19), respectively. We found no association between dialysis Kt/V and CKD-aP. Conclusions Higher residual eGFR and lower serum phosphate level, but not the dialysis dose, were related with lower burden of CKD-aP in dialysis patients.

Published
2023

10. Validity and reliability of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using computerized adaptive testing in patients with advanced chronic kidney disease

Author

van der Willik, Esmee M, primary, van Breda, Fenna, additional, van Jaarsveld, Brigit C, additional, van de Putte, Marlon, additional, Jetten, Isabelle W, additional, Dekker, Friedo W, additional, Meuleman, Yvette, additional, van Ittersum, Frans J, additional, and Terwee, Caroline B, additional

Published
2022
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11. Validity and reliability of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using computerized adaptive testing in patients with advanced chronic kidney disease.

Author

Willik, Esmee M van der, Breda, Fenna van, Jaarsveld, Brigit C van, van de Putte, Marlon, Jetten, Isabelle W, Dekker, Friedo W, Meuleman, Yvette, Ittersum, Frans J van, and Terwee, Caroline B

Subjects
*ADAPTIVE testing, *CHRONIC kidney failure, *COMPUTER adaptive testing, *PEARSON correlation (Statistics), *SOCIAL anxiety, *INFORMATION storage & retrieval systems
Abstract

Background The Patient-Reported Outcomes Measurement Information System (PROMIS®) has been recommended for computerized adaptive testing (CAT) of health-related quality of life. This study compared the content, validity, and reliability of seven PROMIS CATs to the 12-item Short-Form Health Survey (SF-12) in patients with advanced chronic kidney disease. Methods Adult patients with chronic kidney disease and an estimated glomerular filtration rate under 30 mL/min/1.73 m2 who were not receiving dialysis treatment completed seven PROMIS CATs (assessing physical function, pain interference, fatigue, sleep disturbance, anxiety, depression, and the ability to participate in social roles and activities), the SF-12, and the PROMIS Pain Intensity single item and Dialysis Symptom Index at inclusion and 2 weeks. A content comparison was performed between PROMIS CATs and the SF-12. Construct validity of PROMIS CATs was assessed using Pearson's correlations. We assessed the test-retest reliability of all patient-reported outcome measures by calculating the intraclass correlation coefficient and minimal detectable change. Results In total, 207 patients participated in the study. A median of 45 items (10 minutes) were completed for PROMIS CATs. All PROMIS CATs showed evidence of sufficient construct validity. PROMIS CATs, most SF-12 domains and summary scores, and Dialysis Symptom Index showed sufficient test-retest reliability (intraclass correlation coefficient ≥ 0.70). PROMIS CATs had a lower minimal detectable change compared with the SF-12 (range, 5.7–7.4 compared with 11.3–21.7 across domains, respectively). Conclusion PROMIS CATs showed sufficient construct validity and test-retest reliability in patients with advanced chronic kidney disease. PROMIS CATs required more items but showed better reliability than the SF-12. Future research is needed to investigate the feasibility of PROMIS CATs for routine nephrology care. [ABSTRACT FROM AUTHOR]

Published
2023
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12. Itching in dialysis patients: impact on health-related quality of life and interactions with sleep problems and psychological symptoms—results from the RENINE/PROMs registry

Author

van der Willik, Esmee M, primary, Lengton, Robin, additional, Hemmelder, Marc H, additional, Hoogeveen, Ellen K, additional, Bart, Hans A J, additional, van Ittersum, Frans J, additional, ten Dam, Marc A G J, additional, Bos, Willem Jan W, additional, Dekker, Friedo W, additional, and Meuleman, Yvette, additional

Published
2022
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14. Additional file 1 of Person centred care provision and care planning in chronic kidney disease: which outcomes matter? A systematic review and thematic synthesis of qualitative studies

Author

de Jong, Ype, van der Willik, Esmee M., Milders, Jet, Meuleman, Yvette, Morton, Rachael L., Dekker, Friedo W., and van Diepen, Merel

Abstract

Additional file 1: Fig. S1 labelling strategy for study inclusion, showing the four consecutive steps of study inclusion. Table S1. Overview of the 20 studies with mixed populations. Table S2. Quality of reporting of the 46 included studies, per individual study, as assessed with the COREQ. If a topic is mentioned in the individual study, this is marked green; if not, it is marked red. Table S3. Overview of symptoms mentioned in the included 46 articles. Using a deductive approach, symptoms were grouped into categories. In some cases, a more general term is used to describe certain symptoms for brevity, e.g. ‘appetite’ was used to describe increased or decreased appetite; ‘skin’ was used for dry, weak or brittle skin, etc.

Published
2021
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15. Itching in dialysis patients: impact on health-related quality of life and interactions with sleep problems and psychological symptoms—results from the RENINE/PROMs registry.

Author

Willik, Esmee M van der, Lengton, Robin, Hemmelder, Marc H, Hoogeveen, Ellen K, Bart, Hans A J, Ittersum, Frans J van, Dam, Marc A G J ten, Bos, Willem Jan W, Dekker, Friedo W, and Meuleman, Yvette

Subjects
*ITCHING, *QUALITY of life, *HEMODIALYSIS patients, *PATIENT reported outcome measures, *SLEEP hygiene, *SLEEP
Abstract

Background Itching (pruritus) is common in dialysis patients, but little is known about its impact on health-related quality of life (HRQOL), sleep problems and psychological symptoms. This study investigates the impact of itching in dialysis patients by looking into the persistence of itching, the effect of itching on the course of HRQOL and the combined effect of itching with sleep problems and with psychological symptoms on HRQOL. Methods Data were obtained from the RENINE/PROMs registry and included 2978 dialysis patients who completed patient-reported outcome measures between 2018 and 2020. Itching, sleep problems and psychological symptoms were assessed with the Dialysis Symptom Index (DSI) and HRQOL with the 12-item Short Form Health Survey. Effects of itching on HRQOL and interactions with sleep problems and psychological symptoms were investigated cross-sectionally and longitudinally using linear regression and linear mixed models. Results Half of the patients experienced itching and in 70% of them, itching was persistent. Itching was associated with a lower physical and mental HRQOL {−3.35 [95% confidence interval (CI) −4.12 to −2.59) and −3.79 [95% CI −4.56 to −3.03]}. HRQOL remained stable during 2 years and trajectories did not differ between patients with or without itching. Sleep problems (70% versus 52%) and psychological symptoms (36% versus 19%) were more common in patients with itching. These symptoms had an additional negative effect on HRQOL but did not interact with itching. Conclusions The persistence of itching, its impact on HRQOL over time and the additional effect on HRQOL of sleep problems and psychological symptoms emphasize the need for recognition and effective treatment of itching to reduce symptom burden and improve HRQOL. [ABSTRACT FROM AUTHOR]

Published
2022
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18. Patients with a Ruptured Abdominal Aortic Aneurysm Are Better Informed in Hospitals with an “EVAR-preferred” Strategy: An Instrumental Variable Analysis of the Dutch Surgical Aneurysm Audit

Author

Karthaus, Eleonora G., primary, Lijftogt, Niki, additional, Vahl, Anco, additional, van der Willik, Esmee M., additional, Amodio, Sonia, additional, van Zwet, Erik W., additional, Hamming, Jaap F., additional, Van den Akker, P.J., additional, Akkersdijk, G.J., additional, Akkersdijk, G.P., additional, Akkersdijk, W.L., additional, van Andringa de Kempenaer, M.G., additional, Arts, C.H., additional, Avontuur, J.A., additional, Bakker, O.J., additional, Balm, R., additional, Barendregt, W.B., additional, Bekken, J.A., additional, Bender, M.H., additional, Bendermacher, B.L., additional, van den Berg, M., additional, Berger, P., additional, Beuk, R.J., additional, Blankensteijn, J.D., additional, Bleker, R.J., additional, Blok, J.J., additional, Bode, A.S., additional, Bodegom, M.E., additional, van der Bogt, K.E., additional, Boll, A.P., additional, Booster, M.H., additional, Borger van der Burg, B.L., additional, de Borst, G.J., additional, Bos- van Rossum, W.T., additional, Bosma, J., additional, Botman, J.M., additional, Bouwman, L.H., additional, Brehm, V., additional, de Bruijn, M.T., additional, de Bruin, J.L., additional, Brummel, P., additional, van Brussel, J.P., additional, Buijk, S.E., additional, Buijs, M.A., additional, Buimer, M.G., additional, Burger, D.H., additional, Buscher, H.C., additional, Cancrinus, E., additional, Castenmiller, P.H., additional, Cazander, G., additional, Coester, A.M., additional, Cuypers, P.H., additional, Daemen, J.H., additional, Dawson, I., additional, Dierikx, J.E., additional, Dijkstra, M.L., additional, Diks, J., additional, Dinkelman, M.K., additional, Dirven, M., additional, Dolmans, D.E., additional, van Doorn, R.C., additional, van Dortmont, L.M., additional, Drouven, J.W., additional, van der Eb, M.M., additional, Eefting, D., additional, van Eijck, G.J., additional, Elshof, J.W., additional, Elsman, B.H., additional, van der Elst, A., additional, van Engeland, M.I., additional, van Eps, R.G., additional, Faber, M.J., additional, de Fijter, W.M., additional, Fioole, B., additional, Fokkema, T.M., additional, Frans, F.A., additional, Fritschy, W.M., additional, Fung Kon Jin, P.H., additional, Geelkerken, R.H., additional, van Gent, W.B., additional, Glade, G.J., additional, Govaert, B., additional, Groenendijk, R.P., additional, de Groot, H.G., additional, van den Haak, R.F., additional, de Haan, E.F., additional, Hajer, G.F., additional, Hamming, J.F., additional, van Hattum, E.S., additional, Hazenberg, C.E., additional, Hedeman Joosten, P.P., additional, Helleman, J.N., additional, van der Hem, L.G., additional, Hendriks, J.M., additional, van Herwaarden, J.A., additional, Heyligers, J.M., additional, Hinnen, J.W., additional, Hissink, R.J., additional, Ho, G.H., additional, den Hoed, P.T., additional, Hoedt, M.T., additional, van Hoek, F., additional, Hoencamp, R., additional, Hoffmann, W.H., additional, Hogendoorn, W., additional, Hoksbergen, A.W., additional, Hollander, E.J., additional, Hommes, M., additional, Hopmans, C.J., additional, Huisman, L.C., additional, Hulsebos, R.G., additional, Huntjens, K.M., additional, Idu, M.M., additional, Jacobs, M.J., additional, van der Jagt, M.F., additional, Jansbeken, J.R., additional, Janssen, R.J., additional, Jiang, H.H., additional, de Jong, S.C., additional, Jongbloed-Winkel, T.A., additional, Jongkind, V., additional, Kapma, M.R., additional, Keller, B.P., additional, Khodadade Jahrome, A., additional, Kievit, J.K., additional, Klemm, P.L., additional, Klinkert, P., additional, Koedam, N.A., additional, Koelemaij, M.J., additional, Kolkert, J.L., additional, Koning, G.G., additional, Koning, O.H., additional, Konings, R., additional, Krasznai, A.G., additional, Krol, R.M., additional, Kropman, R.H., additional, Kruse, R.R., additional, van der Laan, L., additional, van der Laan, M.J., additional, van Laanen, J.H., additional, van Lammeren, G.W., additional, Lamprou, D.A., additional, Lardenoye, J.H., additional, Lauret, G.J., additional, Leenders, B.J., additional, Legemate, D.A., additional, Leijdekkers, V.J., additional, Lemson, M.S., additional, Lensvelt, M.M., additional, Lijkwan, M.A., additional, Lind, R.C., additional, van der Linden, F.T., additional, Liqui Lung, P.F., additional, Loos, M.J., additional, Loubert, M.C., additional, van de Luijtgaarden, K.M., additional, Mahmoud, D.E., additional, Manshanden, C.G., additional, Mattens, E.C., additional, Meerwaldt, R., additional, Mees, B.M., additional, von Meijenfeldt, G.C., additional, Menting, T.P., additional, Metz, R., additional, Minnee, R.C., additional, de Mol van Otterloo, J.C., additional, Molegraaf, M.J., additional, Montauban van Swijndregt, Y.C., additional, Morak, M.J., additional, van de Mortel, R.H., additional, Mulder, W., additional, Nagesser, S.K., additional, Naves, C.C., additional, Nederhoed, J.H., additional, Nevenzel-Putters, A.M., additional, de Nie, A.J., additional, Nieuwenhuis, D.H., additional, Nieuwenhuizen, J., additional, van Nieuwenhuizen, R.C., additional, Nio, D., additional, Noyez, V.J., additional, Oomen, A.P., additional, Oranen, B.I., additional, Oskam, J., additional, Palamba, H.W., additional, Peppelenbosch, A.G., additional, van Petersen, A.S., additional, Petri, B.J., additional, Pierie, M.E., additional, Ploeg, A.J., additional, Pol, R.A., additional, Ponfoort, E.D., additional, Post, I.C., additional, Poyck, P.P., additional, Prent, A., additional, ten Raa, S., additional, Raymakers, J.T., additional, Reichart, M., additional, Reichmann, B.L., additional, Reijnen, M.M., additional, de Ridder, J.A., additional, Rijbroek, A., additional, van Rijn, M.J., additional, de Roo, R.A., additional, Rouwet, E.V., additional, Saleem, B.R., additional, Salemans, P.B., additional, van Sambeek, M.R., additional, Samyn, M.G., additional, van ’t Sant, H.P., additional, van Schaik, J., additional, van Schaik, P.M., additional, Scharn, D.M., additional, Scheltinga, M.R., additional, Schepers, A., additional, Schlejen, P.M., additional, Schlosser, F.J., additional, Schol, F.P., additional, Scholtes, V.P., additional, Schouten, O., additional, Schreve, M.A., additional, Schurink, G.W., additional, Sikkink, C.J., additional, te Slaa, A., additional, Smeets, H.J., additional, Smeets, L., additional, Smeets, R.R., additional, de Smet, A.A., additional, Smit, P.C., additional, Smits, T.M., additional, Snoeijs, M.G., additional, Sondakh, A.O., additional, Speijers, M.J., additional, van der Steenhoven, T.J., additional, van Sterkenburg, S.M., additional, Stigter, D.A., additional, Stokmans, R.A., additional, Strating, R.P., additional, Stultiëns, G.N., additional, Sybrandy, J.E., additional, Teijink, J.A., additional, Telgenkamp, B.J., additional, Teraa, M., additional, Testroote, M.J., additional, Tha-In, T., additional, The, R.M., additional, Thijsse, W.J., additional, Thomassen, I., additional, Tielliu, I.F., additional, van Tongeren, R.B., additional, Toorop, R.J., additional, Tournoij, E., additional, Truijers, M., additional, Türkcan, K., additional, Tutein Nolthenius, R.P., additional, Ünlü, Ç., additional, Vaes, R.H., additional, Vafi, A.A., additional, Vahl, A.C., additional, Veen, E.J., additional, Veger, H.T., additional, Veldman, M.G., additional, Velthuis, S., additional, Verhagen, H.J., additional, Verhoeven, B.A., additional, Vermeulen, C.F., additional, Vermeulen, E.G., additional, Vierhout, B.P., additional, van der Vijver-Coppen, R.J., additional, Visser, M.J., additional, van der Vliet, J.A., additional, Vlijmen - van Keulen, C.J., additional, Voorhoeve, R., additional, van der Vorst, J.R., additional, Vos, A.W., additional, de Vos, B., additional, Vos, C.G., additional, Vos, G.A., additional, Voute, M.T., additional, Vriens, B.H., additional, Vriens, P.W., additional, de Vries, A.C., additional, de Vries, D.K., additional, de Vries, J.P., additional, de Vries, M., additional, van der Waal, C., additional, Waasdorp, E.J., additional, Wallis de Vries, B.M., additional, van Walraven, L.A., additional, van Wanroij, J.L., additional, Warlé, M.C., additional, van de Water, W., additional, van Weel, V., additional, van Well, A.M., additional, Welten, G.M., additional, Welten, R.J., additional, Wever, J.J., additional, Wiersema, A.M., additional, Wikkeling, O.R., additional, Willaert, W.I., additional, Wille, J., additional, Willems, M.C., additional, Willigendael, E.M., additional, Wilschut, E.D., additional, Wisselink, W., additional, Witte, M.E., additional, Wittens, C.H., additional, Wong, C.Y., additional, Wouda, R., additional, Yazar, O., additional, Yeung, K.K., additional, Zeebregts, C.J., additional, and van Zeeland, M.L., additional

Published
2020
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24. Toward Optimizing Risk Adjustment in the Dutch Surgical Aneurysm Audit

Author

Lijftogt, Niki, primary, Vahl, Anco, additional, van der Willik, Esmee M., additional, Leijdekkers, Vanessa J., additional, Wouters, Michel W.J.M., additional, Hamming, Jaap F., additional, Van den Akker, L.H., additional, Van den Akker, P.J., additional, Akkersdijk, G.J., additional, Akkersdijk, G.P., additional, Akkersdijk, W.L., additional, van Andringa de Kempenaer, M.G., additional, Arts, C.H., additional, Avontuur, J.A., additional, Baal, J.G., additional, Bakker, O.J., additional, Balm, R., additional, Barendregt, W.B., additional, Bender, M.H., additional, Bendermacher, B.L., additional, van den Berg, M., additional, Berger, P., additional, Beuk, R.J., additional, Blankensteijn, J.D., additional, Bleker, R.J., additional, Bockel, J.H., additional, Bodegom, M.E., additional, Bogt, K.E., additional, Boll, A.P., additional, Booster, M.H., additional, Borger van der Burg, B.L., additional, de Borst, G.J., additional, Bos-van Rossum, W.T., additional, Bosma, J., additional, Botman, J.M., additional, Bouwman, L.H., additional, Breek, J.C., additional, Brehm, V., additional, Brinckman, M.J., additional, van den Broek, T.H., additional, Brom, H.L., additional, de Bruijn, M.T., additional, de Bruin, J.L., additional, Brummel, P., additional, van Brussel, J.P., additional, Buijk, S.E., additional, Buimer, M.G., additional, Burger, D.H., additional, Buscher, H.C., additional, den Butter, G., additional, Cancrinus, E., additional, Castenmiller, P.H., additional, Cazander, G., additional, Coveliers, H.M., additional, Cuypers, P.H., additional, Daemen, J.H., additional, Dawson, I., additional, Derom, A.F., additional, Dijkema, A.R., additional, Diks, J., additional, Dinkelman, M.K., additional, Dirven, M., additional, Dolmans, D.E., additional, van Doorn, R.C., additional, van Dortmont, L.M., additional, van der Eb, M.M., additional, Eefting, D., additional, van Eijck, G.J., additional, Elshof, J.W., additional, Elsman, B.H., additional, van der Elst, A., additional, van Engeland, M.I., additional, van Eps, R.G., additional, Faber, M.J., additional, de Fijter, W.M., additional, Fioole, B., additional, Fritschy, W.M., additional, Geelkerken, R.H., additional, van Gent, W.B., additional, Glade, G.J., additional, Govaert, B., additional, Groenendijk, R.P., additional, de Groot, H.G., additional, van den Haak, R.F., additional, de Haan, E.F., additional, Hajer, G.F., additional, Hamming, J.F., additional, van Hattum, E.S., additional, Hazenberg, C.E., additional, Hedeman Joosten, P.P., additional, Helleman, J.N., additional, van der Hem, L.G., additional, Hendriks, J.M., additional, van Herwaarden, J.A., additional, Heyligers, J.M., additional, Hinnen, J.W., additional, Hissink, R.J., additional, GH, Ho, additional, den Hoed, P.T., additional, Hoedt, M.T., additional, van Hoek, F., additional, Hoencamp, R., additional, Hoffmann, W.H., additional, Hoksbergen, A.W., additional, Hollander, E.J., additional, Huisman, L.C., additional, Hulsebos, R.G., additional, Huntjens, K.M., additional, Idu, M.M., additional, Jacobs, M.J., additional, van der Jagt, M.F., additional, Jansbeken, J.R., additional, Janssen, R.J., additional, Jiang, H.H., additional, de Jong, S.C., additional, Jongkind, V., additional, Kapma, M.R., additional, Keller, B.P., additional, Khodadade Jahrome, A., additional, Kievit, J.K., additional, Klemm, P.L., additional, Klinkert, P., additional, Knippenberg, B., additional, Koedam, N.A., additional, Koelemaij, M.J., additional, Kolkert, J.L., additional, Koning, G.G., additional, Koning, O.H., additional, Krasznai, A.G., additional, Krol, R.M., additional, Kropman, R.H., additional, Kruse, R.R., additional, van der Laan, L., additional, van der Laan, M.J., additional, van Laanen, J.H., additional, Lardenoye, J.H., additional, Lawson, J.A., additional, Legemate, D.A., additional, Leijdekkers, V.J., additional, Lemson, M.S., additional, Lensvelt, M.M., additional, Lijkwan, M.A., additional, Lind, R.C., additional, van der Linden, F.T., additional, Liqui Lung, P.F., additional, Loos, M.J., additional, Loubert, M.C., additional, Mahmoud, D.E., additional, Manshanden, C.G., additional, Mattens, E.C., additional, Meerwaldt, R., additional, Mees, B.M., additional, Metz, R., additional, Minnee, R.C., additional, de Mol van Otterloo, J.C., additional, Moll, F.L., additional, Montauban van Swijndregt, Y.C., additional, Morak, M.J., additional, van de Mortel, R.H., additional, Mulder, W., additional, Nagesser, S.K., additional, Naves, C.C., additional, Nederhoed, J.H., additional, Nevenzel-Putters, A.M., additional, de Nie, A.J., additional, Nieuwenhuis, D.H., additional, Nieuwenhuizen, J., additional, van Nieuwenhuizen, R.C., additional, Nio, D., additional, Oomen, A.P., additional, Oranen, B.I., additional, Oskam, J., additional, Palamba, H.W., additional, Peppelenbosch, A.G., additional, van Petersen, A.S., additional, Peterson, T.F., additional, Petri, B.J., additional, Pierie, M.E., additional, Ploeg, A.J., additional, Pol, R.A., additional, Ponfoort, E.D., additional, Poyck, P.P., additional, Prent, A., additional, ten Raa, S., additional, Raymakers, J.T., additional, Reichart, M., additional, Reichmann, B.L., additional, Reijnen, M.M., additional, Rijbroek, A., additional, van Rijn, M.J., additional, de Roo, R.A., additional, Rouwet, E.V., additional, Rupert, C.G., additional, Saleem, B.R., additional, van Sambeek, M.R., additional, Samyn, M.G., additional, van 't Sant, H.P., additional, van Schaik, J., additional, van Schaik, P.M., additional, Scharn, D.M., additional, Scheltinga, M.R., additional, Schepers, A., additional, Schlejen, P.M., additional, Schlosser, F.J., additional, Schol, F.P., additional, Schouten, O., additional, Schreinemacher, M.H., additional, Schreve, M.A., additional, Schurink, G.W., additional, Sikkink, C.J., additional, Siroen, M.P., additional, te Slaa, A., additional, Smeets, H.J., additional, Smeets, L., additional, de Smet, A.A., additional, de Smit, P., additional, Smit, P.C., additional, Smits, T.M., additional, Snoeijs, M.G., additional, Sondakh, A.O., additional, van der Steenhoven, T.J., additional, van Sterkenburg, S.M., additional, Stigter, D.A., additional, Stigter, H., additional, Strating, R.P., additional, Stultiëns, G.N., additional, Sybrandy, J.E., additional, Teijink, J.A., additional, Telgenkamp, B.J., additional, Testroote, M.J., additional, The, R.M., additional, Thijsse, W.J., additional, Tielliu, I.F., additional, van Tongeren, R.B., additional, Toorop, R.J., additional, Tordoir, J.H., additional, Tournoij, E., additional, Truijers, M., additional, Türkcan, K., additional, Tutein Nolthenius, R.P., additional, Ünlü, Ç., additional, Vafi, A.A., additional, Vahl, A.C., additional, Veen, E.J., additional, Veger, H.T., additional, Veldman, M.G., additional, Verhagen, H.J., additional, Verhoeven, B.A., additional, Vermeulen, C.F., additional, Vermeulen, E.G., additional, Vierhout, B.P., additional, Visser, M.J., additional, van der Vliet, J.A., additional, Vlijmen - van Keulen, C.J., additional, Voesten, H.G., additional, Voorhoeve, R., additional, Vos, A.W., additional, de Vos, B., additional, Vos, G.A., additional, Vriens, B.H., additional, PW, Vriens, additional, de Vries, A.C., additional, de Vries, J.P., additional, de Vries, M., additional, van der Waal, C., additional, Waasdorp, E.J., additional, Wallis de Vries, B.M., additional, van Walraven, L.A., additional, van Wanroij, J.L., additional, Warlé, M.C., additional, van Weel, V., additional, van Well, A.M., additional, Welten, G.M., additional, Welten, R.J., additional, Wever, J.J., additional, Wiersema, A.M., additional, Wikkeling, O.R., additional, Willaert, W.I., additional, Wille, J., additional, Willems, M.C., additional, Willigendael, E.M., additional, Wisselink, W., additional, Witte, M.E., additional, Wittens, C.H., additional, Wolf-de Jonge, I.C., additional, Yazar, O., additional, Zeebregts, C.J., additional, and van Zeeland, M.L., additional

Published
2019
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25. Routinely measuring symptom burden and health-related quality of life in dialysis patients: first results from the Dutch registry of patient-reported outcome measures.

Author

Willik, Esmee M van der, Hemmelder, Marc H, Bart, Hans A J, Ittersum, Frans J van, Akker, Judith M Hoogendijk-van den, Bos, Willem Jan W, Dekker, Friedo W, and Meuleman, Yvette

Subjects
*PATIENT reported outcome measures, *QUALITY of life, *HEMODIALYSIS patients, *SYMPTOMS, *PATIENTS' attitudes, *COMMUNICATIVE disorders
Abstract

Background The use of patient-reported outcome measures (PROMs) is becoming increasingly important in healthcare. However, incorporation of PROMs into routine nephrological care is challenging. This study describes the first experience with PROMs in Dutch routine dialysis care. Methods A pilot study was conducted in dialysis patients in 16 centres. Patients were invited to complete PROMs at baseline and 3 and 6 months. PROMs consisted of the 12-item short-form and Dialysis Symptom Index to assess health-related quality of life (HRQoL) and symptom burden. Response rates, HRQoL and symptom burden scores were analysed. Qualitative research methods were used to gain insight into patients' views on using PROMs in clinical practice. Results In total, 512 patients (36%) completed 908 PROMs (24%) across three time points. Response rates varied from 6 to 70% among centres. Mean scores for physical and mental HRQoL were 35.6 [standard deviation (SD) 10.2] and 47.7 (SD 10.6), respectively. Patients experienced on average 10.8 (SD 6.1) symptoms with a symptom burden score of 30.7 (SD 22.0). Only 1–3% of the variation in PROM scores can be explained by differences between centres. Patients perceived discussing their HRQoL and symptom scores as insightful and valuable. Individual feedback on results was considered crucial. Conclusions The first results show low average response rates with high variability among centres. Dialysis patients experienced a high symptom burden and poor HRQoL. Using PROMs at the individual patient level is suitable and may improve patient–professional communication and shared decision making. Further research is needed to investigate how the collection and the use of PROMs can be successfully integrated into routine care to improve healthcare quality and outcomes. [ABSTRACT FROM AUTHOR]

Published
2021
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26. Patient‐reported outcome measures (PROMs): making sense of individual PROM scores and changes in PROM scores over time.

Author

Willik, Esmee M., Terwee, Caroline B., Bos, Willem Jan W., Hemmelder, Marc H., Jager, Kitty J., Zoccali, Carmine, Dekker, Friedo W., and Meuleman, Yvette

Subjects
*PATIENT reported outcome measures, *BLOOD pressure
Abstract

Patient‐reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well‐known clinical measures such as blood pressure, health‐care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care. SUMMARY AT A GLANCE: The review provides insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores, ie minimal detectable change, minimal important change and response shift. [ABSTRACT FROM AUTHOR]

Published
2021
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27. Failure to Rescue – a Closer Look at Mortality Rates Has No Added Value for Hospital Comparisons but Is Useful for Team Quality Assessment in Abdominal Aortic Aneurysm Surgery in The Netherlands

Author

Lijftogt, Niki, primary, Karthaus, Eleonora G., additional, Vahl, Anco, additional, van Zwet, Erik W., additional, van der Willik, Esmee M., additional, Tollenaar, Robertus A.E.M., additional, Hamming, Jaap F., additional, Wouters, Michel W.J.M., additional, Van den Akker, L.H., additional, Van den Akker, P.J., additional, Akkersdijk, G.J., additional, Akkersdijk, G.P., additional, Akkersdijk, W.L., additional, van Andringa de Kempenaer, M.G., additional, Arts, C.H., additional, Avontuur, J.A., additional, Baal, J.G., additional, Bakker, O.J., additional, Balm, R., additional, Barendregt, W.B., additional, Bender, M.H., additional, Bendermacher, B.L., additional, van den Berg, M., additional, Berger, P., additional, Beuk, R.J., additional, Blankensteijn, J.D., additional, Bleker, R.J., additional, Bockel, J.H., additional, Bodegom, M.E., additional, Bogt, K.E., additional, Boll, A.P., additional, Booster, M.H., additional, Borger van der Burg, B.L., additional, de Borst, G.J., additional, Bos-van Rossum, W.T., additional, Bosma, J., additional, Botman, J.M., additional, Bouwman, L.H., additional, Breek, J.C., additional, Brehm, V., additional, Brinckman, M.J., additional, van den Broek, T.H., additional, Brom, H.L., additional, de Bruijn, M.T., additional, de Bruin, J.L., additional, Brummel, P., additional, van Brussel, J.P., additional, Buijk, S.E., additional, Buimer, M.G., additional, Burger, D.H., additional, Buscher, H.C., additional, den Butter, G., additional, Cancrinus, E., additional, Castenmiller, P.H., additional, Cazander, G., additional, Coveliers, H.M., additional, Cuypers, P.H., additional, Daemen, J.H., additional, Dawson, I., additional, Derom, A.F., additional, Dijkema, A.R., additional, Diks, J., additional, Dinkelman, M.K., additional, Dirven, M., additional, Dolmans, D.E., additional, van Doorn, R.C., additional, van Dortmont, L.M., additional, van der Eb, M.M., additional, Eefting, D., additional, van Eijck, G.J., additional, Elshof, J.W., additional, Elsman, B.H., additional, van der Elst, A., additional, van Engeland, M.I., additional, van Eps, R.G., additional, Faber, M.J., additional, de Fijter, W.M., additional, Fioole, B., additional, Fritschy, W.M., additional, Geelkerken, R.H., additional, van Gent, W.B., additional, Glade, G.J., additional, Govaert, B., additional, Groenendijk, R.P., additional, de Groot, H.G., additional, van den Haak, R.F., additional, de Haan, E.F., additional, Hajer, G.F., additional, Hamming, J.F., additional, van Hattum, E.S., additional, Hazenberg, C.E., additional, Hedeman Joosten, P.P., additional, Helleman, J.N., additional, van der Hem, L.G., additional, Hendriks, J.M., additional, van Herwaarden, J.A., additional, Heyligers, J.M., additional, Hinnen, J.W., additional, Hissink, R.J., additional, Ho, G.H., additional, den Hoed, P.T., additional, Hoedt, M.T., additional, van Hoek, F., additional, Hoencamp, R., additional, Hoffmann, W.H., additional, Hoksbergen, A.W., additional, Hollander, E.J., additional, Huisman, L.C., additional, Hulsebos, R.G., additional, Huntjens, K.M., additional, Idu, M.M., additional, Jacobs, M.J., additional, van der Jagt, M.F., additional, Jansbeken, J.R., additional, Janssen, R.J., additional, Jiang, H.H., additional, de Jong, S.C., additional, Jongkind, V., additional, Kapma, M.R., additional, Keller, B.P., additional, Khodadade Jahrome, A., additional, Kievit, J.K., additional, Klemm, P.L., additional, Klinkert, P., additional, Knippenberg, B., additional, Koedam, N.A., additional, Koelemaij, M.J., additional, Kolkert, J.L., additional, Koning, G.G., additional, Koning, O.H., additional, Krasznai, A.G., additional, Krol, R.M., additional, Kropman, R.H., additional, Kruse, R.R., additional, van der Laan, L., additional, van der Laan, M.J., additional, van Laanen, J.H., additional, Lardenoye, J.H., additional, Lawson, J.A., additional, Legemate, D.A., additional, Leijdekkers, V.J., additional, Lemson, M.S., additional, Lensvelt, M.M., additional, Lijkwan, M.A., additional, Lind, R.C., additional, van der Linden, F.T., additional, Liqui Lung, P.F., additional, Loos, M.J., additional, Loubert, M.C., additional, Mahmoud, D.E., additional, Manshanden, C.G., additional, Mattens, E.C., additional, Meerwaldt, R., additional, Mees, B.M., additional, Metz, R., additional, Minnee, R.C., additional, de Mol van Otterloo, J.C., additional, Moll, F.L., additional, Montauban van Swijndregt, Y.C., additional, Morak, M.J., additional, van de Mortel, R.H., additional, Mulder, W., additional, Nagesser, S.K., additional, Naves, C.C., additional, Nederhoed, J.H., additional, Nevenzel-Putters, A.M., additional, de Nie, A.J., additional, Nieuwenhuis, D.H., additional, Nieuwenhuizen, J., additional, van Nieuwenhuizen, R.C., additional, Nio, D., additional, Oomen, A.P., additional, Oranen, B.I., additional, Oskam, J., additional, Palamba, H.W., additional, Peppelenbosch, A.G., additional, van Petersen, A.S., additional, Peterson, T.F., additional, Petri, B.J., additional, Pierie, M.E., additional, Ploeg, A.J., additional, Pol, R.A., additional, Ponfoort, E.D., additional, Poyck, P.P., additional, Prent, A., additional, ten Raa, S., additional, Raymakers, J.T., additional, Reichart, M., additional, Reichmann, B.L., additional, Reijnen, M.M., additional, Rijbroek, A., additional, van Rijn, M.J., additional, de Roo, R.A., additional, Rouwet, E.V., additional, Rupert, C.G., additional, Saleem, B.R., additional, van Sambeek, M.R., additional, Samyn, M.G., additional, van ’t Sant, H.P., additional, van Schaik, J., additional, van Schaik, P.M., additional, Scharn, D.M., additional, Scheltinga, M.R., additional, Schepers, A., additional, Schlejen, P.M., additional, Schlosser, F.J., additional, Schol, F.P., additional, Schouten, O., additional, Schreinemacher, M.H., additional, Schreve, M.A., additional, Schurink, G.W., additional, Sikkink, C.J., additional, Siroen, M.P., additional, te Slaa, A., additional, Smeets, H.J., additional, Smeets, L., additional, de Smet, A.A., additional, de Smit, P., additional, Smit, P.C., additional, Smits, T.M., additional, Snoeijs, M.G., additional, Sondakh, A.O., additional, van der Steenhoven, T.J., additional, van Sterkenburg, S.M., additional, Stigter, D.A., additional, Stigter, H., additional, Strating, R.P., additional, Stultiëns, G.N., additional, Sybrandy, J.E., additional, Teijink, J.A., additional, Telgenkamp, B.J., additional, Testroote, M.J., additional, The, R.M., additional, Thijsse, W.J., additional, Tielliu, I.F., additional, van Tongeren, R.B., additional, Toorop, R.J., additional, Tordoir, J.H., additional, Tournoij, E., additional, Truijers, M., additional, Türkcan, K., additional, Tutein Nolthenius, R.P., additional, Ünlü, Ç., additional, Vafi, A.A., additional, Vahl, A.C., additional, Veen, E.J., additional, Veger, H.T., additional, Veldman, M.G., additional, Verhagen, H.J., additional, Verhoeven, B.A., additional, Vermeulen, C.F., additional, Vermeulen, E.G., additional, Vierhout, B.P., additional, Visser, M.J., additional, van der Vliet, J.A., additional, Vlijmen-van Keulen, C.J., additional, Voesten, H.G., additional, Voorhoeve, R., additional, Vos, A.W., additional, de Vos, B., additional, Vos, G.A., additional, Vriens, B.H., additional, Vriens, P.W., additional, de Vries, A.C., additional, de Vries, J.P., additional, de Vries, M., additional, van der Waal, C., additional, Waasdorp, E.J., additional, Wallis de Vries, B.M., additional, van Walraven, L.A., additional, van Wanroij, J.L., additional, Warlé, M.C., additional, van Weel, V., additional, van Well, A.M., additional, Welten, G.M., additional, Welten, R.J., additional, Wever, J.J., additional, Wiersema, A.M., additional, Wikkeling, O.R., additional, Willaert, W.I., additional, Wille, J., additional, Willems, M.C., additional, Willigendael, E.M., additional, Wisselink, W., additional, Witte, M.E., additional, Wittens, C.H., additional, Wolf-de Jonge, I.C., additional, Yazar, O., additional, Zeebregts, C.J., additional, and van Zeeland, M.L., additional

Published
2018
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28. Funnel plots of patient‐reported outcomes to evaluate health‐care quality: Basic principles, pitfalls and considerations.

Author

Willik, Esmee M., Zwet, Erik W., Hoekstra, Tiny, Ittersum, Frans J., Hemmelder, Marc H., Zoccali, Carmine, Jager, Kitty J., Dekker, Friedo W., and Meuleman, Yvette

Subjects
*RATINGS of hospitals, *MEDICAL quality control, *QUALITY of life, *HEMODIALYSIS facilities
Abstract

A funnel plot is a graphical method to evaluate health‐care quality by comparing hospital performances on certain outcomes. So far, in nephrology, this method has been applied to clinical outcomes like mortality and complications. However, patient‐reported outcomes (PROs; eg, health‐related quality of life [HRQOL]) are becoming increasingly important and should be incorporated into this quality assessment. Using funnel plots has several advantages, including clearly visualized precision, detection of volume‐effects, discouragement of ranking hospitals and easy interpretation of results. However, without sufficient knowledge of underlying methods, it is easy to stumble into pitfalls, such as overinterpretation of standardized scores, incorrect direct comparisons of hospitals and assuming a hospital to be in‐control (ie, to perform as expected) based on underpowered comparisons. Furthermore, application of funnel plots to PROs is accompanied by additional challenges related to the multidimensional nature of PROs and difficulties with measuring PROs. Before using funnel plots for PROs, high and consistent response rates, adequate case mix correction and high‐quality PRO measures are required. In this article, we aim to provide insight into the use and interpretation of funnel plots by presenting an overview of the basic principles, pitfalls and considerations when applied to PROs, using examples from Dutch routine dialysis care. SUMMARY AT A GLANCE: The statistical review provides insights into the use and interpretation of funnel plots by presenting an overview of the basic principles, pitfalls and considerations when applied to patient‐reported outcomes using examples from Dutch routine dialysis care. [ABSTRACT FROM AUTHOR]

Published
2021
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29. Darmkankerchirurgie sinds het bevolkingsonderzoek: Veranderingen in volume en wachttijden onderzocht

Author

De Nereetot Babberich, Michael P.M., Van Der Willik, Esmee M., Van Groningen, Julia T., Ledeboer, Michiel, Wiggers, Theo, and Wouters, Michel W.J.M.

Abstract

Objective To investigate the impact of the Netherlands national colorectal cancer screening programme on the number of surgical resections for colorectal carcinoma and on waiting times for surgery. Design Descriptive study. Method Data were extracted from the Dutch Surgical Colorectal Audit. Patients with primary colorectal cancer surgery between 20112015 were included. The volume and median waiting times for the years 20112015 are described. Waiting times from first tumor positive biopsy until the operation (biopsyoperation) and first preoperative visit to the surgeon until the operation (visitoperation) are analyzed with a univariate and multivariate linear regression analysis. Separate analysis was done for visitoperation for academic and nonacademic hospitals and for screening compared to nonscreening patients. Results In 2014 there was an increase of 1469 (15%) patients compared to 2013. In 2015 this increase consisted of 1168 (11%) patients compared to 2014. In 2014 and 2015, 1359 (12%) and 3111 (26%) patients were referred to the surgeon through screening, respectively. The median waiting time of biopsyoperation significantly decreased (ß: 0.94, 95%BI) over the years 20142015 compared to 20112013. In nonacademic hospitals, the waiting time visitoperation also decreased significantly (ß: 0.89, 95%BI 0.870.90) over the years 20142015 compared to 20112013. No difference was found in waiting times between patients referred to the surgeon through screening compared to nonscreening. Conclusion There is a clear increase in volume since the introduction of the colorectal cancer screening programme without an increase in waiting time until surgery.

Published
2017

31. Effect of residual kidney function and dialysis adequacy on chronic pruritus in dialysis patients.

Author

Lengton R, van der Willik EM, de Rooij ENM, Meuleman Y, Le Cessie S, Michels WM, Hemmelder M, Dekker FW, and Hoogeveen EK

Subjects
Male, Humans, Middle Aged, Female, Renal Dialysis adverse effects, Quality of Life, Kidney, Pruritus epidemiology, Pruritus etiology, Phosphates, Renal Insufficiency, Chronic complications, Renal Insufficiency, Chronic therapy, Kidney Failure, Chronic complications, Kidney Failure, Chronic therapy
Abstract

Background: Chronic kidney disease-associated pruritus (CKD-aP) is common in dialysis patients, and is associated with lower quality of life and increased risk of death. We investigated the association between residual estimated glomerular filtration rate (eGFR), dialysis adequacy or serum phosphate level and CKD-aP in incident dialysis patients., Methods: A total of 1256 incident hemodialysis (HD) and 670 peritoneal dialysis (PD) patients (>18 years) from the Netherlands Cooperative Study on the Adequacy of Dialysis (NECOSAD) study were included (1997-2007) and followed until death, transplantation or a maximum of 10 years. CKD-aP was measured using a single item of the Kidney Disease Quality of Life Instrument-36. The associations were studied by logistic and linear regression analyses, adjusted for potential baseline confounders., Results: At baseline mean (standard deviation) age was 60 (16) years, 62% were men and median (interquartile range) residual eGFR was 3.4 (1.7; 5.3) mL/min/1.73 m2. The prevalence of CKD-aP (∼70%) was similar in HD and PD. It was observed that 12 months after starting dialysis (after multivariable adjustment) each 1 mL/min/1.73 m2 higher residual eGFR, one unit higher total weekly Kt/V, or 1 mmol/L lower serum phosphate level was associated with lower burden of CKD-aP in HD and PD patients of -0.05 (95% CI -0.09; -0.02) and -0.09 (95% CI -0.13; -0.05), -0.15 (95% CI -0.26; -0.05) and -0.35 (95% CI -0.54; -0.16), and of -0.34 (95%CI: -0.51; -0.17) and -0.45 (95%CI: -0.71; -0.19), respectively. We found no association between dialysis Kt/V and CKD-aP., Conclusions: Higher residual eGFR and lower serum phosphate level, but not the dialysis dose, were related with lower burden of CKD-aP in dialysis patients., (© The Author(s) 2022. Published by Oxford University Press on behalf of the ERA.)

Published
2023
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32. Validity and reliability of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using computerized adaptive testing in patients with advanced chronic kidney disease.

Author

van der Willik EM, van Breda F, van Jaarsveld BC, van de Putte M, Jetten IW, Dekker FW, Meuleman Y, van Ittersum FJ, and Terwee CB

Subjects
Humans, Reproducibility of Results, Computerized Adaptive Testing, Surveys and Questionnaires, Renal Dialysis, Patient Reported Outcome Measures, Information Systems, Quality of Life, Renal Insufficiency, Chronic diagnosis, Renal Insufficiency, Chronic therapy
Abstract

Background: The Patient-Reported Outcomes Measurement Information System (PROMIS®) has been recommended for computerized adaptive testing (CAT) of health-related quality of life. This study compared the content, validity, and reliability of seven PROMIS CATs to the 12-item Short-Form Health Survey (SF-12) in patients with advanced chronic kidney disease., Methods: Adult patients with chronic kidney disease and an estimated glomerular filtration rate under 30 mL/min/1.73 m2 who were not receiving dialysis treatment completed seven PROMIS CATs (assessing physical function, pain interference, fatigue, sleep disturbance, anxiety, depression, and the ability to participate in social roles and activities), the SF-12, and the PROMIS Pain Intensity single item and Dialysis Symptom Index at inclusion and 2 weeks. A content comparison was performed between PROMIS CATs and the SF-12. Construct validity of PROMIS CATs was assessed using Pearson's correlations. We assessed the test-retest reliability of all patient-reported outcome measures by calculating the intraclass correlation coefficient and minimal detectable change., Results: In total, 207 patients participated in the study. A median of 45 items (10 minutes) were completed for PROMIS CATs. All PROMIS CATs showed evidence of sufficient construct validity. PROMIS CATs, most SF-12 domains and summary scores, and Dialysis Symptom Index showed sufficient test-retest reliability (intraclass correlation coefficient ≥ 0.70). PROMIS CATs had a lower minimal detectable change compared with the SF-12 (range, 5.7-7.4 compared with 11.3-21.7 across domains, respectively)., Conclusion: PROMIS CATs showed sufficient construct validity and test-retest reliability in patients with advanced chronic kidney disease. PROMIS CATs required more items but showed better reliability than the SF-12. Future research is needed to investigate the feasibility of PROMIS CATs for routine nephrology care., (© The Author(s) 2022. Published by Oxford University Press on behalf of the ERA.)

Published
2023
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33. Patient-reported outcome measures ( PROMs): making sense of individual PROM scores and changes in PROM scores over time.

Author

van der Willik EM, Terwee CB, Bos WJW, Hemmelder MH, Jager KJ, Zoccali C, Dekker FW, and Meuleman Y

Subjects
Humans, Time Factors, Kidney Diseases therapy, Patient Reported Outcome Measures
Abstract

Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care., (© 2020 The Authors. Nephrology published by John Wiley & Sons Australia, Ltd on behalf of Asian Pacific Society of Nephrology.)

Published
2021
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34. Funnel plots of patient-reported outcomes to evaluate health-care quality: Basic principles, pitfalls and considerations.

Author

van der Willik EM, van Zwet EW, Hoekstra T, van Ittersum FJ, Hemmelder MH, Zoccali C, Jager KJ, Dekker FW, and Meuleman Y

Subjects
Benchmarking, Data Interpretation, Statistical, Humans, Models, Statistical, Health Services Research statistics & numerical data, Nephrology statistics & numerical data, Patient Reported Outcome Measures, Quality Assurance, Health Care statistics & numerical data, Quality Indicators, Health Care statistics & numerical data, Research Design statistics & numerical data
Abstract

A funnel plot is a graphical method to evaluate health-care quality by comparing hospital performances on certain outcomes. So far, in nephrology, this method has been applied to clinical outcomes like mortality and complications. However, patient-reported outcomes (PROs; eg, health-related quality of life [HRQOL]) are becoming increasingly important and should be incorporated into this quality assessment. Using funnel plots has several advantages, including clearly visualized precision, detection of volume-effects, discouragement of ranking hospitals and easy interpretation of results. However, without sufficient knowledge of underlying methods, it is easy to stumble into pitfalls, such as overinterpretation of standardized scores, incorrect direct comparisons of hospitals and assuming a hospital to be in-control (ie, to perform as expected) based on underpowered comparisons. Furthermore, application of funnel plots to PROs is accompanied by additional challenges related to the multidimensional nature of PROs and difficulties with measuring PROs. Before using funnel plots for PROs, high and consistent response rates, adequate case mix correction and high-quality PRO measures are required. In this article, we aim to provide insight into the use and interpretation of funnel plots by presenting an overview of the basic principles, pitfalls and considerations when applied to PROs, using examples from Dutch routine dialysis care., (© 2020 The Authors. Nephrology published by John Wiley & Sons Australia, Ltd on behalf of Asian Pacific Society of Nephrology.)

Published
2021
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