616 results on '"stigma and discrimination"'
Search Results
2. Group dialectical behaviour therapy for adolescents with emotional dysregulation and maladaptive coping: pilot implementation in Qatar.
- Author
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Khan, Yasser Saeed, Mathew, Sruthi, Jasem AlMeraisi, May, and Alabdulla, Majid
- Subjects
- *
COMMUNITY mental health services , *CHILD mental health services , *MENTAL health services , *BEHAVIOR therapy , *DIALECTICAL behavior therapy , *PATIENT satisfaction - Abstract
This paper presents a pioneering pilot implementation of group dialectical behaviour therapy (DBT) for adolescents with maladaptive coping in Qatar's child and adolescent mental health services. The project highlights the positive effect on patient satisfaction and the potential for early intervention with adolescents displaying emotional dysregulation. This pioneering initiative was consistent with local cultural values, stressing the importance of interconnectedness in mental health interventions. The impact of the initiative stresses its significance in diverse cultural contexts, urging further adoption regionally for improved mental health outcomes, particularly among adolescents displaying features of an emerging emotionally unstable personality disorder. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
3. "When selling anything to an audience, visible publicity is key:" experiences, barriers, and enablers to participate in a COVID-19 study in Malawi.
- Author
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Mdala, Vanessa, Nyirenda, Deborah, Mpinganjira, Samuel, Mwapasa, Victor, and Nyondo-Mipando, Alinane Linda
- Subjects
- *
THEORY of reasoned action , *SCIENTIFIC knowledge , *SCIENTIFIC ability , *RIGHT of privacy , *INFECTIOUS disease transmission - Abstract
Background: Many studies in infectious diseases struggle to recruit participants. The SARS-CoV-2 infection, transmission dynamics, and household impact in Malawi (SCATHIM) study reported a refusal rate of 57.2%. Adequate publicity can lead to more people participating in studies. This study explored the reasons for participating in the SCATHIM study. Methods: A descriptive qualitative study informed by the theory of reasoned action was conducted in Blantyre between January 2022 and March 2022 to assess factors that influence participation in a COVID-19 study among 10 index cases, 10 caregivers, 10 study decliners, and 5 research staff. The data were collected via in-depth interview guides, audio recorded, transcribed, managed via NVIVO and analysed via a thematic approach. Results: The factors that motivated participation in the study included one's knowledge of COVID-19; potential access to medical services, including free COVID-19 tests for members of the household; financial reimbursements; and the ability to contribute scientific knowledge. The barriers to participation included minimal publicity of the study amidst a novel condition, perceived stigma and discrimination, perceived invasion of privacy, discomfort with the testing procedures, and suboptimal financial reimbursements. Conclusion: Effective publicity and outreach strategies have the potential to decrease refusal rates in study participation, especially if a condition is novel. Studies on infectious diseases should address stigma and discrimination to promote participation and ensure participant safety. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
4. Adult attention-deficit hyperactivity disorder: time for a rethink?
- Author
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Matheiken, Shevonne, Erden, Meriç, Krishnadas, Rajeev, and Pinto da Costa, Mariana
- Subjects
- *
ATTENTION-deficit hyperactivity disorder , *PHYSICIANS , *ADULTS , *NEURAL development , *DIAGNOSTIC errors - Abstract
SUMMARY: Recent years have seen a rise in media coverage as well as demand for specialist attention-deficit hyperactivity disorder (ADHD) assessments in adults and children. This article explores the challenges in the diagnostic process for adult ADHD, amidst much misinformation and controversy. In doing so, we look at the social model of ADHD; a glossary of terms to better understand lived experience; underdiagnosis and misdiagnosis; and the fallacy of the 'high functioning' label. We propose the use of co-production to bridge the gap between the medical and social models. We conclude with suggestions for future research. The article includes anonymous contributions from doctors with ADHD. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
5. Group dialectical behaviour therapy for adolescents with emotional dysregulation and maladaptive coping: pilot implementation in Qatar
- Author
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Yasser Saeed Khan, Sruthi Mathew, May Jasem AlMeraisi, and Majid Alabdulla
- Subjects
Mental health services ,community mental health teams ,personality disorders ,self-harm ,stigma and discrimination ,Psychiatry ,RC435-571 - Abstract
This paper presents a pioneering pilot implementation of group dialectical behaviour therapy (DBT) for adolescents with maladaptive coping in Qatar's child and adolescent mental health services. The project highlights the positive effect on patient satisfaction and the potential for early intervention with adolescents displaying emotional dysregulation. This pioneering initiative was consistent with local cultural values, stressing the importance of interconnectedness in mental health interventions. The impact of the initiative stresses its significance in diverse cultural contexts, urging further adoption regionally for improved mental health outcomes, particularly among adolescents displaying features of an emerging emotionally unstable personality disorder.
- Published
- 2024
- Full Text
- View/download PDF
6. 'When selling anything to an audience, visible publicity is key:' experiences, barriers, and enablers to participate in a COVID-19 study in Malawi
- Author
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Vanessa Mdala, Deborah Nyirenda, Samuel Mpinganjira, Victor Mwapasa, and Alinane Linda Nyondo-Mipando
- Subjects
Study participation ,Research publicity ,Stigma and discrimination ,Financial reimbursements ,COVID-19 ,Medicine (General) ,R5-920 - Abstract
Abstract Background Many studies in infectious diseases struggle to recruit participants. The SARS-CoV-2 infection, transmission dynamics, and household impact in Malawi (SCATHIM) study reported a refusal rate of 57.2%. Adequate publicity can lead to more people participating in studies. This study explored the reasons for participating in the SCATHIM study. Methods A descriptive qualitative study informed by the theory of reasoned action was conducted in Blantyre between January 2022 and March 2022 to assess factors that influence participation in a COVID-19 study among 10 index cases, 10 caregivers, 10 study decliners, and 5 research staff. The data were collected via in-depth interview guides, audio recorded, transcribed, managed via NVIVO and analysed via a thematic approach. Results The factors that motivated participation in the study included one’s knowledge of COVID-19; potential access to medical services, including free COVID-19 tests for members of the household; financial reimbursements; and the ability to contribute scientific knowledge. The barriers to participation included minimal publicity of the study amidst a novel condition, perceived stigma and discrimination, perceived invasion of privacy, discomfort with the testing procedures, and suboptimal financial reimbursements. Conclusion Effective publicity and outreach strategies have the potential to decrease refusal rates in study participation, especially if a condition is novel. Studies on infectious diseases should address stigma and discrimination to promote participation and ensure participant safety.
- Published
- 2024
- Full Text
- View/download PDF
7. Gypsy, Roma and Traveller populations and mental health in the UK: a need for real working together and co-production of services
- Author
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Radha Kothari, Amy Ward, and Derek Tracy
- Subjects
Traveller ,gypsy ,stigma and discrimination ,mental health services ,transcultural psychiatry ,Psychiatry ,RC435-571 - Abstract
Gypsy, Roma and Traveller (GRT) communities have considerably worse mental health outcomes than the general population and many other ethnic minority groups. We argue that there is a dynamic, interplaying ‘accessibility mismatch’, resulting in a failure of healthcare services to adequately understand and work with GRT communities in a meaningful way. The consequences are limited engagement and poor health outcomes. Contact with services is often at crisis points, such as in forensic services, which reinforces existing prejudice. Research is limited, and therefore so is the evidence base. It is critical that the UK's National Health Service takes a culturally informed approach to co-produce services that are accessible and responsive to GRT communities. Here we offer practical actions that healthcare organisations can undertake to help redress imbalances and increase equity of healthcare outcomes for these overlooked populations.
- Published
- 2024
- Full Text
- View/download PDF
8. Capturing the HIV-related social exclusion practices experienced by key populations through photovoice: an interpretative phenomenological study
- Author
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Ami Kamila, Widyawati Widyawati, Mubasysyir Hasanbasri, and Mohammad Hakimi
- Subjects
Photovoice ,Key populations ,HIV ,Social exclusion ,Stigma and discrimination ,Gynecology and obstetrics ,RG1-991 - Abstract
Abstract Background Key populations are defined as groups that are susceptible to HIV, including Men Sex with Men (MSM), Transgender (TG), Persons who Inject Drug (PID), and Female Sex Worker (FSW). These key populations groups are among the fastest-growing populations in Indonesia. These vulnerable groups are ostracized by society and health services, which makes it difficult to get treatment. This project was carried out to investigate the different experiences and perspectives of these key populations in facing and addressing social and spiritual exclusion. Methods A qualitative phenomenological study using photovoice was carried out from July to December 2022. Key populations comprising MSM, TG, PID, and FSW were recruited from community-based peer groups in West Bandung Regency using snowball sampling. This was followed by the Photovoice stages, from workshops to focus group discussions and interviews with audio recordings. Furthermore, thematic data analysis was carried out by interpretative participant narratives and photographs supported by Atlas.ti software. Result Eighteen participants comprising four MSM, five TG, four PIDs, and five FSWs participated in this research. Among these eighteen participants, six were HIV-negative, including 3 PIDs and 3 FSWs, while the remaining were positive. The analysis of the collected data identified four main themes: 1) limited access like unequal treatment, disadvantage, and harassment, 2) social and spiritual impact, 3) coping mechanisms, and 4) self-reflection through photovoice. These results showed that social exclusion occurred in an environment where community values, beliefs, and norms dehumanised these key populations, and where removal of support and care was prominent. Despite these challenges, participant resilience was evidenced by using internal resources and peer support as coping mechanisms. The participants considered photovoice as a tool to foster self-confidence and self-awareness through a reflective process. Conclusions The findings of this study highlight the emphasis on participants' openness in sharing their experiences, which can build empathy and promote a more inclusive community in HIV prevention efforts. This research findings can be used to inform HIV policy and practice and inclusion of these key populations in the community. We advocate making the photovoice efforts accessible to a wider audience through exhibitions and various media.
- Published
- 2024
- Full Text
- View/download PDF
9. Gypsy, Roma and Traveller populations and mental health in the UK: a need for real working together and co-production of services.
- Author
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Kothari, Radha, Ward, Amy, and Tracy, Derek
- Subjects
- *
MENTAL health services , *HEALTH equity , *MINORITIES , *QUALITY of service , *MENTAL health - Abstract
Gypsy, Roma and Traveller (GRT) communities have considerably worse mental health outcomes than the general population and many other ethnic minority groups. We argue that there is a dynamic, interplaying 'accessibility mismatch', resulting in a failure of healthcare services to adequately understand and work with GRT communities in a meaningful way. The consequences are limited engagement and poor health outcomes. Contact with services is often at crisis points, such as in forensic services, which reinforces existing prejudice. Research is limited, and therefore so is the evidence base. It is critical that the UK's National Health Service takes a culturally informed approach to co-produce services that are accessible and responsive to GRT communities. Here we offer practical actions that healthcare organisations can undertake to help redress imbalances and increase equity of healthcare outcomes for these overlooked populations. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
10. Capturing the HIV-related social exclusion practices experienced by key populations through photovoice: an interpretative phenomenological study.
- Author
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Kamila, Ami, Widyawati, Widyawati, Hasanbasri, Mubasysyir, and Hakimi, Mohammad
- Subjects
- *
HIV prevention , *SEX work , *EMPATHY , *RESEARCH funding , *QUALITATIVE research , *STATISTICAL sampling , *GAY men , *PHOTOGRAPHY , *HIV infections , *PSYCHOLOGICAL adaptation , *EXPERIENCE , *THEMATIC analysis , *ADULT education workshops , *DISCRIMINATION (Sociology) , *PHENOMENOLOGY , *DATA analysis software , *HEALTH equity , *SOCIAL isolation , *SOCIAL stigma , *SELF-perception - Abstract
Background: Key populations are defined as groups that are susceptible to HIV, including Men Sex with Men (MSM), Transgender (TG), Persons who Inject Drug (PID), and Female Sex Worker (FSW). These key populations groups are among the fastest-growing populations in Indonesia. These vulnerable groups are ostracized by society and health services, which makes it difficult to get treatment. This project was carried out to investigate the different experiences and perspectives of these key populations in facing and addressing social and spiritual exclusion. Methods: A qualitative phenomenological study using photovoice was carried out from July to December 2022. Key populations comprising MSM, TG, PID, and FSW were recruited from community-based peer groups in West Bandung Regency using snowball sampling. This was followed by the Photovoice stages, from workshops to focus group discussions and interviews with audio recordings. Furthermore, thematic data analysis was carried out by interpretative participant narratives and photographs supported by Atlas.ti software. Result: Eighteen participants comprising four MSM, five TG, four PIDs, and five FSWs participated in this research. Among these eighteen participants, six were HIV-negative, including 3 PIDs and 3 FSWs, while the remaining were positive. The analysis of the collected data identified four main themes: 1) limited access like unequal treatment, disadvantage, and harassment, 2) social and spiritual impact, 3) coping mechanisms, and 4) self-reflection through photovoice. These results showed that social exclusion occurred in an environment where community values, beliefs, and norms dehumanised these key populations, and where removal of support and care was prominent. Despite these challenges, participant resilience was evidenced by using internal resources and peer support as coping mechanisms. The participants considered photovoice as a tool to foster self-confidence and self-awareness through a reflective process. Conclusions: The findings of this study highlight the emphasis on participants' openness in sharing their experiences, which can build empathy and promote a more inclusive community in HIV prevention efforts. This research findings can be used to inform HIV policy and practice and inclusion of these key populations in the community. We advocate making the photovoice efforts accessible to a wider audience through exhibitions and various media. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
11. Investigating changes in mental illness stigma and discrimination after the Time to Change programme in England
- Author
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Amy Ronaldson and Claire Henderson
- Subjects
Mental health ,stigma and discrimination ,Time to Change ,social distance ,population mental health ,Psychiatry ,RC435-571 - Abstract
Background Between 2008 and 2019, we reported positive change relating to mental health stigma and discrimination among the adult population of England, supporting the effectiveness of the Time to Change campaign. Aims Using data from the Attitudes to Mental Illness survey (2008/2009 to 2023), we investigated the extent to which positive changes in stigma were sustained by 2023, 2 years after the programme's end in 2021. Method We used regression analyses to evaluate trends in outcomes. Measures were of stigma-related knowledge (Mental Health Knowledge Schedule (MAKS)), attitudes (Community Attitudes toward the Mentally Ill scale (CAMI)) and desire for social distance (Reported and Intended Behaviour Scale (RIBS)). We also examined willingness to interact with people based on vignettes of depression and schizophrenia, and attitudes toward workplace discrimination, using data from the British Social Attitudes Survey for comparison. Results CAMI scores improved between 2008 and 2023 (s.d. 0.24, 95% CI 0.16–0.31), but decreased since 2019 (P = 0.015). After improvements between 2009 and 2019, 2023 MAKS and RIBS scores no longer differed from 2009 scores, indicating decreases in stigma-related knowledge (MAKS scores declined 7.8%; P < 0.001) and willingness to interact (RIBS scores declined by 10.2%; P < 0.001) since 2019. Conversely, comparison with British Social Attitudes Survey data indicated that willingness to interact with people with depression and schizophrenia increased gradually between 2007, 2015 and 2023, and attitudes to workplace discrimination also improved. Conclusions The lasting positive changes reflect support for non-discrimination and willingness to interact with someone after a sense of familiarity is evoked. Besides the end of Time to Change, interpretations for declines in other outcomes include the COVID-19 pandemic and economic stress.
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- 2024
- Full Text
- View/download PDF
12. Challenges Faced by Nursing Professionals in COVID-19 Pandemic
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Daniel, Shipra, Alzahrani, Abdulaziz, Hassan Almalki, Waleed, Alam, Kainat, Alam, Kainat, editor, Daniel, Shipra, editor, Alzahrani, Abdulaziz, editor, and Hassan Almalki, Waleed, editor
- Published
- 2024
- Full Text
- View/download PDF
13. Psychometric properties of stigma and discrimination measurement tools for persons living with HIV: a systematic review using the COSMIN methodology
- Author
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Yizhu Zhang, Xianxia Yang, Xinru Chai, Shuyu Han, Lili Zhang, Ying Shao, Jianhong Ma, Ke Li, and Zhiwen Wang
- Subjects
Acquired Immunodeficiency Syndrome ,Patient Reported Outcome Measures ,Stigma and Discrimination ,Psychometrics ,Systematic Review ,Medicine - Abstract
Abstract Background The development of antiretroviral therapy broadly extends the life expectancy of persons living with HIV (PLHIV). However, stigma and discrimination are still great threat to these individuals and the world's public health care system. Accurate and reproducible measures are prerequisites for robust results. Therefore, it is essential to choose an acceptable measure with satisfactory psychometric properties to assess stigma and discrimination. There has been no systematic review of different stigma and discrimination tools in the field of HIV care. Researchers and clinical practitioners do not have a solid reference for selecting stigma and discrimination measurement tools. Methods We systematically searched English and Chinese databases, including PubMed, EMBASE, CINAHL, Web of Science, PsycINFO, ProQuest Dissertations and Theses, The Cochrane Library, CNKI,, and Wanfang, to obtain literature about stigma and discrimination measurement tools that have been developed and applied in the field of HIV. The search period was from 1st January, 1996 to 22nd November 2021. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guideline (2018 version) was applied to assess the risk of bias for each involved study and summarize the psychometric properties of each tool. The modified version of the Grading of Recommendations Assessment, Development, and, Evaluation (GRADE) method was used to grade the evidence and develop recommendations. Results We included 45 studies and 19 PROMs for HIV/AIDS-related stigma and discrimination among PLHIV. All studies had sufficient methodological quality in content validity, structural validity, internal consistency, and the hypothesis testing of structural validity. Limited evidence was found for cross-cultural validity, stability, and criterion validity. No relevant evidence was found concerning measurement error and responsiveness. The Internalized AIDS-related Stigma Scale (IARSS), Internalized HIV Stigma Scale (IHSS), and Wright's HIV stigma scale (WHSS) are recommended for use. Conclusions This study recommends three PROMs for different stigma and discrimination scenarios, including IARSS for its good quality and convenience, IHSS for its broader range of items, higher sensitivity, and greater precision, and WHSS for its comprehensive and quick screening. Researchers should also consider the relevance and feasibility of the measurements before putting them into practice. Systematic review registration PROSPERO CRD42022308579
- Published
- 2024
- Full Text
- View/download PDF
14. The Pre-Exposure Prophylaxis Stigma Scale: Measurement Properties of an Adaptation in German and French.
- Author
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Ort, Alexander and Bardy, Tess
- Subjects
PRE-exposure prophylaxis ,HIV prevention ,GERMAN language ,SOCIAL stigma ,FRENCH language ,SCALING (Social sciences) ,SOCIAL impact - Abstract
Objectives: This study aimed to adapt and validate the HIV PrEP Stigma Scale (HPSS) in French and German languages (HPSS-FR/DE) and assess its applicability across diverse linguistic and cultural contexts. Methods: The original scale was adapted to French and German and administered through an online survey in multiple European nations. A four-factor structure was extracted from the data, including negative social consequences, social pressure, selfsupport, and external support. The scale's construct validity, reliability, and cross-linguistic consistency were evaluated. Results: The adapted HPSS-FR/DE demonstrated robust psychometric properties, good construct validity, acceptable reliability, and consistent measurement across different languages. This adaptation enhances its utility in multicultural settings, offering a comprehensive tool to assess PrEP-related stigma. Conclusion: This study provides a suitable tool to address PrEP stigma in multicultural environments to enhance PrEP uptake and adherence among men who have sex with men. Moreover, it lays the groundwork for further investigations into PrEP stigma across diverse populations and cultural settings, enabling the development of targeted public health interventions and policies to combat this issue effectively. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
15. The impact of reduced routine community mental healthcare on people from minority ethnic groups during the COVID-19 pandemic: qualitative study of stakeholder perspectives.
- Author
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Winsper, Catherine, Bhattacharya, Rahul, Bhui, Kamaldeep, Currie, Graeme, Edge, Dawn, Ellard, David, Franklin, Donna, Gill, Paramjit, Gilbert, Steve, Khan, Noreen, Miller, Robin, Motala, Zahra, Pinfold, Vanessa, Sandhu, Harbinder, Singh, Swaran P., Weich, Scott, and Giacco, Domenico
- Subjects
COVID-19 pandemic ,ETHNIC groups ,MINORITIES ,CULTURAL pluralism ,MENTAL health personnel ,ETHNIC differences ,PSYCHOLOGICAL resilience - Abstract
Background: Enduring ethnic inequalities exist in mental healthcare. The COVID-19 pandemic has widened these. Aims: To explore stakeholder perspectives on how the COVID-19 pandemic has increased ethnic inequalities in mental healthcare. Method: A qualitative interview study of four areas in England with 34 patients, 15 carers and 39 mental health professionals from National Health Service (NHS) and community organisations (July 2021 to July 2022). Framework analysis was used to develop a logic model of inter-relationships between pre-pandemic barriers and COVID-19 impacts. Results: Impacts were largely similar across sites, with some small variations (e.g. positive service impacts of higher ethnic diversity in area 2). Pre-pandemic barriers at individual level included mistrust and thus avoidance of services and at a service level included the dominance of a monocultural model, leading to poor communication, disengagement and alienation. During the pandemic remote service delivery, closure of community organisations and media scapegoating exacerbated existing barriers by worsening alienation and communication barriers, fuelling prejudice and division, and increasing mistrust in services. Some minority ethnic patients reported positive developments, experiencing empowerment through self-determination and creative activities. Conclusions: During the COVID-19 pandemic some patients showed resilience and developed adaptations that could be nurtured by services. However, there has been a reduction in the availability of group-specific NHS and third-sector services in the community, exacerbating pre-existing barriers. As these developments are likely to have long-term consequences for minority ethnic groups' engagement with mental healthcare, they need to be addressed as a priority by the NHS and its partners. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
16. Psychometric properties of stigma and discrimination measurement tools for persons living with HIV: a systematic review using the COSMIN methodology.
- Author
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Zhang, Yizhu, Yang, Xianxia, Chai, Xinru, Han, Shuyu, Zhang, Lili, Shao, Ying, Ma, Jianhong, Li, Ke, and Wang, Zhiwen
- Subjects
- *
PSYCHOMETRICS , *SOCIAL stigma , *AIDS , *HIV - Abstract
Background: The development of antiretroviral therapy broadly extends the life expectancy of persons living with HIV (PLHIV). However, stigma and discrimination are still great threat to these individuals and the world's public health care system. Accurate and reproducible measures are prerequisites for robust results. Therefore, it is essential to choose an acceptable measure with satisfactory psychometric properties to assess stigma and discrimination. There has been no systematic review of different stigma and discrimination tools in the field of HIV care. Researchers and clinical practitioners do not have a solid reference for selecting stigma and discrimination measurement tools. Methods: We systematically searched English and Chinese databases, including PubMed, EMBASE, CINAHL, Web of Science, PsycINFO, ProQuest Dissertations and Theses, The Cochrane Library, CNKI,, and Wanfang, to obtain literature about stigma and discrimination measurement tools that have been developed and applied in the field of HIV. The search period was from 1st January, 1996 to 22nd November 2021. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guideline (2018 version) was applied to assess the risk of bias for each involved study and summarize the psychometric properties of each tool. The modified version of the Grading of Recommendations Assessment, Development, and, Evaluation (GRADE) method was used to grade the evidence and develop recommendations. Results: We included 45 studies and 19 PROMs for HIV/AIDS-related stigma and discrimination among PLHIV. All studies had sufficient methodological quality in content validity, structural validity, internal consistency, and the hypothesis testing of structural validity. Limited evidence was found for cross-cultural validity, stability, and criterion validity. No relevant evidence was found concerning measurement error and responsiveness. The Internalized AIDS-related Stigma Scale (IARSS), Internalized HIV Stigma Scale (IHSS), and Wright's HIV stigma scale (WHSS) are recommended for use. Conclusions: This study recommends three PROMs for different stigma and discrimination scenarios, including IARSS for its good quality and convenience, IHSS for its broader range of items, higher sensitivity, and greater precision, and WHSS for its comprehensive and quick screening. Researchers should also consider the relevance and feasibility of the measurements before putting them into practice. Systematic review registration: PROSPERO CRD42022308579 [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
17. The lived experiences of HIV-positive women in rural Zimbabwe: A qualitative focus group study.
- Author
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Mpofu, Limkile and Ganga-Limando, Makombo
- Subjects
- *
COMMUNITY health services , *WOMEN , *QUALITATIVE research , *FOCUS groups , *SELF-efficacy , *RESEARCH funding , *FOOD security , *HIV infections , *DECISION making , *PSYCHOLOGY of HIV-positive persons , *EXPERIENCE , *SOCIAL integration , *SOCIAL status , *RURAL conditions , *RESEARCH methodology , *RESEARCH , *QUALITY of life , *CONCEPTUAL structures , *DISCRIMINATION (Sociology) , *PHENOMENOLOGY , *INTERPERSONAL relations , *PATIENTS' attitudes , *SOCIAL stigma - Abstract
Background: The study explored and described the meaning attached to the lived experiences of women living with human immunodeficiency virus (HIV) in the rural context of Zimbabwe. Stigma and discrimination negatively impact one's ability to perform the expected social roles, the quality of life, and the efforts to prevent the spread of HIV and acquired immunodeficiency syndrome (AIDS) and reduce HIV-related mortality. Thus, the study aims to understand the meaning attached to the lived experiences of HIV-positive women living in rural areas or villages of Matabeleland South province in Zimbabwe. Methods: The study used a qualitative, descriptive, and exploratory design. Four focus group discussions were conducted with 24 HIV-positive rural women living in Matabeleland South province, Zimbabwe. An Interpretative Phenomenological Analysis (IPA) was adopted to explore and describe the meaning attached to the lived experiences of women living with HIV. Results: Two interconnected themes were identified in the analysis with their sub-themes. These were: (1) struggle for social belonging, with subthemes - loss of social belonging and reduced access to community-based empowerment opportunities and (2) struggle for maintaining the quality of life with subthemes - lack of need-based community healthcare and food insecurity. Conclusion: Being a woman living with HIV in rural Zimbabwe means a perpetual struggle to maintain one's humanness and quality of life. Contribution: This study's results will support the efforts of the Zimbabwean government to improve the quality of life of HIV-positive women living in rural areas. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
- View/download PDF
18. Stigma and public attitudes toward euthanasia or assisted suicide for psychiatric conditions: results from a general population survey in Germany.
- Author
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Schomerus, Georg, Schindler, Stephanie, Baumann, Eva, and Angermeyer, Matthias C.
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- *
EUTHANASIA , *ASSISTED suicide - Published
- 2024
- Full Text
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19. Stakeholder views on the design of National Health Service perinatal mental health services: 360-degree survey
- Author
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John Scott, Christopher Mcdonald, Sarah McRobbie, Blair Watt, Judith Young, and Jane Morris
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Perinatal psychiatry ,maternal mental illness ,stigma and discrimination ,service planning ,qualitative research ,Psychiatry ,RC435-571 - Abstract
Aims and method At the start of a new community perinatal mental health service in Scotland we sought the opinions and aspirations of professional and lay stakeholders. A student elective project supported the creation of an anonymous 360-degree online survey of a variety of staff and people with lived experience of suffering from or managing perinatal mental health problems. The survey was designed and piloted with trainees and volunteer patients. Results A rich variety of opinions was gathered from the 60 responses, which came from a reasonably representative sample. Respondents provided specific answers to key questions and wrote free-text recommendations and concerns to inform service development. Clinical implications There is clear demand for the new expanded service, with strong support for provision of a mother and baby unit in the North of Scotland. The digital survey method could be adapted to generate future surveys to review satisfaction with service development and generate ideas for further change.
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- 2024
- Full Text
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20. 'What if I get sick, where shall I go?': a qualitative investigation of healthcare engagement among young gay and bisexual men in Nairobi, Kenya
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Samuel Waweru Mwaniki, Peter Mwenda Kaberia, Peter Mwangi Mugo, and Thesla Palanee-Phillips
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Andersen’s model ,Healthcare providers ,HIV ,Mental health ,Sexually transmitted infections ,Stigma and discrimination ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Globally, young gay, bisexual and other men who have sex with men (YMSM) experience a disproportionate burden of disease compared to young heterosexual men and older MSM. However, YMSM experience major inequities in access and use of health services. We sought to gain a detailed understanding of YMSM’s healthcare engagement experiences across public, private, tertiary institution-based and MSM-friendly health facilities in Nairobi, Kenya, to inform development of interventions to improve access and use of health services by YMSM. Methods In September 2021, in-person qualitative in-depths interviews were conducted among 22 YMSM purposively sampled from 248 YMSM who had previously participated in a respondent-driven sampling integrated bio-behavioral survey. Interviews were done in English, transcribed verbatim and analyzed descriptively using NVivo version 12. Results Participants were 18–24 years old, all identified as cisgender male, three-quarters as gay and a quarter as bisexual. Themes that were defined from the analysis included: YMSM’s experiences during healthcare seeking in various clinical settings, priority health needs, desired healthcare provider (HCP) characteristics, and the potential role of digital health interventions in improving access and use of health services. Participants relayed experiences of prejudice, stigma and discrimination when seeking services in public and institution-based health facilities, unlike in community pharmacies, private and MSM-friendly health facilities where they felt they were handled with dignity. Health needs prioritized by YMSM centered on prevention and control of HIV, sexually transmitted infections (STIs), depression and substance abuse. Participants desired HCPs who were empathetic, non-judgmental and knowledgeable about their unique health needs such as management of anorectal STIs. Participants highlighted the usefulness of digital media in offering telehealth consultations and health education on subjects such as HIV/STIs prevention. Conclusion During engagement with healthcare, YMSM experience various barriers that may cause them to postpone or avoid seeking care hence resulting in poor health outcomes. There is need to equip HCPs with knowledge, skills and cultural competencies to enable them offer equitable services to YMSM. Considerations should also be made for use of digital health interventions that may help YMSM circumvent some of the aforementioned barriers to service access and use.
- Published
- 2024
- Full Text
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21. Stigma and inequality in the management of coronavirus disease-2019 (COVID-19)- patients among healthcare providers in Saudi Arabia and associated beliefs: A cross sectional study
- Author
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Sayed F. Abdelwahab, Ahmed Ibrahim Fathelrahman, Hamed F. Alazwari, and Ohoud S. Almalki
- Subjects
COVID-19 ,Healthcare workers ,SARS-CoV-2 ,Saudi Arabia ,Stigma and discrimination ,Infectious and parasitic diseases ,RC109-216 ,Public aspects of medicine ,RA1-1270 - Abstract
Background: Stigma and discrimination (SAD) can greatly impact the management of Coronavirus Disease-19 (COVID-19) patients. Studies examining SAD in managing COVID-19 patients in Saudi Arabia (SA) are limited. This study examined the discrimination and inequality in treating COVID-19 patients and the associated beliefs among healthcare workers (HCWs) during the pandemic. Methods: This was a cross sectional study using an online self-administrated questionnaire by 414 HCWs from September 2022 to January 2023. Results: Of the 414 participants, 53.4% aged 18–30 years, were males (53.4%), mostly Saudi (82.1%), and residents of western SA (90.8%). Almost one-third of the participants (32.1%) were physicians, and 23.7% were pharmacists. 53.1% of the HCWs had work experience
- Published
- 2024
- Full Text
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22. Stakeholder views on the design of National Health Service perinatal mental health services: 360-degree survey.
- Author
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Scott, John, Mcdonald, Christopher, McRobbie, Sarah, Watt, Blair, Young, Judith, and Morris, Jane
- Subjects
- *
STAKEHOLDERS , *NATIONAL health services , *MENTAL health - Abstract
Aims and method At the start of a new community perinatal mental health service in Scotland we sought the opinions and aspirations of professional and lay stakeholders. A student elective project supported the creation of an anonymous 360-degree online survey of a variety of staff and people with lived experience of suffering from or managing perinatal mental health problems. The survey was designed and piloted with trainees and volunteer patients. Results A rich variety of opinions was gathered from the 60 responses, which came from a reasonably representative sample. Respondents provided specific answers to key questions and wrote free-text recommendations and concerns to inform service development. Clinical implications There is clear demand for the new expanded service, with strong support for provision of a mother and baby unit in the North of Scotland. The digital survey method could be adapted to generate future surveys to review satisfaction with service development and generate ideas for further change. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
23. Mental health and access to care among the Roma population in Europe: A scoping review.
- Author
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Guerrero, Zoe, Civišová, Dagmar, and Winkler, Petr
- Subjects
- *
PSYCHOLOGY information storage & retrieval systems , *ONLINE information services , *WELL-being , *ROMANIES , *HEALTH services accessibility , *SUBSTANCE abuse , *SOCIAL determinants of health , *SYSTEMATIC reviews , *DISCRIMINATION (Sociology) , *ECONOMIC status , *MENTAL health , *TRANSCULTURAL medical care , *SOCIAL stigma , *SOCIAL isolation , *SEX distribution , *BEHAVIOR disorders in children , *INCOME , *PSYCHOSOCIAL factors , *PATHOLOGICAL psychology , *MENTAL depression , *HEALTH insurance , *RESEARCH funding , *LITERATURE reviews , *MEDLINE , *ANXIETY , *EXTERNALIZING behavior , *HOUSING , *PSYCHIATRIC treatment , *INTERNALIZING behavior - Abstract
The Roma are Europe's largest ethnic minority group, and often face discrimination and social exclusion. Social strife and lack of access to healthcare are associated with increased symptoms of psychopathology. We aimed to review evidence on mental health outcomes and on access to mental healthcare among the Roma population in Europe. We systematically searched five databases (PsycINFO, Global Health, Social Policy and Practice, Web of Science and PubMed) and conducted a grey literature search in August 2020. We identified 133 studies, 26 of which were included for final analysis. We present the results using a narrative synthesis. The available literature indicates a relatively high prevalence of anxiety, depression and substance abuse among Roma, and females seem to be more affected than males. Roma children exhibit more externalizing and internalizing disorders when compared with non-Roma children. Mental health and perceived well-being among the Roma population are strongly linked to social determinants of health such as housing or economic income. Access to mental healthcare is limited for Roma people because of several barriers pertaining to language, lack of information regarding available services, and the insurance and economic status of Roma people. Roma people report mainly negative experiences with mental health services, including a lack of understanding from healthcare providers, and instances of racism and discrimination. There is a need for more research on mental health and access to healthcare in Roma people. Future studies should be participatory in order to provide guidelines for mental healthcare that addresses the needs of the Roma population. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
24. Algorithmic fairness in precision psychiatry: analysis of prediction models in individuals at clinical high risk for psychosis.
- Author
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Şahin, Derya, Kambeitz-Ilankovic, Lana, Wood, Stephen, Dwyer, Dominic, Upthegrove, Rachel, Salokangas, Raimo, Borgwardt, Stefan, Brambilla, Paolo, Meisenzahl, Eva, Ruhrmann, Stephan, Schultze-Lutter, Frauke, Lencer, Rebekka, Bertolino, Alessandro, Pantelis, Christos, Koutsouleris, Nikolaos, and Kambeitz, Joseph
- Subjects
PREDICTION models ,FAIRNESS ,PSYCHOSES ,MENTAL illness ,PSYCHIATRIC treatment - Abstract
Background: Computational models offer promising potential for personalised treatment of psychiatric diseases. For their clinical deployment, fairness must be evaluated alongside accuracy. Fairness requires predictive models to not unfairly disadvantage specific demographic groups. Failure to assess model fairness prior to use risks perpetuating healthcare inequalities. Despite its importance, empirical investigation of fairness in predictive models for psychiatry remains scarce. Aims: To evaluate fairness in prediction models for development of psychosis and functional outcome. Method: Using data from the PRONIA study, we examined fairness in 13 published models for prediction of transition to psychosis (n = 11) and functional outcome (n = 2) in people at clinical high risk for psychosis or with recent-onset depression. Using accuracy equality, predictive parity, false-positive error rate balance and false-negative error rate balance, we evaluated relevant fairness aspects for the demographic attributes 'gender' and 'educational attainment' and compared them with the fairness of clinicians' judgements. Results: Our findings indicate systematic bias towards assigning less favourable outcomes to individuals with lower educational attainment in both prediction models and clinicians' judgements, resulting in higher false-positive rates in 7 of 11 models for transition to psychosis. Interestingly, the bias patterns observed in algorithmic predictions were not significantly more pronounced than those in clinicians' predictions. Conclusions: Educational bias was present in algorithmic and clinicians' predictions, assuming more favourable outcomes for individuals with higher educational level (years of education). This bias might lead to increased stigma and psychosocial burden in patients with lower educational attainment and suboptimal psychosis prevention in those with higher educational attainment. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
25. Assessment and determinants of depression and anxiety on a global sample of sexual and gender diverse people at high risk of HIV: a public health approach.
- Author
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Lamontagne, Erik, Leroy, Vincent, Yakusik, Anna, Parker, Warren, Howell, Sean, and Ventelou, Bruno
- Subjects
- *
DISCRIMINATION in medical care , *HEALTH facilities , *ANXIETY , *MENTAL depression , *PUBLIC health , *BISEXUALITY , *HUMAN sexuality - Abstract
Background: Sexual and gender diverse people face intersecting factors affecting their well-being and livelihood. These include homophobic reactions, stigma or discrimination at the workplace and in healthcare facilities, economic vulnerability, lack of social support, and HIV. This study aimed to examine the association between such factors and symptoms of anxiety and depression among sexual and gender diverse people. Methods: This study is based on a sample of 108,389 gay, bisexual, queer and questioning men, and transfeminine people from 161 countries collected through a cross-sectional internet survey. We developed a multinomial logistic regression for each group to study the associations of the above factors at different severity scores for anxiety and depression symptoms. Results: Almost a third (30.3%) of the participants reported experiencing moderate to severe symptoms of anxiety and depression. Higher severity scores were found for transfeminine people (39%), and queer or questioning people (34.8%). Severe symptoms of anxiety and depression were strongly correlated with economic hardship for all groups. Compared to those who are HIV-negative, those living with HIV were more likely to report severe symptoms of anxiety and depression, and the highest score was among those who do not know their HIV status. Transfeminine people were the most exposed group, with more than 80% higher risk for those living with HIV suffering from anxiety and depression. Finally, homophobic reactions were strongly associated with anxiety and depression. The relative risk of severe anxiety and depression was 3.47 times higher for transfeminine people facing transphobic reactions than those with no symptoms. Moreover, anxiety and depression correlate with stigma or discrimination in the workplace and healthcare facilities. Conclusions: The strong association between the severity of anxiety and depression, and socioeconomic inequality and HIV status highlights the need for concrete actions to meet the United Nations' pledge to end inequalities faced by communities and people affected by HIV. Moreover, the association between stigma or discrimination and anxiety and depression among sexual and gender diverse people is alarming. There is a need for bold structural public health interventions, particularly for transfeminine, queer and questioning people who represent three communities under the radar of national HIV programmes. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
26. "What if I get sick, where shall I go?": a qualitative investigation of healthcare engagement among young gay and bisexual men in Nairobi, Kenya.
- Author
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Mwaniki, Samuel Waweru, Kaberia, Peter Mwenda, Mugo, Peter Mwangi, and Palanee-Phillips, Thesla
- Subjects
- *
BISEXUAL men , *DEINSTITUTIONALIZATION , *GAY men , *HEALTH facilities , *SEXUALLY transmitted diseases , *MEDICAL personnel - Abstract
Background: Globally, young gay, bisexual and other men who have sex with men (YMSM) experience a disproportionate burden of disease compared to young heterosexual men and older MSM. However, YMSM experience major inequities in access and use of health services. We sought to gain a detailed understanding of YMSM's healthcare engagement experiences across public, private, tertiary institution-based and MSM-friendly health facilities in Nairobi, Kenya, to inform development of interventions to improve access and use of health services by YMSM. Methods: In September 2021, in-person qualitative in-depths interviews were conducted among 22 YMSM purposively sampled from 248 YMSM who had previously participated in a respondent-driven sampling integrated bio-behavioral survey. Interviews were done in English, transcribed verbatim and analyzed descriptively using NVivo version 12. Results: Participants were 18–24 years old, all identified as cisgender male, three-quarters as gay and a quarter as bisexual. Themes that were defined from the analysis included: YMSM's experiences during healthcare seeking in various clinical settings, priority health needs, desired healthcare provider (HCP) characteristics, and the potential role of digital health interventions in improving access and use of health services. Participants relayed experiences of prejudice, stigma and discrimination when seeking services in public and institution-based health facilities, unlike in community pharmacies, private and MSM-friendly health facilities where they felt they were handled with dignity. Health needs prioritized by YMSM centered on prevention and control of HIV, sexually transmitted infections (STIs), depression and substance abuse. Participants desired HCPs who were empathetic, non-judgmental and knowledgeable about their unique health needs such as management of anorectal STIs. Participants highlighted the usefulness of digital media in offering telehealth consultations and health education on subjects such as HIV/STIs prevention. Conclusion: During engagement with healthcare, YMSM experience various barriers that may cause them to postpone or avoid seeking care hence resulting in poor health outcomes. There is need to equip HCPs with knowledge, skills and cultural competencies to enable them offer equitable services to YMSM. Considerations should also be made for use of digital health interventions that may help YMSM circumvent some of the aforementioned barriers to service access and use. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
27. Research following trauma in minority ethnic and faith communities: lessons from a study of the psychosocial sequelae of the Christchurch mosque terror attacks.
- Author
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Sulaiman-Hill, Ruqayya, Porter, Richard, Schluter, Philip, Beaglehole, Ben, Dean, Shaystah, Tanveer, Sandila, Boden, Joseph, and Bell, Caroline
- Subjects
- *
TERRORISM , *CULTURAL pluralism , *POST-traumatic stress disorder - Published
- 2024
- Full Text
- View/download PDF
28. As Much As I Can – Utilizing Immersive Theatre to Reduce HIV-Related Stigma and Discrimination Toward Black Sexual Minority Men.
- Author
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Burns, Paul A., Klukas, Emily, Sims-Gomillia, Courtney, Omondi, Angela, Bender, Melverta, and Poteat, Tonia
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PSYCHOLOGY of Black people ,SEXUAL orientation ,AIDS education ,PSYCHOLOGY of men ,CONFIDENCE intervals ,TEACHING methods ,DISCRIMINATION (Sociology) ,CROSS-sectional method ,MULTIPLE regression analysis ,SOCIAL stigma ,FISHER exact test ,HELP-seeking behavior ,SURVEYS ,T-test (Statistics) ,SEXUAL minorities ,ART therapy ,DESCRIPTIVE statistics ,CHI-squared test ,QUESTIONNAIRES ,RESEARCH funding ,DATA analysis software ,ODDS ratio ,PSYCHOLOGY of HIV-positive persons ,PERFORMING arts ,GAY men - Abstract
Background: Despite advances in biomedical HIV prevention modalities such as pre-exposure prophylaxis to prevent the transmission of HIV, racial/ethnic and sexual/gender minority populations are disproportionately impacted by HIV epidemic. Alarming rates of HIV have persisted among Black gay and bisexual men, particularly in Southern states. Methods: Utilizing data from the ViiV ACCELERATE! initiative, we explored the impact of As Much As I Can, an immersive theatre production, on HIV-related stigma behaviors. A self-administered post-performance survey was conducted with a cohort (n = 322) of randomly selected audience members. Results: Overall, the results showed participants had a highly favorable experience, rating the performance with a mean score of 9.77/10. Respondents indicated they intended to change behaviors to promote HIV prevention education and to reduce stigma and discrimination including: (1) Say something if I hear stigmatizing language against people living with HIV (75.4%), (2) Say something if I hear anti-gay language (69.7%) and (3) Tell others about HIV prevention options (e.g., PrEP, PEP, condoms (64.1%). The findings show there is an association between HIV-related behavior intention and linkage to HIV care. Respondents who reported they were more likely to say something about HIV stigma were almost three times (O.R. 2.77; 95% C.I. 0.98–7.8) more likely to indicate they would follow up with a healthcare professional. Conclusions: This study suggests that immersive theatre is an effective method for communicating HIV prevention education and reducing HIV-related structural stigma and discrimination that increases HIV vulnerability for Black sexual minority men. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
29. Stigma and inequality in the management of coronavirus disease-2019 (COVID-19)- patients among healthcare providers in Saudi Arabia and associated beliefs: A cross sectional study.
- Author
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Abdelwahab, Sayed F., Fathelrahman, Ahmed Ibrahim, Alazwari, Hamed F., and Almalki, Ohoud S.
- Abstract
Stigma and discrimination (SAD) can greatly impact the management of Coronavirus Disease-19 (COVID-19) patients. Studies examining SAD in managing COVID-19 patients in Saudi Arabia (SA) are limited. This study examined the discrimination and inequality in treating COVID-19 patients and the associated beliefs among healthcare workers (HCWs) during the pandemic. This was a cross sectional study using an online self-administrated questionnaire by 414 HCWs from September 2022 to January 2023. Of the 414 participants, 53.4% aged 18–30 years, were males (53.4%), mostly Saudi (82.1%), and residents of western SA (90.8%). Almost one-third of the participants (32.1%) were physicians, and 23.7% were pharmacists. 53.1% of the HCWs had work experience < 5 years, 49.3% either had a current/previous COVID-19 infection and 10.1% (n = 42) reported treating ≥ 2000 COVID-19 patients. Most of the participants had not received training on avoiding discrimination against COVID-19 patients (n = 246; 59.4%) and denied receiving any incentives from their institution (n = 294; 71%) or community (n = 248; 59.9%) during the pandemic. Less than 20% of the HCWs had observed some sort of discrimination in providing care for COVID-19 patients. The responses significantly differed by nationality, educational level, specialty, workplace and COVID-19 infection status (P < 0.05). Approximately, 20% of the participants held negative beliefs about COVID-19 patients and these responses varied significantly by nationality, work experience, workplace, gender, and age (p < 0.05). Cross-tabulation and regression analyses showed some differences by gender, workplace, specialty and COVID-19 infection status. There was a low prevalence of negative beliefs about COVID-19 patients and a low prevalence of discriminatory behaviors in providing care for these patients in SA. Training and governmental regulations could further lower the prevalence of SAD against COVID-19 patients. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
30. The Pre-Exposure Prophylaxis Stigma Scale: Measurement Properties of an Adaptation in German and French
- Author
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Alexander Ort and Tess Bardy
- Subjects
pre-exposure prophylaxis ,scale validation ,stigma and discrimination ,MSM ,HIV and AIDS ,Public aspects of medicine ,RA1-1270 - Abstract
Objectives:This study aimed to adapt and validate the HIV PrEP Stigma Scale (HPSS) in French and German languages (HPSS-FR/DE) and assess its applicability across diverse linguistic and cultural contexts.Methods:The original scale was adapted to French and German and administered through an online survey in multiple European nations. A four-factor structure was extracted from the data, including negative social consequences, social pressure, self-support, and external support. The scale’s construct validity, reliability, and cross-linguistic consistency were evaluated.Results:The adapted HPSS-FR/DE demonstrated robust psychometric properties, good construct validity, acceptable reliability, and consistent measurement across different languages. This adaptation enhances its utility in multicultural settings, offering a comprehensive tool to assess PrEP-related stigma.Conclusion:This study provides a suitable tool to address PrEP stigma in multicultural environments to enhance PrEP uptake and adherence among men who have sex with men. Moreover, it lays the groundwork for further investigations into PrEP stigma across diverse populations and cultural settings, enabling the development of targeted public health interventions and policies to combat this issue effectively.
- Published
- 2024
- Full Text
- View/download PDF
31. The lived experiences of HIV-positive women in rural Zimbabwe: A qualitative focus group study
- Author
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Limkile Mpofu and Makombo Ganga-Limando
- Subjects
stigma and discrimination ,rural women ,interpretative phenomenological analysis (ipa) ,hiv and aids ,rural zimbabwe ,meanings attached ,lived experiences ,framework ,Medicine - Abstract
Background: The study explored and described the meaning attached to the lived experiences of women living with human immunodeficiency virus (HIV) in the rural context of Zimbabwe. Stigma and discrimination negatively impact one’s ability to perform the expected social roles, the quality of life, and the efforts to prevent the spread of HIV and acquired immunodeficiency syndrome (AIDS) and reduce HIV-related mortality. Thus, the study aims to understand the meaning attached to the lived experiences of HIV-positive women living in rural areas or villages of Matabeleland South province in Zimbabwe. Methods: The study used a qualitative, descriptive, and exploratory design. Four focus group discussions were conducted with 24 HIV-positive rural women living in Matabeleland South province, Zimbabwe. An Interpretative Phenomenological Analysis (IPA) was adopted to explore and describe the meaning attached to the lived experiences of women living with HIV. Results: Two interconnected themes were identified in the analysis with their sub-themes. These were: (1) struggle for social belonging, with subthemes – loss of social belonging and reduced access to community-based empowerment opportunities and (2) struggle for maintaining the quality of life with subthemes – lack of need-based community healthcare and food insecurity. Conclusion: Being a woman living with HIV in rural Zimbabwe means a perpetual struggle to maintain one’s humanness and quality of life. Contribution: This study’s results will support the efforts of the Zimbabwean government to improve the quality of life of HIV-positive women living in rural areas.
- Published
- 2024
- Full Text
- View/download PDF
32. Stigma and public attitudes toward euthanasia or assisted suicide for psychiatric conditions: results from a general population survey in Germany
- Author
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Georg Schomerus, Stephanie Schindler, Eva Baumann, and Matthias C. Angermeyer
- Subjects
Human rights ,stigma and discrimination ,suicide ,assisted suicide ,euthanasia ,Psychiatry ,RC435-571 - Abstract
Background With growing numbers of countries legalizing euthanasia or assisted suicide (EAS), there is a debate as to whether EAS should also be available to people with severe, treatment-resistant mental illness. Excluding mental illness as a legitimate reason to receive EAS has been framed as discriminating against people with mental illness. Aims We examine whether approval or opposition to psychiatric EAS are related to stigma toward people with mental illness. Method We asked a representative sample of the general population in Germany (N = 1515) whether they would approve of EAS for someone with severe, treatment-resistant mental illness. Stigma was assessed with the Value-Based Stigma Inventory (VASI), addressing rejection of people with mental illness in relation to different personal values. Results A total of 19% of the German population approved of psychiatric EAS. Higher stigma scores were associated with greater approval of EAS (Spearman rank correlation coefficient, 0.28; P < 0.001). This association held true when controlling for sociodemographic variables. It was strongest for stigma related to perceived threats to one's security, reputation and meritocratic values. Conclusions Our results highlight that, although opposing psychiatric EAS is sometimes framed as discriminatory, approval of psychiatric EAS might also carry hidden, stigmatising motives. To avoid any unintended negative consequences for people with severe, treatment-resistant mental illness, any legislation on psychiatric EAS needs to be crafted with particular caution.
- Published
- 2024
- Full Text
- View/download PDF
33. Education and Persons with Disabilities in the Caribbean: A Law and Policy Perspective
- Author
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Stephenson, Jacqueline H., Persadie, Natalie, Gedro, Julie, Series Editor, Stephenson, Jacqueline H., and Persadie, Natalie
- Published
- 2023
- Full Text
- View/download PDF
34. Establishing a business case for setting up early detection services for preventing psychosis
- Author
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Flavia Napoletano, Olivier Andlauer, Silvia Murguia-Asensio, Savithasri V. Eranti, Elvan Akyuz, Andrés Estradé, Jonathan Buhagiar, Christine David, Paolo Fusar-Poli, and Susham Gupta
- Subjects
Suicide ,crisis services ,stigma and discrimination ,service users ,psychiatry and law ,Psychiatry ,RC435-571 - Abstract
Under standard care, psychotic disorders can have limited response to treatments, high rates of chronicity and disability, negative impacts on families, and wider social and economic costs. In an effort to improve early detection and care of individuals developing a psychotic illness, early intervention in psychosis services and early detection services have been set up in various countries since the 1980s. In April 2016, NHS England implemented a new ‘access and waiting times’ standard for early intervention in psychosis to extend the prevention of psychosis across England. Unfortunately, early intervention and early detection services are still not uniformly distributed in the UK, leaving gaps in service provision. The aim of this paper is to provide a business case model that can guide clinicians and services looking to set up or expand early detection services in their area. The paper also focuses on some existing models of care within the Pan-London Network for Psychosis Prevention teams.
- Published
- 2023
- Full Text
- View/download PDF
35. The lived experiences of resilience among Syrian refugees in the UK: interpretative phenomenological analysis
- Author
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Mustafa Alachkar
- Subjects
Refugees ,mental health ,resilience ,Syria ,stigma and discrimination ,Psychiatry ,RC435-571 - Abstract
Aims and method Refugees’ mental health has attracted great interest from researchers recently, in view of increasing numbers of refugees settling in Europe. A deficit model, focusing on mental disorder, has often dominated the discourse on the subject, but a strength-based model is becoming more recognised and adopted. Through semi-structured interviews, and using interpretative phenomenological analysis as a data analysis tool, the current study sought to explore the lived experiences of Syrian refugees in the UK in relation to resilience factors. Results Three main themes were identified reflecting interpersonal and family factors, factors related to religion, faith and belief systems, and personal qualities. Clinical implications The study calls for perceiving refugees as resilient individuals with strengths and adaptive qualities. It also demonstrates that refugees’ resilience is essentially an interpersonal process, advocating therefore for engagement and therapeutic approaches that are systemic, relational, and culturally and spiritually competent.
- Published
- 2023
- Full Text
- View/download PDF
36. Take patients seriously when they say financial incentives help with adherence
- Author
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Nathan Hodson, Madiha Majid, Ivo Vlaev, and Swaran Preet Singh
- Subjects
Ethics ,qualitative research ,service users ,stigma and discrimination ,consent and capacity ,Psychiatry ,RC435-571 - Abstract
Small financial incentives have been proven effective at promoting healthy behaviours across medicine, including in psychiatry. There are a range of philosophical and practical objections to financial incentives. Drawing on the existing literature, specifically attempts to use financial incentives to promote antipsychotic adherence, we propose a ‘patient-centred’ view of evaluating financial incentive regimes. We argue that there is evidence that mental health patients like financial incentives, considering them fair and respectful. The enthusiasm of mental health patients for financial incentives lends support to their use, although it does not invalidate all objections against them.
- Published
- 2023
- Full Text
- View/download PDF
37. Research following trauma in minority ethnic and faith communities: lessons from a study of the psychosocial sequelae of the Christchurch mosque terror attacks
- Author
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Ruqayya Sulaiman-Hill, Richard Porter, Philip Schluter, Ben Beaglehole, Shaystah Dean, Sandila Tanveer, Joseph Boden, and Caroline Bell
- Subjects
Trauma and stressor-related disorders ,stigma and discrimination ,terrorist attack ,ethnic diversity ,Muslim ,Psychiatry ,RC435-571 - Abstract
Recruiting participants for research from highly traumatised ethnic and faith communities requires a participatory and trauma-informed approach that considers logistic barriers, as well as trauma-related and culture-specific issues. Active community engagement through every stage of the project and employing community members in research roles can help build trust, identify and mitigate concerns early, prevent re-traumatization, and ensure that findings will be of value to the community. Some of these research challenges are discussed in the context of the Christchurch mosque terror attacks. These insights may be helpful for researchers and clinicians working in similarly challenging environments.
- Published
- 2024
- Full Text
- View/download PDF
38. Migration background, eating disorder symptoms and healthcare service utilisation: findings from the Stockholm Public Health Cohort.
- Author
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Strand, Mattias, Bäärnhielm, Sofie, Fredlund, Peeter, Brynedal, Boel, and Welch, Elisabeth
- Subjects
- *
EATING disorders , *ANOREXIA nervosa , *CROSS-cultural psychiatry - Published
- 2023
- Full Text
- View/download PDF
39. Treating mental stress in elite footballers using a stigma-free psychological approach: the Power Threat Meaning Framework.
- Author
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James, Ian Andrew, Morris, Simon, Johnston, Allan, and Glover, Danny
- Subjects
- *
ELITE athletes , *PSYCHOLOGICAL stress , *SOCCER players , *TOUGHNESS (Personality trait) , *PHYSICAL mobility , *MENTAL illness - Abstract
SUMMARY: There are many pressures on elite footballers. They work in a meritocracy, where only the best are selected and play at the highest levels. From the moment they enter an academy to their retirement there is a fear of deselection and rejection. Elite players need to contend with criticisms from fans and via social media; team and management dynamics can be stressful. Fears of injury are major concerns. In addition, the players are likely to face everyday difficulties experienced by the rest of society, such as relationship, family and financial problems. There is a great deal of stigma associated with mental health problems in footballers, hence approaches are required that are destigmatising. This article presents two frameworks conceptualising stress in footballers: the Power Threat Meaning Framework, which describes stress in non-diagnostic terms; and the Yerkes–Dodson curve, which describes how stress can affect footballers' mental and physical performances on the pitch. Both frameworks can combine to enable therapists to understand players' distress and its impact and to guide towards appropriate treatments, as we show in a fictitious case study. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
40. The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia).
- Author
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Bhatt, Jem, Brohan, Elaine, Blasco, Drew, Oliveira, Déborah, Bakolis, Ioannis, Comas-Herrera, Adelina, D'Amico, Francesco, Farina, Nicolas, Knapp, Martin, Stevens, Madeleine, Thornicroft, Graham, Wilson, Emma, Salcher-Konrad, Maximilian, Yang, Lawrence H., and Evans-Lacko, Sara
- Subjects
- *
DISCRIMINATION (Sociology) , *DEMENTIA - Published
- 2023
- Full Text
- View/download PDF
41. Nesidioblastosis with delayed diagnosis and post-operative complications in a patient with complex psychiatric history
- Author
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Lee Ann Santore, Soumya Mandava, Gloria Lee, and Mason Chacko
- Subjects
Comorbidity ,history of psychiatry ,stigma and discrimination ,borderline personality disorder ,anorexia nervosa ,Psychiatry ,RC435-571 - Abstract
Nesidioblastosis is a rare condition of organic persistent hyperinsulinaemic hypoglycaemia, with fewer than 100 cases since it was first recorded. However, an increasing prevalence suggests previous underdiagnosis due to poor knowledge and awareness. This case describes the presentation, clinical decision-making and unique challenges in diagnosis and care of a 21-year-old female with nesidioblastosis and extensive psychiatric comorbidities. She was repeatedly misdiagnosed until 2021, despite having presented to emergency departments with hypoglycaemic symptoms for over 7 years. Her symptoms were often misattributed to behaviours secondary to restrictive anorexia nervosa and borderline personality disorder. Even after appropriate diagnosis and management, she suffered a complicated post-operative course. Patients with psychiatric comorbidities are at higher risk of distress, communication difficulties and inadequate social support, all of which could be better managed with increased multidisciplinary collaboration between endocrine, surgery, psychiatry, pain management and social work. This study highlights the importance of well-rounded patient care that addresses all facets of patient health. This approach not only improves quality of care, but also reduces overall readmissions, revisions, morbidity and mortality.
- Published
- 2023
- Full Text
- View/download PDF
42. The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)
- Author
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Jem Bhatt, Elaine Brohan, Drew Blasco, Déborah Oliveira, Ioannis Bakolis, Adelina Comas-Herrera, Francesco D'Amico, Nicolas Farina, Martin Knapp, Madeleine Stevens, Graham Thornicroft, Emma Wilson, Maximilian Salcher-Konrad, Lawrence H. Yang, and Sara Evans-Lacko
- Subjects
Stigma and discrimination ,epidemiology ,low- and middle-income countries ,rating scales ,dementias/neurodegenerative diseases ,Psychiatry ,RC435-571 - Abstract
Background The recent World Health Organization (WHO) blueprint for dementia research and Lancet Commission on ending stigma and discrimination in mental health has identified a gap around dementia-related measures of stigma and discrimination that can be used in different cultural, language and regional contexts. Aims We aimed to characterise experiences of discrimination, and report initial psychometric properties of a new tool to capture these experiences, among a global sample of people living with dementia. Method We analysed data from 704 people living with dementia who took part in a global survey from 33 different countries and territories. Psychometric properties were examined, including internal consistency and construct validity. Results A total of 83% of participants reported discrimination in one or more areas of life, and this was similar across WHO Regions. The exploratory factor analysis factor loadings and scree plot supported a unidimensional structure for the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). The instrument demonstrated excellent internal consistency, with most of the construct validity hypotheses being confirmed and qualitative responses demonstrating face validity. Conclusions Our analyses suggest that the DISCUS-Dementia performs well with a global sample of people living with dementia. This scale can be integrated into large-scale studies to understand factors associated with stigma and discrimination. It can also provide an opportunity for a structured discussion around stigma and discrimination experiences important to people living with dementia, as well as planning psychosocial services and initiatives to reduce stigma and discrimination.
- Published
- 2023
- Full Text
- View/download PDF
43. Use of 'acute behavioural disturbance' in mental health records: differences over time and by ethnicity in a London NHS mental health Trust.
- Author
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Polling, Catherine, Das, Preety, Ariyo, Kevin, Creary, Natalie, and Smith, Shubulade
- Subjects
- *
DISCRIMINATION (Sociology) , *PSYCHIATRIC records - Published
- 2023
- Full Text
- View/download PDF
44. A survey of the workplace experiences of police force employees who are autistic and/or have attention deficit hyperactivity disorder.
- Author
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Tromans, Samuel J., Drewett, Alison, Lee, Paul H., and O'Reilly, Michelle
- Subjects
- *
AUTISM spectrum disorders , *ATTENTION-deficit hyperactivity disorder , *POLICE - Published
- 2023
- Full Text
- View/download PDF
45. Take patients seriously when they say financial incentives help with adherence.
- Author
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Hodson, Nathan, Majid, Madiha, Vlaev, Ivo, and Singh, Swaran Preet
- Subjects
- *
MONETARY incentives , *PATIENT compliance - Abstract
Small financial incentives have been proven effective at promoting healthy behaviours across medicine, including in psychiatry. There are a range of philosophical and practical objections to financial incentives. Drawing on the existing literature, specifically attempts to use financial incentives to promote antipsychotic adherence, we propose a ‘patient-centred’ view of evaluating financial incentive regimes. We argue that there is evidence that mental health patients like financial incentives, considering them fair and respectful. The enthusiasm of mental health patients for financial incentives lends support to their use, although it does not invalidate all objections against them. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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46. Establishing a business case for setting up early detection services for preventing psychosis.
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Napoletano, Flavia, Andlauer, Olivier, Murguia-Asensio, Silvia, Eranti, Savithasri V., Akyuz, Elvan, Estradé, Andrés, Buhagiar, Jonathan, David, Christine, Fusar-Poli, Paolo, and Gupta, Susham
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- *
PSYCHOSES , *EARLY diagnosis , *EXTERNALITIES - Abstract
Under standard care, psychotic disorders can have limited response to treatments, high rates of chronicity and disability, negative impacts on families, and wider social and economic costs. In an effort to improve early detection and care of individuals developing a psychotic illness, early intervention in psychosis services and early detection services have been set up in various countries since the 1980s. In April 2016, NHS England implemented a new ‘access and waiting times’ standard for early intervention in psychosis to extend the prevention of psychosis across England. Unfortunately, early intervention and early detection services are still not uniformly distributed in the UK, leaving gaps in service provision. The aim of this paper is to provide a business case model that can guide clinicians and services looking to set up or expand early detection services in their area. The paper also focuses on some existing models of care within the Pan-London Network for Psychosis Prevention teams. [ABSTRACT FROM AUTHOR]
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- 2023
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47. Role of viral suppression in HIV treatment and prevention and its potential in addressing harmful laws and discrimination.
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Seale, Andy, Baggaley, Rachel, Vojnov, Lara, and Doherty, Meg
- Abstract
The World Health Organization's (WHO) global public health mandate includes a focus on expanding access to HIV testing, antiretroviral therapy (ART) and treatment monitoring to improve the clinical management of HIV, achieve sustained viral suppression, and prevent HIV-related incidence, morbidity, and mortality. This article documents key moments in research and WHO policies that have informed how ART is applied within HIV programs, including as a prevention tool with the potential to support efforts to address HIV-related discrimination. For more than 20 years, WHO has promoted the benefits of HIV treatment including as part of the approach to prevent the mother-to-child transmission (vertical transmission) of HIV. WHO guidance has followed, and continues to follow, the evolving evidence. In 2023, WHO continues to clarify that there is zero risk of sexual HIV transmission when a person living with HIV has an undetectable viral load and an almost zero or negligible risk of sexual transmission when a person living with HIV has a viral load of =1000 copies/mL - helping to evolve the focus of community campaigns and health worker training to include a focus on 'virally suppressed' while also continuing to emphasise the ultimate goal of achieving an undetectable viral load. This evolution does two things: first, it strongly reasserts the evidence around there being no chance of transmission if a person has an undetectable viral load; and second, it provides an extremely strong degree of confidence that, similarly, individuals who are virally suppressed will not pass on the virus sexually. WHO is now encouraging positive and clear messaging to highlight that the consistent use of ART prevents onwards HIV transmission. [ABSTRACT FROM AUTHOR]
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- 2023
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48. The phantasm of zero suicide.
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Sjöstrand, Manne and Eyal, Nir
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SUICIDE ,SUICIDE risk factors ,SUICIDE prevention ,NONGOVERNMENTAL organizations ,HARM reduction - Abstract
Governments and non-governmental organisations are increasingly adopting a 'zero-suicide' goal, but what such a goal precisely involves is unclear. Ostensibly it strongly prioritises the prevention and elimination of all suicide. We argue that, so understood, a societal goal of zero suicide risks contravening several ethical principles. In terms of beneficence and non-maleficence, a 'zero-suicide' goal risks being inefficient and may burden or harm many people. Autonomy-wise, a blanket ban on all suicide is excessive. As regards social justice, zero suicide risks focusing on the symptoms of social malaise instead of the structures causing it. With respect to transparency, a 'zero' goal that cannot be met makes these authorities look detached and risks frustration, distrust and, worse, stigmatisation of suicide and of mental health conditions. Instead, we propose a middle path for suicide prevention, founded on harm reduction, 'soft group paternalism' and efforts directed at increased quality of life for disadvantaged groups. Although soft group paternalism respects autonomy, this approach permits coercive interferences in certain circumstances. We hope that the justificatory framework tying together these largely familiar elements is novel and sensible. [ABSTRACT FROM AUTHOR]
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- 2023
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49. Mental Distress and Human Rights Violations During COVID-19: A Rapid Review of the Evidence Informing Rights, Mental Health Needs, and Public Policy Around Vulnerable Populations.
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Rahman, Muhammad, Ahmed, Rabab, Moitra, Modhurima, Damschroder, Laura, Brownson, Ross, Chorpita, Bruce, Idele, Priscilla, Gohar, Fatima, Huang, Keng, Saxena, Shekhar, Lai, Joanna, Peterson, Stefan, Harper, Gary, McKay, Mary, Amugune, Beatrice, Esho, Tammary, Ronen, Keshet, Othieno, Caleb, and Kumar, Manasi
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LMICs (low and middle income countries) ,health care worker [non-MESH] ,human rights ,lockdown ,mental and behavioral health ,stigma and discrimination ,vulnerable populations - Abstract
Background: COVID-19 prevention and mitigation efforts were abrupt and challenging for most countries with the protracted lockdown straining socioeconomic activities. Marginalized groups and individuals are particularly vulnerable to adverse effects of the pandemic such as human rights abuses and violations which can lead to psychological distress. In this review, we focus on mental distress and disturbances that have emanated due to human rights restrictions and violations amidst the pandemic. We underscore how mental health is both directly impacted by the force of pandemic and by prevention and mitigation structures put in place to combat the disease. Methods: We conducted a review of relevant studies examining human rights violations in COVID-19 response, with a focus on vulnerable populations, and its association with mental health and psychological well-being. We searched PubMed and Embase databases for studies between December 2019 to July 2020. Three reviewers evaluated the eligibility criteria and extracted data. Results: Twenty-four studies were included in the systematic inquiry reporting on distress due to human rights violations. Unanimously, the studies found vulnerable populations to be at a high risk for mental distress. Limited mobility rights disproportionately harmed psychiatric patients, low-income individuals, and minorities who were at higher risk for self-harm and worsening mental health. Healthcare workers suffered negative mental health consequences due to stigma and lack of personal protective equipment and stigma. Other vulnerable groups such as the elderly, children, and refugees also experienced negative consequences. Conclusions: This review emphasizes the need to uphold human rights and address long term mental health needs of populations that have suffered disproportionately during the pandemic. Countries can embed a proactive psychosocial response to medical management as well as in existing prevention strategies. International human rights guidelines are useful in this direction but an emphasis should be placed on strengthening rights informed psychosocial response with specific strategies to enhance mental health in the long-term. We underscore that various fundamental human rights are interdependent and therefore undermining one leads to a poor impact on the others. We strongly recommend global efforts toward focusing both on minimizing fatalities, protecting human rights, and promoting long term mental well-being.
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- 2020
50. Serenity Integrated Mentoring and the High Intensity Network: a scheme that raises serious questions for practice and governance in UK psychiatry
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Allan House
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Suicide ,crisis services ,stigma and discrimination ,service users ,psychiatry and law ,Psychiatry ,RC435-571 - Abstract
Serenity Integrated Mentoring (SIM) involved the police and mental health crisis services working in a single team, developing case management plans that allowed a seamless move from offers of therapeutic engagement (by the mental health team) to use of coercive measures (by the police) with those who persisted with frequent crisis presentations. Withdrawn after widespread criticism, the scheme raises important questions – about the practice of mental health professionals who are involved in decisions about using criminal sanctions for people presenting in crisis, about the ethical and legal status of the sharing of confidential clinical information with the police, and about the processes that professional bodies use in promoting, monitoring and responding to controversial service developments.
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- 2023
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