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40 results on '"Yamashita, Robert"'

1. Survival and complications in patients with haemoglobin E thalassaemia in Sri Lanka: a prospective, longitudinal cohort study

Author

Premawardhena, Anuja P, Ediriweera, Dileepa Senajith, Sabouhanian, Amir, Allen, Angela, Rees, David, de Silva, Shanthimala, Perera, Windsor, Katugaha, Nimal, Arambepola, Mahinda, Yamashita, Robert C, Mettananda, Sachith, Jiffry, Nilam, Mehta, Vikita, Cader, Refai, Bandara, Dayananda, St Pierre, Timothy, Muraca, Giulia, Fisher, Christopher, Kirubarajan, Abirami, Khan, Shawn, Allen, Stephen, Lamabadusuriya, Sanath P, Weatherall, David J, and Olivieri, Nancy F

Published
2022
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14. Beliefs about chelation among thalassemia patients

Author

Trachtenberg Felicia L, Mednick Lauren, Kwiatkowski Janet L, Neufeld Ellis J, Haines Dru, Pakbaz Zahra, Thompson Alexis A, Quinn Charles T, Grady Robert, Sobota Amy, Olivieri Nancy, Horne Robert, and Yamashita Robert

Subjects
Thalassemia, Necessity, Concerns, Chelation, Adherence, Computer applications to medicine. Medical informatics, R858-859.7
Abstract

Abstract Background Understanding patients’ views about medication is crucial to maximize adherence. Thalassemia is a congenital blood disorder requiring chronic blood transfusions and daily iron chelation therapy. Methods The Beliefs in Medicine Questionnaire (BMQ) was used to assess beliefs in chelation in thalassemia patients from North America and London in the Thalassemia Longitudinal Cohort (TLC) of the Thalassemia Clinical Research Network (TCRN). Chelation adherence was based on patient report of doses administered out of those prescribed in the last four weeks. Results Of 371 patients (ages 5-58y, mean 24y), 93% were transfused and 92% receiving chelation (26% deferoxamine (DFO; a slow subcutaneous infusion via portable pump), 63% oral, 11% combination). Patients expressed high “necessity” for transfusion (96%), DFO chelation (92%) and oral chelation (89%), with lower “concern” about treatment (48%, 39%, 19% respectively). Concern about oral chelation was significantly lower than that of DFO (p Conclusions Despite their requirement for multimodal therapy, thalassemia patients have positive views about medicine, more so than in other disease populations. Patients may benefit from education about the tolerability of chelation and strategies to effectively cope with side effects, both of which might be beneficial in lowering body iron burden. Clinicaltrials.gov identifier NCT00661804

Published
2012
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15. Pregnancy Outcomes in Women with Thalassemia in North America and the UK

Author

Thompson, Alexis A., Kim, Hae-Young, Singer, Sylvia T., Vichinsky, Elliott, Eile, Jennifer, Yamashita, Robert, Giardina, Patricia A., Olivieri, Nancy, Parmar, Nagina, Trachtenberg, Felicia, Neufeld, Ellis J., and Kwiatkowski, Janet L.

Subjects
Adult, Reproductive Techniques, Assisted, Health Status, Iron, beta-Thalassemia, Middle Aged, Stillbirth, Iron Chelating Agents, Article, United Kingdom, Pregnancy, North America, Humans, Blood Transfusion, Female, Registries, Live Birth
Abstract

Improved survival in thalassemia has refocused attention on quality of life, including family planning. Understanding the issues associated with infertility and adverse pregnancy outcomes may impact clinical care of patients with thalassemia. We report the number and outcomes of pregnancies among subjects enrolled in Thalassemia Clinical Research Network (TCRN) registries and examine variables associated with successful childbirth. We identified 129 pregnancies in 72 women among the 264 women, age 18 years or older in our dataset. Over 70% of pregnancies resulted in live births and 73/83 (88%) of live births occurred at full term. Most pregnancies (78.2%) were conceived without reproductive technologies. Most (59.3%) pregnancies occurred while on chronic transfusion programs, however only 38.9% were on iron chelation. Four women developed heart problems. Iron burden in women who had conceived was not significantly different from age- and diagnosis-matched controls that had never been pregnant. There was also no difference in pregnancy outcomes associated with diagnosis, transfusion status, diabetes or Hepatitis C infection. Pregnancies occurred in 27.3% of women with thalassemia of child-bearing age in the TCRN registries, a notable increase from our previous 2004 report. With optimal health maintenance, successful pregnancies may be achievable.

Published
2013

18. Validation and reliability of a disease-specific quality of life measure (the TranQol) in adults and children with thalassaemia major

Author

Klaassen, Robert J., primary, Barrowman, Nicholas, additional, Merelles-Pulcini, Manuela, additional, Vichinsky, Elliott P., additional, Sweeters, Nancy, additional, Kirby-Allen, Melanie, additional, Neufeld, Ellis J., additional, Kwiatkowski, Janet L., additional, Wu, John, additional, Vickars, Linda, additional, Blanchette, Victor S., additional, Forgie, Melissa, additional, Yamashita, Robert, additional, Wong-Rieger, Durhane, additional, and Young, Nancy L., additional

Published
2013
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19. Changes In Health Status and Quality of Life In Adults with Thalassemia: Year 1 Report of the Thalassemia Longitudinal Cohort Study.

Author

Sobota, Amy, primary, Yamashita, Robert, additional, Xu, Yan, additional, Trachtenberg, Felicia, additional, Kohlbry, Pamela, additional, Kleinert, Dorothy A, additional, Giardina, Patricia, additional, Kwiatkowski, Janet L, additional, Haines, Dru, additional, Thayalasuthan, Vivekanandan, additional, Porter, John B., additional, Thompson, Alexis A., additional, Schilling, Leann, additional, Quinn, Charles T., additional, and Neufeld, Ellis J., additional

Published
2010
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20. Changes In Health Status and Quality of Life In Parental Reports of Children with Thalassemia: Year 1 Report of the Thalassemia Longitudinal Cohort Study

Author

Yamashita, Robert, primary, Sobota, Amy, additional, Trachtenberg, Felicia, additional, Xu, Yan, additional, Odame, Isaac, additional, Thompson, Alexis A., additional, Giardina, Patricia, additional, Haines, Dru, additional, Pakbaz, Zahra, additional, Kleinert, Dorothy A, additional, Quinn, Charles T., additional, Kwiatkowski, Janet L, additional, Schilling, Leann, additional, Boudreaux, Jeanne, additional, and Neufeld, Ellis J., additional

Published
2010
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21. The Impact of the Child with Thalassemia On the Family: Parental Assessment by Child Health Questionnaire.

Author

Yamashita, Robert, primary, Sobota, Amy, additional, Trachtenberg, Felicia, additional, Xu, Yan, additional, Pakbaz, Zahra, additional, Odame, Isaac, additional, Thompson, Alexis A., additional, Foote, Dru, additional, Kleinert, Dorothy A., additional, Giardina, Patricia J, additional, Quinn, Charles T., additional, Kwiatkowski, Janet L, additional, Neufeld, Ellis J, additional, Schilling, Leann, additional, and Boudreaux, Jeanne, additional

Published
2009
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22. Quality of Life in Adolescents and Adults with Thalassemia: A Report of the Thalassemia Longitudinal Cohort.

Author

Sobota, Amy, primary, Yamashita, Robert, additional, Xu, Yan, additional, Trachtenberg, Felicia, additional, Kleinert, Dorothy A., additional, Giardina, Patricia J, additional, Kwiatkowski, Janet L, additional, Foote, Dru, additional, Thayalasuthan, Vivekanandan, additional, Porter, John B, additional, Thompson, Alexis A., additional, Schilling, Leann, additional, Quinn, Charles T., additional, and Neufeld, Ellis J, additional

Published
2009
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23. Symptoms of Anxiety and Depression Among Teens and Adults in the Thalassemia Longitudinal Cohort Study.

Author

Mednick, Lauren, primary, Yu, Shuli, additional, Trachtenberg, Felicia, additional, Kleinert, Dorothy A., additional, Giardina, Patricia J, additional, Kwiatkowski, Janet L, additional, Foote, Dru, additional, Thayalasuthan, Vivekanandan, additional, Porter, John B, additional, Thompson, Alexis A., additional, Schilling, Leann, additional, Quinn, Charles T., additional, Neufeld, Ellis J, additional, and Yamashita, Robert, additional

Published
2009
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25. The Cost of Digital Image Distribution: The Social and Economic Implications of the Production, Distribution and Usage of Image Data: Final Report

Author

Besser, Howard., Yamashita, Robert., Besser, Howard., and Yamashita, Robert.

Abstract

This newly released report is the product of a 22-month UC Berkeley study of the Museum Educational Site Licensing Project (MESL), a two-year experimental collaboration between seven cultural repositories and seven universities that distributed approximately 10,000 images for classroom use and individual research. The report found that, while the higher education community is enthusiastic about providing access to digital images, numerous impediments mean that digital and analog libraries will necessarily coexist for some time yet. One of the most substantial of these impediments is, and will continue to be, the conflicting concerns of universities and museum image distribution consortia over access and payment. Those involved in image digitization or distribution or those contemplating involvement, particularly members of a scholarly community, will find numerous items of interest in this report.

Published
1998

27. Validation and reliability of a disease-specific quality of life measure (the Tran Qol) in adults and children with thalassaemia major.

Author

Klaassen, Robert J., Barrowman, Nicholas, Merelles‐Pulcini, Manuela, Vichinsky, Elliott P., Sweeters, Nancy, Kirby‐Allen, Melanie, Neufeld, Ellis J., Kwiatkowski, Janet L., Wu, John, Vickars, Linda, Blanchette, Victor S., Forgie, Melissa, Yamashita, Robert, Wong‐Rieger, Durhane, and Young, Nancy L.

Subjects
THALASSEMIA, HEMOLYTIC anemia, QUALITY of life measurement, HEMOGLOBIN polymorphisms, BLOOD transfusion, PATIENTS
Abstract

This study aimed to demonstrate the validity, reliability and responsiveness of a new disease-specific quality of life ( Qo L) questionnaire for children and adults with thalassaemia major, the Transfusion-dependent Qo L questionnaire ( Tran Qol). 106 participants (51 adults and 55 children) were recruited from six North American thalassaemia treatment centres with a mean age of 20·7 years (standard deviation [ SD] 9, range 7-51 years). The mean total Tran Qol score was 71 ( SD 17, 32-97) on a scale of 0-100. Patients with co-morbidities had significantly lower scores (63 vs. 75, P = 0·001). Tran Qol scores showed substantial agreement ( P < 0·001) with the Health Utilities Index Mark 3 (all patients, r = 0·65), the Pediatric Qo L (children, r = 0·77) and the Short Form (36) physical (adults, r = 0·69) and mental summary scores ( r = 0·76). In the subgroup who rated their Qo L as better, there was a 4·0 point ( SD 9·0) improvement in Tran Qol scores, from baseline of 67·1-71·1 one week later ( P = 0·008). Test-retest reliability was excellent (intra-class correlation coefficient, 0·93). The Tran Qol was valid, with acceptable correlation for all administered measures and was reliable and responsive to change. The Tran Qol can be incorporated into future studies of thalassaemia major. [ABSTRACT FROM AUTHOR]

Published
2014
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32. Componentized MAM

Author

Yamashita, Robert R.

Subjects
Video post production -- Equipment and supplies, Video equipment industry -- Industry forecasts, Business, Economics
Abstract

Economics and technology each have an important role in defining trends in the post industry. Facilities are reducing their labor and capital costs, as well as their consumables and recurring [...]

Published
2005

33. Pain as an emergent issue in thalassemia.

Author

Trachtenberg, Felicia, Foote, Dru, Martin, Marie, Carson, Susan, Coates, Thomas, Beams, Owen, Vega, Olivia, Merelles-Pulcini, Manuela, Giardina, Patricia J., Kleinert, Dorothy A., Kwiatkowski, Janet, Thompson, Alexis A., Neufeld, Ellis J., Schilling, Leann, Thayalasuthan, Vivek, Pakbaz, Zahra, and Yamashita, Robert

Published
2010
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35. EXPERIENCE WITH THE IRON-CHELATOR DEFERASIROX IN SRI LANKAN PATIENTS WITH THALASSEMIA

Author

Olivieri, Nancy, Chandrakumaran, Priya, Jayawardena, Sanasi, Sabouhanian, Amir, Premawardhena, Anuja, Sachith Mettananda, Senadeera, Dulanjalee, Wadanamby, Sandara, Walgamage, Malsha, Walgamage, Thilini, Seneviratne, Prarthana, Silva, I., Hameed, N., Bandara, Dayananda, Nimal, J. M., Chan, Helen, Shanmugananatham, Saambavy, Deb, Bhumika, Yamashita, Robert, Rees, David, Allen, Angela, and Weatherall, David

36. TWENTY-YEAR FOLLOW-UP OF PATIENTS WITH HEMOGLOBIN E THALASSEMIA IN SRI LANKA

Author

Olivieri, Nancy, anuja premawardhena, Allen, Angela, Sabouhanian, Amir, Mettananda, Sachith, Chan, Helen, Wadanamby, Sandara, Senadeera, Dulanjalee, Walgamage, Malsha, Walgamage, Thilini, Seneviratne, Prarthana, Shanmugananatham, Saambavy, Uthayakumaran, Saranyau, Deb, Bhumika, Bandara, Dayananda, Yamashita, Robert, Rees, David, and Weatherall, David

37. An oral history with Robert Yamashita

Author

Yamashita, Robert: interviewee; Hansen, Arthur A.: interviewer; California State University, Fullerton. Center for Oral and Public History and Yamashita, Robert: interviewee; Hansen, Arthur A.: interviewer; California State University, Fullerton. Center for Oral and Public History

Abstract

An oral interview with Robert Yamashita, an incarceree at the Children's Village orphanage. The interview was conducted for the Children's Village at the Manzanar Oral History Project by California State University, Fullerton. Audio is found in item: csufccop_cvm_0133., The Children's Village at Manzanar Oral History Project features oral histories with narrators who talk about their lives, pre and post World War II, but most specifically, about their experience at the Children's Village orphanage at Manzanar.

38. An oral history with Robert Yamashita

Author

Yamashita, Robert: interviewee; Hansen, Arthur A.: interviewer; California State University, Fullerton. Center for Oral and Public History and Yamashita, Robert: interviewee; Hansen, Arthur A.: interviewer; California State University, Fullerton. Center for Oral and Public History

Abstract

An oral interview with Robert Yamashita, an incarceree at the Children's Village orphanage. The interview was conducted for the Children's Village at the Manzanar Oral History Project by California State University, Fullerton. Transcript is found in item: csufccop_cvm_0134., The Children's Village at Manzanar Oral History Project features oral histories with narrators who talk about their lives, pre and post World War II, but most specifically, about their experience at the Children's Village orphanage at Manzanar.

40. Quality of Life in Patients with Thalassemia.

Author

Pakbaz, Zahra, Treadwell, Marsha, Yamashita, Robert, Foote, Drucilla, and Vichinsky, Elliott

Abstract

Introduction:Thalassemia patients have experienced a dramatic increase in lifespan secondary to improved and more complicated therapy. The impact of the disease and its treatment on quality of life is largely unknown. Determining the degree of health impairment as perceived by the patient is essential information needed to recommend suitable therapy. Factors that affect the quality of life of thalassemia major patients may differ from thalassemia intermedia patients. Identifying the specific causes for negative patient assessment of overall health status can result in successful intervention. The objective of this study is to determine the factors that affect quality of life in both transfused and non-transfused thalassemia patients.

Published
2004
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