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Your search keyword '"de Boer, Marjolein Lotte"' showing total 13 results
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13 results on '"de Boer, Marjolein Lotte"'

8. Extended bodies: an empirical-philosophical study to women’s bodily experiences in breast cancer

Author

de Boer, Marjolein Lotte, de Boer, Marjolein Lotte, de Boer, Marjolein Lotte, and de Boer, Marjolein Lotte

Abstract

In everyday life, women who have breast cancer or have had breast cancer are often described as unspoilt, feminine and energetic 'survivors'. This study found that these descriptors are inconsistent with how women actually experience their disease. Many women also face the debilitating and disfiguring effects of breast cancer. Breast prostheses and mammography devices, for example, can hinder daily functioning and sharing their experience of the disease can cause conflict and distance in a relationship. Furthermore, the term 'reconstruction' can create false expectations about reconstructive breast surgery: women will never get their 'old' breasts back. While personal blogs allow women to present themselves in a different way, there are very few public platforms that help women relate to the stories of other breast cancer patients and ascribe meaning to their disease and their changing bodies. This dissertation therefore stresses the importance of making disease experience, disability, disfigurement and damage more publicly accessible. After all, sharing these experiences is extremely important for people living with a changed body.

Published
2016

9. Male partners’ experiences of caring for women with cervical cancer

Author

Solli, Karianne Oldertrøen, De Boer, Marjolein Lotte, Solbrække, Kari Nyheim, and Thoresen, Lisbeth

Abstract

Aims and objectives: This study aims to develop knowledge on the experiences of male partners of women with cervical cancer during and after the illness. We explore men’s experiences of becoming caregivers as well as how the illness trajectory affects or has affected the relationship. Background: Receiving a cancer diagnosis has a significant impact on the lives of both the cancer patient and their family members. However, studies of male partners’ experiences with cancer patients are scarce. Additionally, cervical cancer and its impact on male caregivers is less explored than how other cancer diagnoses impact male caregivers. The theoretical concept of caring masculinities is helpful to interpret men’s experiences as caregivers and partners. Design: The study employs a qualitative design with semi-structured interviews with six men/partners recruited through the gynaecological section at a hospital. COREQ reporting guidelines have been applied. Findings: Based on our analyses, we find that men’s experiences of being caregivers and partners of women treated for cervical cancer are multifaceted, comprising emotional and practical aspects. However, three main findings stand out as particularly significant for men in the context of cervical cancer: loneliness, an altered sexual relationship and shared feelings of vulnerability. Conclusions: The men describe an interdependence in the relationship with the women but also how the relationships have been seriously altered, particularly when it comes to sexuality. These findings resonate with hegemonic as well as caring masculinities. Relevance to practice: Complex issues of intimacy and sexuality should be a pivotal element in educating future healthcare professionals. We strongly suggest that issues such as dealing with masculinity and caregiving roles should be on the agenda and reflected upon in teaching and supervising in clinical practice. A broader approach to sexual health and relationships is needed in the patient–clinician relationships, including information about HPV.

Published
2018

12. Genocide's Aftermath, Responsibility and Repair.

Author

de Boer, Marjolein (Lotte)

Subjects
GENOCIDE, NONFICTION
Abstract

The article reviews the book "Genocide's Aftermath, Responsibility and Repair," edited by Claudia Card and Armen T. Marsoobian.

Published
2010

13. Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process.

Author

de Boer ML

Subjects
Humans, Knowledge, Patient Advocacy, Patient Participation, Social Justice, Fatigue Syndrome, Chronic therapy
Abstract

In healthcare settings, patient participation is increasingly adopted as a possible remedy to ill people suffering from 'epistemic injustices' - that is to their unfair harming as knowers. In exploring and interpreting patient participation discourses within the 2013-2018 Dutch Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) Health Council advisory process, this paper assesses the epistemological emancipatory value of this participatory practice. It reveals that in the analysed case, patient representatives predominantly offer biomedical knowledge about ME/CFS. They frame this condition as primarily somatic, and accordingly, perceive appropriate diagnostic criteria, research avenues and treatment options as quantifiable, objectifiable and explicitly non-psychogenic. This paper argues that such a dominant biomedical patient participatory practice is ambiguous in terms of its ability to correct epistemic injustices towards ill people. Biomedicalized patient participation may enhance people's credibility and their ability to make sense of their illness, but it may also undermine their valid position within participatory practices as well as lead to (sustaining) biased and reductive ideas about who ill people are and what kind of knowledge they hold. The final section of this paper offers a brief reflection on how to navigate such biomedicalized participatory practices in order to attain more emancipatory ones., (© 2021 The Author. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).)

Published
2021
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